I guess I did this backwards. I responded to posts before introducing myself, again, to the forum. I’m a returning member. I was here before it was a 501C (3) organization. Like some of you, I started getting emails about the activity on the website, so I decided to “re-join”.
I’m not exactly sure when/how I managed to get this horrid disease/malaise/syndrome—take your pick. Sometimes, I think I was born with it. But then, I remember that I was diagnosed with what doctors today call silent rheumatoid arthritis. That’s when the disease attacks without leaving outward traces or popping positive on tests. (Which it did pop positive when I was 21.) I was, by the way, born with a protein rash, if that has anything to do with my eventually getting fibromyalgia. I recently found out that a male cousin on my mother’s side of the family has fibro. So, I have to wonder if there isn’t something to the genetic side of things. I have a doctor who accepts this as a disease and treats it as such. Yahoo!
I’ve begun to have an affinity for the Princess in the fairytale “The Princess and the Pea” because I know exactly how she felt. Before having to abandon my bed for my recliner to sleep in, there were times where I could not stand the sheets resting on my skin. I cannot hug people. Physical contact with other human beings is something I have to forgo. My husband is THE most wonderful person in the entire universe. (We’ll be married 16 years this year and he knew about the fibro when he asked me to marry him.) I have found that living at sea level (lower atmospheric pressure) helps with the fibro. However, it turned out to be an arthritic weather ”vane”. I’d rather deal with the weathervane.
I do have mid to lower back issues for several reasons. I was in a train wreck, the fibro twisted my muscles so tight they were bulging my discs and I have arthritis. I have vertigo. An ENT has tests that have tied it to fibromyalgia. And, oh yeah, by the way everyone, there is an ENT in NE Texas (or there was in 2008) that says he can definitively diagnose you with fibromyalgia with his tests. I’m not sure how, I was there to find out why, as hubby said, I had an ocean-going disease when I was land locked. Needless to say, the fibro has progressed to the point where it has invaded the nerve endings in my inner ear. If stress gets really bad or I listen to music using my over-the-ear headphones too long (more than 3 songs in an hour is too long ) vertigo will ensue. ::: Deep breath, sigh :::
Of course, there’s more . . . with this disease there’s always more. I’ve bent your ear enough, or whatever the equivalent is for eyes, for now. Thanks for the tolerance and acceptance when it comes to this “invisible” disease. It’s in short supply these days.