Hi I’m new on here. I’m really looking for anyone who can relate to my pains and hopefully get some inspiration to get back to me!
I was diagnosed with fibromyalgia a almost 2 years ago.
I had pushed through the pain as I’ve always been in heavily physical demanding jobs and long hours. I had dealt with sciatica and thought that was getting worse. When I eventually went to the doctor it was because I had got so bad I’d collapsed during work and after couldn’t move for days with the pain.
I’m heartbroken with the way it’s changed my life. I was a really active person. Climbing, hiking and kickboxing. I love music and go to a lot of gigs but now I can’t stand for the duration of a gig so I don’t go out before it, can’t stay for the whole set and go home feeling I’ve missed out. I can’t do any of the sports I’ve enjoyed in the past and I feel like I’m not a shadow of who I really am.
With me it is mostly nerve pain. My feet are the worst and are normally the indicator of how bad I’m going to be during a flare up which come from nowhere sometimes. They swell and tighten if im on my feet for over a hour. The nerve pain just shoots all over my body and I spend a lot of time trying to settle the pain.
I’ve been on Amitriptyline for over a year but I always need to top up on pain killers so I don’t think it’s working for me although I am a lot better that I was when I was diagnosed. Today I was given a prescription for Gabapentin.
Can anyone relate to this story?
Have any suggestions to get me back to my active life?
I don’t want to take tablets so has anyone been able to find another way to tackle the nerve pain?
Any suggestions I will take on board.
I’m determined to not let this beat me but I do find it exhausting and I’ve lost a lot of friends through my pain because I just can’t do what I used to do and because it’s not visible the pain I’m in and some days are better than other some friends have taken offence when I repeatedly go home early especially if I’ve been active that week or previously. Then I have to spend days recovering and I can see why it may seem like I’m just avoiding people but it’s just such a hard condition for people to understand.