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Living With Fibromyalgia - Online Support Group

Struggling to cope - I feel like I am barely surviving, thriving is not even a possibility

The last few days have been rough - the pain flared up and my activity levels bottomed out. I’ve maxed out on Tylenol, Aleve and Ibuprofen and it barely takes the edge off. I went to church yesterday and pasted a “everything is great” smile on my face but I know it didn’t really hide the pain. Then I came home and slept for 3 hours. I probably would have slept longer than that but my nap was interrupted.

I was trying to take it easier today (and ignore the work that needs done); took another nap this morning and was just beginning to think I might be seeing a light at the end of the tunnel - then I discovered it was only another train. :roll_eyes: My son learned they were starting a new job tomorrow - he does roofing and carpentry work - AND they would be leaving tonight. The job is a couple hours away so they are staying there during the week and coming home on the weekends. We had only a few hours to get his tools and clothes, etc. packed, which of course meant a trip to town to do laundry and pick up supplies. At least he had that much warning but it left us scrambling.

And now I am really flaring. :frowning_face: My back and ribs feel like they are in a vise grip and my back keeps spasming. And I feel like I should be asking someone if they got the license plate of that truck?

I have so much that I need to do, yet I simply can’t keep up. There is always the daily dozen - dishes, meals, chasing dust bunnies, etc. And I can never seem to get it all. The lawn needs mowed or more accurately maybe cut and bailed as prairie hay at this point. I was hoping to get it mowed before he left but the work schedule last week meant it would have to wait till the weekend - and then storms derailed it then. So now it will be at least another week before it happens. I can help mow, if I am not flaring and I take frequent breaks, but I can’t pull hard enough any more to get the mower started. We’ve talked about get an electric start mower but well that’s not an option yet.

I guess I am having a pity party tonight. I try hard to not let it get me down, to focus more on what I can do rather than what I can’t, etc. But recently I am having a hard time with it. I really need to have some income. Right now I am a stay at home mom (I get child support and my son helps contribute some to household expenses) but I seriously wonder if I can work anymore. Work around here is harder to get anyway (being we are rural you are going to have a lengthy commute regardless of the job) but then with everything else . . .

I was able to find a job last spring but wasn’t able to keep it. By the end of the 3rd day my boss was thinking I might need a trip to the ER and “suggested” that this might not be working out and we agreed I would not be coming back in. It was weeks before I began even seeing improvement. Now I “manage” things with Tylenol, Aleve and Ibuprofen, muscle creams, etc. and by restricting my activities. I have lost so many things that I once enjoyed. :sob: How do I work when I can’t even keep up with routine housework?

I have dealt with this for nearly 14 years and feel like I should be able to handle it better but it seems like I am struggling just to cope, to survive. I am trying to work with a doctor but feel like I am getting a run around there. I also have limited funds (and no insurance) for doctoring, so not sure how much I can really do anyway.

I am So Sorry that you are going through all this. & I don’t know what to say. Rural, I also live in a rural area. Is there any “larger” towns that you can go to or maybe get some ph #'s… Try the local school counselor, tell the person that you are at your wits end & Need ph #'s to get yourself help. Help: Dept of Human Services Food stamps, Mental health therapy, Housing help, Electrical help, I once had a church in Lincoln that adopting my little family, maybe find someone who can help mow, a boy or girl scout trying to earn a badge, the local AA, yes this sounds odd but part of their rules have “steps” one of the steps is reparation if they cannot for a relative or friend they can help with mowing, moving etc. I Hope I am giving you Hope. We are Here. Keep coming back, Vent if you Need to. Just do Not give up. Love, Light & Peace. Maggi.

Please take care of yourself. Depression makes it worse. You sound like me a few years ago. It can take time to find what works. For me it’s been fixing things asymptomatically. And having doctors that not just listen but hear you and want the best for you. My main doctor does research in diabetes and osteoporosis so he is always ready to learn from his patients. Sometimes he gets a bit T’d off with the insurance companies and drug companies. It has made a big difference. If you want to message me my ears are always available to listen. Sharing also helps.