2021-10-08, Friday - melatonin #V6 <<0.1mg wasn’t quite enough… but concise sleep & really fit - but…:
Now what a surprise: the fogginess resulted in 2 focal seizures, and no end. Just when I’ve started quite a few new supps at the same time. And all badly studied… SAMe? Mumijo? Melatonin?
Mumijo: Nothing found, taken once a small dose…
SAMe: https://www.coping-with-epilepsy.com/threads/anyone-know-of-or-had-success-with-same-or-sam-e-or-sam-e-or-sam-e.13379/: one experience… so possibly…
BUT ALSO Melatonin: Epilepsy and Melatonin – Yes? No? Or Maybe So? | Epilepsy Talk Possibly When very LOW DOSES … ahaa… administered at night… uhuuuh… It only helps epilepsy in high doses - which I don’t tolerate… Now I’m darned if I didn’t have some seizures in March/April when taking melatonin the first time… have a look… Now neither is conclusive, but my gut feeling is it’s the melatonin, which has always made me druggy-foggy… OK, I took my last melatonin April 6th to 8th, then stopped, seizures on 8th and 10th, at the time I didn’t see a relation to it. Mind you, the dose then was 1mg, but also feeling drugged all day.
I was gonna try just melatonin today, without passiflora, now it looks like the opposite - everything else apart from melatonin…
SLEEP: 7h31, up 6x (27'), plus 55' doze/AuTr = 8h26 ➔ Feeling 85% well, Ache 2 of 7 feeling the cold, then quickly ➔ ?90%/1✅
FCS p1 21:45-
22:56 3’ 90%/1 p1 st1 drink fw1’
00:18 5’ 90%/1 p1 st1 drink fw1’ theanine, GABA & 3rd passiflora, no heartburn
1:21 8’ 90%/1 p1 st1 drink fw1’. 1 spray of 1mg melatonin with passiflora (& peppermint!!), left in for 1’, then spat out superfluous liquid.
2:39 3’ 90%/1 p0 st1 drink fw1’ (druggier…) tea tree oil & lavender for slight nostril…
3:46 4’ 90%/1 p0 st1 drink fw1’ slightly nauseous & hungry from peppermint & tea tree: drink.
5:21 4’ 90%/1 p1 st1 drink fw1’ 2 SAMe, zinc, 2 serrapeptase
-5:43-6:00 17’ 6 90%/1 p0 st1 drink fw1’ doze/AuTr 41’
-6:41 3’ 90%/1 p0 st1 drink fw1’
-6:58 (= +14’ doze)
Sum: 2h15+5h43-(3+5+8+3+4+4=)27’=7h58-27’=7h31, up 6x (27’), plus 55’ doze/AuTr = 8h26
ACTIVITIES ➔ ACHE: cycling/work ➔ 90%/1, well work wasn't a problem, but bit strange, slight brain fog, not quite right ➔ 85%/1, well: that turned out to become focal seizures, one at about 14:00 during acupressure and 15:40 during table tennis. Not strong ones, I could make myself understood, but usually my mate only has to take over counting points for one game, this time for the rest of the time. That suggests to me it's one of the supps - my gut sez melatonin.
Ache = also Exhaustion/Tired ➔ ?90%/1
Cycle➔ exhaustion, also as action➔pains;
TT = Table-Tennis➔ easy or effortless or strained or tough?
talk/meetings here (and actions➔pains?)
ACTIONS ➔ PAINS: The new normal: Everything is OK ✅, except a bit ✅🧐: loins, stiffness & bladder.
Lying , standing , loins (), sitting , arms up , neck stiffness 90° , stiffness after poses , walking ?, fast cycling , bladder 4xp1 at night , GI: peppermint in melatonin spray , talking , mask-talking
Lie ➔ LBU = lower back unrest, hunchback, Neck, thighs, elbows, itch, cold/hot, nose stuffy
Stand ➔ Legs, back
Knees up ➔ right loin
Arms up ➔ pain
Sit ➔ Backside, lower back
Pose ➔ stiffness (Stiffness after holding a posture): Time 0-60’’, pain amount if faster.
Walk ➔ Elbows, feet, right knee
Cycle ➔ Feet, knees, backside, elbows, hands, neck
Drink ➔ Pee frequency, pain before peeing (p0-6).
Eat ➔ Esophagus block, stomach, gut, rectum, stool (IBSD?). GI for short
Talk➔Jaw (& Ache)
Mask-talk ➔ not sure how to describe it, just plain yucky.
SELF-PHYSIO: 65' ✅, fibro-work (fw) stopping, since it's not much at the mo
Timing, AuTr 15’, hunchback-pillow 15’, cold shower (10’), palpate 1’, belly 3’, back 7’, V 1’, back of leg stretch 2’, workout 5’, marionette-hang 2’, neck 1+ 4’,
neck 2 10’, twist-stretch 10’, loins 5’, yoga 5’, gums 2x30’’, mirror 2’, shaking dance 1’, breath-hold 11’, RR x2’, HWB 3’, *
fw: Night: 10 + 10
THERAPIES: So... loins at acupressure today, I spose... Yup, and with good effect. But focus was on the drugged feeling and seizures afterwards.
Acupressure / Therapy, Doc/Diagnoses ? Acupressure 2h Tues & 2h Fri:
Supps to KEEP UP: SLEEP: 1.2g passiflora, GABA, glutamine & theanine, <0.1mg melatonin earlier; not every night, or less ✅, 2x serrapeptase before sleep(?) ✅, Inflammation: 5:30 serrapeptase (more?) 🧐, SAMe (more!) 🧐 & zinc (🧐); tea tree oil ✅; 20:00 More rose root, Mumijo (anti-inflammatory & IBS), P5P (serotonin/GABA) 🧐, WAKE/FOG: 8:00 GABA & theanine ✅ & Mg malate, Mg glycinate 🧐, ACHE: Serrapeptase 🧐, ENERGY: Ribose 🧐, clotted nostril: tea tree oil ✅🧐
For heartburn: Almonds first.
Supps TAKEN TODAY: Melatonin can increase REM dream time, I just saw on wp; P5P, Mumijo new; everything even earlier (by 0:20), but awake every hour, so tried 1 melatonin spray, spitting 0.5mg out after 1', peppermint a bit tough on acid, has to stay an exception.
/20:05 P5P, Mumijo, 1x425 passiflora, selene, rosewort/magnesium carbonate/B1 at meal,
/21:35 600mg GABA & 500mg !glutamine, !2 serrapeptase, (earlier:) 2nd !1x425 passiflora, melatonin <0.1mg
/00:20 !300mg theanine & !600mg GABA & !3rd 1x425 passiflora (earlier!) NO HEARTBURN!..
/01:21 1 spray of 0.5mg melatonin with passiflora (& peppermint!!), left in for 1’, spat out.
/2:40 tea tree oil
/5:25 2 SAMe, zinc, 2 serrapeptase.
/7:05 !600 GABA+500mg theanine, 2 Mg malate, 2 glycinate.
/9:20 1 serrapeptase
forgot: ?8:35 2 NAC & Ribose 2.5g
?14:00 2 Serrapeptase, 2 malate, 2 glycinate
?18:00 2 Serrapeptase, 2 NAC.
night: tea tree under nostrils, lavender behind ear, tea tree oil on gums.
day: 2nd 2x malate, Ribose, serrapeptase, arnica on elbow, Tea tree oil on gums. ?NAC.
Supps UP NEXT: WAKE/FOG/FATIGUE: 1) SAMe up to 800mg. 2) Ribose up to 6x2,5 (sfx?) 3) NAC. 4) ALC (LC) 4) mg glycinate? 5) order glycine? 6) order NADH/+ +SLEEP: melatonin before sleep, try without serrapeptase or passiflora. Less glutamine at night, more at day?? 🧐 +STIFFNESS/Bladder: ? SUPPS Info:
A Homeopathy: Schüssler 2, 4, & 7 (need 3-6 months sez my acupressurist).
Glutamine for stiffness/gait?: Low Dopamine in Fibromyalgia and CFS
Mumijo: chronic pain (as well as IBS): Mumijo attenuates chemically induced inflammatory pain in mice - PubMed (2015)
Anti-ulcer activity: Ulcer healing activity of Mumijo aqueous extract against acetic acid induced gastric ulcer in rats - PubMed (2015)
German link: Mumijo – Das schwarze Naturheilmittel
NAC -2400mg: NAC = N-acetylcysteine
D-Ribose: muscle fatigue, ATP; GI-sfx, [so keep under 500mg? per serving? No sugar allowed - #7 by Lynne and lots more; little evidence.
Rose root: Increase to 2-3x200mg for serotonin etc. as well as blood pressure (normal now)?
Vitamin B12: injections again?
SAMe: 400-800mg in the mornings, pain, stiffness, sleep, mood, sfx: GI, bladder, dry mouth, sleep. SAMe - #2 by Anne
Acetyl L-Carnitine (ALC)?: LC first? A for Alert brain, dose: 2x750mg, for no sfx keep under 3000. Question about kinds of pain | Page 2 | Fibromyalgia Forum.
Bentonite or medicinal clay never stopped my gastric acidity in my twens.
NADH/NAD+: Serrapeptase & NADH/NAD+ - enzymes - #4 by JayCS B3-coenzyme for energy & post exertional malaise.
D) Yoga Nidra on youtube.
E) Real Chinese-trained acupuncture?
F) Fibro-doc 200km from here?
G) Repeat?: 10% CBD oil, 5-HTP, ashwagandha.
Shortening & focusing the entries to the new normal…
Less “Pains”: Since acupressure has improved loins and neck, all pains are either pretty good or stable at a minimal level, like bladder. I’m still working on bladder, stiffness and always on GI, but I don’t have to note it any more.
“Acupressure” feels like reaching it’ll be coming to a close in a few weeks or months.
The supps etc. are also tending to an end point, I feel.
Less “Fibro-Work”: Not doing that much at the moment, and definitely not too much, which used to be the reason to keep track of it. But
Let’s see where this blog’ll go.
I’m still interested in exploring recent studies more…
- Highlights week 20th to 26th.
- My “How to symptom track & trigger hunt”
- Next up: Finishing off the treatment list & spreading that.
Abbreviations & explanations
Entries start with night meds & sleep, before triggers/symptoms & treatments, because the “night before” is vital. So Fri-day starts with Thursday night, the night before Friday.
Pain "7" = crying (/out) point; my 1 is others 2-3, and due to pacing/treatments
My wife says my 7 is other people’s 12. 1 is probably 2-3. Due to pacing, keeping work down to 25% (12h/wk) and all my treatments (acupressure, GABA) and physio self-treatments I manage to keep getting my pains & Ache down quickly. 3 usually means the Ache, not pains; these I address individually, often automatically and on the fly now, e.g. twist-stretching everything or something specific after getting up.
TIME DATA, e.g. ' = mins, h = hours, 18:10:40', date YYYY-MM-DD
’ = mins = minutes, ‘’ = secs = seconds, h is hours as time length, 3h is 3 hours long, 3:00 is 3am, 15:00 is 3pm. 18:10:40’ means 40 minutes, starting at 18:10, = 10 minutes past 6pm up to 10 to 7pm. The date is the logical digital standard: YYYY-MM-DD.
SLEEP: slp, w, lbu/LBU, RLS, p, i
slp = sleep; reasons for getting up: w = (a)wake, lbu/LBU: lower back unrest (‘RLS’?), p: pee, p2: pain 2 of 7 before peeing, i: ideas.
ACTIVITIES: TT, e.g. "5:1"
TT = table tennis, 5:1 = score, usually showing how well I’m feeling: energy, relaxedness & alertness if the first number is much higher than the second.
SUPPS: supplements (as opposed to herbs & meds). Fx: Effects. Sfx: Side effects.
SELF-TREATMENTS (about everything else...)
The self-treatments listed are only things that I’m spotlighting & rewarding myself for at the mo by counting them; much of what I do at night is self-treatment to get back to sleep or alleviate (1-2h/d), certain regular movements at daytime, like twist-stretching (30’), writing this blog is self-treatment (30’-60’/d), and the further fibro-work is an indirect form.
Self treatments are usually preventative or always have the same positive effect (e.g. cold showering improves Ache and sleep) - at least I do them for that - and I use “” to show what I’m doing to alleviate something and mark it off in the details “/” whether it works well enough for a time or doesn’t’, e.g. Ache cold fast shower “”
fw = fibro-work, meaning reading and writing this blog, the reference base, on 4 fibro-forums and researching fibro-stuff on the web.
AuTr = Autogenic Training (usually to actively get - back - to sleep, so counting it as sleep and AuTr…),
FAT Flash/fast autogenic training: immediate image of dreamy floating in space or liquid from jaw to legs.
cold/FCS = Flash Cold Shower (20’’-60’’) , I count it as 10’ tho. At night with ear plugs & all lights off.
breath-hold/WHM-B-H = Wim Hof Method Breath-Holding,
Neck 1 is stretching top right to bottom left, vice versa & sky/ground, neck “1+” is stretching far further diagonally downwards, neck 2 is pressing my head against my hand “without moving”, left right and front.
loins = loins/groin = stretching the ligaments there.
ex = exercises
HWB = Hot water bottle,
RR = bp = blood pressure (Riva Rocci), plus pulse. Used to be normal, plus sometimes white coat syndrome, went up since fibro, seems to have gone down again enough so I’ve not only stopped lercanidipine, but also candesartan and am checking RR regularly.
“V” for loins = lie on back, legs up and let legs fall to sides;
twist-stretching more for the loins
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