JayCS’s Fibro Blog

Freedom · February 21, 2022, 1:32am

Hi JayCS, I was just reading your thread. I was thinking about your white lips. The first thing that came to my my mind was vasoconstriction. Do any of your meds/ supps that cause your veins and or your arteries to constrict? Thus causing a decrease in blood supply. Second thought was pulmonary. Is there anything possibly decreasing the oxygen to your lips and or possibly other organs? Third thought was anemia. How is your hemoglobin? Fourth thought was…I’m sure JayCS has already thought about and researched questions 1, 2 and 3!

JayCS · February 21, 2022, 1:40pm

2022-02-21, Monday 15-10% -

Triggers & resulting Symptoms

SLEEP (click for details): 8h25, up 5x (35') ✅, but ➔ Feeling 70% well, Ache 3 of 7 ❌, getting up: 80%/3 🧐. Bit of unrest, maybe some extra back exercises nec?

cold shower p0 Sleep 22:30-
23:55 5’ 70%/3 p0-1 st3 drink fw2’ air A4 HWB
1:17 15’ 70%/3 p0 st3 drink fw2’ B1
3:12 5’ 70%/3 p0 st3 drink fw2’ creamed dry nostrils:.
4:20 5’ back ex
5:23 5’ 70%/3 p0 st3 drink fw1’ nostril a bit. urine: 1l 9:30-21:30, 1l 21:30-5:30!
burning & dry mouth
20’’ 2nd shower cold and/or warm (nostrils)! HWB! Chatter: GABA-speck? SUPPS & AIR 1st!
7:00: Heating on!
-7:30
Sum: 1h30+7h30-(5+15+5+5+5=)35’ = 9h - 35’ = 8h25, up 5x (35’)

ACTIVITIES (aiming for 40% - well 20% - physical activity of pre-fibro) ➔ ACHE: Start quite OK, but from midday on ➔ 70%/3, so put off an appointment for tomorrow.
"HOW DO I LOOK?" Pale as ever.
ACTIONS ➔ PAINS:

Treatments

Docs:

Factor VIII up: MCAS and CVD? Cardiologist. Hyperlipidemia from MCAS?? White Lips?
N-methylhistamine to doc. It’ll probably take a while. If not: Prostaglandin D2 or 2,3-Dinor-11beta-prostaglandin F2 alpha or leukotriene E4.
(re-check my old Anti-P note.)

WHB (3 rounds) 14:45 3x1’30’’
RIBOSE: 16:30 2g

SELF-PHYSIO (click for details): 1h28... ✅. Combine. List-prioritize: next.

cream fc/ey/hd/ft 1x1’, facetime 2x1’, airing 4x2’, cold shower (10’), breath exercises 3’, teeth 2x2’, HWB 3’, hunchback-pillow 15’, Timing, Y. Nidra 5’, back 8’, left foot on/under right knee/cross-legged 16’, breath-hold 11’, horse stance 1’, aloe vera 1’,
Combine: next?

palpate 1’, belly 3’, hair/nails 3’, neck 1+ 2’, neck 2 4’, plantar/calf stretch 5’, twist-stretch 5’, loins 5’, yoga/stretching 5’, jolt-jump 1’, marionette-hang 1’, workout 7’, hand-exerciser 3’, massage gun 20’, shaking dance 1’, acupressure 6’, bent leg fall 1’, calendula/tea tree x1’,

Supps (Feb 12th: 31): Supp costs: ~344€/m. CHANGE: CoQ10/ubiquinone <150mg/d better for lp(a), no high dose again. Look for better honokiol, rhodiola AND PASSIFLORA! Starting arginine soon for lipids - didn't find time again.... Tried capsule machine for carnitine, too, ages cos it went pretty wrong. RIBOSE!? PLANNED/TAKEN TODAY: click for details:

ZERO: Arg, B3/Nia, Mum, (Nd), Rib, Pe, Ps, Se, 0 Sr 0x31125k.
(REGULAR as of Feb 12th (31, Need new pine bark, Zn etc., still haven’t started Ar): ALA .2g, B2 2*.1g, B12 5mg/2m, C 12.5g, Cr 31g, DAO before meals, D3 1/w, EGCG 50%.5g (praps also contains L-theanine?) EllagicA .2g (+43mg vit. C), Fev/MSM .4g (+.2g MSM) Ga: 4*.6g+.4g=~2.8g, 3Gi, Glu:~0.8g, Hon 2%.4g=8mg, Luteolin .2g, Mg (Gly) 0250mg, Mg (Mal) 0245mg, Ω3, Nc 1.5g, P5 27mg, Pf4, pine bark 2*.5g, Pq 1, Q10 (ubq) 1*.1g/d, Qc 4*.5g/d, Rs 250%.4g, Ro 2*.2g(+B1 1.4mg (& MgCO3 60mg)), Sa .1g, Sily 80%*.5g (+83mg L-cholin) , The.2g (+.15g polyphenols), Zn 1)
What-when-details: Updated Feb 15th (before: see the reference post)
/20:30 A1/2 “19:00” PF#1 Cr#1 0mal#1+2 P5P/2Rho(0Se) PQQ Ω3 & Qc. Meal: DAO.
/22:05 A3 “21:00” PF#2 .6 GABA&.4glu#1 & Lut (slp!) & Qc +0NAC!
/21:30 Chamomile tea.
/23:55 A4 “23:00” PF#3 .6 GABA&.3glu#2 & Ellagic acid + Rupafin
/01.15 B1 “01:00” PF#4
Heating on! Warm shower?
/07:35 B2 “07:00” +ALA+2x pine bark, (teeth)
/07:35 B3 “07:00” (-30’) Q10#1 Qc#1 Rs#1 SAM-e
/07:35 B4 “07:00” EGCg + Fev/MSM + Sily
/11:20 C1/2 “MEAL!” 2Cr#2 .6GAB#3, (C2:) .1gB2, gink#1, Zn 1xHon! DAO?
/11:20 C3 “MEAL” .5gC#1 2The2 (0NAC)
/13:10 C4 “11:00” (+2h/) gi#2 gly#1. Nd#? & Ellagic acid
1 DAO (D1) “13:00” 0psyllium
/14:35 D2/3 “15:00” .5gC#2,Cr#3,!.6GA#4,gink#3,0gly#3+4, 0NAC#5 DRINK!
/17:20 D4 “17:00” (“meal/acids+2h”) Qc#4.Rs#2, Nd#?
eve:
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; next: Mar 10th.)

The day's 16 compartments (10', plus 5' making capsules)

Arg: Capsules? (0)Pf: A1+3+4+B1, B2:A1+C2 C:C3+D2 3x2Cr: A1+C1+D2, Ell: A4,C4. Ga: A3,A4,C1,D2, Glu: A3,a4,0D3, Gi: C2,C4,D3 0x2Gly0x2Mal: 0C4+0D3,0A2 Qc: A2.A3.B3.D4 Rs:B3,D4 SINGLE: A2:P5/Ro A3: Luteolin A4: Rup! B2: ALA+0x2 pine B3:Sa+Q1 (->ubiquinone <150mg/d!) B4: EGCG&Fev/MSM&Sily C2:0Zn&Hon C3:2Th (A2:Ω/Pq:meal) DAO before every meal.
(A2:0Se), (B2:0mu), (5NADH if nec.) (D1:0Pe). (0 Nia) (0Nc: A3, B1,C1,C3,D2) (0Sr: B1,C4,D4)

Development
Jab-sfx/MCAS/antihistamine:
Burning dry mouth at 5, nostril a bit at 7. The antihistamine dries out my nostrils a bit, so I have to cream them.

’Research’ today:
Jonathan Edwards writes about MCAS: “It is a quack diagnosis because it doesn’t actually mean anything. Normal people have mast cells and they get activated and we know what that looks like. There is no pathological ‘syndrome’ that is different from that and which is not already known under asthma or urticaria or mastocytosis or what has been in the textbooks for decades. The guy who tries to sell this idea, Lawrence Afrin, I thought might be some bright new immunology whizkid with something special to say. But from his videos he comes across as another ageing muddled empire builder who has no real idea what he is talking about.”
So he is a UK doc, professor & researcher, arguing on an evidence based ME/CFS forum in 2020 that MCAS as diagnosis seems pretty much Afrin’s one man show and that Afrin’s self-presentation, arguments and claims how many other diseases it can explain rather convince him of the opposite. Now in 2022, Afrin has published a paper expressing his suspicion that this may be true after HPV vaccines, see also his website and article on long COVID (2020). I admit I’m of/in two minds about this. It shocked me a bit, but I also had similar thoughts about these aspects when I saw Afrin’s webpage and also seeing a short interview with Gerhard Molderings. I’m very used to seeing docs and scientists say they are sure of things that aren’t at all certain - I have a very scientific and critical mind, however much I experiment with unproven stuff. However there is a case for MCAS becoming more and more accepted aside from Afrin’s and Molderings’ studies due to there being ICD-10-criteria (if not WHO) and a wikipedia article which isn’t critical in any way, which is unusual. What Edwards would accept more easily, like he does for ME/CFS, is a well defined set of symptoms, and would separate that from conjecture about causes (which in the case of mast cells Edwards argues have long been proven for certain diagnoses).

After all that I’d argue that I see a lot of vagueness about the diagnosis and treatments and I see the people as a bit too self-convinced, so I’m not taking it too seriously until more research proves it better, but as it’s all helping me and nothing else is, I’m also annoyed by people like Edwards doing the same by doing the opposite (i.e. be too self-convinced about other researchers seeming too self-convinced). It’s a good working hypothesis.

A diagnosis may be important for disability, insurance or getting treatments, but as long as it doesn’t make a difference for that, as it seems in my case, a vague diagnosis is enough for me.
Same as the fibro diagnosis, actually - just a pointer to find what treatments to look at generally, whilst I focus on each symptom singly. As long as research can’t get closer…

Lessons in self-care #230 Put off tomorrow’s appointment. No hurry.
Reasons to be cheerful #237 Still got on with a bit of stuff, didn’t miss table tennis too much.

1st Jab-sfx-summary, last edit: Feb 7th.
My blog references, e.g. abbreviations, supp chart/overview
My “How to symptom track & trigger hunt”
Next up…: Summaries & finishing off treatment list…

JayCS · February 21, 2022, 2:48pm

Hi Freedom, thanks very much for focusing on this one of my recent questions!
Reminder: My wife uses my lip colour to decide how well I look & I wanted that to guide me when I may be overdoing it. - However I’ve realized they are usually pale, white or even whitish-blue, whilst they are sometimes a little reddish altho I’m in pain already. I’ve always had a pale complexion so it’s not completely out of the ordinary, but my wife knows what she’s doing, it’s obviously got worse.
So having noticed it as a sign, I’m trying to understand it better.
And I had tried to ‘research’ it, but not satisfactorily.
Vessels: Just made sure: 4 of the supps I take at the moment, and several I have taken, dilate, increase blood flow, decrease pressure (which works), and my antihistamine does that now too, and none of them do the opposite. Breathing exercises do it too, whilst a minute of cold showering constricts them which serves only to dilate them even more.
Oxygen: This is the one I’m not sure of. My lung function and cell actions seem normal. Pneumologists/pulmonologists are about the only type of doc (bar immunologist and gyn. ) which I haven’t been to yet. But sleep lab and heart exams didn’t show any problems. I haven’t got an oximeter at home, but whenever it’s measured, it’s fine. My vague idea has always been it’s on a cellular level, e.g. mitochondrial function, but that’s hard to prove. I’ll be asking my GP and cardiologist tho: But have you got another idea in this direction?
Blood: My hemoglobin is normal, my iron too, and I have more than enough B12 (I booster it skyhigh every few months). My glucose is too high rather than too low. However regarding iron and blood vessels a strange symptom: hundreds of orange spots on my legs and feet, which docs have argued about, but the consensus is mainly iron deposits due to vascular problems.
So more circulatory? Again something for my cardiologist…

JayCS · February 21, 2022, 7:02pm

2022-02-22, Tuesday 10%-5% - hard to move: stiff, & sinuses too: jab#2 on day 12 now in full effect!

Triggers & resulting Symptoms

SLEEP (click for details): 9h35, up 3x (15') ✅, but ➔ Feeling 80% well, Ache 2 of 7 🧐, getting up: 80%/2 🧐, very ?overdeep sleep, similar to the jab#1-sfx

cold shower p0 Sleep 22:30-
1:15 5’ 80%/2 p1 st3 drink fw2’ Sore throat. Air. Dry nostrils. Left nostril congested. air
3:24 5’ 80%/2 p0 st2 drink fw2’ sore throat, left nostril like a cold. air
6:15 5’ 80%/2 p0 st3 drink fw2’ same, but right (alternating several times), slightly nauseous. air
7:00: Heating on!
-8:20
Sum: 1h30+8h20-(3x5’=)15’ = 9h50-15’ = 9h35, up 3x (15’)

ACTIVITIES (aiming for 40% - well 20% - physical activity of pre-fibro) ➔ ACHE: Resting, hardly doing anything ➔ 70%/3, 30’ shop ➔ 60%/3-4 for a time, then back “up”.
(e.g. cycle , TT , meetings/social , mask , kids , work ➔ ?80%/2) ?
"HOW DO I LOOK?" Bad today 5x
ACTIONS ➔ PAINS: Few quick ones, got 'em down immediately.

Treatments

Docs:

Factor VIII up: MCAS and CVD? Cardiologist. Hyperlipidemia from MCAS?? White Lips?
N-methylhistamine? If not: Prostaglandin D2 or 2,3-Dinor-11beta-prostaglandin F2 alpha or Leukotriene-E4.
(re-check my old Anti-P note.)

WHB (3 rounds) 16:20 1’ 1’30’’ 1’25’’
RIBOSE:

SELF-PHYSIO (click for details): 1h35 ✅. Combine. List-prioritize: next.

facetime 6x1’, airing 4x2’, cold shower (10’), cream fc/ey/hd/ft x1’, teeth 2x2’, HWB 3’, breath exercises 4’, Timing, hunchback-pillow 15’, palpate 1’, belly 3’, back 12’, breath-hold 11’, left foot on/under right knee/cross-legged 10’, plantar/calf stretch 2’, massage gun 3’,
Combine: next? horse stance 1’.

calendula/tea tree x1’, Y. Nidra 20’, hair/nails 3’, neck 1+ 2’, neck 2 4’, twist-stretch 5’, loins 5’, yoga/stretching 5’, jolt-jump 1’, marionette-hang 1’, workout 7’, hand-exerciser 3’, shaking dance 1’, acupressure 6’, aloe vera 1’, bent leg fall 1’,

Supps (Feb 12th: 31): Supp costs: ~344€/m. CHANGE: CoQ10/ubiquinone <150mg/d better for lp(a). Look for better honokiol, rhodiola AND PASSIFLORA! Starting arginine soon for lipids. RIBOSE!? PLANNED/TAKEN TODAY: click for details:

ZERO: Arg, B3/Nia, Mum, (Nd), Rib, Pe, Ps, Se, 0 Sr 0x31125k.
(REGULAR as of Feb 12th (31). Ordered pine bark, Cu, Zn, passionflower & rhodiola. Ar 0, cos maybe bad for lp(a)!): ALA .2g, B2 2*.1g, B12 5mg/2m, C 12.5g, Cr 31g, DAO before meals, D3 1/w, EGCG 50%.5g (praps also contains L-theanine?) EllagicA .2g (+43mg vit. C), Fev/MSM .4g (+.2g MSM) Ga: 4*.6g+.4g=~2.8g, 3Gi, Glu:~0.8g, Hon 2%.4g=8mg, Luteolin .2g, Mg (Gly) 0250mg, Mg (Mal) 0245mg, Ω3, Nc 1.5g, P5 27mg, Pf4, pine bark 2*.5g, Pq 1, Q10 (ubq) 1*.1g/d, Qc 4*.5g/d, Rs 250%.4g, Ro 2*.2g(+B1 1.4mg (& MgCO3 60mg)), Sa .1g, Sily 80%*.5g (+83mg L-cholin) , The.2g (+.15g polyphenols), Zn 1)
What-when-details: Updated Feb 15th (before: see the reference post)
/19:45 A1/2 “19:00” PF#1 Cr#1 0mal#1+2 P5P/2Rho(0Se) PQQ Ω3 & Qc. Meal: DAO.
/22:00 A3 “21:00” PF#2 .6 GABA&.4glu#1 & Lut (slp!) & Qc +0NAC!
Chamomile tea.
/01:15 A4 “23:00” PF#3 .6 GABA&.3glu#2 & Ellagic acid + Rupafin
/03:25 B1 “01:00” PF#4
Heating on! Warm shower?
/08:30 B2 “07:00” +ALA+2x pine bark, (teeth)
/08:30 B3 “07:00” (-30’) Q10#1 Qc#1 Rs#1 SAM-e
/08:30 B4 “07:00” EGCg + Fev/MSM + Sily
/10:10 C1/2 “MEAL!” 2Cr#2 .6GAB#3, (C2:) .1gB2, gink#1, Zn 1xHon! DAO?
/10:10 C3 “MEAL” .5gC#1 2The2 (0NAC)
/14:15 C4 “11:00” (+2h/) gi#2 gly#1. Nd#? & Ellagic acid
1 DAO (D1) “13:00” 0psyllium
/15:50 D2/3 “15:00” .5gC#2,Cr#3,!.6GA#4,gink#3,0gly#3+4, 0NAC#5 DRINK!
/18:50 D4 “17:00” (“meal/acids+2h”) Qc#4.Rs#2, Nd#?
eve:
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; next: Mar 10th.)

The day's 16 compartments (10', plus 5' making capsules)

Arg: 0! (0)Pf: A1+3+4+B1, B2:A1+C2 C:C3+D2 3x2Cr: A1+C1+D2, Ell: A4,C4. Ga: A3,A4,C1,D2, Glu: A3,a4,0D3, Gi: C2,C4,D3 0x2Gly0x2Mal: 0C4+0D3,0A2 Qc: A2.A3.B3.D4 Rs:B3,D4 SINGLE: A2:P5/Ro A3: Luteolin A4: Rup! B2: ALA+0x2 pine B3:Sa+Q1 (->ubiquinone <150mg/d!) B4: EGCG&Fev/MSM&Sily C2:0Zn&Hon C3:2Th (A2:Ω/Pq:meal) DAO before every meal.
(A2:0Se), (B2:0mu), (5NADH if nec.) (D1:0Pe). (0 Nia) (0Nc: A3, B1,C1,C3,D2) (0Sr: B1,C4,D4)

Development
Jab-sfx/MCAS/antihistamine:
After getting up stiff and eye/head pressure at 8:30, sinuses building up at 9:55 (need GABA/food)
11:40 Still very stiff, still sinuses despite eating. Remembered now that this overdeep sleep was the same after jab#1.
If it were food: I ate a little green beans and tiny slids of the young cheese, both may’ve caused a flare 2 days ago, but with 5x the amount. So if I don’t repeat it today, will it get better again? That’d be #2.
Floored most of the day.

’Research’ today:
A new study was published today on JAMA that there is only a low risk for quick allergic reaction to a 2nd mRNA jab after one on the first. No help for me there…
Also today a French editorial was published on JAMA about taking statins: “The message for clinicians is, therefore, that the level of LDL-C should be lowered below 70 mg/dL by any means after an ischemic stroke in patients with evidence of atherosclerosis. For those [after an ischemic stroke] without atherosclerosis, the benefit of lowering the level fo LDL-C below 70 mg/dL vs between 90 and 110 mg/dL is much smaller, and an individualized evaluation of the risk to benefit ratio, bearing in mind a small increase in risks of intracerebral hemorrhage and type 2 diabetes, is needed.”
Also today a similar Chinese meta-review was published about statins concluding amongst less relevant things for me "For patients without evidence of atherosclerosis, intensive LDL-C–lowering statin-based therapies might not be needed in most situations considering the uncertain benefits of secondary stroke prevention and the increased risk of hemorrhagic stroke associated with intensive LDL-C lowering.

Lessons in self-care #231 My wife tries to help, but many things are better to do alone.
Reasons to be cheerful #238 Considering I’m basically floored, I’m doing quite well in between.

1st Jab-sfx-summary, last edit: Feb 7th.
My blog references, e.g. abbreviations, supp chart/overview
My “How to symptom track & trigger hunt”
Next up…: Summaries & finishing off treatment list…

JayCS · February 23, 2022, 11:37am

2022-02-23, Wednesday 10% - Sacrificed self-discipline for a major bit of paperwork - worth it. So were the really bad days cheese & beans after all?

14:15 Managed 2 games of , my mate picked up every ball I cdn’t hit, but I landed one brilliant back-hand smash-hit .
all the jab#1 symptoms returning, bit by bit, like sore throat, abdomen pain, sleep…! Mad enough to try a bit of altho I can hardly move.

Triggers & resulting Symptoms

SLEEP (click for details): 8h20, up 2x (35') ✅, and ➔ Feeling 80% well, Ache 2 of 7 🧐, getting up: 80%/3 ❌

cold shower p0 Sleep 23:15- After laughing to a Big Bang Theory episode. HWB. breath ex.
1:45 18’ 80%/2 p0 st1 drink fw2’ sore throat (now doesn’t that ring a bell!! - like jab#1) - calendula ess. air
4:47 17’ 80%/2 p0 st1 drink fw2’ sore throat, calendula ess. pain in gall bladder area (top right abdomen) - HWB. air.
In between?
7:00: Heating on!
-8:10 45+8h10-(18+17=)35’ = 8h55-35’ = 8h20, up 2x (35’)
Sum:

ACTIVITIES (aiming for 40% - well 20% - physical activity of pre-fibro) ➔ ACHE: Resting ➔ 70/80%/3, altho praps it’s more an Achey fatigue than the real painful fibro-Ache(?). TT
"HOW DO I LOOK?" Energy, but tired & weary & white as a sheet
ACTIONS ➔ PAINS: Occasional stabs → massage gun at most.

Treatments

Docs:

Factor VIII up: MCAS and CVD? Cardiologist. Hyperlipidemia from MCAS?? White Lips?
N-methylhistamine? If not: Prostaglandin D2 or 2,3-Dinor-11beta-prostaglandin F2 alpha or Leukotriene-E4.
(re-check my old Anti-P note.)

WHB (3 rounds)
RIBOSE: 5mg before

SELF-PHYSIO (click for details): 65'... ✅. Combine. List-prioritize: next.

Supps (Feb 12th: 31): Supp costs: ~344€/m. CHANGE: CoQ10/ubiquinone <150mg/d better for lp(a). Waiting for ordered pine bark, Cu, Zn, passionflower & rhodiola. Look for better honokiol. arginine 0 after all, since praps bad for lp(a)! RIBOSE!? PLANNED/TAKEN TODAY: click for details:

ZERO: Arg, B3/Nia, Mum, (Nd), Rib, Pe, Ps, Se, Sr 31125k.
(REGULAR as of Feb 12th (31 Cu, pine, pf, rho, Zn coming): ALA .2g, B2 2*.1g, B12 5mg/2m, C 12.5g, Cr 31g, DAO before meals, D3 1/w, EGCG 50%.5g (praps also contains L-theanine?) EllagicA .2g (+43mg vit. C), Fev/MSM .4g (+.2g MSM) Ga: 4*.6g+.4g=~2.8g, 3Gi, Glu:~0.8g, Hon 2%.4g=8mg, Luteolin .2g, Mg (Gly) 0250mg, Mg (Mal) 0245mg, Ω3, Nc 1.5g, P5 27mg, Pf4, pine bark 2*.5g, Pq 1, Q10 (ubq) 1*.1g/d, Qc 4*.5g/d, Rs 250%.4g, Ro 2*.2g(+B1 1.4mg (& MgCO3 60mg)), Sa .1g, Sily 80%*.5g (+83mg L-cholin) , The.2g (+.15g polyphenols), Zn 1)
What-when-details: Updated Feb 15th (before: see the reference post)
/19:45 A1/2 “19:00” PF#1 Cr#1 0mal#1+2 P5P/2Rho(0Se) PQQ Ω3 & Qc. Meal: DAO.
/22:05 A3 “21:00” PF#2 .6 GABA&.4glu#1 & Lut (slp!) & Qc +0NAC!
Chamomile tea.
/23:05 A4 “23:00” PF#3 .6 GABA&.3glu#2 & Ellagic acid + Rupafin
/01:45 B1 “01:00” PF#4
Heating on! Warm shower?
/08:30 B2 “07:00” +ALA+2x pine bark, (teeth)
/08:30 B3 “07:00” (-30’) Q10#1 Qc#1 Rs#1 SAM-e
/08:30 B4 “07:00” EGCg + Fev/MSM + Sily
/09:55 C1/2 “MEAL!” 2Cr#2 .6GAB#3, (C2:) .1gB2, gink#1, Zn 1xHon! DAO?
/09:55 C3 “MEAL” .5gC#1 2The2 (0NAC)
/11:55 C4 “11:00” (+2h/) gi#2 gly#1. Nd#? & Ellagic acid
0 DAO (D1) “13:00” 0psyllium
/17:20 D2/3 “15:00” .5gC#2,Cr#3,!.6GA#4,gink#3,0gly#3+4, 0NAC#5 DRINK!
/19:20 D4 “17:00” (“meal/acids+2h”) Qc#4.Rs#2, Nd#?
eve:
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; next: Mar 10th.)

The day's 16 compartments (10', plus 5' making capsules)

Arg: Capsules? (0)Pf: A1+3+4+B1, B2:A1+C2 C:C3+D2 3x2Cr: A1+C1+D2, Ell: A4,C4. Ga: A3,A4,C1,D2, Glu: A3,a4,0D3, Gi: C2,C4,D3 0x2Gly0x2Mal: 0C4+0D3,0A2 Qc: A2.A3.B3.D4 Rs:B3,D4 SINGLE: A2:P5/Ro A3: Luteolin A4: Rup! B2: ALA+0x2 pine B3:Sa+Q1 (->ubiquinone <150mg/d!) B4: EGCG&Fev/MSM&Sily C2:0Zn&Hon C3:2Th (A2:Ω/Pq:meal) DAO before every meal.
(A2:0Se), (B2:0mu), (5NADH if nec.) (D1:0Pe). (0 Nia) (0Nc: A3, B1,C1,C3,D2) (0Sr: B1,C4,D4)

Development
Jab-sfx/MCAS/antihistamine:
Funny how symptoms like the severe sore throat at night after a while ring a bell!! - just like jab#1. Same with the deeper leaden sleep… Not much “missing” - of the 25+ these aren’t as bad as last time up to now: #10 cold #12 nausea #14 feverishness & the focal seizures directly after jab#1 (not sure about the rise in temperature, as mine seems to rise >1°C every day from 35,3 to 36,6°C, and that may then be normal for me, altho it seems more than usual).
Hardly any histaminey problems, without DAO & taking supps a bit late, but no experiments.

’Research’ today: None.

Lessons in self-care #231 Hmm, slogging my way thru paperwork & a bit of table tennis is better than self-discipline if I keep histamine down or what is today’s lesson
Reasons to be cheerful #238 Fun playing and landing a back-hand smash.

1st Jab-sfx-summary, last edit: Feb 7th.
My blog references, e.g. abbreviations, supp chart/overview
My “How to symptom track & trigger hunt”
Next up…: Summaries & finishing off treatment list…

JayCS · February 24, 2022, 2:10pm

2022-02-24, Thursday 10% - despite a bit of cheese

v1: Deep night, ‘easy’ phone call caused big flare of pain & sinuses. Breath-holding helped. Research on mast cells as connection between FM & MCAS. v2: 3rd cheese trial… seems OK today…

Triggers & resulting Symptoms

SLEEP (click for details): 8h31, up 4x (24') ✅, ➔ Feeling 80% well, Ache 2 of 7 🧐, getting up: 80%/2 ❌. Awake and asleep at the same time from 7 on. But more like pre-jab#2, (the last hour light sleep).

cold shower p0 Sleep 23:15-
0:25 4’ 80%/2 p0 st1 drink fw2’ air sore throat → calendula, zombified sleep.
3:13 4’ 80%/2 p0 st1 drink fw1’ air slight sore throat, zombified sleep.
5:55 7’ 80%/2 p0 st1 drink fw1’ air very slight sore throat, zombified sleep. HWB
7:26 9’ 80%/2 p0 st1 drink fw1’ kind of cortisoly awake, but dead tired. Can’t take GABA cos I need supps without amino acids first. stomach burn → almond milk. What about some magnesium, as I’m not taking that atm? (but which?) Or shall I just get up altho I think another hour’d do me good?
20’’ 2nd shower cold and/or warm (nostrils)! HWB! Chatter: GABA-speck? SUPPS & AIR 1st!
7:00: Heating on!
-8:10
Sum: 45+8h10-(4+4+7+9=)24’ = 8h55 - 24’ = 8h31, up 4x (24’)

ACTIVITIES (aiming for 40% - well 20% - physical activity of pre-fibro) ➔ ACHE: Back exercises properly and with self-discipline, but very slowly, and not much “strength” for movement, despite a sort of ‘motor’, so perpetual slow movement. ➔ 70%/3. Phone call for a friend caused pain & sinuses ➔ 60%/4, so now rest, music, breath-holding ➔ 70%/3
(e.g. cycle , TT , meetings/social , mask , kids , work ➔ ?80%/2) ?
"HOW DO I LOOK?" 8:25 White & tired 10:20/:25 Same
ACTIONS ➔ PAINS: GI: 2 esophagus blocks the last 2 days. I’m often more sensitive to any pressure tho, usually I can prevent it by stopping eating and drinking a bit of fizz.
(e.g. lie, stand, loins, sit, arms up, neck, stiff, walk, cycle, 0xp1-2, GI, talk, mask.)

Treatments

Docs:

Factor VIII up: MCAS and CVD? Cardiologist. Hyperlipidemia from MCAS?? White Lips?
N-methylhistamine check to increase “hard facts” for MCAS. If not: Prostaglandin D2 or 2,3-Dinor-11beta-prostaglandin F2 alpha or Leukotriene-E4.
I’ve decided I don’t need to check my old “Anti-P note” - I’d copied it and that should be enough.

WHB (3 rounds) 11:10 1’30’’ 1’40’’ 1’30’’ 1’50’
RIBOSE: ?

SELF-PHYSIO (click for details): 1h44 ✅ (enoiugh). Combine. List-prioritize: next. Been doing breathing exercises at night to get my nostrils freer without noting them the past 3-4 days.

Supps (Feb 12th: 31): Supp costs: ~344€/m. CHANGE: CoQ10/ubiquinone <150mg/d better for lp(a). Waiting for ordered pine bark, Cu, Zn, passionflower & rhodiola. Look for better honokiol. RIBOSE!? PLANNED/TAKEN TODAY: click for details:

ZERO: Arg, B3/Nia, Mum, (Nd), Rib, Pe, Ps, Se, Sr 31125k.
(REGULAR as of Feb 12th (31 Cu, pine, pf, rho, Zn coming): ALA .2g, B2 2*.1g, B12 5mg/2m, C 12.5g, Cr 31g, DAO before meals, D3 1/w, EGCG 50%.5g (praps also contains L-theanine?) EllagicA .2g (+43mg vit. C), Fev/MSM .4g (+.2g MSM) Ga: 4*.6g+.4g=~2.8g, 3Gi, Glu:~0.8g, Hon 2%.4g=8mg, Luteolin .2g, Mg (Gly) 0250mg, Mg (Mal) 0245mg, Ω3, Nc 1.5g, P5 27mg, Pf4, pine bark 2*.5g, Pq 1, Q10 (ubq) 1*.1g/d, Qc 4*.5g/d, Rs 250%.4g, Ro 2*.2g(+B1 1.4mg (& MgCO3 60mg)), Sa .1g, Sily 80%*.5g (+83mg L-cholin) , The.2g (+.15g polyphenols), Zn 1)
What-when-details: Updated Feb 15th (before: see the reference post)
/21:30! A1/2 “19:00” PF#1 Cr#1 0mal#1+2 P5P/2Rho(0Se) PQQ Ω3 & Qc. Meal: DAO.
/22:10 A3 “21:00” PF#2 .6 GABA&.4glu#1 & Lut (slp!) & Qc +0NAC!
Chamomile tea.
/23:00 A4 “23:00” PF#3 .6 GABA&.3glu#2 & Ellagic acid + Rupafin
/03:15 B1 “01:00” PF#4
Heating on! Warm shower?
/07:30 B2 “07:00” +ALA+2x pine bark, (teeth)
/07:30 B3 “07:00” (-30’) Q10#1 Qc#1 Rs#1 SAM-e
/07:30 B4 “07:00” EGCg + Fev/MSM + Sily
/09:25 C1/2 “MEAL!” 2Cr#2 .6GAB#3, (C2:) .1gB2, gink#1, Zn 1xHon! DAO?
/09:25 C3 “MEAL” .5gC#1 2The2 (0NAC) -10:10
/12:30 C4 “11:00” (+2h/) gi#2 gly#1. Nd#? & Ellagic acid
1 DAO (D1) “13:00” 0psyllium cheese at 15:40
/15:50 D2/3 “15:00” .5gC#2,Cr#3,!.6GA#4,gink#3,0gly#3+4, 0NAC#5 DRINK!
/17:50 D4 “17:00” (“meal/acids+2h”) Qc#4.Rs#2, Nd#?
eve:
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; next: Mar 10th.)

The day's 16 compartments (10', plus 5' making capsules)

Pf: A1+3+4+B1, B2:A1+C2 C:C3+D2 3x2Cr: A1+C1+D2, Ell: A4,C4. Ga: A3,A4,C1,D2, Glu: A3,a4,0D3, Gi: C2,C4,D3 0x2Gly0x2Mal: 0C4+0D3,0A2 Qc: A2.A3.B3.D4 Rs:B3,D4 SINGLE: A2:P5/Ro A3: Luteolin A4: Rup! B2: ALA+0x2 pine B3:Sa+Q1 (->ubiquinone <150mg/d!) B4: EGCG&Fev/MSM&Sily C2:0Zn&Hon C3:2Th (A2:Ω/Pq:meal) DAO before every meal.
(A2:0Se), (B2:0mu), (5NADH if nec.) (D1:0Pe). (0 Nia) (0Nc: A3, B1,C1,C3,D2) (0Sr: B1,C4,D4)

Development
Jab-sfx/MCAS/antihistamine:
Again sore throat like post-jab#1, sleep also, however not as long, awake and asleep from 7 on, more like pre-jab#2. Nausea still only occasionally, not much problems with cold/thermostat. 10:00 Phone call for a friend caused pain & sinuses. 11:00 burning itchy skin.
15:00 After two “better” days (10% instead of 5-10%) why not try cheese a 3rd time?!

’Research’ today:

Mast cells as connection between FM and MCAS and long-COVID:
Afrin, one of the docs researching & propagating the MCAS-diagnosis, believes long-COVID may have MCAS as a cause. I’m hesitant to believe everything he & the others say, as diagnosis & treatments are a bit complicated and vague (or rather pseudo-exact), but as long as no one can offer me anything better and it’s helping, I don’t care and am using it as a working hypothesis.

Fibro is said to be a common co-morbidity or ‘symptom’ of MCAS.

The immune system / mast cells (a type of white blood cell) would be a connection between the “autoimmune” hypothesis as one of the possible causes of fibro and the MCAS theory. Especially as mast cells have been shown to be increased 3-fold in the skin of people with fibromyalgia (which may however be an unimportant result of it, not a cause).

A researcher in Boston USA, Theoharides, is regularly looking into and touting the supp luteolin as a mast cell stabilizer for both FM and MCAS, e.g. 2019, for instance for brain fog in MCAS, FM and other conditions. (I’m actually using luteolin myself - pretty expensive tho.)

As Banfi et al 2020 explain, the nervous system and inflammation is definitely connected, but we don’t know how: So the central sensitization idea and the (auto)immune one may not be as far apart as it may seem?
Mastrangelo et al 2018 on mast cells & cytokines Low-grade chronic inflammation mediated by mast cells in fibromyalgia: role of IL-37 - PubMed
Theoharides et al 2019 on trying to inhibit mast cells in FM Mast Cells, Neuroinflammation and Pain in Fibromyalgia Syndrome - PubMed
Conti et al 2020 mast cells/cytokines Impact of mast cells in fibromyalgia and low-grade chronic inflammation: Can IL-37 play a role? - PubMed
Banfi et al 2020 on T cells in FM T Cell Subpopulations in the Physiopathology of Fibromyalgia: Evidence and Perspectives - PubMed
Theoharides et al 2021 on luteolin for long-COVID brain fog Long-COVID syndrome-associated brain fog and chemofog: Luteolin to the rescue - PubMed

New post on why and how to tell people how we feel here.

Lessons in self-care #232 Did quite a bit today, but kept everything to 30 mins with a lot of breaks, it was so natural that it didn’t seem “disabled”.
Reasons to be cheerful #239 A bit of cheese was OK today, so the flares were either the beans or “just” the jab.

1st Jab-sfx-summary, last edit: Feb 7th.
My blog references, e.g. abbreviations, supp chart/overview
My “How to symptom track & trigger hunt”
Next up…: Summaries & finishing off treatment list…

JayCS · February 25, 2022, 1:45pm

2022-02-25, Friday 5% - food triggered? PEA for FM & MCAS & lipids & bp & IBS.

Activity down again: cos of 1) slivers of cheese or 2) 3 slices of spelt bread, 3) too much (100g) raisins or 4) (200ml) soy yoghurt
Wondering if palmitoylethanolamide (PEA) might help get my mast cells under control. (Only slight evidence, but it also seems to decrease triglycerides, blood pressure and IBS, so I’ve ordered it.)

Triggers & resulting Symptoms

SLEEP (click for details): 8h45, up 3x (15') ✅, and ➔ Feeling 90% well, Ache 1 of 7 ✅, getting up: 80%/2 🧐. Taking a 4th 350mg passiflora at 6 was possibly too late, didn't help much either, so next I'll try taking whichever last one at 4.

cold shower p0 Sleep 23:00-
3:05! 5’ 90%/1 p0 st1 drink fw2’ air Slight skin itch-turnburn
3:25 5’ 90%/1 p0 st1 drink fw2’ LBU: phoenix, cold wash, HWB.
6:15 5’ 90%/1 p0 st1 drink fw1’ air
20’’ 2nd shower cold and/or warm (nostrils)! HWB! Chatter: GABA-speck? SUPPS & AIR 1st!
7:00: Heating on!
-8:00
Sum: 1h+8h-(5+5+5=)15’ = 8h45, up 3x (15’)

ACTIVITIES (aiming for 40% - well 20% - physical activity of pre-fibro) ➔ ACHE: Stool ➔ 70%/3 (quite often the case).
(e.g. cycle , TT , meetings/social , mask , kids , work ➔ ?80%/2) ?
"HOW DO I LOOK?" 10:20 Same as ever, white and tired. At doc’s not bad, and O2 95-98%.
ACTIONS ➔ PAINS: Bit of elbow → stretches & massage gun. Painfully sudden cramping stool → rest (food trigger?)
(e.g. lie, stand, loins, sit, arms up, neck, stiff, walk, cycle, 0xp1-2, GI, talk, mask.)

Treatments

Docs:

GP prescribed more of the antihistamine, couldn’t help with the Factor VIII or white lips.
Factor VIII up: MCAS and CVD? Cardiologist. Hyperlipidemia from MCAS?? White Lips?
N-methylhistamine normal. So: Prostaglandin D2 or 2,3-Dinor-11beta-prostaglandin F2 alpha or Leukotriene-E4? I think I’d better check that with my allergologist. (This German site) seems to suggest that only the Leukotriene-E4 needs to be frozen, here that the 11-β-PGF2α is best refrigerated, but frozen or with the preservatives acetic acid, boric acid or sodium carbonate are acceptable.

WHB (3 rounds)
RIBOSE:

SELF-PHYSIO (click for details): 59' ✅ (Oooooh: getting lax?! O.o ;-)). Combine. List-prioritize: next.

Supps (Feb 25th: 27): Supp costs: ~344€/m. CHANGE: Passionflower, now pure, .350mg: 3/d? 19:00 and 21:00 was enough to sleep from 23:00 to 3:00! Cu, pine bark, rhodiola (& Zn) arrived. Look for better honokiol. Arg 0 since praps bad for lp(a)! RIBOSE!? PLANNED/TAKEN TODAY: click for details:

ZERO now: Arg, B3/Nia, Mum, Mg Gly 50mg, Mg Mal 45mg, Nc 1*.5g, (Nd), (Rib), Pe, Ps, Se, Sr 31125k, Zn.
REGULAR as of Feb 25th (27, next: 28 incl. Cu, pine, Pf, Rho & Zn have arrived; leaving Zn for a time, while I get Cu up again): ALA .2g, B2 2*.1g, B12 5mg/2m, C 2*.5g, Cr 31g, DAO before meals, D3 1/w, EGCG (50%, incl. theanine?).5g, EllagicA .2g (+43mg vit. C), Fev/MSM .4g (+.2g MSM), Ga: 4*.6g+.4g=~2.8g, Gi 3*?, Glu:~0.8g, Hon (2%).4g=8mg, Luteolin .2g, Ω3 5mg, P5 27mg, Pf 3-4.35g, pine bark 2*.5g, Pq 1, Q10 (ubq) !1*.1g/d, Qc 4*.5g/d, Rs (50%) 2*.4g, Ro 2*.2g(+B1 1.4mg), Sa .1g, Sily (80%)*.5g (+83mg L-cholin) , The .2g (+.15g polyphenols).
What-when-details: Updated Feb 15th (before: see the reference post)
/20:30 “17:00” - whoopsy…
/21:33 A1/2 “19:00” PF#1 Cr#1 0mal#1+2 P5P/2Rho(0Se) PQQ Ω3 & Qc. Meal: DAO.
/23:00 A3 “21:00” PF#2 .6 GABA&.4glu#1 & Lut (slp!) & Qc +0NAC!
/23:00 Chamomile tea.
/03:05 ! A4 “23:00” PF#3 .6 GABA&.3glu#2 & Ellagic acid + Rupafin
/06:15 B1 “01:00” PF#4
Heating on! Warm shower?
/08:05 B2 “07:00” +ALA+2x pine bark, (teeth)
/08:05 B3 “07:00” (-30’) Q10#1 Qc#1 Rs#1 SAM-e
/08:05 B4 “07:00” EGCg + Fev/MSM + Sily
/09:30 C1/2 “MEAL!” 2Cr#2 .6GAB#3, (C2:) .1gB2, gink#1, Zn 1xHon! DAO?
/09:30 C3 “MEAL” .5gC#1 2The2 (0NAC)
/14:00 11:30 C4 “11:00” (+2h/) gi#2 gly#1. Nd#? & Ellagic acid
/14:00 1 DAO (D1) “13:00” 0psyllium
/16:15 D2/3 “15:00” .5gC#2,Cr#3,!.6GA#4,gink#3,0gly#3+4, 0NAC#5 DRINK!
/18:50 D4 “17:00” (“meal/acids+2h”) Qc#4.Rs#2, Nd#?
eve:
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; next: Mar 10th.)

The day's 16 compartments (10', plus 5' making capsules)

Pf: A1+3+4+B1, B2:A1+C2 C:C3+D2 3x2Cr: A1+C1+D2, Ell: A4,C4. Ga: A3,A4,C1,D2, Glu: A3,a4 Gi: C2,C4,D3 Qc: A2.A3.B3.D4 Rs:B3,D4 SINGLE: A2:P5/Ro A3: Luteolin A4: Rup! B2: ALA+0x2 pine B3:Sa+Q1 (->ubiquinone <150mg/d!) B4: EGCG&Fev/MSM&Sily C2:0Zn&Hon C3:2Th (A2:Ω/Pq:meal) DAO before every meal.
(A2:0Se), (B2:0mu), (5NADH if nec.) (D1:0Pe). (0Mg:C4.D3.A2) (0 Nia) (0Nc: A3, B1,C1,C3,D2) (0Sr: B1,C4,D4)

Development
Jab-sfx/MCAS/antihistamine:
20:00 Slightly burnt tongue feeling. Again at 23:00 but maybe after (cold) chamomile tea. Slight skin itch-turnburn at 23:00 and 3:05. Deep sleep without “23:00”-batch (so no antihistamine, maybe the new passiflora 2x?) Hard moving today, at the doc’s I needed minutes to get up, I was so stiff and exhausted. 16:15 Burning skin (after eating red cabbage with fennel, a little wholemeal rice, a little dark chocolate).

’Research’ today:
Ending yesterday’s stint on mast cells this letter to the editor by Cassisi, 2014/5, in answer to Pollack’s supporting comments on their article mentions neuro-inflammation, mast cells connecting nerve fibres & blood vessels, whilst microglia can contribute to and maintain pain by responding to (non-neuronal) CNS mast cells). These might be kept under control with cannabinoid receptor antagonists like the cannabimimetic palmitoylethanolamide reducing histamine-overreactions.
This makes me wonder what palmitoylethanolamide is, as “non-pharmaceutical” makes it sound like a supp.

Cassisi's full reply

Although many of the mechanisms and characteristics of fibromyalgia are well defined, its pathophysiology is still far from being fully understood (2). Mast cells probably play an important role in chronic pain (and therefore fibromyalgia) not only on the grounds of the histological evidence referred to by Dr Pollack (3, 4), but above all because of their importance in neuro-in- flammation. Neuro-endocrine immune stimuli can induce an increasing number of local mast cells and further the extent of their degranulating activity (5). Mast cells have a close anatomo-functional relationship with nerve fibres and blood vessels, and produce and rapidly release nerve growth factor (6). Microglia respond to the pro-inflammatory signals released by other non-neuronal cells, such as CNS resident mast cells, and it has been suggested that activated glial cells can contribute to spreading the sensation of pain and maintain its chronic status (7). The growing evidence of mast cell-glia communication opens up new perspectives for developing therapies that target neuro-inflammation by differentially modulating the activation of the non-neuronal cells that normally control both peripheral and central neuronal sensitisation (8).
The data concerning palmitoylethanolamide, a non-pharmacological analgesic, are promising insofar as its cannabimimetic action on mast cell receptors may reduce histamine-induced responses and modulate the onset and maintenance of pain (9, 10). We hope that further scientific contributions will clarify the relationship between mast cells and chronic pain, and the potential therapeutic role of cannabinoid receptor agonists in the treatment of fibromyalgia.

Continuing on palmitoylethanolamide

it seems good for pain: Biomarkers of response to alpha-lipoic acid ± palmitoiletanolamide treatment in patients with diabetes and symptoms of peripheral neuropathy - PubMed
The suggestion it might interact with lipid-lowering drugs on wikipedia made me look for its effect on lipids, blood pressure, and that seems good too, according to 1) neuroscientists at the Alzheimer’s Drug Discovery Foundation and 2) Pai et al. 2021, Am J Nephrol 2021;52:59–68.
Alzdiscovery: “PEA (300 mg twice daily) for 3 months …led to significantly improved flow-mediated vasodilation compared to placebo. This effect appeared to be due to improved peripheral endothelial function and its positive effect lasted longer than the duration of PEA intake. In spontaneously hypertensive rats, PEA treatment (30 mg/kg/day) for 5 weeks significantly reduced blood pressure by downregulating the angiotensin receptor 1 and angiotensin-converting enzyme (ACE)” and
Pai et al 2021: “However, while these lipid-derived mediators may counteract the effect of inflammation, they also activate fatty acid oxidation, resulting in reduced serum triglycerides, increased energy expenditure, and decreased body mass.”
Also good for IBS: Does Palmitoylethanolamide (PEA) Have Health Benefits? - SelfHacked
Now what about MCAS? Well, up to now I’ve found quite a few German sites saying: Yes. As far as English sites go, this one Palmitoylethanolamide for Neuro Inflammation - Sophia Health Institute came up which makes very offhand statements about using it in fibromyalgia and MCAS, altho it belongs to one Dr. Dietrich Klinghardt, who seems internationally renowned as a functional doc (but also in Germany etc.):

“Mast Cell Activation Syndrome (MCAS) is a very common symptom in chronic illnesses, and PEA supplementation can be of great benefit for reducing symptoms. PEA supplements are often combined with the plant pigment luteolin in a 10:1 ratio. Luteolin on its own is also used to calm mast cells, but the combination of PEA and luteolin has been shown to be more effective than either substance by itself (5).”
Firstly, MCAS (like any syndrome) is of course not a symptom . Whether it is common is still matter of debate, I think Afrin likes to assume it will be recognized that more and more. The referenced article (5) is not about MCAS, the abstract contains no reference to it, the full article costs 51$.
Then “PEA is popularly used for fibromyalgia”: Not true; if it had even been mentioned anywhere I’d’ve tried it; no reference given.
Bryant Rubright is the author of this misrepresentation, not Klinghardt himself.
Checking the fibromylgia track on healthrising about PEA “A recent study suggests it could be helpful in fibromyalgia.” and “Reduced PEA levels in the trapezius muscles of women with chronic widespread pain suggest PEA supplementation might be helpful in Fibromyalgia.” This paragraph explains the ‘search’-situation tho: “Why is PEA not better known in the West? PEA appears to been used in Italy and Spain for quite some time. Interest picked up in the Netherlands and Germany when a Netherlands distributor came on the scene. It’s hardly known in the U.S., although Palmitoylethanolamide For Pain reports that “many people” on the West coast of the U.S. as well as Australia and Canada are using it.”
I’ve decided to try PEA anyway. Anyone else?

Lessons in self-care #233 Lax on the self-physio today, praps better try tomorrow…
Reasons to be cheerful #240 Finding a “new” supp, PEA, let’s see

1st Jab-sfx-summary, last edit: Feb 7th.
My blog references, e.g. abbreviations, supp chart/overview
My “How to symptom track & trigger hunt”
Next up…: Summaries & finishing off treatment list…

JayCS · February 25, 2022, 3:11pm

My GP checked my blood oxygen with an oximeter today: 95%, after breathing deeply once: 98%. So it’s not that…

JayCS · February 26, 2022, 10:24am

2022-02-26, Saturday 5%, not 10% - Stiff and difficulty targeting switches and handles.

v2: 13:45 Extremely stiff today, need minutes to get up.
v1: watch similar food triggers (but less amounts, no soy y.). 22:00 after having procrastinated with self-treatments, I did a whole stint in a “revenge bedtime procrastination”, so my back wouldn’t hamper with my sleep. 11:30

Triggers & resulting Symptoms

SLEEP (click for details): 7h08, up 3x (19'), plus 55+52 Nidra/doze ✅, but ➔ Feeling ?90% well, Ache ?2 of 7 🧐, getting up: ?70%/3 ❌

cold shower p0 Sleep 23:15-
1:05 5’ 80%/2 p0 st1 drink fw2’ sore throat → calendula ess. air. B1.
3:31 9’ 80%/2 p0 st1 drink fw3’ elbows → twist-stretches air
5:32 5’ 80%/2 p0 st1 drink fw2’ dry mouth/stomach → almond milk
-6:42 3’ 80%/2 p0 st1 drink fw1’ own Y.N./doze
7:40 6’ 80%/2 p0 st1 drink fw1’ B2-4 Ally’s Y.N. cos of chatter. But sinuses too, GABA?
-8:38
Sum: 45+6h42-(5+9+5=)19’ = 7h27-19’ = 7h08, up 3x (19’), plus 55+52 Nidra/doze

ACTIVITIES (aiming for 40% - well 20% - physical activity of pre-fibro) ➔ ACHE: 70%/3 most of the day I spose, quite OK if I don’t move. (Cycling very short distance fun: 90%/1. )
"HOW DO I LOOK?" 11:00 face + lips a little reddish due to housework before
ACTIONS ➔ PAINS: Again: Not the problem!

Treatments

Docs:
Psychologist: I’ll bring this topic up on Tuesday, see what she says: My wife thinks I explain FM & MCAS to others too precisely and long to others. She’d prefer me to just say ‘soft tissue rheumatism’ and ‘histamine intolerance’ and leave it at that. She thinks they don’t understand me anyway and stop listening. (A part of this is that she doesn’t want to hear much about it.) I realized and said that I do that FOR MYSELF and not them, and DESERVE to do that, it’s the way I cope with it plus - if people ask me how I am - I can demonstrate to them that I’m coping well by understanding and acting on it; whilst other sufferers etc. may feel they want to moan or the lack of understanding of others which I neither have. When I realize that people don’t understand I try to reduce the complexity. And my table tennis mate just says: Ah, just talk to our other mates about that, they’re interested in medicine. My wife had to concede a bit, and realized that I don’t see my mates much nowadays and they just really are interested. So maybe that topic’s thru…

Factor VIII up: MCAS and CVD? Cardiologist. Hyperlipidemia from MCAS?? White Lips?
Prostaglandin D2 or 2,3-Dinor-11beta-prostaglandin F2 alpha or Leukotriene-E4? (NHM OK)

WHB (3 rounds) 22:05 1’ 1’20’’ 1’20’’ 11:00 (doing the exercise by sight and listening and writing other things…) 1’ 1’30’’ 1’40’’ (why is it always less at the moment?)
RIBOSE: ?

SELF-PHYSIO (click for details): 3h33 ✅. Combine. List-prioritize: next.

Supps (Feb 25th: 29): Supp costs: ~344€/m. CHANGE: Re-order ALA. Passionflower .35g 3/d? Pine bark, Cu, rhodiola (& Zn) arriving. Look for better honokiol. Arg 0 since praps bad for lp(a)! RIBOSE!? PLANNED/TAKEN TODAY: click for details:

ZERO now: Arg, B3/Nia, Mum, Mg Gly 50mg, Mg Mal 45mg, Nc 1*.5g, (Nd), (Rib), Pe, Ps, Se, Sr 31125k, Zn.
REGULAR as of Feb 25th (29 incl. now Cu, pine, Pf, Rho, not Zn during Cu): ALA .2g, B2 2*.1g, B12 5mg/2m, C 2*.5g, Cr 31g, Cu 1x, DAO before meals, D3&K2 1/w, EGCG (50%, incl. theanine?).5g, EllagicA .2g (+43mg vit. C), Fev .4g (+.2g MSM), Ga: 4*.6g+.4g=~2.8g, Gi 3*?, Glu:~0.8g, Hon (2%).4g=8mg, Luteolin .2g, Ω3 5mg, P5 27mg, Pf 3-4.35g, pine bark 2*.5g, Pq 1, Q10 (ubq) !1*.1g/d, Qc 4*.5g/d, Rs (50%) 2*.4g, Ro 2*.2g(+B1 1.4mg), Sa .1g, Sily (80%)*.5g (+83mg L-cholin) , The .2g (+.15g polyphenols).
What-when-details: Updated Feb 15th (before: see the reference post)
/20:10 A1/2 “19:00” PF#1 Cr#1 0mal#1+2 P5P/2Rho(0Se) PQQ Ω3 & Qc. Meal: DAO.
/21:55 A3 “21:00” PF#2 .6 GABA&.4glu#1 & Lut (slp!) & Qc +0NAC!
/21:50 Chamomile tea.
/23:15 A4 “23:00” PF#3 .6 GABA&.3glu#2 & Ellagic acid + Rupafin
/01:05 B1 “01:00” PF#4
Heating on! Warm shower?
/7:40 B2 “07:00” +ALA+2x pine bark, (teeth)
/7:40 B3 “07:00” (-30’) Q10#1 Qc#1 Rs#1 SAM-e
/7:40 B4 “07:00” EGCg + Fev/MSM + Sily
/09:00 C1/2 “MEAL!” 2Cr#2 .6GAB#3, (C2:) .1gB2, gink#1, Zn 1xHon! DAO? +Cu
/09:00 C3 “MEAL” .5gC#1 2The2 (0NAC)
Sat 26th: vit. D3. Chamomile tea didn’t help the sinus burn.
/11:30 C4 “11:00” (+2h/) gi#2 0gly#1. Nd#? & Ellagic acid
/12:35 GABA-speck: 150mg sublingually.
1 DAO (D1) “13:00” 0psyllium
/~15:00 D2/3 “15:00” .5gC#2,Cr#3,!.6GA#4,gink#3,0gly#3+4, 0NAC#5 DRINK!
/18:30 D4 “17:00” (“meal/acids+2h”) Qc#4.Rs#2, Nd#?
eve:
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; next: Mar 10th.)

The day's 16 compartments (10', plus 5' making capsules)

Pf: A1+3+4+B1, B2:A1+C2 C:C3+D2 3x2Cr: A1+C1+D2, Ell: A4,C4. Ga: A3,A4,C1,D2, Glu: A3,a4,0D3, Gi: C2,C4,D3 Qc: A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: A2:P5 A3: Luteolin A4: Rup! B2: ALA+2 pine B3:Sa+Q1 (->ubiquinone <150mg/d!) B4: EGCG&Fev/MSM&Sily C2:Cu(0Zn)&Hon C3:2Th (A2:Ω/Pq:meal) DAO before every meal.

(0x2Gly0x2Mal: C4.D3.A2) (B2:0mu) (0Nc: A3, B1,C1,C3,D2) (5NADH if nec.) (0 Nia) (D1:0Pe) (A2:0Se) (0Sr: B1,C4,D4)

Development
Jab-sfx/MCAS/antihistamine:
Lots of sinus burning in the morning, even after eating and supps. Yesterday’s food? Cheese slivers, spelt bread, raisins… Blowing nose helps clear the nose, but not the burning (and headache and nausea). Try breath-holding… Bit better, but not gone. Then GABA? After C4-batch: 12:35, about 150mg → 13:50 sinuses another bit better.

’Research’ today:
Reading up a bit in Afrin’s big fat book Never Bet Against Occam. The cases are a bit boring, it’s so individual they’re far away from ‘me’, but there’s a big part at the end where I can look up things like Factor VIII and triglycerides. What he says about the anti-inflammatory side-effects of statins increases the case for atorvastatin again.
But the interaction between atorvastatin and rupatadine is a problem: https://www.medicine.com/drug/atorvastatin/hcp: " Rupatadine: May enhance the adverse/toxic effect of HMG-CoA Reductase Inhibitors (Statins). Specifically, the risk for increased CPK and/or other muscle toxicities may be increased. Monitor therapy" My CPK is already increased, however I haven’t yet experienced muscle pain from statins, if that is what this is referring to. C(P)K = Creatin(phospho)kinase, an enzyme in brain as well as muscles. Reasons for its increase: Statins, infection, immobilization, lack of blood supply to a particular limb. Its breakdown in the kidneys causes myoglobin, which is attacked by white blood cells.
High CPK Levels Causes, Symptoms, Side Effects, Treatment by Dr Himanshi
Hoffman warns about quercetin and EGCg, cos the COMT++ enzyme can cause problems (gene). Praps before I do a gene test for this I should try a few days without the 2? But the symptoms I should be looking for are anxiety, insomnia and pain, and I have absolutely no anxiety, my better sleep is the only positive thing about the jab-sfx and my pain is probably caused by the jab and isn’t my biggest problem.

Lessons in self-care #234 Quite a bit of housework, but breaks every 2-3 minutes, trying not to overdo it.
Reasons to be cheerful #241 Still getting lots done, piles down.

1st Jab-sfx-summary, last edit: Feb 7th.
My blog references, e.g. abbreviations, supp chart/overview
My “How to symptom track & trigger hunt”
Next up…: Summaries & finishing off treatment list…

JayCS · February 27, 2022, 1:49pm

2022-02-27, Sunday 8% - getting things done, moving slowly…

Triggers & resulting Symptoms

SLEEP (click for details): 8h10 up 5x (56') ✅, ➔ Feeling 80% well, Ache 2 of 7 🧐, getting up: 80%/2 🧐

cold shower p0 Sleep 23:25-
0:45 10’ 80%/2 p0 st1 drink fw1’ B1
2:06 3’ 80%/2 p0 st1 drink fw1’
4:11 5’ 80%/2 p0 st1 drink fw1’ air HWB
4:28 3’ 80%/2 st1 fw1’ gun for LBU
5:34 35’ 80%/2 st1 fw1’ GABA 200mg (atho wasn’t really chatter, it was dream sleep, but getting up too much tonight, need one last stint) 6
-8:31
Sum: 35+8h31-(10+3+5+3+35=)56’ = 9h06-56’ = 8h10 up 5x (56’)

ACTIVITIES (aiming for 40% - well 20% - physical activity of pre-fibro) ➔ ACHE: Doing a bit of housework moving very slowly is OK, so I’ll say ➔ 80%/2. Double antihistamine? Nope. Don’t feel it’s right today. 30’ cycle walk meant only 10’ service was possible, as the break of 40’ in between was far too short. 70%/3.
(e.g. cycle , TT , meetings/social , mask , kids , work ➔ ?80%/2) ?
"HOW DO I LOOK?" White face & lips, but when I try to take a pic, both always come out reddish…
ACTIONS ➔ PAINS:

Treatments

Docs:

Psychotherapist: Do I talk too “medical”? (details on Saturday’s entry)
Cardiologist: Factor VIII & lipids up: MCAS and CVD? White Lips, blue fingers? Atorvastatin vs. rupatadine?
Allergologist: Prostaglandin D2 or 2,3-Dinor-11beta-prostaglandin F2 alpha or - Leukotriene-E4? (NHM OK)
GP: Check magnesium level instead of just stopping it.

WHB (3 rounds) 3x1’30’’
RIBOSE:

SELF-PHYSIO (click for details): 112'... ✅. Combine. List-prioritize: next. 3 Acupressure points for pain, stress and energy helped a bit, so I'll be repeating them several times a day.

aloe vera 1’, hand-exerciser 3’, twist-stretch 5’, airing 4x2’, cold shower (10’), cream fc/ey/hd/ft 3x1’, teeth 2x2’, HWB 2x3’, breath exercises 4’, facetime 2x1’, Timing, hunchback-pillow 5’, palpate 1’, belly 3’, back 8’, massage gun 5’, breath-hold 11’, left foot on/under right knee/cross-legged 33’,
Combine: next? workout 7’, horse stance 1, something new?
Pain, Stress, Energy: 3 Common Acupressure Points Everyone Should Know (Pain, Stress, Energy) - YouTube
Stiff: https://www.youtube.com/results?search_query=stiffness+points, e.g. Leg Pain & Stiffness Acupressure Points - YouTube
Tailbone: https://www.youtube.com/results?search_query=acupressure+tailbone+pain, e.g. Acupressure Point For Tail Bone Pain - Instant Tail Bone Pain Relief - YouTube

hair/nails 3’, neck 1+ 2’, neck 2 4’, plantar/calf stretch 5’, loins 5’, yoga/stretching 5’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, acupressure 6’, bent leg fall 1’’, Y. Nidra 20’.
Breathing: https://www.youtube.com/results?search_query=acupressure+breath e.g. How to improve your breathing with this acupressure point - YouTube Acupressure Breathing Technique - YouTube Lungs: Mandell: AWAKEN YOUR LUNGS IN 30 SECONDS - Dr Alan Mandell, DC - YouTube & 😤 PUSH HERE AND YOUR LUNGS WILL THANK YOU - Dr Alan Mandell, DC - YouTube Joe Dispenza Breathing Technique Demonstration - YouTube https://www.youtube.com/results?search_query=+Joe+Dispenza’s+breathing+technique
Circulation: How to Improve The Blood Circulation in Your Legs in Just 3 minutes! - YouTube
Eyes tired https://www.youtube.com/results?search_query=acupressure+tired+eyes, e.g. Massage and Acupressure for Tired Eyes - Massage Monday #109 - YouTube
Face Feldenkrais: Feldenkrais® Facial #1: Relax Face, Jaw and TMJ tension - YouTube Feldenkrais Free Your Face - YouTube
Groin: 2, 5 and 6 may be best for me: How to Relieve Groin Muscle Pain in 30 SECONDS - YouTube
Legs weak: https://www.youtube.com/results?search_query=acupressure+weak+legs e.g. Pain: Acupressure Points For LEG PAIN || Leg WEAKNESS || NUMBNESS In Legs || TINGLING In Legs || SCIATICA - YouTube. best acupressure points for leg & thigh muscles , pain , weakness , numbness , strength , leg pain - YouTube
Reflux: https://www.youtube.com/results?search_query=acupressure+points+for+esophagitis e.g. The 4 minute natural trick to prevent acid reflux in the oesophagus - YouTube https://www.youtube.com/results?search_query=esophagus+block
Skin itchy: https://www.youtube.com/results?search_query=acupressure+itchiness, e.g. How to relieve itchy skin naturally - 3 simple steps - YouTube, Acupressure points for skin allergy, hives, rash or eczema - YouTube, Acupressure For Itching - YouTube
Stomach burn Acupressure Points for a Burning Stomach - YouTube
TCM: "It Takes Seconds" | Master Chunyi Lin on "The Most Powerful Chinese Medicine" - YouTube, qigong: "If You DO IT PROPERLY, Every Cell in Your Body Will Be Fixed" | Master Chunyi Lin - YouTube
Vagus: Vagus Nerve Massage For Stress And Anxiety Relief - YouTube
(usually not necessary): calendula/tea tree x1’, foot bath 15’, gums 2x30’’, V ‘, mirror 2’, RR x2’, nux vomica 1’.

Supps (Feb 25th: 29): Supp costs: ~344€/m. CHANGE: Passionflower .35g 3/d? Pine bark, Cu, rhodiola (& Zn) arrived. Rhodiola now 2x.3g 30' before meals. Look for better honokiol. Quercetin and EGCg may cause RIBOSE!? PLANNED/TAKEN TODAY: click for details:

ZERO now: Arg, B3/Nia, Mum, Mg Gly 50mg, Mg Mal 45mg, Nc 1*.5g, (Nd), (Rib), Pe, Ps, Se, Sr 31125k, Zn.
REGULAR as of Feb 25th (29 incl. now Cu, pine, Pf, Rho, not Zn during Cu): ALA .2g, B2 2*.1g, B12 5mg/2m, C 2*.5g, Cr 31g, Cu 1x, DAO before meals, D3 1/w, EGCG (50%, incl. theanine?).5g, EllagicA .2g (+43mg vit. C), Fev .4g (+.2g MSM), Ga: 4*.6g+.4g=~2.8g, Gi 3*?, Glu:~0.8g, Hon (2%).4g=8mg, Luteolin .2g, Ω3 5mg, P5 27mg, Pf 3-4.35g, pine bark 2*.5g, Pq 1, Q10 (ubq) !1*.1g/d, Qc 4*.5g/d, Rs (50%) 2*.4g, Ro 2*.3g(+9mgC), Sa .1g, Sily (80%)*.5g (+83mg L-cholin) , The .2g (+.15g polyphenols).
What-when-details: Updated Feb 15th (before: see the reference post)
/21:10 A1/2 “19:00” PF#1 Cr#1 0mal#1+2 P5P/2Rho(0Se) PQQ Ω3 & Qc. Meal: DAO.
/21:10 A3 “21:00” PF#2 .6 GABA&.4glu#1 & Lut (slp!) & Qc +0NAC!
/23:05 Chamomile tea.
/23:05 A4 “23:00” PF#3 .6 GABA&.3glu#2 & Ellagic acid + Rupafin
/00:45 B1 “01:00” PF#4
Heating on! Warm shower?
/08:35 B2 “07:00” +ALA+2x pine bark, (teeth) +!Ro
/08:35 B3 “07:00” (-30’) Q10#1 Qc#1 Rs#1 SAM-e
/08:35 B4 “07:00” EGCg + Fev/MSM + Sily
/09:30 C1/2 “MEAL!” 2Cr#2 .6GAB#3, (C2:) .1gB2, gink#1, Cu or Zn 1xHon! DAO?
/09:30 C3 “MEAL” .5gC#1 2The2 (0NAC) Essen -11:30. & -12:45
/13:45 C4 “11:00” (+2h/) gi#2 0gly#1. Nd#? & Ellagic acid
1 DAO (D1) “13:00” 0psyllium
/14:45 D2/3 “15:00” .5gC#2,Cr#3,!.6GA#4,gink#3,0gly#3+4, 0NAC#5 DRINK!
/17:55 C4 = xEllagic Acid 1h after meal
/17:55 D4 “17:00” (“meal/acids+2h”) Qc#4.Rs#2, Nd#? +!Ro
eve:
/19:50 A1/2
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; next: Mar 10th.)

The day's 16 compartments (10', plus 5' making capsules)

Pf: A1+3+4+B1, B2:A1+C2 C:C3+D2 3x2Cr: A1+C1+D2, Ell: A4,C4. Ga: A3,A4,C1,D2, Glu: A3,a4 Gi: C2,C4,D3 0x2Gly0x2Mal: 0C4+0D3,0A2 Qc: A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: A2:P5 A3: Luteolin A4: Rup! B2: ALA+2 pine B3:Sa+Q1 (->ubiquinone <150mg/d!) B4: EGCG&Fev/MSM&Sily C2:Cu(0Zn)&Hon C3:2Th (A2:Ω/Pq:meal) DAO before every meal.
(A2:0Se), (B2:0mu), (5NADH if nec.) (D1:0Pe). (0 Nia) (0Nc: A3, B1,C1,C3,D2) (0Sr: B1,C4,D4)

Development
Jab-sfx/MCAS/antihistamine:
Reduced histamine foods Saturday evening, only 4 tiny slivers of cheese, 10 raisins, a 100ml soy yogurt. If that doesn’t help I’ll double the antihistamine tomorrow late morning. Didn’t seem necessary, unless it can improve pain & fatigue, so didn’t double it and tried a similar amount of cheese, spelt bread, reaisins and a bit less soy yogurt.

’Research’ today:
Only bits’n’bobs, forum work.

Lessons in self-care #235 Slow and pausing like a tortoise/turtle all day.
Reasons to be cheerful #242 Quite well inside today.

1st Jab-sfx-summary, last edit: Feb 7th.
My blog references, e.g. abbreviations, supp chart/overview
My “How to symptom track & trigger hunt”
Next up…: Summaries & finishing off treatment list…

JayCS · February 28, 2022, 6:58am

2022-02-28, Monday 10% - cos I kept it slow again , & low histamine

Triggers & resulting Symptoms

SLEEP (click for details): 8h35, up 4x (13') ✅, ➔ Feeling 80% well, Ache 2 of 7 🧐, getting up: 80%/2 🧐, but very tired, so back to bed a bit.

cold shower p0 Sleep 22:30-
23:50 8’ 80%/2 p0 st2 drink fw2’ dream. air. loose stool. A4
2:05 3’ 80%/2 p0 st2 drink fw2’ dream. air. B1
4:48 3’ 80%/2 p0 st2 drink fw2’ dream. air.
6:20 4’ 80%/2 p0 st1 drink fw2’ dream. air.
7:00: Heating on!
-7:18
Sum: 1h30+7h18-(3+3+3+4=)13’ = 8h48-13 = 8h35, up 4x (13’)

ACTIVITIES (aiming for 40% - well 20% - physical activity of pre-fibro) ➔ ACHE: Starting tired. But kept activity slow, with sufficient breaks, always under the limits, so seemed to stay ➔ 80%/2.
(e.g. cycle , TT , meetings/social , mask , kids , work ➔ ?80%/2) ?
"HOW DO I LOOK?" 9:45 OK-ish
ACTIONS ➔ PAINS: Big esophagus block yesterday evening, eating a bit too fast (chewing well tho), it’d seem it blocks once there is too much food coming up after, it needs more time to let it pass. Bit strenuous cleaning caused a small back muscle to strain: Zero tolerance, no further housework that involves that today, 5’ massage pistol helped on first try, I’ll repeat if necessary tho.

Treatments

Docs:
Psychotherapist - Tuesday: Do I talk too medical? (details on Saturday’s entry)
Cardiologist - Thursday: Factor VIII up: MCAS and CVD? Hyperlipidemia from MCAS?? White Lips? Blue fingers. Atorvastatin vs. rupatadine?
Allergologist - phone: Prostaglandin D2 or 2,3-Dinor-11beta-prostaglandin F2 alpha or Leukotriene-E4? (NHM OK)
GP - next Monday: Mg level instead of just stopping it?
Chinese Acupuncturist: next Tuesday.

WHB (3 rounds) ? 1’10’’ 1’40’’ 2’ 1’30’’
RIBOSE:
Pain, Stress, Energy acupressure: 3 Common Acupressure Points Everyone Should Know (Pain, Stress, Energy) - YouTube 3x#1, 1x

SELF-PHYSIO (click for details): 1h53 ✅. Combine. List-prioritize: next.

Supps (Feb 25th: 29): Supp costs: ~344€/m. CHANGE: Passionflower .35g 3/d? Pine bark, Cu, rhodiola (& Zn) arrived. Rhodiola now 2x.3g 30' before meals. Look for better honokiol. Quercetin and EGCg may cause RIBOSE!? PLANNED/TAKEN TODAY: click for details:

ZERO now: Arg, B3/Nia, Mum, Mg Gly 50mg, Mg Mal 45mg, Nc 1*.5g, (Nd), (Rib), Pe, Ps, Se, Sr 31125k, Zn.
REGULAR as of Feb 25th (29 incl. now Cu, pine, Pf, Rho, not Zn during Cu): ALA .2g, B2 2*.1g, B12 5mg/2m, C 2*.5g, Cr 31g, Cu 1x, DAO before meals, D3 1/w, EGCG (50%, incl. theanine?).5g, EllagicA .2g (+43mg vit. C), Fev .4g (+.2g MSM), Ga: 4*.6g+.4g=~2.8g, Gi 3*?, Glu:~0.8g, Hon (2%).4g=8mg, Luteolin .2g, Ω3 5mg, P5 27mg, Pf 3-4.35g, pine bark 2*.5g, Pq 1, Q10 (ubq) !1*.1g/d, Qc 4*.5g/d, Rs (50%) 2*.4g, Ro 2*.3g(+9mgC), Sa .1g, Sily (80%)*.5g (+83mg L-cholin) , The .2g (+.15g polyphenols).
What-when-details: Updated Feb 15th (before: see the reference post)
/20:00 A1/2 “19:00” PF#1 Cr#1 0mal#1+2 P5P(0Se) PQQ Ω3 & Qc. Meal: DAO.
/22:00 A3 “21:00” PF#2 .6 GABA&.4glu#1 & Lut (slp!) & Qc +0NAC!
/22:00 Chamomile tea.
/23:50 A4 “23:00” PF#3 .6 GABA&.3glu#2 & Ellagic acid + Rupafin
/02:05 B1 “01:00” PF#4
Heating on! Warm shower?
/07:20 B2 “07:00” +ALA+2x pine bark, (teeth) +!Ro
/07:20 B3 “07:00” (-30’) Q10#1 Qc#1 Rs#1 SAM-e
/07:20 B4 “07:00” EGCg + Fev/MSM + Sily
/10:00 C1/2 “MEAL!” 2Cr#2 .6GAB#3, (C2:) .1gB2, gink#1, Cu or Zn 1xHon! DAO?
/10:00 C3 “MEAL” .5gC#1 2The2 (0NAC)
/12:00 C4 “11:00” (+2h/) gi#2 0gly#1. Nd#? & Ellagic acid
0 DAO (D1) “13:00” 0psyllium - hardly anything histamine cos of quinoa. (little bit of dark choc.)
/16:30 D2/3 “15:00” .5gC#2,Cr#3,!.6GA#4,gink#3,0gly#3+4, 0NAC#5 DRINK!
/18:40 D4 “17:00” (“meal/acids+2h”) Qc#4.Rs#2, Nd#? +!Ro
eve:
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; next: Mar 10th.)

The day's 16 compartments (10', plus 5' making capsules)

Pf: A1+3+4+B1, B2:A1+C2 C:C3+D2 3x2Cr: A1+C1+D2, Ell: A4,C4. Ga: A3,A4,C1,D2, Glu: A3,a4 Gi: C2,C4,D3 0x2Gly0x2Mal: 0C4+0D3,0A2 Qc: A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: A2:P5 A3: Luteolin A4: Rup! B2: ALA+2 pine B3:Sa+Q1 (->ubiquinone <150mg/d!) B4: EGCG&Fev/MSM&Sily C2:Cu(0Zn)&Hon C3:2Th (A2:Ω/Pq:meal) DAO before every meal.
(A2:0Se), (B2:0mu), (5NADH if nec.) (D1:0Pe). (0 Nia) (0Nc: A3, B1,C1,C3,D2) (0Sr: B1,C4,D4)

Development
Jab-sfx/MCAS/antihistamine: Pretty OK, I feel more and more it does make a difference
’Research’ today: Nope. Preferred writing reviews of my online pharmacies to keep them on their toes (it helps, I’ve found). Actually wanted to read Afrin’s MCAS book, let’s see if I can still find time.

Lessons in self-care #236 Medium self-discipline is good. New acupressure points.
Reasons to be cheerful #243 Quite a bit of paper- & housework & work (mail & phone)

1st Jab-sfx-summary, last edit: Feb 7th.
My blog references, e.g. abbreviations, supp chart/overview
My “How to symptom track & trigger hunt”
Next up…: Summaries & finishing off treatment list…

JayCS · March 1, 2022, 11:21am

2022-03-01, Tuesday 10% - spontaneously today: allergologist & Chinese acupuncture. 14:50 I’m excited about the acupuncturist: top or flop? 17:20 Top, I’d say , up to 20-25% (but my face doesn’t look good, my wife says) 18:45 Fatigue is down down down, energy up up, but Ache level is also still up up at about 3, and so very conspicuous now, very strange feeling

Triggers & resulting Symptoms

SLEEP (click for details): 8h49, up 3x (16') ✅, but ➔ Feeling 90% well, Ache 2 of 7 ✅, getting up: 90%/2 ✅ - not having to get up so much, very stiff and fatigued and tired, but that's all OK, hardly any problems, bit of skin burn and nostrils.

cold shower p0 Sleep 22:20-
01:10 8’ 90%/2 p0 st1 drink fw2’ air cream A4
3:46 3’ 90%/2 p0 st1 drink fw2’ air cream B1
6:40 5’ 90%/2 p0 st1 drink fw2’ air cream nostrils
20’’ 2nd shower cold and/or warm (nostrils)! HWB! Chatter: GABA-speck? SUPPS & AIR 1st!
7:00: Heating on!
-7:25
Sum: 1h40+7h25-(8+3+5=)16’ = 9h05-16’ = 8h49, up 3x (16’)

ACTIVITIES (aiming for 40% - well 20% - physical activity of pre-fibro) ➔ ACHE: Allergologist early, after good sleep, bit of housework, rest ➔ 70%/3, praps slightly better after more rest/fw. ➔ 80%/3 - the Ache is hurting very acupunctury before I’m there, so she’ll have a tough job!
(e.g. cycle , TT , meetings/social , mask , kids , work ➔ ?80%/2) ?
"HOW DO I LOOK?" 21:15 very tired. 12:00 Much better than I feel
ACTIONS ➔ PAINS: 22:10 sudden sore throat, then realized I’d been wearing only 4 pairs of socks instead of 5… talk about oversensitive Back keeps hurting, grabbed a homeopathic cream (Schuessler 4) I’d no idea about if it can help, but that seems to have helped better, twice, than arnica cream or massage gun. Might be clever to look it up, esp. as a quick look on the web says it’s good for skin. Did: In my book copy it doesn’t say anything about skin… Oh well, I don’t care - it seemed to help. Pretty much gone at last. Zero tolerance!
(e.g. lie, stand, loins, sit, arms up, neck, stiff, walk, cycle, 0xp1-2, GI, talk, mask.)

Treatments

Docs:
Allergologist today, with a bit of a wait: Re-confirms MCAS and that further diagnostics won’t help me. Thinks there is such a diagnosis and that it fits to me. Didn’t really think low histamine would help, pleasantly surprised that I feel it does, also that the rupatadine as well as GABA is definitely helping, and that I’m trying the other supps like vit. C, quercetin, luteolin. Was once on the phone for 45’ with Molderings without being able to get a word in between. But thinks docs like Afrin and Molderings probably need to be a bit nutty to get the word out. Gave me the acupuncture script, so I can go there today.
Chinese Acupuncturist - today: Listened, altho I did have to explain a lot, and had the feeling I had to explain it in very simple terms, altho she is a doc (senior doc, Chinese), but she did the all the right TCM stuff: tongue, my different pulses and hand on belly. Kept the amount of needles down to about 12, took the one that hurt too much out (forehead), came to watch when my right arm had a tremor for 5 minutes, and afterwards I didn’t have any pain much, except the inside ligament under my left knee, which I could treat myself (acupressure and stretches), whilst the fatigue went down, energy up, just pretty big Ache was left. Next appointment on Thursday…
Cardiologist - Thursday: Factor VIII up: MCAS and CVD? Hyperlipidemia from MCAS?? White Lips? Blue fingers. Atorvastatin vs. rupatadine?
GP - next Monday: Mg level instead of just stopping it?
Psychotherapist - next Tuesday (has CoV): Do I talk too medical? (details on Saturday’s entry)

WHB (3 rounds)
RIBOSE: 13:10 no help.

SELF-PHYSIO (click for details): 89'... ✅. Combine. List-prioritize: next.

Supps (Feb 25th: 29): Supp costs: ~344€/m. CHANGE: Passionflower .35g 3/d? I'm actually sticking at 4 and may be helping get the last hour of sleep deeper. Look for better honokiol. Quercetin and EGCg may increase anxiety, insomnia and pain, but that doesn't seem to be happening. Decreased DAO (expensive) after decreasing histamine (quinoa instead of rice, keeping cheese, bread & soy yoghurt down even more). RIBOSE at 13:10 (tired & achey-fatigued). PLANNED/TAKEN TODAY: click for details:

ZERO now: Arg, B3/Nia, Mum, Mg Gly 50mg, Mg Mal 45mg, Nc 1*.5g, (Nd), (Rib), Pe, Ps, Se, Sr 31125k, Zn.
REGULAR as of Feb 25th (29 incl. now Cu, pine, Pf, Rho, not Zn during Cu): ALA .2g, B2 2*.1g, B12 5mg/2m, C 2*.5g, Cr 31g, Cu 1x, DAO before meals, D3 1/w, EGCG (50%, incl. theanine?).5g, EllagicA .2g (+43mg vit. C), Fev .4g (+.2g MSM), Ga: 4*.6g+.4g=~2.8g, Gi 3*?, Glu:~0.8g, Hon (2%).4g=8mg, Luteolin .2g, Ω3 5mg, P5 27mg, Pf 3-4.35g, pine bark 2*.5g, Pq 1, Q10 (ubq) !1*.1g/d, Qc 4*.5g/d, Rs (50%) 2*.4g, Ro 2*.3g(+9mgC), Sa .1g, Sily (80%)*.5g (+83mg L-cholin) , The .2g (+.15g polyphenols).
What-when-details: Updated Feb 15th (before: see the reference post)
/19:35 A1/2 “19:00” PF#1 Cr#1 0mal#1+2 P5P (0Se) PQQ Ω3 & Qc. Meal: DAO.
/21:15 A3 “21:00” PF#2 .6 GABA&.4glu#1 & Lut (slp!) & Qc +0NAC
/ Chamomile tea.
/01:15 A4 “23:00” PF#3 .6 GABA&.3glu#2 & Ellagic acid + Rupafin
/03:45 B1 “01:00” PF#4
Heating on! Warm shower?
/06:45 B2 “07:00” +ALA+2x pine bark, (teeth) +!Ro
/06:45 B3 “07:00” (-30’) Q10#1 Qc#1 Rs#1 SAM-e
/06:45 B4 “07:00” EGCg + Fev/MSM + Sily
/7:45 C1/2 “MEAL!” 2Cr#2 .6GAB#3, (C2:) .1gB2, gink#1, Cu or Zn 1xHon! DAO?
/7:45 C3 “MEAL” .5gC#1 2The2 (0NAC) -9:30
/12:15 11:30 C4 “11:00” (+2h/) gi#2 0gly#1. Nd#? & Ellagic acid
0 DAO (D1) “13:00” 0psyllium
/14:40 D2/3 “15:00” .5gC#2,Cr#3,!.6GA#4,gink#3,0gly#3+4, 0NAC#5 DRINK!
However I seem ot have confused D2/3 with C1/2/3, as I just had Cu…
/18:10 D4 “17:00” (“meal/acids+2h”) Qc#4.Rs#2, Nd#? +!Ro
eve:
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; next: Mar 10th.)

The day's 16 compartments (10', plus 5' making capsules)

Pf: A1+3+4+B1, B2:A1+C2 C:C3+D2 3x2Cr: A1+C1+D2, Ell: A4,C4. Ga: A3,A4,C1,D2, Glu: A3,a4 Gi: C2,C4,D3 0x2Gly0x2Mal: 0C4+0D3,0A2 Qc: A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: A2:P5 A3: Luteolin A4: Rup! B2: ALA+2 pine B3:Sa+Q1 (->ubiquinone <150mg/d!) B4: EGCG&Fev/MSM&Sily C2:Cu(0Zn)&Hon C3:2Th (A2:Ω/Pq:meal) DAO before every meal.
(A2:0Se), (B2:0mu), (5NADH if nec.) (D1:0Pe). (0 Nia) (0Nc: A3, B1,C1,C3,D2) (0Sr: B1,C4,D4)

Development

Jab-sfx/MCAS/antihistamine: Bit of skin burning, good sleep, nostrils last hour of sleep. Slight bit of skin and sinuses at daytime.

’Research’ today: Read quite a bit of Afrin so-called MCAS-‘bible’. Bit boring, finding studies more interesting, but it’s OK, easy read, easy to jump around finding things that might be interesting and ignoring the details of the case studies, which always boil down to hundreds of different strange symptoms pointing praps to one single condition at the root, praps MCAS…

Lessons in self-care #237 Going slow, seeing as appointments were in focus, big enough steps.
Reasons to be cheerful #244 Fun getting 2 appointments done quick.
Reasons to be cheerful #245 Wow, Chinese acupuncture actually helped!!

1st Jab-sfx-summary, last edit: Feb 7th.
My blog references, e.g. abbreviations, supp chart/overview
My “How to symptom track & trigger hunt”
Next up…: Summaries & finishing off treatment list…

JayCS · March 2, 2022, 7:28pm

2022-03-02, Wednesday 15-20% - up due to yesterday’s acupuncture! Problem was just that I couldn’t sleep well for several reasons and also didn’t know what level of activity is OK

Triggers & resulting Symptoms

SLEEP (click for details): 6h24, up 4x (34')+ 37' nap = 7h01 ✅, but ➔ Feeling ?90% well, Ache ?2 of 7 🧐, getting up: ?70%/3 ❌

cold shower p0 Sleep 22:15- Y. Nidra at least 45’
00:00 15’ 90%/2 p0 st1 drink fw5’ air highly strung due to Ukraine overload from my wife & colleagues and not being able to cold shower due to the (positive) acupuncture. Y. Nidra. 30’
0:50 3’ 90%/2 p0 st1 drink fw1’ 6. air Y.N. -2:05 +10’
2:50 3’ 90%/2 p0 st1 drink fw1’ air Y.N. 10’
3:20 3’ 90%/2 p0 st1 drink fw1’ air Y.N. 10’
4:28 25’ 90%/2 p0 st1 drink fw1’ air HWB Y.N. 10’/doze
-5:13
+14:30-14:57= 37’
Sum: 1h45+5h13-(3+3+3+25=)34’ = 6h58-34’ = 6h24, up 4x (34’) +37’ power-nap

ACTIVITIES (aiming for 40% - well 20% - physical activity of pre-fibro) ➔ ACHE: 80%/2 except dead tired from more yoga nidra than sleep tonight - cycling and shops quite OK, much less fatigue, less Ache than yesterday.
"HOW DO I LOOK?" Dead tired
ACTIONS ➔ PAINS: Got all small pains after the acupressure down. Managed to stand and cycle quite a lot, less stiff.

Treatments

Docs:
Chinese Acupuncturist - next: tomorrow = Thursday again. Exciting again!
Cardiologist - Thursday: Factor VIII up: MCAS and CVD? Hyperlipidemia from MCAS?? White Lips? Blue fingers. Atorvastatin vs. rupatadine?
Psychotherapist - next Tuesday: Do I talk too medical? (details on Saturday’s entry)
GP - next Monday: Mg level instead of just stopping it?

WHB (3 rounds) cos too much fw too little self-discipline due to being tired.
RIBOSE: ?
Pain, Stress, Energy: 3 Common Acupressure Points Everyone Should Know (Pain, Stress, Energy) - YouTube

SELF-PHYSIO (click for details): 2h54 ✅. Combine. List-prioritize: next. Mainly Yoga Nidra from chatterbrain (Ukraine)

Supps (Feb 25th: 29): Supp costs: ~344€/m. CHANGE: Passionflower .35g 3/d or 4/d? Look for better honokiol. DAO? RIBOSE? PLANNED/TAKEN TODAY: click for details:

ZERO now: Arg, B3/Nia, Mum, Mg Gly 50mg, Mg Mal 45mg, Nc 1*.5g, (Nd), (Rib), Pe, Ps, Se, Sr 31125k, Zn.
REGULAR as of Feb 25th (29 incl. now Cu, pine, Pf, Rho, not Zn during Cu): ALA .2g, B2 2*.1g, B12 5mg/2m, C 2*.5g, Cr 31g, Cu 1x, DAO before meals, D3 1/w, EGCG (50%, incl. theanine?).5g, EllagicA .2g (+43mg vit. C), Fev .4g (+.2g MSM), Ga: 4*.6g+.4g=~2.8g, Gi 3*?, Glu:~0.8g, Hon (2%).4g=8mg, Luteolin .2g, Ω3 5mg, P5 27mg, Pf 3-4.35g, pine bark 2*.5g, Pq 1, Q10 (ubq) !1*.1g/d, Qc 4*.5g/d, Rs (50%) 2*.4g, Ro 2*.3g(+9mgC), Sa .1g, Sily (80%)*.5g (+83mg L-cholin) , The .2g (+.15g polyphenols).
What-when-details: Updated Feb 15th (before: see the reference post)
/19:00 A1/2 “19:00” PF#1 Cr#1 0mal#1+2 P5P (0Se) PQQ Ω3 & Qc. Meal: DAO.
/21:30 A3 “21:00” PF#2 .6 GABA&.4glu#1 & Lut (slp!) & Qc +0NAC
/00:00 Chamomile tea.
/00:10 A4 “23:00” PF#3 .6 GABA&.3glu#2 & Ellagic acid + Rupafin
/00:50 B1 “01:00” PF#4
Heating on! Warm shower?
/06:45 B2 “07:00” +ALA+2x pine bark, (teeth) +!Ro
/06:45 B3 “07:00” (-30’) Q10#1 Qc#1 Rs#1 SAM-e
/06:45 B4 “07:00” EGCg + Fev/MSM + Sily
/09:20 C1/2 “MEAL!” 2Cr#2 .6GAB#3, (C2:) .1gB2, gink#1, Cu or Zn 1xHon! DAO?
/09:20 C3 “MEAL” .5gC#1 2The2 (0NAC)
/12:45 C4 “11:00” (+2h/) gi#2 0gly#1. Nd#? & Ellagic acid
0 DAO (D1) “13:00” 0psyllium but almond yoghurt with apple…
/14:30 D2/3 “15:00” .5gC#2,Cr#3,!.6GA#4,gink#3,0gly#3+4, 0NAC#5 DRINK!
/18:40 D4 “17:00” (“meal/acids+2h”) Qc#4.Rs#2, Nd#? +!Ro
eve:
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; next: Mar 10th.)

The day's 16 compartments (10', plus 5' making capsules)

Pf: A1+3+4+B1, B2:A1+C2 C:C3+D2 3x2Cr: A1+C1+D2, Ell: A4,C4. Ga: A3,A4,C1,D2, Glu: A3,a4 Gi: C2,C4,D3 0x2Gly0x2Mal: 0C4+0D3,0A2 Qc: A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: A2:P5 A3: Luteolin A4: Rup! B2: ALA+2 pine B3:Sa+Q1 (->ubiquinone <150mg/d!) B4: EGCG&Fev/MSM&Sily C2:Cu(0Zn)&Hon C3:2Th (A2:Ω/Pq:meal) DAO before every meal.
(A2:0Se), (B2:0mu), (5NADH if nec.) (D1:0Pe). (0 Nia) (0Nc: A3, B1,C1,C3,D2) (0Sr: B1,C4,D4)

Development

Jab-sfx/MCAS/antihistamine: Bit of sinuses in the afternoon could’ve been from tiredness.
’Research’ today: Lots of fw. I think too much, but got some posts off my chest.
Lessons in self-care #238 Mustn’t beat myself up today: Acupuncture disallowed cold showering, and I did everything else to at least get pseudo-sleep and take a short power nap too… and that caused some lack of self-discipline, but I still did get lots of things done, just not “satisfactorily”, i.e. perfect enough.
Reasons to be cheerful #246 I’m still surprised about the effect of the acupuncture.

1st Jab-sfx-summary, last edit: Feb 7th.
My blog references, e.g. abbreviations, supp chart/overview
My “How to symptom track & trigger hunt”
Next up…: Summaries & finishing off treatment list…

JayCS · March 3, 2022, 9:44pm

2022-03-03, Thursday 10% - down, more “histaminey” than before, acupuncture increased the problems.

Triggers & resulting Symptoms

SLEEP (click for details): 9h37, up 3x (15') ✅, but ➔ Feeling 90% well, Ache 2 of 7 ✅, getting up: 70%/2 🧐. Should've tried warm showering a 2nd time last night.

cold shower p0 Sleep 21:45-
23:55 5’ 90%/2 p0 st1 drink fw2’ A4
2:10 5’ 90%/2 p0 st1 drink fw2’ B1 right nostril → air, nausea stomach → almond milk
4:40 5’ 90%/2 p0 st1 drink fw2’ left nostril/sinus → air, cold wash, nausea → almond milk. Tendons under knees, esp. left → stretches.
-7:36 80%/2 p0 st1 drink fw2’ left nostrils/sinus: From (almond) yoghurt? +1rup! nausea. B2-4 (however are they helping much at all?) +10’
Sum: 2h15+7h36-(5+5+5=)15’ = 9h51-15 = 9h37, up 3x (15’)

ACTIVITIES (aiming for 40% - well 20% - physical activity of pre-fibro) ➔ ACHE: 70%/3, before the acupuncture and different but just as strong after it, the feeling I’d better not do much, but doing a bit is OK, doesn’t make it worse. But really really knackered, physically, not mentally, right into the evening…
"HOW DO I LOOK?" I can’t really see the pain and exhaustion, my wife can.
ACTIONS ➔ PAINS: Only acupuncture.

Treatments

Docs:
Chinese Acupuncturist By the morning, fatigue had increased a bit again, even more so stiffness and pain. Treatment today was tougher: More needles, longer (20’), some needles hurt quite a bit while putting in, but not once they were in, and not the turning after 10’. Made sure my lower back was comfy with 2 pillows under the sides, my upper back by getting the head end put down. She put heat lamps on feet and belly, just about warm enough. Next time: cushion under hunchback, praps a smaller or no roll under my knees (praps I’d then have less problems with the tendons under my knees) and idealer would be a cotton blanket instead of acrylic.
She also did some cupping (only 7’) which hurt normally, wasn’t as bad as 2 years ago, but has left extremely strong marks on my back - which don’t hurt tho. 16:35 Whoops, now they are itching and burning, maybe shouldn’t’ve thought about it…
Main thing tho: I have been totally Achey-exhausted after the treatment, not just 2 hours like she’s said, but at 16:30 still, not just limb muscles, but bladder too, also stiffer, not just limbs, but my neck. So as was the case with acupressure, she probably did too much this time.
Certain needled spots on hands and feet are also still stinging. Trying breath-holding, but cross-legged sitting hurts more than ever.

Cardiologist:

Factor VIII up: CVD too? Yes, it can become a problem, but doing the sonos regularly is enough.
White Lips? She explains it with my Raynaud’s.
Atorvastatin vs. rupatadine? Didn’t get round to that, because we were talking generally about the many benefits and too high disregard of alternative medicine. But I’ll take it with me to the next appointment in 6 weeks.
(Hyperlipidemia from MCAS is unnecessary/unhelpful to ask, forget it!)

GP - next Monday: Mg level instead of just stopping it?
Psychotherapist - Tuesday: “Do I talk too medical?” (details on Saturday’s entry)

WHB (3 rounds) +:two: 1’30’’! 1’50’’! 2’! 1’30’’ 1’30’’ 1’30’’ Ah, great, despite not concentrating on it at all! And cross-legged was OK too, once I got started.
RIBOSE: ?

SELF-PHYSIO (click for details): 2h31 ✅. Combine. List-prioritize: next.

Supps (Feb 25th: 29): Supp costs: ~344€/m. CHANGE: R-ALA and new: PEA have arrived, but not taking PEA yet, as that'd be a too big a change and I want to wait what acupuncture brings "first". Look for better honokiol. DAO? RIBOSE? PLANNED/TAKEN TODAY: click for details:

ZERO now: Arg, B3/Nia, Mum, Mg Gly 50mg, Mg Mal 45mg, Nc 1*.5g, (Nd), (Rib), Pe, Ps, Se, Sr 31125k, Zn.
REGULAR as of Feb 25th (29 incl. now Cu, pine, Pf, Rho, not Zn during Cu): ALA .2g, B2 2*.1g, B12 5mg/2m, C 2*.5g, Cr 31g, Cu 1x, DAO before meals, D3 1/w, EGCG (50%, incl. theanine?).5g, EllagicA .2g (+43mg vit. C), Fev .4g (+.2g MSM), Ga: 4*.6g+.4g=~2.8g, Gi 3*?, Glu:~0.8g, Hon (2%).4g=8mg, Luteolin .2g, Ω3 5mg, P5 27mg, Pf 3-4.35g, pine bark 2*.5g, Pq 1, Q10 (ubq) !1*.1g/d, Qc 4*.5g/d, Rs (50%) 2*.4g, Ro 2*.3g(+9mgC), Sa .1g, Sily (80%)*.5g (+83mg L-cholin) , The .2g (+.15g polyphenols).
What-when-details: Updated Feb 15th (before: see the reference post)
/21:10 A1/2 “19:00” PF#1 Cr#1 0mal#1+2 P5P (0Se) PQQ Ω3 & Qc. Meal: DAO.
/21:40 A3 “21:00” PF#2 .6 GABA&.4glu#1 & Lut (slp!) & Qc +0NAC
Chamomile tea.
/00:00 A4 “23:00” PF#3 .6 GABA&.3glu#2 & Ellagic acid + Rupafin
/02:10 B1 “01:00” PF#4
Heating on! Warm shower?
/07:35 B2 “07:00” +ALA+2x pine bark, (teeth) +!Ro
/07:35 B3 “07:00” (-30’) Q10#1 Qc#1 Rs#1 SAM-e
/07:35 B4 “07:00” EGCg + Fev/MSM + Sily
/09:15 C1/2 “MEAL!” 2Cr#2 .6GAB#3, (C2:) .1gB2, gink#1, Cu or Zn 1xHon! DAO?
/09:15 C3 “MEAL” .5gC#1 2The2 (0NAC)
/12:10 C4 “11:00” (+2h/) gi#2 0gly#1. Nd#? & Ellagic acid
0 DAO (D1) “13:00” 0psyllium
/14:20 D2/3 “15:00” .5gC#2,Cr#3,!.6GA#4,gink#3,0gly#3+4, 0NAC#5 DRINK!
/18:00 D4 “17:00” (“meal/acids+2h”) Qc#4.Rs#2, Nd#? +!Ro
eve:
/19:30 “19:00”
/21:05 “21:00”
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; next: Mar 10th.)

The day's 16 compartments (10', plus 5' making capsules)

Pf: A1+3+4+B1, B2:A1+C2 C:C3+D2 3x2Cr: A1+C1+D2, Ell: A4,C4. Ga: A3,A4,C1,D2, Glu: A3,a4 Gi: C2,C4,D3 0x2Gly0x2Mal: 0C4+0D3,0A2 Qc: A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: A2:P5 A3: Luteolin A4: Rup! B2: ALA+2 pine B3:Sa+Q1 (->ubiquinone <150mg/d!) B4: EGCG&Fev/MSM&Sily C2:Cu(0Zn)&Hon C3:2Th (A2:Ω/Pq:meal) DAO before every meal.
(A2:0Se), (B2:0mu), (5NADH if nec.) (D1:0Pe). (0 Nia) (0Nc: A3, B1,C1,C3,D2) (0Sr: B1,C4,D4)

Development

Jab-sfx/MCAS/antihistamine: nostril/sinus, slight nausea, 2nd antihistamine isn’t helping. Only better after eating at 14:00

’Research’ today:
It is a grey and developing area but it would not be correct to characterise nociplastic pain as idiopathic pain, according to Chronic nociplastic pain affecting the musculoskeletal syste... : PAIN
“Chronic pain conditions such as fibromyalgia, complex regional pain syndrome type 1, and irritable bowel syndrome are examples of pain conditions, where nociplastic pain is typically present.15 These conditions have documented changes of nociceptive processing in the nervous system,12,17–19 thus precluding the classification of their pain as “pain of unknown origin” (idiopathic pain). The classifier “pain of unknown origin” should be reserved for patients with pain that cannot be designated as nociceptive, neuropathic, or, now, nociplastic and is a label awarded by exclusion.”
However Niki Jones at Footsteps ‘21 asks Irene Tracey about why she apparently calls the 3rd type of pain idiopathic on her site. Queen of Pain - Professor Irene Tracey discusses pain science imaging chronic pain management - YouTube. Can’t find the site she’s referring to. I haven’t seen it anywhere else either.
Since the Klosek, Clauw et al. review is from 2021, so just as new (or maybe written earlier in the year than the interview?) and I also can’t find anything more than this about idiopathic pain: Is this distinction of theirs a new one, maybe not agreed upon by Tracey? My problem tho is that whilst Jones’ question seems clear(?!), Tracey answers saying she prefers to use “simple bins”, but I don’t understand how that explains how she uses idiopathic as a third definition instead of nociplastic. It sounds a bit as if she wants to keep it flexible between nociplastic and nociceptive, but it wouldn’t make sense to make the 3rd definition include the first. It would make more sense if she reserved ‘idiopathic’ for a continuum between maybe all three types. Or I’m just coming to think: is Jones’ assumption wrong, but stands uncorrected by Tracey?
Answer: It is probably “a moving discussion and there will be flexibility in the conversations around it. Idiopathic seems to be to be less applicable and will become more applicable as we have defined nociplastic. I am sure some clinicians will continue to use idiopathic but it may be better to use it as an adjective on the pain type. Idiopathic nociplastic pain when you have not been diagnosed with fibro or other condition that is categorised as you would have idiopathic neuropathic pain that is not down to diabetes or SFN for example.” (DQ from FMA UK)

Lessons in self-care #239 Acupuncture probably overdosed.
Reasons to be cheerful #247 Lots of nice things. Good talk with cardiologist too.

1st Jab-sfx-summary, last edit: Feb 7th.
My blog references, e.g. abbreviations, supp chart/overview
My “How to symptom track & trigger hunt”
Next up…: Summaries & finishing off treatment list…

JayCS · March 4, 2022, 9:08am

2022-03-04, Friday 5-10% - icy cold start, still bad from the acupuncture, death-defyingly 2x

Triggers & resulting Symptoms

SLEEP (click for details): 8h29, up 6x (76') ✅, ➔ Feeling 80% well, Ache 2 of 7 🧐, getting up: 70%/3 ❌, feeling very cold.

warm, painful shower p0 Sleep 22:45-
1:05 5’ 80%/2 p0 st1 drink fw2’
2:27 10’ 80%/2 p0 st1 drink fw2’ air nostrils, nausea, breath ex. 3’ doze
2:57 Y.N.10’ 9’ burning skin, wide awake → (mod.) warm shower → not nice, feel cold. Blowing nose freed, face forehead torso burning. cream
3:16 Y.N.30’
4:30 10’ 80%/2 p0 st1 drink
5:15 35’ 80%/2 p0 st1 drink 6. stomach ache.
7:15 7’ 80%/2 p0 st1 drink
-08:30
Sum: 1h15+8h30-(5+10+9+10+35+7=)76’ = 9h45-1h16 = 8h29, up 6x (76’)

ACTIVITIES (aiming for 40% - well 20% - physical activity of pre-fibro) ➔ ACHE: slow start ➔ 70%/3, TT 2 games hurt all the time, not getting worse, but better to stop. . Making music was good distraction, altho painful, and gradually managed to tone it down, so it didn’t stress too much.
"HOW DO I LOOK?" 5x+ White.
ACTIONS ➔ PAINS: GI: medium upper abdomen pain night and morning. Cauliflower?

Treatments

Docs:
GP - Monday: Mg level instead of just stopping it?
Psychotherapist - Tuesday: Do I talk too medical? (details on Saturday’s entry)
Chinese Acupuncturist - Tuesday: Change pillow and roll. Do less.
Cardiologist - April: Atorvastatin vs. rupatadine?

WHB (3 rounds) 1’15’’ 1’40’’ 1’30’’
RIBOSE: 15:20 (I think I forgot after all…)

SELF-PHYSIO (click for details): 1h47 ✅. Combine. List-prioritize: next.

airing 4x2’, hunchback-pillow 5’, Timing, warm extra shower (10’), cream fc/ey/hd/ft 4x1’, teeth 2x2’, HWB 3’, breath exercises 2’, Y. Nidra 40’, facetime 4x1’, left foot on/under right knee/cross-legged 15’, breath-hold 12’,

Combine: next?
palpate 1’, belly 3’, back 12’,
calendula/tea tree x1’,
hair/nails 3’, neck 1+ 2’, neck 2 4’, plantar/calf stretch 5’, twist-stretch 5’, loins 5’, yoga/stretching 5’, jolt-jump 1’, marionette-hang 1’, workout 7’, hand-exerciser 3’, massage gun 20’, shaking dance 1’, acupressure 6’, aloe vera 1’, bent leg fall 1’, horse stance 1’.

Supps (Feb 25th: 29): Supp costs: ~344€/m. CHANGE: Passionflower .35g 3/d or 4/d? Look for better honokiol. DAO 0, RIBOSE 0(?) PLANNED/TAKEN TODAY: click for details:

ZERO now: Arg, B3/Nia, Mum, Mg Gly 50mg, Mg Mal 45mg, Nc 1*.5g, (Nd), (Rib), Pe, Ps, Se, Sr 31125k, Zn.
REGULAR as of Feb 25th (29 incl. now Cu, pine, Pf, Rho, not Zn during Cu): ALA .2g, B2 2*.1g, B12 5mg/2m, C 2*.5g, Cr 31g, Cu 1x, DAO before meals, D3 1/w, EGCG (50%, incl. theanine?).5g, EllagicA .2g (+43mg vit. C), Fev .4g (+.2g MSM), Ga: 4*.6g+.4g=~2.8g, Gi 3*?, Glu:~0.8g, Hon (2%).4g=8mg, Luteolin .2g, Ω3 5mg, P5 27mg, Pf 3-4.35g, pine bark 2*.5g, Pq 1, Q10 (ubq) !1*.1g/d, Qc 4*.5g/d, Rs (50%) 2*.4g, Ro 2*.3g(+9mgC), Sa .1g, Sily (80%)*.5g (+83mg L-cholin) , The .2g (+.15g polyphenols).
What-when-details: Updated Feb 15th (before: see the reference post)
/19:30 A1/2 “19:00” PF#1 Cr#1 0mal#1+2 P5P (0Se) PQQ Ω3 & Qc. Meal: DAO.
/21:05 A3 “21:00” PF#2 .6 GABA&.4glu#1 & Lut (slp!) & Qc +0NAC
Chamomile tea.
/01:05 A4 “23:00” PF#3 .6 GABA&.3glu#2 & Ellagic acid + Rupafin
/02:30 B1 “01:00” PF#4
Heating on! Warm shower?
/07:20 B2 “07:00” +ALA+2x pine bark, (teeth) +!Ro
/07:20 B3 “07:00” (-30’) Q10#1 Qc#1 Rs#1 SAM-e
/07:20 B4 “07:00” EGCg + Fev/MSM + Sily
/09:00 C1/2 “MEAL!” 2Cr#2 .6GAB#3, (C2:) .1gB2, gink#1, Cu or Zn 1xHon! DAO?
/09:00 C3 “MEAL” .5gC#1 2The2 (0NAC)
/11:05 C4 “11:00” (+2h/) gi#2 0gly#1. Nd#? & Ellagic acid
0 DAO (D1) “13:00” 0psyllium
/15:15 D2/3 “15:00” .5gC#2,Cr#3,!.6GA#4,gink#3,0gly#3+4, 0NAC#5 DRINK!
/17:30 D4 “17:00” (“meal/acids+2h”) Qc#4.Rs#2, Nd#? +!Ro
eve:
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; next: Mar 10th.)

The day's 16 compartments (10', plus 5' making capsules)

Pf: A1+3+4+B1, B2:A1+C2 C:C3+D2 3x2Cr: A1+C1+D2, Ell: A4,C4. Ga: A3,A4,C1,D2, Glu: A3,a4 Gi: C2,C4,D3 0x2Gly0x2Mal: 0C4+0D3,0A2 Qc: A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: A2:P5 A3: Luteolin A4: Rup! B2: ALA+2 pine B3:Sa+Q1 (->ubiquinone <150mg/d!) B4: EGCG&Fev/MSM&Sily C2:Cu(0Zn)&Hon C3:2Th (A2:Ω/Pq:meal) DAO before every meal.
(A2:0Se), (B2:0mu), (5NADH if nec.) (D1:0Pe). (0 Nia) (0Nc: A3, B1,C1,C3,D2) (0Sr: B1,C4,D4)

Development

Jab-sfx/MCAS/antihistamine: nostrils & burning torso from 2-4.
’Research’ today: Nope, not even any forum-work much.
Lessons in self-care #240 was worth it, altho I could hardly appreciate it.
Reasons to be cheerful #248 Making music all day for a gig on Sunday was eustress & fun.

1st Jab-sfx-summary, last edit: Feb 7th.
My blog references, e.g. abbreviations, supp chart/overview
My “How to symptom track & trigger hunt”
Next up…: Summaries & finishing off treatment list…

JayCS · March 5, 2022, 10:36pm

2022-03-05, Saturday 10-15% - 13:00 Knackered after 60’ slow cycling. Energy better, but changed / strange, pain high.

10:00 Achey-shakey, annoying histaminey stuff.

Triggers & resulting Symptoms

SLEEP (click for details): 8h50, up 3x (28') ✅, but ➔ Feeling 80% well, Ache 2 of 7 🧐, getting up: 80%/2 🧐. Brain chatter (from music making and a small conflict) was OK, nostril(s) bad the last 2h, altho breathing ex., acupressure and blowing nose helped at first, experimenting this time it was better to lie on the side with the shut nostril. Bit of headache & nausea probably a result of it. Didn't try shower, but HWB made it worse, if at all. Managed most of the night without ear plugs, but at around 8 5 words outside the window made me start, so ear plugs do tone me down. A bit shakily unwell upon getting up, again different to at night. Numbness tonight wasn't that strong, altho I was worrying I might've taken .35g passiflora too much. Maybe try a second antihistamine again today? But normally eating and supps will clear the nose. Actually.... even some being up and movement alone (writing this and back exercises) got the nose free again.

cold shower p0 Sleep 23:35- A4
2:20 10’ 90%/2 p0 st1 drink fw1’ mus8’ air
5:35 10’ 90%/2 p0 st1 drink fw1’ air nauseous, nostrils only a bit, HWB just in case.
7:23 8’ 90%/2 p0 st1 drink fw1’ air nostrils a lot, HWB hadn’t helped, bit of sore throat.
-8:55
Sum: 25+8h55-(10+10+8=)28’ = 9h18-28’ ) = 8h50, up 3x (28’)

ACTIVITIES (aiming for 40% - well 20% - physical activity of pre-fibro) ➔ ACHE: 80%/3 60’ cycle , no TT but lots of music, energy enough.
ACTIONS ➔ PAINS:

Treatments

Docs:
GP - Monday: Mg level instead of just stopping it?
Psychotherapist - Tuesday: Do I talk too medical? (details on Saturday’s entry)
Chinese Acupuncturist - Tuesday: Change pillow and roll. Do less.
Cardiologist - April: Atorvastatin vs. rupatadine?

WHB (3 rounds)
RIBOSE:

SELF-PHYSIO (click for details): 1h13 ✅. Didn't feel the need for more. Combine. List-prioritize: next.

facetime 3x1’, airing 5x2’, cold shower (10’), cream fc/ey/hd/ft 2x1’, HWB 3x3’, breath exercises 4’, Timing, teeth 3x2’, hunchback-pillow 10’, palpate 1’, belly 3’, back 10’, twist-stretch 5’,
Combine: next?
calendula/tea tree x1’, left foot on/under right knee/cross-legged 20’, Y. Nidra 20’, breath-hold 12’, hair/nails 3’, neck 1+ 2’, neck 2 4’, plantar/calf stretch 5’, loins 5’, yoga/stretching 5’, jolt-jump 1’, marionette-hang 1’, workout 7’, hand-exerciser 3’, massage gun 20’, shaking dance 1’, acupressure 6’, aloe vera 1’, bent leg fall 1’, horse stance 1’.

Supps (Feb 25th: 29): Supp costs: ~344€/m. CHANGE: Passionflower .35g 3/d or 4/d? March 5th: Replaced ubiquinol with ubiquinon, and added PEA for pain (C3-batch) and replaced Look for better honokiol. DAO? RIBOSE? PLANNED/TAKEN TODAY: click for details:

ZERO now: Arg, B3/Nia, Mum, Mg Gly 50mg, Mg Mal 45mg, Nc 1*.5g, (Nd), (Rib), Pe, Ps, Se, Sr 31125k, Zn.
REGULAR as of Feb 25th (29 incl. now Cu, pine, Pf, Rho, not Zn during Cu): ALA .2g, B2 2*.1g, B12 5mg/2m, C 2*.5g, Cr 31g, Cu 1x, DAO before meals, D3 1/w, EGCG (50%, incl. theanine?).5g, EllagicA .2g (+43mg vit. C), Fev .4g (+.2g MSM), Ga: 4*.6g+.4g=~2.8g, Gi 3*?, Glu:~0.8g, Hon (2%).4g=8mg, Luteolin .2g, Ω3 5mg, P5 27mg, Pf 3-4.35g, pine bark 2*.5g, Pq 1, Q10 (ubq) !1*.1g/d, Qc 4*.5g/d, Rs (50%) 2*.4g, Ro 2*.3g(+9mgC), Sa .1g, Sily (80%)*.5g (+83mg L-cholin) , The .2g (+.15g polyphenols).
What-when-details: Updated Feb 15th (before: see the reference post)
/20:10 A1/2 “19:00” PF#1 Cr#1 0mal#1+2 P5P (0Se) PQQ Ω3 & Qc. Meal: DAO.
/21:40 A3 “21:00” PF#2 .6 GABA&.4glu#1 & Lut (slp!) & Qc +0NAC
Chamomile tea.
/23:35 A4 “23:00” PF#3 .6 GABA&.3glu#2 & Ellagic acid + Rupafin
/2:25 B1 “01:00” PF#4
Heating on! Warm shower?
/07:25 B2 “07:00” +ALA+2x pine bark, (teeth) +!Ro
/07:25 B3 “07:00” (-30’) Q10#1 Qc#1 Rs#1 SAM-e
/07:25 B4 “07:00” EGCg + Fev/MSM + Sily
/09:35 C1/2 “MEAL!” 2Cr#2 .6GAB#3, (C2:) .1gB2, gink#1, Cu or Zn 1xHon! DAO?
/09:35 C3 “MEAL” .5gC#1 2The2 (0NAC)+PEA
/11:45 C4 “11:00” (+2h/) gi#2 0gly#1. Nd#? & Ellagic acid
/13:10 vit D3
DAO (D1) “13:00” 0psyllium
/16:10 D2/3 “15:00” .5gC#2,Cr#3,!.6GA#4,gink#3,0gly#3+4, 0NAC#5 DRINK!
/18:10 D4 “17:00” (“meal/acids+2h”) Qc#4.Rs#2, Nd#? +!Ro
eve:
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; next: Mar 10th.)

The day's 16 compartments (10', plus 5' making capsules)

Pf: A1+3+4+B1, B2:A1+C2 C:C3+D2 3x2Cr: A1+C1+D2, Ell: A4,C4. Ga: A3,A4,C1,D2, Glu: A3,a4 Gi: C2,C4,D3 0x2Gly0x2Mal: 0C4+0D3,0A2 Qc: A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: A2:P5 A3: Luteolin A4: Rup! B2: ALA+2 pine B3:Sa+Q1 (->ubiquinone <150mg/d!) B4: EGCG&Fev/MSM&Sily C2:Cu(0Zn)&Hon C3:2Th+PEA (A2:Ω/Pq:meal) DAO before every meal.
(A2:0Se), (B2:0mu), (5NADH if nec.) (D1:0Pe). (0 Nia) (0Nc: A3, B1,C1,C3,D2) (0Sr: B1,C4,D4)

Development

Jab-sfx/MCAS/antihistamine: Burning tongue after evening meal. (5? hazelnuts and) a dried fig… Didn’t take DAO beforehand, so didn’t try yoghurt. Tried GABA and cold water. 11:50 Burnt tongue again slightly. Also after midday meal, where I took 1 DAO, but ate about 15 hazelnuts and no fig. So that’d be the nuts. Tongue increased and stayed till at least 23:40.
’Research’ today: Nope. Music.
Lessons in self-care #241 Music. Wasn’t too much. Self-discipline not particularly necessary.
Reasons to be cheerful #249 Cycling. Music. Energy’s improved, pain stayed.

1st Jab-sfx-summary, last edit: Feb 7th.
My blog references, e.g. abbreviations, supp chart/overview
My “How to symptom track & trigger hunt”
Next up…: Summaries & finishing off treatment list…

JayCS · March 6, 2022, 8:40am

2022-03-06, Sunday 10% - Acupuncture makes a little difference; overdoing it was fun!

17:30 3h music session with others for a service - deliberately overdid it to see what happens: pain is ‘only’ 4, but the “fatigue” is a stiffness and heaviness comparable with carrying a 40kg cement sack, movement down to 10 yrds per minute, shuffling, 3 mph cycling.
12:10 Still energy, despite pain and exhaustion.
quite a ‘good’ night & start, despite possibly overdoing it yesterday, mid-term effect of the acupuncture, I feel.

Triggers & resulting Symptoms

SLEEP (click for details): 8h15, up 3x (30') ✅, and ➔ Feeling 90% well, Ache 2 of 7 ✅, getting up: 80%/2 🧐

cold shower p0 Sleep 23:40-
1:40 5’ 90%/2 p0 st1 drink fw2’ air (burnt tongue)
3:30 5’ 90%/2 p0 st1 drink fw2’ air, dry, sore throat, bit burnt tongue.
5:30 20’ 90%/2 p0 st1 drink fw2’ (burnt tongue, nostrils, bit sore throat)
-8:25
Sum: 20+8h25-(5+5+20=)30’ = 8h45-30’ = 8h15, up 3x (30’)

ACTIVITIES (aiming for 40% - well 20% - physical activity of pre-fibro) ➔ ACHE: waking, music “working” ➔ 80%/2, after 3h music session 80%/4, but hardly able to move for stiffness & fatigue, head & face not OK, but feeling good inside all the same, so “80%”.
(e.g. cycle , TT , meetings/social , mask , kids , work ➔ ?80%/2) ?
ACTIONS ➔ PAINS:

Treatments

Docs:
GP - Monday: Mg level instead of just stopping it?
Psychotherapist - Tuesday: Do I talk too medical? (details on Saturday’s entry)
Chinese Acupuncturist - Tuesday: Change pillow and roll. Do less.
Cardiologist - April: Atorvastatin vs. rupatadine?

WHB (3 rounds) 12:35 1’20’’, 1’30’’ 1’50’’ 1’30’’ 50’’(!) 1’
RIBOSE: 13:55 5g.

SELF-PHYSIO (click for details): 1h54... ✅. Combine. List-prioritize: next.

aloe vera 1’, facetime 2x1’, airing 4x2’, cold shower (10’), cream fc/ey/hd/ft 3x1’, teeth 2x2’, HWB 1x3’, breath exercises 3’, Timing, hunchback-pillow 10’, cross-legged 20’+25’, breath-hold 25’
Combine: next? palpate 1’, belly 3’, back 12’, horse stance 1’,
Pain, Stress, Energy: 3 Common Acupressure Points Everyone Should Know (Pain, Stress, Energy) - YouTube
hair/nails 3’, neck 1+ 2’, neck 2 4’, plantar/calf stretch 5’, twist-stretch 5’, loins 5’, yoga/stretching 5’, jolt-jump 1’, marionette-hang 1’, workout 7’, hand-exerciser 3’, massage gun 20’, shaking dance 1’, acupressure 6’, bent leg fall 1’, Y. Nidra 20’, calendula/tea tree x1’.

Supps (Feb 25th: 29): Supp costs: ~344€/m. CHANGE: Tried 1x.5g NADH after the music session. Passionflower .35g 3/d or 4/d? March 5th: Replaced ubiquinol with ubiquinon, and added PEA for pain (C3-batch) and replaced Look for better honokiol. DAO? RIBOSE? PLANNED/TAKEN TODAY: click for details:

ZERO now: Arg, B3/Nia, Mum, Mg Gly 50mg, Mg Mal 45mg, Nc 1*.5g, (Nd), (Rib), Pe, Ps, Se, Sr 31125k, Zn.
REGULAR as of Feb 25th (29 incl. now Cu, pine, Pf, Rho, not Zn during Cu): ALA .2g, B2 2*.1g, B12 5mg/2m, C 2*.5g, Cr 31g, Cu 1x, DAO before meals, D3 1/w, EGCG (50%, incl. theanine?).5g, EllagicA .2g (+43mg vit. C), Fev .4g (+.2g MSM), Ga: 4*.6g+.4g=~2.8g, Gi 3*?, Glu:~0.8g, Hon (2%).4g=8mg, Luteolin .2g, Ω3 5mg, P5 27mg, Pf 3-4.35g, pine bark 2*.5g, Pq 1, Q10 (ubq) !1*.1g/d, Qc 4*.5g/d, Rs (50%) 2*.4g, Ro 2*.3g(+9mgC), Sa .1g, Sily (80%)*.5g (+83mg L-cholin) , The .2g (+.15g polyphenols).
What-when-details: Updated Feb 15th (before: see the reference post)
/21:30 A1/2 “19:00” PF#1 Cr#1 0mal#1+2 P5P (0Se) PQQ Ω3 & Qc. Meal: DAO.
/22:40 A3 “21:00” PF#2 .6 GABA&.4glu#1 & Lut (slp!) & Qc +0NAC
Chamomile tea.
/23:40 A4 “23:00” PF#3 .6 GABA&.3glu#2 & Ellagic acid + Rupafin
/01:40 B1 “01:00” PF#4
Heating on! Warm shower?
/08:40 B2 “07:00” +ALA+2x pine bark, (teeth) +!Ro
/08:40 B3 “07:00” (-30’) Q10#1 Qc#1 Rs#1 SAM-e
/08:40 B4 “07:00” EGCg + Fev/MSM + Sily
/08:55 +1 rupatadine to see if it can improve the ‘burnt’ tongue.
/09:40 C1/2 “MEAL!” 2Cr#2 .6GAB#3, (C2:) .1gB2, gink#1, Cu or Zn 1xHon! DAO?
/09:40 C3 “MEAL” .5gC#1 2The2 (0NAC)+PEA
/12:05 C4 “11:00” (+2h/) gi#2 0gly#1. Nd#? & Ellagic acid
0 DAO (D1) “13:00” 0psyllium
/13:55 D2/3 + 5g Ribose “15:00” .5gC#2,Cr#3,!.6GA#4,gink#3,0gly#3+4, 0NAC#5 DRINK!
/18:05 + NADH D4 “17:00” (“meal/acids+2h”) Qc#4.Rs#2, Nd#? +!Ro
eve:
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; next: Mar 10th.)

The day's 16 compartments (10', plus 5' making capsules)

Pf: A1+3+4+B1, B2:A1+C2 C:C3+D2 3x2Cr: A1+C1+D2, Ell: A4,C4. Ga: A3,A4,C1,D2, Glu: A3,a4 Gi: C2,C4,D3 0x2Gly0x2Mal: 0C4+0D3,0A2 Qc: A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: A2:P5 A3: Luteolin A4: Rup! B2: ALA+2 pine B3:Sa+Q1 (->ubiquinone <150mg/d!) B4: EGCG&Fev/MSM&Sily C2:Cu(0Zn)&Hon C3:2Th+PEA (A2:Ω/Pq:meal) DAO before every meal.
(A2:0Se), (B2:0mu), (5NADH if nec.) (D1:0Pe). (0 Nia) (0Nc: A3, B1,C1,C3,D2) (0Sr: B1,C4,D4)

Development

I’ve taken off “HOW DO I LOOK?” as a category, since I almost always look tired and pale, and the ‘white lips’ would seem to be Raynaud, so indirectly relevant, but not directly. But I can still get “minute points” every time I check.
Jab-sfx/MCAS/antihistamine:
8:45 Still burnt tongue tip, sore throat’ll probably decrease, whilst nostrils got free at night during the slightly longer sleep break already. 8:55 trying rupatadine.
12:05 nothing has helped the burnt tongue. Strong pee urge at 11:00, bladder pain now. Fatigue still OK, despite a lot of music work, however more sitting today, up to now.
’Research’ today: Nope.
Lessons in self-care #242 Might take a while to recover from today, let’s see. Worth it!
Reasons to be cheerful #250 Finishing off music, plus gig.

1st Jab-sfx-summary, last edit: Feb 7th.
My blog references, e.g. abbreviations, supp chart/overview
My “How to symptom track & trigger hunt”
Next up…: Summaries & finishing off treatment list…

JayCS · March 7, 2022, 6:58pm

2022-03-07, Monday 10% - overdid 3 games, pain up from 3 to 5, but fatigue OK - again acupuncture decreasing the fatigue, I think. Trying to get used to the pain.

9:00 cancelled dentist… interesting experiment in wake-sleep: to test if I was sleeping I tried several times to imagine where I live now and where I used to live, and I wasn’t able to, around the 5th or 6th time I managed via now imagining the place, but the address, and then I could picture, but only roughly, what the front looks like… dunno what that counts as: lucid dreaming, sort of?

Triggers & resulting Symptoms

SLEEP (click for details): 7:30, up 2x (15') ✅, but ➔ Feeling 90-70% well, Ache 2-3 of 7 🧐, getting up: 80%/3 ❌

cold shower p0 Sleep 00:45- HWB
3:30 10’ 90%/2 p0 st1 drink fw2’ air B1
5:10 5’ 70%/3 p0 st1 drink fw2’ air nostrils/tongue: acupressure/breath ex.
20’’ 2nd shower cold and/or warm (nostrils)! HWB! Chatter: GABA-speck? SUPPS & AIR 1st!
7:00: Heating on!
-8:30
Sum: 8:30-45-(10+5=)15 = 7:30, up 2x (15’)

ACTIVITIES (aiming for 40% - well 20% - physical activity of pre-fibro) ➔ ACHE: Pain etc. from overdoing it in the music session yesterday went down a bit doing some fibro work revenge procrastination ➔ 70-80%/3-2. During TT pain went up ➔ 80-80%/3-5, but feeling OK, trying to get used to continual pain and still carrying on doing something. Same all day.
ACTIONS ➔ PAINS: Only MCAS symptoms.

Treatments

Docs:
GP - Monday: Mg level instead of just stopping it?
Psychotherapist - Tuesday: Do I talk too medical? (details on Saturday’s entry)
Chinese Acupuncturist - Tuesday: Change pillow and roll. Do less.
Cardiologist - April: Atorvastatin vs. rupatadine?

WHB (3 rounds) but lots of deep breathing
RIBOSE: unnecessary

SELF-PHYSIO (click for details): 1h17 ✅. Combine. List-prioritize: next. More deep breathing than breath-holding.

facetime 2x1’, airing 5x2’, cold shower (10’), cream fc/ey/hd/ft 2x1’, teeth 2x2’, HWB 2x3’, breath exercises 15’, Timing, hunchback-pillow 10’, palpate 1’, belly 3’, back 12’, acupressure 6’, aloe vera 1’,
Combine: next?
left foot on/under right knee/cross-legged 20’, Y. Nidra 20’, breath-hold 12’, hair/nails 3’, neck 1+ 2’, neck 2 4’, plantar/calf stretch 5’, twist-stretch 5’, loins 5’, yoga/stretching 5’, jolt-jump 1’, marionette-hang 1’, workout 7’, hand-exerciser 3’, massage gun 20’, shaking dance 1’, bent leg fall 1’, horse stance 1’, calendula/tea tree x1’, .

Supps (Feb 25th: 29): Supp costs: ~344€/m. CHANGE: Stopping vitamin B2 this evening. Keeping passionflower at 4x.35g/d. Look for better honokiol. DAO: no. RIBOSE: no. PLANNED/TAKEN TODAY: click for details:

ZERO now: Arg, B3/Nia, Mum, Mg Gly 50mg, Mg Mal 45mg, Nc 1*.5g, (Nd), (Rib), Pe, Ps, Se, Sr 31125k, Zn.
REGULAR as of Feb 25th (29 incl. now Cu, pine, Pf, Rho, not Zn during Cu): ALA .2g, B2 2*.1g, B12 5mg/2m, C 2*.5g, Cr 31g, Cu 1x, DAO before meals, D3 1/w, EGCG (50%, incl. theanine?).5g, EllagicA .2g (+43mg vit. C), Fev .4g (+.2g MSM), Ga: 4*.6g+.4g=~2.8g, Gi 3*?, Glu:~0.8g, Hon (2%).4g=8mg, Luteolin .2g, Ω3 5mg, P5 27mg, Pf 3-4.35g, pine bark 2*.5g, Pq 1, Q10 (ubq) !1*.1g/d, Qc 4*.5g/d, Rs (50%) 2*.4g, Ro 2*.3g(+9mgC), Sa .1g, Sily (80%)*.5g (+83mg L-cholin) , The .2g (+.15g polyphenols).
What-when-details: Updated Feb 15th (before: see the reference post)
/20:30 A1/2 “19:00” PF#1 Cr#1 0mal#1+2 P5P (0Se) PQQ Ω3 & Qc. Meal: DAO.
/23:40? A3 “21:00” PF#2 .6 GABA&.4glu#1 & Lut (slp!) & Qc +0NAC
/00:40 Chamomile tea.
/00:40 A4 “23:00” PF#3 .6 GABA&.3glu#2 & Ellagic acid + Rupafin
/03:30 B1 “01:00” PF#4
Heating on! Warm shower?
/08:30 B2 “07:00” +ALA+2x pine bark, (teeth) +!Ro
/08:30 B3 “07:00” (-30’) Q10#1 Qc#1 Rs#1 SAM-e
/08:30 B4 “07:00” EGCg + Fev/MSM + Sily
/11:40 C1/2 “MEAL!” 2Cr#2 .6GAB#3, (C2:) .1gB2, gink#1, Cu or Zn 1xHon! DAO?
/11:40 C3 “MEAL” .5gC#1 2The2 (0NAC)+PEA
/14:30 C4 “11:00” (+2h/) gi#2 0gly#1. Nd#? & Ellagic acid
15:00 0 DAO (D1) “13:00” 0psyllium
/16:20 D2/3 “15:00” .5gC#2,Cr#3,!.6GA#4,gink#3,0gly#3+4, 0NAC#5 DRINK!
/18:20 D4 “17:00” (“meal/acids+2h”) Qc#4.Rs#2, Nd#? +!Ro
eve:
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; next: Mar 10th.)

The day's 16 compartments (10', plus 5' making capsules)

Pf: A1+3+4+B1, B2:A1+C2 C:C3+D2 3x2Cr: A1+C1+D2, Ell: A4,C4. Ga: A3,A4,C1,D2, Glu: A3,a4 Gi: C2,C4,D3 0x2Gly0x2Mal: 0C4+0D3,0A2 Qc: A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: A2:P5 A3: Luteolin A4: Rup! B2: ALA+2 pine B3:Sa+Q1 (->ubiquinone <150mg/d!) B4: EGCG&Fev/MSM&Sily C2:Cu(0Zn)&Hon C3:2Th+PEA (A2:Ω/Pq:meal) DAO before every meal.
(A2:0Se), (B2:0mu), (5NADH if nec.) (D1:0Pe). (0 Nia) (0Nc: A3, B1,C1,C3,D2) (0Sr: B1,C4,D4)

Development

Jab-sfx/MCAS/antihistamine: Burnt tongue tip again. Most of the morning. I was thinking about saying it’s not the hazelnuts, but just the jab, but actually it might be those after all. Or is it the apple sauce? But here it says that’s OK: Grocery List- Low Histamine Diet – NAUGHTYLITTLEMASTCELLS and it’s not on the SIGHI list either. 15:10 tongue is hardly burning, I’ll now try apple sauce, no problem, then pumpkin seeds, then aloe vera (burns on the tongue a bit): 17:50 still hardly not burning, 18:20 now it is a little, altho I haven’t eaten, just drunken some almond milk; but I’ve been doing that all the time, it’d surprise me if it’s that…
Why have I got a wide red stripe on my left hand, which doesn’t hurt at all to touch?
Jemima asked me about luteolin for brain fog, which has made me realize that I am more alert now than a few months ago, e.g. I’m clearly winning almost every table tennis game, however bad my pain, stiffness & fatigue are. I also started 5 other new supps (EGCg, ellagic acid, feverfew, honokiol, silymarin) at the same time, however they have much less evidence for fog. Increasing ginkgo and GABA which are both definitely good for alertness, can’t have made that much difference,

’Research’ today: Looked up the 5 new supps and also proprioception, my ‘muscle sense’, which has got worse of late, did a finger-on-nose-eyes-closed-test which didn’t go well, and saw that vit. B6 can increase this. Doing the test quick works fairly well, but I’ve decided to stop the B6 as it’s only to support GABA, and a bit for sleep, and that’s not necessary.

Lessons in self-care #243 Testing how far I can go with less fatigue, but the pain is now 3-5 all the time, so I’ll ask the acupuncturist to focus on that.
Reasons to be cheerful #251Considering yesterday and not letting off today, I’m doing quite well!

1st Jab-sfx-summary, last edit: Feb 7th.
My blog references, e.g. abbreviations, supp chart/overview
My “How to symptom track & trigger hunt”
Next up…: Summaries & finishing off treatment list…

JayCS · March 8, 2022, 7:16pm

2022-03-08, Tuesday 10%-15% - good considering… from acupuncture, before & after…

Triggers & resulting Symptoms

SLEEP (click for details): 8h45, up 4x (25') ✅, and ➔ Feeling 70% well, Ache 2 of 7 🧐, getting up: 80%/3 🧐

cold shower p0 Sleep 22:30- Cold shower pretty painful - from acupuncture increasing pain?
0:40 5’ 70%/2 p0 st1 drink fw2’ air A4 cream
2:10 5’ 70%/2 p0 st1 drink fw2’ air B1 cream
3:30 10’ 70%/2 p0 st1 drink fw2’ air cream dry mouth → gel
6:30 5’ 70%/2 p0 st1 drink fw2’ air cream B2-4
-7:40
Sum: 1h30+7h40-(5+5+10+5=)25’ = 9h10-25’ = 8h45, up 4x (25’)

ACTIVITIES (aiming for 40% - well 20% - physical activity of pre-fibro) ➔ ACHE: psychologist ➔ 80%/2, still 10% activity, but a bit more like before acupuncture. Even managed 3 games with pain only starting then. Then acupuncture and cupping was OK today, ➔ 80%/2
ACTIONS ➔ PAINS:
MCAS/HIT-Triggers:
22:00 Cold showering was really tough, not funny at all, despite deep breathing a lot before. And my tongue tip started feeling burnt afterwards for a few minutes.
3:35 sore throat. Nostrils, sinuses & tongue tip still OK.
14:40 No burnt tongue tip since getting up! (despite aloe vera, ehm, no forgot, now, 14:45. Didn’t sting. Quite a bit of chocolate, no problem.)

Treatments

Docs:
Psychotherapist - today: No I don’t talk too medical…
Chinese Acupuncturist - Tuesday: No pillow, roll. Changed.
Cardiologist - April: Atorvastatin vs. rupatadine?

WHB (3 rounds)
RIBOSE:

SELF-PHYSIO (click for details): 82' ✅. Combine. List-prioritize: next. Not feeling the need to concentrate on this much, I spose because of the acupuncture. Deleting the new youtube exercises in the details from now on and backlogged, but keeping them in the template/"today".

facetime 2x1’, airing 6x2’, cold shower (10’), teeth 2x2’, HWB 2x3’, breath exercises 6’, Timing, cream fc/ey/hd/ft 5x1’, hunchback-pillow 15’, palpate 1’, belly 3’, back 12’, acupressure 6’.
Combine: next?
calendula/tea tree x1’, left foot on/under right knee/cross-legged 20’, Y. Nidra 20’, breath-hold 12’, hair/nails 3’, neck 1+ 2’, neck 2 4’, plantar/calf stretch 5’, twist-stretch 5’, loins 5’, yoga/stretching 5’, jolt-jump 1’, marionette-hang 1’, workout 7’, hand-exerciser 3’, massage gun 20’, shaking dance 1’, aloe vera 1’, bent leg fall 1’, horse stance 1’.

Supps (Feb 25th: 29): Supp costs: ~341€/m. CHANGE: Stopped vit. B6 (P-5-P). Look for better honokiol. DAO + RIBOSE: no PLANNED/TAKEN TODAY: click for details:

ZERO now: Arg, B3/Nia, Mum, Mg Gly 50mg, Mg Mal 45mg, Nc 1*.5g, (Nd), (Rib), P-5-P, Pe, Ps, Se, Sr 31125k, Zn.
REGULAR as of Feb 25th (29): ALA .2g, B2 2*.1g, B12 5mg/2m, C 2*.5g, Cr 31g, Cu 1x, DAO before meals, D3 1/w, EGCG (50%, incl. theanine?).5g, EllagicA .2g (+43mg vit. C), Fev .4g (+.2g MSM), Ga: 4*.6g+.4g=~2.8g, Gi 3*?, Glu:~0.8g, Hon (2%).4g=8mg, Luteolin .2g, Ω3 5mg, 0P5 27mg, Pf 3-4.35g, pine bark 2*.5g, Pq 1, Q10 (ubn) !1*.1g/d, Qc 4*.5g/d, Rs (50%) 2*.4g, Ro 2*.3g(+9mgC), Sa .1g, Sily (80%)*.5g (+83mg L-cholin) , The .2g (+.15g polyphenols).
What-when-details: Updated Feb 15th (before: see the reference post)
/20:05 A1/2 “19:00” PF#1 Cr#1 0mal#1+2 0P5P (0Se) PQQ Ω3 & Qc. Meal: DAO.
/21:30 A3 “21:00” PF#2 .6 GABA&.4glu#1 & Lut (slp!) & Qc +0NAC
/00:40 Chamomile tea.
/00:40 A4 “23:00” PF#3 .6 GABA&.3glu#2 & Ellagic acid + Rupafin
/02:10 B1 “01:00” PF#4
Heating on! Warm shower?
/06:30 B2 “07:00” +ALA+2x pine bark, (teeth) +!Ro
/06:30 B3 “07:00” (-30’) Q10#1 Qc#1 Rs#1 SAM-e
/06:30 B4 “07:00” EGCg + Fev/MSM + Sily
/09:25 C1/2 “MEAL!” 2Cr#2 .6GAB#3, (C2:) .1gB2, gink#1, Cu or Zn 1xHon! DAO?
/09:25 C3 “MEAL” .5gC#1 2The2 (0NAC)+PEA
/11:40 C4 “11:00” (+2h/) gi#2 0gly#1. Nd#? & Ellagic acid
DAO (D1) “13:00” 0psyllium
/17:55 D2/3 “15:00” .5gC#2,Cr#3,!.6GA#4,gink#3,0gly#3+4, 0NAC#5 DRINK!
/19:55 D4 “17:00” (“meal/acids+2h”) Qc#4.Rs#2, Nd#? +!Ro
eve:
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; next: Mar 10th.)

The day's 16 compartments (10', plus 5' making capsules)

Pf: A1+3+4+B1, B2:A1+C2 C:C3+D2 3x2Cr: A1+C1+D2, Ell: A4,C4. Ga: A3,A4,C1,D2, Glu: A3,a4 Gi: C2,C4,D3 0x2Gly0x2Mal: 0C4+0D3,0A2 Qc: A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: A2:P5 A3: Luteolin A4: Rup! B2: ALA+2 pine B3:Sa+Q1 (->ubiquinone <150mg/d!) B4: EGCG&Fev/MSM&Sily C2:Cu(0Zn)&Hon C3:2Th+PEA (A2:Ω/Pq:meal) DAO before every meal.
(A2:0Se), (B2:0mu), (5NADH if nec.) (D1:0Pe). (0 Nia) (0Nc: A3, B1,C1,C3,D2) (0Sr: B1,C4,D4)

Development

’Research’ today: Nope.
Lessons in self-care #244 Didn’t feel like acupuncture, but turned out good: like a cold shower.
Reasons to be cheerful #252 3 games of without pain is quite good going.

1st Jab-sfx-summary, last edit: Feb 7th.
My blog references, e.g. abbreviations, supp chart/overview
My “How to symptom track & trigger hunt”
Next up…: Summaries & finishing off treatment list…

JayCS · March 9, 2022, 7:32pm

2022-03-09, Wednesday 20%! - Chinese acupuncture working again, even better!

Triggers & resulting Symptoms

SLEEP (click for details): 8h18, awake 3x (37') ✅, but ➔ Feeling 80% well, Ache 2 of 7 🧐, getting up: 80%/2 🧐

warm shower (after acupuncture): hurt, skin. p0 Sleep 22:55-
0:40 30’ 80%/2 p0 st1 drink fw2’ A4 6 air cream
5:32! 5’ 80%/2 p0 st1 drink fw2’ 0B1 air cream. NO nostrils, hardly pee urge, slight sore throat, dry mouth, NO chamomile, NO HWB. Woken up only by this year’s blackbird - first concert!
7:00 2’ nostrils & tongue tip a bit.
-7:50
Sum: 1h05+7h50-(30+5+2=)37’ = 8h55-37’ = 8h18, awake 3x (37’)

ACTIVITIES (aiming for 40% - well 20% - physical activity of pre-fibro) ➔ ACHE: Managed 4xTT (4th game hurt, 3rd did NOT (much)) 80%/2 , some work & housework 90%/1 bit of rest, but also a bit on the move, e.g. cooking in the evening, often standing, always seeming to slightly overdo it, but it not seeming to matter…
ACTIONS ➔ PAINS: GI: aloe vera rest (midday) had mould in it, probably wasn’t the white cabbage after all. Lower back unrest, need to exercise better. GI: after midday I again had wind problems, without aloe vera or white cabbage… Continued with belly ache in the evening. What the heck is that?? Not the acupuncture, surely?
MCAS/HIT-Triggers:
1:05 nothing, not apple sauce, not chocolate. Next: yoghurt; hazelnuts.
5:30 4h sleep stint! NO nostrils, hardly pee urge, slight sore throat.
16:55 1h after eating almond yogurt no histaminey symptoms yet, tongue only very slight.
20:00 no almond yogurt, but hazelnuts with darkest chocolate. No histaminey problems.

Treatments

Docs:
Chinese Acupuncturist - Thursday: cushion under hunchback?

WHB (3 rounds) unnec.
RIBOSE: unnec.

SELF-PHYSIO (click for details): 55'!! ✅. PRIZE FOR NOT DOING MORE THAN APPARENTLY NECESSARY! ;-) Combine. List-prioritize: next.

facetime 2x1’, airing 6x2’, cream fc/ey/hd/ft 5x1’, teeth 2x2’, breath exercises 2’, Timing, hunchback-pillow 15’, palpate 1’, belly 3’, back 12’, twist-stretch 5’.
Combine: next?

Supps Mar 8th (27): Supp costs: ~341€/m. CHANGE: Stopped vit. B6 (P-5-P). Look for better honokiol. DAO? RIBOSE? PLANNED/TAKEN TODAY: click for details:

ZERO now: Arg, B3/Nia, Mum, Mg Gly 50mg, Mg Mal 45mg, Nc 1*.5g, (Nd), (Rib), P-5-P, Pe, Ps, Se, Sr 31125k, Zn.
REGULAR as of Mar 8th (27): ALA .2g, B2 2*.1g, B12 5mg/2m, C 2*.5g, Cr 31g, Cu 1x, DAO before meals, D3 1/w, EGCG (50%, incl. theanine?).5g, EllagicA .2g (+43mg vit. C), Fev .4g (+.2g MSM), Ga: 4*.6g+.4g=~2.8g, Gi 3*?, Glu:~0.8g, Hon (2%).4g=8mg, Luteolin .2g, Ω3 5mg, 0P5 27mg, Pf 3-4.35g, pine bark 2*.5g, Pq 1, Q10 (ubn) !1*.1g/d, Qc 4*.5g/d, Rs (50%) 2*.4g, Ro 2*.3g(+9mgC), Sa .1g, Sily (80%)*.5g (+83mg L-cholin) , The .2g (+.15g polyphenols).
What-when-details: Updated Feb 15th (before: see the reference post)
/21:00 A1/2 “19:00” PF#1 Cr#1 0mal#1+2 P5P (0Se) PQQ Ω3 & Qc. Meal: DAO.
/22:35 A3 “21:00” PF#2 .6 GABA&.4glu#1 & Lut (slp!) & Qc +0NAC
Chamomile tea.
/00:40 A4 “23:00” PF#3 .6 GABA&.3glu#2 & Ellagic acid + Rupafin
0 B1 “01:00” PF#4
Heating on! Warm shower?
/08:00 B2 “07:00” +ALA+2x pine bark, (teeth) +!Ro
/08:00 B3 “07:00” (-30’) Q10#1 Qc#1 Rs#1 SAM-e
/08:00 B4 “07:00” EGCg + Fev/MSM + Sily
/10:20 C1/2 “MEAL!” 2Cr#2 .6GAB#3, (C2:) .1gB2, gink#1, Cu or Zn 1xHon! DAO?
/10:20 C3 “MEAL” .5gC#1 2The2 (0NAC)+PEA
/14:45 C4 “11:00” (+2h/) gi#2 0gly#1. Nd#? & Ellagic acid
0 DAO (D1) “13:00” 0psyllium
/17:30 D2/3 “15:00” .5gC#2,Cr#3,!.6GA#4,gink#3,0gly#3+4, 0NAC#5 DRINK!
/19:35 D4 “17:00” (“meal/acids+2h”) Qc#4.Rs#2, Nd#? +!Ro
eve:
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; next: Mar 10th.)

The day's 16 compartments (10', plus 5' making capsules)

Pf: A1+3+4+B1, B2:A1+C2 C:C3+D2 3x2Cr: A1+C1+D2, Ell: A4,C4. Ga: A3,A4,C1,D2, Glu: A3,a4 Gi: C2,C4,D3 0x2Gly0x2Mal: 0C4+0D3,0A2 Qc: A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: A2:P5 A3: Luteolin A4: Rup! B2: ALA+2 pine B3:Sa+Q1 (->ubiquinone <150mg/d!) B4: EGCG&Fev/MSM&Sily C2:Cu(0Zn)&Hon C3:2Th+PEA (A2:Ω/Pq:meal) DAO before every meal.
(A2:0Se), (B2:0mu), (5NADH if nec.) (D1:0Pe). (0 Nia) (0Nc: A3, B1,C1,C3,D2) (0Sr: B1,C4,D4)

Development

’Research’ today: Nice fairly recent article (Galvez-Sánchez & Reyes del Paso 2020) showing the limits of current fibro diagnostic criteria: https://www.mdpi.com/2077-0383/9/4/1219/pdf
Lessons in self-care #245 Need to watch at least my supp times better, if not nec my exercises.
Reasons to be cheerful #253 Upwards?! ?

1st Jab-sfx-summary, last edit: Feb 7th.
My blog references, e.g. abbreviations, supp chart/overview
My “How to symptom track & trigger hunt”
Next up…: Summaries & finishing off treatment list…