so I am not sure if there is anyone who can empathize with what I am feeling but hey let's give it a go.
I work full time and am always on my feet, this is kind of a challenge because of my severe fibro and I constantly just wanna curl up into a ball. On days where I am actually not working (one day off a week), I am so burned out that all I can do is be on my computer like I am right now, lie in bed and watch movies and most of all cat nap throughout the entire day. I know. Thrilling. I am only 22 and all of my friends have super active social lives, they want to see me do more on my days off, and believe me I want to. But how do you have fun and function properly on your one day off when all you would like to do is rest and sleep? I have said it before, but again I will say it. Fibromyalgia is definitely an isolating chronic disease. It seems impossible for those who don't have it to look into the life of someone who does without judging and poking at them. I would love to be more active, go hiking, ride my bike, socialize with my friends and even stay out late having a blast. But I feel like that will never happen because this reality of pain, fatigue, brain fog, muscles spasms, aches, everything will always take top priority even when I try to push past it.
Does anyone else feel this way?