SO SORRY FOR THE LENGTH OF THE POST AND I WON'T DO IT AGAIN.......I JUST WANTED TO SHARE MY STORY IN HOPES OF FINDING SOME SIMILAR EXPERIENCES......
I am a 36 year old male who has been "diagnosed" if you will with FM. For as long as I can remember, I have had a problem with arms, legs, etc. "falling asleep" easily or holding things, but thought nothing of it and passed it off as being normal. Then everything really started in 2008 when I had a car accident, crushed my T-12 vertebrae and spent a month in the hospital, followed by months of physical therapy, and continuous lower back pain (go figure). For years after that it was anxiety meds, antidepressants, and whatever else doctors felt I needed for the feelings that were basically in my head.
I eventually returned to some usual activities (in conjunction with antidepressants and anxiety meds) in fact became healthier than ever! Working out, toning up and gaining muscle, eating better, I felt pretty good, but something was still 'off'. In 2014 I started having severe abdominal pain that led to uncountable tests and my gall bladder being removed; pain still there so was diagnosed with IBS and GERD and put on more medications. A few months ago I started seeing an autoimmune doctor just for the heck of it....my condition stumped him as ALL and I mean EVERY ONE of my blood tests are normal. He said there is no logical reason to be experiencing what I am! (He put me on Naltrexone to see if it would help).
I got SO fed up with all my medications I quit Celexa, Librax, Protonix and now I take Klonopin, Naltrexone, and Lyrica. I couldn't go to the gym because my joints hurt so badly. I would wake up so stiff and sore I could barely move. One morning I woke up and hurt so bad I had to lay back down and couldn't even cover up with a sheet because the feeling of it on my body drove me up a wall!
I went back to my primary and told them everything and they suggested trying Lyrica that it might be FM. Although they haven't officially made that their diagnosis, Lyrica seems to help some (only been on it a week) and I asked for referral to someone that knows and deals with FM so they are putting in referral to Rheumatologist.
I don't know if any of this is similar to others stories and I kinda of hope they tell me its FM and get me on a regimen that works because it is so frustrating going for years bouncing from doctor to doctor with no real answers!
Here are some symptoms I currently experience:
- Morning Stiffness
- Weak, painful joints (especially elbows and knees)
- Back and forth between full body tingling then burning sensations
- Stiff hands
- Back and Side pain
- Stiff neck
- Hands and feet fall asleep (holding coffee cup makes hand tingle and fall asleep)
If you read through this entire post then I must say 'Thank You'. It means a lot to find people that might have similar experiences that can offer support and guidance. I appreciate you and this site allowing someone like me to open up.
Feel free to ask questions or contact me in any way for any reason.