I was recently diagnosed with fibromyalgia. I'm still in the process of accepting the fact that I suffer from such a painful, dibilitating illness at such a young age. I guess I have always thought that I would be active and pain free AT LEAST until I'm 60 lol. Nieve.
I was diagnosed with costrochondritis about a year ago. Initially, I was told that the condition only lasts a couple of weeks, maximum. It wasn't until 6 months of constant pain, pertruding ribs, and frequent flairs that my doctor decided to look into it further. After explaining that my pain was more than what was associated with my ribs, that I have dramatic mood swings, RLS, memory loss, joint stiffness, chronic "charlie horses" in my neck and on the side of my knees into my calfs, fatigue and restlessness; my doctor finially began the process of elemination. I had a complete bone scan, x-rays, MRI, CAT scans, countless blood panels, Nerve tests, etc. His conclusion-Fibromyalgia.
I also have some sort of digestive issue going on. I'm not sure if it is fibro related, as I don't know much about my new diagnoses. However, I have undergone a thyroid biopsy, upper endoscopy, and will soon have a colonoscopy. I'm 6'1 and weighed 190lbs when this all started. Within 3 months, I dropped to 157lbs without trying. I have managed to gain 10lbs over the course of 9 months, but that was a HUGE challenge. I'm full easy, have constant bloating, abdominal pain, and when I do manage to eat a complete meal I'm sick within 20-30 minutes of completing it.
I feel like I no longer know myself. I can't stand myself most days. I'll be completely fine one minute, and the next I'm either aggrevated, mad, or sad. My patience for people in general is at an all time low. I can't have an indepth conversation, remember where I put my keys, half of the time I walk in a room and can't remember why I'm there. My vocabulary seems to be dissipating. Sometimes I can't even remember how to spell simple words, let alone speak them.
My doctor has tried nearly every medication out there with me. I'm currently taking a low dose of oxycodone for my pain. He has put me on cymbalta, but I can't take it during the day...as it makes me too sleepy to work. I try to take it at night, but when I get home from work (midnight) I go straight to bed and forget to take it. Same with the lyrica.
Has anyone else struggled with the stomach issues? Costrochondritis? What meds have you found work best? Is there a way to "beat" this fibro fog, mood swings, fatigue? Any suggestions would be greatly appreciated, as well as hearing how you deal with daily living. I look forward to building new friendships here, as we help and encourage one another along our journey with this illness.