I am new here and love "hearing" all the different stories regarding diagnosis and symptom treatments. My journey began around 2006 and today I still battle pain. I had a drunk driver roll me down the highway 7 times in Jan 2010, so on top of the fibro I had bulging discs and compression in my cervical and lumbar spine, I had a fracture at T7, I also have a brain sheer on top of the Fibro fog. Somehow all the Missouri doctors missed everything wrong with my brain and spine. We moved to Arkansas, my home state in 2012 and stumbled upon a wonderful network of doctors and a home church with a ladies group that are a life boat in the storm.
At first all the doctors agreed that I had Progressive MS as all symptoms pointed in that direction. They were shocked when the brain and spinal MRI came back with all issues stated above but no signs of MS. So they all agreed I needed a spinal tap...oh what fun...NOT. That came up clear.
I am now on a slew of meds that make life tolerable. My PCP offers me OXY every time as this will help with my now constant flare but my half sister has been strung out on them for years and I just refuse. Between the Fibro, the CFS, and the spine/brain issues and PTSD from the wreck, I can't even remember if I ate breakfast.
I have been fighting for SSD since 2010 because my original PCP in Missouri decided he made a mistake and there was nothing wrong with me. I can't walk more than 200 feet before I am in my wheel chair. I sit in a chair to cook, do dishes, or do anything else. I don't cook without supervision. I don't do anything without supervision.
I am just so tire of being sick and tired but I have 3 beautiful grandsons and 1 beautiful new granddaughter. They keep me going. I also have a wonderful, compassionate, and caring husbands who takes our vow of "for better or worse and in sickness and health" very serious.
If I could give just one piece of advice...Get a good Psychologist!!!