I keep looking for poems to help me to understand, cope with my fibro and for me to show to friends as I believe some of them explain it better than I ever could.
So I picked my top 3 I read today and will keep adding as I find more and encourage you to comment with the poems you've found or written.
If you could live in my body,
just for a day,
maybe you wouldn’t think
that I feel okay.
You might understand
what it’s like to be tired
by just trying to live,
just doing what’s required.
If you could live in my body
you might begin to see,
that a simple drug
won’t set me free.
If you could live in my skin
you’d learn to understand
that it’s not in my head,
nor was it planned.
I don’t want your pity
or to make you resent.
But I don’t need to apologize,
or have your consent.
I am sick and I’m tired
every single day,
and it won’t help to ignore it.
So listen when I say:
it helps when I relax
with a friend and some tea.
You can’t understand
but please, believe me.
Submitted by Beth Turner, © butyoudontlooksick.com
Fibromyalgia is Real
Fibromyalgia is real
There is no doubt
If you don’t believe it
Here’s what it is all about !
It’s about being a professional
At the top of your career
And losing your future
In less than a year
It’s about having unrelenting pain
No one can figure out
Having test after test
That shows nothing but doubt
It’s about knowing your pain is real
And fighting for your rights
Being so upset and frustrated
Getting no sleep so many nights !
It’s about trying to find the right doctor
Who can offer you some hope
Who knows what it’s all about
Who can give you what you need to cope !
It’s about learning to live again
With a whole new personality
Letting go of the person you once were
And facing a whole new reality !
It’s about losing friends and family
Because they think “it’s all in your head”.
But truth be known, there are days
You hurt so much, you can’t get out of bed !
It’s about setting new priorities
“So what if there is dust”
You have to take care of yourself now
And do only what you must !
It’s about holding on to hope
Each new day could bring a cure
It’s holding on to this hope
That will raise your mood for sure !
It’s about being thankful for the few
Friends and family that are true
Believing and hoping for a miracle
Praying for strength to make it through !
© 2004Kammy Salmon
Pain is quite invisible
And it's just like the air.
'Cause while you can not see it
There's no doubt that it is there.
Perceptions of pain differ,
In that my headache may feel
Quite different from the one you have.
But both are very real.
You can't diminish someone's pain
By saying, "It's not that bad."
Unless you're there inside their skin,
You can't know the pain they've had.
There's pain that prickles, pokes and prods.
And pain that's underrated,
Pain so intense and piercing
That it screams to be sedated.
If someone tells you they're in pain
They likely mean what they say.
So please don't scoff or laugh or scold.
It could be you someday.
FMS pain is relative
To the pain of the hour before.
There's pain that knocks us off our feet,
Or sneaks in the back door.
We'd rather our pain weren't relative
'Cause relatives stick around.
Better it were a stranger
Who'd pack its bags and leave town.
Written by Sue Jones,
Author of Parting The Fog