Has anyone with Fibromyalgia been tested for the MTHFR gene mutation? The more I read about it the more I think I need to be tested. One of they symptoms is Fibeomyalgia.
I have never heard of this, but after reading about it I’m going to ask my doctor to test me for it. Going through symptoms and things that can be part of it, it sounds exactly like me. Including miscarriages, anxiety (my whole life), and I have another autoimmune disease besides fibromyalgia. Thank you for posting your question!
Wouldn’t it be nice if we didn’t have to do our own medical research. I also have breast cancer and did reconstruction with silicone implants. I read that you should always be tested for the MTHFR mutation before having silicone placed in your body since it affects the way your body detoxes.
Yes, Jwags, it would be nice. I know my docs have been extremely thorough with bloodwork and testing for the fibromyalgia and my other disease. It makes me wonder if it is a really expensive test and the problem is more red tape, than them not following through? It wouldn’t be the first time.
What blood tests did you get for your Fibeomyalgia? My doctor didn’t run any labs at all. I get really mad at my doctors sometimes. I have so many medical conditions and so many specialists that no one looks after my overall health. I remember asking my ONC to order a vit D test and he said NO. Now that I have Osteoperois they run them regularly. Many times my doctors won’t run certain labs unless there is a medical necessity,
Well, my primary ran all the basics, plus something to check for rheumatism and inflammation. Then my rheumatologist checked for Parvo (yes, people can get a form of it, not like dogs), ruled out fifths disease and a few other things I can’t remember. I don’t believe either of them tested for MTHFR though and don’t see it in either of my doctors portals.
I see my RheumTologist is May I may ask her to run the tests. My GP just does thw normal tests once a year.
I was tested and have the MTHFR fault, thankfully only one gene affected, so I’m only on the SAMe supplement 1 week out of 4.
My GP didn’t do the test, I got it done through a wholistic therapist. Only cost about $70AU, so not really an expensive test.
I’m just not sure how well known the problem is for GP’s without specialist training.
I’ve been looking into being tested for the MTHFR gene mutation, the more I read into it the more it makes sense, especially looking at family history. Never had any doctors bring it up, it would really be nice if we didn’t have to do our own medical research! So far all that’s come up for testing is paying a company to do it, not entirely sure how reliable that would be. I didn’t know holistic therapists were able to that, definitely will be checking out the ones locally!
Thank you Jwags! I never heard of this mutation before and will ask my Dr about it on my next visit. As far as other blood work, my PC ordered blood tests to rule out other diseases my symptoms could be be indicating and referred me to a Rheumatologist when the test for Lyme Disease came back negative (which is what I thought I had). That was over 20 years ago and I was very lucky my PC was familiar with Fibro.