JayCS’s Fibro Blog

2022-09-10, Saturday - Energy 8% / Sleep 85% / Feeling 80%-ish (maybe energy isn’t increased, it’s just I’m coping better)

Successes:
:trophy: To decrease my jaw pain I can do breath-holding, also open my mouth widely:
:trophy: Focusing on decreasing it helps the inflammation :white_check_mark:
:zap: GABA clearly too high after 20:30 then 22:15! Reduce!
:ambulance: :soon: Bed “before” 10. Stop forums there.
:ambulance: :soon: Test pak choy for burning once tooth is thru.
:ambulance: :soon: Halve GABA at A1-3

Today’s symptoms sorted by the ACR 2016 criteria

Widespread pain, WPI = 11 of 19 areas: limb-Ache 8 (10%, stiff 10%) + spine-pain 3 (10%), shoulder-girdles/hips 0 chest / abdomen / jaw 0
Symptom severity, SSS = severity 9 of 12: Fatigue 3 (92%), insomnia 3 (15%), fog 2 (20%), headache 0, GI 1 (20%), depression 0

Triggers & resulting Symptoms

SLEEP (click for details): 9h23, up 7x (1h57, 40' due to silly fw), dozing 25+30=1h 🧐✅ ➔ Feeling 70-90% well, Ache 1-2 of 7 🧐/✅, getting up: 80%/2 ✅. Stuffy nostrils at night often 0%, since 2 days: 30%, 90% of the time

cold shower p1 Sleep 22:30- ear plugs
23:35 5’ 90%/1/10% p2? st1 sip fw1’ air (nostrils)
23:43 13’ 90%/1/10% p2? st1 sip fw1’ air LBU → gun, FCS#2 (nostrils)
3:00 40’ 70%/2/30% p4 st1 sip fw35’ air (nostrils) (ear plugs)
4:09 7’ 80%/2/20% p0 st1 sip fw1’ cold wash face didn’t work. (nostrils) (ear plugs)
5:03 14’ 80%/2/20% p0 st1 sip fw5’ FCS#3 jaw good, fw too much at 3, so dozing 3-5 (nostrils) (ear plugs)
6:47 25’ 80%/2/20% p0 st1 sip fw1’ 6 air Dream: pressured by work and REN there, so fw has triggered that. (ear plugs)
9:18 14’ 80%/2/20% p0 st1 sip fw1’ (nostrils) B2-4 stools (ear plugs)
-9:50
C1-3 and D2-3 and A1-2 earlier! GABA less?
Sum: 1h30+9h50-(5+12+40+7+14+25+14=)1h57 = 11h20-1h57 = 9h23, up 7x (1h57, 40’ due to silly fw), dozing 25+30=1h

ACTIVITIES (aim: 40% energy)ACHE: 80%/2 all day :white_check_mark:, just no energy…
ACTIONSPAINS: :white_check_mark: except: neck :white_check_mark:, GI :white_check_mark:, esophagus :white_check_mark:, jaw 10x5’’ :white_check_mark:!, pee pain: 17:55 p5, 18:50 p5, better after that, even before taking the evening supps 0xp1-2 :x: Also need to consider taking quercetin again, as the pee pain is still fairly high off an on without taking it.
MCAS/HIT-Symptoms/Triggers/Treatments: :white_check_mark: Fatigue better from acupuncture/sleep/cold showering as well probably as losing the CoV-antibodies. :face_with_monocle: Fatigue drastically bad = 5%, praps now 8% since the hardly painful dental treatment last Tues 6th.
Red kidney beans 230g at 20:40. No problems.
Fibro & Touch: :white_check_mark:
Covid-danger: :white_check_mark:
Weather: Indoors :white_check_mark: Outdoors :white_check_mark:.

Treatments

Docs:
Tooth on 6th. :face_with_monocle:
Cardio phoned back on 8th, I forgot to say, none of the remaining bloods (e.g. copper, B12) was any problem at all.
Immunologist via studies?
Chinese Acupuncturist - #28 on 9th, after 28 days :white_check_mark: Still good. Session #29 on 23rd.

SELF-PHYSIO (click for details): 104'

:white_check_mark: airing 5x2’, cold shower 3x(10’), cream/oil fc/ey/hd/ft 1x1’, teeth 3x2’, HWB 0x3’, breath exercises 3x1’, Timing, hunchback-pillow 20’, Y. Nidra 10’, massage gun 2x3’, neck 1+ 1x1’, neck 2 0x1’, plantar/calf stretch 1x1’, acupressure 0x1’, palpate 1’, belly 3’, back 10’, !!aloe vera 2x1’, twist-stretch 0x1’, yoga/stretching 0x1’. Don’t think I did outright breath-holding, just breathing exercises.
Combine: next?
:x: workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps Sep 5th (32 supps): Supp costs:~364€/m (Sep 8th) CHANGED: Added B2 on 10th. From 8th on I'm adding the olive leaf extract low (100mg) and slow (but +100mg daily, not weekly). Boosting some things from 7th on for tooth. Trying 1x150mg alpha GPC for fatigue from Sep 5th (recommendation on a forum), can add a few when I'm safe. Pure ATP 400mg in liquid was bad, so at most I may encapsulate & start with less, 100mg. Can't explain pee pain on Sep 4th/5th unless additional stress from a gig. Taking 1x B3 flush free since 25th, 2x from 31st (then checking homocystein). New idea: Creatine. PLANNED/TAKEN TODAY: click for details:

ZERO now: Arg, B2, Cu, Mum, Nc 1*.5g, (Nd), Pe, Ps, atm !Qc, Rib, Se, Sr 31125k, Zn.
REGULAR as of Sep 5th (32 supps): ALA .2g, alpha-GPC 1x150mg, B2 0x50mg, B3/Nia 50g, B12 5mg/4m, C 2x.5g, Cr 6x0.6g, 0(-2) DAO before meals, D3 20.000 IE = 500mcg, + K2 (MK7) 200mcg, stopped increasing that, EGCG 1x(50%, incl. theanine?).5g, EllagicA 2 x.2g (+43mg vit. C) after a short break, Fev .4g (+.2g MSM), Ga: now 4x.6g=2.4g, Gi 3x168mg, Glu: down to 0.6g, Hon (2%)x2x.4g=16mg, Luteolin .2g, Ω3 1x5mg, Mg Gly 2x50mg, Mg Mal 2x45mg, P5P 1x27mg, PEA 1x0.4g Pf down to 3x.35g, pine bark down to 1x.5g, PQQ 1, CoQ10 (ubn) 1x.1g, no Qc 0x.5g, Rs (50%) 2x.4g, Ro 2x.35g, Sa .1g, Sily (80%) 1x.5g (+83mg L-cholin) , The 2x.2g (+.15g polyphenols).
What-when-details: Updated Sep 5th (before: see the reference post)
/20:15 A1/2 “19:00” PF#1+2 GABA#1 Cr#1+2, 2 mg mal, 0-1P5P, 0x50mg B2, 1PQQ, 5ml Ω3 & 0Qc. Meal: 1xHon. Q10.
Meal -21: Gum -
/22:30 A3 “21:00” PF#3 .3-.6?GABA#2 & .3-.6?glu & 1Lut (slp!) & 0Qc 1xHon + 0 Rupafin
09: B2-4 “07:00” +ALA+1x pine bark, (teeth) +1Ro, 0Qc Rs#1 SAM-e EGCg + Fev/MSM + Sily +2The
Meal 10:-11:30 Gum 10:-11:
11:00 C1-3 “MEAL!” 2Cr#2 .6GABA#4, (C2:) 0x50mgB2, gink#1, 0 Zn, gly#1+2, 1x pine bark#2. .5gC#1 (0NAC)+PEA + Rutin + vit.D3 1/wk. + 1x alpha-GPC.
/13:40 C4 “11:00” (+2h/) gi#2 1 Ellagic acid#1
0 Meal -16:45 Gum - (D1) “12:30”
16:00 D2/3 “13:00” .5gC#2 , 2Cr#3, .6GABA#5, gink#3 DRINK!
19:25 D4 “17:00” (“meal/acids+2h”) Ellag#2, Qc#4.Rs#2, +1Ro
eve:
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; last: Apr 10th.)

The day's 16 supp-compartments (10', plus 5' making capsules), Sep 5th

Pf: 1A1+1A2+1A3, alpha GPC:C2. B2:0A1+0C2 C:C3+D3 3x2Cr: A1+C1+D2, Ell: A4,C4+D4. 4-5xGa: A2,A3,C1c2,D2, Glu: A3,c1 Gi: C2,C4,D3 2Gly:C2 Hon:A2.A3. 2Mal:A2 Qc: 0A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: P5+Q1 (->ubiquinone <150mg/d!):A2. A3: Luteolin B2: ALA+1 pine B3:Sa. B4: 2Th EGCG&Fev/MSM&Sily C2:0Cu/Zn C3:PEA+B3 (A2:Ω/Pq:meal) DAO before risky meals?
(A2:0Se), (B2:0mu), (0Nc: A3, B1,C1,C3,D2)

Development

‘Research’ today:
My ear was clogging up lately from using my ear plugs a lot, never used to have that. I remembered I used to put something like calendula essence in it, but that made it worse: This is the best tip I’ve found for that sort of ear problem (the Eustachian tube tips aren’t helping): How to Unblock Your Ears | UNCLOG a CLOGGED Ear | How to Drain Your Fluid Filled Ear - YouTube Nr. 3 is warmed up olive oil with tea tree oil as carrier in it, sounds good for my body and I have both. Maybe my wife can warm it up for me, I’m not good at that.
Lessons in self-care #418 Went to a get-together with my wife for 20 minutes, but then had to go cos of tension on jaw, head and causing nausea due to the amount of people.
Reasons to be cheerful #421 Adapting my movements to my new normal.

2022-09-11, Sunday - Energy 12% / Sleep 75% / Feeling 80%-ish

:ambulance: :soon: Bed “before” 10. Stop forums there.
:ambulance: :soon: Test pak choy for burning once tooth is thru.
:ambulance: :soon: Halve GABA at A1-3.

Today’s symptoms sorted by the ACR 2016 criteria

Widespread pain, WPI = 11 of 19 areas: limb-Ache 8 (20%, stiff 15%) + spine-pain 3 (10%), shoulder-girdles/hips 0 chest / abdomen / jaw 0
Symptom severity, SSS = severity 9 of 12: Fatigue 3 (88%), insomnia 3 (25%), fog 2 (15%), headache 0, GI 1 (20%), depression 0

Triggers & resulting Symptoms

SLEEP (click for details): 9h02, up 9x (2h19) 🧐✅ ➔ Feeling 90% well, Ache 1 of 7 ✅, getting up: 80%/2 ✅. Nostrils 30% stuffy 90% of the night. Almonds for burning stomach due maybe to alcohol in umckaloabo for the slight sore throat. Why so late again?

cold shower p0 Sleep 23:10- ear plugs TEETH
0:23 18’ 80%/2/10% p3 st1 sip fw15’ air p3 despite only 0.3 GABA!
01:51 4’ 90%/1/10% p0 st1 sip fw1’ nostrils OK till…! Also no plugs
2:16 6’ 90%/1/10%! p0! st1 sip fw1’ FCS#2 cos of unrest.
4:04 7’ 90%/1/10% p1 st1 sip fw1’ air pain/pressure ri. abdomen. Slight sore throat. Ear plugs starting roughly now.
4:30 8’ 90%/1/10% p0 st1 sip fw1’ FCS#3 cos of thumping heart, despite getting thoughts away from fw - but they’re coming back, so I shouldn’t’ve looked in…sore throat: Umckaloabo.
5:11 37’ 90%/1/10% (p0) st1 2sip fw35’ air. almonds for burning stomach, probably due to the alcohol in the umckaloabo, cos haven’t had that lately(!) and never taken note about the effect of that alcohol before. Not sure of strategy now, my skin isn’t taking the cold showers too well, burning a bit. The almonds are increasing the jaw pain, so got to get that down again. Doing some easy fw tho now, hoping to get down and tired again. Then Yo/Ni once again, I bet about an hour up to now. OK 30 mins.
6:01 40’ 90%/1/10% (p0) st1 2sip fw1’ 6? - off chance. Nope, still not tired. But cold, so hot water bottle. I can now move quickly without nausea. Dunno how long of course. Feeling too little GABA, so taking some on the tongue plus a bit more - 200mg.
8:58 15’ 90%/1/10% p0 st1 sip fw1’ air Realized it had been much too little GABA, less than half a capsule, so 2x250mg, down from 2x600mg. Taking the 200mg, plus a bit, maybe 50mg, in the mouth, which I spat out, has now given a >2h stint, feeling slightly drugged again, so I hope I can do even more. But B2-4 and stools calling. Still feeling energized tho!
10:22 4’ 90%/1/30% p0 st1 sip fw1’ (ear plugs)
-10:31 stools,
Sum: 50+10h31-(18+4+6+7+8+37+40+15+4=)139 = 11h21 - 2h19 = 9h02, up 9x (2h19)

ACTIVITIES (aim: 40% energy)ACHE: loads of rest, then 1h rehearsal and gig 80%/2 :white_check_mark:, afterwards I can’t say it was the normal fibro ache at all, it was the achey MCAS fatigue again, so lots of rest after too.
ACTIONSPAINS: :white_check_mark: except: neck :white_check_mark:, GI :white_check_mark:, esophagus :white_check_mark:, jaw 3x5’’ :white_check_mark:, pee pain: 0xp1-2 :white_check_mark:
MCAS/HIT-Symptoms/Triggers/Treatments: :white_check_mark: Fatigue better from acupuncture/sleep/cold showering as well probably as losing the CoV-antibodies. :face_with_monocle:. Keeping up all food risks so far.
Fibro & Touch: :white_check_mark:
Covid-danger: :white_check_mark:
Weather: Indoors :white_check_mark: Outdoors :white_check_mark:.

Treatments

Docs:
Tooth on Tues 6th. :face_with_monocle: Stopped aching Friday to Saturday night. Severe 95% fatigue ongoing.
Cardio phoned back on 8th, I forgot to say, none of the remaining bloods (e.g. copper, B12) was any problem at all.
Immunologist via studies?
Chinese Acupuncturist - #28 on 9th, after 28 days :white_check_mark: Still good. Session #29 on 23rd.

SELF-PHYSIO (click for details): 2h19

:white_check_mark: airing 5x2’, cold shower 3x(10’), cream/oil fc/ey/hd/ft 0x1’, teeth 3x2’, HWB 0x3’, breath exercises 3x1’, Timing, hunchback-pillow 20’, Y. Nidra 40’, massage gun 0x3’, neck 1+ 0x1’, neck 2 0x1’, plantar/calf stretch 0x1’, acupressure 0x1’, palpate 1’, belly 3’, back 10’, !!aloe vera 0x1’, twist-stretch 0x1’, yoga/stretching 0x1’. breath-hold 16’,
Combine: next?
:x: workout 7’, horse stance 1’, balance roll standing 5’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps Sep 5th (32 supps): Supp costs:~364€/m (Sep 8th) CHANGED: Added B2 again from 10th on. Copper doesn't seem necessary if my cardio interpreted my bloods right. From 8th on I'm adding the olive leaf extract low (100mg) and slow (but +100mg daily, not weekly), also fisetin I think it was then. Boosting some things from 7th on for tooth. Trying 1x150mg alpha GPC for fatigue from Sep 5th (recommendation on a forum), can add a few when I'm safe. Pure ATP 400mg in liquid was bad, so at most I may encapsulate & start with less, 100mg. Can't explain pee pain on Sep 4th/5th unless additional stress from a gig. Taking 1x B3 flush free since 25th, 2x from 31st (then checking homocystein). New idea: Creatine. PLANNED/TAKEN TODAY: click for details:

ZERO now: Arg, B2, Cu, Mum, Nc 1*.5g, (Nd), Pe, Ps, atm !Qc, Rib, Se, Sr 31125k, Zn.
REGULAR as of Sep 5th (32 supps): ALA .2g, alpha-GPC 1x150mg, B2 0x50mg, B3/Nia 50g, B12 5mg/4m, C 2x.5g, Cr 6x0.6g, 0(-2) DAO before meals, D3 20.000 IE = 500mcg, + K2 (MK7) 200mcg, stopped increasing that, EGCG 1x(50%, incl. theanine?).5g, EllagicA 2 x.2g (+43mg vit. C) after a short break, Fev .4g (+.2g MSM), Ga: now 4x.6g=2.4g, Gi 3x168mg, Glu: down to 0.6g, Hon (2%)x2x.4g=16mg, Luteolin .2g, Ω3 1x5mg, Mg Gly 2x50mg, Mg Mal 2x45mg, P5P 1x27mg, PEA 1x0.4g Pf down to 3x.35g, pine bark down to 1x.5g, PQQ 1, CoQ10 (ubn) 1x.1g, no Qc 0x.5g, Rs (50%) 2x.4g, Ro 2x.35g, Sa .1g, Sily (80%) 1x.5g (+83mg L-cholin) , The 2x.2g (+.15g polyphenols).
What-when-details: Updated Sep 5th (before: see the reference post)
/20:30 HALVE GABA 20: A1/2 “19:00” PF#1+2 GABA#1 Cr#1+2, 2 mg mal, 0-1P5P, 0x50mg B2, 1PQQ, 5ml Ω3 & 0Qc. Meal: 1xHon. Q10.
Meal -21: Gum -
/23:00 HALVE GABA 23: A3 “21:00” PF#3 .3-.6?GABA#2 & .3-.6?glu & 1Lut (slp!) & 0Qc 1xHon + 0 Rupafin
/09:30 B2-4 “07:00” +ALA+1x pine bark, (teeth) +1Ro, 0Qc Rs#1 SAM-e EGCg + Fev/MSM + Sily +2The
Meal -11:15 Gum 10:-11:
/11:00 C1-3 “MEAL!” 2Cr#2 .6GABA#4, (C2:) 0x50mgB2, gink#1, 0 Zn, gly#1+2, 1x pine bark#2. .5gC#1 (0NAC)+PEA + Rutin + vit.D3 1/wk. + 1x alpha-GPC.
/13:35 C4 “11:00” (+2h/) gi#2 1 Ellagic acid#1
0 Meal 15:00- Gum - (D1) “12:30”
/14:45 D2/3 “13:00” .5gC#2 , 2Cr#3, .6GABA#5, gink#3 DRINK!
/19:40 D4 “17:00” (“meal/acids+2h”) Ellag#2, Qc#4.Rs#2, +1Ro
eve:
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; last: Apr 10th.)

The day's 16 supp-compartments (10', plus 5' making capsules), Sep 5th

Pf: 1A1+1A2+1A3, alpha GPC:C2. B2:0A1+0C2 C:C3+D3 3x2Cr: A1+C1+D2, Ell: A4,C4+D4. 4-5xGa: A2,A3,C1c2,D2, Glu: A3,c1 Gi: C2,C4,D3 2Gly:C2 Hon:A2.A3. 2Mal:A2 Qc: 0A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: P5+Q1 (->ubiquinone <150mg/d!):A2. A3: Luteolin B2: ALA+1 pine B3:Sa. B4: 2Th EGCG&Fev/MSM&Sily C2:0Cu/Zn C3:PEA+B3 (A2:Ω/Pq:meal) DAO before risky meals?
(A2:0Se), (B2:0mu), (0Nc: A3, B1,C1,C3,D2)

Development

‘Research’ today: No.
Lessons in self-care #419 Resting was perfect. Need to resists temptation to go on forums at night more, if it goes wrong it can cost me hours/days.
Reasons to be cheerful #422 Gig worked out again.

2022-09-12, Monday - Energy 5% / Sleep 85% / Feeling 60-70%-ish

Severe backlash from the short gig yesterday, altho it felt OK, and was well worth it.

CoV-danger increased, wife sat next to someone for 5’.

:ambulance: :soon: Bed “before” 10. Stop forums there.
:ambulance: :soon: Test pak choy for burning once tooth is thru.

Today’s symptoms sorted by the ACR 2016 criteria

Widespread pain, WPI = 12! of 19 areas: limb-Ache 8 (30%, stiff 35%) + spine-pain 3 (15%), shoulder-girdles/hips 0 chest / abdomen / jaw 1!
Symptom severity, SSS = severity 10! of 12: Fatigue 3 (95%), insomnia 3 (15%), fog 2 (25-30%), headache 1!, GI 1 (20%), depression 0
I usually haven’t been counting the jaw inflammation as jaw pain, but today the right jaw I am counting.

Triggers & resulting Symptoms

SLEEP (click for details): 9h35, up 6x (1h27) ✅ ➔ Feeling 70% well, Ache 2 of 7 🧐❌, getting up: 80%/2 ✅. Nostrils 30% stuffy 90% of the night.

cold shower p0 Sleep 22:55- Why not 21:45? Forgot blog. Then wife came home, short talk.
0:20 7’ 70%/2/10% p0 st1 sip fw2’ feverish
1:40 5’ 70%/2/10% p0 st1 sip fw1’ air feverish.
3:33 4’+30’ 70%/2/15% p0 st1 sip fw1’ muss doch weniger sein?
4:38 5’ 70%/2/15% p0 st1 sip fw1’ FCS#2 frontal sinuses feel a bit like a cold coming up. Added 0.4 GABA and a speck, cos up too often. Saw later that I’d forgotten a passiflora and praps the 2nd GABA capsule. So no change tonight. HWB cos of cold. Very necessary, didn’t overheat
6:45 5’ 70%/2/10% p0 st1 sip fw1’ air (Stomache burn / nauseous cos of the later GABA.) ear plugs only now cos of noise outside.
8:09 31’ 70%/2/20% p0 st1 sip fw1’ air nostrils B2-4 ->dozing…
-9:57 hard stools
Sum: 1h05+9h57-(7+5+34+5+5+31=)1h27 = 11h02-1h27 = 9h35, up 6x (1h27)

ACTIVITIES (aim: 40% energy)ACHE: 60%/3 :x:, bit better in between 70%/2-3. Just resting, some online work was too stressful, so partially only in stints/task-switching.
ACTIONSPAINS: :white_check_mark: except: neck :white_check_mark:, GI: stomach burn at 6:45 from late GABA alleviated with almond milk :white_check_mark:, but also some nausea a lot of the time, even when not moving, plus belly ache in the afternoon :x:, esophagus :white_check_mark:, jaw 2x5’‘: funnily the right jaw! :white_check_mark:, pee pain: 2xp1-2 much better, even though starting 1 quercetin again at 11:40 - watch it :white_check_mark:
MCAS/HIT-Symptoms/Triggers/Treatments: :white_check_mark: Fatigue better from acupuncture/sleep/cold showering as well probably as losing the CoV-antibodies. :face_with_monocle: More nuts, still lots of yogurt, almond and oat.
Fibro & Touch: :white_check_mark:
Covid-danger: Wife sat next to a kid on Saturday who now has it. But only for 10’, aired… :face_with_monocle:
Weather: Indoors :white_check_mark: Outdoors :white_check_mark:.
Focal seizures: Yesterday 17:30 almost, today small 14:20 while hyperventilating very strongly in the Wim Hof breathing exercise. Interesting for self-tests, but maybe I should hyperventilate less deeply. Keep an eye on GABA.

Treatments

Docs:
Tooth on Tues 6th. :face_with_monocle: Stopped aching Friday to Saturday night. Severe 95% fatigue ongoing.
Cardio phoned back on 8th, I forgot to say, none of the remaining bloods (e.g. copper, B12) was any problem at all.
Immunologist via studies?
Chinese Acupuncturist - #28 on 9th, after 28 days :white_check_mark: Still good. Session #29 on 23rd.

SELF-PHYSIO (click for details): 97'.

:white_check_mark: airing 3x2’, cold shower 2x(10’), cream/oil fc/ey/hd/ft 1x1’, teeth 3x2’, HWB 1x3’, breath exercises 3x1’, Timing, hunchback-pillow 10’, Y. Nidra 30’, massage gun 0x3’, neck 1+ 0x1’, neck 2 0x1’, plantar/calf stretch 0x1’, acupressure 0x1’, palpate 1’, belly 3’, back 10’, !!aloe vera 1x1’, twist-stretch 3x1’, yoga/stretching 0x1’.
Combine: next?
:x: workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps Sep 5th (32 supps): Supp costs:~364€/m (Sep 8th) CHANGED: Added a little NAC & 2 Quercetin on Sep 11th. Added B2 again from 10th on. Copper doesn't seem necessary if my cardio interpreted my bloods right. From 8th on I'm adding the olive leaf extract low (100mg) and slow (but +100mg daily, not weekly), also fisetin I think it was then. Boosting some things from 7th on for tooth. Trying 1x150mg alpha GPC for fatigue from Sep 5th (recommendation on a forum), can add a few when I'm safe. Pure ATP 400mg in liquid was bad, so at most I may encapsulate & start with less, 100mg. Can't explain pee pain on Sep 4th/5th unless additional stress from a gig. Taking 1x B3 flush free since 25th, 2x from 31st (then checking homocystein). New idea: Creatine. PLANNED/TAKEN TODAY: click for details:

ZERO now: Arg, B2, Cu, Mum, Nc 1*.5g, (Nd), Pe, Ps, atm !Qc, Rib, Se, Sr 31125k, Zn.
REGULAR as of Sep 5th (32 supps): ALA .2g, alpha-GPC 1x150mg, B2 0x50mg, B3/Nia 50g, B12 5mg/4m, C 2x.5g, Cr 6x0.6g, 0(-2) DAO before meals, D3 20.000 IE = 500mcg, + K2 (MK7) 200mcg, stopped increasing that, EGCG 1x(50%, incl. theanine?).5g, EllagicA 2 x.2g (+43mg vit. C) after a short break, Fev .4g (+.2g MSM), Ga: now 4x.6g=2.4g, Gi 3x168mg, Glu: down to 0.6g, Hon (2%)x2x.4g=16mg, Luteolin .2g, Ω3 1x5mg, Mg Gly 2x50mg, Mg Mal 2x45mg, P5P 1x27mg, PEA 1x0.4g Pf down to 3x.35g, pine bark down to 1x.5g, PQQ 1, CoQ10 (ubn) 1x.1g, no Qc 0x.5g, Rs (50%) 2x.4g, Ro 2x.35g, Sa .1g, Sily (80%) 1x.5g (+83mg L-cholin) , The 2x.2g (+.15g polyphenols).
What-when-details: Updated Sep 5th (before: see the reference post)
/20:30 400mg GABA A1/2 “19:00” PF#1+2 GABA#1 Cr#1+2, 2 mg mal, 0-1P5P, 0x50mg B2, 1PQQ, 5ml Ω3 & 0Qc. Meal: 1xHon. Q10.
Meal -21: Gum -
/0:20 but forgot PF#3 + 400mg GABA A3 “21:00” PF#3 .3-.6?GABA#2 & .3-.6?glu & 1Lut (slp!) & 0Qc 1xHon + 0 Rupafin
/08:15 B2-4 “07:00” +ALA+1x pine bark, (teeth) +1Ro, 0Qc Rs#1 SAM-e EGCg + Fev/MSM + Sily +2The
Meal 10:15-10:30 Gum 10:-11:
/10:15-11:40 C1-3 “MEAL!” 2Cr#2 .6GABA#4, (C2:) 0x50mgB2, gink#1, 0 Zn, gly#1+2, 1x pine bark#2. .5gC#1 (0NAC)+PEA + Rutin + vit.D3 1/wk. + 1x alpha-GPC.
/14:50 C4 “11:00” (+2h/) gi#2 1 Ellagic acid#1
0 Meal -16:15 Gum - (D1) “12:30”
/16:15 D2/3 “13:00” .5gC#2 , 2Cr#3, .6GABA#5, gink#3 DRINK!
/18:20 D4 “17:00” (“meal/acids+2h”) Ellag#2, Qc#4.Rs#2, +1Ro
eve:
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; last: Apr 10th.)

The day's 16 supp-compartments (10', plus 5' making capsules), Sep 5th

Pf: 1A1+1A2+1A3, alpha GPC:C2. B2:0A1+0C2 C:C3+D3 3x2Cr: A1+C1+D2, Ell: A4,C4+D4. 4-5xGa: A2,A3,C1c2,D2, Glu: A3,c1 Gi: C2,C4,D3 2Gly:C2 Hon:A2.A3. 2Mal:A2 Qc: 0A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: P5+Q1 (->ubiquinone <150mg/d!):A2. A3: Luteolin B2: ALA+1 pine B3:Sa. B4: 2Th EGCG&Fev/MSM&Sily C2:0Cu/Zn C3:PEA+B3 (A2:Ω/Pq:meal) DAO before risky meals?
(A2:0Se), (B2:0mu), (0Nc: A3, B1,C1,C3,D2)

Development

‘Research’ today:

Someone saying bananas don’t have much pesticides made me find out what exactly the “Dirty Dozen” is (apart from a 1967 war novel & film), which I’d seen in some good food buying videos by FlavCity with Bobby Parrish.

Trying to confirm it with tests I actually found that bananas can get pesticides: via the soil and thru the peel, see this study, altho it itself isn’t eaten, as not edible. The pesticides used there are also usually more toxic, bad for worker health. Fairtrade seems better. And do we remember to wash our hands thoroughly after touching the peel?!

Then in European tests, conventional potatoes like bananas usually don’t contain “too many” pesticides, there are many more others that do.

Whilst in the US, potatoes are #13 in the 2022 EWG Dirty “Dozen” list, after things like #1 strawberries, #5 apples and #12 celery, based on USDA test data. Whilst bananas are on the full list at #30, but still in the “yellow” category, so a bit “dirtier” than those on the 2022 EWG Clean Fifteen list (“blue” category), which has onions at #4 and sweet potatoes at #15. Which is #43 and #32 on the full list of 46, where #46 (avocadoes) is cleanest. Also products vary, e.g. certain “packaged potatoes” (it seems mainly “BPA free”) vary from 2 to 3 of 10 (= worst). Wegman’s organic sorts are all 2.4. Whilst I can’t find bananas as a fruit in the product details, so I assume they somehow don’t detail on sorts of unpackaged fruits and veggies?

Lessons in self-care #420 Resting all day is OK.
Reasons to be cheerful #423 Got stuff done online.
Things I love about myself #97 I keep going.

2022-09-13, Tuesday - Energy 9% / Sleep 85% / Feeling 85%-ish

Successes:
:trophy: Adding the new supps seems to be OK/good.
Learnt:
:student: Realized how mindfulness helps me to swing between jumpin to the faith of solutions and swinging to dissolving problems like anxiety.
:student: Looked up “typical” fibro meds, but mainly clarified that ribose increases triglycerides, so bad for me.
:ambulance: :soon: Bed “before” 10. Stop forums there.
:ambulance: :soon: Test pak choy for burning once tooth is thru.
:ambulance: :soon: Remember not to sit on couch!

Today’s symptoms sorted by the ACR 2016 criteria

Widespread pain, WPI = 11 of 19 areas: limb-Ache 8 (15%, stiff 15%) + spine-pain 3 (15%), shoulder-girdles/hips 0 chest / abdomen / jaw 0
Symptom severity, SSS = severity 9 of 12: Fatigue 3 (91%), insomnia 3 (15%), fog 2 (15%), headache 0, GI 1 (10%), depression 0

Triggers & resulting Symptoms

SLEEP (click for details): 8h52, up 6x (1h06) 🧐✅ ➔ Feeling ?90% well, Ache ?1 of 7 ✅, getting up: ?80%/?2 ✅. Nostrils 0% stuffy 90% of the night. Sitting on couch keeps causing lower back unrest, without me realizing, keep getting that, I don't know how I can remember except to keep my main laptop on my bar table and not on the couch.

cold shower p2 Sleep 22:50- Why not 21:45? Waiting for wife to get guineas done.
23:50 13’ 80%/1/10% p1 st1 sip fw10’
0:19 17’ 70%/2/10% p0 st1 sip fw8’ FCS#2 cos of LBU. dry mouth
2:09 5’ 80%/2/20% p0 st1 sip fw1’ air A4-GABA
3:07 7’ 80%/2/20% p0 st1 sip fw1’ air
4:50 20’ 80%/2/20% p2 st1 sip fw15’ air
6:30 6’ 80%/2/20% p1 st1 sip fw1’ air teeth ear plugs… stomach OK, considering GABA at 2 (nostrils)
8:15 5’ 80%/2/20% p1 st1 sip fw1’ air slight headache most of the night, (nostrils) B1-4
-8:48 stools
Sum: 1h10+8h48-(13+15+7+20+6+5=)1h06 = 9h58- 1h06 = 8h52, up 6x (1h06)

ACTIVITIES (aim: 40% energy)ACHE:
TT 2:0, felt good, no Ache, but wife said I looked terrible after pale white-yellow, short cycle-cycle ride in the evening similar, ➔ 80%/2 :white_check_mark:, but a stressed phone call from a mate needing help wasn’t good for 20’ (70%/3) - which I then told him, apologized.
ACTIONSPAINS: :white_check_mark: except: neck :white_check_mark:, GI :white_check_mark:, esophagus :white_check_mark:, jaw 2x5’’ :white_check_mark:, pee pain: 3xp1-2 :white_check_mark:
MCAS/HIT-Symptoms/Triggers/Treatments: :white_check_mark: Fatigue better from acupuncture/sleep/cold showering as well probably as losing the CoV-antibodies. :face_with_monocle:. 16:30 Walnuts ouch all evening, left side of my tongue.
Fibro & Touch: :white_check_mark:
Covid-danger: :white_check_mark:
Weather: Indoors :white_check_mark: Outdoors :white_check_mark:.

Treatments

Docs:
Tooth on Tues 6th. :face_with_monocle: Stopped aching Friday to Saturday night. Severe 95% fatigue ongoing. Slightly better Sunday, worse Monday after gig, better than Sunday on Tuesday.
Immunologist via studies?
Chinese Acupuncturist - #28 on 9th, after 28 days :white_check_mark: Still good. Session #29 on 23rd.

SELF-PHYSIO (click for details): 65'

:white_check_mark: airing 3x2’, cold shower 2x(10’), cream/oil fc/ey/hd/ft 0x1’, teeth 2x2’, HWB 0x3’, breath exercises 3x1’, Timing, hunchback-pillow 10’, Y. Nidra 15’, massage gun 1x3’, neck 1+ 0x1’, neck 2 0x1’, plantar/calf stretch 0x1’, acupressure 0x1’, palpate 0’, belly 0’, back 4’, !!aloe vera 0x1’, twist-stretch 0x1’, yoga/stretching 0x1’.
Combine: next?
:x: workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps Sep 5th (32 supps): Supp costs:~364€/m (Sep 8th) CHANGED: Added a little NAC & 2 Quercetin on Sep 11th. Added B2 again from 10th on. Copper doesn't seem necessary if my cardio interpreted my bloods right. From 8th on I'm adding the olive leaf extract low (100mg) and slow (but +100mg daily, not weekly), also fisetin I think it was then. Boosting some things from 7th on for tooth. Trying 1x150mg alpha GPC for fatigue from Sep 5th (recommendation on a forum), can add a few when I'm safe. Pure ATP 400mg in liquid was bad, so at most I may encapsulate & start with less, 100mg. Can't explain pee pain on Sep 4th/5th unless additional stress from a gig. Taking 1x B3 flush free since 25th, 2x from 31st (then checking homocystein). New idea: Creatine. PLANNED/TAKEN TODAY: click for details:

ZERO now: Arg, B2, Cu, Mum, Nc 1*.5g, (Nd), Pe, Ps, atm !Qc, Rib, Se, Sr 31125k, Zn.
REGULAR as of Sep 5th (32 supps): ALA .2g, alpha-GPC 1x150mg, B2 0x50mg, B3/Nia 50g, B12 5mg/4m, C 2x.5g, Cr 6x0.6g, 0(-2) DAO before meals, D3 20.000 IE = 500mcg, + K2 (MK7) 200mcg, stopped increasing that, EGCG 1x(50%, incl. theanine?).5g, EllagicA 2 x.2g (+43mg vit. C) after a short break, Fev .4g (+.2g MSM), Ga: now 4x.6g=2.4g, Gi 3x168mg, Glu: down to 0.6g, Hon (2%)x2x.4g=16mg, Luteolin .2g, Ω3 1x5mg, Mg Gly 2x50mg, Mg Mal 2x45mg, P5P 1x27mg, PEA 1x0.4g Pf down to 3x.35g, pine bark down to 1x.5g, PQQ 1, CoQ10 (ubn) 1x.1g, no Qc 0x.5g, Rs (50%) 2x.4g, Ro 2x.35g, Sa .1g, Sily (80%) 1x.5g (+83mg L-cholin) , The 2x.2g (+.15g polyphenols).
What-when-details: Updated Sep 5th (before: see the reference post)
/20:10 400mg GABA A1/2 “19:00” PF#1+2 GABA#1 Cr#1+2, 2 mg mal, 0-1P5P, 0x50mg B2, 1PQQ, 5ml Ω3 & 0Qc. Meal: 1xHon. Q10.
Meal -21: Gum -
/22:50 400mg GABA A3 “21:00” PF#3 .3-.6?GABA#2 & .3-.6?glu & 1Lut (slp!) & 0Qc 1xHon + 0 Rupafin
3:00? + GABA
/08:15 B2-4 “07:00” +ALA+1x pine bark, (teeth) +1Ro, 0Qc Rs#1 SAM-e EGCg + Fev/MSM + Sily +2The
Meal 10:-: Gum 10:-11:
/10:30? C1-3 “MEAL!” 2Cr#2 .6GABA#4, (C2:) 0x50mgB2, gink#1, 0 Zn, gly#1+2, 1x pine bark#2. .5gC#1 (1 NAC)+PEA + Rutin + vit.D3 1/wk. + 1x alpha-GPC.
/13:15 C4 “11:00” (+2h/) gi#2 1 Ellagic acid#1
0 Meal -16:25 Gum - (D1) “12:30”
/15:55 D2/3 “13:00” .5gC#2 , 2Cr#3, .6GABA#5, gink#3 DRINK!
/19:30 D4 “17:00” (“meal/acids+2h”) Ellag#2, Qc#4.Rs#2, +1Ro
eve:
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; last: Apr 10th.)

The day's 16 supp-compartments (10', plus 5' making capsules), Sep 5th

Pf: 1A1+1A2+1A3, alpha GPC:C2. B2:0A1+0C2 C:C3+D3 3x2Cr: A1+C1+D2, Ell: A4,C4+D4. 4-5xGa: A2,A3,C1c2,D2, Glu: A3,c1 Gi: C2,C4,D3 2Gly:C2 Hon:A2.A3. 2Mal:A2 Qc: 0A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: P5+Q1 (->ubiquinone <150mg/d!):A2. A3: Luteolin B2: ALA+1 pine B3:Sa. B4: 2Th EGCG&Fev/MSM&Sily C2:0Cu/Zn C3:PEA+B3 (A2:Ω/Pq:meal) DAO before risky meals?
(A2:0Se), (B2:0mu), (0Nc: A3, B1,C1,C3,D2)

Development

‘Research’ today:

gabapentin/Neurontin and nortriptyline/Pamelor

The fact that gabapentin/Neurontin hasn’t been tested for fibro doesn’t to me mean that it’s useless, esp. cos it is proven to help pain generally and does help some.
But what I “don’t understand” is that despite that medical evidence some people are given it as a first or only choice, instead of trying FDA-approved pregabalin/Lyrica, duloxetine/Cymbalta and the at least equally well proven amitriptyline first.

And interesting is that the category “FDA-approved” doesn’t mean that much, theoretically and practically, as milnacipran is 3rd one, not amitriptyline, whilst that has more evidence and is also used much more for fibro.

And nortriptyline/Pamelor not being offered much either I’ve heard again was the price. Drugs com confirms it’s a bit more expensive (twice as expensive per unit), but that’s still only half of pregabalin and gabapentin.
Some experiences are negative, but as amitriptyline is converted into nortriptyline in the liver it is generally thought to have less side effects than that.

BTW, nortriptyline has been proven similarly good to amitriptyline a few times.

A list of the other meds that work for some:

“Medications with the best efficacy in the treatment of FM include the tricyclic antidepressants amitriptyline and nortriptyline, cyclobenzaprine (a skeletal muscle relaxant), tramadol, duloxetine, milnacipran, pregabalin and gabapentin. Corticosteroids, nonsteroidal anti-inflammatory drugs, benzodiazepines and opioid analgesics, with the exception of tramadol, are not considered efficacious. Medication selection should be individualized and influenced by the severity of illness and the presence of comorbidities and functional disabilities.” (Fibromyalgia: disease synopsis, medication cost effectiveness and economic burden, a 2014 review in “Pharmacoeconomics” by Tracy Skaer, professor at WSU).

A similar list to above, but minus tramadol and plus citalopram, fluoxetine, paroxetine & cyclobenzaprine (Drug Class Review: Drugs for Fibromyalgia: Final Original Report, 2011)

This article from 2020 Current and Emerging Pharmacotherapy for Fibromyalgia doesn’t mention nortriptyline, can’t see why, and mentions
Reboxetine (only case reports) Esreboxetine (1 trial) Nal trexone (1 trial; if depression) (1 trial) Nabilone, Dronabinol & Memantine (all with conflicting results) Ketamine (1 trial) and the newcomer is… “NYX-2925” (works in rats).
That’s where pharma research is going…

Much more interesting I found the last bit, the conclusion and expert opinion. Saying: there has been great progress in inflammatory and autoimmune disorders, but CNS conditions like fibro are baffling everyone, so experts are going to have to network. They don’t think it’s likely that there will be much progress in the med types currently used. One hope is to sort and treat patients based on their individual genetic (and pharmacogenetic) characteristics, plus analysis of the pathways bits of the brain connect to one another (connectivity ). Another, associated to this connectivity is how the endocannabinoid system works, which is much researched now, and will help develop meds with precisely measured quantities of cannabinoid agents such as THC and CBD (!) Understanding neuroinflammation may also help (see na ltrexone, which is in L D N). Lastly they stress that managing FMS most definitely will always be more than meds , namely tools “ranging from exercise to neurofeedback and all that lie in between. Thus is the art of treating FMS.” Yeah.

Looking at the placebo effect in fibromyalgia med studies it’s interesting to see how high it actually it is. Or perhaps we can say how little better the meds are…

The meta-analysis Placebo effect in pharmacological management of fibromyalgia: a meta-analysis from 2021 found: “The administration of placebo has proved to be more effective than no treatment in many clinical settings and evidence supports the ‘therapeutic’ effects of placebo on a wide range of symptoms. The placebo effect is believed to impact the clinical outcomes, but its actual magnitude is controversial. Drug treatment resulted to be more effective than placebo administration for the management of fibromyalgia. Nevertheless, placebo showed a beneficial effect in patients with fibromyalgia. Treatment-related adverse events occurred more frequently in the drug treatment.”

I remember getting a riddle in my teens I later learnt was a kind of kōan, similar on happyho:

“A great philosophical official, Riko, once asked this strange Zen master, Nansen, to explain to him the old Koan of the goose in the bottle. ” If a man puts a glossing into a bottle” said Riko, ” and feeds him until he is full grown, how can the man gets to goose out without killing it or breaking the bottle?” Nansen gave a great clap with his hand and shouted, “Riko!”
“Yes master” said the official with a start
” See, ” said Nansen, ” the goose is out!”
It is only a question of seeing, it is only a question of becoming alert, awake, it is only a question of waking up. The goose is in the bottle if you are in a dream, the goose has never been in a bottle if you are awake. and in the dream there is no way to take the goose out of the bottle. Either the goose will die or the bottle will have to be broken and both alternatives are not allowed: Neither the bottle should be broken nor has the goose to be killed. Now a fully grown goose in a small bottle … how can you take it out? this is called a Koan.
A Koan is not an ordinary puzzle, it is not a puzzle because it cannot be solved. A puzzle is that which has a possibility of being solved. You just have to look for the right answer. You will find it – it only needs intelligence to find the answer to the puzzle, but a puzzle is not really insoluble. A koan is insoluble, you cannot solve it you can only dissolve it. And the way to dissolve it is to change the very plane of your being from dreaming to awake fullness.”

To me in that kōan sense, your glass is half full. Building on that it is full.
Dissolving the problem is one way of seeing it, looking back to it. But in my life the problem dissolved best and automatically when I was able to take a leap of faith to the solution. I’d long known of being in the Here and Now. But it was the image of standing safely on firm ground before a chasm that suddenly brought it home and finally relieved anxiety in 15 areas, starting with my fear of height (now down from 80% to 1%). Only after that clicked did I realize it was the concept of Here and Now.
Dissolving my fears = inner films of what happened in the past or what could happen in the future can work, but done in the wrong way we get triggered and stuck. Like do NOT think about pink elephants. Do NOT be afraid. “Just relax!” “Be spontaneous!” Yeah, sure!?
There are ways I do manage and even have to dissolve inner films: One is submerging myself into my pain, which I learnt when coping with social anxiety (face - accept - float - let time pass), and is very useful now - it then loses all meaning and suffering, realizing that distraction made it worse, when I concentrate on it. Another is decelerating my chatterbrain at night like turning a spool of film slower and bringing it to a stop on a frame, but holding it there. A third is after I’ve dreamt or imagined a catastrophe to turn the spool backwards again. A fourth reimagining and reframing (nightmare therapy: seeming sharks become dolphins, someone chasing me becomes someone bringing me my wallet back etc., falling becomes flying etc.)

I’m now trying to think thru why I was plugging “the leap of faith to the solution” first and now have found many examples how I try to “dissolve the problem”…:

In the case of direct fear of what might happen (fall etc.) I can do this as well, I can face and ‘surf’ on the panic and dissolve it (or partly). But usually now I try to concentrate more on the sensation that I am safe Here and Now. And Now. And Now. That’s reminding and practicing and habituating at the same time.
Ah, I think there’s a time when this is too late, when the panic is too big, maybe that’s when I go into dissolving mode. And then swing back to the faith/mindfulness.

Many things need to be learnt, practiced, become a habit, but it’s much accelerated when the solution to a mind screw suddenly “clicks”, we finally make a firm unwavering decision to see it that way, and then can work thru it and refinish all the bits left by practice and habituating. The fundamental one there is probably again Radical Acceptance.
That may be why I nowadays am able to implement new habits after 3 repetitions instead of 30. What hampers self-discipline somewhat is all the flow in my head, all my new ideas, which is however very useful for enjoying life to the full, good days or bad, so that’s OK for me.

May our internal glass always become so full that we can dissolve the external ones some day… :open_hands:

Of course I’m listening up to anything I’ve missed for “extreme fatigue”, my main issue…

D-ribose

I’ve tried many a time, first it seemed to help, but caused some GI problems if more than 2g, then it never helped again. So I’ve never tried taking it for a few weeks like some recommend.

So I just thought thru it again and remembered that someone recently had said it’s not a sugar like other sugars. Which’d be good, cos that’d be something I have to avoid. And I actually found that on draxe: It may even decrease blood sugars it says there. However the reference is to a site which I’d have to sign up for, consumerlab. But healthfully is clearer and cites a 2008 study by a Dr. Oz :slight_smile: which showed that injected 10g ribose considerably reduced blood glucose in diabetes inside of 30-45 mins, but only for 1-2h. Well whatever, that does not make it a “good” sugar, rather a strange one. But he definitely does recommend it, starting with 3x0.5g/d for a week, then 3x5g/d for 3 weeks, and then staying on 2x5g/d.

But what about lipids? My main problem… Looked again, and sure enough: D-ribose increases triglyceride via upregulation of DGAT in the liver (2019 study). At least in rats. Other than that this hasn’t been researched yet.

Looking for more recent studies that quote this one on pubmed I also find one from 2020 D-ribose and pathogenesis of Alzheimer’s disease saying: “Since, D-ribose shows highest glycation ability among other sugars hence, produces advanced glycation end products (AGEs) rapidly. However, there are several other mechanisms suggested by researchers through which D-ribose may cause cognitive impairments. There is a concern related to diabetic patients since they also suffer from D-ribose metabolism, may be more prone to AD [= Alzheimer Disease] risk.”

Similarly this study from 2019 D-ribose is elevated in T1DM patients and can be involved in the onset of encephalopathy. (T1DM = type 1 diabetes mellitus) says that lowering that ribose helped in rats, so will thus be a possible help in people. Which takes us back to what I said above: It lowering glucose for a short while (probably by stimulating insulin production) doesn’t have to be something good.

Now is diabetes relevant to me? My symptoms often remind my wife of diabetes.
Is dementia relevant to me? My dad “died of” it.
Is it increasing lipids dangerous for me? Highly.
So: No, not for me.

Lessons in self-care #421 Always watch my backside!!
Reasons to be cheerful #424 Better!

2022-09-14, Wednesday - Energy 8% / Sleep 85% / Feeling 80%-ish

I need to prioritize my own needs more.

Successes:
:trophy: Walnuts aren’t worth it - tongue inflamed (left) since 16:30 yesterday. 16:30 still… 17:30 slightly better after eating.
:zap: Development: Need to focus research on my own needs more.
:zap: Back problems since tooth (head/pillows higher).
:zap: Better backwards stretches, not backpod atm, cos of lower back.
:zap: Press sideways to wall/other mattress for fasciitis/calves.
:zap: Going to the grocer’s with my wife made things worse.
:zap: Symptoms worsening from this morning on is the NAC, pretty sure.
:zap: 16:30 histamine-y reaction after supps before eating! From what??

Learnt:
:student:
:ambulance: Still more back exercises.
:ambulance: Careful with all “straight” sitting.
:ambulance: Bed “before” 10. Stop forums there.
:ambulance: :soon: Test pak choy for burning once tooth is thru.

Today’s symptoms sorted by the ACR 2016 criteria

Widespread pain, WPI = 11 of 19 areas: limb-Ache 8 (20-50%, stiff 15%) + spine-pain 3 (20%), shoulder-girdles/hips 0 chest / abdomen / jaw 0
Symptom severity, SSS = severity 9 of 12: Fatigue 3 (92%), insomnia 3 (15%), fog 2 (15%), headache 0, GI 1 (15%), depression 0

Triggers & resulting Symptoms

SLEEP (click for details): 8h57, up 7x (1h46) 🧐✅ ➔ Feeling 80% well, Ache 2 of 7 ✅, getting up: 80%/3 ✅. Nostrils 20% stuffy 20% of the night.

cold shower p0 Sleep 22:05- Why not 21:45? Blog, wife, guineas, but cb helped me! ear plugs. A3
TEETH
23:25 10’ 80%/2/20% p0 st1 sip fw1’ air
23:55 16’ 80%/2/20% p0 st1 sip fw3’ back → back exercises FCS#2
1:28 16’ 80%/2/20% p2 st1 sip fw1’ A4 FCS#3
3:11 39’ 80%/2/20% p0 st1 sip fw6’ air too long, shd’ve cut, bad for lower back, dosing/YoNi after, but cdn’t concentrate on that either, plantar fasciitis pressing only partly worked, praps the stuffed animals are squashed too much now. Slight heartburn from GABA.
4:24 12’ 80%/2/20% p0 st1 sip fw3’ FCS#4 praps analyze showering time?
6:55 5’ 80%/2/20% p0 st1 sip fw2’ air (nostrils - breathing)
8:00 8’ 80%/2/20% p0! st1 sip fw1’ air B2-4
-8:48 stools, B2-4
Sum: 1h55+8h48-(10+16+16+39+12+5+8=)1h46 = 10h43 - 1h46 = 8h57, up 7x (1h46)

ACTIVITIES (aim: 40% energy)ACHE: Rest/work: 80%/3 :x: TT 2:0 ➔ 75%/5 at 12:05 :x:, breath-holding till 12:20 ➔ 80%/4 :x: :white_check_mark:, supermarket ➔ 80%/5 :x:, rest after hours ➔ 80%/4 :x:, evening during & despite housework ➔ 80%/2 :white_check_mark:
ACTIONSPAINS: :white_check_mark: except: neck :white_check_mark:, GI :white_check_mark:, esophagus :white_check_mark:, jaw 1x5’’ :white_check_mark:, pee pain: 1xp1-2 :white_check_mark:
MCAS/HIT-Symptoms/Triggers/Treatments: :white_check_mark: Fatigue better from acupuncture/sleep/cold showering as well probably as losing the CoV-antibodies. :face_with_monocle:. More hazelnuts, more olives. Just that half a walnut yesterday, but that may be a more direct allergy on that bit of my tongue.
Fibro & Touch: :white_check_mark:
Covid-danger: :white_check_mark:
Weather: Indoors :white_check_mark: Outdoors :white_check_mark:.

Treatments

Docs:
Thinking about trying a zoom initial consultation with Bruce Hoffman, someone also suggested that to me, but my wife confirmed my doubts thinking that docs diagnosing around hasn’t got me anywhere and won’t do so. So I guess that also makes an Immunologist senseless.
Tooth on Tues 6th. :face_with_monocle: Stopped aching Friday to Saturday night. Severe 95% fatigue ongoing.

Chinese Acupuncturist - #28 on 9th, after 28 days :white_check_mark: Still good. Session #29 on 23rd.

SELF-PHYSIO (click for details): 2h12, breath-holding at 12:20

:white_check_mark: airing 5x2’, cold shower 4x(10’), cream/oil fc/ey/hd/ft 1x1’, teeth 2x2’, HWB 0x3’, breath exercises 5x1’, Timing, hunchback-pillow 20’, Y. Nidra 20’, massage gun 1x3’, neck 1+ 0x1’, neck 2 0x1’, plantar/calf stretch 1x1’, acupressure 0x1’, palpate 1’, belly 3’, back 10’, !!aloe vera 2x1’, twist-stretch 0x1’, yoga/stretching 0x1’, breath-hold 12’.
Combine: next?
:x: workout 7’, horse stance 1’, balance roll standing 5’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps Sep 5th (32 supps): Supp costs:~364€/m (Sep 8th) CHANGED: Added a little NAC & 2 Quercetin on Sep 11th. Added B2 again from 10th on. Copper doesn't seem necessary if my cardio interpreted my bloods right. From 8th on I'm adding the olive leaf extract low (100mg) and slow (but +100mg daily, not weekly), also fisetin I think it was then. Boosting some things from 7th on for tooth. Trying 1x150mg alpha GPC for fatigue from Sep 5th (recommendation on a forum), can add a few when I'm safe. Pure ATP 400mg in liquid was bad, so at most I may encapsulate & start with less, 100mg. Can't explain pee pain on Sep 4th/5th unless additional stress from a gig. Taking 1x B3 flush free since 25th, 2x from 31st (then checking homocystein). New idea: Creatine. PLANNED/TAKEN TODAY: click for details:

ZERO now: Arg, B2, Cu, Mum, Nc 1*.5g, (Nd), Pe, Ps, atm !Qc, Rib, Se, Sr 31125k, Zn.
REGULAR as of Sep 5th (32 supps): ALA .2g, alpha-GPC 1x150mg, B2 0x50mg, B3/Nia 50g, B12 5mg/4m, C 2x.5g, Cr 6x0.6g, 0(-2) DAO before meals, D3 20.000 IE = 500mcg, + K2 (MK7) 200mcg, stopped increasing that, EGCG 1x(50%, incl. theanine?).5g, EllagicA 2 x.2g (+43mg vit. C) after a short break, Fev .4g (+.2g MSM), Ga: now 4x.6g=2.4g, Gi 3x168mg, Glu: down to 0.6g, Hon (2%)x2x.4g=16mg, Luteolin .2g, Ω3 1x5mg, Mg Gly 2x50mg, Mg Mal 2x45mg, P5P 1x27mg, PEA 1x0.4g Pf down to 3x.35g, pine bark down to 1x.5g, PQQ 1, CoQ10 (ubn) 1x.1g, no Qc 0x.5g, Rs (50%) 2x.4g, Ro 2x.35g, Sa .1g, Sily (80%) 1x.5g (+83mg L-cholin) , The 2x.2g (+.15g polyphenols).
What-when-details: Updated Sep 5th (before: see the reference post)
/20:10 400mg GABA A1/2 “19:00” PF#1+2 GABA#1 Cr#1+2, 2 mg mal, 0-1P5P, 0x50mg B2, 1PQQ, 5ml Ω3 & 0Qc. Meal: 1xHon. Q10.
Meal -21: Gum -
/22:05 400mg GABA A3 “21:00” PF#3 .3-.6?GABA#2 & .3-.6?glu & 1Lut (slp!) & 0Qc 1xHon + 0 Rupafin
/1:30 3rd 400mg GABA
/8:05 B2-4 “07:00” +ALA+1x pine bark, (teeth) +1Ro, 0Qc Rs#1 SAM-e EGCg + Fev/MSM + Sily +2The
Meal 10:-: Gum 10:-11:
/11:00 C1-3 “MEAL!” 2Cr#2 .6GABA#4, (C2:) 0x50mgB2, gink#1, 0 Zn, gly#1+2, 1x pine bark#2. .5gC#1 (1 NAC)+PEA + Rutin + vit.D3 1/wk. + 1x alpha-GPC.
whoops /11:00 C4 “11:00” (+2h/) gi#2 1 Ellagic acid#1
Meal 16:10-17:00 Gum 17:00- (D1) “12:30”
/16:10 D2/3 “13:00” .5gC#2 , 2Cr#3, .6GABA#5, gink#3 DRINK!
/18:45 D4 “17:00” (“meal/acids+2h”) Ellag#2, Qc#4.Rs#2, +1Ro
eve:
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; last: Apr 10th.)

The day's 16 supp-compartments (10', plus 5' making capsules), Sep 5th

Pf: 1A1+1A2+1A3, alpha GPC:C2. B2:0A1+0C2 C:C3+D3 3x2Cr: A1+C1+D2, Ell: A4,C4+D4. 4-5xGa: A2,A3,C1c2,D2, Glu: A3,c1 Gi: C2,C4,D3 2Gly:C2 Hon:A2.A3. 2Mal:A2 Qc: 0A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: P5+Q1 (->ubiquinone <150mg/d!):A2. A3: Luteolin B2: ALA+1 pine B3:Sa. B4: 2Th EGCG&Fev/MSM&Sily C2:0Cu/Zn C3:PEA+B3 (A2:Ω/Pq:meal) DAO before risky meals?
(A2:0Se), (B2:0mu), (0Nc: A3, B1,C1,C3,D2)

Development

Not being able to move much gives me more time to invest in new ideas. But I think I need to prioritize my own … need more. Of course I’ve often realized that things I work on for others suddenly do become relevant to me after all. But for instance I’ve just done a bit of research on fibro meds and they’re definitely not on for myself, whatever Teitelbaum says.

Maybe cos I’m a burnt child and have learnt to rely on myself more and more, but the feeling I now have is to work thru everything he’s written as well as mastattack and healthrising etc. in the next few months and then perhaps contact him.

‘Research’ today:
While looking for more Teitelbaum stuff I was again surprised how much meds he actually recommends, compared with other docs, even non-functional ones… :

An excellent new page (Aug 17th) by Cort on healthrising Four Experts On How To Get a Good Night's Sleep: An ME/CFS & Fibromyalgia Inquiry - Health Rising details the 73 aids 4 experts recommend for sleep, agreeing on only 1!
The big differences:
Murphree recommends: only supps, mainly 5-HTP,
Teitelbaum: supps, but also lots of meds! , esp. zolpidem/Ambien, in small doses.
Attia: magnesium and a sleep system,
Huberman: light, temperature, supps and apps.

Cort thoroughly recommends both “newcomers” Attia and Huberman.
Attia uses magnesium and the “Chillisleep OOLER Cooling Sleep System” to closely regulate body temperature.
Enlightening for me was that my body seems to prefer everything that Huberman (neuroscientist) recommends, and there’s 3 on his supps list I haven’t tried yet: Apigenen, Lysine and Myo-inositol. For GABA he recommends “2 grams every 3 or 4 days;” (2 others recommend it in combination products). An intriguing one of his is “drawing tablet”.

There is so much interesting information out there! I think I need to work thru all of healthrising!

But a nice colourful overview of Teitelbaum’s main supps: https://www.bioenergylifescience.com/wp-content/uploads/2020/01/5_My-Essentials-by-J-Teitelbaum_Remedies-for-Life-Feb-2012_0.pdf

That shows he doesn’t use the sugar sort of chocolate himself, altho studies show that even milk chocolate is good for stroke in men:

Does the iPad Night Shift mode reduce melatonin suppression?: No, at least if the brightness setting are left the same (I greatly reduce mine to the lowest possible in the evenings)
Lessons in self-care #422 Less ‘research’ for others, more for myself.

2022-09-15, Thursday - Energy 25% :bangbang: / Sleep 70% / Feeling 85%-ish

Successes: :trophy:
:zap: Much better today “proves” that yesterday’s & Monday’s backlash was the NAC :bangbang:
Learnt: :student:
:ambulance: Still more back exercises, incl. yoga swinging (faster).
:ambulance: A1-2 supps before 7. Bed before 10. Stop forums there.
:ambulance: Meals at 8/9, 1 and 6. Supps in time. Up GABA if nec.
:ambulance: Today: tested pak choy for burning, no problem… :face_with_monocle:

Today’s symptoms sorted by the ACR 2016 criteria

Widespread pain, WPI = 11 of 19 areas: limb-Ache 8 (10%, stiff 15%) + spine-pain 3 (25% at night, 10% day), shoulder-girdles/hips 0 chest / abdomen / jaw 0
Symptom severity, SSS = severity 9 of 12: Fatigue 3 (75%), insomnia 3 (30%), fog 2 (5%), headache 0, GI 1 (5%), depression 0

Triggers & resulting Symptoms

SLEEP (click for details): 8h18, up 7x (2h04) 🧐✅ ➔ Feeling 80% well, Ache 1 of 7 ✅, getting up: 90%/1 ✅, starting with back exercises and even a short workout with no backlash. One nostril 10% stuffy 10% of the night. No problems with nostrils, sinuses, sore throat, nausea or noise (= plugs) all night, just with lower back unrest, dry mouth/tongue burning and 4 pains! So much more exercises again.

cold shower p0 Sleep 22:07- Why not 21:45? Working unnecessarily.
23:15 20’ 90%/1/10% p1 (late GABA) st1 sip fw15’ air A3
TEETH ear plugs
0:07 10’ 80%/1/10% p1 st1 sip fw1’ LBU → massage; FCS#2, dry, pains: plantar, palmar, ribs under left arm, left elbow, still tongue → calendula.
1:18 13’ 80%/1/30% p1 st1 sip fw5’
2:06 47’ 80%/1/30% p0 st1 sip fw1’ 6 air. Problems by late A1-2(?)
3:30 23’ 80%/1/30% p0 st1 sip fw1’ air back/yoga exercises FCS#3
deeper sleep with dreams at last
5:50 4 ’ 80%/1/30% p0 st1 sip fw1’
7:54 7’ 80%/1/30% p0 st1 sip fw2’ B2-4
-8:29
Sum: 1h53+8h29-(20+10+13+47+23+4+7=)2h04 = 10h22 - 2h04 = 8h18, up 7x (2h04)

ACTIVITIES (aim: 40% energy)ACHE: workout ➔ 80%/2 :white_check_mark:, rest/work ➔ 80%/1 :white_check_mark:, TT 4:0 ➔ 80%/2 :white_check_mark:, rest/work ➔ 80%/1 :white_check_mark:, 1h garden ➔ 80%/1 :white_check_mark:
ACTIONSPAINS: :white_check_mark: except: neck :white_check_mark:, GI :white_check_mark:, esophagus :white_check_mark:, jaw 3x5’’ :white_check_mark:, pee pain: 1xp1-2: 23:15 after late GABA :white_check_mark: :x:
MCAS/HIT-Symptoms/Triggers/Treatments: :white_check_mark: Fatigue better from acupuncture/sleep/cold showering as well probably as losing the CoV-antibodies. :face_with_monocle:.
Fibro & Touch: :white_check_mark:
Covid-danger: :white_check_mark:
Weather: Indoors :white_check_mark: Outdoors :white_check_mark:.

Treatments

Docs:
Tooth on Tues 6th. :face_with_monocle: Stopped aching Friday to Saturday night. 15th jump up to 25% energy, so pretty sure Monday was difficult due to piano on Sunday, whilst Wednesday was a problem due to NAC. Oh, Monday I took NAC too!
Chinese Acupuncturist - #28 on 9th, after 28 days :white_check_mark: Still good. Session #29 on 23rd.

SELF-PHYSIO (click for details): 2h04, started off with a 4' workout!

:white_check_mark: airing 5x2’, cold shower 3x(10’), cream/oil fc/ey/hd/ft 1x1’, teeth 4x2’, HWB 0x3’, breath exercises 3x1’, Timing, hunchback-pillow 20’, Y. Nidra 20’, massage gun 2x3’, neck 1+ 1x1’, neck 2 0x1’, plantar/calf stretch 3x1’, acupressure 0x1’, palpate 1’, belly 3’, back 10’, !!aloe vera 1x1’, twist-stretch 2x1’, yoga/stretching 5x1’.
Combine: next?
:x: workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps Sep 5th (32 supps): Supp costs:~364€/m (Sep 8th) CHANGED: NAC may have been the cause of the pain increase yesterday, after taking it in the morning (13th, like on 11th, also a bad day), so leaving it off again, but now up to 4 quercetin, after going up to 2 on 11th. Something is making my urine very smelly, says my wife, she thinks it's yucky, for me it's OK. Added B2 again from 10th on. Copper doesn't seem necessary if my cardio interpreted my bloods right. From 8th on I'm adding the olive leaf extract low (100mg) and slow (but +100mg daily, not weekly), also fisetin I think it was then. Boosting some things from 7th on for tooth. Trying 1x150mg alpha GPC for fatigue from Sep 5th (recommendation on a forum), can add a few when I'm safe. Pure ATP 400mg in liquid was bad, so at most I may encapsulate & start with less, 100mg. Can't explain pee pain on Sep 4th/5th unless additional stress from a gig. Taking 1x B3 flush free since 25th, 2x from 31st (then checking homocystein). New idea: Creatine. PLANNED/TAKEN TODAY: click for details:

ZERO now: Arg, B2, Cu, Mum, Nc 1*.5g, (Nd), Pe, Ps, atm !Qc, Rib, Se, Sr 31125k, Zn.
REGULAR as of Sep 5th (32 supps): ALA .2g, alpha-GPC 1x150mg, B2 0x50mg, B3/Nia 50g, B12 5mg/4m, C 2x.5g, Cr 6x0.6g, 0(-2) DAO before meals, D3 20.000 IE = 500mcg, + K2 (MK7) 200mcg, stopped increasing that, EGCG 1x(50%, incl. theanine?).5g, EllagicA 2 x.2g (+43mg vit. C) after a short break, Fev .4g (+.2g MSM), Ga: now 4x.6g=2.4g, Gi 3x168mg, Glu: down to 0.6g, Hon (2%)x2x.4g=16mg, Luteolin .2g, Ω3 1x5mg, Mg Gly 2x50mg, Mg Mal 2x45mg, P5P 1x27mg, PEA 1x0.4g Pf down to 3x.35g, pine bark down to 1x.5g, PQQ 1, CoQ10 (ubn) 1x.1g, no Qc 0x.5g, Rs (50%) 2x.4g, Ro 2x.35g, Sa .1g, Sily (80%) 1x.5g (+83mg L-cholin) , The 2x.2g (+.15g polyphenols).
What-when-details: Updated Sep 5th (before: see the reference post)
Teeth
/20:40 !400mg GABA A1/2 “19:00” PF#1+2 GABA#1 Cr#1+2, 2 mg mal, 0-1P5P, 0x50mg B2, 1PQQ, 5ml Ω3 & 0Qc. Meal: 1xHon. Q10.
Meal -21: Gum - Teeth2
400mg GABA A3 “21:00” PF#3 .3-.6?GABA#2 & .3-.6?glu & 1Lut (slp!) & 0Qc 1xHon + 0 Rupafin
400mg + GABA
09: B2-4 “07:00” +ALA+1x pine bark, (teeth) +1Ro, 0Qc Rs#1 SAM-e EGCg + Fev/MSM + Sily +2The
Meal 9:15-: Gum 10:-11: Teeth
/9:15 C1-3 “MEAL!” 2Cr#2 .6GABA#4, (C2:) 0x50mgB2, gink#1, 0 Zn, gly#1+2, 1x pine bark#2. .5gC#1 (0 NAC)+PEA + Rutin + vit.D3 1/wk. + 1x alpha-GPC.
12:00 C4 “11:00” (+2h/) gi#2 1 Ellagic acid#1
0 Meal 14:00-14:30 Gum 14:40- (D1) “12:30” Teeth
14:40 D2/3 “13:00” .5gC#2 , 2Cr#3, .6GABA#5, gink#3 DRINK!
18:50 D4 “17:00” (“meal/acids+2h”) Ellag#2, Qc#4.Rs#2, +1Ro
eve:
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; last: Apr 10th.)

The day's 16 supp-compartments (10', plus 5' making capsules), Sep 5th

Pf: 1A1+1A2+1A3, alpha GPC:C2. B2:0A1+0C2 C:C3+D3 3x2Cr: A1+C1+D2, Ell: A4,C4+D4. 4-5xGa: A2,A3,C1c2,D2, Glu: A3,c1 Gi: C2,C4,D3 2Gly:C2 Hon:A2.A3. 2Mal:A2 Qc: 0A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: P5+Q1 (->ubiquinone <150mg/d!):A2. A3: Luteolin B2: ALA+1 pine B3:Sa. B4: 2Th EGCG&Fev/MSM&Sily C2:0Cu/Zn C3:PEA+B3 (A2:Ω/Pq:meal) DAO before risky meals?
(A2:0Se), (B2:0mu), (0Nc: A3, B1,C1,C3,D2)

Development

‘Research’ today: No.
Lessons in self-care #423 Kept most things in time. More exercises nec, but
Reasons to be cheerful #425 Days like this make the struggle worth the while.
Things I love about myself #98 Adaptogenic… adaptogenius…

2022-09-16, Friday - Energy 25% / Sleep 85% / Feeling 80%-ish

:ambulance: Still more back exercises, incl. yoga swinging (faster).
:ambulance: Meals at 9, 1 and 6. Supps in time.
:ambulance: A1-2 supps before 7. Bed before 10. Stop forums there.

Today’s symptoms sorted by the ACR 2016 criteria

Widespread pain, WPI = 11 of 19 areas: limb-Ache 8 (20-50%, stiff 15%) + spine-pain 3 (30%), shoulder-girdles/hips 0 chest / abdomen / jaw 0
Symptom severity, SSS = severity 9 of 12: Fatigue 3 (75%), insomnia 3 (15%), fog 2 (15%), headache 0, GI 1 (20%), depression 0

Triggers & resulting Symptoms

SLEEP (click for details): 9h06, up 7x (1h28) (deep 7h) 🧐✅ ➔ Feeling ?90% well, Ache ?1 of 7 ✅, getting up: ?80%/?2 ✅. Nostrils 40% stuffy 10% of the night.

cold shower p0 Sleep 22:25- Why not 21:45? ear plugs
23:25 5’ 90%/1/10% p0 st1 sip fw1’ air, firm stools.
TEETH
0:40 15’ 80%/1/10% p0 st1 sip fw8’ air, firm stools.
1:05 3’ 80%/1/10% p0 st1 sip fw1’ the longer strangely increased LBU, so exercises, A4 (GABA + PF)
2:35 8’ 90%/1/10% p0 st1 sip fw1’ air (nostril)
5:00 8’ 90%/1/10% p0 st1 sip fw1’ air, right nostril 40%, cream hands.
5:36 26’ 90%/1/10% p0 st1 sip fw1’ 6 doze, no nostrils (one thought a bit hard to get down with YoNi) so…
7:03 9’ 90%/1/10% p0 st1 sip fw1’ air FCS#2 B2-4 got stuck though YoNi
8:10 19’ 90%/1/10% p0 st1 sip fw1’ one pill had got stuck, drinking on that and trying to massage it away didn’t work, it all suddenly came up…
-8:59 stools
Sum: 1h35+8h59-(15+3+8+8+26+9+19=)1h28 = 10h34-1h28 = 9h06, up 7x (1h28) (deep 7h)

ACTIVITIES (aim: 40% energy)ACHE: First the esophagus block was a big strain. ➔ 80%/5 :x:, then slowly recovered ➔ 80%/3 :x:. Then wanted to get my bike back with train from my place of work (cos who knows when I’ll be feeling this well again), quite an ordeal, and returning a key went quick, cos I said I’m sick and can’t wait long, luckily colleagues commuting too, which was nice, altho probably added strain ➔ 80%/5 :x:, but slowly recovering thru lots of rest ➔ 80%/3 :x: :white_check_mark:
?? TT, cycle, mask, work, kids,
ACTIONSPAINS: :white_check_mark: except: neck :white_check_mark:, GI :white_check_mark:, esophagus: at 7 B2-4 one pill had got stuck, drinking on that and trying to massage it away didn’t work, it all suddenly came up…, still not resolved at 9, ate breakfast with massage gunning all the time, betting better at about 10 :x:, jaw 2x5’’ :white_check_mark:?, pee pain: 2xp1-2 :white_check_mark:. Can’t seem to sit much at all, still due to the lying problems after the tooth treatment.
(lie, sit, stand, arms up, cycle, walk, mask??)
MCAS/HIT-Symptoms/Triggers/Treatments: :white_check_mark: Fatigue better from acupuncture/sleep/cold showering as well probably as losing the CoV-antibodies. :face_with_monocle:. Tofu?
Fibro & Touch: :white_check_mark:
Covid-danger: :white_check_mark:
Weather: Indoors :white_check_mark: Outdoors :white_check_mark:.

Treatments

Docs:
Tooth on Tues 6th. :face_with_monocle: Suddenly back to 25% after leaving off the NAC again, so seems fairly resolved, altho still Aching quite a lot when I use the whole of the 25%.
Chinese Acupuncturist - #28 on 9th, after 28 days :white_check_mark: Still good. Session #29 on 23rd.

SELF-PHYSIO (click for details): 2h36

:white_check_mark: airing 5x2’, cold shower 2x(10’), cream/oil fc/ey/hd/ft 2x1’, teeth 3x2’, HWB 0x3’, breath exercises 5x1’, Timing, hunchback-pillow 0’, Y. Nidra 40’, massage gun 40’!, neck 1+ 0x1’, neck 2 0x1’, plantar/calf stretch 1x1’, acupressure 0x1’, palpate 1’, belly 3’, back 10’, !!aloe vera 2x1’, twist-stretch 3x1’, yoga/stretching 8x1’.
Combine: next?
:x: workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps Sep 5th (32 supps): Supp costs:~364€/m (Sep 8th) CHANGED: 4 Quercetin, from 14th on, no more NAC! Something is making my urine very smelly, says my wife, she thinks it's yucky, for me it's OK. Added a little NAC & 2 Quercetin on Sep 11th. Added B2 again from 10th on. Copper doesn't seem necessary if my cardio interpreted my bloods right. From 8th on I'm adding the olive leaf extract low (100mg) and slow (but +100mg daily, not weekly), also fisetin I think it was then. Boosting some things from 7th on for tooth. Trying 1x150mg alpha GPC for fatigue from Sep 5th (recommendation on a forum), can add a few when I'm safe. Pure ATP 400mg in liquid was bad, so at most I may encapsulate & start with less, 100mg. Can't explain pee pain on Sep 4th/5th unless additional stress from a gig. Taking 1x B3 flush free since 25th, 2x from 31st (then checking homocystein). New idea: Creatine. PLANNED/TAKEN TODAY: click for details:

ZERO now: Arg, B2, Cu, Mum, Nc 1*.5g, (Nd), Pe, Ps, atm !Qc, Rib, Se, Sr 31125k, Zn.
REGULAR as of Sep 5th (32 supps): ALA .2g, alpha-GPC 1x150mg, B2 0x50mg, B3/Nia 50g, B12 5mg/4m, C 2x.5g, Cr 6x0.6g, 0(-2) DAO before meals, D3 20.000 IE = 500mcg, + K2 (MK7) 200mcg, stopped increasing that, EGCG 1x(50%, incl. theanine?).5g, EllagicA 2 x.2g (+43mg vit. C) after a short break, Fev .4g (+.2g MSM), Ga: now 4x.6g=2.4g, Gi 3x168mg, Glu: down to 0.6g, Hon (2%)x2x.4g=16mg, Luteolin .2g, Ω3 1x5mg, Mg Gly 2x50mg, Mg Mal 2x45mg, P5P 1x27mg, PEA 1x0.4g Pf down to 3x.35g, pine bark down to 1x.5g, PQQ 1, CoQ10 (ubn) 1x.1g, no Qc 0x.5g, Rs (50%) 2x.4g, Ro 2x.35g, Sa .1g, Sily (80%) 1x.5g (+83mg L-cholin) , The 2x.2g (+.15g polyphenols).
What-when-details: Updated Sep 5th (before: see the reference post)
/19:00+20:10 400mg GABA A1/2 “19:00” PF#1+2 GABA#1 Cr#1+2, 2 mg mal, 0-1P5P, 0x50mg B2, 1PQQ, 5ml Ω3 & 0Qc. Meal: 1xHon. Q10.
Meal -21: Gum -
/22:05 400mg GABA A3 “21:00” PF#3 .3-.6?GABA#2 & .3-.6?glu & 1Lut (slp!) & 0Qc 1xHon + 0 Rupafin
/1:05 400mg + GABA
/7:05 09: B2-4 “07:00” +ALA+1x pine bark, (teeth) +1Ro, 0Qc Rs#1 SAM-e EGCg + Fev/MSM + Sily +2The
Meal 10:-: Gum 10:-11:
/10:05 10: C1-3 “MEAL!” 2Cr#2 .6GABA#4, (C2:) 0x50mgB2, gink#1, 0 Zn, gly#1+2, 1x pine bark#2. .5gC#1 (0 NAC)+PEA + Rutin + vit.D3 1/wk. + 1x alpha-GPC.
/13:10 C4 “11:00” (+2h/) gi#2 1 Ellagic acid#1
0 Meal -15:15 Gum - (D1) “12:30”
15:15 D2/3 “13:00” .5gC#2 , 2Cr#3, .6GABA#5, gink#3 DRINK!
/17:15 D4 “17:00” (“meal/acids+2h”) Ellag#2, Qc#4.Rs#2, +1Ro
eve:
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; last: Apr 10th.)

The day's 16 supp-compartments (10', plus 5' making capsules), Sep 5th

Pf: 1A1+1A2+1A3, alpha GPC:C2. B2:0A1+0C2 C:C3+D3 3x2Cr: A1+C1+D2, Ell: A4,C4+D4. 4-5xGa: A2,A3,C1c2,D2, Glu: A3,c1 Gi: C2,C4,D3 2Gly:C2 Hon:A2.A3. 2Mal:A2 Qc: 0A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: P5+Q1 (->ubiquinone <150mg/d!):A2. A3: Luteolin B2: ALA+1 pine B3:Sa. B4: 2Th EGCG&Fev/MSM&Sily C2:0Cu/Zn C3:PEA+B3 (A2:Ω/Pq:meal) DAO before risky meals?
(A2:0Se), (B2:0mu), (0Nc: A3, B1,C1,C3,D2)

Development

‘Research’ today: No.
Lessons in self-care #424 Managed to keep everything on time today.
Reasons to be cheerful #426 Did quite a lot and got thru with little harm = backlash.
Things I love about myself #99 Never give up.

2022-09-17, Saturday - Energy 25% / Sleep 85% / Feeling 80%-ish

Successes: :trophy: Another day in more timely rhythm.
:zap: Drinking a little more douses night GABA acidity.
Learnt:
:student: Magnesium threonate isn’t as hard to get as I thought,
:student: It may help the brain more than pain, but that includes sleep.
:student: I’d seen and liked Andrew Huberman on youtube already.
:student: NSDR = non-sleep deep rest is like Yoga Nidra, Ally does “NDSR” too.
:student: 5’+ of morning sun wakes up, 20’ evening sun gets sleepy (looking at it, without windows).
:student: Exercise first thing, if possible.
:student: A cold shower in the mornings makes warm & wakes up via epinephrin & dopamin. (Hmm not sure how the cold showers reset me then.)
:ambulance: Still more back exercises, incl. yoga swinging (faster).
:ambulance: Meals at 8/9, 1 and 6. Supps in time.
:ambulance: A1-2 supps before 7. Bed before 10. Stop forums there.

Today’s symptoms sorted by the ACR 2016 criteria

Widespread pain, WPI = 11 of 19 areas: limb-Ache 8 (20%, stiff 15%) + spine-pain 3 (20%), shoulder-girdles/hips 0 chest / abdomen / jaw 0
Symptom severity, SSS = severity 9 of 12: Fatigue 3 (75%), insomnia 3 (15%), fog 2 (15%), headache 0, GI 1 (10%), depression 0

Triggers & resulting Symptoms

SLEEP (click for details): 8h55, up 8x (1h38), deep: 1+5= 6h 🧐✅ ➔ Feeling ?90% well, Ache ?1 of 7 ✅, getting up: ?80%/?2 ✅. Nostrils 10% stuffy 10% of the night.

cold shower p0 Sleep 22:35- Why not 21:45?: Music, alone.

23:25 20’ 90%/1/10% p0 st1 sip fw1’ air stools (downstairs) (songs)
0:05 5’ 90%/1/10% p0 st1 sip fw1’ LBU → gun.
0:45 27’ 90%/1/10% p0 st1 sip fw1’ air A4: GABA #3 PF #4. (songs)
1:27 8’ 90%/1/10% p0 st1 sip fw1’ FCS#2. burn (GABA) → 3 sips OK.
3:10 5’ 90%/1/10% p0 st1 sip fw1’ air cream
5:20 10’ 90%/1/10% p0 st1 sip fw1’ air TEETH
6:44 10’ 90%/1/10% p0 st1 sip fw1’ air 6 (nostril)
8:03 13’ 90%/1/10% p0 st1 sip fw1’ air FCS#3 B2-4
-9:08 (sinuses) stools, (ear plugs mainly for showering)
Sum: 1h25+9h08-(20+5+27+8+5+10+10+13=)1h38 = 10h33-1h38 = 8h55, up 8x (1h38), deep: 1+5= 6h

ACTIVITIES (aim: 40% energy)ACHE: Good almost all day 90%/1, except for a short while after TT 4:“0” and 15’ supermarket 80%/2 :white_check_mark:.
ACTIONSPAINS: :white_check_mark: except: neck :white_check_mark:, GI :white_check_mark:, esophagus 3x slight problems in the evening, needed massage gun :x:, jaw 3x5’’ :white_check_mark:, pee pain: 0xp1-2 :white_check_mark:, sitting still hasn’t become good again, but better, other actions all without problems.
MCAS/HIT-Symptoms/Triggers/Treatments: :white_check_mark: Fatigue better from acupuncture/sleep/cold showering as well probably as losing the CoV-antibodies. :face_with_monocle:. Frontal sinus ache most of the day till early evening, dunno why, maybe adjusting to the cold. 5’ of skin burning only due to the flushing B3 I’m now adding.
Fibro & Touch: :white_check_mark:
Covid-danger: :white_check_mark:
Weather: Indoors :white_check_mark: Outdoors :white_check_mark:.

Treatments

Docs:
Chinese Acupuncturist - #28 on 9th, after 28 days :white_check_mark: Still good. Session #29 on 23rd.

SELF-PHYSIO (click for details): 2h01

:white_check_mark: airing 5x2’, cold shower 3x(10’), cream/oil fc/ey/hd/ft 2x1’, teeth 3x2’, HWB 1x3’, breath exercises 3x1’, Timing, hunchback-pillow 0’, Y. Nidra 40’, massage gun 2x3’, neck 1+ 1x1’, neck 2 0x1’, plantar/calf stretch 1x1’, acupressure 0x1’, palpate 1’, belly 3’, back 10’, !!aloe vera 1x1’, twist-stretch 2x1’, yoga/stretching 2x1’.
Combine: next?
:x: workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps Sep 5th (32 supps): Supp costs:~364€/m (Sep 8th) CHANGED: Started the normal flushing form of B3 from 17th on (OK for starters, esp. as I now know that flushing isn't bad, it may even be good). 4 Quercetin, from 14th on, no more NAC! Something is making my urine very smelly, says my wife, she thinks it's yucky, for me it's OK. Added a little NAC & 2 Quercetin on Sep 11th. Added B2 again from 10th on. Copper doesn't seem necessary if my cardio interpreted my bloods right. From 8th on I'm adding the olive leaf extract low (100mg) and slow (but +100mg daily, not weekly), also fisetin I think it was then. Boosting some things from 7th on for tooth. Trying 1x150mg alpha GPC for fatigue from Sep 5th (recommendation on a forum), can add a few when I'm safe. Pure ATP 400mg in liquid was bad, so at most I may encapsulate & start with less, 100mg. Can't explain pee pain on Sep 4th/5th unless additional stress from a gig. Taking 1x B3 flush free since 25th, 2x from 31st (then checking homocystein). New idea: Creatine. PLANNED/TAKEN TODAY: click for details:

ZERO now: Arg, B2, Cu, Mum, Nc 1*.5g, (Nd), Pe, Ps, atm !Qc, Rib, Se, Sr 31125k, Zn.
REGULAR as of Sep 5th (32 supps): ALA .2g, alpha-GPC 1x150mg, B2 0x50mg, B3/Nia 50g, B12 5mg/4m, C 2x.5g, Cr 6x0.6g, 0(-2) DAO before meals, D3 20.000 IE = 500mcg, + K2 (MK7) 200mcg, stopped increasing that, EGCG 1x(50%, incl. theanine?).5g, EllagicA 2 x.2g (+43mg vit. C) after a short break, Fev .4g (+.2g MSM), Ga: now 4x.6g=2.4g, Gi 3x168mg, Glu: down to 0.6g, Hon (2%)x2x.4g=16mg, Luteolin .2g, Ω3 1x5mg, Mg Gly 2x50mg, Mg Mal 2x45mg, P5P 1x27mg, PEA 1x0.4g Pf down to 3x.35g, pine bark down to 1x.5g, PQQ 1, CoQ10 (ubn) 1x.1g, no Qc 0x.5g, Rs (50%) 2x.4g, Ro 2x.35g, Sa .1g, Sily (80%) 1x.5g (+83mg L-cholin) , The 2x.2g (+.15g polyphenols).
What-when-details: Updated Sep 5th (before: see the reference post)
/20:00+20:40 400mg GABA A1/2 “19:00” PF#1+2 GABA#1 Cr#1+2, 2 mg mal, 0-1P5P, 0x50mg B2, 1PQQ, 5ml Ω3 & 0Qc. Meal: 1xHon. Q10.
Meal -21: Gum -
/22:00 400mg GABA A3 “21:00” PF#3 .3-.6?GABA#2 & .3-.6?glu & 1Lut (slp!) & 0Qc 1xHon + 0 Rupafin
/01:00 400mg + GABA
/08:15 B2-4 “07:00” +ALA+1x pine bark, (teeth) +1Ro, 0Qc Rs#1 SAM-e EGCg + Fev/MSM + Sily +2The
Meal 9:40-10:15 Gum 10:-11:
/10:00 C1-3 “MEAL!” 2Cr#2 .6GABA#4, (C2:) 0x50mgB2, gink#1, 0 Zn, gly#1+2, 1x pine bark#2. .5gC#1 (0 NAC)+PEA + Rutin + vit.D3 1/wk. + 1x alpha-GPC.
/13:00 C4 “11:00” (+2h/) gi#2 1 Ellagic acid#1
0 Meal 14:10-45 Gum 15:00-15:20 (D1) “12:30”
/14:10 D2/3 “13:00” .5gC#2 , 2Cr#3, .6GABA#5, gink#3 DRINK!
/17:35 D4 “17:00” (“meal/acids+2h”) Ellag#2, Qc#4.Rs#2, +1Ro
eve:
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; last: Apr 10th.)

The day's 16 supp-compartments (10', plus 5' making capsules), Sep 5th

Pf: 1A1+1A2+1A3, alpha GPC:C2. B2:0A1+0C2 C:C3+D3 3x2Cr: A1+C1+D2, Ell: A4,C4+D4. 4-5xGa: A2,A3,C1c2,D2, Glu: A3,c1 Gi: C2,C4,D3 2Gly:C2 Hon:A2.A3. 2Mal:A2 Qc: 0A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: P5+Q1 (->ubiquinone <150mg/d!):A2. A3: Luteolin B2: ALA+1 pine B3:Sa. B4: 2Th EGCG&Fev/MSM&Sily C2:0Cu/Zn C3:PEA+B3 (A2:Ω/Pq:meal) DAO before risky meals?
(A2:0Se), (B2:0mu), (0Nc: A3, B1,C1,C3,D2)

Development

‘Research’ today:
Huberman about sleep, 1h41! Sleep Toolkit: Tools for Optimizing Sleep & Sleep-Wake Timing | Huberman Lab Podcast #84 - YouTube
And looking for pure versions of his supp recommendations and ordering some of them.
Lessons in self-care #425 Looking for the best alternative health practitioner in my town.
Reasons to be cheerful #427 4 games of TT, and each a blessing!
Things I love about myself #100 Enjoying life.

2022-09-18, Sunday - Energy 25% / Sleep 85% / Feeling 80%-ish

Successes: :trophy: On schedule including looking at direct sun.
:zap: 3rd plantar idea: wrap duvet under feet and press against it.
Learnt: :student: Lysine was wrong for sleep, at least not in Huberman)'s video.
:ambulance: Still more back exercises, incl. yoga swinging (faster).
:ambulance: Meals at 8/9, 1 and 6. Supps in time.
:ambulance: A1-2 supps before 7. Bed before 10. Stop forums there.

Today’s symptoms sorted by the ACR 2016 criteria

Widespread pain, WPI = 11 of 19 areas: limb-Ache 8 (20-30%, stiff 10%) + spine-pain 3 (15%), shoulder-girdles/hips 0 chest / abdomen / jaw 0
Symptom severity, SSS = severity 9 of 12: Fatigue 3 (75%), insomnia 3 (15%), fog 2 (15%), headache 0, GI 1 (10%), depression 0

Triggers & resulting Symptoms

SLEEP (click for details): 9h, up 7x (1h20) 🧐✅ ➔ Feeling ?90% well, Ache ?1 of 7 ✅, getting up: ?80%/?2 ✅. Nostrils 10% stuffy 10% of the night.

cold shower p0 Sleep TEETH 22:05-
23:20 35’ 90%/1/10% p0 st1 sip fw1’ deep. air
2:05 20’ 90%/1/10% p0 st1 sip fw1’ deep. air nauseous, left nostril, heating off: 18° ->16°/67%, plantar 1’
3:05 5’ 90%/1/10% p0 st1 sip fw1’ deep nauseous, left nostril: ex, plantar 1’, skin itching on forearms. FCS#2 (forgot GABA#3 = A4)
5:15 5’ 90%/1/10% p0 st1 sip fw1’ deep air right nostril: ex, nauseous.
6:45 5’ 90%/1/10% p0 st1 sip fw1’ deep air plantar ear plugs from now on.
7:12 5’ 90%/1/10% p0 st1 sip fw1’ doze with plantar air B2-4
7:40 5’ 90%/1/10% p0 st1 sip fw1’ doze with plantar air
-8:25 stools. Back exercises.
8:51 workout looking in the sky, then some leaf gardening in the garden 9:25 C1-3
Sum: 1h55+8h25-(35+20+5+5+5+5+5=)1h20 = 10h20-1h20 = 9h, up 7x (1h20)

ACTIVITIES (aim: 40% energy)ACHE: Workout & pruning looking at the “sun” 5’+ ➔ 80%/3 :white_check_mark:, resting then again in the afternoon pruning, out, looking at the sun, this time actually brighter thru the clouds, for 10’+ ➔ 80%/3 :white_check_mark:, mask wearing for 1.5h making me feverish ➔ 80%/3 :x: (no TT)
ACTIONSPAINS: :white_check_mark: except: neck :white_check_mark:, GI :white_check_mark:, esophagus: Again quite a problem at 14:00, gun not enough, I think maybe the fibrous old fennel :x:, jaw 2x5’’ :white_check_mark:, pee pain: 0xp1-2 :white_check_mark:
MCAS/HIT-Symptoms/Triggers/Treatments: :white_check_mark: Fatigue better from acupuncture/sleep/cold showering as well probably as losing the CoV-antibodies. :face_with_monocle:
Fibro & Touch: :white_check_mark:
Covid-danger: :white_check_mark:
Weather: Indoors :white_check_mark: Outdoors :white_check_mark:, but - now it’s suddenly much colder - needing to think a lot what to put on, long johns definitely nec, and blanket and hot water bottle. Makes a difference now cos of gas price rocketing that I want to try not to heat much.

Treatments

Docs:
Chinese Acupuncturist - #28 on 9th, after 28 days :white_check_mark: Still good. Session #29 on 23rd.

SELF-PHYSIO (click for details): 1h49'

:white_check_mark: airing 5x2’, cold shower 2x(10’), cream/oil fc/ey/hd/ft 3x1’, teeth 3x2’, HWB 1x3’, breath exercises 3x1’, Timing, hunchback-pillow 0’, Y. Nidra 20’, massage gun 3x3’, neck 1+ 1x1’, neck 2 0x1’, plantar/calf stretch 3x1’, acupressure 0x1’, palpate 1’, belly 3’, back 10’, !!aloe vera 1x1’, twist-stretch 2x1’, yoga/stretching 2x1’, breath-hold 12’,
Combine: next?
:x: workout 7’, horse stance 1’, balance roll standing 5’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps Sep 5th (34 supps): Supp costs:~364€/m (Sep 8th) CHANGED: Ordered magnesium threonate on 17th, plus probably apigenin, lysine and myo-inositol (all from Huberman). Started the normal flushing form of B3 from 17th on (OK for starters, esp. as I now know that flushing isn't bad, it may even be good).4 Quercetin, from 14th on, no more NAC! Something is making my urine very smelly, says my wife, she thinks it's yucky, for me it's OK. Added a little NAC & 2 Quercetin on Sep 11th. Added B2 again from 10th on. Copper doesn't seem necessary if my cardio interpreted my bloods right. From 8th on I'm adding the olive leaf extract low (100mg) and slow (but +100mg daily, not weekly), also fisetin I think it was then. Boosting some things from 7th on for tooth. Trying 1x150mg alpha GPC for fatigue from Sep 5th (recommendation on a forum), can add a few when I'm safe. Pure ATP 400mg in liquid was bad, so at most I may encapsulate & start with less, 100mg. Can't explain pee pain on Sep 4th/5th unless additional stress from a gig. Taking 1x B3 flush free since 25th, 2x from 31st (then checking homocystein). New idea: Creatine. PLANNED/TAKEN TODAY: click for details:

ZERO now: Arg, B2, Cu, Mum, Nc 1*.5g, (Nd), Pe, Ps, atm !Qc, Rib, Se, Sr 31125k, Zn.
REGULAR as of Sep 17th (32 supps): ALA .2g, alpha-GPC 1x150mg, B2 0x50mg, B3/Nia 250g & B3 flush free 400mg, B12 0x5mg/4m, C 2x.5g, Cr 6x0.6g, 0(-2) DAO before meals, D3 20.000 IE = 500mcg, + K2 (MK7) 200mcg, stopped increasing that, EGCG 1x(50%, incl. theanine?).5g, EllagicA 2 x.2g (+43mg vit. C) after a short break, Fev .4g (+.2g MSM), Ga: now 3x0.4g+2x.6g=2.4g, Gi 3x168mg, Glu: down to 0.6g, Hon (2%)x2x.4g=16mg, Luteolin .2g, Ω3 1x5mg, Mg Gly 2x50mg, Mg Mal 2x45mg, P5P 1x27mg, PEA 1x0.4g Pf 3(-4)x.35g, pine bark 2x.5g, PQQ 1, CoQ10 (ubn) 1x.1g, Qc 4x.5g, Rs (50%) 2x.4g, Ro 2x.35g, Sa .1g, Sily (80%) 1x.5g (+83mg L-cholin) , The 2x.2g (+.15g polyphenols).
What-when-details: Updated Sep 5th (before: see the reference post)
/19:30 400mg GABA A1/2 “19:00” PF#1+2 GABA#1 Cr#1+2, 2 mg mal, 0-1P5P, 0x50mg B2, 1PQQ, 5ml Ω3 & 0Qc. Meal: 1xHon. Q10.
Meal -21: Gum -
/21:55 400mg GABA A3 “21:00” PF#3 .3-.6?GABA#2 & .3-.6?glu & 1Lut (slp!) & 0Qc 1xHon + 0 Rupafin
0 23:55 400mg + GABA
/7:15 B2-4 “07:00” +ALA+1x pine bark, (teeth) +1Ro, 0Qc Rs#1 SAM-e EGCg + Fev/MSM + Sily +2The
Meal 9:30-9:45 Gum 10:-11:
/9:30 C1-3 “MEAL!” 2Cr#2 .6GABA#4, (C2:) 0x50mgB2, gink#1, 0 Zn, gly#1+2, 1x pine bark#2. .5gC#1 (0 NAC)+PEA + Rutin + vit.D3 1/wk. + 1x alpha-GPC.
/13:00 C4 “11:00” (+2h/) gi#2 1 Ellagic acid#1. There was a 3rd dark one, dunno what.
0 Meal - Gum - (D1) “12:30”
/14:20 D2/3 “13:00” .5gC#2 , 2Cr#3, .6GABA#5, gink#3 DRINK!
/16:50 D4 “17:00” (“meal/acids+2h”) Ellag#2, Qc#4.Rs#2, +1Ro
eve:
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; last: Apr 10th.)

The day's 16 supp-compartments (10', plus 5' making capsules), Sep 5th

Pf: 1A1+1A2+1A3, alpha GPC:C2. B2:0A1+0C2 C:C3+D3 3x2Cr: A1+C1+D2, Ell: A4,C4+D4. 4-5xGa: A2,A3,C1c2,D2, Glu: A3,c1 Gi: C2,C4,D3 2Gly:C2 Hon:A2.A3. 2Mal:A2 Qc: 0A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: P5+Q1 (->ubiquinone <150mg/d!):A2. A3: Luteolin B2: ALA+1 pine B3:Sa. B4: 2Th EGCG&Fev/MSM&Sily C2:0Cu/Zn C3:PEA+B3 (A2:Ω/Pq:meal) DAO before risky meals?
(A2:0Se), (B2:0mu), (0Nc: A3, B1,C1,C3,D2)

Development

‘Research’ today: No.
Lessons in self-care #426 Pretty on schedule today, despite pain.
Reasons to be cheerful #428 Full workout for a change, however slightly overdoing it all day.

2022-09-19, Monday - Energy 20 → 10%!? WHY? → ?20% (from glutathione?) / Sleep 85% / Feeling 90%-ish

Successes: :trophy: Glutathione?
:ambulance: Meals at 8/9, 1 and 6. Bed before 10. Stop forums there.

Today’s symptoms sorted by the ACR 2016 criteria

Widespread pain, WPI = 11 of 19 areas: limb-Ache 8 (20%, stiff 15%) + spine-pain 3 (10%), shoulder-girdles/hips 0 chest / abdomen / jaw 0
Symptom severity, SSS = severity 9 of 12: Fatigue 3 (80-90-80%), insomnia 3 (15%), fog 2 (10%), headache 0, GI 1 (20%), depression 0

Triggers & resulting Symptoms

SLEEP (click for details): 9h28, up 8x (1h19), deep ~7h30 ✅ ➔ Feeling 80-90% well, Ache 1 of 7 ✅, getting up: 90%/1 ✅. Nostrils 10% stuffy 10% of the night, like Fr Sat Sun, just forgot to change it.

cold shower p0 Sleep 22:10-
23:08 5’ 80%/2/10% p0 st1 sip fw1’ air slight nausea & heartburn. Firm stools.
23:35 2’ 90%/1/10% p0 st1 sip fw1’ air cream
0:20 4’ 80%/2/20% p0 st1 sip fw1’
1:25 5’ 90%/1/10% p0 st1 sip fw1’ air plantar/stretch dry/gel GABA #3 cream
2:05 22’ 90%/1/10% p0 st1 sip fw10’ nauseous/drink (from GABA) FCS#2 cream
3:56 6’ 90%/1/10% p0 st1 sip fw1’ air doz/YoNi, sore throat/cal/HWB
6:21 27* 90%/1/10% p0 st1 sip fw1’ 6 ear plugs
8:33 8’ 90%/1/10% p0 st1 sip fw1’ deep B2-4
-8:57 90%/1/10% p0 st1 deep, back ex., 5’ workout in sun
Sum: 1h50+8h57-(5+2+4+5+22+6+27+8=)1h19 = 10h47-1h19 = 9h28, up 8x (1h19), deep ~7h30.

ACTIVITIES (aim: 40% energy)ACHE: 4’ workout ➔ 80%/3 :white_check_mark:, but then 3h later at 12 TT 1:1 ➔ 60%/5 :x:, don’t understand why at all! Last Monday and Wednesday it was NAC that made me think so. What could it be now? Surprisingly better in the afternoon, after glutathione… so 1.5h kids with mask not much of a problem ➔ 80%/3 :white_check_mark:
ACTIONSPAINS: :white_check_mark: except: neck :white_check_mark:, GI :white_check_mark:, esophagus but (remember fennel is a problem) :white_check_mark:, jaw 2x5’’ :white_check_mark:, pee pain: 0xp1-2 :white_check_mark:, however urge/frequency high all day :x:
MCAS/HIT-Symptoms/Triggers/Treatments: :white_check_mark: Fatigue better from acupuncture/sleep/cold showering as well probably as losing the CoV-antibodies. :face_with_monocle:. Pak choy is not a problem.
Fibro & Touch: :white_check_mark:
Covid-danger: :white_check_mark:
Weather: Indoors :white_check_mark: Outdoors :white_check_mark:. Getting used to the cold a bit.

Treatments

Docs:
Chinese Acupuncturist - #28 on 9th, after 28 days :white_check_mark: Still good. Session #29 on 23rd.

SELF-PHYSIO (click for details): 88'

:white_check_mark: airing 4x2’, cold shower 2x(10’), cream/oil fc/ey/hd/ft 2x1’, teeth 3x2’, HWB 2x3’, breath exercises 3x1’, Timing, hunchback-pillow 0’, Y. Nidra 20’, massage gun 1x3’, neck 1+ 1x1’, neck 2 0x1’, plantar/calf stretch 1x1’, acupressure 0x1’, palpate 1’, belly 3’, back 10’, !!aloe vera 0x1’, twist-stretch 2x1’, yoga/stretching 2x1’.
Combine: next?
:x: workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps Sep 5th (34 supps): Supp costs:~364€/m (Sep 8th) CHANGED: Ordered magnesium threonate on 17th, plus apigenin and myo-inositol (all from Huberman). Started the normal flushing form of B3 from 17th on (OK for starters, esp. as I now know that flushing isn't bad, it may even be good).4 Quercetin, from 14th on, no more NAC! Something is making my urine very smelly, says my wife, she thinks it's yucky, for me it's OK. Added a little NAC & 2 Quercetin on Sep 11th. Added B2 again from 10th on. Copper doesn't seem necessary if my cardio interpreted my bloods right. From 8th on I'm adding the olive leaf extract low (100mg) and slow (but +100mg daily, not weekly), also fisetin I think it was then. Boosting some things from 7th on for tooth. Trying 1x150mg alpha GPC for fatigue from Sep 5th (recommendation on a forum), can add a few when I'm safe. Pure ATP 400mg in liquid was bad, so at most I may encapsulate & start with less, 100mg. Can't explain pee pain on Sep 4th/5th unless additional stress from a gig. Taking 1x B3 flush free since 25th, 2x from 31st (then checking homocystein). New idea: Creatine. PLANNED/TAKEN TODAY: click for details:

ZERO now: Arg, B2, Cu, Mum, Nc 1*.5g, (Nd), Pe, Ps, atm !Qc, Rib, Se, Sr 31125k, Zn.
REGULAR as of Sep 17th (32 supps): ALA .2g, alpha-GPC 1x150mg, B2 0x50mg, B3/Nia 250g & B3 flush free 400mg, B12 0x5mg/4m, C 2x.5g, Cr 6x0.6g, 0(-2) DAO before meals, D3 20.000 IE = 500mcg, + K2 (MK7) 200mcg, stopped increasing that, EGCG 1x(50%, incl. theanine?).5g, EllagicA 2 x.2g (+43mg vit. C) after a short break, Fev .4g (+.2g MSM), Ga: now 3x0.4g+2x.6g=2.4g, Gi 3x168mg, Glu: down to 0.6g, Hon (2%)x2x.4g=16mg, Luteolin .2g, Ω3 1x5mg, Mg Gly 2x50mg, Mg Mal 2x45mg, P5P 1x27mg, PEA 1x0.4g Pf 3(-4)x.35g, pine bark 2x.5g, PQQ 1, CoQ10 (ubn) 1x.1g, Qc 4x.5g, Rs (50%) 2x.4g, Ro 2x.35g, Sa .1g, Sily (80%) 1x.5g (+83mg L-cholin) , The 2x.2g (+.15g polyphenols).
What-when-details: Updated Sep 5th (before: see the reference post)
/19:40 400mg GABA A1/2 “19:00” PF#1+2 GABA#1 Cr#1+2, 2 mg mal, 0-1P5P, 0x50mg B2, 1PQQ, 5ml Ω3 & 0Qc. Meal: 1xHon. Q10.
Meal -21: Gum -
/21:55 400mg GABA A3 “21:00” PF#3 .3-.6?GABA#2 & .3-.6?glu & 1Lut (slp!) & 0Qc 1xHon + 0 Rupafin
/1:25 400mg + GABA
/08:40 B2-4 “07:00” +ALA+1x pine bark, (teeth) +1Ro, 0Qc Rs#1 SAM-e EGCg + Fev/MSM + Sily +2The
Meal 9:40-10:25 Gum 10:-11:
/10:25 C1-3 “MEAL!” 2Cr#2 .6GABA#4, (C2:) 0x50mgB2, gink#1, 0 Zn, gly#1+2, 1x pine bark#2. .5gC#1 (0 NAC)+PEA + Rutin + vit.D3 1/wk. + 1x alpha-GPC.
/13:30 C4 “11:00” (+2h/) gi#2 1 Ellagic acid#1
0 Meal 14:00-14:30 Gum 14:40- (D1) “12:30”
14:40 D2/3 “13:00” .5gC#2 , 2Cr#3, .6GABA#5, gink#3 DRINK!
/17:30 D4 “17:00” (“meal/acids+2h”) Ellag#2, Qc#4.Rs#2, +1Ro
eve:
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; last: Apr 10th.)

The day's 16 supp-compartments (10', plus 5' making capsules), Sep 5th

Pf: 1A1+1A2+1A3, alpha GPC:C2. B2:0A1+0C2 C:C3+D3 3x2Cr: A1+C1+D2, Ell: A4,C4+D4. 4-5xGa: A2,A3,C1c2,D2, Glu: A3,c1 Gi: C2,C4,D3 2Gly:C2 Hon:A2.A3. 2Mal:A2 Qc: 0A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: P5+Q1 (->ubiquinone <150mg/d!):A2. A3: Luteolin B2: ALA+1 pine B3:Sa. B4: 2Th EGCG&Fev/MSM&Sily C2:0Cu/Zn C3:PEA+B3 (A2:Ω/Pq:meal) DAO before risky meals?
(A2:0Se), (B2:0mu), (0Nc: A3, B1,C1,C3,D2)

Development

‘Research’ today: No.
Lessons in self-care #427 Put off a meeting at midday, cos I was feeling bad, but…:
Reasons to be cheerful #429 Great with grandchild in the afternoon.

2022-09-20, Tuesday - Energy 20(-15?)% / Sleep 85% / Feeling 80%-ish

Successes:
:zap: Rediscovered intense back exercises (wrists flat on mattress)
Learnt: :student: Why NAC is more of a problem than vitamin C.
:ambulance: What’s so diuretic at the moment? Glutathione? B3?

Today’s symptoms sorted by the ACR 2016 criteria

Widespread pain, WPI = “12” of 19 areas: limb-Ache 8 (20%, stiff 10%) + spine-pain 3 (10%), shoulder-girdles/hips 0 chest / abdomen / jaw “1”
Symptom severity, SSS = severity 9 of 12: Fatigue 3 (80(-85?)%), insomnia 3 (15%), fog 2 (15%), headache 0, GI 1 (10%), depression 0

Triggers & resulting Symptoms

SLEEP (click for details): 9h26, up 7x (50'), 8h30 deep! ✅ ➔ Feeling 70% well, Ache 2 of 7 🧐, getting up: 80%/2 ✅. Nostrils 0% stuffy 0% of the night, despite 70% humidity. 8' fibro-work at 3:30 unnec. risk. Fast warm shower at 4 worked for 2h, HWB at 1 for 2.5h.

cold shower p0 Sleep 22:25-
23:40 6’ 80%/2/10% p0 st1 sip fw1’ deep air A4-GABA
0:50 9’ 70%/2/10% p0 st1 sip fw1’ deep air HWB cream
3:31 11’ 70%/2/10% p0 st1 sip fw8’ deep air no burn etc.
4:03 7’ 70%/2/10% p0 st1 sip fw1’ doze → FWS (air). cream
6:14 7’ 70%/2/10% p0 st1 sip fw1’ deep cream
7:20 8’ 70%/2/10% p0 st1 sip fw1’ deep (stomach) cream B2-4 ear plugs
8:15 2’ 70%/210% p0 st1 sip fw1’ doze
-8:31 stools,
Sum: 1h35+8h31-(6+9+11+7+7+8+2=)50’ = 10h16-50’ = 9h26, up 7x (50’), 8h30 deep!

ACTIVITIES (aim: 40% energy)ACHE: TT 2:0 ➔ 80%/2-4 :white_check_mark:, a rapid increase of Ache shortly before the end of the 2nd game. Rest & breath-holding ➔ 80%/2 :white_check_mark:, tooth at 12:50-13:15 ➔ 80%/5 :white_check_mark:, lots of rest ➔ 80%/2-3
ACTIONSPAINS: :white_check_mark: except: neck :white_check_mark:, GI :white_check_mark:, esophagus :white_check_mark:, jaw 0x5’’ :white_check_mark:, pee pain: 1xp1-2 :white_check_mark:, but still frequency of ~2x/h, since all day yesterday, so if that continues I need to re-evaluate the new supps! I asked for my head to be put backwards a bit more when sitting in the dentist’s chair, better for my hunchback. :white_check_mark:
MCAS/HIT-Symptoms/Triggers/Treatments: :white_check_mark: Fatigue better from acupuncture/sleep/cold showering as well probably as losing the CoV-antibodies. :face_with_monocle:. No problems, despite lots of yogurt, beans and olives; quite a bit of research.
Fibro & Touch: :white_check_mark:
Covid-danger: :white_check_mark:
Weather: Indoors :white_check_mark: Outdoors :white_check_mark:. Wearing gloves outdoors and indoors, partly long johns indoors.

Treatments

Docs:
Tooth on 20th - felt better, but the tooth/jaw ache after seems worse.
Chinese Acupuncturist - #28 on 9th, after 28 days :white_check_mark: Still good. Session #29 on 23rd.

SELF-PHYSIO (click for details): 108'

:white_check_mark: airing 5x2’, cold shower 1x(10’), warm shower 10’, cream/oil fc/ey/hd/ft 4x1’, teeth 2x2’, HWB 1x3’, breath exercises 3x1’, Timing, hunchback-pillow 0’, Y. Nidra 20’, massage gun 0x3’, neck 1+ 1x1’, neck 2 0x1’, plantar/calf stretch 1x1’, acupressure 0x1’, palpate 1’, belly 3’, back 10’, !!aloe vera 0x1’, twist-stretch 2x1’, yoga/stretching 2x1’. breath-hold 2x12’,
Combine: next?
:x: workout 7’, horse stance 1’, balance roll standing 5’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps Sep 5th (34 supps): Supp costs:~364€/m (Sep 8th) CHANGED: B3 on 21st: 3x150mg. Surprisingly increased energy after first(?) glutathione 19th at 3, so from now on at 9 and 3. Ordered magnesium threonate, apigenin and myo-inositol on 17th (Huberman), arrived 20th. Started the normal flushing form of B3 from 17th on (OK for starters, esp. as I now know that flushing isn't bad, it may even be good).4 Quercetin, from 14th on, no more NAC! Something is making my urine very smelly, says my wife, she thinks it's yucky, for me it's OK. Added a little NAC & 2 Quercetin on Sep 11th. Added B2 again from 10th on. Copper doesn't seem necessary if my cardio interpreted my bloods right. From 8th on I'm adding the olive leaf extract low (100mg) and slow (but +100mg daily, not weekly), also fisetin I think it was then. Boosting some things from 7th on for tooth. Trying 1x150mg alpha GPC for fatigue from Sep 5th (recommendation on a forum), can add a few when I'm safe. Pure ATP 400mg in liquid was bad, so at most I may encapsulate & start with less, 100mg. Can't explain pee pain on Sep 4th/5th unless additional stress from a gig. Taking 1x B3 flush free since 25th, 2x from 31st (then checking homocystein). New idea: Creatine. PLANNED/TAKEN TODAY: click for details:

ZERO now: Arg, B2, Cu, Mum, Nc 1*.5g, (Nd), Pe, Ps, atm !Qc, Rib, Se, Sr 31125k, Zn.
REGULAR as of Sep 17th (32 supps): ALA .2g, alpha-GPC 1x150mg, B2 0x50mg, B3/Nia 250g & B3 flush free 400mg, B12 0x5mg/4m, C 2x.5g, Cr 6x0.6g, 0(-2) DAO before meals, D3 20.000 IE = 500mcg, + K2 (MK7) 200mcg, stopped increasing that, EGCG 1x(50%, incl. theanine?).5g, EllagicA 2 x.2g (+43mg vit. C) after a short break, Fev .4g (+.2g MSM), Ga: now 3x0.4g+2x.6g=2.4g, Gi 3x168mg, Glu: down to 0.6g, Hon (2%)x2x.4g=16mg, Luteolin .2g, Ω3 1x5mg, Mg Gly 2x50mg, Mg Mal 2x45mg, P5P 1x27mg, PEA 1x0.4g Pf 3(-4)x.35g, pine bark 2x.5g, PQQ 1, CoQ10 (ubn) 1x.1g, Qc 4x.5g, Rs (50%) 2x.4g, Ro 2x.35g, Sa .1g, Sily (80%) 1x.5g (+83mg L-cholin) , The 2x.2g (+.15g polyphenols).
What-when-details: Updated Sep 5th (before: see the reference post)
/19:35 400mg GABA A1/2 “19:00” PF#1+2 GABA#1 Cr#1+2, 2 mg mal, 0-1P5P, 0x50mg B2, 1PQQ, 5ml Ω3 & 0Qc. Meal: 1xHon. Q10.
Meal -21: Gum -
/22:00 400mg GABA A3 “21:00” PF#3 .3-.6?GABA#2 & .3-.6?glu & 1Lut (slp!) & 0Qc 1xHon + 0 Rupafin
/23:40 400mg + GABA
/07:20 B2-4 “07:00” +ALA+1x pine bark, (teeth) +1Ro, 0Qc Rs#1 SAM-e EGCg + Fev/MSM + Sily +2The
Meal 10:-: Gum 10:-11:
/8:50 C1-3 “MEAL!” 2Cr#2 .6GABA#4, (C2:) 0x50mgB2, gink#1, 0 Zn, gly#1+2, 1x pine bark#2. .5gC#1 (0 NAC)+PEA + Rutin + vit.D3 1/wk. + 1x alpha-GPC
/9:05 + glutathion
/11:30 C4 “11:00” (+2h/) gi#2 1 Ellagic acid#1
0 Meal - Gum - (D1) “12:30”
/14:45 D2/3 “13:00” .5gC#2 , 2Cr#3, .6GABA#5, gink#3 DRINK!
/15:00 + glutathion
/18:40 D4 “17:00” (“meal/acids+2h”) Ellag#2, Qc#4.Rs#2, +1Ro
eve:
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; last: Apr 10th.)

The day's 16 supp-compartments (10', plus 5' making capsules), Sep 5th

Pf: 1A1+1A2+1A3, alpha GPC:C2. B2:0A1+0C2 C:C3+D3 3x2Cr: A1+C1+D2, Ell: A4,C4+D4. 4-5xGa: A2,A3,C1c2,D2, Glu: A3,c1 Gi: C2,C4,D3 2Gly:C2 Hon:A2.A3. 2Mal:A2 Qc: 0A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: P5+Q1 (->ubiquinone <150mg/d!):A2. A3: Luteolin B2: ALA+1 pine B3:Sa. B4: 2Th EGCG&Fev/MSM&Sily C2:0Cu/Zn C3:PEA+B3 (A2:Ω/Pq:meal) DAO before risky meals?
(A2:0Se), (B2:0mu), (0Nc: A3, B1,C1,C3,D2)

Development

‘Research’ today:
I’d found studies saying that vit. C, NAC and a webpage saying theophylline INHIBIT DAO. This is the study about Vit. C and NAC: Histamine Intolerance: The Current State of the Art - PMC
This is the website about theophylline: Histamine & Caffeine Addiction | Healing Histamine (4 references, but I can’t find where it comes from)
More details on vit. C, NAC & other substances vs. DAO tomorrow.
Lessons in self-care #428 Stopped table tennis almost immediately the pain came up.
Reasons to be cheerful #430 Did manage table tennis, and treated myself to a lot of music listening.

2022-09-21, Wednesday - Energy ?15% / Sleep 85% / Feeling 80%-ish

Successes:
:trophy: jaw under control by relaxing, pillow up, stretching backwards.
:-1: Looking to the sun always makes me nauseous.
:zap:
Learnt: :student:
:ambulance: What’s so diuretic? Glutathione? B3?

Today’s symptoms sorted by the ACR 2016 criteria

Widespread pain, WPI = 11 of 19 areas: limb-Ache 8 (20%, stiff 15%) + spine-pain 3 (10%), shoulder-girdles/hips 0 chest / abdomen / jaw 0
Symptom severity, SSS = severity 9 of 12: Fatigue 3 (85%), insomnia 3 (15%), fog 2 (10%), headache 0, GI 1 (10%), depression 0

Triggers & resulting Symptoms

SLEEP (click for details): 9h21, up 8x (1h07), deep 7h. ✅ ➔ Feeling 80-90% well, Ache 2-1 of 7 ✅, getting up: 90%/2 ✅. Nostrils 5% stuffy 10% of the night. All despite tooth, the pain I got down by resting & relaxing before bed, pillow up, stretching backwards so my back doesn't suffer again.

cold shower p0 Sleep 22:05-
23:25 10’ 80%/2/10% p0 st1 sip fw1’ deep air HWB
0:50 5’ 80%/2/10% p0 st1 sip fw1’ deep
2:20 5’ 90%/1/10% p0 st1 sip fw1’ deep/doze A few work thoughts needed …
3:19 25’ 90%/1/10% p0 st1 sip fw1’ doze 6
4:12 9’ 90%/1/10% p0 st1 sip fw1’ doze hungry HWB FAS
5:25 4’ 90%/1/10% p0 st1 sip fw1’ doze/deep wind 2nd x (Threo?)
6:45 4’ 90%/1/10% p0 st1 sip fw1’ deep
8:06 5’ 90%/1/10% p0 st1 sip fw1’ doze B2-4
-8:33
Sum: 1h55+8h33-(10+5+5+25+9+4+4+5=)1h07 = 10h28-1h07 = 9h21, up 8x (1h07), deep 7h.
C1 & Meal & Sun 9:00-15

ACTIVITIES (aim: 40% energy)ACHE: online work ➔ 80%/2 :white_check_mark:, wife says I don’t look as if I should be doing anything else, altho I was planning to go out for a little. :face_with_monocle::x:
ACTIONSPAINS: :white_check_mark: except: neck :white_check_mark:, GI :white_check_mark:, esophagus :white_check_mark:, jaw 1x5’’ :white_check_mark:, pee pain: 0xp1-2 :white_check_mark:, urge an hour after glutathione, every 20’.
(lie, sit, stand, arms up, cycle, walk, mask??)
MCAS/HIT-Symptoms/Triggers/Treatments: :white_check_mark: Fatigue better from acupuncture/sleep/cold showering as well probably as losing the CoV-antibodies. :face_with_monocle:. Tofu? Nausea looking at the sun seem to me to be an MCAS oversensitivity.
Fibro & Touch: :white_check_mark:
Covid-danger: :white_check_mark:
Weather: Indoors :white_check_mark: Outdoors :white_check_mark:. Seem to be getting used to temperature at 18°C indoors (cos of gas inflation), wearing long johns all the time.

Treatments

Docs:
Tooth again on 20th, after body on the 6th took 8 days to calm down… But better this time, but only cos I immediately started to rest after I realized stress was increasing the pain.
Chinese Acupuncturist - #28 on 9th, after 28 days :white_check_mark: Still good. Session #29 on 23rd.

SELF-PHYSIO (click for details): ' Added '(looking to the) sun'.

:white_check_mark: airing 4x2’, cold shower 1x(10’), warm shower 1x(10’), cream/oil fc/ey/hd/ft 2x1’, teeth 3x2’, HWB 0x3’, breath exercises 3x1’, Timing, hunchback-pillow 0’, Y. Nidra 20’, massage gun 0x3’, neck 1+ 0x1’, neck 2 0x1’, plantar/calf stretch 1x1’, acupressure 0x1’, palpate 1’, belly 3’, back 10’, !!aloe vera 0x1’, twist-stretch 0x1’, yoga/stretching 0x1’, sun 2x5’.
Combine: next?
:x: workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps Sep 20th (34 supps): Supp costs:~389€/m (Sep 20th) CHANGED: Surprisingly increased energy after first(?) glutathione 19th at 3, so from 20th on at 9 and 3. Ordered eleuthero (Hirsch), magnesium threonate, apigenin, and myo-inositol on 17th (Huberman). Started flushing B3 from 17th, increasing without problems, probably 3x250mg/d by the 22nd, additional to continuing flush-free. 4 Quercetin from 14th on. B2 from 10th, remember to halve from 24th. Started fisetin and olive leaf extract (Berg) low on 8th, full 750mg capsules by the 15th. 1x150mg alpha GPC from Sep 5th, more when safe. B3 2x from Aug 31st (then check homocystein). Pure ATP 400mg in liquid was bad, so at most I may encapsulate & start with less, 100mg. Copper doesn't seem necessary if my cardio interpreted my bloods right. New idea: Creatine. PLANNED/TAKEN TODAY: click for details:

ZERO now: Arg, B2, Cu, Mum, Nc 1*.5g, (Nd), Pe, Ps, atm !Qc, Rib, Se, Sr 31125k, Zn.
REGULAR as of Sep 20th (34 supps): ALA .2g, alpha-GPC 1x150mg, B2 1x100/50mg, B3/Nia 250g & B3 flush free 400mg, B12 0x5mg/4m, C 2x.5g, Cr 6x0.6g, 0(-2) DAO before meals, D3 20.000 IE = 500mcg, + K2 (MK7) 200mcg, stopped increasing that, EGCG 1x(50%, incl. theanine?).5g, EllagicA 2 x.2g (+43mg vit. C) after a short break, Fev .4g (+.2g MSM), Fis: 1x196mg. Ga: now 3x0.4g+2x.6g=2.4g, Gi 3x168mg, Glutamin: down to 0.6g, Glutathione 2x, Hon (2%)x2x.4g=16mg, Luteolin .2g, Ω3 1x5mg, Mg Gly 2x50mg, Mg Mal 2x45mg, P5P 0x27mg, PEA 1x0.4g Pf 3(-4)x.35g, pine bark 2x.5g, PQQ 1, CoQ10 (ubn) 1x.1g, Qc 4x.5g, Rs (50%) 2x.4g, Ro 2x.35g, Rutin: 1x522. Sa .1g, Sily (80%) 1x.5g (+83mg L-cholin) , The 2x.2g (+.15g polyphenols).
What-when-details: Updated Sep 5th (before: see the reference post)
/19:40 400mg GABA A1/2 “19:00” PF#1+2 GABA#1 Cr#1+2, 2 mg mal, 0-1P5P, 0x50mg B2, 1PQQ, 5ml Ω3 & 0Qc. Meal: 1xHon. Q10.
Meal -21: Gum -
/22:05 400mg GABA A3 “21:00” PF#3 .3-.6?GABA#2 & .3-.6?glu & 1Lut (slp!) & 0Qc 1xHon + 0 Rupafin
/23:30 400mg + GABA
/08:10 B2-4 “07:00” +ALA+ now 2x pine bark, (teeth) +1Ro, 0Qc Rs#1 SAM-e EGCg + Fev/MSM + Sily +2The +Fisetin + (B1:)1x50mgB2 (100mg for 2 weeks)
Meal 9:00-15: Gum 10:-11: Teeth 11:05
/9:05-20 C1-3 “MEAL!” 2Cr#2 .6GABA#4, gink#1, 0 Zn, gly#1+2, 1x pine bark#2. .5gC#1 (0 NAC)+PEA + Rutin + vit.D3 1/wk. + 1x alpha-GPC.
/9:25 + glutathion
/?12:25 C4 “11:00” (+2h/) gi#2 1 Ellagic acid#1
0 Meal -15:15 Gum - (D1) “12:30”
/15:15 D2/3 “13:00” .5gC#2 , 2Cr#3, .6GABA#5, gink#3 DRINK!
0 + glutathion
/17:25 D4 “17:00” (“meal/acids+2h”) Ellag#2, Qc#4.Rs#2, +1Ro
eve:
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; last: Apr 10th.)

The day's 16 supp-compartments (10', plus 5' making capsules), Sep 20th

Pf: 1A1+1A2+1A3, alpha GPC:C2. B3ff: C3,D3. B3f: A2,C3,D3. C:C3+D3 3x2Cr: A1+C1+D2, Ell: C4+D4. 4-5xGa: a2,a3,a4,C1,D2, Glutamin: A3,c1 Glutathione: C2,D2. Gi: C2,C4,D3 2Gly:C2 Hon:A2.A3. 2Mal:A2 Qc: A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: 0P5+1Q1 (->ubiquinone <150mg/d!):A2. A3: Luteolin B1:B2,Fis.B2: ALA+2 pine B3:Sa. B4: 2Th EGCG&Fev/MSM&Sily C2:0Cu/Zn C3:PEA+Ru. (A2:Ω/Pq:meal) DAO before risky meals?
(A2:0Se), (B2:0mu), (0Nc: A3, B1,C1,C3,D2)

Development

‘Research’ today: Now regarding NAC/vit. C etc. vs. DAO/MCAS/histamine connection:

These substances compete with histamine in binding to DAO, so the solution I think is to accordingly supplement more DAO if necessary (esp. when adding more of it). At the rate that it is decreased, which was found to be 33% for amitriptyline, 29% for NAC and only 8% for B1 (in “test tubes”), unfortunately no % or even guess for C. (But only if that supplemented DAO gets to the right place in our body, I’d think. Otherwise reducing or stopping these supps - or meds - might be necessary. )

And vitamin C? Quite a few studies say it decreases histamine. But after following all links I still canNOT substantiate vitamin C decreasing DAO, and on the “table 2” it is down at the bottom, like B1, so maybe only a similarly small reducing effect, far outweighed by its decrease of histamine.

Rose hips as alternative to vitamin C may come from or via Hoffman “Be careful of citrus-based Vitamin C”. “You can also increase your DAO levels with high doses of vitamin C.” “may need a non-citrus source such as rose hips” But altho I like Hoffman’s recommendations I can’t follow the rose hip / non-citrus argument unless it means citrus fruits because of their biogenic amine putrescine (see details below).

NAC can also increase histamine in some people, that’s proven when given for paracetamol poisoning: Histamine release is the associated mechanism following acetylcysteine adverse reaction in man. Not only IV, also orally.


These are deeper and further details on what reduces (and also what increases) DAO.

The study testing for amount of DAO reduction: Evaluation of the inhibitory effect of various drugs / active ingredients on the activity of human diamine oxidase in vitro, Roland Leitner, Eva Zoernpfenning & Albert Missbichler, 2014: “Chloroquine and clavulanic acid showed greatest inhibition potential on diamine oxidase (> 90%). Cimetidine and verapamil showed inhibition of about 50%. Moderate influence on DAO was caused by isoniazid and metamizole, acetyl cysteine and amitriptyline (>20%). Diclofenac, metoclopramide, suxamethonium and thiamine [= B1] have very low inhibition potential (<20%). Interestingly cyclophosphamide and ibuprofen displayed no effect on DAO. Conclusion Since even levels of about 30% inhibition may be critical, most of the observed substances, can be designated as DAO inhibitors. Other drug components than active ingredients did not affect DAO activity or its interaction with a specific drug.” In the more detailed table from this study in the pdf on researchgate it says amitriptyline inhibits with 33%, acetylcysteine 29% and thiamin 8%, unfortunately no vitamin C.

The table in the 2020 article (Histamine Intolerance: The Current State of the Art - PMC) is based on a 1985 study and the quantifying 2014 study above and 1-2 more, all in vitro.

“In most cases, the structural similarity of the cited drugs with histamine could explain their potential to bind to the active site of DAO and reduce its enzymatic activity”

In that originally cited article it also says “The exclusion of foods could be based on their content of other biogenic amines, such as putrescine and cadaverine … citrus fruits, mushrooms, soybeans, bananas and nuts may be due to high levels of other amines, specially putrescine…”

This is quoted by several articles on researchgate, e.g. a 2021 article by Hrubisko et al. Histamine Intolerance—The More We Know the Less We Know. A Review “Approximately 20% of Europeans regularly take drugs that reduce DAO activity, which increase the risk of developing HI; these drugs include verapamil, clavulanic acid, chloroquine derivatives, acetylcysteine, amitriptyline, metamizole, and isoniazid.” or 2022 Sánchez-Pérez et al. The Rate of Histamine Degradation by Diamine Oxidase Is Compromised by Other Biogenic Amines “impaired DAO activity can also be temporary and reversible, arising as a side effect of some widely used pharmacological drugs, such as clavulanic acid or acetylcysteine, or a secondary symptom of gastrointestinal disorders. In fact, evidence supporting an intestinal origin of histamine intolerance is growing”. Interesting details in the pdf, summarized above.

DAO can help nausea in seasickness, which comes with increased histamine: Impact of oral vitamin C on histamine levels and seasickness - PubMed I think that’s what Hoffman meant to say (quoting that study) with his weird sentence: “Histamine (p < 0.01) and DAO levels were increased after the intake of vitamin C (p < 0.001) and after placebo (n.s.).” Histamine wasn’t increased from the vitamin C, it was increased from the waves/seasickness.

But DAO also decreases histamine and mast cell degranulation Food Intolerance: The Role of Histamine - PMC and “Deficiencies of copper, vitamin C, and pyridoxine may be possible reasons for the decreased activity of DAO”. “Deficiency of the DAO cofactors vitamin B-6, copper, and vitamin C, which are thought to supplement histamine degradation, has been discussed as being controversial” it says in Maintz et al 2007. But the study by Jarisch et al. 1996 is only available for 35€.

The mention of pyridoxine (B6 form) is interesting, cos several of these studies say it increases DAO. (So I’m glad I’ve supplemented it so much it’s way over the top.)

Other meds /supps and also biogenic amines in food inhibit DAO even more. Esp. putrescine, cadaverine, esp. high in unhygienically produced foods fermented with certain sorts of bacteria, 4x as much as histamine. So 20% of the histamine isn’t degraded. If they’re the same amount as histamine 10%. If not existent, then DAO gets the histamine down to 0%. (Sanchez-Perez et al 2022) That may explain why “histamine” is so complicated, for us with MCAS/masto and not just for HIT.

Lessons in self-care #430 Keeping moving down.
Reasons to be cheerful #431 Luckier or wiser after this tooth treatment.

2022-09-22, Thursday - Energy 10% / Sleep 85% / Feeling 80%-ish

Successes:
:trophy: Glutathione proven diuretic - possibly better, or better in the afternoon with less drinking than in the mornings with more due to more supps.

Today’s symptoms sorted by the ACR 2016 criteria

Widespread pain, WPI = 11 of 19 areas: limb-Ache 8 (20%, stiff 15%) + spine-pain 3 (10%), shoulder-girdles/hips 0 chest / abdomen / jaw 0
Symptom severity, SSS = severity 9 of 12: Fatigue 3 (90%), insomnia 3 (15%), fog 2 (10%), headache 0, GI 1 (10%), depression 0

Triggers & resulting Symptoms

SLEEP (click for details): 9h31, up 5x (29'), all of it deep sleep, using one alternating shower, myo-isonitol, apigenin and magnesium threonate. ✅ ➔ Feeling 80% well, Ache 2 of 7 ✅, getting up: 80%/2 ✅. Nostrils 0% stuffy 0% of the night.

alternate shower p0 teeth Sleep 22:00- ear plugs
23:40 5’ 90%/1/10% p0 + stools st1 sip fw1’ deep A4?
1:25 10’ 80%/2/10% p0 st1 sip fw5’ deep
3:05 4’ 80%/2/10% p0 st1 sip fw1’ deep
4:50 5’ 80%/2/10% p0 st1 sip fw1’ deep frontal sinus
6:35 5’ 80%/2/10% p0 st1 sip fw1’ deep air frontal sinus, left nostril:breath, (pressed bladder urge away, tried drinking less, but then gel necessary and tougher for stomach)
-8:00 80%/2/10% p0 st1 sip deep frontal, pressed urge away. B2-4
Sum: 2h+8h-(5+10+4+5+5=)29’ = 9h31, up 5x (29’), using one alternating shower, myo-isonitol, apigenin and magnesium threonate.

ACTIVITIES (aim: 40% energy)ACHE: Despite the deep long sleep and being a bit zombified for a few minutes I could wak up very well, inside of a 15’ ➔ 80%/2 :white_check_mark:, however going doing 10’ moving things around, 15’ shopping and 15’ talking in the morning was too much, panting, and hard to get up the stairs ➔ 80%/4 :x:, but with lots of rest ➔ 80%/2 :white_check_mark:, then in the afternoon throwing away glass 5’, getting grass 10’ and shopping 10’ similarly ➔ 80%/4 :x:, but mentally fit all the time and able to recover fairly quickly, so worth it.
ACTIONSPAINS: :white_check_mark: except: neck :white_check_mark:, GI :white_check_mark:, esophagus :white_check_mark:, jaw x5’’ :white_check_mark:, pee pain: 0xp1-2 :white_check_mark:. No chance of anything hurting, back much better now.
MCAS/HIT-Symptoms/Triggers/Treatments: :white_check_mark: Fatigue better from acupuncture/sleep/cold showering as well probably as losing the CoV-antibodies. :face_with_monocle:
Fibro & Touch: :white_check_mark:
Covid-danger: :white_check_mark:
Weather: Indoors :white_check_mark: Outdoors :white_check_mark:.

Treatments

Docs:
Tooth again on 20th, after body on the 6th took 8 days to calm down… Much less pain, but still a lot of fatigue.
Chinese Acupuncturist - #28 on 9th, after 28 days :white_check_mark: Still good. Session #29 on 23rd.

SELF-PHYSIO (click for details): 78'

:white_check_mark: airing 3x2’, cold shower 0x(10’), warm shower 1x(10’), cream/oil fc/ey/hd/ft 2x1’, teeth 4x2’, HWB 0x3’, breath exercises 3x1’, Timing, hunchback-pillow 0’, Y. Nidra 10’, massage gun 0x3’, neck 1 0x1’, neck 2 0x1’, plantar/calf stretch 1x1’, acupressure 0x1’, palpate 1’, belly 3’, back 10’, !!aloe vera 2x1’, twist-stretch 1x1’, yoga/stretching 1x1’, sun 4x5’.
Combine: next?
:x: workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps Sep 20th (34 supps): Supp costs:~389€/m (Sep 20th) B3-flush taken at 15:30: 16:05- CHANGED: I don't think eleuthero or alpha GPC are helping energy as much as glutathion. Myo-inositol seemed to lengthen & deepen sleep stints, I don't think apigenin or threonate did anything (I'm suspicious of the products however). Eleuthero, apigenin, and myo-inositol. Started threonate before the 21st, no difference to sleep. Glutathione diuretic when I take it, not when I don't, starts within an hour, so maybe decreasing the dose. Surprisingly increased energy after first(?) glutathione 19th at 3, so from 20th on at 9 and 3. Started flushing B3 from 17th, increasing without problems, probably 3x250mg/d by the 22nd, OK 23rd or 24th, additional to continuing flush-free, which may be helping increase this time. 4 Quercetin from 14th on. B2 from 10th, remember to halve from 24th. Started fisetin and olive leaf extract (Berg) low on 8th, full 750mg capsules by the 15th. 1x150mg alpha GPC from Sep 5th, more when safe. B3 2x from Aug 31st (then check homocystein). Pure ATP 400mg in liquid was bad, so at most I may encapsulate & start with less, 100mg. Copper doesn't seem necessary if my cardio interpreted my bloods right. New idea: Creatine. PLANNED/TAKEN TODAY: click for details:

ZERO now: Arg, B2, Cu, Mum, Nc 1*.5g, (Nd), Pe, Ps, atm !Qc, Rib, Se, Sr 31125k, Zn.
REGULAR as of Sep 20th (34 supps): ALA .2g, alpha-GPC 1x150mg, B2 1x100/50mg, B3/Nia 250g & B3 flush free 400mg, B12 0x5mg/4m, C 2x.5g, Cr 6x0.6g, 0(-2) DAO before meals, D3 20.000 IE = 500mcg, + K2 (MK7) 200mcg, stopped increasing that, EGCG 1x(50%, incl. theanine?).5g, EllagicA 2 x.2g (+43mg vit. C) after a short break, Fev .4g (+.2g MSM), Fis: 1x196mg. Ga: now 3x0.4g+2x.6g=2.4g, Gi 3x168mg, Glutamin: down to 0.6g, Glutathione 2x, Hon (2%)x2x.4g=16mg, Luteolin .2g, Ω3 1x5mg, Mg Gly 2x50mg, Mg Mal 2x45mg, P5P 0x27mg, PEA 1x0.4g Pf 3(-4)x.35g, pine bark 2x.5g, PQQ 1, CoQ10 (ubn) 1x.1g, Qc 4x.5g, Rs (50%) 2x.4g, Ro 2x.35g, Rutin: 1x522. Sa .1g, Sily (80%) 1x.5g (+83mg L-cholin) , The 2x.2g (+.15g polyphenols).
What-when-details: Updated Sep 5th (before: see the reference post)
/19:30 400mg GABA A1/2 “19:00” PF#1+2 GABA#1 Cr#1+2, 2 mg mal, 0-1P5P, 0x50mg B2, 1PQQ, 5ml Ω3 & 0Qc. Meal: 1xHon. Q10.
Meal -21: Gum -
/22:00 400mg GABA A3 “21:00” PF#3 .3-.6?GABA#2 & .3-.6?glu & 1Lut (slp!) & 0Qc 1xHon + 0 Rupafin
?23:40 400mg + GABA
/08:05 B2-4 “07:00” +ALA+ now 2x pine bark, (teeth) +1Ro, 0Qc Rs#1 SAM-e EGCg + Fev/MSM + Sily +2The +Fisetin + (B1:)1x50mgB2 (100mg for 2 weeks)
Meal 9:00-9:15: Gum 10:-11:
/9:15 C1-3 “MEAL!” 2Cr#2 .6GABA#4, gink#1, 0 Zn, gly#1+2, 1x pine bark#2. .5gC#1 (0 NAC)+PEA + Rutin + vit.D3 1/wk. + 1x alpha-GPC.
0 + glutathion, just to be sure the urge is nothing else.
/12:15 C4 “11:00” (+2h/) gi#2 1 Ellagic acid#1
0 Meal -15:30 Gum - (D1) “12:30”
/15:15 D2/3 “13:00” .5gC#2 , 2Cr#3, .6GABA#5, gink#3 DRINK!
/15:15 + glutathion
0 forgot! 18:35 D4 “17:00” (“meal/acids+2h”) Ellag#2, Qc#4.Rs#2, +1Ro
eve:
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; last: Apr 10th.)

The day's 16 supp-compartments (10', plus 5' making capsules), Sep 20th

Pf: 1A1+1A2+1A3, alpha GPC:C2. B3ff: C3,D3. B3f: A2,C3,D3. C:C3+D3 3x2Cr: A1+C1+D2, Ell: C4+D4. 4-5xGa: a2,a3,a4,C1,D2, Glutamin: A3,c1 Glutathione: C2,D2. Gi: C2,C4,D3 2Gly:C2 Hon:A2.A3. 2Mal:A2 Qc: A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: 0P5+1Q1 (->ubiquinone <150mg/d!):A2. A3: Luteolin B1:B2,Fis.B2: ALA+2 pine B3:Sa. B4: 2Th EGCG&Fev/MSM&Sily C2:0Cu/Zn C3:PEA+Ru. (A2:Ω/Pq:meal) DAO before risky meals?
(A2:0Se), (B2:0mu), (0Nc: A3, B1,C1,C3,D2)

Development

‘Research’ today: No, only bits 'n bobs.
Lessons in self-care #431 Take glutathione or not? That is the question.
Reasons to be cheerful #432 One of our guinea pigs came to me to be stroked for the first (only) time ever, so cute!
Reasons to be cheerful #433 Nice talk with someone I hadn’t seen in a long time.

2022-09-23, Friday - Energy 7-12% / Sleep 60% / Feeling 80%-ish

Learnt: :student: Still not sure if B3 is right for me, need to check if it not only improves lipids but decreases CVD.

Today’s symptoms sorted by the ACR 2016 criteria

Widespread pain, WPI = 11 of 19 areas: limb-Ache 8 (15%, stiff 10%) + spine-pain 3 (10%), shoulder-girdles/hips 0 chest / abdomen / jaw 0
Symptom severity, SSS = severity 9 of 12: Fatigue 3 (93-88%), insomnia 3 (40%), fog 2 (10%), headache 0, GI 1 (?20%), depression 0

Triggers & resulting Symptoms

SLEEP (click for details): 7h46, up 8x (2h40), deep only 1h45 ❌ ➔ Feeling 90% well, Ache 1 of 7 ✅, getting up: 90%/1 ✅. Nostrils 20% stuffy 40% of the night due to cold shower without hot water bottle. Why my sleep was totally smashed up I don't really know. But taking myo-inositol didn't have the same effect as yesterday, and I then saw that it was the one which is best only taken every 2nd night. Not taking apigenin and taking the A3 meds an hour too late may have increased the problem.

alternating shower p0 Sleep 22:30- Why not 21:45? Work. Bit itchy skin from B3 and shower.
0:13 35’ 90%/1/10% p0 st1 sip fw1’ deep stools air 6 A3 now!
1:16 1h06 90%/1/10% p0 st1 sip fw1’ doze/YoNi… → work, A4 2:23
ear plugs TEETH
2:35 15’ 90%/1/10% p0 st1 sip fw1’ doze, work, FCS#1, work
4:34 5’ 90%/1/10% p0 st1 0sip fw1’ doze/YoNi to deep HWB cos left nostril
6:15 5’ 90%/1/10% p0 st1 sip fw1’ doze/YoNi to deep nostril better from HWB.
6:58 13’ 90%/1/10% (p0) st1 sip fw1’ doze/YoNi/deep air work
7:38 6’ 90%/1/10% (p0) st1 sip fw1’ FCS#2 (nostrils)
-8:46 YoNi-Ally (nostrils) B2-4 +10

  • stools,
    Sum: 1h30+8h46-(35+76+15+5+5+13+6+5=)2h40 = 10h16-2h40 = 8h16-40+10 = 7h46, up 8x (2h40), deep only 1h45.

ACTIVITIES (aim: 40% energy)ACHE: Resting & work & acupuncture & bit of making music, moving as little as possible, whilst doing easy exercises ➔ 80%/2 :white_check_mark:
ACTIONSPAINS: :white_check_mark: except: neck :white_check_mark:, GI :white_check_mark:, esophagus: bit difficult a few times for a few minutes, but no actual block :white_check_mark:, jaw 1x5’’ :white_check_mark:, pee pain: 2xp1-2 :white_check_mark: (urge & pain after acupuncture - cold feet, socks next time in 2nd half.)
MCAS/HIT-Symptoms/Triggers/Treatments: :white_check_mark: Fatigue better from acupuncture/sleep/cold showering as well probably as losing the CoV-antibodies. :face_with_monocle:. Cheese in the evening.
Fibro & Touch: :white_check_mark:
Covid-danger: :white_check_mark:
Weather: Indoors :white_check_mark: Outdoors :white_check_mark:.

Treatments

Docs:
Dentist again on 20th after treatment on 6th brought energy down for 8+ days… Pain down in a few hours this time (but only due to strict rest), however energy again down to 5-10%.
Chinese Acupuncturist - #29 on 10th, after 14 days :white_check_mark: Still good - would be 20-25% energy if it weren’t for the tooth treatments. Session #30 on 7th. Socks on in 2nd half next time.

SELF-PHYSIO (click for details): ' Y. Nidra 1h50+2h+ = 4h+

:white_check_mark: airing 5x2’, cold shower 2x(10’), warm shower 1x(10’), cream/oil fc/ey/hd/ft 3x1’, teeth 4x2’, HWB 0x3’, breath exercises 5x1’, Timing, hunchback-pillow 30’, Y. Nidra 2h+, massage gun 0x3’, neck 1+ 0x1’, neck 2 0x1’, plantar/calf stretch 1x1’, acupressure 0x1’, palpate 1’, belly 3’, back 10’, !!aloe vera 1x1’, twist-stretch 1x1’, yoga/stretching 2x1’, sun 3x5’.
Combine: next?
:x: workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps Sep 20th (34 supps): Supp costs:~389€/m (Sep 20th) CHANGED: Upped B3 to 3x250mg today, flushing like mad. Bit skeptical, may still be the problem that it doesn't change the CVD risk. Apigenin again and still threonate in the evenings. Didn't try glutathione today, cos I wanted to see how the acupuncture alone works and gets my energy up. Gonna take myo-inositol on the even evenings in Sep+Oct, so starting tomorrow evening every two days. I don't think eleuthero or alpha GPC are helping energy as much as glutathione. Myo-inositol seemed to lengthen & deepen sleep stints, I don't think apigenin or threonate did anything (I'm suspicious of the products however). Eleuthero, apigenin, and myo-inositol. Started threonate before the 21st, no difference to sleep. Glutathione diuretic when I take it, not when I don't, starts within an hour, so maybe decreasing the dose. Surprisingly increased energy after first(?) glutathione 19th at 3, so from 20th on at 9 and 3. Started flushing B3 from 17th, increasing without problems, probably 3x250mg/d by the 22nd, OK 23rd or 24th, additional to continuing flush-free, which may be helping increase this time. 4 Quercetin from 14th on. B2 from 10th, remember to halve from 24th. Started fisetin and olive leaf extract (Berg) low on 8th, full 750mg capsules by the 15th. 1x150mg alpha GPC from Sep 5th, more when safe. B3 2x from Aug 31st (then check homocystein). Pure ATP 400mg in liquid was bad, so at most I may encapsulate & start with less, 100mg. Copper doesn't seem necessary if my cardio interpreted my bloods right. New idea: Creatine. PLANNED/TAKEN TODAY: click for details:

ZERO now: Arg, B2, Cu, Mum, Nc 1*.5g, (Nd), Pe, Ps, atm !Qc, Rib, Se, Sr 31125k, Zn.
REGULAR as of Sep 20th (34 supps): ALA .2g, alpha-GPC 1x150mg, B2 1x100/50mg, B3/Nia 250g & B3 flush free 400mg, B12 0x5mg/4m, C 2x.5g, Cr 6x0.6g, 0(-2) DAO before meals, D3 20.000 IE = 500mcg, + K2 (MK7) 200mcg, stopped increasing that, EGCG 1x(50%, incl. theanine?).5g, EllagicA 2 x.2g (+43mg vit. C) after a short break, Fev .4g (+.2g MSM), Fis: 1x196mg. Ga: now 3x0.4g+2x.6g=2.4g, Gi 3x168mg, Glutamin: down to 0.6g, Glutathione 2x, Hon (2%)x2x.4g=16mg, Luteolin .2g, Ω3 1x5mg, Mg Gly 2x50mg, Mg Mal 2x45mg, P5P 0x27mg, PEA 1x0.4g Pf 3(-4)x.35g, pine bark 2x.5g, PQQ 1, CoQ10 (ubn) 1x.1g, Qc 4x.5g, Rs (50%) 2x.4g, Ro 2x.35g, Rutin: 1x522. Sa .1g, Sily (80%) 1x.5g (+83mg L-cholin) , The 2x.2g (+.15g polyphenols).
What-when-details: Updated Sep 5th (before: see the reference post)
/20:00 400mg GABA A1/2 “19:00” PF#1+2 GABA#1 Cr#1+2, 2 mg mal, 0-1P5P, 0x50mg B2, 1PQQ, 5ml Ω3 & 0Qc. Meal: 1xHon. Q10.
Meal -21:00 Gum -
0:15 400mg GABA A3 “21:00” PF#3 .3-.6?GABA#2 & .3-.6?glu & 1Lut (slp!) & 0Qc 1xHon + 0 Rupafin
2:20 400mg + GABA
08:50 B2-4 “07:00” +ALA+ now 2x pine bark, (teeth) +1Ro, 0Qc Rs#1 SAM-e EGCg + Fev/MSM + Sily +2The +Fisetin + (B1:)1x50mgB2 (100mg for 2 weeks)
Meal 9:15-9:30: Gum 10:-11:
9:15 C1-3 “MEAL!” 2Cr#2 .6GABA#4, gink#1, 0 Zn, gly#1+2, 1x pine bark#2. .5gC#1 (0 NAC)+PEA + Rutin + vit.D3 1/wk. + 1x alpha-GPC.
0 + glutathion
/11:15 C4 “11:00” (+2h/) gi#2 1 Ellagic acid#1
0 Meal14:55-15:30 Gum - (D1) “12:30”
14:55 D2/3 “13:00” .5gC#2 , 2Cr#3, .6GABA#5, gink#3 DRINK!

  • glutathion
    19:30 D4 “17:00” (“meal/acids+2h”) Ellag#2, Qc#4.Rs#2, +1Ro
    eve:
    “18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
    (Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; last: Apr 10th.)
The day's 16 supp-compartments (10', plus 5' making capsules), Sep 20th

Pf: 1A1+1A2+1A3, alpha GPC:C2. B3ff: C3,D3. B3f: A2,C3,D3. C:C3+D3 3x2Cr: A1+C1+D2, Ell: C4+D4. 4-5xGa: a2,a3,a4,C1,D2, Glutamin: A3,c1 Glutathione: C2,D2. Gi: C2,C4,D3 2Gly:C2 Hon:A2.A3. 2Mal:A2 Qc: A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: 0P5+1Q1 (->ubiquinone <150mg/d!):A2. A3: Luteolin B1:B2,Fis.B2: ALA+2 pine B3:Sa. B4: 2Th EGCG&Fev/MSM&Sily C2:0Cu/Zn C3:PEA+Ru. (A2:Ω/Pq:meal) DAO before risky meals?
(A2:0Se), (B2:0mu), (0Nc: A3, B1,C1,C3,D2)

Development

‘Research’ today: Bits’n’bobs, like time release vitamin C, still prefer taking ascorbate several times a day altho there are vegan fairly pure solutions.
Lessons in self-care #432 Resting, but also organizing and phoning was a good compromise.
Reasons to be cheerful #433 Guinea pig’s cute again, trusting even more.

2022-09-24, Saturday - Energy 8% / Sleep 80% / Feeling 80%-ish

Today’s symptoms sorted by the ACR 2016 criteria

Widespread pain, WPI = 11 of 19 areas: limb-Ache 8 (15%, stiff 15%) + spine-pain 3 (10%), shoulder-girdles/hips 0 chest / abdomen / jaw 0
Symptom severity, SSS = severity 10 of 12: Fatigue 3 (82%), insomnia 3 (20%), fog 2 (15%), headache 1 (from the B3), GI 1 (20%), depression 0

Triggers & resulting Symptoms

SLEEP (click for details): 8h58, up 8x (1h02), 7.5h deep ✅, considering I'd forgotten some of my A3 supps incl. passiflora & luteolin ➔ Feeling 80% well, Ache 1 of 7 ✅, getting up: 80%/2 ✅. Nostrils 0% stuffy 0% of the night. Ally's Yoga Nidra helped me a little better than doing it myself, eventually (45'). No nostrils, no sinuses (the frontal headache all night & most of the day will be the B3, no sore throat (HWB all night to make sure), no stomach nausea, not even ear plugs, it's quiet outside cos of rain.

cold shower p/1) Sleep 22:45- Why not 21:45? Cos I started with my blog too late.
22:50 5’ 90%/1/10% p0 st1 sip fw1’ deep stools frontal headache A4 cream
1:15 5’ 80%/2/10% p0 st1 sip fw1’ deep
2:35 22’ 80%/1/10% p0 st1 sip fw15’ deep cream (frontal headache ALL NIGHT - B3?) I’m sure that was FCS#2…
3:27 5’ 80%/1/10% fw1’ doze/YoNi due to the fw, YoNi
3:57 5’ 80%/1/10% (p0 st1 sip fw1’ Ally’s YoNi 30’ then deep.
4:59 5’ 80%/1/10% p0 st1 sip fw1’ deep air
6:03 5’ 80%/1/10% p0 st1 sip fw1’ deep air
7:35 10’ 80%/1/10% p0 st1 sip fw4’ deep air B2-4
-8:45 5’ 80%/1/10% p0 st1 sip fw1’ deep esophagus block due to one capsule :frowning: 9:15 very firm stools.
Sum: 1h15+8h45-(5+5+22+5+5+5+5+10)1h02 = 10h-1h02 = 8h58, up 8x (1h02), 7.5h deep.

ACTIVITIES (aim: 40% energy)ACHE: Only music making, and 30’ to a shop. After a clash which I considered unfair on one forum I don’t feel like interacting at the moment. ➔ 80%/2 :white_check_mark:.
ACTIONSPAINS: :white_check_mark: except: neck :white_check_mark:, GI :white_check_mark:, esophagus :x:, jaw 2x5’’ :white_check_mark:, pee pain: 2xp1-2 :white_check_mark:
MCAS/HIT-Symptoms/Triggers/Treatments: :white_check_mark: Fatigue better from acupuncture/sleep/cold showering as well probably as losing the CoV-antibodies. :face_with_monocle:. Half a walnut at 20:00, tongue hurting a bit at 22:15.
Fibro & Touch: :white_check_mark:
Covid-danger: :white_check_mark:
Weather: Indoors :white_check_mark: Outdoors :white_check_mark:.

Treatments

Docs:
Dentist again on 20th after treatment on 6th brought energy down for 8+ days… Pain down in a few hours this time (but only due to strict rest), however energy again down to 5-10%.
Chinese Acupuncturist - #29 on 10th, after 14 days :white_check_mark: Still good - would be 20-25% energy if it weren’t for the tooth treatments. Session #30 on 7th.

SELF-PHYSIO (click for details): 2h17' when back exercises

:white_check_mark: airing 5x2’, cold shower 2x(10’), warm shower 0x(10’), cream/oil fc/ey/hd/ft 2x1’, teeth 3x2’, HWB 2x3’, breath exercises 3x1’, Timing, hunchback-pillow 0’, Y. Nidra 40’, massage gun 10x3’, neck 1+ 0x1’, neck 2 0x1’, plantar/calf stretch 0x1’, acupressure 0x1’, palpate 0’, belly 0’, back 10’, !!aloe vera 0x1’, twist-stretch 0x1’, yoga/stretching 0x1’, sun 2x5’.
Combine: next?
:x: workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps Sep 20th (34 supps): Supp costs:~389€/m (Sep 20th) CHANGED: I don't think eleuthero or alpha GPC are helping energy as much as glutathione. Myo-inositol seemed to lengthen & deepen sleep stints, I don't think apigenin or threonate did anything (I'm suspicious of the products however). Eleuthero, apigenin, and myo-inositol. Started threonate before the 21st, no difference to sleep. Glutathione diuretic when I take it, not when I don't, starts within an hour, so maybe decreasing the dose. Surprisingly increased energy after first(?) glutathione 19th at 3, so from 20th on at 9 and 3. Started flushing B3 from 17th, increasing without problems, probably 3x250mg/d by the 22nd, OK 23rd or 24th, additional to continuing flush-free, which may be helping increase this time. 4 Quercetin from 14th on. B2 from 10th, remember to halve from 24th. Started fisetin and olive leaf extract (Berg) low on 8th, full 750mg capsules by the 15th. 1x150mg alpha GPC from Sep 5th, more when safe. B3 2x from Aug 31st (then check homocystein). Pure ATP 400mg in liquid was bad, so at most I may encapsulate & start with less, 100mg. Copper doesn't seem necessary if my cardio interpreted my bloods right. New idea: Creatine. PLANNED/TAKEN TODAY: click for details:

ZERO now: Arg, B2, Cu, Mum, Nc 1*.5g, (Nd), Pe, Ps, atm !Qc, Rib, Se, Sr 31125k, Zn.
REGULAR as of Sep 20th (34 supps): ALA .2g, alpha-GPC 1x150mg, B2 1x100/50mg, B3/Nia 250g & B3 flush free 400mg, B12 0x5mg/4m, C 2x.5g, Cr 6x0.6g, 0(-2) DAO before meals, D3 20.000 IE = 500mcg, + K2 (MK7) 200mcg, stopped increasing that, EGCG 1x(50%, incl. theanine?).5g, EllagicA 2 x.2g (+43mg vit. C) after a short break, Fev .4g (+.2g MSM), Fis: 1x196mg. Ga: now 3x0.4g+2x.6g=2.4g, Gi 3x168mg, Glutamin: down to 0.6g, Glutathione 2x, Hon (2%)x2x.4g=16mg, Luteolin .2g, Ω3 1x5mg, Mg Gly 2x50mg, Mg Mal 2x45mg, P5P 0x27mg, PEA 1x0.4g Pf 3(-4)x.35g, pine bark 2x.5g, PQQ 1, CoQ10 (ubn) 1x.1g, Qc 4x.5g, Rs (50%) 2x.4g, Ro 2x.35g, Rutin: 1x522. Sa .1g, Sily (80%) 1x.5g (+83mg L-cholin) , The 2x.2g (+.15g polyphenols).
What-when-details: Updated Sep 5th (before: see the reference post)
/20:00 400mg GABA A1/2 “19:00” PF#1+2 GABA#1 Cr#1+2, 2 mg mal, 0-1P5P, 0x50mg B2, 1PQQ, 5ml Ω3 & 0Qc. Meal: 1xHon. Q10.
Meal -21: Gum -
/22:15 400mg GABA A3 “21:00” PF#3 .3-.6?GABA#2 & .3-.6?glu & 1Lut (slp!) & 0Qc 1xHon + 0 Rupafin
/22:50 400mg + GABA
/07:40 B2-4 “07:00” +ALA+ now 2x pine bark, (teeth) +1Ro, 0Qc Rs#1 SAM-e EGCg + Fev/MSM + Sily +2The +Fisetin + (B1:)1x50mgB2 (100mg for 2 weeks)
Meal 10:-10:00 Gum 10:-11:
/10:15 C1-3 “MEAL!” 2Cr#2 .6GABA#4, gink#1, 0 Zn, gly#1+2, 1x pine bark#2. .5gC#1 (0 NAC)+PEA + Rutin + vit.D3 1/wk. + 1x alpha-GPC.
/10:15 + glutathion
/13 C4 “11:00” (+2h/) gi#2 1 Ellagic acid#1
0 Meal - Gum - (D1) “12:30”
/15 D2/3 “13:00” .5gC#2 , 2Cr#3, .6GABA#5, gink#3 DRINK!
/16 glutathion
/17:30 D4 “17:00” (“meal/acids+2h”) Ellag#2, Qc#4.Rs#2, +1Ro
eve:
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; last: Apr 10th.)

The day's 16 supp-compartments (10', plus 5' making capsules), Sep 20th

Pf: 1A1+1A2+1A3, alpha GPC:C2. B3ff: C3,D3. B3f: A2,C3,D3. C:C3+D3 3x2Cr: A1+C1+D2, Ell: C4+D4. 4-5xGa: a2,a3,a4,C1,D2, Glutamin: A3,c1 Glutathione: C2,D2. Gi: C2,C4,D3 2Gly:C2 Hon:A2.A3. 2Mal:A2 Qc: A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: 0P5+1Q1 (->ubiquinone <150mg/d!):A2. A3: Luteolin B1:B2,Fis.B2: ALA+2 pine B3:Sa. B4: 2Th EGCG&Fev/MSM&Sily C2:0Cu/Zn C3:PEA+Ru. (A2:Ω/Pq:meal) DAO before risky meals?
(A2:0Se), (B2:0mu), (0Nc: A3, B1,C1,C3,D2)

Development

‘Research’ today: No.
Lessons in self-care #433 Retiring from forums a bit.
Reasons to be cheerful #434 Happy to have a small gig again Sunday evening.

2022-09-25, Sunday - Energy 10% / Sleep 90% / Feeling 85%-ish

Successes:
:trophy: glutathione is OK, not too diuretic now.
:trophy: Huberman’s ideas for sleep are working, esp. myo-inositol before evening meal every 2 nights: 9h50 deep sleep! (which is too long for me to call it “100%”).
:zap: Headache & praps bad mood was very likely due to the B3, altho I haven’t quite sussed it out.

Today’s symptoms sorted by the ACR 2016 criteria

Widespread pain, WPI = 11 of 19 areas: limb-Ache 8 (10%, stiff 10%) + spine-pain 3 (10%), shoulder-girdles/hips 0 chest / abdomen / jaw 0
Symptom severity, SSS = severity 9 of 12: Fatigue 3 (90%), insomnia 3 (10%), fog 2 (?15%), headache 0, GI 1 (?20%), depression 0

Triggers & resulting Symptoms

SLEEP (click for details): 9h51, up 5x (28') all deep! ✅ ➔ Feeling 80% well, Ache 1 of 7 ✅, getting up: 80%/2 ✅. Nostrils 20% stuffy 30% of the night.

cold shower p0 A3 massage back ex. Sleep 22:05- ear plugs
TEETH
23:29 8’ 80%/1/10% p0 st1 sip fw1’ deep air nostrils and sore throat
1:10 5’ 80%/1/10% p2! st1 sip fw1’ deep air A4 nostrils and sore throat
2:50 5’ 80%/1/10% p2! st1 sip fw1’ deep air nostrils & sore throat → HWB
4:15 5’ 80%/1/10% p1 st1 sip fw1’ deep air (6) p => eve GABA 400 + 200 + 200. HWB too hot. No B3: No headache. free6 faster, better sit & nicer.
6:30 5’ 80%/1/10% p0 st1 sip fw1’ deep air. Throat still hoarse. Despite HWB directly on it. Dry mouth.
-8:24 stools, B2-4
Sum: 1h55+8h24-(8+5+5+5+5=)28’ = 10h19-28’ = 9h51, up 5x (28’) all deep!

ACTIVITIES (aim: 40% energy)ACHE: ➔ resting & music 80%/1-2, housework 80%/5, then resting/music seems to be working fine today. :white_check_mark:
?? TT, cycle, mask, work, kids,
ACTIONSPAINS: :white_check_mark: except: neck :white_check_mark:, GI :white_check_mark:, esophagus: slight problems at midday, not with capsules :white_check_mark:, jaw 3x5’’ left starting up abain after 5 days nothing, 3x5’’ right in the jaw joint, something new, massaging the spot helps :face_with_monocle:, pee pain: 3xp1-2 from 1-4 at night, was that still too much GABA, despite reducing from 3x400 to 2x400 & 1x200mg? :white_check_mark:
(lie, sit, stand, arms up, cycle, walk, mask??)
MCAS/HIT-Symptoms/Triggers/Treatments: :white_check_mark: Fatigue better from acupuncture/sleep/cold showering as well probably as losing the CoV-antibodies. :face_with_monocle:. Frontal headache at midday (but not at night etc. anymore) despite no cheese yet and no B3. Stage fright tenseness?
Fibro & Touch: :white_check_mark:
Covid-danger: :white_check_mark:
Weather: Indoors :white_check_mark: Outdoors :white_check_mark:.

Treatments

Docs:
Dentist again on 20th after treatment on 6th brought energy down for 8+ days… Pain down in a few hours this time (but only due to strict rest), however energy again down to 5-10%.
Chinese Acupuncturist - #29 on 10th, after 14 days :white_check_mark: Still good - would be 20-25% energy if it weren’t for the tooth treatments. Session #30 on 7th.

SELF-PHYSIO (click for details): 1h43

:white_check_mark: airing 5x2’, cold shower 1x(10’), warm shower 0x(10’), cream/oil fc/ey/hd/ft 1x1’, teeth 3x2’, HWB 1x3’, breath exercises 3x1’, Timing, hunchback-pillow 5’, Y. Nidra 10’, massage gun 3x3’, neck 1+ 1x1’, neck 2 0x1’, plantar/calf stretch 1x1’, acupressure 0x1’, palpate 1’, belly 3’, back 10’, !!aloe vera 2x1’, twist-stretch 2x1’, yoga/stretching 2x1’, sun 2x5’, breath-hold 14’.
Combine: next?
:x: workout 7’, horse stance 1’, balance roll standing 5’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps Sep 20th (34 supps): Supp costs:~389€/m (Sep 20th) CHANGED: No flushing B3 on Sunday before the gig, cos of headache (& mood). I don't think eleuthero or alpha GPC are helping energy as much as glutathione. Myo-inositol seemed to lengthen & deepen sleep stints, I don't think apigenin or threonate did anything (I'm suspicious of the products however). Eleuthero, apigenin, and myo-inositol. Started threonate before the 21st, no difference to sleep. Glutathione diuretic when I take it, not when I don't, starts within an hour, so maybe decreasing the dose. Surprisingly increased energy after first(?) glutathione 19th at 3, so from 20th on at 9 and 3. Started flushing B3 from 17th, increasing without problems, probably 3x250mg/d by the 22nd, OK 23rd or 24th, additional to continuing flush-free, which may be helping increase this time. 4 Quercetin from 14th on. B2 from 10th, remember to halve from 24th. Started fisetin and olive leaf extract (Berg) low on 8th, full 750mg capsules by the 15th. 1x150mg alpha GPC from Sep 5th, more when safe. B3 2x from Aug 31st (then check homocystein). Pure ATP 400mg in liquid was bad, so at most I may encapsulate & start with less, 100mg. Copper doesn't seem necessary if my cardio interpreted my bloods right. New idea: Creatine. PLANNED/TAKEN TODAY: click for details:

ZERO now: Arg, B2, Cu, Mum, Nc 1*.5g, (Nd), Pe, Ps, atm !Qc, Rib, Se, Sr 31125k, Zn.
REGULAR as of Sep 20th (34 supps): ALA .2g, alpha-GPC 1x150mg, B2 1x100/50mg, B3/Nia 250g & B3 flush free 400mg, B12 0x5mg/4m, C 2x.5g, Cr 6x0.6g, 0(-2) DAO before meals, D3 20.000 IE = 500mcg, + K2 (MK7) 200mcg, stopped increasing that, EGCG 1x(50%, incl. theanine?).5g, EllagicA 2 x.2g (+43mg vit. C) after a short break, Fev .4g (+.2g MSM), Fis: 1x196mg. Ga: now 3x0.4g+2x.6g=2.4g, Gi 3x168mg, Glutamin: down to 0.6g, Glutathione 2x, Hon (2%)x2x.4g=16mg, Luteolin .2g, Ω3 1x5mg, Mg Gly 2x50mg, Mg Mal 2x45mg, P5P 0x27mg, PEA 1x0.4g Pf 3(-4)x.35g, pine bark 2x.5g, PQQ 1, CoQ10 (ubn) 1x.1g, Qc 4x.5g, Rs (50%) 2x.4g, Ro 2x.35g, Rutin: 1x522. Sa .1g, Sily (80%) 1x.5g (+83mg L-cholin) , The 2x.2g (+.15g polyphenols).
What-when-details: Updated Sep 5th (before: see the reference post)
/19:30 myo-inositol (even evenings)
/20:05 400mg GABA A1/2 “19:00” PF#1+2 GABA#1 Cr#1+2, 2 mg mal, 0-1P5P, 0x50mg B2, 1PQQ, 5ml Ω3 & 0Qc. Meal: 1xHon. Q10.
Meal 19:45-20:15 Gum - Teeth 21:30
/21:50 400mg GABA A3 “21:00” PF#3 .3-.6?GABA#2 & .3-.6?glu & 1Lut (slp!) & 0Qc 1xHon + 0 Rupafin
/1:10 400mg + GABA
/8:40 B2-4 “07:00” +ALA+ now 2x pine bark, (teeth) +1Ro, 0Qc Rs#1 SAM-e EGCg + Fev/MSM + Sily +2The +Fisetin + (B1:)1x50mgB2 (100mg for 2 weeks)
Meal 9:30-9:50 Gum 9:55-1:
/9:50 C1-3 “MEAL!” 2Cr#2 .6GABA#4, gink#1, 0 Zn, gly#1+2, 1x pine bark#2. .5gC#1 (0 NAC)+PEA + Rutin + vit.D3 1/wk. + 1x alpha-GPC.
/9:55 + glutathion
/12:05 C4 “11:00” (+2h/) gi#2 1 Ellagic acid#1
0 Meal 14:45-15:30 Gum - (D1) “12:30”
14:45 D2/3 “13:00” .5gC#2 , 2Cr#3, .6GABA#5, gink#3 DRINK!
/16:05 + glutathion
/19:30 D4 “17:00” (“meal/acids+2h”) Ellag#2, Qc#4.Rs#2, +1Ro
eve:
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; last: Apr 10th.)

The day's 16 supp-compartments (10', plus 5' making capsules), Sep 20th

Pf: 1A1+1A2+1A3, alpha GPC:C2. B3ff: C3,D3. B3f: A2,C3,D3. C:C3+D3 3x2Cr: A1+C1+D2, Ell: C4+D4. 4-5xGa: a2,a3,a4,C1,D2, Glutamin: A3,c1 Glutathione: C2,D2. Gi: C2,C4,D3 2Gly:C2 Hon:A2.A3. 2Mal:A2 Qc: A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: 0P5+1Q1 (->ubiquinone <150mg/d!):A2. A3: Luteolin B1:B2,Fis.B2: ALA+2 pine B3:Sa. B4: 2Th EGCG&Fev/MSM&Sily C2:0Cu/Zn C3:PEA+Ru. (A2:Ω/Pq:meal) DAO before risky meals?
(A2:0Se), (B2:0mu), (0Nc: A3, B1,C1,C3,D2)

Development

‘Research’ today: No.
Lessons in self-care #434 Nothing but music, keeping off forums.
Reasons to be cheerful #435 Music is challenging, but fun, and seems manageable.

2022-09-26, Monday - Energy 10% / Sleep 85% / Feeling 80%-ish

Funny how I could activate quite a bit of energy for the gig yesterday evening, altho I was drained after, then rested intensely.
Successes: :trophy: Interesting bloods! Phosphate low and B6 high! That’s something I can research for, hypophosphatemia is the word… and needs supplementing phosphate.
:trophy: Trying whole body cryotherapy didn’t work, so no need to think about that any more.
Learnt: :student: Lots about blood, have to put that on tomorrow’s entry!
:ambulance: Checking how I can get Chenodeoxycholic acid (CDCA) for my lp(a) lipid, I could also increase carnitin from 3 to 4g/d.
:ambulance: Got to supplement phosphate!

Today’s symptoms sorted by the ACR 2016 criteria

Widespread pain, WPI = 12 of 19 areas: limb-Ache 8 (10%, stiff 15%) + spine-pain 3 (10%), shoulder-girdles/hips 1 chest / abdomen / jaw 0
Symptom severity, SSS = severity 9 of 12: Fatigue 3 (90%), insomnia 3 (15%), fog 2 (15%), headache 0, GI 1 (10%), depression 0

Triggers & resulting Symptoms

SLEEP (click for details): 9h22, up 7x (48'), deep, except 30+1h deep doze. ✅ ➔ Feeling 80% well, Ache 1 of 7 ✅, getting up: 80%/1 ✅. Nostrils 20% stuffy 20% of the night.

cold shower p0 Sleep 22:25- A3
TEETH
23:35 14’ 80%/1/10% p0 st1 sip fw1’ deep air 6
0:36 4’ 80%/1/10% p0 st1 sip fw1’ deep A4
1:20 4’ 80%/1/10% p0 st1 sip fw1’ deep air mumijo
3:24 5’ 80%/1/10% p0 st1 sip fw1’ deep air (nostrils) (frontal sinus) (sore throat: umckaloabo & Calendula)
5:20 5’ 80%/1/10% p0 st1 sip fw1’ deep air (nostrils) (sore throat) ear plugs
5:45 11’ 80%/1/10% p0 st1 sip fw1’ doze mind awake → FCS#2 + HWB
7:35 5’ 80%/1/10% p0 st1 sip fw1’ deep doze air (sore throat)
-8:35, 8:45 B2-4 no stools,
Sum: 1h35+8h35-(14+4+4+5+5+11+5=)48’ = 10h10-48’ = 9h22, up 7x (48’), deep, except 30+1h deep doze.

ACTIVITIES (aim: 40% energy)ACHE: :x: ➔ ?80%/?3 :white_check_mark:
?? TT, cycle, mask, work, kids,
ACTIONSPAINS: :white_check_mark: except: neck :white_check_mark:?, GI :white_check_mark:?, esophagus :white_check_mark:?, jaw x5’’ :white_check_mark:?, pee pain: 0xp1-2 :white_check_mark:?
(lie, sit, stand, arms up, cycle, walk, mask??)
MCAS/HIT-Symptoms/Triggers/Treatments: :white_check_mark: Fatigue better from acupuncture/sleep/cold showering as well probably as losing the CoV-antibodies. :face_with_monocle:. Tofu?
Fibro & Touch: :white_check_mark:
Covid-danger: :white_check_mark:
Weather: Indoors :white_check_mark: Outdoors :white_check_mark:.

Treatments

Tried whole body cryotherapy again today, was worse rather than better. No better energy. And whether 3 local pains came from that or from cold wet weather I don’t know, but I had a bit to do to get them down again quickly: Knee, clavicle and neck.
Docs:
Dentist again on 20th after treatment on 6th brought energy down for 8+ days… Pain down in a few hours this time (but only due to strict rest), however energy again down to 5-10%.
Chinese Acupuncturist - #29 on 10th, after 14 days :white_check_mark: Still good - would be 20-25% energy if it weren’t for the tooth treatments. Session #30 on 7th.

SELF-PHYSIO (click for details): 85'

:white_check_mark: airing 5x2’, cold shower 2x(10’), warm shower 0x(10’), cream/oil fc/ey/hd/ft 1x1’, teeth 2x2’, HWB 0x3’, breath exercises 3x1’, Timing, hunchback-pillow 0’, Y. Nidra 5’, massage gun 3x3’, neck 1+ 2x1’, neck 2 0x1’, plantar/calf stretch 2x1’, acupressure 0x1’, palpate 1’, belly 3’, back 10’, !!aloe vera 1x1’, twist-stretch 2x1’, yoga/stretching 2x1’, sun 2x5’.
Combine: next?
:x: workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps Sep 20th (34 supps): Supp costs:~389€/m (Sep 20th) CHANGED: Sleep was similar tonight to yesterday night, despite no myo-inositol, as it's the "odd night", taking again tonight! I don't think eleuthero or alpha GPC are helping energy as much as glutathione. Myo-inositol seemed to lengthen & deepen sleep stints, I don't think apigenin or threonate did anything (I'm suspicious of the products however). Eleuthero, apigenin, and myo-inositol. Started threonate before the 21st, no difference to sleep. Glutathione diuretic when I take it, not when I don't, starts within an hour, so maybe decreasing the dose. Surprisingly increased energy after first(?) glutathione 19th at 3, so from 20th on at 9 and 3. Started flushing B3 from 17th, increasing without problems, probably 3x250mg/d by the 22nd, OK 23rd or 24th, additional to continuing flush-free, which may be helping increase this time. 4 Quercetin from 14th on. B2 from 10th, remember to halve from 24th. Started fisetin and olive leaf extract (Berg) low on 8th, full 750mg capsules by the 15th. 1x150mg alpha GPC from Sep 5th, more when safe. B3 2x from Aug 31st (then check homocystein). Pure ATP 400mg in liquid was bad, so at most I may encapsulate & start with less, 100mg. Copper doesn't seem necessary if my cardio interpreted my bloods right. New idea: Creatine. PLANNED/TAKEN TODAY: click for details:

ZERO now: Arg, B2, Cu, Mum, Nc 1*.5g, (Nd), Pe, Ps, atm !Qc, Rib, Se, Sr 31125k, Zn.
REGULAR as of Sep 20th (34 supps): ALA .2g, alpha-GPC 1x150mg, B2 1x100/50mg, B3/Nia 250g & B3 flush free 400mg, B12 0x5mg/4m, C 2x.5g, Cr 6x0.6g, 0(-2) DAO before meals, D3 20.000 IE = 500mcg, + K2 (MK7) 200mcg, stopped increasing that, EGCG 1x(50%, incl. theanine?).5g, EllagicA 2 x.2g (+43mg vit. C) after a short break, Fev .4g (+.2g MSM), Fis: 1x196mg. Ga: now 3x0.4g+2x.6g=2.4g, Gi 3x168mg, Glutamin: down to 0.6g, Glutathione 2x, Hon (2%)x2x.4g=16mg, Luteolin .2g, Ω3 1x5mg, Mg Gly 2x50mg, Mg Mal 2x45mg, P5P 0x27mg, PEA 1x0.4g Pf 3(-4)x.35g, pine bark 2x.5g, PQQ 1, CoQ10 (ubn) 1x.1g, Qc 4x.5g, Rs (50%) 2x.4g, Ro 2x.35g, Rutin: 1x522. Sa .1g, Sily (80%) 1x.5g (+83mg L-cholin) , The 2x.2g (+.15g polyphenols).
What-when-details: Updated Sep 5th (before: see the reference post)
0 myo-inositol (even evenings)
/20:00 decreased to 200mg GABA A1/2 “19:00” PF#1+2 GABA#1 Cr#1+2, 2 mg mal, 0-1P5P, 0x50mg B2, 1PQQ, 5ml Ω3 & 0Qc. Meal: 1xHon. Q10.
Meal -21:00 Gum 21:00-22:05
/22:05 decreased to 200mg GABA A3 “21:00” PF#3 .3-.6?GABA#2 & .3-.6?glu & 1Lut (slp!) & 0Qc 1xHon + 0 Rupafin
decreased to 200mg + GABA
09: B2-4 “07:00” +ALA+ now 2x pine bark, (teeth) +1Ro, 0Qc Rs#1 SAM-e EGCg + Fev/MSM + Sily +2The +Fisetin + (B1:)1x50mgB2 (100mg for 2 weeks)
Meal 10:-: Gum 10:-11:
10:30 C1-3 “MEAL!” 2Cr#2 .6GABA#4, gink#1, 0 Zn, gly#1+2, 1x pine bark#2. .5gC#1 (0 NAC)+PEA + Rutin + vit.D3 1/wk. + 1x alpha-GPC.
0, forgot! glutathion
13:45 C4 “11:00” (+2h/) gi#2 1 Ellagic acid#1
0 Meal - Gum - (D1) “12:30”
14:45 D2/3 “13:00” .5gC#2 , 2Cr#3, .6GABA#5, gink#3 DRINK!
15:00 glutathion
18:45 D4 “17:00” (“meal/acids+2h”) Ellag#2, Qc#4.Rs#2, +1Ro
eve:
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; last: Apr 10th.)

The day's 16 supp-compartments (10', plus 5' making capsules), Sep 20th

Pf: 1A1+1A2+1A3, alpha GPC:C2. B3ff: C3,D3. B3f: A2,C3,D3. C:C3+D3 3x2Cr: A1+C1+D2, Ell: C4+D4. 4-5xGa: a2,a3,a4,C1,D2, Glutamin: A3,c1 Glutathione: C2,D2. Gi: C2,C4,D3 2Gly:C2 Hon:A2.A3. 2Mal:A2 Qc: A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: 0P5+1Q1 (->ubiquinone <150mg/d!):A2. A3: Luteolin B1:B2,Fis.B2: ALA+2 pine B3:Sa. B4: 2Th EGCG&Fev/MSM&Sily C2:0Cu/Zn C3:PEA+Ru. (A2:Ω/Pq:meal) DAO before risky meals?
(A2:0Se), (B2:0mu), (0Nc: A3, B1,C1,C3,D2)

Development

‘Research’ today:
Looking up what my new bloods, like too low phosphate mean! (More on that tomorrow.)
Too high in blood: lp(a), B6, glucose, triglycerides, too low: leukocytes (thrombocytes), phosphate, HDL as ever, B2, CoV antibodies are there, but not high enough, copper is inside the limits, but at lower end.
So re-checking lipid reduction: How I can get Chenodeoxycholic acid (CDCA) for my lp(a) lipid, I could also increase carnitine from 3 to 4g/d. And need to read B3 up again, praps in the Momtazi 2019 study, cardio says we’ll just have to see if my heart changes, it’s fine today Dunno if the glutathione is helping the lipids too, in replacement of the NAC I don’t tolerate. Started mumijo again early today, 26th, it says do it for 3-4 weeks, then a break again…
Need to order theanine and CoQ10 again, but I can take ubiquinol instead of ubiquinone for the time being.

Lessons in self-care #435 Bit of a wild day today, tried quite a bit, but that’s OK. Lots of rest.
Reasons to be cheerful #436 My lp(a) isn’t higher it’s lower, cos it was a different lab / different units!

2022-09-27, Tuesday - Energy 8% / Sleep 85% / Feeling 70%-ish (not sure why, hope it’s none of the supps, just overdoing it a bit Sunday and Monday, or underdoing it whilst working a lot today?)

Today’s symptoms sorted by the ACR 2016 criteria

Widespread pain, WPI = 11 of 19 areas: limb-Ache 8 (20%, stiff 15%) + spine-pain 3 (10%), shoulder-girdles/hips 0 chest / abdomen / jaw 0
Symptom severity, SSS = severity 9 of 12: Fatigue 3 (92%), insomnia 3 (15%), fog 2 (15%), headache 0, GI 1 (10%), depression 0

Triggers & resulting Symptoms

SLEEP (click for details): 8h47, up 6x (44'), deep 8h ✅ ➔ Feeling 80-70% well, Ache 1-2 of 7 ✅, getting up: 80%/1 ✅. Nostrils 20% stuffy 20% of the night. frontal headache again, so keep B3 down to 150mg for longer (2 weeks is recommended).

cold shower p0 Sleep 22:55- Why not 21:45? Lack of self-discipline, partly cos of interesting test results.
ear plugs
TEETH
0:05 5’ 80%/1/10% p0 st1 sip fw1’ deep air
1:25 5’ 70%/1/10% p0 st1 sip fw1’ deep air HWB A4 (frontal headache)
2:50 5’ 70%/1/10% p0 st1 sip fw1’ deep air (frontal headache)
4:24 19’ 70%/1/10% p0 st1 sip fw1’ deep air mumijo 6 frontal headache
6:20 5’ 70%/2/10% p0 st1 sip fw1’ deep air (frontal headache)
7:50 5’ 70%/2/10% p0 st1 sip fw1’ deep (frontal headache)
-8:26 doze 8:40 stools, 8:45 B2-4
Sum: 1h05+8h26-(5+5+5+19+5+5=)44’ = 9h31-44’ = 8h47, up 6x (44’), deep 8h
Memo: Need to ask mates for coriander

ACTIVITIES (aim: 40% energy)ACHE: Lots of work, fairly stressfree, a bit fogged, later 1h15 kids, then 30’ phone ➔ 80%/2-3 :face_with_monocle: :white_check_mark:
ACTIONSPAINS: :white_check_mark: except: neck :white_check_mark::face_with_monocle:, GI :white_check_mark:, esophagus :white_check_mark:, jaw 1x5’’ :white_check_mark:, pee pain: 0xp1-2 :white_check_mark:. Local pains better, a bit neck.
MCAS/HIT-Symptoms/Triggers/Treatments: :white_check_mark: Fatigue better from acupuncture/sleep/cold showering as well probably as losing the CoV-antibodies. :face_with_monocle: Cheese and regularly half a walnut OK!
Fibro & Touch: :white_check_mark:
Covid-danger: :white_check_mark:
Weather: Indoors :white_check_mark: Outdoors :white_check_mark:.

Treatments

Docs:
Cardio/bloods: Need to sort out my bloods and supps!
Dentist again on 20th after treatment on 6th brought energy down for 8+ days… Pain down in a few hours this time (but only due to strict rest), however energy again down to 5-10%.
Chinese Acupuncturist - #29 on 10th, after 14 days :white_check_mark: Still good - would be 20-25% energy if it weren’t for the tooth treatments. Session #30 on 7th.

SELF-PHYSIO (click for details): 88'

:white_check_mark: airing 5x2’, cold shower 1x(10’), warm shower 0x(10’), cream/oil fc/ey/hd/ft 2x1’, teeth 3x2’, HWB 3x3’, breath exercises 4x1’, Timing, hunchback-pillow 0’, Y. Nidra 5’, massage gun 1x3’, neck 1+ 2x1’, neck 2 0x1’, plantar/calf stretch 2x1’, acupressure 0x1’, palpate 1’, belly 3’, back 10’, !!aloe vera 1x1’, twist-stretch 1x1’, yoga/stretching 1x1’, sun 3x5’, breath-hold 3’,
Combine: next?
:x: workout 7’, horse stance 1’, balance roll standing 5’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps Sep 20th (34 supps): Supp costs:~389€/m (Sep 20th) CHANGED: Glutathione is OK now. Because of headaches I'll be reducing the flushing B3 to 3x150mg and keeping it there for 2 weeks before progressing. Since my B2 was down in the bloods I won't e halving from the 24th on, I'll be increasing now. Praps trying ATP again, encapsulated, since my phosphate is under the minimum. New idea: Creatine. PLANNED/TAKEN TODAY: click for details:

ZERO now: Arg, B2, Cu, Mum, Nc 1*.5g, (Nd), Pe, Ps, atm !Qc, Rib, Se, Sr 31125k, Zn.
REGULAR as of Sep 20th (34 supps): ALA .2g, alpha-GPC 1x150mg, B2 1x100/50mg, B3/Nia 250g & B3 flush free 400mg, B12 0x5mg/4m, C 2x.5g, Cr 6x0.6g, 0(-2) DAO before meals, D3 20.000 IE = 500mcg, + K2 (MK7) 200mcg, stopped increasing that, EGCG 1x(50%, incl. theanine?).5g, EllagicA 2 x.2g (+43mg vit. C) after a short break, Fev .4g (+.2g MSM), Fis: 1x196mg. Ga: now 3x0.4g+2x.6g=2.4g, Gi 3x168mg, Glutamin: down to 0.6g, Glutathione 2x, Hon (2%)x2x.4g=16mg, Luteolin .2g, Ω3 1x5mg, Mg Gly 2x50mg, Mg Mal 2x45mg, P5P 0x27mg, PEA 1x0.4g Pf 3(-4)x.35g, pine bark 2x.5g, PQQ 1, CoQ10 (ubn) 1x.1g, Qc 4x.5g, Rs (50%) 2x.4g, Ro 2x.35g, Rutin: 1x522. Sa .1g, Sily (80%) 1x.5g (+83mg L-cholin) , The 2x.2g (+.15g polyphenols).
What-when-details: Updated Sep 5th (before: see the reference post)
/19:45 myo-inositol (even evenings)
/20:15 200mg GABA A1/2 “19:00” PF#1+2 GABA#1 Cr#1+2, 2 mg mal, 0-1P5P, 0x50mg B2, 1PQQ, 5ml Ω3 & 0Qc. Meal: 1xHon. Q10.
Meal -21: Gum -
/22:15 200mg GABA A3 “21:00” PF#3 .3-.6?GABA#2 & .3-.6?glu & 1Lut (slp!) & 0Qc 1xHon + 0 Rupafin
/1:30 200mg + GABA
/4:25 mumijo
/8:45 09: B2-4 “07:00” +ALA+ now 2x pine bark, (teeth) +1Ro, 0Qc Rs#1 SAM-e EGCg + Fev/MSM + Sily +2The +Fisetin + (B1:)1x50mgB2 (100mg for 2 weeks)
Meal 10:-10:30 Teeth
/10:15 C1-3 “MEAL!” 2Cr#2 .6GABA#4, gink#1, 0 Zn, gly#1+2, 1x pine bark#2. .5gC#1 (0 NAC)+PEA + Rutin + vit.D3 1/wk. + 1x alpha-GPC.
/10:15 glutathion
/13:20 C4 “11:00” (+2h/) gi#2 1 Ellagic acid#1
/15:30 Meal - Gum - (D1) “12:30”
/15:30 D2/3 “13:00” .5gC#2 , 2Cr#3, .6GABA#5, gink#3 DRINK!
/15:30 glutathion
/18:30 D4 “17:00” (“meal/acids+2h”) Ellag#2, Qc#4.Rs#2, +1Ro
eve:
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; last: Apr 10th.)

The day's 16 supp-compartments (10', plus 5' making capsules), Sep 20th

Pf: 1A1+1A2+1A3, alpha GPC:C2. B3ff: C3,D3. B3f: A2,C3,D3. C:C3+D3 3x2Cr: A1+C1+D2, Ell: C4+D4. 4-5xGa: a2,a3,a4,C1,D2, Glutamin: A3,c1 Glutathione: C2,D2. Gi: C2,C4,D3 2Gly:C2 Hon:A2.A3. 2Mal:A2 Qc: A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: 0P5+1Q1 (->ubiquinone <150mg/d!):A2. A3: Luteolin B1:B2,Fis.B2: ALA+2 pine B3:Sa. B4: 2Th EGCG&Fev/MSM&Sily C2:0Cu/Zn C3:PEA+Ru. (A2:Ω/Pq:meal) DAO before risky meals?
(A2:0Se), (B2:0mu), (0Nc: A3, B1,C1,C3,D2)

Development

‘Research’ today: For Raynauld’s natural hand and foot warmers, e.g. from HotHands. Not too much on phosphate etc. today cos of work and kids.
Lessons in self-care #436 Still no energy, gotta watch out!
Reasons to be cheerful #437 Nice with kids, good to get work done.

2022-09-28, Wednesday - Energy 10% / Sleep 85% / Feeling 80%-ish

Successes:
:trophy: Still great that I’ve improved lp(a) after all!
:zap: Non-laxative phosphate supps? Nope, can’t find any. :frowning:
Learnt:
:student: B3 sfx
:student: phosphate supplements are very laxative, so no option!
:student: Seizures can come thru lack of phosphate!
:ambulance: Need to improve phosphates thru food!

Today’s symptoms sorted by the ACR 2016 criteria

Widespread pain, WPI = 11 of 19 areas: limb-Ache 8 (10%, stiff 10%) + spine-pain 3 (10%), shoulder-girdles/hips 0 chest / abdomen / jaw 0
Symptom severity, SSS = severity 9 of 12: Fatigue 3 (90%), insomnia 3 (15%), fog 2 (15%), headache 0, GI 1 (10%), depression 0

Just to remind myself & anyone reading that these % of symptom severity are relative. If I didn’t do my “80+” treatments per day, actually 100s if I counted all my eliminated foods, they would be far more severe, e.g. my GI symptoms would have a severity of 100% if I ate normal food. Similarly my insomnia 60%, accordingly fog then 50%, headache & depression 1 (20%? each) my various pain types would all have a baseline of around 40-50% (a “4-5”)…

Triggers & resulting Symptoms

SLEEP (click for details): 8h19, up 5x (62'), and pretty awake ahead of time, and it was OK to get up, but I didn't look good later my wife said. 🧐✅ ➔ Feeling 90% well, Ache 1 of 7 ✅, getting up: 80%/1 ✅. Nostrils 20% stuffy 10% of the night. Feeling better tonight.

cold shower p1 Sleep 23:20- Why not 21:45? Talking, then work ideas.
ear plugs TEETH
0:25 5’ 90%/1/10% p0 st1 sip fw1’ deep air A4
1:30 5’ 90%/1/10% p0 st1 sip fw1’ deep air
2:50 5’ 90%/1/10% p0 st1 sip fw1’ deep mumijo
4:55 42’ 90%/1/10% p0 st1 sip fw1’ deep 6 HWB teeth
7:35 5’ 90%/1/10% p0 st1 sip fw1’ deep air (right nostril 20%)
-8:41 B2-4 in sun, stools med-soft
Sum: 40+8h41-(5+5+5+42+5=)62’ = 9h21-62’ = 8h19, up 5x (62’), and pretty awake ahead of time, and it was OK to get up, but I didn’t look good later my wife said.

ACTIVITIES (aim: 40% energy)ACHE: Work, 15’ supermarket, 2x20’ housework nothing else, cos my wife said I didn’t look good enough to attempt it ➔ 80%/2 :white_check_mark:
ACTIONSPAINS: :white_check_mark: except: neck :white_check_mark:, GI :white_check_mark:, esophagus :white_check_mark:, jaw 0x5’’ :white_check_mark:, pee pain: 0xp1-2 :white_check_mark:. Hardly any pains I don’t think.
MCAS/HIT-Symptoms/Triggers/Treatments: :white_check_mark: Fatigue better from acupuncture/sleep/cold showering as well probably as losing the CoV-antibodies. :face_with_monocle: Mozarella, nuts, no problems.
Fibro & Touch: :white_check_mark:
Covid-danger: :white_check_mark:
Weather: Indoors :white_check_mark: Outdoors :white_check_mark:.
Focal seizures: 9:20, not enough GABA - try later at night? Or maybe lack of phosphate?

Treatments

Docs:
Dentist again on 20th after treatment on 6th brought energy down for 8+ days… Pain down in a few hours this time (but only due to strict rest), however energy again down to 5-10%.
Chinese Acupuncturist - #29 on 10th, after 14 days :white_check_mark: Still good - would be 20-25% energy if it weren’t for the tooth treatments. Session #30 on 7th.

SELF-PHYSIO (click for details): 1h46

:white_check_mark: airing 5x2’, cold shower 1x(10’), warm shower 0x(10’), cream/oil fc/ey/hd/ft 2x1’, teeth 4x2’, HWB 2x3’, breath exercises 3x1’, Timing, hunchback-pillow 0’, Y. Nidra 20’, massage gun 1x3’, neck 1+ 3x1’, neck 2 0x1’, plantar/calf stretch 3x1’, acupressure 0x1’, palpate 1’, belly 3’, back 10’, !!aloe vera 2x1’, twist-stretch 2x1’, yoga/stretching 2x1’, sun 3x5’, breath-hold 12’,
Combine: next?
:x: workout 7’, horse stance 1’, balance roll standing 5’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps Sep 20th (34 supps): Supp costs:~389€/m (Sep 20th) CHANGED 27th: Glutathione is OK now. Because of headaches I'll be reducing the flushing B3 to 3x150mg and keeping it there for 2 weeks before progressing. Since my B2 was down in the bloods I won't be halving from the 24th on, I'll be increasing now. Praps trying ATP again, encapsulated, since my phosphate is under the minimum. New idea: Creatine. PLANNED/TAKEN TODAY: click for details:

ZERO now: Arg, B2, Cu, Mum, Nc 1*.5g, (Nd), Pe, Ps, atm !Qc, Rib, Se, Sr 31125k, Zn.
REGULAR as of Sep 20th (34 supps): ALA .2g, alpha-GPC 1x150mg, B2 1x100mg, not going down to 50mg, B3/Nia 3x150g & B3 flush free 2x400mg, B12 0x5mg/4m, C 2x.5g, Cr 6x0.6g, 0(-2) DAO before meals, D3 20.000 IE = 500mcg, + K2 (MK7) 200mcg, stopped increasing that, EGCG 1x(50%, incl. theanine?).5g, EllagicA 2 x.2g (+43mg vit. C) after a short break, Fev .4g (+.2g MSM), Fis: 1x196mg. Ga: now 3x0.4g+2x.6g=2.4g, Gi 3x168mg, Glutamin: down to 0.6g, Glutathione 2x, Hon (2%)x2x.4g=16mg, Luteolin .2g, Ω3 1x5mg, Mg Gly 2x50mg, Mg Mal 2x45mg, P5P 0x27mg, PEA 1x0.4g Pf 3(-4)x.35g, pine bark 2x.5g, PQQ 1, CoQ10 (ubn) 1x.1g, Qc 4x.5g, Rs (50%) 2x.4g, Ro 2x.35g, Rutin: 1x522. Sa .1g, Sily (80%) 1x.5g (+83mg L-cholin) , The 2x.2g (+.15g polyphenols).
What-when-details: Updated Sep 5th (before: see the reference post)
0 myo-inositol (even evenings)
/20:00 200mg GABA A1/2 “19:00” PF#1+2 GABA#1 Cr#1+2, 2 mg mal, 0-1P5P, 0x50mg B2, 1PQQ, 5ml Ω3 & 0Qc. Meal: 1xHon. Q10.
Meal -21: Gum -
/22:30 200mg GABA A3 “21:00” PF#3 .3-.6?GABA#2 & .3-.6?glu & 1Lut (slp!) & 0Qc 1xHon + 0 Rupafin
0:30 200mg + GABA
mumijo
08:45 B2-4 “07:00” +ALA+ now 2x pine bark, (teeth) +1Ro, 0Qc Rs#1 SAM-e EGCg + Fev/MSM + Sily +2The +Fisetin + (B1:)1x50mgB2 (100mg for 2 weeks)
Meal 10:10-30:
/10:25 C1-3 in sun “MEAL!” 2Cr#2 .6GABA#4, gink#1, 0 Zn, gly#1+2, 1x pine bark#2. .5gC#1 (0 NAC)+PEA + Rutin + vit.D3 1/wk. + 1x alpha-GPC.
/10:25 glutathion
/12:25 Teeth
/12:35 C4 + “11:00” (+2h/) gi#2 1 Ellagic acid#1
/15:10-30 0 Meal - Gum - (D1) “12:30”
/16:00 D2/3 “13:00” .5gC#2 , 2Cr#3, .6GABA#5, gink#3 DRINK!
/16:00 glutathion
/19:00 D4 “17:00” (“meal/acids+2h”) Ellag#2, Qc#4.Rs#2, +1Ro
eve: /19:40 glutathion /20:15 A1/2 eat 20:15-20:55
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; last: Apr 10th.)

The day's 16 supp-compartments (10', plus 5' making capsules), Sep 20th

Pf: 1A1+1A2+1A3, alpha GPC:C2. B3ff: C3,D3. B3f: A2,C3,D3. C:C3+D3 3x2Cr: A1+C1+D2, Ell: C4+D4. 4-5xGa: a2,a3,a4,C1,D2, Glutamin: A3,c1 Glutathione: C2,D2. Gi: C2,C4,D3 2Gly:C2 Hon:A2.A3. 2Mal:A2 Qc: A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: 0P5+1Q1 (->ubiquinone <150mg/d!):A2. A3: Luteolin B1:B2,Fis.B2: ALA+2 pine B3:Sa. B4: 2Th EGCG&Fev/MSM&Sily C2:0Cu/Zn C3:PEA+Ru. (A2:Ω/Pq:meal) DAO before risky meals?
(A2:0Se), (B2:0mu), (0Nc: A3, B1,C1,C3,D2)

Development

‘Research’ today: No.
Lessons in self-care #437 Resting was good, feels as tho it might be getting better now.
Reasons to be cheerful #438 Putting quite some hope in phosphate.

2022-09-29, Thursday - Energy 10% / Sleep 85% / Feeling 80%-ish

Successes: :trophy: Brought the LDN scrip to the pharmacy… :face_with_monocle:
Learnt: :student: Phosporus food lists

Today’s symptoms sorted by the ACR 2016 criteria

Widespread pain, WPI = 11 of 19 areas: limb-Ache 8 (10%, stiff 15%) + spine-pain 3 (10-20%), shoulder-girdles/hips 0 chest / abdomen / jaw 0
Symptom severity, SSS = severity 9 of 12: Fatigue 3 (90%), insomnia 3 (15%), fog 2 (15%), headache 0, GI 1 (20%), depression 0

Triggers & resulting Symptoms

SLEEP (click for details): 8h57, up 6x (68'), 7h deep ✅ ➔ Feeling 90% well, Ache 1 of 7 ✅, getting up: 80%/1 ✅. Nostrils 0% stuffy 100% of the night.

teeth cold shower p0 Sleep 23:05- Why not 21:45? phosphate research. First needed a (short) while to de-escalate from being worked up cos of Sun. Self-YoNi after “shouting” inside helped!
0:38 5’ 90%/1/10% p0 st1 sip fw1’ deep air A4
2:25 48’ 90%/1/10% p0 st1 sip fw1’ deep air 6 (self-discipline; triglyceride lp(a) niacin research) HWB. Long break, but also long deep stint after…
6:20 5’ 90%/1/10% p0 st1 sip fw1’ deep air mumijo… after some dozing (30’) and then a long stint. Still need to avoid such long stints. ear plugs
7:05 4’ 90%/1/10% p0 st1 sip fw1’ YoNi/dozing up against my head trying to “argue a point” instead of sleeping. gel
7:55 3’ 90%/1/10% p0 st1 sip fw1’ Ally’s YoNi: deep doze, gel
8:30 3’ 80%/1/10% p0 st1 fw1’ Ally’s YoNi: deep doze
-9:10 B2-4 in sun, stools firm? Ally’s YoNi: deep doze
Sum: 55+9h10-(5+48+5+4+3+3=)68’ = 10h05-1h08 = 8h57, up 6x (68’), 7h deep

ACTIVITIES (aim: 40% energy)ACHE: Resting/forum-work most of the day, but 1.5h meeting with new friends sitting outdoors with 3 blankets over me was quite a challenge ➔ 80%/3 :white_check_mark:, whilst 2x15’ supermarkets in the evening was OK ➔ 80%/2.
ACTIONSPAINS: :white_check_mark: except: neck :white_check_mark:, GI: wind from re-visiting beans should get better tho :white_check_mark:, esophagus :white_check_mark:, jaw x5’’ :white_check_mark:, pee pain: 0xp1-2 :white_check_mark:, backside feeling bad in the evening, seem to have sat wrong and too long, don’t know what from :x:
MCAS/HIT-Symptoms/Triggers/Treatments: :white_check_mark: Fatigue better from acupuncture/sleep/cold showering as well probably as losing the CoV-antibodies. :face_with_monocle:. Have to watch out for phosphate now too, that’s not making things easier. But checked that LDN is not necessarily bad for MCAS, may be good.
Fibro & Touch: :white_check_mark:
Covid-danger: :white_check_mark:
Weather: Indoors :white_check_mark: Outdoors :white_check_mark:.
Trigeminal: Left eyebrow hurting after 1.5h meeting with new friends.

Treatments

Docs:
Dentist again on 20th after treatment on 6th brought energy down for 8+ days… Pain down in a few hours this time (but only due to strict rest), however energy again down to 5-10%.
Chinese Acupuncturist - #29 on 10th, after 14 days :white_check_mark: Still good - would be 20-25% energy if it weren’t for the tooth treatments. Session #30 on 7th.

SELF-PHYSIO (click for details): 1h43

:white_check_mark: airing 5x2’, cold shower 1x(10’), warm shower 0x(10’), cream/oil fc/ey/hd/ft 1x1’, teeth 3x2’, HWB 0x3’, breath exercises 3x1’, Timing, hunchback-pillow 10’, Y. Nidra 40’, massage gun 0x3’, neck 1+ 1x1’, neck 2 0x1’, plantar/calf stretch 2x1’, acupressure 0x1’, palpate 1’, belly 3’, back 10’, !!aloe vera 1x1’, twist-stretch 2x1’, yoga/stretching 2x1’, sun 4x5’.
Combine: next?
:x: workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps Sep 20th (34 supps): Supp costs:~389€/m (Sep 20th) CHANGED 27th: Glutathione is OK now. Because of headaches I've reduced the flushing B3 to 3x150mg and keeping it there for 2 weeks before progressing. Since my B2 was down in the bloods I won't be halving from the 24th on, I'll be increasing now. Praps trying ATP again, encapsulated, since my phosphate is under the minimum. New idea: Creatine. PLANNED/TAKEN TODAY: click for details:

ZERO now: Arg, B2, Cu, Mum, Nc 1*.5g, (Nd), Pe, Ps, atm !Qc, Rib, Se, Sr 31125k, Zn.
REGULAR as of Sep 20th (34 supps): ALA .2g, alpha-GPC 1x150mg, B2 1x100mg, not going down to 50mg, B3/Nia 3x150g & B3 flush free 2x400mg, B12 0x5mg/4m, C 2x.5g, Cr 6x0.6g, 0(-2) DAO before meals, D3 20.000 IE = 500mcg, + K2 (MK7) 200mcg, stopped increasing that, EGCG 1x(50%, incl. theanine?).5g, EllagicA 2 x.2g (+43mg vit. C) after a short break, Fev .4g (+.2g MSM), Fis: 1x196mg. Ga: now 3x0.4g+2x.6g=2.4g, Gi 3x168mg, Glutamin: down to 0.6g, Glutathione 2x, Hon (2%)x2x.4g=16mg, Luteolin .2g, Ω3 1x5mg, Mg Gly 2x50mg, Mg Mal 2x45mg, P5P 0x27mg, PEA 1x0.4g Pf 3(-4)x.35g, pine bark 2x.5g, PQQ 1, CoQ10 (ubn) 1x.1g, Qc 4x.5g, Rs (50%) 2x.4g, Ro 2x.35g, Rutin: 1x522. Sa .1g, Sily (80%) 1x.5g (+83mg L-cholin) , The 2x.2g (+.15g polyphenols).
What-when-details: Updated Sep 5th (before: see the reference post)
/19:40 “18:45” myo-inositol (even evenings)
/20:15 300mg GABA A1/2 “19:00” PF#1+2 GABA#1 Cr#1+2, 2 mg mal, 0-1P5P, 0x50mg B2, 1PQQ, 5ml Ω3 & 0Qc. Meal: 1xHon. Q10.
Meal eat 20:15-20:55
/22:00 “21:00” agigenin 1h before bedtime
/23:00 250mg GABA A3 “21:45” PF#3 .3-.6?GABA#2 & .3-.6?glu & 1Lut (slp!) & 0Qc 1xHon + 0 Rupafin
->0:00 “23:00” 350mg GABA
“4:00” mumijo
09:30 B2-4 “07:00” +ALA+ now 2x pine bark, (teeth) +1Ro, 0Qc Rs#1 SAM-e EGCg + Fev/MSM + Sily +2The +Fisetin + (B1:)1x50mgB2 (100mg for 2 weeks)
Meal 10:-10:30 Teeth
/11:00 in sun C1-3 “MEAL!” 2Cr#2 .6GABA#4, gink#1, 0 Zn, gly#1+2, 1x pine bark#2. .5gC#1 (0 NAC)+PEA + Rutin + vit.D3 1/wk. + 1x alpha-GPC.
/11:00 glutathion
/14:25 C4 + Teeth “11:00” (+2h/) gi#2 1 Ellagic acid#1
0 Meal - (D1) “12:30”
15:00 D2/3 in sun “13:00” .5gC#2 , 2Cr#3, .6GABA#5, gink#3 DRINK!
? glutathion
?19: in sun D4 “17:00” (“meal/acids+2h”) Ellag#2, Qc#4.Rs#2, +1Ro
eve:
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; last: Apr 10th.)

The day's 16 supp-compartments (10', plus 5' making capsules), Sep 20th

Pf: 1A1+1A2+1A3, alpha GPC:C2. B3ff: C3,D3. B3f: A2,C3,D3. C:C3+D3 3x2Cr: A1+C1+D2, Ell: C4+D4. 4-5xGa: a2,a3,a4,C1,D2, Glutamin: A3,c1 Glutathione: C2,D2. Gi: C2,C4,D3 2Gly:C2 Hon:A2.A3. 2Mal:A2 Qc: A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: 0P5+1Q1 (->ubiquinone <150mg/d!):A2. A3: Luteolin B1:B2,Fis.B2: ALA+2 pine B3:Sa. B4: 2Th EGCG&Fev/MSM&Sily C2:0Cu/Zn C3:PEA+Ru. (A2:Ω/Pq:meal) DAO before risky meals?
(A2:0Se), (B2:0mu), (0Nc: A3, B1,C1,C3,D2)

Development

‘Research’ today:
Phosphorus high foods (in mg/g) which I could increase without too much additional problems (1), (2), (3), (4), English list 5:
dairy: Parmesan 840!, “Schmelzkäse” 700, “Emmentaler” cheese 636, “Gouda” 443, “Edamer” 403, feta 360, “Quark” 187, fresh cheese 140, yogurt only 92, but less if fruits in it, cream not much,
According to nuts.com “only about half of the phosphorus in phytate is bioavailable”, that’s nuts & beans
Nuts: Brazil nuts (Paranüsse) 674!, cashew 593!, pistacia 500, almonds 481, walnuts 410/346, hazelnuts 333/290, pecan 290, “Studentenfutter” 285, raisins/sultanas 110, dried figs 67.
Legumes: lentils 412/281, “(red) kidney beans” 407 (cooked red kidney beans 142?!), peanuts 372, peas 320, white beans 301, red lentils 294, tofu 97/190!(?!) (soy beans 570),
eggs: 216
veg: artichokes 130, green cabbage 87, Brussels sprouts 84 (80), broccoli: 82, olives only 17!
grains aren’t that bioavailable, but pumpkin seeds 1230! Roggenkeimflocken (seeded so probably more bioavailable too) 1000!, linseed 660! quinoa 457, Grünkern 411, spelt 401, wholemeal oat 391, medium mustard 180.
peanuts 376, peanut butter 319, but what do they count as, how bioavailable is their phosphorus?
For the 700mg/d we’d need 120 g Gouda, 180 g white beans, 760 g yogurt. (6)

Lessons in self-care #438 Could have kept the meeting shorter, but didn’t feel like moving, cos that’d’ve hurt… :roll_eyes:
Reasons to be cheerful #439 Fun day, lots of good stuff, just missing table tennis.