SLEEP: 8h53, up 4x (17') ➔ Feeling 90% well, Ache 1 of 7 ✅ Managed to not get up once, between 4 and 7. Put ear plugs in case of street noises. Then had 3-4 uneasy dreams sequences (like starting due to almost slipping up on my bike). Almost didn't hear my - soft - alarm.
Supps … & FCS 23:50- (up too late and too excited due to a thread on the Discourse forum)
1:14 4’ 90%/1 p0 st1 drink fw2’
2:29 7’ 90%/1 but suddenly awoken by severe acid reflux → chewing almonds p0 st1 drink fw2’ + 600mg GABA & 400mg L-glutamine & 1x289mg passiflora
4:25 3’ 90%/1 p0-1 st2 drink fw1’ + "300"mg theanine
7:15 3’ 90%/1 p(0) st1 drink fw1’
Sum: 9h10-(4+7+3+3=)17’= 8h53, up 4x (17’)
ACTIVITIES➔ACHE: Work/Mask-talking (quiet)➔ 90%/1, 2x15' Cycle➔ 90%/1, TT 50' precise, but with pressure ➔ 90%/1, but after shops & trying to relax ➔ 70%/3
Ache = also Exhaustion/Tired ➔ ?90%/1
Cycle➔ exhaustion, also as action➔pains;
TT = Table-Tennis➔ easy or effortless or strained or tough?
talk/meetings here (and actions➔pains?)
ACTIONS➔ PAINS: Lying ✅, standing ✅, loins ✅, sitting ✅, arms up ✅, stiffness after poses ✅, fast cycling ✅, bladder: 7:15 it started hurting a little bit, but that didn't continue. 9:00 'ghost' pain. 12:45 also 🧐, GI: severe reflux at 2 due to caused by ~70g raspberry jam, sugar reduced to 35% (≈25g), in ~400g cow yoghurt - praps also too late, at 21:30, uneasy upon getting up ❌, talking ✅, mask-talking ✅ (oxygen hungry tho)
Lie ➔ LBU = lower back unrest, hunchback, Neck, thighs, elbows, itch, cold/hot, nose stuffy
Stand ➔ Legs, back
Knees up ➔ right loin
Arms up ➔ pain
Sit ➔ Backside, lower back
Pose ➔ stiffness (Stiffness after holding a posture): Time 0-60’’, pain amount if faster.
Walk ➔ Elbows, feet, right knee
Cycle ➔ Feet, knees, backside, elbows, hands, neck
Drink ➔ Pee frequency, pain before peeing (p0-6).
Eat ➔ Esophagus block, stomach, gut, rectum, stool (IBSD?). GI for short
Talk➔Jaw (& Ache)
Mask-talk ➔ not sure how to describe it, just plain yucky.
SELF-PHYSIO: 79' ✅, fibro-work (fw) ?2h
Timing, AuTr 5’, hunchback-pillow 5’, cold shower (10’), palpate 1’, belly 3’, back 7’, yoga 4’, twist-stretch 35’, neck 1+ 4’, neck 2 5’,
loins 5’, gums 2x30’’, thumbnails 10x30’’, V ‘, marionette-hang 1’,mirror 2’, shaking dance 1’, breath-hold 11’, RR x2’, HWB 3’, workout 7’
fw: Night: 5 + 5 ?2h
THERAPIES: Acupressure: neck 45°. Only (strained) 90° after neck exercising. Today 2h+, loins & backside & thighs to get at the neck better, strange as it may seem to mainline med.
Acupressure / Therapy, Doc/Diagnoses ? Acupressure 2h Tues & 2h Thurs:
Supps to KEEP UP: PAIN (ACHE; stiffness?) ✅: serrapeptase as nec. SLEEP ✅: 0) 21:00 3x289mg passiflora, selene, rosewort/Mg carbonate/B1; 22:00/bed GABA 1x"450"; 0:00/+2h GABA "600", 400 glutamine, 1x passiflora, 2:00/+4h 300 theanine WAKE/FOG: 0) 8:00 theanine 300 + GABA 400 ✅
For heartburn: Almonds first. (Bentonite, medicinal clay, mumijo?). Worked for reflux tonight at 2:30.
21:40 3x289 passiflora, selene (thyroid), rosewort (bp)/magnesium carbonate/B1 at meal
22:30 600mg GABA
2:30 600mg GABA & ?400mg L-glutamine & 289mg passiflora
4:25 "300"mg theanine
9:07 400 GABA + 300mg theanine …
Serrapeptase as nec.: for ache/inflammation (feverishness?): Tried 19:45 after 50’ power-TT finding it hard to stand & concentrate. Sort of better, but I’m thinking it doesn’t help so much after physical exertion as with emotional fatigue from socializing etc.
Supps UP NEXT: Adjust to get body feeling (esp. head/eyes/feverishness) more natural. +WAKE/FOG: 1) SAMe 2) Ribose 3) NADH/NAD+ 4) ALC (or injected?) 5) glycine. +STIFFNESS: glutamine? 🧐 +SLEEP: Apparently no longer nec: specks of tryptophan, melatonin, levodopa. NAC?. A) Schüssler B) SUPPS C) MEDS Info:
A Homeopathy: Schüssler 2, 4, & 7 (need 3-6 months sez my acupressurist).
B SUPPS: Amino acids, Enzymes, Minerals, Vitamins
Amino acids: +B6 (as P5P), +Zn, +lithium orotate, more glutamine?, SAMe, glycine
1+2 Balancing GABA & glutamine: 1 Healthfully B6, 2 Perkins: Lithiumorotate, Zn, 3 Jockers strange doses!? 4 Levy: vitamin B6, as P-5'-P?
1.1 Healthfully: tyrosine, tryptophan, B6, high complex carb early, low protein late"]
1.2 Zn Cynthia Perkins:: Low (<50mg) carb paleo, high animal protein; (Mg) Zn <40mg, lithium orotate 125-200mg, glycine often excitatory; praps, or not: taurine, vit. B6, SAMe, NAC, theanine"]
NADH/NAD+ B3-coenzyme for energy & post exertional malaise.
Acetyl L-Carnitine (ALC)?: Drink as liquid… Or ask sleep lab psychiatrist to inject it? ALC’s helping Jemima feel alert, dose: 2x750mg, for no sfx keep under 3000. Needs to be Acetyl for the brain she sez. Question about kinds of pain | Page 2 | Fibromyalgia Forum.
D-Ribose: muscle fatigue, ATP; GI-sfx, so keep under 500mg; little evidence.
Zinc again as the bloods are in the middle? No, sfx.
Magnesium - glycinate yes or no? malate? “60mg” carbonate in the roseroot?
Vitamin B12 injections again?
Vitamin B6 as P5P?
Vitamin C ultra-high dose 7,5g, to be put in 250ml NaCl solution & injected…
C MEDS repeat?: NAC, levodopa, blood fat meds, blood pressure
NAC sleep -2400mg, better or worse (med)
(N-acetylcysteine) as I wrote here (better liposomal) as glutamate antagonist and to help sleep is mentioned on the last link (CFS/ME, with fibromites there too) suggest 1800 or 2400 mg, whilst more causes - again - diarrhea. The last person on that page also says “I elevated my glutamate / GABA levels with excess taurine” and very importantly “Once elevated Glutamate seems to be slow to rebalance” - got to watch that!
levodopa: repeat 50mg (100mg seemed to increase LBU),
Ezetimibe+atorvastatin if blood fats don’t stay down - smaller dose if at all?
Candesartan if blood pressure doesn’t stay down.
D) RELAX: A bit more Yoga Nidra on youtube.
E) MERIDIANS: real Chinese-trained acupuncture? Pardon Our Interruption
F) DOC Fibro-doc 200km from here?
G) REPEAT? Again in specks/diluted: Melatonin, 10% CBD oil, 5-HTP, ashwagandha.
- My colleague was again very thankful for GABA & tyrosine. Now she’s trying serrapeptase. She needs something for her eye muscles and sleep/waking. I’m thinking of more GABA, balanced with some theanine. Doesn’t tolerate magnesium (IBSD) unless specks sublingually which she feels is being taken up immediately and not affecting her gut… (Sublingual doesn’t stay there/suffice in my case.)
Abbreviations & explanations
Entries start with night meds & sleep, before triggers/symptoms & treatments, because the “night before” is vital. So Fri-day starts with Thursday night, the night before Friday.
Pain "7" = crying (/out) point; my 1 is others 2-3, and due to pacing/treatments
My wife says my 7 is other people’s 12. 1 is probably 2-3. Due to pacing, keeping work down to 25% (12h/wk) and all my treatments (acupressure, GABA) and physio self-treatments I manage to keep getting my pains & Ache down quickly. 3 usually means the Ache, not pains; these I address individually, often automatically and on the fly now, e.g. twist-stretching everything or something specific after getting up.
TIME DATA, e.g. ' = mins, h = hours, 18:10:40', date YYYY-MM-DD
’ = mins = minutes, ‘’ = secs = seconds, h is hours as time length, 3h is 3 hours long, 3:00 is 3am, 15:00 is 3pm. 18:10:40’ means 40 minutes, starting at 18:10, = 10 minutes past 6pm up to 10 to 7pm. The date is the logical digital standard: YYYY-MM-DD.
SLEEP: slp, w, lbu/LBU, RLS, p, i
slp = sleep; reasons for getting up: w = (a)wake, lbu/LBU: lower back unrest (‘RLS’?), p: pee, p2: pain 2 of 7 before peeing, i: ideas.
ACTIVITIES: TT, e.g. "5:1"
TT = table tennis, 5:1 = score, usually showing how well I’m feeling: energy, relaxedness & alertness if the first number is much higher than the second.
SUPPS: supplements (as opposed to herbs & meds). Fx: Effects. Sfx: Side effects.
SELF-TREATMENTS (about everything else...)
The self-treatments listed are only things that I’m spotlighting & rewarding myself for at the mo by counting them; much of what I do at night is self-treatment to get back to sleep or alleviate (1-2h/d), certain regular movements at daytime, like twist-stretching (30’), writing this blog is self-treatment (30’-60’/d), and the further fibro-work is an indirect form.
Self treatments are usually preventative or always have the same positive effect (e.g. cold showering improves Ache and sleep) - at least I do them for that - and I use “” to show what I’m doing to alleviate something and mark it off in the details “/” whether it works well enough for a time or doesn’t’, e.g. Ache cold fast shower “”
fw = fibro-work, meaning reading and writing this blog, the reference base, on 4 fibro-forums and researching fibro-stuff on the web.
AuTr = Autogenic Training (usually to actively get - back - to sleep, so counting it as sleep and AuTr…),
FAT Flash/fast autogenic training: immediate image of dreamy floating in space or liquid from jaw to legs.
cold/FCS = Flash Cold Shower (20’’-60’’) , I count it as 10’ tho. At night with ear plugs & all lights off.
breath-hold/WHM-B-H = Wim Hof Method Breath-Holding,
Neck 1 is stretching top right to bottom left, vice versa & sky/ground, neck “1+” is stretching far further diagonally downwards, neck 2 is pressing my head against my hand “without moving”, left right and front.
loins = loins/groin = stretching the ligaments there.
ex = exercises
HWB = Hot water bottle,
RR = bp = blood pressure (Riva Rocci), plus pulse. Used to be normal, plus sometimes white coat syndrome, went up since fibro, seems to have gone down again enough so I’ve not only stopped lercanidipine, but also candesartan and am checking RR regularly.
“V” for loins = lie on back, legs up and let legs fall to sides;
twist-stretching more for the loins
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