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Living With Fibromyalgia - Online Support Group

Neurogenx Nerve Center

#1

I’m just wondering if anyone has tried this treatment? I’m sick of being in pain. I’d really like to feel like I get some rest when I sleep and sleeping longer than 30 to 90 minutes at a time and not be in extreme pain! I can’t remember what that feels like anymore.

Enough of my rant. Sorry, just I’m so frustrated with FMS and how it interferes with my personal and professional lives. I found one of these centers in my state and this morning my husband and I drove 3hr to have a free consultation. I have been trying to get my pain specialist to find a fix or my PCP for 2 yrs. Then last June in the same week I was told by my pain specialist that I’d be in pain for the rest of my life and I needed to find a way to deal with that! I cried all the way home. Here’s the kicker, she never said I had FSM. A few days later I saw my PCP and she said that she feels that it’s Fibromyalgia and she wanted me to see additional doctors. She’s out of her area of expertise and wants to consult with several specialists. So after a horrible week at work and the doctor’s office I went online and found these centers and reseached their research. Seems like the facts support the outcome.

After meeting with the doctor, who listened to me, gave me eye contact, respect and respond emotionally to what I was saying about where, when, how often and how much I hurt, I agreed to accept the offer of a complementary treatment today. They treated from my neck (about C4 to my tailbone) for about 40 minutes. When I told the doctor that I felt it only in my mid to upper back, neck and shoulders, he has the patches moved and continued treatment for another 20mins. It’s hard to put into words how and what I was feeling but I was feeling very little pain. I could bend at the waist and wiggle my hips when I walked. I even tried to get my husband to dip me…no luck there! :frowning:

The pain stayed at that level for just over 9hrs. Now, it’s almost completely back to where I was…but I’m seriously considering doing the 24 treatments over a 12 week period with 3 additional follow ups 3 months apart. Has anyone else every done this or anything similar?

The light at the end of the tunnel is back… :slight_smile:

#2

Hi. I read your post twice but didn’t find the name of this treatment. I will check back again later. Thanks
HUGGGGGGGGGGGD
Suzie

#3

Go to www.neurogenx.com from there you can request an appointment online or call. I requested my appointment online and they called me. I was in 2 days after I spoke with them. “The Neurogenx Treatment safely uses cutting-edge, patented, high-frequency electronic waves to gently reach deep down through muscle and tissue to relieve neuropathy symptoms and severe neuromusclar pain. The Neurogenx Technology is FDA-cleared and clinically-proven as an effective treatment for nerve pain in the feet, legs, hands and arms.” Direct quote from the website.

I’m back to being in the same pain I was but those 9 hours of being nearly pain free…were priceless. My husband and I have decided to give it a try. Insurance doesn’t cover this but they gave us a lot of options that we can choose from. Including a no contact option so if it doesn’t seem to be working like it did yesterday, i can stop treatment and not have to pain for any treatments i didn’t receive. It’s not cheap but 1 treatment is less than what we pay for 1 month of my Rx’s. I’m like you, I’m willing to try anything for some relief even if it’s just brief periods of time. I went into the appointment very sceptical about it working. I was in minor discomfort during but absolutely nothing like the pain i live in every day, every hour and nothing my doctor’s tried has come close to how I was feeling yesterday. My consultation and 1st treatment was free and there was no pressure put on us to return. I was just told to drink a lot of water for the next couple days and to avoid NSAIDs.

Hope this is a bit more informative. Best wishes for happier days :slight_smile:

#4

Thanks for telling me the name of this. I have been perusing the info on the net but don’t have an opinion yet. However one thing I can tell you for sure is that if it is not insurance covered most disabled, out of work people would not be able to try it if they even wanted to. All the best to you.

HUGGGGGGGGS

Suzie

#5

I understand that one. But I’m looking into that too. It’s going to be a while for me to get all the information I need but once I know it I’ll be letting everyone here know.

My husband’s family has a lot of cancer issues. We just lost his uncle Saturday. Diagnosis to death in less than 3 months. But as sad as that is, it’s opened a very small door of communication between my husband and his father. His father was on his death bed when we met but made a near miracle recovery. They spoke for the first time in years. He was forced to retire because of his health and whatever kind of insurance coverage he had was lost but he was put in contact with a group that now pays for all his doctors appointment and treatments and also for his monthly medications, which he said are over 10k a month. I’m hoping to get the opportunity to speak with him at the funeral and find out who, what and how. The $4800 for 24 treatments isn’t an extreme cost and even with the payments being spread out over 12 months, we’re going to have issues paying for the treatments. We have 5 kids and i just recently returned to work so we’re still not caught up and in a good position for this.

I will let you know what if anything that I can find out.

:slight_smile:

#6

That’s ok. I do a lot of research on my own. I am not so quick to opine or get involved in something that costs almost $5000. I would need a heck of a of of information and I just have not found it. I wish you akk the best!!!