JayCS’s Fibro Blog

Freedom: Thanks for your insight and inspiration here! I’m trying… :roll_eyes: - still often stays black tho.
Strongly reminds me of “The Shack” - were you involved? :sweat_smile:
baby blue VW - is that the old (German) beetle?! :hugs:

I was wondering what kind of a “natural path” they were “seeing” (visualizing? - remembering the post above), now I realize it’s a lovely typo for naturopath… :sweat_smile:
BTW: Are these more functional docs or non-medical, like German “Heilpraktiker”?

As you know diet helps me for GI & blood fats, but not FM. Vitamins don’t help me either.
I know several people who’ve said they take/took the 20.000 IU of D3 several times a week or daily, which I know is the normal max for a week and which I take. Just looked up that overdosing seldom happens, in such a case someone was taking 10x that amount per day!
I did try very high dosage of B12 injections (5mg), so my levels rocketed, but in B12 what’s not needed just goes thru the body without harming it. Overdosing some other B vitamins can cause problems too (B3 and B6 I think most?).

I spose the difficult thing about about the supps I’m taking is
:one: they aren’t the normal ones (they never helped), so there are only few leads, it’s trial & error,
:two: my body reacts over-sensitive and sometimes a bit unusual,
:three: I’m changing a lot quickly, which is a lot of progress, but also sometimes tough setbacks,
:four: there’s apparently no one basic thing which’ll cure everything, so
:five: I’ll probably stay stuck with taking 15 supps, spread over 10x ‘servings’ per day/night.
:six: I have to make many capsules myself, which is still a bit “consuming & confusing”…

But
:seven: I can rely on changing supps quickly, my body doesn’t seem to change much,
:eight: Once I’ve got thru the list, I can start rationalizing and habituating the process faster…

And: They really are helping me considerably and reliably!

2021-10-04, Monday (v4: 18:55) - Repercussions of Friday night are still challenging - wait, no: this is melatonin killing me, like in March, even 10% of that dose isn’t right for me.

Triggers & resulting Symptoms

SLEEP: 9h46, up 6x (29') (-1h dozing?: 8h45) ➔ Feeling 90% well, Ache 1 of 7 ✅. Still not enough/right.

FCS p3 21:55-
23:25 6’ 90%/1 p0 st1 drink fw2’ !1x425 passiflora & !500mg theanine & !600mg GABA & !500mg L-glutamine & 0,3mg melatonin
0:59 6’ 90%/1 p1-2 st1 drink fw1’ heartburn → soy drink, 1x425 passiflora & arnica cream
2:21 4’ 90%/1 p1-2 st2 (falling around) drink fw2’ heartburn → soy drink
4:07 3’ 90%/1 p0-1 st2 drink fw1’ still pretty drugged from melatonin. Arm muscles around elbows hurting from hedge trimming Saturday.
5:12 3’ 90%/1 p0 (no urge) st1 drink fw1’ like above, + hungry. SAMe 1 zinc,serrapeptase. hot flash → clothes off
6:40 7’ 90%/1 p0 st1 drink fw1’ nose clot → lavender gel :white_check_mark: (even lying on the same side, but then opens slower) dozing all the rest??
-8:10 !600 GABA + !500mg theanine, !2x400 malate.
!2x400 malate.
Sum: 2h05+8h10-(6+6+4+3+3+7=)29’=10h15-29’=9h46, up 6x (29’) (-1h dozing?: 8h45)

ACTIVITIES ➔ ACHE: ➔ 80%/1 ("feverish", "heavy eyes" and a bit "heavy brain", maybe the melatonin, energy is sort of there, but I can't trust it, nor my thinking, both is changing all the time from one minute to the next), work/mask-talking/commuting ➔ 80%/1, a little housework/eating/resting ➔ 80%/1, TT relaxed, but lost, collecting bike after repair ➔ 70%/3-4 (tired, feverish, left arm hurting, exhausted), serrapeptase

Ache = also Exhaustion/Tired :white_check_mark: :x: :face_with_monocle: ➔ ?90%/1
Cycle➔ exhaustion, also as action➔pains;
TT = Table-Tennis➔ easy or effortless or strained or tough?
talk/meetings here (and actions➔pains?)
Grandchild➔
Work/Mask-talking➔
Socializing/Talking➔

ACTIONS ➔ PAINS: Lying ✅, standing ✅, loins ✅, sitting ✅, arms up ✅, muscles under elbows on both sides still hurting (prolly sore from yardwork on Sat.) , esp. left pain 3 of 7 where I tried to trigger point ❌, neck stiffness 90° ✅, stiffness after poses ✅🧐, fast cycling, despite exhaustion ✅, bladder 3xp1-2 ✅, GI: loose first ✅🧐, talking ✅, mask-talking ✅ (seems generally better, despite always wearing a good mask)

:white_check_mark: :x: :face_with_monocle:
Lie ➔ LBU = lower back unrest, hunchback, Neck, thighs, elbows, itch, cold/hot, nose stuffy
Stand ➔ Legs, back
Knees up ➔ right loin
Arms up ➔ pain
Sit ➔ Backside, lower back
Pose ➔ stiffness (Stiffness after holding a posture): Time 0-60’’, pain amount if faster.
Walk ➔ Elbows, feet, right knee
Cycle ➔ Feet, knees, backside, elbows, hands, neck
Drink ➔ Pee frequency, pain before peeing (p0-6).
Eat ➔ Esophagus block, stomach, gut, rectum, stool (IBSD?). GI for short
Talk➔Jaw (& Ache)
Mask-talk ➔ not sure how to describe it, just plain yucky.

Treatments

SELF-PHYSIO: 68' ✅, fibro-work (fw) 38

:white_check_mark: Timing, AuTr 10’, hunchback-pillow 10’, cold shower 1x(10’), palpate 1’, belly 3’, back 7’, V 1’, neck 1+ 1’, loins 3’, marionette-hang 6’, twist-stretch 15’, yoga 1’,
:x: neck 2 10’, gums 2x30’’, mirror 2’, shaking dance 1’, breath-hold 11’, RR x2’, HWB 3’, workout 7’

fw: Night: 8 + 15 + 10’ + 5*

THERAPIES: My idea for the next psychotherapy session is to 'paint a picture' of my wife in words as regards our relationship.

e.g. me having to spell things out, often heart :heart: on two legs, but anger cap :right_anger_bubble: (playing cards, being hangry and quite often), counselling sorts etc. tried (6?), what always happened when we/she were/was there, past, de-steri/marrying, difficulty accepting loving or kind words…
Acupressure / Therapy, Doc/Diagnoses ? :white_check_mark: :x: :face_with_monocle: Acupressure 2h Tues & 2h Fri:

Supps to KEEP UP: amounts, spacing everything out/reducing: Selene, rosewort etc., SLEEP: stop tryptophan, 4x passiflora, GABA & theanine ✅, Inflammation: 5:30 serrapeptase 🧐, SAMe 🧐 & zinc (🧐); tea tree oil ✅ WAKE/FOG: 8:00 GABA ✅, theanine ✅ & malate 🧐, PAIN: Serrapeptase 🧐, ENERGY: Ribose 🧐, PAINS: arnica cream 🧐, clotted nostril: lavender gel etc. ✅🧐

For heartburn: Almonds first.

Supps TAKEN TODAY: Melatonin still drugging & fevering me all day: stop! 🧐❌

/20:00 1x425 passiflora, selene, rosewort/magnesium carbonate/B1 at meal,
/20:30 "400"mg tryptophan (whoops, I’d wanted to stop it… oh well… )
/21:30 600mg GABA & 500mg !glutamine
/21:45 arnica & tea tree
/23:25 !1x425 passiflora & !500mg theanine & !600mg GABA & !500mg L-glutamine & 0,3mg melatonin
/1:00 1x425 passiflora & arnica cream
/4:05 & arnica cream
/5:15 SAMe 1 zinc,serrapeptase (empty tummy!),
/6:40 nose clot → lavender gel :white_check_mark: (even lying on the same side, but then opens slower)
/8:10 !600 GABA + !500mg theanine, !2x400 malate.
/10:15 400mg ribose before work helped
/16:30 400mg ribose before TT didn’t help.
/18:15 serrapeptase didn’t help.
/19:30 2nd !2x400 malate.
Arnica on elbow muscles not helping.
Tea tree oil on elbow helping.
?NAC.

Supps UP NEXT: Mumijo: anti-inflammatory & IBS: ordered. +WAKE/FOG/FATIGUE: 1) NAC for mitochondria, oxygen (may be good after mask?), praps reduces glutamine. 2) ALC (I have LC: orally or injected?) 3) order NADH/+ 4) try mg glycinate at daytime first. then 5) order glycine? +SLEEP: NAC might too, see links. Stop tryptophan! ❌: heartburn less? Stop melatonin!: hardly helping, tough sfx ❌. +STIFFNESS/Bladder: Not decreasing GABA/glutamine, just leaving it as it is. A) Schüssler B) SUPPS C) MEDS Info:

:arrow_upper_right: :arrow_lower_right:
A Homeopathy: Schüssler 2, 4, & 7 (need 3-6 months sez my acupressurist).

B SUPPS: Amino acids, Enzymes, Minerals, Vitamins
Amino acids: +B6 (as P5P), +Zn, +lithium orotate, more glutamine?, SAMe, glycine
1+2 Balancing GABA & glutamine: 1 Healthfully B6, 2 Perkins: Lithium orotate, Zn, 3 Jockers strange doses!? 4 Levy: vitamin B6, as P-5'-P?

1.1 Healthfully: tyrosine, tryptophan, B6, high complex carb early, low protein late"]
1.2 Zn Cynthia Perkins:: Low (<50mg) carb paleo, high animal protein; (Mg) Zn <40mg, lithium orotate 125-200mg, glycine often excitatory; praps, or not: taurine, vit. B6, SAMe, NAC, theanine"]

Glutamine/dopamine for stiffness/gait?!?: Low Dopamine in Fibromyalgia and CFS
SAMe: 400-800mg in the mornings, as stimulating, not much research.
SAMe - #2 by Anne (Sheila, links: Sahelian & webmd, now plus gapa)"]

NAC sleep -2400mg, better or worse

(N-acetylcysteine) as I wrote here (better liposomal) as glutamate antagonist and to help sleep is mentioned on the last link (CFS/ME, with fibromites there too) suggest 1800 or 2400 mg, whilst more causes - again - diarrhea. The last person on that page also says “I elevated my glutamate / GABA levels with excess taurine” and very importantly “Once elevated Glutamate seems to be slow to rebalance” - got to watch that!
NAC = N-Acetylcysteine
https://www.healthrising.org/blog/2021/09/09/mitochondrial-enhancers-chronic-fatigue-fibromyalgia-nac-n-acetyl-cysteine/ Antioxidant, normalize glutathione, 500-3600mg, sfx diarrhea, nausea, dry mouth, might help pain, fatigue, anti-inflammatory, antioxidant,
https://www.elizabethpavka.com/nutrition-articles/nutrient-articles/NAcetylCysteineforDepression,Fibromyalgie,IBS,Cancer%20Prevention,DetoxificationandMore.pdf anti-oxidant and detoxification, IBS & FMS
The future: intranasal?
https://www.healthrising.org/blog/2020/05/25/intranasal-drugs-chronic-fatigue-syndrome-fibromyalgia/
GI-Sfx! blood thinner (good)! Fibromyalgia - N-Acetyl Cysteine (NAC) Benefits and Side Effects | Health Rising's Chronic Fatigue Syndrome (ME/CFS) and Fibromyalgia Forums
Cysteamine and Cystamine? Therapeutic Applications of Cysteamine and Cystamine in Neurodegenerative and Neuropsychiatric Diseases - PubMed

NADH/NAD+ B3-coenzyme for energy & post exertional malaise.
Acetyl L-Carnitine (ALC)?: Drink as liquid… Or ask sleep lab psychiatrist to inject it? ALC’s helping Jemima feel alert, dose: 2x750mg, for no sfx keep under 3000. Needs to be Acetyl for the brain she sez. Question about kinds of pain | Page 2 | Fibromyalgia Forum.
D-Ribose: muscle fatigue, ATP; GI-sfx, so keep under 500mg; little evidence.
Zinc again (bloods are in the middle)? Watch out for the sfx!
Magnesium - glycinate yes or no? malate? “60mg” carbonate in the roseroot?
Increase rose root from 1x200mg to 2 or 3 for serotonin etc. as well as blood pressure (normal now)?
Vitamin B12 injections again?
Vitamin B6 as P5P?
Vitamin C ultra-high dose 7,5g, to be put in 250ml NaCl solution & injected - if I can ever find someone to inject it.
Mumijo (origin unclear) for chronic pain (as well as IBS): Mumijo attenuates chemically induced inflammatory pain in mice - PubMed (2015)
Anti-ulcer activity: Ulcer healing activity of Mumijo aqueous extract against acetic acid induced gastric ulcer in rats - PubMed (2015)
German link: Mumijo – Das schwarze Naturheilmittel
Bentonite or medicinal clay never stopped my gastric acidity in my twens.

C MEDS repeat?: levodopa, blood fat meds, blood pressure

levodopa: repeat 50mg (100mg seemed to increase LBU),
Ezetimibe+atorvastatin if blood fats don’t stay down - smaller dose if at all?
Candesartan if blood pressure doesn’t stay down.

D) RELAX: A bit more Yoga Nidra on youtube.
E) MERIDIANS: real Chinese-trained acupuncture? Pardon Our Interruption
F) DOC Fibro-doc 200km from here?
G) REPEAT? Again in specks/diluted: Melatonin, 10% CBD oil, 5-HTP, ashwagandha.

Development:

Lessons in self-care #83 Unclear if a meeting at work is taking place or not, so I didn’t go. :smile_cat:
Lessons in self-care #84 I’m generally toning down & improving prioritizing - hope more. :clap:
Reasons to be cheerful #87 Been on here 365 days in a row - who’d’ve thought? :smile_cat:

Abbreviations & explanations

Entries start with night meds & sleep, before triggers/symptoms & treatments, because the “night before” is vital. So Fri-day starts with Thursday night, the night before Friday.

Pain "7" = crying (/out) point; my 1 is others 2-3, and due to pacing/treatments

My wife says my 7 is other people’s 12. 1 is probably 2-3. Due to pacing, keeping work down to 25% (12h/wk) and all my treatments (acupressure, GABA) and physio self-treatments I manage to keep getting my pains & Ache down quickly. 3 usually means the Ache, not pains; these I address individually, often automatically and on the fly now, e.g. twist-stretching everything or something specific after getting up.

TIME DATA, e.g. ' = mins, h = hours, 18:10:40', date YYYY-MM-DD

’ = mins = minutes, ‘’ = secs = seconds, h is hours as time length, 3h is 3 hours long, 3:00 is 3am, 15:00 is 3pm. 18:10:40’ means 40 minutes, starting at 18:10, = 10 minutes past 6pm up to 10 to 7pm. The date is the logical digital standard: YYYY-MM-DD.

SLEEP: slp, w, lbu/LBU, RLS, p, i

slp = sleep; reasons for getting up: w = (a)wake, lbu/LBU: lower back unrest (‘RLS’?), p: pee, p2: pain 2 of 7 before peeing, i: ideas.

ACTIVITIES: TT, e.g. "5:1"

TT = table tennis, 5:1 = score, usually showing how well I’m feeling: energy, relaxedness & alertness if the first number is much higher than the second.

SUPPS: supplements (as opposed to herbs & meds). Fx: Effects. Sfx: Side effects.

SELF-TREATMENTS (about everything else...)

The self-treatments listed are only things that I’m spotlighting & rewarding myself for at the mo by counting them; much of what I do at night is self-treatment to get back to sleep or alleviate (1-2h/d), certain regular movements at daytime, like twist-stretching (30’), writing this blog is self-treatment (30’-60’/d), and the further fibro-work is an indirect form.
Self treatments are usually preventative or always have the same positive effect (e.g. cold showering improves Ache and sleep) - at least I do them for that - and I use “:arrow_forward:” to show what I’m doing to alleviate something and mark it off in the details “:white_check_mark:/:x:” whether it works well enough for a time or doesn’t’, e.g. Ache :arrow_forward: cold fast shower “:white_check_mark:
fw = fibro-work, meaning reading and writing this blog, the reference base, on 4 fibro-forums and researching fibro-stuff on the web.
AuTr = Autogenic Training (usually to actively get - back - to sleep, so counting it as sleep and AuTr…),
FAT Flash/fast autogenic training: immediate image of dreamy floating in space or liquid from jaw to legs.
cold/FCS = Flash Cold Shower (20’’-60’’) , I count it as 10’ tho. At night with ear plugs & all lights off.
breath-hold/WHM-B-H = Wim Hof Method Breath-Holding,
Neck 1 is stretching top right to bottom left, vice versa & sky/ground, neck “1+” is stretching far further diagonally downwards, neck 2 is pressing my head against my hand “without moving”, left right and front.
loins = loins/groin = stretching the ligaments there.
ex = exercises
HWB = Hot water bottle,
RR = bp = blood pressure (Riva Rocci), plus pulse. Used to be normal, plus sometimes white coat syndrome, went up since fibro, seems to have gone down again enough so I’ve not only stopped lercanidipine, but also candesartan and am checking RR regularly.
:new: “V” for loins = lie on back, legs up and let legs fall to sides;
:new: twist-stretching more for the loins
:white_check_mark: :x: :face_with_monocle: ➔ ⇄ ⇨➜ ➞ :arrow_right: ➲ ↔:⇰↔ →:arrow_upper_right: :arrow_lower_right:

↯ ↛ ↺ ↮ ⇝ ⇾ ⟹ ⭆ ⤮:

2021-10-05, Tuesday - turned out good after 0.1mg melatonin at 3:30!

Vaccine or no?: wait till I’ve optimized the supps before deciding; but according to a FM-poll it looks as if I’d have severe symptoms for >2 weeks + >30 days, even from the Pfizer vaccines, which’d probably be best for me. If at all I cd try the first one tho… see below.

1st time NAC didn’t help sleep at all, but 0.1mg melatonin surprisingly did a good job.

Triggers & resulting Symptoms

SLEEP: 7h39, up 6x (2h36) ➔ Feeling 90% well, Ache 1 of 7 ✅, first the new form of passiflora didn't seem to help, neither did 500mg NAC, but then 0.1mg (only) melatonin came to the rescue, letting me be awake at 8:30!

FCS p1 22:15-
23:49 3’ 90%/1 p0 st1 drink fw1’ passiflora & theanine & GABA.
Thinking about the vaccine before bed came up again now.
0:20 1h37 90%/1 p0 st1 drink fw1’ 6, 1:05 NAC -1:57 = 1h37, of that fw: 1h…
2:25 46’ Not feeling drugged like from melatonin, but not sleepy much. Thoughts have gone on from the vaccine to imagining various imagined scenarios, doing autogenic training and how best to clean out the loft of my other place, with good ideas developing. But I would like to sleep now. NAC hasn’t helped stop thoughts. Praps cold shower, FCS#2. -2:47 = 22’ + further NAC + vaccine research. -3:11 = 46’, 35’ of that fw
3:28 4’ 90%/1 p0 st1 drink fw1’: OK, I give up, I’m taking a speck of melatonin again, as I slept 1.5h and have now been pretty much awake or drowsing for >3.5h. the smallest bit so far, maybe 0.1 mg.
5:17 3’ 90%/1 p2 st1 drink fw1’ (feel drugged, but sleeping…)
6:47 3’ 90%/1 p1 st1 drink fw1’ (same)
-8:30 Wow! Not drugged, awake!
Sum: 1h45+8h30-(3+1h37+46+4+3+3=)2h36 = 10h15-2h36 = 7h39, up 6x (2h36)

ACTIVITIES ➔ ACHE: Waking up and doing 3h of music production ➔ 90%/1! fast cycling ➔ 90%/1, acupressure ➔ 90%/1, TT dead easy 70' (& talking) ➔ 90%/1

Ache = also Exhaustion/Tired :white_check_mark: :x: :face_with_monocle: ➔ ?90%/1
Cycle➔ exhaustion, also as action➔pains;
TT = Table-Tennis➔ easy or effortless or strained or tough?
talk/meetings here (and actions➔pains?)
Grandchild➔
Work/Mask-talking➔
Socializing/Talking➔

ACTIONS ➔ PAINS: Lying ✅, standing ✅✅, loins ✅, sitting ✅, arms up, elbow muscles better at last. ✅, neck stiffness 90° ✅, stiffness after poses ✅, walking ?✅❌🧐, fast cycling ✅❌🧐, bladder 1xp1-2 ✅, GI: heartburn without tryptophan only slight. ✅, talking ✅, mask-talking ✅❌🧐

:white_check_mark: :x: :face_with_monocle:
Lie ➔ LBU = lower back unrest, hunchback, Neck, thighs, elbows, itch, cold/hot, nose stuffy
Stand ➔ Legs, back
Knees up ➔ right loin
Arms up ➔ pain
Sit ➔ Backside, lower back
Pose ➔ stiffness (Stiffness after holding a posture): Time 0-60’’, pain amount if faster.
Walk ➔ Elbows, feet, right knee
Cycle ➔ Feet, knees, backside, elbows, hands, neck
Drink ➔ Pee frequency, pain before peeing (p0-6).
Eat ➔ Esophagus block, stomach, gut, rectum, stool (IBSD?). GI for short
Talk➔Jaw (& Ache)
Mask-talk ➔ not sure how to describe it, just plain yucky.

Treatments

SELF-PHYSIO: 71' ✅, fibro-work (fw) 1h50

:white_check_mark: Timing, AuTr 30’, hunchback-pillow 10’, cold shower 2x(10’), palpate 1’, belly 3’, back 7’,
:x: neck 1+ 9’, neck 2 10’, twist-stretch 10’, loins 5’, yoga 5’, gums 2x30’’, V ‘, marionette-hang 1’, mirror 2’, shaking dance 1’, breath-hold 11’, RR x2’, HWB 3’, workout 7’

fw: Night: 1h40 + 10’*

THERAPIES: Further relationship stuff for next week's therapy.

Rigid - hardly possible to “play”, with words or actions…
Acupressure / Therapy, Doc/Diagnoses ? :white_check_mark: :x: :face_with_monocle: Acupressure 2h Tues & 2h Fri:

Supps to KEEP UP: SLEEP: 4x passiflora, GABA & theanine ✅, Inflammation: 5:30 serrapeptase 🧐, SAMe 🧐 & zinc (🧐); tea tree oil ✅ WAKE/FOG: 8:00 GABA ✅, theanine ✅ & malate 🧐, PAIN: Serrapeptase 🧐, ENERGY: Ribose 🧐, PAINS: arnica cream 🧐, clotted nostril: lavender gel etc. ✅🧐

For heartburn: Almonds first.

Supps TAKEN TODAY: Managed to prepare supps earlier. Leaving tryptophan decreased heartburn ✅ and is less complicated ✅; 1st 500mg NAC didn't help sleep ❌; melatonin 0.1mg did ✅. This passiflora doesn't seem to be helping like my other product ❌. Nostrils freer from lavender / tea tree oil ✅. Questioning when best to take glutamine 🧐 and theanine 🧐 at night.

/19:50 1x425 passiflora, selene, rosewort/magnesium carbonate/B1 at meal,
/22:00 600mg GABA & 500mg !glutamine
/22:00 arnica & tea tree
/23:50 2nd !1x425 passiflora & !500mg theanine & !600mg GABA
/1:05 500mg NAC + 3rd 1x425 passiflora
/3:30 melatonin 0.1mg did a good job for once.
/5:15 SAMe, zinc, serrapeptase.
/10:05 !600 GABA + !500mg theanine, !2x400 malate. Bit late.
night: lavender/tea tree under nostrils and behind ear, arnica on elbow, tea tree oil on gums. :white_check_mark:
day: 2nd malate, Ribose, serrapeptase, arnica on elbow, Tea tree oil on gums. ?NAC.

Supps UP NEXT: Mumijo: anti-inflammatory & IBS: ordered. +WAKE/FOG/FATIGUE: 1) NAC for mitochondria, oxygen (may be good after mask?), praps reduces glutamine 🧐. 2) ALC (I have LC: orally or injected?) 3) order NADH/+ 4) try mg glycinate at daytime first. then 5) order glycine? +SLEEP: NAC might too, but links only show a little evidence/arguments, schoolafm makes me think I shd reduce try reducing glutamine at night, use more in the daytime. Continue with 0.1mg or less melatonin! 🧐 +STIFFNESS/Bladder: Not decreasing GABA/glutamine, just leaving it as it is. A) Schüssler B) SUPPS C) MEDS Info:

:arrow_upper_right: :arrow_lower_right:
A Homeopathy: Schüssler 2, 4, & 7 (need 3-6 months sez my acupressurist).

B SUPPS: Amino acids, Enzymes, Minerals, Vitamins
Amino acids: +B6 (as P5P), +Zn, +lithium orotate, more glutamine?, SAMe, glycine
1+2 Balancing GABA & glutamine: 1 Healthfully B6, 2 Perkins: Lithium orotate, Zn, 3 Jockers strange doses!? 4 Levy: vitamin B6, as P-5'-P?

1.1 Healthfully: tyrosine, tryptophan, B6, high complex carb early, low protein late"]
1.2 Zn Cynthia Perkins:: Low (<50mg) carb paleo, high animal protein; (Mg) Zn <40mg, lithium orotate 125-200mg, glycine often excitatory; praps, or not: taurine, vit. B6, SAMe, NAC, theanine"]

Glutamine/dopamine for stiffness/gait?!?: Low Dopamine in Fibromyalgia and CFS
SAMe: 400-800mg in the mornings, as stimulating, not much research.
SAMe - #2 by Anne (Sheila, links: Sahelian & webmd, now plus gapa)"]

NAC sleep -2400mg, better or worse; and more

See my links here: NAC = N-acetylcysteine

NADH/NAD+ B3-coenzyme for energy & post exertional malaise.
Acetyl L-Carnitine (ALC)?: Drink as liquid… Or ask sleep lab psychiatrist to inject it? ALC’s helping Jemima feel alert, dose: 2x750mg, for no sfx keep under 3000. Needs to be Acetyl for the brain she sez. Question about kinds of pain | Page 2 | Fibromyalgia Forum.
D-Ribose: muscle fatigue, ATP; GI-sfx, so keep under 500mg; little evidence.
Zinc again (bloods are in the middle)? Watch out for the sfx!
Magnesium - glycinate yes or no? malate? “60mg” carbonate in the roseroot?
Increase rose root from 1x200mg to 2 or 3 for serotonin etc. as well as blood pressure (normal now)?
Vitamin B12 injections again?
Vitamin B6 as P5P?
Vitamin C ultra-high dose 7,5g, to be put in 250ml NaCl solution & injected - if I can ever find someone to inject it.
Mumijo (origin unclear) for chronic pain (as well as IBS): Mumijo attenuates chemically induced inflammatory pain in mice - PubMed (2015)
Anti-ulcer activity: Ulcer healing activity of Mumijo aqueous extract against acetic acid induced gastric ulcer in rats - PubMed (2015)
German link: Mumijo – Das schwarze Naturheilmittel
Bentonite or medicinal clay never stopped my gastric acidity in my twens.

C MEDS repeat?: levodopa, blood fat meds, blood pressure

levodopa: repeat 50mg (100mg seemed to increase LBU),
Ezetimibe+atorvastatin if blood fats don’t stay down - smaller dose if at all?
Candesartan if blood pressure doesn’t stay down.

D) RELAX: A bit more Yoga Nidra on youtube.
E) MERIDIANS: real Chinese-trained acupuncture? Pardon Our Interruption
F) DOC Fibro-doc 200km from here?
G) REPEAT? Again in specks/diluted: Melatonin, 10% CBD oil, 5-HTP, ashwagandha.

Development: Covid-Vaccine or not? - and if so, when?

healthrising did polls about the covid-vaccine, one for CFS & FM, one for those “severely ill” amongst them, with functionality of only 30 or less (I’d say I’m between 40 and 30). https://www.healthrising.org/blog/2021/03/17/coronavirus-vaccine-poll-chronic-fatigue-fibromyalgia-severely-ill/
Whilst the take-away seems to be that getting the virus is worse than getting the vaccine, there is a percentage of 30% having severe vaccine-symptoms and longer than 30 days, definitely better with Pfizer & Moderna than AstraZeneca & Johnson&J.
In the summary, probably early on, for Moderna it says:
1st shot: 9% had severe symptoms 3% over 30 days, 2nd: 31% severe, 4% over 30 days.
However the poll result to date is
1st shot: 16% had severe symptoms 20% over 30 days, 2nd: 36% severe, 39% over 30 days.
For Pfizer to date:
1st shot: 15% had severe symptoms 28% over !14 days, 2nd: 21% severe, 30% over 30 days.
This would mean Pfizer is definitely preferable to date.
It says “Approximately forty percent of ME/CFS/FM patients who reported they thought they’d come down with the coronavirus reported not being back to baseline three months later.”
I’m not sure how far I can trust that number.
Also I’m not sure what to make of “>30 days” - what if that means sort of “endless”?
But if the numbers of severe long cases after vaccines have risen so high, where is that going?
And OTOH what if those with >30 days did not have severe symptoms all the time?
Thing is also: there is a possibility - albeit praps slim - that I won’t get the virus, as I am careful and my wife is vaccinated. However if I take the vaccine, maybe two, maybe a booster after a year that will be a lot of months sick. If my symptoms get worse due to the vaccine, I’ll have to stop working, it’s tough enough as it is.
Additionally to being on the verge of “severely ill” in the sense of this website, I am extremely over-sensitive to many things done to my body, more so than a lot of others who are also “severely ill”. My better sleep and my functionality is still extremely fragile and also depends upon all the many supps I am taking, and them being able to work in the balance I have been working at since April…
Ah, I’ve just seen the most recent post of “Eduard” from Germany on September 25, 2021, is speaking exactly my mind and Cord has answered:
“We’ll do another vaccine poll. Don’t forget the perhaps 20% of ME/CFS patients who appear to have gotten better after the vaccine shot or the people the 40% or so who were still sick after getting a COVID-19 infection after 4 months. I’ll try and fold all that in.”

As I get even very rare and severe sfx (1% or less get them) from a great majority of things put into or on my body (meds, supps, herbs, physio and food) the results of the vaccine poll to date implies that I will very probably be sick for longer than 2 + 4 weeks even from the Pfizer vaccine (which’d be the best for me). What I could think about is ‘trying’ the 1st Pfizer…

My GP - who understands my reservations - says he’d heard a new vaccine wd be coming out, but I’d need results on that after a year, so not much help…
A mate of mine asked how my vaccine experiences compared to my experience of swine flu. I must say swine flu put me down unusually for 2 weeks and may have triggered long-term problems, maybe my FM. And I have no direct bad vaccine experience, as I have avoided them for about 3 decades now… An alternative health practitioner around then once told me that I’d be the kind of person who would do well to avoid vaccines, but that doesn’t really help - and she didn’t help me in any way, either… So I can only infer from my general over-sensitivity.

Lessons in self-care #85 Careful this evening… :face_with_monocle:
Reasons to be cheerful #88 Wahayy, good day after all!

Abbreviations & explanations

Entries start with night meds & sleep, before triggers/symptoms & treatments, because the “night before” is vital. So Fri-day starts with Thursday night, the night before Friday.

Pain "7" = crying (/out) point; my 1 is others 2-3, and due to pacing/treatments

My wife says my 7 is other people’s 12. 1 is probably 2-3. Due to pacing, keeping work down to 25% (12h/wk) and all my treatments (acupressure, GABA) and physio self-treatments I manage to keep getting my pains & Ache down quickly. 3 usually means the Ache, not pains; these I address individually, often automatically and on the fly now, e.g. twist-stretching everything or something specific after getting up.

TIME DATA, e.g. ' = mins, h = hours, 18:10:40', date YYYY-MM-DD

’ = mins = minutes, ‘’ = secs = seconds, h is hours as time length, 3h is 3 hours long, 3:00 is 3am, 15:00 is 3pm. 18:10:40’ means 40 minutes, starting at 18:10, = 10 minutes past 6pm up to 10 to 7pm. The date is the logical digital standard: YYYY-MM-DD.

SLEEP: slp, w, lbu/LBU, RLS, p, i

slp = sleep; reasons for getting up: w = (a)wake, lbu/LBU: lower back unrest (‘RLS’?), p: pee, p2: pain 2 of 7 before peeing, i: ideas.

ACTIVITIES: TT, e.g. "5:1"

TT = table tennis, 5:1 = score, usually showing how well I’m feeling: energy, relaxedness & alertness if the first number is much higher than the second.

SUPPS: supplements (as opposed to herbs & meds). Fx: Effects. Sfx: Side effects.

SELF-TREATMENTS (about everything else...)

The self-treatments listed are only things that I’m spotlighting & rewarding myself for at the mo by counting them; much of what I do at night is self-treatment to get back to sleep or alleviate (1-2h/d), certain regular movements at daytime, like twist-stretching (30’), writing this blog is self-treatment (30’-60’/d), and the further fibro-work is an indirect form.
Self treatments are usually preventative or always have the same positive effect (e.g. cold showering improves Ache and sleep) - at least I do them for that - and I use “:arrow_forward:” to show what I’m doing to alleviate something and mark it off in the details “:white_check_mark:/:x:” whether it works well enough for a time or doesn’t’, e.g. Ache :arrow_forward: cold fast shower “:white_check_mark:
fw = fibro-work, meaning reading and writing this blog, the reference base, on 4 fibro-forums and researching fibro-stuff on the web.
AuTr = Autogenic Training (usually to actively get - back - to sleep, so counting it as sleep and AuTr…),
FAT Flash/fast autogenic training: immediate image of dreamy floating in space or liquid from jaw to legs.
cold/FCS = Flash Cold Shower (20’’-60’’) , I count it as 10’ tho. At night with ear plugs & all lights off.
breath-hold/WHM-B-H = Wim Hof Method Breath-Holding,
Neck 1 is stretching top right to bottom left, vice versa & sky/ground, neck “1+” is stretching far further diagonally downwards, neck 2 is pressing my head against my hand “without moving”, left right and front.
loins = loins/groin = stretching the ligaments there.
ex = exercises
HWB = Hot water bottle,
RR = bp = blood pressure (Riva Rocci), plus pulse. Used to be normal, plus sometimes white coat syndrome, went up since fibro, seems to have gone down again enough so I’ve not only stopped lercanidipine, but also candesartan and am checking RR regularly.
:new: “V” for loins = lie on back, legs up and let legs fall to sides;
:new: twist-stretching more for the loins
:white_check_mark: :x: :face_with_monocle: ➔ ⇄ ⇨➜ ➞ :arrow_right: ➲ ↔:⇰↔ →:arrow_upper_right: :arrow_lower_right:

↯ ↛ ↺ ↮ ⇝ ⇾ ⟹ ⭆ ⤮:

2021-10-06, Wednesday - melatonin, 0.1mg was still too much or too late… - feverishly-drugged-unstable despite all “antidotes”, esp. till 14:40 (2h after serrapeptase, 4h after ribose)

Triggers & resulting Symptoms

SLEEP: 10h11, up 6x (32'), ➔ Feeling 80% well, Ache 1-2 of 7 ✅, till I increased waker-supps, ➔ 90%/1, but quickly back down to ➔ 75%/1

FCS p0 22:15-
1:18! 5’ 90%/1 p0 st1 drink fw3’ v. slight heartburn. passiflora#2 & theanine#1 & GABA#2 & serra#3. hot flash → clothes off.
2:36 5’ 90%/1 p0 st1 drink fw2’ heartburn more: drink. passiflora#2, NAC#1, serra#4+5. No help.
2:58 3’ 90%/1 st1 fw1’ 0.1 melatonin.
4:40 4’ 90%/1 p1 st1 drink fw2’ heavy (melatonin), libid (melatonin?*), dry mouth → drink/gel. nostril → lavender & tea tree.

  • Might. Increases serotonin tho, rather than stimulating dopamin. Recommended dose:0.1-0.5…? healthline starts 0.2, most others at 0.5.
    6:01 12’ 90%/1 p0 st1 drink fw2’noisy neighbours, bit awake, bit drugged, hungry - drink, F.6, SAMe, zinc, serrapeptase.
    7:41 3’ 80%/1 p0 st1 drink fw2’
    -8:58
    Sum: 1h45+8h58-(5+5+3+4+12+3=)32’=10h43-32=10h11, up 6x (32’),
ACTIVITIES ➔ ACHE: ➔ 80%/2 ➔ 90%/1 ➔ 75%/1 (feverish), independently of cycling/commuting, work/mask-talking etc., 13:45 cold-sensitive, rest, TT 50' ➔ 75%/1

Ache = also Exhaustion/Tired :white_check_mark: :x: :face_with_monocle: ➔ ?90%/1
Cycle➔ exhaustion, also as action➔pains;
TT = Table-Tennis➔ easy or effortless or strained or tough?
talk/meetings here (and actions➔pains?)
Grandchild➔
Work/Mask-talking➔
Socializing/Talking➔

ACTIONS ➔ PAINS: Lying ✅, standing ✅🧐, loins ✅, sitting ✅🧐, arms up ✅, neck stiffness 90° ✅🧐, stiffness after poses ✅🧐, walking: unstable at work, better after 14:40 ❌🧐, fast cycling ✅, bladder 1xp1-2: Acupressure ✅, GI: heartburn after supps till 3, but eating unnec. (eat earlier in the evenings?), also after 2.5g Ribose! ✅, talking ✅, mask-talking ✅

:white_check_mark: :x: :face_with_monocle:
Lie ➔ LBU = lower back unrest, hunchback, Neck, thighs, elbows, itch, cold/hot, nose stuffy
Stand ➔ Legs, back
Knees up ➔ right loin
Arms up ➔ pain
Sit ➔ Backside, lower back
Pose ➔ stiffness (Stiffness after holding a posture): Time 0-60’’, pain amount if faster.
Walk ➔ Elbows, feet, right knee
Cycle ➔ Feet, knees, backside, elbows, hands, neck
Drink ➔ Pee frequency, pain before peeing (p0-6).
Eat ➔ Esophagus block, stomach, gut, rectum, stool (IBSD?). GI for short
Talk➔Jaw (& Ache)
Mask-talk ➔ not sure how to describe it, just plain yucky.

Treatments

SELF-PHYSIO: 53' ✅, fibro-work (fw) 70'

:white_check_mark: Timing, AuTr 10’, hunchback-pillow 15’, cold shower (10’), palpate 1’, belly 3’, back 7’, neck 1+ 4’, neck 2 2’, yoga 1’,
:x: twist-stretch 10’, loins 5’, gums 2x30’’, V ‘, marionette-hang 1’, mirror 2’, shaking dance 1’, breath-hold 11’, RR x2’, HWB 3’, workout 7’

fw: Night: 10 + 5 + 15 + 10 + 5 19:40-20:05 = 25’*

THERAPIES: Acupressure yesterday: Backside, thighs, loins, bladder, shoulders, neck: Very loose, flexible afterwards. For psy. next week: also 'paint a pic' of what my wife thinks/feels of me.

Psy: Actually “love, but”. OTOH: gabba-gabba - ADHD, coping well, OTO: Doll in the corner, fused with mac, not self-caring. Wants to go there with me, but only to say how it really it is… which always changes to self-realization when she is there; and back soon after…
Acupressure / Therapy, Doc/Diagnoses ? :white_check_mark: :x: :face_with_monocle: Acupressure 2h Tues & 2h Fri:

Supps to KEEP UP: SLEEP: 1.2g passiflora, GABA & theanine, 0.1mg melatonin? (but earlier; or only every 2 days or so??), 2x serrapeptase before sleep(?) ✅, Inflammation: 5:30 serrapeptase (more?) 🧐, SAMe (more!) 🧐 & zinc (🧐); tea tree oil ✅ WAKE/FOG: 8:00 GABA ✅, theanine ✅ & Mg malate 🧐, praps Mg glycinate, ACHE: Serrapeptase 🧐, ENERGY: Ribose 🧐, clotted nostril: tea tree oil ✅🧐

For heartburn: Almonds first.

Supps TAKEN TODAY: still a bit of heartburn till 3: from the other amino acids? ❌, NAC stopped sleep ❌; melatonin 0.1mg ✅, but again too drugged, too long from it ❌. This passiflora plus 2x serrapeptase seemed to help first ✅, but then I was too awake ❌. Nostrils: tea tree oil better than lavender ✅. When glutamine? 🧐 and theanine? 🧐 at night. Additionally to wake up: +1 theanine, +1 serrapeptase, 1 NAC & 2 Mg glycinate 🧐 (bit better, but not much, considering ✅), Ribose !2.5g didn't boost. People like Teitelbaum ("endfatigue") recommend 3x5 or 6x2.5g. But maybe energy isn't my problem. And I need to watch for sugar (blood fats).

/20:20 1x425 passiflora, selene, rosewort/magnesium carbonate/B1 at meal,
/21:50 600mg GABA & 500mg !glutamine, !2x100mg serrapeptase,
/22:10 tea tree
/01:15 2nd !1x425 passiflora & !500mg theanine & !600mg GABA + 1 serra#3
/2:35 500mg NAC + 3rd 1x425 passiflora + 2x serra#4+5
/3:00 melatonin 0.1mg took some time to work, then worked too long.
/6:10 SAMe, zinc, serrapeptase.
/9:05 !600 GABA + !500mg theanine, !2x400 malate.
/9:25 1 theanine, +1 serrapeptase, 1 NAC & 2 Mg glycinate.
/10:50 Ribose 1x2.5g like it says on the bottle, much more than I tried before…
/13:00 1 Serrapeptase
night: tea tree under nostrils, lavender behind ear, tea tree oil on gums. :white_check_mark:
day: 2nd 2x malate, Ribose, serrapeptase, arnica on elbow, Tea tree oil on gums. ?NAC.

Supps UP NEXT: +WAKE/FOG/FATIGUE: 1) Increasing SAMe to 800mg. 2) NAC for mitochondria, oxygen (may be good after mask-talking?) (praps reduces glutamine?) 🧐. 3) ALC (I have LC: orally or injected?) 4) try mg glycinate at daytime first. then 5) order glycine? 6) order NADH/+ +SLEEP: Try 2x serrapeptase again before sleep. Melatonin earlier (at least as long I'm not using the passiflora-capsules). Less glutamine at night? More at day? Stop NAC during night. 🧐 Mumijo: anti-inflammatory & IBS: ordered. +STIFFNESS/Bladder: ? A) Schüssler B) SUPPS C) MEDS Info:

:arrow_upper_right: :arrow_lower_right:
A Homeopathy: Schüssler 2, 4, & 7 (need 3-6 months sez my acupressurist).

B SUPPS: Amino acids, Enzymes, Minerals, Vitamins
Amino acids: +B6 (as P5P), +Zn, +lithium orotate, more glutamine?, SAMe, glycine
1+2 Balancing GABA & glutamine: 1 Healthfully B6, 2 Perkins: Lithium orotate, Zn, 3 Jockers strange doses!? 4 Levy: vitamin B6, as P-5'-P?

1.1 Healthfully: tyrosine, tryptophan, B6, high complex carb early, low protein late"]
1.2 Zn Cynthia Perkins:: Low (<50mg) carb paleo, high animal protein; (Mg) Zn <40mg, lithium orotate 125-200mg, glycine often excitatory; praps, or not: taurine, vit. B6, SAMe, NAC, theanine"]

Glutamine/dopamine for stiffness/gait?!?: Low Dopamine in Fibromyalgia and CFS
SAMe: 400-800mg in the mornings, as stimulating, not much research.
SAMe - #2 by Anne (Sheila, links: Sahelian & webmd, now plus gapa)"]

NAC sleep -2400mg, better or worse; and more

See my links here: NAC = N-acetylcysteine

NADH/NAD+ B3-coenzyme for energy & post exertional malaise.
Acetyl L-Carnitine (ALC)?: Drink as liquid… Or ask sleep lab psychiatrist to inject it? ALC’s helping Jemima feel alert, dose: 2x750mg, for no sfx keep under 3000. Needs to be Acetyl for the brain she sez. Question about kinds of pain | Page 2 | Fibromyalgia Forum.
D-Ribose: muscle fatigue, ATP; GI-sfx, [so keep under 500mg?](No sugar allowed - #7 by Lynne and lots more); little evidence.
Zinc again (bloods are in the middle)? Watch out for the sfx!
Magnesium - glycinate yes or no? malate? “60mg” carbonate in the roseroot?
Increase rose root from 1x200mg to 2 or 3 for serotonin etc. as well as blood pressure (normal now)?
Vitamin B12 injections again?
Vitamin B6 as P5P?
Vitamin C ultra-high dose 7,5g, to be put in 250ml NaCl solution & injected - if I can ever find someone to inject it.
Mumijo (origin unclear) for chronic pain (as well as IBS): Mumijo attenuates chemically induced inflammatory pain in mice - PubMed (2015)
Anti-ulcer activity: Ulcer healing activity of Mumijo aqueous extract against acetic acid induced gastric ulcer in rats - PubMed (2015)
German link: Mumijo – Das schwarze Naturheilmittel
Bentonite or medicinal clay never stopped my gastric acidity in my twens.

C MEDS repeat?: levodopa, blood fat meds, blood pressure

levodopa: repeat 50mg (100mg seemed to increase LBU),
Ezetimibe+atorvastatin if blood fats don’t stay down - smaller dose if at all?
Candesartan if blood pressure doesn’t stay down.

D) RELAX: A bit more Yoga Nidra on youtube.
E) MERIDIANS: real Chinese-trained acupuncture? Pardon Our Interruption
F) DOC Fibro-doc 200km from here?
G) REPEAT? Again in specks/diluted: Melatonin, 10% CBD oil, 5-HTP, ashwagandha.

Development:

I’m feeling I still haven’t got enough time for “myself” (which means “fibro-work” and resting at the same time), but I don’t know why. The week before last I worked “a lot”, 18h, but that’s down to 8h again. And I’ve been clearing out stuff from a home office room about 2-3h/wk which isn’t really necessary at the moment. I spose the supps are a bit confusing at the mo, and I’m not counting a lot of that as fibro-work, only the research, not ordering them or putting the capsules together: maybe I should do… I should be saving time due to better sleep - bar the nights that go wrong, but they’re not the majority.

Lessons in self-care #86 Went to work as late as possible today, as I wasn’t waking up…

Abbreviations & explanations

Entries start with night meds & sleep, before triggers/symptoms & treatments, because the “night before” is vital. So Fri-day starts with Thursday night, the night before Friday.

Pain "7" = crying (/out) point; my 1 is others 2-3, and due to pacing/treatments

My wife says my 7 is other people’s 12. 1 is probably 2-3. Due to pacing, keeping work down to 25% (12h/wk) and all my treatments (acupressure, GABA) and physio self-treatments I manage to keep getting my pains & Ache down quickly. 3 usually means the Ache, not pains; these I address individually, often automatically and on the fly now, e.g. twist-stretching everything or something specific after getting up.

TIME DATA, e.g. ' = mins, h = hours, 18:10:40', date YYYY-MM-DD

’ = mins = minutes, ‘’ = secs = seconds, h is hours as time length, 3h is 3 hours long, 3:00 is 3am, 15:00 is 3pm. 18:10:40’ means 40 minutes, starting at 18:10, = 10 minutes past 6pm up to 10 to 7pm. The date is the logical digital standard: YYYY-MM-DD.

SLEEP: slp, w, lbu/LBU, RLS, p, i

slp = sleep; reasons for getting up: w = (a)wake, lbu/LBU: lower back unrest (‘RLS’?), p: pee, p2: pain 2 of 7 before peeing, i: ideas.

ACTIVITIES: TT, e.g. "5:1"

TT = table tennis, 5:1 = score, usually showing how well I’m feeling: energy, relaxedness & alertness if the first number is much higher than the second.

SUPPS: supplements (as opposed to herbs & meds). Fx: Effects. Sfx: Side effects.

SELF-TREATMENTS (about everything else...)

The self-treatments listed are only things that I’m spotlighting & rewarding myself for at the mo by counting them; much of what I do at night is self-treatment to get back to sleep or alleviate (1-2h/d), certain regular movements at daytime, like twist-stretching (30’), writing this blog is self-treatment (30’-60’/d), and the further fibro-work is an indirect form.
Self treatments are usually preventative or always have the same positive effect (e.g. cold showering improves Ache and sleep) - at least I do them for that - and I use “:arrow_forward:” to show what I’m doing to alleviate something and mark it off in the details “:white_check_mark:/:x:” whether it works well enough for a time or doesn’t’, e.g. Ache :arrow_forward: cold fast shower “:white_check_mark:
fw = fibro-work, meaning reading and writing this blog, the reference base, on 4 fibro-forums and researching fibro-stuff on the web.
AuTr = Autogenic Training (usually to actively get - back - to sleep, so counting it as sleep and AuTr…),
FAT Flash/fast autogenic training: immediate image of dreamy floating in space or liquid from jaw to legs.
cold/FCS = Flash Cold Shower (20’’-60’’) , I count it as 10’ tho. At night with ear plugs & all lights off.
breath-hold/WHM-B-H = Wim Hof Method Breath-Holding,
Neck 1 is stretching top right to bottom left, vice versa & sky/ground, neck “1+” is stretching far further diagonally downwards, neck 2 is pressing my head against my hand “without moving”, left right and front.
loins = loins/groin = stretching the ligaments there.
ex = exercises
HWB = Hot water bottle,
RR = bp = blood pressure (Riva Rocci), plus pulse. Used to be normal, plus sometimes white coat syndrome, went up since fibro, seems to have gone down again enough so I’ve not only stopped lercanidipine, but also candesartan and am checking RR regularly.
:new: “V” for loins = lie on back, legs up and let legs fall to sides;
:new: twist-stretching more for the loins
:white_check_mark: :x: :face_with_monocle: ➔ ⇄ ⇨➜ ➞ :arrow_right: ➲ ↔:⇰↔ →:arrow_upper_right: :arrow_lower_right:

↯ ↛ ↺ ↮ ⇝ ⇾ ⟹ ⭆ ⤮:

2021-10-07, Thursday - melatonin-challenge pt. V. (<0.1mg): better! :smiley_cat: Root canal treatment cdve been worse… :face_with_monocle:

Triggers & resulting Symptoms

SLEEP: 9h40, up 3x (23') (praps 1h dozing? = 8h40?) ➔ Feeling 90% well, Ache 1 of 7 ✅, only 3 breaks, stints: 3h+2h+3h(+2h), no heartburn, everything earlier, not too tired.

/21:20 1x425 passiflora, selene, rosewort/magnesium carbonate/B1 at meal,
/21:45 600mg GABA & 500mg !glutamine, !2 serrapeptase, (earlier:) 2nd !1x425 passiflora ( )
/22:10 melatonin 0.1mg (I asked my wife about the size, too)
FCS, p0: Not feeling particularly tired, again showing that 2x425 passiflora is not working as well as my normal sort. Before sleep I’ve now for sleep taken:
850mg passiflora, 600mg GABA, 200mg serrapeptase (which seemed to help for 3h yesterday night) and 0.1mg melatonin (which seemed to have been too late at 3:00, so hoping I’ll be able to sleep it off by taking it 5h earlier.)
22:20-
1:20 4’ 90%/1 p1 st1 drink fw1’ !300mg theanine & !600mg GABA & !3rd 1x425 passiflora (earlier!) NO HEARTBURN!..
/1:25 tea tree oil
/3:30 6’ 90%/1 p0 st1 0drink fw1’ no heartburn despite tea tree oil. Druggy-tired, but not too much.
(Get powder or capsules)
Staying up a few minutes was a bit risky, but woke up in between shortly after without having nec. to get up (hungry). Unusual dream in which someone in my family had kidnapped someone and I was believing this was true and wondering how to tell the police.
/6:27 13’ 90%/1 p0 st1 drink fw2’ Wake-up supps. Sleep/dozing, but praps cos the break was too long to get all the supps together.
-8:23
Sum: 1h40+8h23-(4+6+13=)23’ = 10h03-23’ = 9h40, up 3x (23’) (praps 1h dozing? = 8h40?)

ACTIVITIES ➔ ACHE: work/cycling/mask-talking ➔ ?90%/1, all good (not perfect at first), dentist: root canal treatment... *sigh* ➔ 70%/2, then 2 NAC, 2 serra, work & music➔ 80%/1

Ache = also Exhaustion/Tired :white_check_mark: :x: :face_with_monocle: ➔ ?90%/1
Cycle➔ exhaustion, also as action➔pains;
TT = Table-Tennis➔ easy or effortless or strained or tough?
talk/meetings here (and actions➔pains?)
Grandchild➔
Work/Mask-talking➔
Socializing/Talking➔

ACTIONS ➔ PAINS: Lying ✅, standing ✅, loins (but slight pain there for a time 🧐) ✅, sitting ✅, arms up ✅, neck stiffness 90° ✅, stiffness after poses ✅, walking ?✅, fast cycling ✅, bladder 2xp1-2 ✅, GI ✅, talking ✅, mask-talking ✅

:white_check_mark: :x: :face_with_monocle:
Lie ➔ LBU = lower back unrest, hunchback, Neck, thighs, elbows, itch, cold/hot, nose stuffy
Stand ➔ Legs, back
Knees up ➔ right loin
Arms up ➔ pain
Sit ➔ Backside, lower back
Pose ➔ stiffness (Stiffness after holding a posture): Time 0-60’’, pain amount if faster.
Walk ➔ Elbows, feet, right knee
Cycle ➔ Feet, knees, backside, elbows, hands, neck
Drink ➔ Pee frequency, pain before peeing (p0-6).
Eat ➔ Esophagus block, stomach, gut, rectum, stool (IBSD?). GI for short
Talk➔Jaw (& Ache)
Mask-talk ➔ not sure how to describe it, just plain yucky.

Treatments

SELF-PHYSIO: 43' ✅, fibro-work (fw) 50'

:white_check_mark: Timing, AuTr 5’, hunchback-pillow 10’, cold shower (10’), palpate 1’, belly 3’, back 7’, neck 1+ 3’, neck 2 2’, twist-stretch 2’,
:x: loins 5’, yoga 5’, gums 2x30’’, V ‘, marionette-hang 1’, mirror 2’, shaking dance 1’, breath-hold 11’, RR x2’, HWB 3’, workout 7’

fw: Night: 10? + placing supps: 15’ 10’ supps: 15’*

THERAPIES: Well, there'll probably be quite something to get seen too tomorrow...

Acupressure / Therapy, Doc/Diagnoses ? :white_check_mark: :x: :face_with_monocle: Acupressure 2h Tues & 2h Fri:

Supps to KEEP UP: SLEEP: 4x passiflora, GABA & theanine ✅, Inflammation: 5:30 serrapeptase 🧐, SAMe 🧐 & zinc (🧐); tea tree oil ✅ WAKE/FOG: 8:00 GABA ✅, theanine ✅ & malate 🧐, PAIN: Serrapeptase 🧐, ENERGY: Ribose 🧐, PAINS: arnica cream 🧐, clotted nostril: lavender gel etc. ✅🧐

For heartburn: Almonds first.

Supps to KEEP UP: SLEEP: 1.2g passiflora, GABA & theanine, 0.1mg melatonin? (but earlier; or only every 2 days or so??), 2x serrapeptase before sleep(?) ✅, Inflammation: 5:30 serrapeptase (more?) 🧐, SAMe (more!) 🧐 & zinc (🧐); tea tree oil ✅ WAKE/FOG: 8:00 GABA ✅, theanine ✅ & Mg malate 🧐, praps Mg glycinate, ACHE: Serrapeptase 🧐, ENERGY: Ribose 🧐, clotted nostril: tea tree oil ✅🧐

For heartburn: Almonds first.

Supps TAKEN TODAY:

/21:20 1x425 passiflora, selene, rosewort/magnesium carbonate/B1 at meal,
/21:45 600mg GABA & 500mg !glutamine, !2 serrapeptase, (earlier:) 2nd !1x425 passiflora ( )
/22:10 melatonin 0.1mg (I asked my wife about the size, too)
/01:20 !300mg theanine & !600mg GABA & !3rd 1x425 passiflora (earlier!) NO HEARTBURN!..
/1:25 tea tree oil
/6:30 2 SAMe, zinc, 2 serrapeptase. !600 GABA+500mg theanine, 2 Mg malate, 2 glycinate.
8:35 2 NAC & Ribose 2.5g
Forgot to take something after work before dentist.
/18:00 2 Serrapeptase, 2 NAC.
2 Serrapeptase, 2 malate, 2 glycinate
night: tea tree under nostrils, lavender behind ear, tea tree oil on gums. :white_check_mark:
day: 2nd 2x malate, Ribose, serrapeptase, arnica on elbow, Tea tree oil on gums. ?NAC.

Supps UP NEXT: +WAKE/FOG/FATIGUE: 1) Increase SAMe to 800mg. 2) Increase Ribose to 6x2,5 ... if sfx stay down. 3) NAC for mitochondria, oxygen (may be good after mask-talking?) (praps reduces glutamine?) 🧐. 4) ALC (I have LC: orally or injected?) 4) try mg glycinate at daytime first. then 5) order glycine? 6) order NADH/+ +SLEEP: Try 2x serrapeptase again before sleep. Melatonin earlier (at least as long I'm not using the passiflora-capsules). Less glutamine at night? More at day? Stop NAC during night. 🧐 Mumijo: anti-inflammatory & IBS: ordered. +STIFFNESS/Bladder: ? A) Schüssler B) SUPPS C) MEDS Info:

:arrow_upper_right: :arrow_lower_right:
A Homeopathy: Schüssler 2, 4, & 7 (need 3-6 months sez my acupressurist).

B SUPPS: Amino acids, Enzymes, Minerals, Vitamins
Amino acids: +B6 (as P5P), +Zn, +lithium orotate, more glutamine?, SAMe, glycine
1+2 Balancing GABA & glutamine: 1 Healthfully B6, 2 Perkins: Lithium orotate, Zn, 3 Jockers strange doses!? 4 Levy: vitamin B6, as P-5'-P?

1.1 Healthfully: tyrosine, tryptophan, B6, high complex carb early, low protein late"]
1.2 Zn Cynthia Perkins:: Low (<50mg) carb paleo, high animal protein; (Mg) Zn <40mg, lithium orotate 125-200mg, glycine often excitatory; praps, or not: taurine, vit. B6, SAMe, NAC, theanine"]

Glutamine/dopamine for stiffness/gait?!?: Low Dopamine in Fibromyalgia and CFS
SAMe: 400-800mg in the mornings, as stimulating, not much research.
SAMe - #2 by Anne (Sheila, links: Sahelian & webmd, now plus gapa)"]

NAC -2400mg, sleep apparently worse, so daytime

See my links here: NAC = N-acetylcysteine

NADH/NAD+ B3-coenzyme for energy & post exertional malaise.
Acetyl L-Carnitine (ALC)?: Drink as liquid… Or ask sleep lab psychiatrist to inject it? ALC’s helping Jemima feel alert, dose: 2x750mg, for no sfx keep under 3000. Needs to be Acetyl for the brain she sez. Question about kinds of pain | Page 2 | Fibromyalgia Forum.
D-Ribose: muscle fatigue, ATP; GI-sfx, [so keep under 500mg?](No sugar allowed - #7 by Lynne and lots more); little evidence.
Zinc again (bloods are in the middle)? Watch out for the sfx!
Magnesium - glycinate yes or no? malate? “60mg” carbonate in the roseroot.
Increase rose root from 1x200mg to 2 or 3 for serotonin etc. as well as blood pressure (normal now)?
Vitamin B12 injections again?
Vitamin B6 as P5P?
Vitamin C ultra-high dose 7,5g, to be put in 250ml NaCl solution & injected - if I can ever find someone to inject it.
Mumijo (origin unclear) for chronic pain (as well as IBS): Mumijo attenuates chemically induced inflammatory pain in mice - PubMed (2015)
Anti-ulcer activity: Ulcer healing activity of Mumijo aqueous extract against acetic acid induced gastric ulcer in rats - PubMed (2015)
German link: Mumijo – Das schwarze Naturheilmittel
Bentonite or medicinal clay never stopped my gastric acidity in my twens.

C) MEDS repeat?: levodopa, blood fat meds, blood pressure meds.
D) RELAX: Yoga Nidra on youtube.
E) MERIDIANS: real Chinese-trained acupuncture?
F) DOC: Fibro-doc 200km from here?
G) REPEAT?: 10% CBD oil, 5-HTP, ashwagandha.

Development:

Time management: Have to remind myself what I’m doing.
Actually aside from 3-4h/wk cleaning out my home office room, I’ve also been doing >5h/wk of music production every week for quite a time, I’m managing to wash my hair more often, I am keeping the flat rudimentarily clean, I’ve been round the grand/children’s quite a few hours per week, and a few things with my wife, I’m managing to rate the Apotheken I’ve been ordering from, keeping up table tennis and acupressure is more like 4h/wk than 4 at the mo.
Ah, I’ve remembered I’ve watched youtube videos for about an hour 1-2x/wk.
What I’m not managing is keeping my inboxes all too clear, but clear enough to not miss anything important.

Lessons in self-care #87 Doubly careful now after the dentist’s…
Reasons to be cheerful #89 Autogenic training helped me a lot in the dentist’s chair.

Abbreviations & explanations

Entries start with night meds & sleep, before triggers/symptoms & treatments, because the “night before” is vital. So Fri-day starts with Thursday night, the night before Friday.

Pain "7" = crying (/out) point; my 1 is others 2-3, and due to pacing/treatments

My wife says my 7 is other people’s 12. 1 is probably 2-3. Due to pacing, keeping work down to 25% (12h/wk) and all my treatments (acupressure, GABA) and physio self-treatments I manage to keep getting my pains & Ache down quickly. 3 usually means the Ache, not pains; these I address individually, often automatically and on the fly now, e.g. twist-stretching everything or something specific after getting up.

TIME DATA, e.g. ' = mins, h = hours, 18:10:40', date YYYY-MM-DD

’ = mins = minutes, ‘’ = secs = seconds, h is hours as time length, 3h is 3 hours long, 3:00 is 3am, 15:00 is 3pm. 18:10:40’ means 40 minutes, starting at 18:10, = 10 minutes past 6pm up to 10 to 7pm. The date is the logical digital standard: YYYY-MM-DD.

SLEEP: slp, w, lbu/LBU, RLS, p, i

slp = sleep; reasons for getting up: w = (a)wake, lbu/LBU: lower back unrest (‘RLS’?), p: pee, p2: pain 2 of 7 before peeing, i: ideas.

ACTIVITIES: TT, e.g. "5:1"

TT = table tennis, 5:1 = score, usually showing how well I’m feeling: energy, relaxedness & alertness if the first number is much higher than the second.

SUPPS: supplements (as opposed to herbs & meds). Fx: Effects. Sfx: Side effects.

SELF-TREATMENTS (about everything else...)

The self-treatments listed are only things that I’m spotlighting & rewarding myself for at the mo by counting them; much of what I do at night is self-treatment to get back to sleep or alleviate (1-2h/d), certain regular movements at daytime, like twist-stretching (30’), writing this blog is self-treatment (30’-60’/d), and the further fibro-work is an indirect form.
Self treatments are usually preventative or always have the same positive effect (e.g. cold showering improves Ache and sleep) - at least I do them for that - and I use “:arrow_forward:” to show what I’m doing to alleviate something and mark it off in the details “:white_check_mark:/:x:” whether it works well enough for a time or doesn’t’, e.g. Ache :arrow_forward: cold fast shower “:white_check_mark:
fw = fibro-work, meaning reading and writing this blog, the reference base, on 4 fibro-forums and researching fibro-stuff on the web.
AuTr = Autogenic Training (usually to actively get - back - to sleep, so counting it as sleep and AuTr…),
FAT Flash/fast autogenic training: immediate image of dreamy floating in space or liquid from jaw to legs.
cold/FCS = Flash Cold Shower (20’’-60’’) , I count it as 10’ tho. At night with ear plugs & all lights off.
breath-hold/WHM-B-H = Wim Hof Method Breath-Holding,
Neck 1 is stretching top right to bottom left, vice versa & sky/ground, neck “1+” is stretching far further diagonally downwards, neck 2 is pressing my head against my hand “without moving”, left right and front.
loins = loins/groin = stretching the ligaments there.
ex = exercises
HWB = Hot water bottle,
RR = bp = blood pressure (Riva Rocci), plus pulse. Used to be normal, plus sometimes white coat syndrome, went up since fibro, seems to have gone down again enough so I’ve not only stopped lercanidipine, but also candesartan and am checking RR regularly.
:new: “V” for loins = lie on back, legs up and let legs fall to sides;
:new: twist-stretching more for the loins
:white_check_mark: :x: :face_with_monocle: ➔ ⇄ ⇨➜ ➞ :arrow_right: ➲ ↔:⇰↔ →:arrow_upper_right: :arrow_lower_right:

↯ ↛ ↺ ↮ ⇝ ⇾ ⟹ ⭆ ⤮:

2021-10-08, Friday - melatonin #V6 <<0.1mg wasn’t quite enough… but concise sleep & really fit - but…:

Now what a surprise: the fogginess resulted in 2 focal seizures, and no end. Just when I’ve started quite a few new supps at the same time. And all badly studied… SAMe? Mumijo? Melatonin?
Mumijo: Nothing found, taken once a small dose…
SAMe: https://www.coping-with-epilepsy.com/threads/anyone-know-of-or-had-success-with-same-or-sam-e-or-sam-e-or-sam-e.13379/: one experience… so possibly…
BUT ALSO Melatonin: Epilepsy and Melatonin – Yes? No? Or Maybe So? | Epilepsy Talk Possibly When very LOW DOSES … ahaa… administered at night… uhuuuh… It only helps epilepsy in high doses - which I don’t tolerate… Now I’m darned if I didn’t have some seizures in March/April when taking melatonin the first time… have a look… Now neither is conclusive, but my gut feeling is it’s the melatonin, which has always made me druggy-foggy… OK, I took my last melatonin April 6th to 8th, then stopped, seizures on 8th and 10th, at the time I didn’t see a relation to it. Mind you, the dose then was 1mg, but also feeling drugged all day.
I was gonna try just melatonin today, without passiflora, now it looks like the opposite - everything else apart from melatonin…

Triggers & resulting Symptoms

SLEEP: 7h31, up 6x (27'), plus 55' doze/AuTr = 8h26 ➔ Feeling 85% well, Ache 2 of 7 feeling the cold, then quickly ➔ ?90%/1✅

FCS p1 21:45-
22:56 3’ 90%/1 p1 st1 drink fw1’
00:18 5’ 90%/1 p1 st1 drink fw1’ theanine, GABA & 3rd passiflora, no heartburn
1:21 8’ 90%/1 p1 st1 drink fw1’. 1 spray of 1mg melatonin with passiflora (& peppermint!!), left in for 1’, then spat out superfluous liquid.
2:39 3’ 90%/1 p0 st1 drink fw1’ (druggier…) tea tree oil & lavender for slight nostril…
3:46 4’ 90%/1 p0 st1 drink fw1’ slightly nauseous & hungry from peppermint & tea tree: drink.
5:21 4’ 90%/1 p1 st1 drink fw1’ 2 SAMe, zinc, 2 serrapeptase
-5:43-6:00 17’ 6 90%/1 p0 st1 drink fw1’ doze/AuTr 41’
-6:41 3’ 90%/1 p0 st1 drink fw1’
-6:58 (= +14’ doze)
Sum: 2h15+5h43-(3+5+8+3+4+4=)27’=7h58-27’=7h31, up 6x (27’), plus 55’ doze/AuTr = 8h26

ACTIVITIES ➔ ACHE: cycling/work ➔ 90%/1, well work wasn't a problem, but bit strange, slight brain fog, not quite right ➔ 85%/1, well: that turned out to become focal seizures, one at about 14:00 during acupressure and 15:40 during table tennis. Not strong ones, I could make myself understood, but usually my mate only has to take over counting points for one game, this time for the rest of the time. That suggests to me it's one of the supps - my gut sez melatonin.

Ache = also Exhaustion/Tired :white_check_mark: :x: :face_with_monocle: ➔ ?90%/1
Cycle➔ exhaustion, also as action➔pains;
TT = Table-Tennis➔ easy or effortless or strained or tough?
talk/meetings here (and actions➔pains?)
Grandchild➔
Work/Mask-talking➔
Socializing/Talking➔

ACTIONS ➔ PAINS: The new normal: Everything is OK ✅, except a bit ✅🧐: loins, stiffness & bladder.

Lying :white_check_mark:, standing :white_check_mark:, loins :white_check_mark:(:face_with_monocle:), sitting :white_check_mark:, arms up :white_check_mark::face_with_monocle:, neck stiffness 90° :white_check_mark:, stiffness after poses :white_check_mark::face_with_monocle:, walking ?:white_check_mark::x::face_with_monocle:, fast cycling :white_check_mark:, bladder 4xp1 at night :white_check_mark::face_with_monocle:, GI: peppermint in melatonin spray :white_check_mark::face_with_monocle:, talking :white_check_mark:, mask-talking :white_check_mark:
:white_check_mark: :x: :face_with_monocle:
Lie ➔ LBU = lower back unrest, hunchback, Neck, thighs, elbows, itch, cold/hot, nose stuffy
Stand ➔ Legs, back
Knees up ➔ right loin
Arms up ➔ pain
Sit ➔ Backside, lower back
Pose ➔ stiffness (Stiffness after holding a posture): Time 0-60’’, pain amount if faster.
Walk ➔ Elbows, feet, right knee
Cycle ➔ Feet, knees, backside, elbows, hands, neck
Drink ➔ Pee frequency, pain before peeing (p0-6).
Eat ➔ Esophagus block, stomach, gut, rectum, stool (IBSD?). GI for short
Talk➔Jaw (& Ache)
Mask-talk ➔ not sure how to describe it, just plain yucky.

Treatments

SELF-PHYSIO: 65' ✅, fibro-work (fw) stopping, since it's not much at the mo

:white_check_mark: Timing, AuTr 15’, hunchback-pillow 15’, cold shower (10’), palpate 1’, belly 3’, back 7’, V 1’, back of leg stretch 2’, workout 5’, marionette-hang 2’, neck 1+ 4’,
:x: neck 2 10’, twist-stretch 10’, loins 5’, yoga 5’, gums 2x30’’, mirror 2’, shaking dance 1’, breath-hold 11’, RR x2’, HWB 3’, *
fw: Night: 10 + 10

THERAPIES: So... loins at acupressure today, I spose... Yup, and with good effect. But focus was on the drugged feeling and seizures afterwards.

Acupressure / Therapy, Doc/Diagnoses ? :white_check_mark: :x: :face_with_monocle: Acupressure 2h Tues & 2h Fri:

Supps to KEEP UP: SLEEP: 1.2g passiflora, GABA, glutamine & theanine, <0.1mg melatonin earlier; not every night, or less ✅, 2x serrapeptase before sleep(?) ✅, Inflammation: 5:30 serrapeptase (more?) 🧐, SAMe (more!) 🧐 & zinc (🧐); tea tree oil ✅; 20:00 More rose root, Mumijo (anti-inflammatory & IBS), P5P (serotonin/GABA) 🧐, WAKE/FOG: 8:00 GABA & theanine ✅ & Mg malate, Mg glycinate 🧐, ACHE: Serrapeptase 🧐, ENERGY: Ribose 🧐, clotted nostril: tea tree oil ✅🧐

For heartburn: Almonds first.

Supps TAKEN TODAY: Melatonin can increase REM dream time, I just saw on wp; P5P, Mumijo new; everything even earlier (by 0:20), but awake every hour, so tried 1 melatonin spray, spitting 0.5mg out after 1', peppermint a bit tough on acid, has to stay an exception.

/20:05 P5P, Mumijo, 1x425 passiflora, selene, rosewort/magnesium carbonate/B1 at meal,
/21:35 600mg GABA & 500mg !glutamine, !2 serrapeptase, (earlier:) 2nd !1x425 passiflora, melatonin <0.1mg
/00:20 !300mg theanine & !600mg GABA & !3rd 1x425 passiflora (earlier!) NO HEARTBURN!..
/01:21 1 spray of 0.5mg melatonin with passiflora (& peppermint!!), left in for 1’, spat out.
/2:40 tea tree oil
/5:25 2 SAMe, zinc, 2 serrapeptase.
/7:05 !600 GABA+500mg theanine, 2 Mg malate, 2 glycinate.
/9:20 1 serrapeptase
forgot: ?8:35 2 NAC & Ribose 2.5g
?14:00 2 Serrapeptase, 2 malate, 2 glycinate
?18:00 2 Serrapeptase, 2 NAC.

night: tea tree under nostrils, lavender behind ear, tea tree oil on gums. :white_check_mark:
day: 2nd 2x malate, Ribose, serrapeptase, arnica on elbow, Tea tree oil on gums. ?NAC.

Supps UP NEXT: WAKE/FOG/FATIGUE: 1) SAMe up to 800mg. 2) Ribose up to 6x2,5 (sfx?) 3) NAC. 4) ALC (LC) 4) mg glycinate? 5) order glycine? 6) order NADH/+ +SLEEP: melatonin before sleep, try without serrapeptase or passiflora. Less glutamine at night, more at day?? 🧐 +STIFFNESS/Bladder: ? SUPPS Info:

:arrow_upper_right: :arrow_lower_right:
A Homeopathy: Schüssler 2, 4, & 7 (need 3-6 months sez my acupressurist).
B SUPPS:
Got:
Glutamine for stiffness/gait?: Low Dopamine in Fibromyalgia and CFS
Mumijo: chronic pain (as well as IBS): Mumijo attenuates chemically induced inflammatory pain in mice - PubMed (2015)
Anti-ulcer activity: Ulcer healing activity of Mumijo aqueous extract against acetic acid induced gastric ulcer in rats - PubMed (2015)
German link: Mumijo – Das schwarze Naturheilmittel
NAC -2400mg: NAC = N-acetylcysteine
D-Ribose: muscle fatigue, ATP; GI-sfx, [so keep under 500mg? per serving? No sugar allowed - #7 by Lynne and lots more; little evidence.
Rose root: Increase to 2-3x200mg for serotonin etc. as well as blood pressure (normal now)?
Vitamin B12: injections again?
SAMe: 400-800mg in the mornings, pain, stiffness, sleep, mood, sfx: GI, bladder, dry mouth, sleep. SAMe - #2 by Anne
To Order:
Acetyl L-Carnitine (ALC)?: LC first? A for Alert brain, dose: 2x750mg, for no sfx keep under 3000. Question about kinds of pain | Page 2 | Fibromyalgia Forum.
Bentonite or medicinal clay never stopped my gastric acidity in my twens.
NADH/NAD+: Serrapeptase & NADH/NAD+ - enzymes - #4 by JayCS B3-coenzyme for energy & post exertional malaise.

D) Yoga Nidra on youtube.
E) Real Chinese-trained acupuncture?
F) Fibro-doc 200km from here?
G) Repeat?: 10% CBD oil, 5-HTP, ashwagandha.

Development:

Shortening & focusing the entries to the new normal… :slight_smile:
Less “Pains”: Since acupressure has improved loins and neck, all pains are either pretty good or stable at a minimal level, like bladder. I’m still working on bladder, stiffness and always on GI, but I don’t have to note it any more.
“Acupressure” feels like reaching it’ll be coming to a close in a few weeks or months.
“Psychotherapy” too.
The supps etc. are also tending to an end point, I feel.
Less “Fibro-Work”: Not doing that much at the moment, and definitely not too much, which used to be the reason to keep track of it. But
Let’s see where this blog’ll go.
I’m still interested in exploring recent studies more…

Abbreviations & explanations

Entries start with night meds & sleep, before triggers/symptoms & treatments, because the “night before” is vital. So Fri-day starts with Thursday night, the night before Friday.

Pain "7" = crying (/out) point; my 1 is others 2-3, and due to pacing/treatments

My wife says my 7 is other people’s 12. 1 is probably 2-3. Due to pacing, keeping work down to 25% (12h/wk) and all my treatments (acupressure, GABA) and physio self-treatments I manage to keep getting my pains & Ache down quickly. 3 usually means the Ache, not pains; these I address individually, often automatically and on the fly now, e.g. twist-stretching everything or something specific after getting up.

TIME DATA, e.g. ' = mins, h = hours, 18:10:40', date YYYY-MM-DD

’ = mins = minutes, ‘’ = secs = seconds, h is hours as time length, 3h is 3 hours long, 3:00 is 3am, 15:00 is 3pm. 18:10:40’ means 40 minutes, starting at 18:10, = 10 minutes past 6pm up to 10 to 7pm. The date is the logical digital standard: YYYY-MM-DD.

SLEEP: slp, w, lbu/LBU, RLS, p, i

slp = sleep; reasons for getting up: w = (a)wake, lbu/LBU: lower back unrest (‘RLS’?), p: pee, p2: pain 2 of 7 before peeing, i: ideas.

ACTIVITIES: TT, e.g. "5:1"

TT = table tennis, 5:1 = score, usually showing how well I’m feeling: energy, relaxedness & alertness if the first number is much higher than the second.

SUPPS: supplements (as opposed to herbs & meds). Fx: Effects. Sfx: Side effects.

SELF-TREATMENTS (about everything else...)

The self-treatments listed are only things that I’m spotlighting & rewarding myself for at the mo by counting them; much of what I do at night is self-treatment to get back to sleep or alleviate (1-2h/d), certain regular movements at daytime, like twist-stretching (30’), writing this blog is self-treatment (30’-60’/d), and the further fibro-work is an indirect form.
Self treatments are usually preventative or always have the same positive effect (e.g. cold showering improves Ache and sleep) - at least I do them for that - and I use “:arrow_forward:” to show what I’m doing to alleviate something and mark it off in the details “:white_check_mark:/:x:” whether it works well enough for a time or doesn’t’, e.g. Ache :arrow_forward: cold fast shower “:white_check_mark:
fw = fibro-work, meaning reading and writing this blog, the reference base, on 4 fibro-forums and researching fibro-stuff on the web.
AuTr = Autogenic Training (usually to actively get - back - to sleep, so counting it as sleep and AuTr…),
FAT Flash/fast autogenic training: immediate image of dreamy floating in space or liquid from jaw to legs.
cold/FCS = Flash Cold Shower (20’’-60’’) , I count it as 10’ tho. At night with ear plugs & all lights off.
breath-hold/WHM-B-H = Wim Hof Method Breath-Holding,
Neck 1 is stretching top right to bottom left, vice versa & sky/ground, neck “1+” is stretching far further diagonally downwards, neck 2 is pressing my head against my hand “without moving”, left right and front.
loins = loins/groin = stretching the ligaments there.
ex = exercises
HWB = Hot water bottle,
RR = bp = blood pressure (Riva Rocci), plus pulse. Used to be normal, plus sometimes white coat syndrome, went up since fibro, seems to have gone down again enough so I’ve not only stopped lercanidipine, but also candesartan and am checking RR regularly.
:new: “V” for loins = lie on back, legs up and let legs fall to sides;
:new: twist-stretching more for the loins
:white_check_mark: :x: :face_with_monocle: ➔ ⇄ ⇨➜ ➞ :arrow_right: ➲ ↔:⇰↔ →:arrow_upper_right: :arrow_lower_right:

↯ ↛ ↺ ↮ ⇝ ⇾ ⟹ ⭆ ⤮:

2021-10-09, Saturday - taking SAMe down… - melatonin gets another chance…

Triggers & resulting Symptoms

SLEEP: 7h01, up 6x (1h08) ➔ Feeling 90% well, Ache 1 of 7 ✅

No fw!
FCS p0 22:40- (bit hard to get to sleep)
00:05 5’ 90%/1 p0 st1 drink fw1’. Bit heartburn → 2nd mumijo, 300mg theanine & !600mg GABA & !“3rd” 1x289 passiflora
1:45 26’ 90%/1 p0 st1 drink fw20’ 3rd mumijo for heartburn (doesn’t seem to be working…), + 4th passiflora.
2:30 28’ 6 90%/1 p0 st1 drink fw1’
4:47 3’ 90%/1 p0 st1 drink fw1’ hungry (what from?) → again that’s what mumijo is sposed to be for → drink.
6:16 3’ 90%/1 p0 st1 drink fw1’ hungry → drink.
6:35 3’ 90%/1 p0 st1 drink fw1’ 2 SAMe, zinc, 2 serrapeptase. hungry → drink.
-6:49
Sum: 1h20+6h49-(5+26+28+3+3+3=)68’=8h09-1h08=7h01, up 6x (1h08)

ACTIVITIES ➔ ACHE: OK after 35' table tennis ➔ 85%/1, tougher after 50' socializing ➔ 80%/3, better from resting ➔ 90%/1, OK-ish after 1h30+ walk ➔ 80%/2.

Ache = also Exhaustion/Tired :white_check_mark: :x: :face_with_monocle: ➔ ?90%/1
Cycle➔ exhaustion, also as action➔pains;
TT = Table-Tennis➔ easy or effortless or strained or tough?
talk/meetings here (and actions➔pains?)
Grandchild➔
Work/Mask-talking➔
Socializing/Talking➔

ACTIONS ➔ PAINS: All good, except left elbow at night a bit (arnica; acupressure next week), and both elbows all the time while on the walk, right knee only the last few 100 yards 🧐, GI: hungriness at night & at daytime: tea tree oil?, not eating enough? Not helped by 3x mumijo yesterday evening. 🧐/✅, severe bladder urge with pain: SAMe I think, ebbing off after stopping it.

Lying :white_check_mark:, standing :white_check_mark::x::face_with_monocle:, loins :white_check_mark::x::face_with_monocle:, sitting :white_check_mark:, arms up :white_check_mark:, neck stiffness 90° :white_check_mark:, stiffness after poses :white_check_mark:, walking :white_check_mark::x::face_with_monocle:, fast cycling :white_check_mark:, bladder 0xp1-2 :white_check_mark:, GI :white_check_mark::face_with_monocle:, talking :white_check_mark::x::face_with_monocle:, mask-talking :white_check_mark::x::face_with_monocle:
:white_check_mark: :x: :face_with_monocle:
Lie ➔ LBU = lower back unrest, hunchback, Neck, thighs, elbows, itch, cold/hot, nose stuffy
Stand ➔ Legs, back
Knees up ➔ right loin
Arms up ➔ pain
Sit ➔ Backside, lower back
Pose ➔ stiffness (Stiffness after holding a posture): Time 0-60’’, pain amount if faster.
Walk ➔ Elbows, feet, right knee
Cycle ➔ Feet, knees, backside, elbows, hands, neck
Drink ➔ Pee frequency, pain before peeing (p0-6).
Eat ➔ Esophagus block, stomach, gut, rectum, stool (IBSD?). GI for short
Talk➔Jaw (& Ache)
Mask-talk ➔ not sure how to describe it, just plain yucky.

Treatments

SELF-PHYSIO: 79' ✅

:white_check_mark: Timing, AuTr 20’, hunchback-pillow 15’, cold shower (10’), palpate 1’, belly 3’, back 5’, neck 1+ 9’, neck 2 2’, twist-stretch 2’, loins 2’, yoga 5’, marionette-hang 5’,
:x: gums 2x30’’, V ‘, mirror 2’, shaking dance 1’, breath-hold 11’, RR x2’, HWB 3’, workout 7’, Yoga Nidra

fw: Night: OK*

THERAPIES:

Acupressure / Therapy, Doc/Diagnoses ? :white_check_mark: :x: :face_with_monocle: Acupressure 2h Tues & 2h Fri:
Chinese-trained acupuncture? Fibro-doc 200km from here?

Supps to KEEP UP (3): passiflora, GABA, theanine ✅, to WATCH (10): glutamine, Mg malate & glycinate, 2x mumijo, ↗5x NAC, P5P, ↗6x Ribose, ↗3x rose root, ↗8x SAMe, ↗?x SRP 🧐, to START/CHANGE (2-3): NADH, ALC ✅/❌/🧐. Increasing everything at the same time - if nothing happens, if it does (fx or sfx), then I'll take things away to see what it is. Watching out for interactions. Also wanting to see if seizures were the melatonin (didn't take NAC or RIbose yesterday tho, which'd only leave the SAMe if I get one today!).

SLEEP:
:white_check_mark: Passiflora 4x289mg: drowsier, but not too much, deeper, shorter breaks
:white_check_mark: GABA 2x600mg: deeper, 10 areas in daytime
:white_check_mark: theanine 1x300 relaxed, not too long
:white_check_mark::face_with_monocle: glutamine 1x500mg: GABA antagonist. But maybe more day than night?
:face_with_monocle: SRP serrapeptase 2x10.000IU before sleep
:face_with_monocle: P5P (serotonin/GABA)
:x::face_with_monocle: melatonin: seizures.
INFLAMMATION:
:face_with_monocle: 5:30 serrapeptase 2x10.000IU (more?)
:face_with_monocle: zinc
:white_check_mark: tea tree oil on gums
:face_with_monocle: 8:00 SAMe 1x100mg (no more!): pain, stiffness, sfx: GI, bladder!, dry mouth!, sleep!, serotonin-seizures! SAMe - #2 by Anne
:face_with_monocle: rose root 20:00 2-3x200mg: serotonin & bp.
:face_with_monocle: mumijo 20:00: anti-infl., pain & GI, (shihalit): Mumijo attenuates chemically induced inflammatory pain in mice - PubMed (2015), Anti-ulcer activity: Ulcer healing activity of Mumijo aqueous extract against acetic acid induced gastric ulcer in rats - PubMed (2015)
German link: Mumijo – Das schwarze Naturheilmittel
WAKE/FOG:
:white_check_mark: 8:00 GABA & theanine
:face_with_monocle: Mg malate 2x500
:face_with_monocle: Mg glycinate 2x400
:face_with_monocle: NAC
ACHE:
:white_check_mark::face_with_monocle: Serrapeptase up to 8x or more?
ENERGY/FATIGUE:
:face_with_monocle: Ribose up to 6x2.5g muscle fatigue, ATP; GI-sfx, (<500mg per serving?) No sugar allowed - #7 by Lynne etc.
:face_with_monocle: NAC -2400mg: NAC = N-acetylcysteine fatigue, anti-infl.
:white_check_mark:/:x:/:face_with_monocle: NADH/NAD+: Serrapeptase & NADH/NAD+ - enzymes - #4 by JayCS B3-coenzyme for energy & post exertional malaise.
:white_check_mark:/:x:/:face_with_monocle: Acetyl L-Carnitine (ALC)?: LC first? A for Alert brain, dose: 2x750mg, for no sfx keep under 3000. Question about kinds of pain | Page 2 | Fibromyalgia Forum.
:white_check_mark:/:x:/:face_with_monocle: glycine? Alertness
STIFFNESS:
Glutamine?: Low Dopamine in Fibromyalgia and CFS
NOSTRILS CLOTTED at night
:white_check_mark: lavender, or if need be tea tree oil
EVERYTHING:
:white_check_mark: Vitamin B12: injections again?
:white_check_mark:/:x:/:face_with_monocle: Schüssler 2, 4, & 7 (need 3-6 months sez my acupressurist).
ACID:
:face_with_monocle: Mumijo isn’t working…
Bentonite or medicinal clay never stopped my gastric acidity in my twens.

Supps TAKEN TODAY: No melatonin was tough for sleep-discipline, up 6x, longer breaks 2x, but shorter sleep and still fitter and more natural. But after zinc, 2 SRP & 2 SAMe at 6:40 and then 1 each of NAC, Ribose, SAMe, SRP and malate at 9:45 I feel OK-ish, but shaky for a while and my head is dulled again like yesterday. Then at 12:00 a high urinating urge, causing pain, after having been at 11:15 and not having drunken that much. Also maybe taking SAMe at 5:00 is not letting me sleep long enough. Seizures yesterday can only have been melatonin or SAMe. I've stopped melatonin, felt better at night, but still felt funny after SAMe. Seems like a serotonin overdose, as I am already taking a lot of GABA at the moment. Maybe stiffness is better, but... OK: SAMe is out or at least back down to 1x100, melatonin is back in, and to get the seizureishness down I'll use glutamine, which I've been trfying for stiffness anyway.

/20:05 P5P, Mumijo, 1x425 passiflora, selene, rosewort/magnesium carbonate/B1 at meal,
/22:25 600mg GABA & 500mg !glutamine, !2 serrapeptase, 2nd !1x425 passiflora, NO melatonin
/22:40 tea tree oil
/00:05 !300mg theanine & !600mg GABA & !“3rd” 1x289 passiflora (earlier!) Bit heartburn: 2nd mumijo.
/01:45 “4th” passiflora, 3rd mumijo & drink (still heartburn)
/6:38 2 SAMe, zinc, 2 serrapeptase: keep SAMe down and later.
/8:30 !600 GABA+500mg theanine, 2 Mg malate, 2 glycinate.
/9:45: NAC, Ribose, SAMe, SRP, malate. 10:00 shaky & numb hands, funny in head… Didn’t take NAC or Ribose yesterday, so it’d seem to be the SAMe (or increased SRP), and might be serotonin overdose. No seizure tho. But high bladder pressure, pain & ache, which’d also be the SAMe.
/12:10 1 each of 500 glutamine (2nd), NAC (2nd), Ribose 4g (2nd/3rd), SRP (4th), malate (4th), glycinate (3rd). 12:20 Now suddenly tired dry itchy eyes. 12:30 I am not relaxed, I am tight, e.g. jaw - why?
/15:00 NAC (3rd), Ribose 2.5g (4th), SRP (5th), malate (5th), glycinate (4th). Not that tight any more, still tired, but maybe cos of the short night.
/17:55 NAC (4th), Ribose 2.5g (5th), SRP (6th), malate (6th), glycinate (5th).
My wife said yesterday I look white-green and today: wax-white, praps from the tooth treatment.
Daytime: :arrow_upper_right:5x NAC, :arrow_upper_right:6x Ribose, :arrow_upper_right:?x SRP, 2x2 malate, 2x2 glycinate (0x SAMe)

Development:

Re-arranged the supp infos. Translated my symptom list for a German forum and in the process improved this symptom list in my references and confirmed that there isn’t anything more to do there.

Just found an in-depth explanation of how to write a log to self-help with CFS & FM:
http://cfsselfhelp.org/library/7-records-and-worksheets
http://www.cfsselfhelp.org/library/30-logs-worksheets-and-rules
Looks like a don’t need to write that much more, just find more what others have written… :wink:
I also will no longer have to look at 100s of studies to see the important things of what’s new:
For 2018: One year in review 2019: fibromyalgia - PubMed
For 2019: One year in review 2020: fibromyalgia - PubMed
For 2020: One year in review 2021: fibromyalgia - PubMed
= https://www.clinexprheumatol.org/abstract.asp?a=17230

Lessons in self-care #88 Reporting sleep & exercise times here serves self-discipline, very nec!
Reasons to be cheerful #90 1h30 walk wasn’t an energy problem, so trying cycling & praps walking longer tomorrow.

Abbreviations & explanations

Entries start with night meds & sleep, before triggers/symptoms & treatments, because the “night before” is vital. So Fri-day starts with Thursday night, the night before Friday.

Pain "7" = crying (/out) point; my 1 is others 2-3, and due to pacing/treatments

My wife says my 7 is other people’s 12. 1 is probably 2-3. Due to pacing, keeping work down to 25% (12h/wk) and all my treatments (acupressure, GABA) and physio self-treatments I manage to keep getting my pains & Ache down quickly. 3 usually means the Ache, not pains; these I address individually, often automatically and on the fly now, e.g. twist-stretching everything or something specific after getting up.

TIME DATA, e.g. ' = mins, h = hours, 18:10:40', date YYYY-MM-DD

’ = mins = minutes, ‘’ = secs = seconds, h is hours as time length, 3h is 3 hours long, 3:00 is 3am, 15:00 is 3pm. 18:10:40’ means 40 minutes, starting at 18:10, = 10 minutes past 6pm up to 10 to 7pm. The date is the logical digital standard: YYYY-MM-DD.

SLEEP: slp, w, lbu/LBU, RLS, p, i

slp = sleep; reasons for getting up: w = (a)wake, lbu/LBU: lower back unrest (‘RLS’?), p: pee, p2: pain 2 of 7 before peeing, i: ideas.

ACTIVITIES: TT, e.g. "5:1"

TT = table tennis, 5:1 = score, usually showing how well I’m feeling: energy, relaxedness & alertness if the first number is much higher than the second.

SUPPS: supplements (as opposed to herbs & meds). Fx: Effects. Sfx: Side effects.

SELF-TREATMENTS (about everything else...)

The self-treatments listed are only things that I’m spotlighting & rewarding myself for at the mo by counting them; much of what I do at night is self-treatment to get back to sleep or alleviate (1-2h/d), certain regular movements at daytime, like twist-stretching (30’), writing this blog is self-treatment (30’-60’/d), and the further fibro-work is an indirect form.
Self treatments are usually preventative or always have the same positive effect (e.g. cold showering improves Ache and sleep) - at least I do them for that - and I use “:arrow_forward:” to show what I’m doing to alleviate something and mark it off in the details “:white_check_mark:/:x:” whether it works well enough for a time or doesn’t’, e.g. Ache :arrow_forward: cold fast shower “:white_check_mark:
fw = fibro-work, meaning reading and writing this blog, the reference base, on 4 fibro-forums and researching fibro-stuff on the web.
AuTr = Autogenic Training (usually to actively get - back - to sleep, so counting it as sleep and AuTr…),
FAT Flash/fast autogenic training: immediate image of dreamy floating in space or liquid from jaw to legs.
cold/FCS = Flash Cold Shower (20’’-60’’) , I count it as 10’ tho. At night with ear plugs & all lights off.
breath-hold/WHM-B-H = Wim Hof Method Breath-Holding,
Neck 1 is stretching top right to bottom left, vice versa & sky/ground, neck “1+” is stretching far further diagonally downwards, neck 2 is pressing my head against my hand “without moving”, left right and front.
loins = loins/groin = stretching the ligaments there.
ex = exercises
HWB = Hot water bottle,
RR = bp = blood pressure (Riva Rocci), plus pulse. Used to be normal, plus sometimes white coat syndrome, went up since fibro, seems to have gone down again enough so I’ve not only stopped lercanidipine, but also candesartan and am checking RR regularly.
:new: “V” for loins = lie on back, legs up and let legs fall to sides;
:new: twist-stretching more for the loins
:white_check_mark: :x: :face_with_monocle: ➔ ⇄ ⇨➜ ➞ :arrow_right: ➲ ↔:⇰↔ →:arrow_upper_right: :arrow_lower_right:

↯ ↛ ↺ ↮ ⇝ ⇾ ⟹ ⭆ ⤮:

2021-10-10, Sunday - wow: cycled 25-30 miles, 5.5h, and still OK, due to taking 1x NAC, Mg malate, Mg glycinate, Ribose every 1.5h and serrapeptase when not eating!

Triggers & resulting Symptoms

SLEEP: 8h33, up 5x (51') ➔ Feeling 90% well, Ache 1 of 7 ✅. Did delight in a bit of unreasonable fw in the middle of the night, but melatonin helped getting my thoughts back down. Let's see how sore my muscles are tomorrow.

No fw!: whoops: 36’.:face_with_monocle:
FCS p1 22:18-
23:58 5’ 90%/1 p2 st3 drink fw3’ stiff, numbed, bladder, due to melatonin. !!600mg theanine & 600mg GABA & 3rd 1x289 passiflora (earlier!) Bit heartburn: 2nd mumijo.
1:35 34’ 90%/1 p1 st1 drink fw30’ Still sleep breaks, despite melatonin. And stiffer. Still heartburn, despite mumijo. Bored? Dozing quite a bit at first.
4:38 3’ 90%/1 p0 st2 drink fw1’
2:55 3’ 90%/1 p0 st1 drink fw1’ “4th” passiflora? Nope.
6:55 6’ 90%/1 p0 st1 drink fw1’ zinc 2xSRP
-7:42 bit tired, but not druggy. GABA+500mg theanine, 2 Mg glycinate.

Sum: 1h42+7h42-(5+34+3+3+6=)51’=9h24-51’=8h33, up 5x (51’)

ACTIVITIES ➔ ACHE: Well, considering to cycling 25-30 miles ➔ 90%/1. Of course not compared to what I used to be able to or what the others did. They walked in between for about 10 miles or more. That was too much for me, so I went back home on my home. Also I was talking a lot of the time, albeit with good nicest of friends.

Ache = also Exhaustion/Tired :white_check_mark: :x: :face_with_monocle: ➔ ?90%/1
Cycle➔ exhaustion, also as action➔pains;
TT = Table-Tennis➔ easy or effortless or strained or tough?
talk/meetings here (and actions➔pains?)
Grandchild➔
Work/Mask-talking➔
Socializing/Talking➔

ACTIONS ➔ PAINS: Backside, hands and elbows hurt most from the cycling. First I could cycle quickly, but on my way back I had to rest or go slow. But this is all brilliant! ✅ Rested after, but did some music production standing up, so you could say: better than usual. ✅

:white_check_mark: :x: :face_with_monocle:
Lying :white_check_mark::x::face_with_monocle:, standing :white_check_mark::x::face_with_monocle:, loins :white_check_mark::x::face_with_monocle:, sitting :white_check_mark::x::face_with_monocle:, arms up :white_check_mark::x::face_with_monocle:, neck stiffness 90° :white_check_mark::x::face_with_monocle:, stiffness after poses :white_check_mark::x::face_with_monocle:, walking :white_check_mark::x::face_with_monocle:, fast cycling :white_check_mark::x::face_with_monocle:, bladder 0xp1-2 :white_check_mark::x::face_with_monocle:, GI :white_check_mark::x::face_with_monocle:, talking :white_check_mark::x::face_with_monocle:, mask-talking :white_check_mark::x::face_with_monocle:"
Lie ➔ LBU = lower back unrest, hunchback, Neck, thighs, elbows, itch, cold/hot, nose stuffy
Stand ➔ Legs, back
Knees up ➔ right loin
Arms up ➔ pain
Sit ➔ Backside, lower back
Pose ➔ stiffness (Stiffness after holding a posture): Time 0-60’’, pain amount if faster.
Walk ➔ Elbows, feet, right knee
Cycle ➔ Feet, knees, backside, elbows, hands, neck
Drink ➔ Pee frequency, pain before peeing (p0-6).
Eat ➔ Esophagus block, stomach, gut, rectum, stool (IBSD?). GI for short
Talk➔Jaw (& Ache)
Mask-talk ➔ not sure how to describe it, just plain yucky.

Treatments

SELF-PHYSIO: 1h10 ✅

:white_check_mark: Timing, AuTr 10’, hunchback-pillow 10’, cold shower (10’), palpate 1’, belly 3’, back 7’, neck 1+ 6’, twist-stretch 10’, yoga 2’, RR 5x2’,
:x: neck 2 10’, loins 5’, gums 2x30’’, V ‘, marionette-hang 1’, mirror 2’, shaking dance 1’, breath-hold 11’, HWB 3’, workout 7’

THERAPIES:

Acupressure / Therapy, Doc/Diagnoses ? :white_check_mark: :x: :face_with_monocle: Acupressure 2h Tues & 2h Fri:

Development:

Lessons in self-care #89 Turned back not quite in time, but before I was starting to decompose.
Reasons to be cheerful #91 Just: WOW! :sweat_smile: :crazy_face: :face_with_monocle:

Abbreviations & explanations

Entries start with night meds & sleep, before triggers/symptoms & treatments, because the “night before” is vital. So Fri-day starts with Thursday night, the night before Friday.

Pain "7" = crying (/out) point; my 1 is others 2-3, and due to pacing/treatments

My wife says my 7 is other people’s 12. 1 is probably 2-3. Due to pacing, keeping work down to 25% (12h/wk) and all my treatments (acupressure, GABA) and physio self-treatments I manage to keep getting my pains & Ache down quickly. 3 usually means the Ache, not pains; these I address individually, often automatically and on the fly now, e.g. twist-stretching everything or something specific after getting up.

TIME DATA, e.g. ' = mins, h = hours, 18:10:40', date YYYY-MM-DD

’ = mins = minutes, ‘’ = secs = seconds, h is hours as time length, 3h is 3 hours long, 3:00 is 3am, 15:00 is 3pm. 18:10:40’ means 40 minutes, starting at 18:10, = 10 minutes past 6pm up to 10 to 7pm. The date is the logical digital standard: YYYY-MM-DD.

SLEEP: slp, w, lbu/LBU, RLS, p, i

slp = sleep; reasons for getting up: w = (a)wake, lbu/LBU: lower back unrest (‘RLS’?), p: pee, p2: pain 2 of 7 before peeing, i: ideas.

ACTIVITIES: TT, e.g. "5:1"

TT = table tennis, 5:1 = score, usually showing how well I’m feeling: energy, relaxedness & alertness if the first number is much higher than the second.

SUPPS: supplements (as opposed to herbs & meds). Fx: Effects. Sfx: Side effects.

SELF-TREATMENTS (about everything else...)

The self-treatments listed are only things that I’m spotlighting & rewarding myself for at the mo by counting them; much of what I do at night is self-treatment to get back to sleep or alleviate (1-2h/d), certain regular movements at daytime, like twist-stretching (30’), writing this blog is self-treatment (30’-60’/d), and the further fibro-work is an indirect form.
Self treatments are usually preventative or always have the same positive effect (e.g. cold showering improves Ache and sleep) - at least I do them for that - and I use “:arrow_forward:” to show what I’m doing to alleviate something and mark it off in the details “:white_check_mark:/:x:” whether it works well enough for a time or doesn’t’, e.g. Ache :arrow_forward: cold fast shower “:white_check_mark:
fw = fibro-work, meaning reading and writing this blog, the reference base, on 4 fibro-forums and researching fibro-stuff on the web.
AuTr = Autogenic Training (usually to actively get - back - to sleep, so counting it as sleep and AuTr…),
FAT Flash/fast autogenic training: immediate image of dreamy floating in space or liquid from jaw to legs.
cold/FCS = Flash Cold Shower (20’’-60’’) , I count it as 10’ tho. At night with ear plugs & all lights off.
breath-hold/WHM-B-H = Wim Hof Method Breath-Holding,
Neck 1 is stretching top right to bottom left, vice versa & sky/ground, neck “1+” is stretching far further diagonally downwards, neck 2 is pressing my head against my hand “without moving”, left right and front.
loins = loins/groin = stretching the ligaments there.
ex = exercises
HWB = Hot water bottle,
RR = bp = blood pressure (Riva Rocci), plus pulse. Used to be normal, plus sometimes white coat syndrome, went up since fibro, seems to have gone down again enough so I’ve not only stopped lercanidipine, but also candesartan and am checking RR regularly.
:new: “V” for loins = lie on back, legs up and let legs fall to sides;
:new: twist-stretching more for the loins
:white_check_mark: :x: :face_with_monocle: ➔ ⇄ ⇨➜ ➞ :arrow_right: ➲ ↔:⇰↔ →:arrow_upper_right: :arrow_lower_right:

↯ ↛ ↺ ↮ ⇝ ⇾ ⟹ ⭆ ⤮:

2021-10-11, Monday - no repercussions, keeping up the boosters

Triggers & resulting Symptoms

SLEEP: 8h56, up 5x (1h29) ➔ Feeling 90% well, Ache 1 of 7 ✅. 1mcg melatonin and 2 passiflora wasn't enough.

No fw!
FCS p0 22:15-
0:27 11’ 90%/1 p0 st1 drink fw1’ theanine GABA 2nd passiflora, 3rd mumijo. !2 SRP. Heartburn worse after these at mumijo, so stop mumijo at night. → drink.
2:21 3’ 90%/1 p0 st1 drink fw1’
3:46 3’ 90%/1 p0 st1 drink fw1’
4:05 64’ 6+fw20’ unrest awake → 3rd passiflora, 3’ 90%/1 p0 st1 drink fw1’ ⇰ 2nd melatonin nec.
6:27 8’ 90%/1 p0 st1 drink fw5’ hungry zinc, 2 SRP.
-8:40 (SRP?)
Sum: 1h45+8h40-(11+3+3+64+8=)1h29 = 10h25-1h29 = 8h56, up 5x (1h29)

ACTIVITIES ➔ ACHE: Work, with loud mask-talking and normal talking to 2 people outside for quite a time, cycling, table tennis, carrying on using the boosters NAC Mg and Ribose, partly serrapeptase, 1h walk, music production ➔ 90%/1

Ache = also Exhaustion/Tired :white_check_mark: :x: :face_with_monocle: ➔ ?90%/1
Cycle➔ exhaustion, also as action➔pains;
TT = Table-Tennis➔ easy or effortless or strained or tough?
talk/meetings here (and actions➔pains?)
Grandchild➔
Work/Mask-talking➔
Socializing/Talking➔

"ACTIONS ➔ PAINS: None to speak of. ✅ Bit of GI on 1h walk, maybe Mg? 🧐

:white_check_mark: :x: :face_with_monocle:
Lying :white_check_mark::x::face_with_monocle:, standing :white_check_mark::x::face_with_monocle:, loins :white_check_mark::x::face_with_monocle:, sitting :white_check_mark::x::face_with_monocle:, arms up :white_check_mark::x::face_with_monocle:, neck stiffness 90° :white_check_mark::x::face_with_monocle:, stiffness after poses :white_check_mark::x::face_with_monocle:, walking :white_check_mark::x::face_with_monocle:, fast cycling :white_check_mark::x::face_with_monocle:, bladder 0xp1-2 :white_check_mark::x::face_with_monocle:, GI :white_check_mark::x::face_with_monocle:, talking :white_check_mark::x::face_with_monocle:, mask-talking :white_check_mark::x::face_with_monocle:"
Lie ➔ LBU = lower back unrest, hunchback, Neck, thighs, elbows, itch, cold/hot, nose stuffy
Stand ➔ Legs, back
Knees up ➔ right loin
Arms up ➔ pain
Sit ➔ Backside, lower back
Pose ➔ stiffness (Stiffness after holding a posture): Time 0-60’’, pain amount if faster.
Walk ➔ Elbows, feet, right knee
Cycle ➔ Feet, knees, backside, elbows, hands, neck
Drink ➔ Pee frequency, pain before peeing (p0-6).
Eat ➔ Esophagus block, stomach, gut, rectum, stool (IBSD?). GI for short
Talk➔Jaw (& Ache)
Mask-talk ➔ not sure how to describe it, just plain yucky.

Treatments

SELF-PHYSIO: 35' ✅

:white_check_mark: Timing, AuTr 5’, hunchback-pillow 5’, cold shower (10’), palpate 1’, belly 3’, back 7’, neck 1+ 4’,
:x: neck 2 10’, twist-stretch 10’, loins 5’, yoga 5’, gums 2x30’’, V ‘, marionette-hang 1’, mirror 2’, shaking dance 1’, breath-hold 11’, RR x2’, HWB 3’, workout 7’

THERAPIES: I've had another look at the fibro-doc 200km from here and seen it's a psychiatrist I'd found. Seeing as myf psychiatrist is the one doc I can talk with best, I'm going to wait what his successor is like and if that doesn't work out, I'll continue to work with him online. But I'll no longer pursue the other route. As to the Chinese-trained acupuncturist I'm thinking about trying (#3), I think I want to go by there personally rather than on the phone, I cycle past there almost every day. My wife thinks I'm mad for wanting to try it again, despite it having caused so much pain. But this time I will not tolerate that, I will complain or take the needles out myself. And I know I can cold shower at home, that will stop the pain immediately.

Acupressure / Therapy, Doc/Diagnoses ? :white_check_mark: :x: :face_with_monocle: Acupressure 2h Tues & 2h Fri:
Chinese-trained acupuncture? I’ll have a closer look, try to talk personally.

Supps to KEEP UP (3): passiflora, GABA, theanine ✅, to WATCH (10): glutamine, Mg malate & glycinate, 2x mumijo (not helping GI ❌, so only daytime), ↗5x NAC ✅, P5P, ↗6x Ribose ✅, ↗3x rose root, ↗?x SRP 🧐, to START/CHANGE (2-3): NADH, ALC (ordered) ✅/❌/🧐. Better with melatonin, but Oct 11th: 2nd melatonin at 2, & praps still 4x passiflora nec. Stopped SAMe (seizures & more).

SLEEP:
:white_check_mark: Passiflora 4x289mg: drowsier, but not too much, deeper, shorter breaks
:white_check_mark: GABA 2x600mg: deeper, 10 areas in daytime
:white_check_mark: theanine 1x300 relaxed, not too long
:white_check_mark::face_with_monocle: glutamine 1x500mg: GABA antagonist. But maybe more day than night?
:white_check_mark::face_with_monocle: melatonin 1mcg at 22, 1mcg at 2.
:face_with_monocle: P5P (serotonin/GABA)
(:face_with_monocle: SRP serrapeptase 2x10.000IU before sleep (but 2h after last meal!))
INFLAMMATION:
:face_with_monocle: 5:30 serrapeptase 2x10.000IU (more?)
:face_with_monocle: zinc
:white_check_mark: tea tree oil on gums
:face_with_monocle: rose root 20:00 2-3x200mg: serotonin & bp.
:face_with_monocle: mumijo (shihalit) 20:00: anti-infl., pain & GI: Mumijo attenuates chemically induced inflammatory pain in mice - PubMed (2015), Anti-ulcer activity: Ulcer healing activity of Mumijo aqueous extract against acetic acid induced gastric ulcer in rats - PubMed (2015)
German link: Mumijo – Das schwarze Naturheilmittel
:x: 2h after meals SAMe :arrow_lower_right:0x100mg (max. !): pain, stiffness, sfx: GI, bladder!, dry mouth!, sleep!, serotonin-seizures! SAMe - #2 by Anne
WAKE/FOG:
:white_check_mark: 8:00 GABA & theanine
:face_with_monocle: Mg glycinate 2x400
:face_with_monocle: NAC
:face_with_monocle: Mg malate :arrow_lower_right:0-1 for the time being :face_with_monocle: , cos I’m running short. (2x500)
ACHE:
:white_check_mark::face_with_monocle: Serrapeptase up to 8x or more?
ENERGY/FATIGUE:
:face_with_monocle: Ribose up to 6x2.5g muscle fatigue, ATP; GI-sfx, (<500mg per serving?) No sugar allowed - #7 by Lynne etc.
:face_with_monocle: NAC -2400mg: NAC = N-acetylcysteine fatigue, anti-infl.
:white_check_mark:/:x:/:face_with_monocle: NADH/NAD+: Serrapeptase & NADH/NAD+ - enzymes - #4 by JayCS B3-coenzyme for energy & post exertional malaise.
:white_check_mark:/:x:/:face_with_monocle: Acetyl L-Carnitine (ALC)?: LC first? A for Alert brain, dose: 2x750mg, for no sfx keep under 3000. Question about kinds of pain | Page 2 | Fibromyalgia Forum.
:white_check_mark:/:x:/:face_with_monocle: glycine? Alertness
STIFFNESS:
Glutamine?: Low Dopamine in Fibromyalgia and CFS
NOSTRILS CLOTTED at night
:white_check_mark: tea tree oil (lavender not enough)
EVERYTHING:
:white_check_mark: Vitamin B12: injections again?
:white_check_mark:/:x:/:face_with_monocle: Schüssler 2, 4, & 7 (need 3-6 months sez my acupressurist).
ACID:
:face_with_monocle: Mumijo isn’t working: Still same heartburn, plus hungriness at 5/6.
Medicinal clay never stopped my gastric acidity in my twens, but is bentonite - or am I - different now? (= 95% Montmorillonite; zeolithe is OK too. IBSD & -C; not together with other supps… (ZdG))

Supps TAKEN TODAY: (SRP not with meals).

/19:45 P5P, 1 Mumijo, 1x289 passiflora, selene, 2x rosewort/Mg carbonate/B1 at meal.
/21:35 600mg GABA & 500mg !glutamine, <0.1 melatonin (but SRP doesn’t seem to be helping?) Reduce passi at 22, 2-3 rosewort?
/00:27 !300mg theanine & !600mg GABA & 2nd 1x289 passiflora, Bit heartburn: 3rd mumijo. !2 serrapeptase (2h after meal!) Stop mumijo at night, as more after.
/4:05 “3rd” passiflora - too late.
no 4th passiflora
/6:32 zinc, 2 serrapeptase.
/8:40 600 GABA+500mg theanine, 2 Mg glycinate. tea tree oil
/13:50: 1x each of NAC, Ribose, glycinate, malate, SRP.
/17:45: NAC, Ribose, glycinate, malate, serrapeptase
Daytime: :arrow_upper_right:5x NAC :white_check_mark:, :arrow_upper_right:6x Ribose :white_check_mark:, :arrow_upper_right:?x SRP :white_check_mark:, 2x2 malate :white_check_mark:, 2x2 glycinate :white_check_mark:

Development:

Lessons in self-care #90 Wary…
Reasons to be cheerful #92 No repercussions from yesterday :face_with_monocle: :relaxed: :stuck_out_tongue:

Abbreviations & explanations

Entries start with night meds & sleep, before triggers/symptoms & treatments, because the “night before” is vital. So Fri-day starts with Thursday night, the night before Friday.

Pain "7" = crying (/out) point; my 1 is others 2-3, and due to pacing/treatments

My wife says my 7 is other people’s 12. 1 is probably 2-3. Due to pacing, keeping work down to 25% (12h/wk) and all my treatments (acupressure, GABA) and physio self-treatments I manage to keep getting my pains & Ache down quickly. 3 usually means the Ache, not pains; these I address individually, often automatically and on the fly now, e.g. twist-stretching everything or something specific after getting up.

TIME DATA, e.g. ' = mins, h = hours, 18:10:40', date YYYY-MM-DD

’ = mins = minutes, ‘’ = secs = seconds, h is hours as time length, 3h is 3 hours long, 3:00 is 3am, 15:00 is 3pm. 18:10:40’ means 40 minutes, starting at 18:10, = 10 minutes past 6pm up to 10 to 7pm. The date is the logical digital standard: YYYY-MM-DD.

SLEEP: slp, w, lbu/LBU, RLS, p, i

slp = sleep; reasons for getting up: w = (a)wake, lbu/LBU: lower back unrest (‘RLS’?), p: pee, p2: pain 2 of 7 before peeing, i: ideas.

ACTIVITIES: TT, e.g. "5:1"

TT = table tennis, 5:1 = score, usually showing how well I’m feeling: energy, relaxedness & alertness if the first number is much higher than the second.

SUPPS: supplements (as opposed to herbs & meds). Fx: Effects. Sfx: Side effects.

SELF-TREATMENTS (about everything else...)

The self-treatments listed are only things that I’m spotlighting & rewarding myself for at the mo by counting them; much of what I do at night is self-treatment to get back to sleep or alleviate (1-2h/d), certain regular movements at daytime, like twist-stretching (30’), writing this blog is self-treatment (30’-60’/d), and the further fibro-work is an indirect form.
Self treatments are usually preventative or always have the same positive effect (e.g. cold showering improves Ache and sleep) - at least I do them for that - and I use “:arrow_forward:” to show what I’m doing to alleviate something and mark it off in the details “:white_check_mark:/:x:” whether it works well enough for a time or doesn’t’, e.g. Ache :arrow_forward: cold fast shower “:white_check_mark:
fw = fibro-work, meaning reading and writing this blog, the reference base, on 4 fibro-forums and researching fibro-stuff on the web.
AuTr = Autogenic Training (usually to actively get - back - to sleep, so counting it as sleep and AuTr…),
FAT Flash/fast autogenic training: immediate image of dreamy floating in space or liquid from jaw to legs.
cold/FCS = Flash Cold Shower (20’’-60’’) , I count it as 10’ tho. At night with ear plugs & all lights off.
breath-hold/WHM-B-H = Wim Hof Method Breath-Holding,
Neck 1 is stretching top right to bottom left, vice versa & sky/ground, neck “1+” is stretching far further diagonally downwards, neck 2 is pressing my head against my hand “without moving”, left right and front.
loins = loins/groin = stretching the ligaments there.
ex = exercises
HWB = Hot water bottle,
RR = bp = blood pressure (Riva Rocci), plus pulse. Used to be normal, plus sometimes white coat syndrome, went up since fibro, seems to have gone down again enough so I’ve not only stopped lercanidipine, but also candesartan and am checking RR regularly.
:new: “V” for loins = lie on back, legs up and let legs fall to sides;
:new: twist-stretching more for the loins
:white_check_mark: :x: :face_with_monocle: ➔ ⇄ ⇨➜ ➞ :arrow_right: ➲ ↔:⇰↔ →:arrow_upper_right: :arrow_lower_right:

↯ ↛ ↺ ↮ ⇝ ⇾ ⟹ ⭆ ⤮:

2021-10-12, Tuesday - still good, despite sort of smashed night: doesn’t matter, having the suiting boosters… as long as I don’t start reckoning with them.

The last 2 times I had long breaks at night were the night before last Tuesday, 5th (2h36), and Wednesday 22nd (7h43, up 4x (1h52), minus 5h12 seemingly dozing). Can’t really count Sunday 3rd (1h47), because it was the weekend and I slept 10h11-25 doze = 9h46. Twice Tuesday might be explained by not having to go to work and then Wednesday was likewise revenge bedtime procrastination…

Triggers & resulting Symptoms

SLEEP: 6h44, up 5x (3h41) ➔ Feeling 90% well, Ache 1 of 7 ✅

No fw!
Only a make-shift FCS, as the water pipes in our street are being flushed, and we’re not sposed to use any water 20:00-5:00. Cold standing in water, but no additional warmth nec.
p0 22:10-
23:35 6’+3’+3’ 90%/1 p0 st1 drink fw3’ unrest, so no longer postponing !300mg theanine & !600mg GABA & 2nd 1x289 passiflora !2 serrapeptase (2h after meal). Still unrest, missing the melatonin-druggedness, so not sure if the specks of it really were enough, so a 2nd.
0:36 2h06 Waiting dozing and thinking a bit about psychotherapy tomorrow fairly patiently, waiting for the 2nd speck of melatonin and 2nd passiflora to work. Still fairly awake, so am considering either trying to makeshift FCS#2 or 6. fw… now tired. 2:42 3rd passiflora. Dozing using AuTr. do something:
3:06 1h15 90%/1 etc. Don’t want to try the FCS#2, see if I can’t get melatonin to start working, so a 3rd speck now… seeing as I’d wanted to try if I can get melatonin alone to work… Maybe I shd start weighing the specks of it to control it better. Or is it sth else…?
5’52 8’ No melatonin alone is not enough: FCS2…
7:11 3’ tooth’s been hurting, p0/1, st1 drink mostly. fw: lots.
-8:35
Sum: 1h50+8h35-(5+2h05+1h15+8+3=)3h41=10h25-3h41=6h44, up 5x (3h41)

ACTIVITIES ➔ ACHE: Music production fun, psychotherapy slightly enlightening, acupressure helpful, table tennis easy, good talk, shop easy ➔ ?90%/1, despite tiredness

Ache = also Exhaustion/Tired :white_check_mark: :x: :face_with_monocle: ➔ ?90%/1
Cycle➔ exhaustion, also as action➔pains;
TT = Table-Tennis➔ easy or effortless or strained or tough?
talk/meetings here (and actions➔pains?)
Grandchild➔
Work/Mask-talking➔
Socializing/Talking➔

"ACTIONS ➔ PAINS: GI Monday evening continuing - hardly took ribose, 1-2x, so either from the ribose yesterday or it is like I thought the high amount of Mg - yesterday 4-6 cps today, at least 8 yesterday. I'd best reduce the Mg. Everything else good.

:white_check_mark: :x: :face_with_monocle:
Lying :white_check_mark::x::face_with_monocle:, standing :white_check_mark::x::face_with_monocle:, loins :white_check_mark::x::face_with_monocle:, sitting :white_check_mark::x::face_with_monocle:, arms up :white_check_mark::x::face_with_monocle:, neck stiffness 90° :white_check_mark::x::face_with_monocle:, stiffness after poses :white_check_mark::x::face_with_monocle:, walking :white_check_mark::x::face_with_monocle:, fast cycling :white_check_mark::x::face_with_monocle:, bladder 0xp1-2 :white_check_mark::x::face_with_monocle:, GI :white_check_mark::face_with_monocle:, talking :white_check_mark::x::face_with_monocle:, mask-talking :white_check_mark::x::face_with_monocle:"
Lie ➔ LBU = lower back unrest, hunchback, Neck, thighs, elbows, itch, cold/hot, nose stuffy
Stand ➔ Legs, back
Knees up ➔ right loin
Arms up ➔ pain
Sit ➔ Backside, lower back
Pose ➔ stiffness (Stiffness after holding a posture): Time 0-60’’, pain amount if faster.
Walk ➔ Elbows, feet, right knee
Cycle ➔ Feet, knees, backside, elbows, hands, neck
Drink ➔ Pee frequency, pain before peeing (p0-6).
Eat ➔ Esophagus block, stomach, gut, rectum, stool (IBSD?). GI for short
Talk➔Jaw (& Ache)
Mask-talk ➔ not sure how to describe it, just plain yucky.

Treatments

SELF-PHYSIO: 52' ✅

:white_check_mark: RR 3x2’ (144/85 and 132/82 alternately…), Timing, AuTr 10’, hunchback-pillow 10’, cold shower 2x(10’), palpate 1’, belly 3’, back 7’,
:x: neck 1+ 9’, neck 2 10’, twist-stretch 10’, loins 5’, yoga 5’, gums 2x30’’, V ‘, marionette-hang 1’, mirror 2’, shaking dance 1’, breath-hold 11’, HWB 3’, workout 7’

THERAPIES: Psychotherapy slightly enlightening, acupressure pretty helpful, backside, thighs, but this time at last acupressure for elbows.

Acupressure / Therapy, Doc/Diagnoses ? :white_check_mark: :x: :face_with_monocle: Acupressure 2h Tues & 2h Fri:

Max. dose of Mg: 420 mg, for sleep 500mg, probably the element, not the compound is meant, which’d mean around x9, so 4.5g of the compound, which I’d be above if I took the full 3x2 of the malate and 3x2 of the glycinate = 5.6g plus carbonate in the rose wort = 60mg of I think the element (=550 = 6.2g). Best stay down to 3x1 of each, 2.8g plus carbonate = 3.3.

Supps to KEEP UP (3): passiflora, GABA, theanine ✅, to WATCH (10): glutamine, Mg malate & glycinate, 2x mumijo (not helping GI ❌, so only daytime), ↗5x NAC ✅, P5P, ↗6x Ribose ✅, ↗3x rose root, ↗?x SRP 🧐, to START/CHANGE (2-3): NADH, ALC (ordered) ✅/❌/🧐. Better with melatonin, but Oct 11th: 2nd melatonin at 2, & praps still 4x passiflora nec. Increase to 3x melatonin? Not too much Mg.

SLEEP:
:white_check_mark: Passiflora 4x289mg: drowsier, but not too much, deeper, shorter breaks
:white_check_mark: GABA 2x600mg: deeper, 10 areas in daytime
:white_check_mark: theanine 1x300 relaxed, not too long
:white_check_mark::face_with_monocle: glutamine 1x500mg: GABA antagonist. But maybe more day than night?
:white_check_mark::face_with_monocle: melatonin 1mcg at 22, 1mcg at 2.
:face_with_monocle: P5P (serotonin/GABA)
(:face_with_monocle: SRP serrapeptase 2x10.000IU before sleep (but 2h after last meal!))
INFLAMMATION:
:face_with_monocle: 5:30 serrapeptase 2x10.000IU (more?)
:face_with_monocle: zinc
:white_check_mark: tea tree oil on gums
:face_with_monocle: rose root 20:00 2-3x200mg: serotonin & bp.
:face_with_monocle: mumijo (shihalit) 20:00: anti-infl., pain & GI: Mumijo attenuates chemically induced inflammatory pain in mice - PubMed (2015), Anti-ulcer activity: Ulcer healing activity of Mumijo aqueous extract against acetic acid induced gastric ulcer in rats - PubMed (2015)
German link: Mumijo – Das schwarze Naturheilmittel
:x: 2h after meals SAMe :arrow_lower_right:0x100mg (max. !): pain, stiffness, sfx: GI, bladder!, dry mouth!, sleep!, serotonin-seizures! SAMe - #2 by Anne
WAKE/FOG:
:white_check_mark: 8:00 GABA & theanine
:face_with_monocle: Mg glycinate 2x400
:face_with_monocle: NAC
:face_with_monocle: Mg malate :arrow_lower_right:0-1 for the time being :face_with_monocle: , cos I’m running short. (2x500)
ACHE:
:white_check_mark::face_with_monocle: Serrapeptase up to 8x or more?
ENERGY/FATIGUE:
:face_with_monocle: Ribose up to 6x2.5g muscle fatigue, ATP; GI-sfx, (<500mg per serving?) No sugar allowed - #7 by Lynne etc.
:face_with_monocle: NAC -2400mg: NAC = N-acetylcysteine fatigue, anti-infl.
:white_check_mark:/:x:/:face_with_monocle: NADH/NAD+: Serrapeptase & NADH/NAD+ - enzymes - #4 by JayCS B3-coenzyme for energy & post exertional malaise.
:white_check_mark:/:x:/:face_with_monocle: Acetyl L-Carnitine (ALC)?: LC first? A for Alert brain, dose: 2x750mg, for no sfx keep under 3000. Question about kinds of pain | Page 2 | Fibromyalgia Forum.
:white_check_mark:/:x:/:face_with_monocle: glycine? Alertness
STIFFNESS:
Glutamine?: Low Dopamine in Fibromyalgia and CFS
NOSTRILS CLOTTED at night
:white_check_mark: tea tree oil (lavender not enough)
EVERYTHING:
:white_check_mark: Vitamin B12: injections again?
:white_check_mark:/:x:/:face_with_monocle: Schüssler 2, 4, & 7 (need 3-6 months sez my acupressurist).
ACID:
:face_with_monocle: Mumijo isn’t working: Still same heartburn, plus hungriness at 5/6.
Medicinal clay never stopped my gastric acidity in my twens, but is bentonite - or am I - different now? (= 95% Montmorillonite; zeolithe is OK too. IBSD & -C; not together with other supps… (ZdG))

Supps TAKEN TODAY: 2x0.1 melatonin with only 2x passiflora wasn't enough, but not drowsy in the morning, so I could try increasing melatonin to 3x0.1, emulating the ER pill. Not that much NAC or Ribose, didn't seem nec: 2 NAC, 2 Ribose, 2 SRP.

/20:25 P5P, 1 Mumijo, 1x289 passiflora, selene, 1x rosewort/Mg carbonate/B1 at meal.
/21:25 600mg GABA & 500mg !glutamine, <0.1 melatonin (but SRP doesn’t seem to be helping?), 1x rosewort. Reduce passi at 22.
/23:35 !300mg theanine & !600mg GABA & 2nd 1x289 passiflora, !2 serrapeptase (2h after meal!). Stop mumijo at night, as more heartburn after. 00:00 2nd <0.1 melatonin! Leaving it in my mouth a bit.
no “3rd” passiflora - too late.
no 4th passiflora
/8:35 zinc, 2 serrapeptase. (late)
/9:25 600 GABA+500mg theanine, 1 Mg glycinate. 1 SRP by mistake? NAC Ribose
/15:50: NAC, Ribose
/17:15: serrapeptase
NAC, Ribose, glycinate, malate, SRP.
Daytime: :arrow_upper_right:5x NAC :white_check_mark:, :arrow_upper_right:6x Ribose :white_check_mark:, :arrow_upper_right:?x SRP :white_check_mark:, 2x2 malate :white_check_mark:, 2x2 glycinate :white_check_mark:
ORDER MORE NAC! tea tree oil

Development:

Lessons in self-care #91 Keeping things toned down a bit, but energy etc. there, despite reduced supps.
Reasons to be cheerful #93 Still good day again, despite little sleep, tired!

Abbreviations & explanations

Entries start with night meds & sleep, before triggers/symptoms & treatments, because the “night before” is vital. So Fri-day starts with Thursday night, the night before Friday.

Pain "7" = crying (/out) point; my 1 is others 2-3, and due to pacing/treatments

My wife says my 7 is other people’s 12. 1 is probably 2-3. Due to pacing, keeping work down to 25% (12h/wk) and all my treatments (acupressure, GABA) and physio self-treatments I manage to keep getting my pains & Ache down quickly. 3 usually means the Ache, not pains; these I address individually, often automatically and on the fly now, e.g. twist-stretching everything or something specific after getting up.

TIME DATA, e.g. ' = mins, h = hours, 18:10:40', date YYYY-MM-DD

’ = mins = minutes, ‘’ = secs = seconds, h is hours as time length, 3h is 3 hours long, 3:00 is 3am, 15:00 is 3pm. 18:10:40’ means 40 minutes, starting at 18:10, = 10 minutes past 6pm up to 10 to 7pm. The date is the logical digital standard: YYYY-MM-DD.

SLEEP: slp, w, lbu/LBU, RLS, p, i

slp = sleep; reasons for getting up: w = (a)wake, lbu/LBU: lower back unrest (‘RLS’?), p: pee, p2: pain 2 of 7 before peeing, i: ideas.

ACTIVITIES: TT, e.g. "5:1"

TT = table tennis, 5:1 = score, usually showing how well I’m feeling: energy, relaxedness & alertness if the first number is much higher than the second.

SUPPS: supplements (as opposed to herbs & meds). Fx: Effects. Sfx: Side effects.

SELF-TREATMENTS (about everything else...)

The self-treatments listed are only things that I’m spotlighting & rewarding myself for at the mo by counting them; much of what I do at night is self-treatment to get back to sleep or alleviate (1-2h/d), certain regular movements at daytime, like twist-stretching (30’), writing this blog is self-treatment (30’-60’/d), and the further fibro-work is an indirect form.
Self treatments are usually preventative or always have the same positive effect (e.g. cold showering improves Ache and sleep) - at least I do them for that - and I use “:arrow_forward:” to show what I’m doing to alleviate something and mark it off in the details “:white_check_mark:/:x:” whether it works well enough for a time or doesn’t’, e.g. Ache :arrow_forward: cold fast shower “:white_check_mark:
fw = fibro-work, meaning reading and writing this blog, the reference base, on 4 fibro-forums and researching fibro-stuff on the web.
AuTr = Autogenic Training (usually to actively get - back - to sleep, so counting it as sleep and AuTr…),
FAT Flash/fast autogenic training: immediate image of dreamy floating in space or liquid from jaw to legs.
cold/FCS = Flash Cold Shower (20’’-60’’) , I count it as 10’ tho. At night with ear plugs & all lights off.
breath-hold/WHM-B-H = Wim Hof Method Breath-Holding,
Neck 1 is stretching top right to bottom left, vice versa & sky/ground, neck “1+” is stretching far further diagonally downwards, neck 2 is pressing my head against my hand “without moving”, left right and front.
loins = loins/groin = stretching the ligaments there.
ex = exercises
HWB = Hot water bottle,
RR = bp = blood pressure (Riva Rocci), plus pulse. Used to be normal, plus sometimes white coat syndrome, went up since fibro, seems to have gone down again enough so I’ve not only stopped lercanidipine, but also candesartan and am checking RR regularly.
:new: “V” for loins = lie on back, legs up and let legs fall to sides;
:new: twist-stretching more for the loins
:white_check_mark: :x: :face_with_monocle: ➔ ⇄ ⇨➜ ➞ :arrow_right: ➲ ↔:⇰↔ →:arrow_upper_right: :arrow_lower_right:

↯ ↛ ↺ ↮ ⇝ ⇾ ⟹ ⭆ ⤮:

2021-10-13, Wednesday - commuting stress :frowning:

Triggers & resulting Symptoms

SLEEP: 11h, up 5x (24') ➔ Feeling 80% well, Ache 2 of 7 ✅. Really long sleep, but I didn't feel good with the 2x1mcg melatonin, altho I cd dream and sleep deeply. Feeling bad makes me go back in bed quickly. Watching that 🧐.

No fw!
FCS p1 21:30-
23:45 9’ 90%/1 p1 st1 drink fw1’ theanine GABA #2, passiflora #2, !2 SRP melatonin #2.
01:45 3’ 90%/1 p1 st1 drink fw1’ druggy. pass#3.
03:45 3’ 90%/1 p0-1 st2 drink fw1’ pass#4
5:30 3’ 90%/1 p0 st3 drink fw2’ hungry zinc & serrapeptase
6:30 1’ lavender (not getting up)
7:07 6’ 90%/1 p0 st3 drink fw2’ GABA theanine glycinate.
I don’t feel good in nights with melatonin, even after these 7:00 supps.
-8:52
Sum: 2h30+8h52-(9+3+3+3+6=)24’= 11h22-24’ = 11h, up 5x (24’)

ACTIVITIES ➔ ACHE: Melatonin-sick at night, but then getting under way ➔ 90%/1 ✅, train not coming & lack of information stressed; took 2h to get to work instead of 45' ➔ 70%/2 ✅ resting, supps etc. ➔ 85%/1-2

Ache = also Exhaustion/Tired :white_check_mark: :x: :face_with_monocle: ➔ ?90%/1
Cycle➔ exhaustion, also as action➔pains;
TT = Table-Tennis➔ easy or effortless or strained or tough?
talk/meetings here (and actions➔pains?)
Grandchild➔
Work/Mask-talking➔
Socializing/Talking➔

"ACTIONS ➔ PAINS: ✅, but after midday a bit of GI: bloaty ❌

:white_check_mark: :x: :face_with_monocle:
Lying :white_check_mark::x::face_with_monocle:, standing :white_check_mark::x::face_with_monocle:, loins :white_check_mark::x::face_with_monocle:, sitting :white_check_mark::x::face_with_monocle:, arms up :white_check_mark::x::face_with_monocle:, neck stiffness 90° :white_check_mark::x::face_with_monocle:, stiffness after poses :white_check_mark::x::face_with_monocle:, walking :white_check_mark::x::face_with_monocle:, fast cycling :white_check_mark::x::face_with_monocle:, bladder 0xp1-2 :white_check_mark::x::face_with_monocle:, GI :white_check_mark::x::face_with_monocle:, talking :white_check_mark::x::face_with_monocle:, mask-talking :white_check_mark::x::face_with_monocle:"
Lie ➔ LBU = lower back unrest, hunchback, Neck, thighs, elbows, itch, cold/hot, nose stuffy
Stand ➔ Legs, back
Knees up ➔ right loin
Arms up ➔ pain
Sit ➔ Backside, lower back
Pose ➔ stiffness (Stiffness after holding a posture): Time 0-60’’, pain amount if faster.
Walk ➔ Elbows, feet, right knee
Cycle ➔ Feet, knees, backside, elbows, hands, neck
Drink ➔ Pee frequency, pain before peeing (p0-6).
Eat ➔ Esophagus block, stomach, gut, rectum, stool (IBSD?). GI for short
Talk➔Jaw (& Ache)
Mask-talk ➔ not sure how to describe it, just plain yucky.

Treatments

SELF-PHYSIO: 35' ✅

:white_check_mark: hunchback-pillow 10’, cold shower (10’), palpate 1’, belly 3’, back 7’, neck 1+ 4’,
:x: Timing, AuTr 10’, neck 2 10’, twist-stretch 10’, loins 5’, yoga 5’, gums 2x30’’, V ‘, marionette-hang 1’, mirror 2’, shaking dance 1’, breath-hold 11’, RR x2’, HWB 3’, workout 7’

THERAPIES: Good talk with my wife about relationship/psycho-issues. ✅. Found info a visiting card with photo outside the Chinese acupuncturist's practice.

Acupressure / Therapy, Doc/Diagnoses ? :white_check_mark: :x: :face_with_monocle: Acupressure 2h Tues & 2h Fri:

Supps to KEEP UP (3): passiflora, GABA, theanine ✅, to WATCH (10): glutamine, Mg malate & glycinate, 2-3x mumijo (not helping GI ❌, so only daytime), ↗5x NAC ✅, P5P, ↗6x Ribose (GI?) ✅, ↗2-3x rose root, ↗?x SRP 🧐, to START/CHANGE (2-3): NADH, ALC (ordered) ✅/❌/🧐. 2x1mcg Melatonin deepens sleep, but makes me feel achey-shakey-unwell. Keep overall Mg down (GI). Dry mouth after 5:00 (after zinc & serrapeptase, but neither are sposed to cause it), despite drinking more, so I'll start putting in dry mouth gel automatically directly after, and watch if I don't get it if I don't take them.

SLEEP:
:white_check_mark: Passiflora 4x289mg: drowsier, but not too much, deeper, shorter breaks
:white_check_mark: GABA 2x600mg: deeper, 10 areas in daytime
:white_check_mark: theanine 1x300 relaxed, not too long
:white_check_mark::face_with_monocle: glutamine 1x500mg: GABA antagonist. But maybe more day than night?
:white_check_mark::face_with_monocle: melatonin 1mcg at 22, 1mcg at 2.
:face_with_monocle: P5P (serotonin/GABA)
(:face_with_monocle: SRP serrapeptase 2x10.000IU before sleep (but 2h after last meal!))
INFLAMMATION:
:face_with_monocle: 5:30 serrapeptase 2x10.000IU (more?)
:face_with_monocle: zinc
:white_check_mark: tea tree oil on gums
:face_with_monocle: rose root 20:00 2-3x200mg: serotonin & bp.
:face_with_monocle: mumijo (shihalit) 20:00: anti-infl., pain & GI: Mumijo attenuates chemically induced inflammatory pain in mice - PubMed (2015), Anti-ulcer activity: Ulcer healing activity of Mumijo aqueous extract against acetic acid induced gastric ulcer in rats - PubMed (2015)
German link: Mumijo – Das schwarze Naturheilmittel
:x: 2h after meals SAMe :arrow_lower_right:0x100mg (max. !): pain, stiffness, sfx: GI, bladder!, dry mouth!, sleep!, serotonin-seizures! SAMe - #2 by Anne
WAKE/FOG:
:white_check_mark: 8:00 GABA & theanine
:face_with_monocle: Mg glycinate 2x400
:face_with_monocle: NAC
:face_with_monocle: Mg malate :arrow_lower_right:0-1 for the time being :face_with_monocle: , cos I’m running short. (2x500)
ACHE:
:white_check_mark::face_with_monocle: Serrapeptase up to 8x or more?
ENERGY/FATIGUE:
:face_with_monocle: Ribose up to 6x2.5g muscle fatigue, ATP; GI-sfx, (<500mg per serving?) No sugar allowed - #7 by Lynne etc.
:face_with_monocle: NAC -2400mg: NAC = N-acetylcysteine fatigue, anti-infl.
:white_check_mark:/:x:/:face_with_monocle: NADH/NAD+: Serrapeptase & NADH/NAD+ - enzymes - #4 by JayCS B3-coenzyme for energy & post exertional malaise.
:white_check_mark:/:x:/:face_with_monocle: Acetyl L-Carnitine (ALC)?: LC first? A for Alert brain, dose: 2x750mg, for no sfx keep under 3000. Question about kinds of pain | Page 2 | Fibromyalgia Forum.
:white_check_mark:/:x:/:face_with_monocle: glycine? Alertness
STIFFNESS:
Glutamine?: Low Dopamine in Fibromyalgia and CFS
NOSTRILS CLOTTED at night
:white_check_mark: tea tree oil (lavender not enough)
EVERYTHING:
:white_check_mark: Vitamin B12: injections again?
:white_check_mark:/:x:/:face_with_monocle: Schüssler 2, 4, & 7 (need 3-6 months sez my acupressurist).
ACID:
:face_with_monocle: Mumijo isn’t working: Still same heartburn, plus hungriness at 5/6.
Medicinal clay never stopped my gastric acidity in my twens, but is bentonite - or am I - different now? (= 95% Montmorillonite; zeolithe is OK too. IBSD & -C; not together with other supps… (ZdG))

Supps TAKEN TODAY: 2x0.1 melatonin with 4x passiflora was too much again, didn't feel well, drowsy in the morning, so don't feel like increasing melatonin to 3x0.1. NAC & Ribose cos of commuting stress: 2 NAC, 2 Ribose, later 1 Ribose, 2 SRP. Better then, so TT easy, but bloaty: Ribose?

/19:40 P5P, 1 Mumijo, 1x289 passiflora, selene, 1x rosewort/Mg carbonate/B1 at meal.
/21:00 600mg GABA & 500mg !glutamine, <0.1 melatonin, 1x rosewort.
/23:45 !300mg theanine & !600mg GABA & 2nd 1x289 passiflora, !2 serrapeptase (2h after meal!) 2nd <0.1 melatonin! (Mouth.) No mumijo.
/1:45 “3rd” passiflora
/3:45 4th passiflora
/5:30 zinc, 2 serrapeptase
/7:05 600 GABA+500mg theanine, 1 Mg glycinate.
/9:10 NAC, Ribose, glycinate, malate, mumijo
/12:30? NAC, glycinate, malate.
/13:40 Ribose
/16:30 2 SRP, 1 Ribose. Bit GI.
/17:05 mumijo cos of GI.
/18:20 mumijo. P5P. Gastritol for GI. (bloaty)
SRP later…
Daytime: :arrow_upper_right: NAC :white_check_mark:, :arrow_upper_right:6x Ribose :white_check_mark:, 3x1 malate :white_check_mark:, 3x1 glycinate :white_check_mark:, :arrow_upper_right:?x SRP (2h after meals) :white_check_mark:).
ORDER MORE NAC! tea tree oil

Development:

Lessons in self-care #92 Got to keep everything down today after that stress.
Reasons to be cheerful #94 In hindsight, the train story today was so wacky, it was/is a good tale to tell and get worked up about to let off steam :steam_locomotive:

Abbreviations & explanations

Entries start with night meds & sleep, before triggers/symptoms & treatments, because the “night before” is vital. So Fri-day starts with Thursday night, the night before Friday.

Pain "7" = crying (/out) point; my 1 is others 2-3, and due to pacing/treatments

My wife says my 7 is other people’s 12. 1 is probably 2-3. Due to pacing, keeping work down to 25% (12h/wk) and all my treatments (acupressure, GABA) and physio self-treatments I manage to keep getting my pains & Ache down quickly. 3 usually means the Ache, not pains; these I address individually, often automatically and on the fly now, e.g. twist-stretching everything or something specific after getting up.

TIME DATA, e.g. ' = mins, h = hours, 18:10:40', date YYYY-MM-DD

’ = mins = minutes, ‘’ = secs = seconds, h is hours as time length, 3h is 3 hours long, 3:00 is 3am, 15:00 is 3pm. 18:10:40’ means 40 minutes, starting at 18:10, = 10 minutes past 6pm up to 10 to 7pm. The date is the logical digital standard: YYYY-MM-DD.

SLEEP: slp, w, lbu/LBU, RLS, p, i

slp = sleep; reasons for getting up: w = (a)wake, lbu/LBU: lower back unrest (‘RLS’?), p: pee, p2: pain 2 of 7 before peeing, i: ideas.

ACTIVITIES: TT, e.g. "5:1"

TT = table tennis, 5:1 = score, usually showing how well I’m feeling: energy, relaxedness & alertness if the first number is much higher than the second.

SUPPS: supplements (as opposed to herbs & meds). Fx: Effects. Sfx: Side effects.

SELF-TREATMENTS (about everything else...)

The self-treatments listed are only things that I’m spotlighting & rewarding myself for at the mo by counting them; much of what I do at night is self-treatment to get back to sleep or alleviate (1-2h/d), certain regular movements at daytime, like twist-stretching (30’), writing this blog is self-treatment (30’-60’/d), and the further fibro-work is an indirect form.
Self treatments are usually preventative or always have the same positive effect (e.g. cold showering improves Ache and sleep) - at least I do them for that - and I use “:arrow_forward:” to show what I’m doing to alleviate something and mark it off in the details “:white_check_mark:/:x:” whether it works well enough for a time or doesn’t’, e.g. Ache :arrow_forward: cold fast shower “:white_check_mark:
fw = fibro-work, meaning reading and writing this blog, the reference base, on 4 fibro-forums and researching fibro-stuff on the web.
AuTr = Autogenic Training (usually to actively get - back - to sleep, so counting it as sleep and AuTr…),
FAT Flash/fast autogenic training: immediate image of dreamy floating in space or liquid from jaw to legs.
cold/FCS = Flash Cold Shower (20’’-60’’) , I count it as 10’ tho. At night with ear plugs & all lights off.
breath-hold/WHM-B-H = Wim Hof Method Breath-Holding,
Neck 1 is stretching top right to bottom left, vice versa & sky/ground, neck “1+” is stretching far further diagonally downwards, neck 2 is pressing my head against my hand “without moving”, left right and front.
loins = loins/groin = stretching the ligaments there.
ex = exercises
HWB = Hot water bottle,
RR = bp = blood pressure (Riva Rocci), plus pulse. Used to be normal, plus sometimes white coat syndrome, went up since fibro, seems to have gone down again enough so I’ve not only stopped lercanidipine, but also candesartan and am checking RR regularly.
:new: “V” for loins = lie on back, legs up and let legs fall to sides;
:new: twist-stretching more for the loins
:white_check_mark: :x: :face_with_monocle: ➔ ⇄ ⇨➜ ➞ :arrow_right: ➲ ↔:⇰↔ →:arrow_upper_right: :arrow_lower_right:

↯ ↛ ↺ ↮ ⇝ ⇾ ⟹ ⭆ ⤮:

2021-10-14, Thursday - bit of a lot of work - over my limits?

Triggers & resulting Symptoms

SLEEP: 7h18, up 7x (24'), creative break, plus 1h27 = 8h45 ➔ Feeling 90% well, Ache 1 of 7 ✅, the many short breaks are strange, but the night feels "sounder", "healthier" without melatonin. Allowing for a creative break is completely OK. But tomorrow I won't be able to sleep till 8:45 and 6:02 won't be enough. But the last stint was partly dozing anyway first. Maybe melatonin only if I don't feel drowsy enough?

No fw!
FCS p0 22:20-
23:30 5’ 90%/1 p0 st1 drink fw2’ !400mg theanine, !600mg GABA, 2nd passiflora, !1 SRP
0:20 4’ 90%/1 p0 st3 drink fw2’ 3rd passiflora, 1 rosewort
1:09 3’ 90%/1 p0-1 st2-1 drink fw1’ 4th passiflora
1:55 3’ 90%/1 p1-2 st2 drink fw1’
3:05 3’ 90%/1 p0 st1 drink fw1’
4:38 3’ 90%/1 p0 st1 drink fw1’
-6:02 3’+21’+2’+11=37’ 90%/1 p0 st1 drink fw2’ music-idea Zn 2SRP
7:18-8:45 =
-End
Sum: 1h40+6h02-(5+4+3+3+3+3+3=)24’=7h42-24’=7h18, up 7x (24’), creative break, plus 1h27 = 8h45

ACTIVITIES ➔ ACHE: Bit overloaded before work, but ➔ 90%/1 ✅, feverish & bloaty see supps. Having to go a 2nd time at 15:00 was tough tho, 80%/2, may've been only 1.5h of net real work, but, all in all with commuting another 3.5h+ - good that time off is coming up! Strangely feverish, not tired, different.

Ache = also Exhaustion/Tired :white_check_mark: :x: :face_with_monocle: ➔ ?90%/1
Cycle➔ exhaustion, also as action➔pains;
TT = Table-Tennis➔ easy or effortless or strained or tough?
talk/meetings here (and actions➔pains?)
Grandchild➔
Work/Mask-talking➔
Socializing/Talking➔

"ACTIONS ➔ PAINS: ✅, GI bloaty again & feverishness after lunch & 2xMg plus a heaped tsp of ribose, not NAC...

:white_check_mark: :x: :face_with_monocle:
Lying :white_check_mark::x::face_with_monocle:, standing :white_check_mark::x::face_with_monocle:, loins :white_check_mark::x::face_with_monocle:, sitting :white_check_mark::x::face_with_monocle:, arms up :white_check_mark::x::face_with_monocle:, neck stiffness 90° :white_check_mark::x::face_with_monocle:, stiffness after poses :white_check_mark::x::face_with_monocle:, walking :white_check_mark::x::face_with_monocle:, fast cycling :white_check_mark::x::face_with_monocle:, bladder 0xp1-2 :white_check_mark::x::face_with_monocle:, GI :white_check_mark::x::face_with_monocle:, talking :white_check_mark::x::face_with_monocle:, mask-talking :white_check_mark::x::face_with_monocle:"
Lie ➔ LBU = lower back unrest, hunchback, Neck, thighs, elbows, itch, cold/hot, nose stuffy
Stand ➔ Legs, back
Knees up ➔ right loin
Arms up ➔ pain
Sit ➔ Backside, lower back
Pose ➔ stiffness (Stiffness after holding a posture): Time 0-60’’, pain amount if faster.
Walk ➔ Elbows, feet, right knee
Cycle ➔ Feet, knees, backside, elbows, hands, neck
Drink ➔ Pee frequency, pain before peeing (p0-6).
Eat ➔ Esophagus block, stomach, gut, rectum, stool (IBSD?). GI for short
Talk➔Jaw (& Ache)
Mask-talk ➔ not sure how to describe it, just plain yucky.

Treatments

SELF-PHYSIO: 53' ✅

:white_check_mark: Timing, AuTr 5’, hunchback-pillow 10’, cold shower (10’), palpate 1’, belly 3’, back 7’, neck 1+ 5’, twist-stretch 4’, loins 2’, yoga 2’, neck 2 4’,
:x: gums 2x30’’, V ‘, marionette-hang 1’, mirror 2’, shaking dance 1’, breath-hold 11’, RR x2’, HWB 3’, workout 7’
, jolt-jump 1’

THERAPIES: ✅

Acupressure / Therapy, Doc/Diagnoses ? :white_check_mark: :x: :face_with_monocle: Acupressure 2h Tues & 2h Fri:

Supps to KEEP UP (3): passiflora, GABA, theanine ✅, to WATCH (10): glutamine, Mg malate & glycinate, 2-3x mumijo (not helping GI ❌, so only daytime), ↗5x NAC ✅, P5P, ↗6x Ribose (GI?) ✅, ↗2-3x rose root, ↗?x SRP 🧐, to START/CHANGE (2-3): NADH, ALC (ordered) ✅/❌/🧐. 2x1mcg Melatonin deepens sleep, but makes me feel achey-shakey-unwell. Keep overall Mg down (GI). Dry mouth after 5:00 (after zinc & serrapeptase, but neither are sposed to cause it), despite drinking more, so I'll start putting in dry mouth gel automatically directly after, and watch if I don't get it if I don't take them.

SLEEP:
:white_check_mark: Passiflora 4x289mg: drowsier, but not too much, deeper, shorter breaks
:white_check_mark: GABA 2x600mg: deeper, 10 areas in daytime
:white_check_mark: theanine 1x300 relaxed, not too long
:white_check_mark::face_with_monocle: glutamine 1x500mg: GABA antagonist. But maybe more day than night?
:white_check_mark::face_with_monocle: melatonin 1mcg at 22, 1mcg at 2.
:face_with_monocle: P5P (serotonin/GABA)
(:face_with_monocle: SRP serrapeptase 2x10.000IU before sleep (but 2h after last meal!))
INFLAMMATION:
:face_with_monocle: 5:30 serrapeptase 2x10.000IU (more?)
:face_with_monocle: zinc
:white_check_mark: tea tree oil on gums
:face_with_monocle: rose root 20:00 2-3x200mg: serotonin & bp.
:face_with_monocle: mumijo (shihalit) 20:00: anti-infl., pain & GI: Mumijo attenuates chemically induced inflammatory pain in mice - PubMed (2015), Anti-ulcer activity: Ulcer healing activity of Mumijo aqueous extract against acetic acid induced gastric ulcer in rats - PubMed (2015)
German link: Mumijo – Das schwarze Naturheilmittel
:x: 2h after meals SAMe :arrow_lower_right:0x100mg (max. !): pain, stiffness, sfx: GI, bladder!, dry mouth!, sleep!, serotonin-seizures! SAMe - #2 by Anne
WAKE/FOG:
:white_check_mark: 8:00 GABA & theanine
:face_with_monocle: Mg glycinate 2x400
:face_with_monocle: NAC
:face_with_monocle: Mg malate :arrow_lower_right:0-1 for the time being :face_with_monocle: , cos I’m running short. (2x500)
ACHE:
:white_check_mark::face_with_monocle: Serrapeptase up to 8x or more?
ENERGY/FATIGUE:
:face_with_monocle: Ribose up to 6x2.5g muscle fatigue, ATP; GI-sfx, (<500mg per serving?) No sugar allowed - #7 by Lynne etc.
:face_with_monocle: NAC -2400mg: NAC = N-acetylcysteine fatigue, anti-infl.
:white_check_mark:/:x:/:face_with_monocle: NADH/NAD+: Serrapeptase & NADH/NAD+ - enzymes - #4 by JayCS B3-coenzyme for energy & post exertional malaise.
:white_check_mark:/:x:/:face_with_monocle: Acetyl L-Carnitine (ALC)?: LC first? A for Alert brain, dose: 2x750mg, for no sfx keep under 3000. Question about kinds of pain | Page 2 | Fibromyalgia Forum.
:white_check_mark:/:x:/:face_with_monocle: glycine? Alertness
STIFFNESS:
Glutamine?: Low Dopamine in Fibromyalgia and CFS
NOSTRILS CLOTTED at night
:white_check_mark: tea tree oil (lavender not enough)
EVERYTHING:
:white_check_mark: Vitamin B12: injections again?
:white_check_mark:/:x:/:face_with_monocle: Schüssler 2, 4, & 7 (need 3-6 months sez my acupressurist).
ACID:
:face_with_monocle: Mumijo isn’t working: Still same heartburn, plus hungriness at 5/6.
Medicinal clay never stopped my gastric acidity in my twens, but is bentonite - or am I - different now? (= 95% Montmorillonite; zeolithe is OK too. IBSD & -C; not together with other supps… (ZdG))

Supps TAKEN TODAY: GI bloaty again & feverishness after (lunch &) 2xMg plus a heaped tsp of ribose, not NAC..., energy boost praps wasn't nec yet, but I was gonna need it. Does that maybe mean not to take it at meals, cos taking a lot without eating on Sunday seemed OK..?

/18:20 mumijo. P5P. Gastritol for GI. (bloaty)
/21:35 1st 1x289 passiflora, selene, 1x rosewort/Mg carbonate/B1 at meal. So tired: No melatonin.
/21:00 600mg GABA & 500mg !glutamine.
0 <0.1 melatonin, 0x rosewort.
/23:45 !400mg theanine !600mg GABA 2nd 1x289 passiflora, !1 serrapeptase (2h after meal!) 0 <0.1 melatonin! (Mouth.) No mumijo.
/0:20 3rd passiflora, 1 rosewort
/1:10 4th passiflora
/7:15? zinc, 2 serrapeptase
/8:50 600 GABA+500mg theanine, 1 Mg glycinate.
/15:00 NAC, glycinate, malate. Afterwards bloated.
/17:30 NAC, glycinate, malate, SRP
SRP later…
Daytime: :arrow_upper_right: NAC :white_check_mark:, :arrow_upper_right:6x Ribose :white_check_mark:, 3x1 malate :white_check_mark:, 3x1 glycinate :white_check_mark:, :arrow_upper_right:?x SRP (2h after meals) :white_check_mark:).
ORDER MORE NAC! tea tree oil

Development:

Lessons in self-care #93 Bed early
Reasons to be cheerful #95 Did a lot and still fairly OK

Abbreviations & explanations

Entries start with night meds & sleep, before triggers/symptoms & treatments, because the “night before” is vital. So Fri-day starts with Thursday night, the night before Friday.

Pain "7" = crying (/out) point; my 1 is others 2-3, and due to pacing/treatments

My wife says my 7 is other people’s 12. 1 is probably 2-3. Due to pacing, keeping work down to 25% (12h/wk) and all my treatments (acupressure, GABA) and physio self-treatments I manage to keep getting my pains & Ache down quickly. 3 usually means the Ache, not pains; these I address individually, often automatically and on the fly now, e.g. twist-stretching everything or something specific after getting up.

TIME DATA, e.g. ' = mins, h = hours, 18:10:40', date YYYY-MM-DD

’ = mins = minutes, ‘’ = secs = seconds, h is hours as time length, 3h is 3 hours long, 3:00 is 3am, 15:00 is 3pm. 18:10:40’ means 40 minutes, starting at 18:10, = 10 minutes past 6pm up to 10 to 7pm. The date is the logical digital standard: YYYY-MM-DD.

SLEEP: slp, w, lbu/LBU, RLS, p, i

slp = sleep; reasons for getting up: w = (a)wake, lbu/LBU: lower back unrest (‘RLS’?), p: pee, p2: pain 2 of 7 before peeing, i: ideas.

ACTIVITIES: TT, e.g. "5:1"

TT = table tennis, 5:1 = score, usually showing how well I’m feeling: energy, relaxedness & alertness if the first number is much higher than the second.

SUPPS: supplements (as opposed to herbs & meds). Fx: Effects. Sfx: Side effects.

SELF-TREATMENTS (about everything else...)

The self-treatments listed are only things that I’m spotlighting & rewarding myself for at the mo by counting them; much of what I do at night is self-treatment to get back to sleep or alleviate (1-2h/d), certain regular movements at daytime, like twist-stretching (30’), writing this blog is self-treatment (30’-60’/d), and the further fibro-work is an indirect form.
Self treatments are usually preventative or always have the same positive effect (e.g. cold showering improves Ache and sleep) - at least I do them for that - and I use “:arrow_forward:” to show what I’m doing to alleviate something and mark it off in the details “:white_check_mark:/:x:” whether it works well enough for a time or doesn’t’, e.g. Ache :arrow_forward: cold fast shower “:white_check_mark:
fw = fibro-work, meaning reading and writing this blog, the reference base, on 4 fibro-forums and researching fibro-stuff on the web.
AuTr = Autogenic Training (usually to actively get - back - to sleep, so counting it as sleep and AuTr…),
FAT Flash/fast autogenic training: immediate image of dreamy floating in space or liquid from jaw to legs.
cold/FCS = Flash Cold Shower (20’’-60’’) , I count it as 10’ tho. At night with ear plugs & all lights off.
breath-hold/WHM-B-H = Wim Hof Method Breath-Holding,
Neck 1 is stretching top right to bottom left, vice versa & sky/ground, neck “1+” is stretching far further diagonally downwards, neck 2 is pressing my head against my hand “without moving”, left right and front.
loins = loins/groin = stretching the ligaments there.
ex = exercises
HWB = Hot water bottle,
RR = bp = blood pressure (Riva Rocci), plus pulse. Used to be normal, plus sometimes white coat syndrome, went up since fibro, seems to have gone down again enough so I’ve not only stopped lercanidipine, but also candesartan and am checking RR regularly.
:new: “V” for loins = lie on back, legs up and let legs fall to sides;
:new: twist-stretching more for the loins
:white_check_mark: :x: :face_with_monocle: ➔ ⇄ ⇨➜ ➞ :arrow_right: ➲ ↔:⇰↔ →:arrow_upper_right: :arrow_lower_right:

↯ ↛ ↺ ↮ ⇝ ⇾ ⟹ ⭆ ⤮:

2021-10-15, Friday - feverish feeling 15:00-11:00 probably from the ripening tooth inflammation (I doubt the NAC)…

No temperature: Only helpful thing I can find is Healthline’s: drink more.
Negative CoV-test: Boss said it’s OK to work.
A 2nd cold shower didn’t improve it at all…
Maybe a combination of the - I think - ribose yesterday at 15:00 and the tooth inflammation which I could easily squash out today, yukky-yuk, tea tree oil will hopefully help that.

Triggers & resulting Symptoms

SLEEP: 7h41, up 3x (2h04), plus a bit?... ➔ Feeling 70% due to only feverish-feeling,, after that 80% well, Ache 1 of 7 ✅

No fw!
FCS p1 21:45-
00:18 1h27 90%/1 p0 st1 drink fw1’ GABA theanine, passiflora, SRP, Still feverish (since 15:00) as if ill, not like tired! CoV negative, fever negative (<36°C). OK, sleep more. (Repeat CoV??)
00:38 2nd SRP, 2nd mumijo. 00:40 Had left all 3 heatings on, temp. was 19.5°C (67°F, not that high.) 1:21 still feverish, unchanged, praps I have to take some clothes off? -1:45
2:45 still awake, creative flash, still feverish. 3:15 after FCS#2: Hasn’t helped either, try to sleeping it off… Umckaloabo, clothes on again.
5:07 4’ 90%/1 p0 st1 drink fw1’ Better. Umckaloabo again.
?2:00 3’ 90%/1 p0 st1 drink fw1’
-7:30
Sum: 2h15+7h30-(1h57+4+3=)2h04=9h45-2h04=7h41, up 3x (2h04), plus a bit?..

ACTIVITIES ➔ ACHE: ➔ 90%/1, apart from this strange feverishness ("70%" till midday)

Ache = also Exhaustion/Tired :white_check_mark: :x: :face_with_monocle: ➔ ?90%/1
Cycle➔ exhaustion, also as action➔pains;
TT = Table-Tennis➔ easy or effortless or strained or tough?
talk/meetings here (and actions➔pains?)
Grandchild➔
Work/Mask-talking➔
Socializing/Talking➔

"ACTIONS ➔ PAINS: ✅ GI: Liquid stool, probably related to the feverish-feeling. ❌

:white_check_mark: :x: :face_with_monocle:
Lying :white_check_mark::x::face_with_monocle:, standing :white_check_mark::x::face_with_monocle:, loins :white_check_mark::x::face_with_monocle:, sitting :white_check_mark::x::face_with_monocle:, arms up :white_check_mark::x::face_with_monocle:, neck stiffness 90° :white_check_mark::x::face_with_monocle:, stiffness after poses :white_check_mark::x::face_with_monocle:, walking :white_check_mark::x::face_with_monocle:, fast cycling :white_check_mark::x::face_with_monocle:, bladder 0xp1-2 :white_check_mark::x::face_with_monocle:, GI :white_check_mark::x::face_with_monocle:, talking :white_check_mark::x::face_with_monocle:, mask-talking :white_check_mark::x::face_with_monocle:"
Lie ➔ LBU = lower back unrest, hunchback, Neck, thighs, elbows, itch, cold/hot, nose stuffy
Stand ➔ Legs, back
Knees up ➔ right loin
Arms up ➔ pain
Sit ➔ Backside, lower back
Pose ➔ stiffness (Stiffness after holding a posture): Time 0-60’’, pain amount if faster.
Walk ➔ Elbows, feet, right knee
Cycle ➔ Feet, knees, backside, elbows, hands, neck
Drink ➔ Pee frequency, pain before peeing (p0-6).
Eat ➔ Esophagus block, stomach, gut, rectum, stool (IBSD?). GI for short
Talk➔Jaw (& Ache)
Mask-talk ➔ not sure how to describe it, just plain yucky.

Treatments

SELF-PHYSIO: 56' ✅

:white_check_mark: Timing, AuTr 10’, hunchback-pillow 5’, cold shower 2x(10’), palpate 1’, belly 3’, back 7’, neck 1+ 4’, neck 2 4’, twist-stretch 2’,
:x: loins 5’, yoga 5’, gums 2x30’’, V ‘, marionette-hang 1’, mirror 2’, shaking dance 1’, breath-hold 11’, RR x2’, HWB 3’, workout 7’, jolt-jump 1’

THERAPIES: Ear acupressure; legs and loins. Good. ✅

Acupressure / Therapy, Doc/Diagnoses ? :white_check_mark: :x: :face_with_monocle: Acupressure 2h Tues & 2h Fri:

Supps to KEEP UP (3): passiflora, GABA, theanine ✅, to WATCH (10): glutamine, Mg malate & glycinate, 2-3x mumijo (not helping GI ❌, so only daytime), ↗5x NAC ✅🧐, P5P, ↗6x Ribose (but GI?) ✅, ↗2-3x rose root, ↗?x SRP 🧐, to START/CHANGE (2-3): NADH, ALC (came today, 15th, as did further NAC, malate & theanine) ✅/❌/🧐. Stopping 2x1mcg melatonin, keeping overall Mg down (GI). Dry mouth better 🧐. Watching GI 🧐 & feverishness 🧐.

SLEEP:
:white_check_mark: Passiflora 4x289mg: drowsier, but not too much, deeper, shorter breaks
:white_check_mark: GABA 2x600mg: deeper, 10 areas in daytime
:white_check_mark: theanine 1x300 relaxed, not too long
:white_check_mark::face_with_monocle: glutamine 1x500mg: GABA antagonist. But maybe more day than night?
:face_with_monocle: P5P (serotonin/GABA)
(:face_with_monocle: SRP serrapeptase 2x10.000IU before sleep (but 2h after last meal!))
:x::face_with_monocle: melatonin 1mcg at 22, 1mcg at 2 - not nice feeling.
INFLAMMATION:
:face_with_monocle: 5:30 serrapeptase 2x10.000IU (more?)
:face_with_monocle: zinc
:white_check_mark: tea tree oil on gums
:face_with_monocle: rose root 20:00 2-3x200mg (serotonin & bp)
:face_with_monocle: mumijo (shihalit) 20:00: anti-infl., pain & GI: Mumijo attenuates chemically induced inflammatory pain in mice - PubMed (2015), Anti-ulcer activity: Ulcer healing activity of Mumijo aqueous extract against acetic acid induced gastric ulcer in rats - PubMed (2015)
German link: Mumijo – Das schwarze Naturheilmittel
:x: 2h after meals SAMe :arrow_lower_right:0x100mg (max. !): pain, stiffness, sfx: GI, bladder!, dry mouth!, sleep!, serotonin-seizures! SAMe - #2 by Anne
WAKE/FOG:
:white_check_mark: 8:00 GABA & theanine
:face_with_monocle: Mg glycinate 2x400
:face_with_monocle: NAC
:face_with_monocle: Mg malate :arrow_lower_right:0-1 for the time being :face_with_monocle: , cos I’m running short. (2x500)
ACHE:
:white_check_mark::face_with_monocle: Serrapeptase up to 8x or more?
ENERGY/FATIGUE:
:face_with_monocle: Ribose up to 6x2.5g muscle fatigue, ATP; GI-sfx, (<500mg per serving?) No sugar allowed - #7 by Lynne etc.
:face_with_monocle: NAC -2400mg: NAC = N-acetylcysteine fatigue, anti-infl.
:white_check_mark:/:x:/:face_with_monocle: NADH/NAD+: Serrapeptase & NADH/NAD+ - enzymes - #4 by JayCS B3-coenzyme for energy & post exertional malaise.
:white_check_mark:/:x:/:face_with_monocle: Acetyl L-Carnitine (ALC)?: LC first? A for Alert brain, dose: 2x750mg, for no sfx keep under 3000. Question about kinds of pain | Page 2 | Fibromyalgia Forum.
:white_check_mark:/:x:/:face_with_monocle: glycine? Alertness
STIFFNESS:
Glutamine?: Low Dopamine in Fibromyalgia and CFS
NOSTRILS CLOTTED at night
:white_check_mark: tea tree oil (lavender not enough)
EVERYTHING:
:white_check_mark: Vitamin B12: injections again?
:white_check_mark:/:x:/:face_with_monocle: Schüssler 2, 4, & 7 (need 3-6 months sez my acupressurist).
ACID:
:face_with_monocle: Mumijo isn’t working: Still same heartburn, plus hungriness at 5/6.
Medicinal clay never stopped my gastric acidity in my twens, but is bentonite - or am I - different now? (= 95% Montmorillonite; zeolithe is OK too. IBSD & -C; not together with other supps… (ZdG))

Supps TAKEN TODAY: Feverishness from 15:00 till 11:00. Tooth inflammation or was it the NAC at 14:30?? Took nothing after 7:35, was OK.

/20:10 mumijo. P5P. 1st 1x289 passiflora, selene, 1x rosewort/Mg carbonate/B1 at meal.
/21:05 600mg GABA
/21:20 500mg !glutamine.
/00:20 400mg theanine 600mg GABA 2nd passiflora, 1st serrapeptase (2h after meal!)
/00:38 2nd SRP, 2nd mumijo.
/1:27 3rd passiflora, 1 rosewort umckaloabo for the feverishness (feels a bit like GI-type fever, but no GI symptoms since about 16:00)
/3:17 4th passiflora
/7:35 zinc, 600 GABA+500mg theanine, 1 Mg glycinate. Now feeling a little feverish again.
later 2 serrapeptase
Wary of taking more, cos of the feverishness till 11:00. But nothing else necessary, despite lots of cycling and grandchild. Not bloated. No further feverishness :face_with_monocle:
?15:00 NAC, glycinate, malate. Afterwards bloated.
?17:30 NAC, glycinate, malate, SRP
?9:10 NAC, Ribose, glycinate, malate, mumijo 2 SRP, 1 Ribose. Bit GI.
SRP later…
Daytime: NAC :white_check_mark:, Ribose :face_with_monocle: :white_check_mark:, 3x1 malate :white_check_mark:, 3x1 glycinate :white_check_mark:, ? SRP (2h after meals) :white_check_mark:. tea tree oil

Development:

Lessons in self-care #93 Too late to bed cos wife was out.
Reasons to be cheerful #95 Got away with doing a lot today.

Abbreviations & explanations

Entries start with night meds & sleep, before triggers/symptoms & treatments, because the “night before” is vital. So Fri-day starts with Thursday night, the night before Friday.

Pain "7" = crying (/out) point; my 1 is others 2-3, and due to pacing/treatments

My wife says my 7 is other people’s 12. 1 is probably 2-3. Due to pacing, keeping work down to 25% (12h/wk) and all my treatments (acupressure, GABA) and physio self-treatments I manage to keep getting my pains & Ache down quickly. 3 usually means the Ache, not pains; these I address individually, often automatically and on the fly now, e.g. twist-stretching everything or something specific after getting up.

TIME DATA, e.g. ' = mins, h = hours, 18:10:40', date YYYY-MM-DD

’ = mins = minutes, ‘’ = secs = seconds, h is hours as time length, 3h is 3 hours long, 3:00 is 3am, 15:00 is 3pm. 18:10:40’ means 40 minutes, starting at 18:10, = 10 minutes past 6pm up to 10 to 7pm. The date is the logical digital standard: YYYY-MM-DD.

SLEEP: slp, w, lbu/LBU, RLS, p, i

slp = sleep; reasons for getting up: w = (a)wake, lbu/LBU: lower back unrest (‘RLS’?), p: pee, p2: pain 2 of 7 before peeing, i: ideas.

ACTIVITIES: TT, e.g. "5:1"

TT = table tennis, 5:1 = score, usually showing how well I’m feeling: energy, relaxedness & alertness if the first number is much higher than the second.

SUPPS: supplements (as opposed to herbs & meds). Fx: Effects. Sfx: Side effects.

SELF-TREATMENTS (about everything else...)

The self-treatments listed are only things that I’m spotlighting & rewarding myself for at the mo by counting them; much of what I do at night is self-treatment to get back to sleep or alleviate (1-2h/d), certain regular movements at daytime, like twist-stretching (30’), writing this blog is self-treatment (30’-60’/d), and the further fibro-work is an indirect form.
Self treatments are usually preventative or always have the same positive effect (e.g. cold showering improves Ache and sleep) - at least I do them for that - and I use “:arrow_forward:” to show what I’m doing to alleviate something and mark it off in the details “:white_check_mark:/:x:” whether it works well enough for a time or doesn’t’, e.g. Ache :arrow_forward: cold fast shower “:white_check_mark:
fw = fibro-work, meaning reading and writing this blog, the reference base, on 4 fibro-forums and researching fibro-stuff on the web.
AuTr = Autogenic Training (usually to actively get - back - to sleep, so counting it as sleep and AuTr…),
FAT Flash/fast autogenic training: immediate image of dreamy floating in space or liquid from jaw to legs.
cold/FCS = Flash Cold Shower (20’’-60’’) , I count it as 10’ tho. At night with ear plugs & all lights off.
breath-hold/WHM-B-H = Wim Hof Method Breath-Holding,
Neck 1 is stretching top right to bottom left, vice versa & sky/ground, neck “1+” is stretching far further diagonally downwards, neck 2 is pressing my head against my hand “without moving”, left right and front.
loins = loins/groin = stretching the ligaments there.
ex = exercises
HWB = Hot water bottle,
RR = bp = blood pressure (Riva Rocci), plus pulse. Used to be normal, plus sometimes white coat syndrome, went up since fibro, seems to have gone down again enough so I’ve not only stopped lercanidipine, but also candesartan and am checking RR regularly.
:new: “V” for loins = lie on back, legs up and let legs fall to sides;
:new: twist-stretching more for the loins
:white_check_mark: :x: :face_with_monocle: ➔ ⇄ ⇨➜ ➞ :arrow_right: ➲ ↔:⇰↔ →:arrow_upper_right: :arrow_lower_right:

↯ ↛ ↺ ↮ ⇝ ⇾ ⟹ ⭆ ⤮:

2021-10-16, Saturday - night a bit short, but amazing how quickly my wake-up supps propped me up after a sluggish start; maybe a few minutes of gut-uneasiness after ribose… Testing NADH for PEM today. Ribose still under suspicion…

NADH is for PEM, post-exertional malaise, theoretically by improving the ATP in the mitochondria. So now I’ve got it, I deliberately just over-exerted myself at table tennis, 15’ longer than pretty full Ache. When I came home my wife said I have the sick yellow colour in my face, like before, plus a bit of orange from the exertion. 30’ later at 16:50 have now taken 5mg NADH, hoping for that bringing the PEM down quick and wary of it maybe causing “overstimulation & jitteriness”, some say start with 2.5mg, altho the “capsule” sizes (with filling) I’ve found go from 5 to 20mg. As they are not enteric coated, just normal HPMC I cd decrease the dose, by opening the capsule, but OTOH they may not be as effective as enteric coated ones anyway, so also less sfx.
At 17:05 I feel a lot better, much like the first times I tried serrapeptase, which didn’t keep on. Maybe placebo. As my psychiatrist said sign of placebo is that it continues working for months. My body is a bit warmly tingly. As I need to go to 2 shops now before closing time I can test whether I really (seemingly) have more energy or just feel like it… Unusual really warm feeling in my left calf for 5’. Bit of pins prick feeling in a right finger and left wrist is probably over-conscious.
18:15 no problem in the 3 shops, not quite sure if it feels natural or not. Going to do some yardwork before the light’s gone. Worked out fine, but unusually hot’n’sweaty, had to take my hoodie off. At least an hour. Then some music production. My wife says I still look tired, but that’ll be something different.

Triggers & resulting Symptoms

SLEEP: 7h37, up 4x (43') ➔ Feeling 80% well, Ache 2 of 7 ✅, sluggish start, but then improving due to the normal wake-up supps

No fw!
FCS p0 managed a lot of things I’ve been putting off, so worth going to bed late - I hope…
23:25-
01:38 3’ 90%/1 p0 st1 drink fw1’ 400mg theanine GABA 2nd passiflora, 1st SRP
02:28 14’ 90%/1 p0 st1 drink fw1’ 2nd SRP, 2nd mumijo 3rd passiflora, 1 rosewort, 5x RR :white_check_mark:.
4:12 23’ 90%/1 p0 st1 drink fw20’ 4th passiflora (seems to be working better, praps due to increasing rosewort)
4:55 3’ 90%/1 p0 st1 drink fw1’ Riskily long sleep break for fw is making falling to sleep harder, now hungry & thirsty → soy drink (forgot dry mouth gel), oh and I’ll try a 3rd mumijo after all.
7:20 3’ 90%/1 p0 st1 drink fw1’ Hungry & thirsty → soy drink, Zn, SRP
-7:46
Sum: 35+7h45-(3+14+23+3=)43’=8h20-43’=7h37, up 4x (43’)

ACTIVITIES ➔ ACHE: ➔ 90%/1, till during the end and after table tennis ➔ 70%/3, after taking only 5mg NADH ➔ 90%/1. I'd taken

Ache = also Exhaustion/Tired :white_check_mark: :x: :face_with_monocle: ➔ ?90%/1
Cycle➔ exhaustion, also as action➔pains;
TT = Table-Tennis➔ easy or effortless or strained or tough?
talk/meetings here (and actions➔pains?)
Grandchild➔
Work/Mask-talking➔
Socializing/Talking➔

ACTIONS ➔ PAINS: RR at night ✅, GI uneasiness and a strrange unnatural feeling after taking Ribose in the morning and then later strong stool urge after eating.

:white_check_mark: :x: :face_with_monocle:
Lying :white_check_mark::x::face_with_monocle:, standing :white_check_mark::x::face_with_monocle:, loins :white_check_mark::x::face_with_monocle:, sitting :white_check_mark::x::face_with_monocle:, arms up :white_check_mark::x::face_with_monocle:, neck stiffness 90° :white_check_mark::x::face_with_monocle:, stiffness after poses :white_check_mark::x::face_with_monocle:, walking :white_check_mark::x::face_with_monocle:, fast cycling :white_check_mark::x::face_with_monocle:, bladder 0xp1-2 :white_check_mark::x::face_with_monocle:, GI :white_check_mark::x::face_with_monocle:, talking :white_check_mark::x::face_with_monocle:, mask-talking :white_check_mark::x::face_with_monocle:"
Lie ➔ LBU = lower back unrest, hunchback, Neck, thighs, elbows, itch, cold/hot, nose stuffy
Stand ➔ Legs, back
Knees up ➔ right loin
Arms up ➔ pain
Sit ➔ Backside, lower back
Pose ➔ stiffness (Stiffness after holding a posture): Time 0-60’’, pain amount if faster.
Walk ➔ Elbows, feet, right knee
Cycle ➔ Feet, knees, backside, elbows, hands, neck
Drink ➔ Pee frequency, pain before peeing (p0-6).
Eat ➔ Esophagus block, stomach, gut, rectum, stool (IBSD?). GI for short
Talk➔Jaw (& Ache)
Mask-talk ➔ not sure how to describe it, just plain yucky.

Treatments:

(Supps for Sleep/Ache; Acupressure & Self-Treatment mainly for Pains)

Supps TAKEN TODAY: Slight GI again seemed like the ribose, First NADH-experiments at least seem to have placebo fx

/22:30 mumijo. P5P. 1st 1x289 passiflora, selene, 1x rosewort/Mg carbonate/B1 at meal.
/23:05 600mg GABA 500mg glutamine.
/01:40 400mg theanine 600mg GABA 2nd passiflora, 1st serrapeptase (2h after meal!)
/02:30 2nd SRP, 2nd mumijo 3rd passiflora, 1 rosewort
/4:12 4th passiflora
/7:20 zinc, 3rd SRP
/9:40 600 GABA+500mg theanine, 1 Mg glycinate. NAC. !1g (only) Ribose to wake up. Felt as if the ribose immediately went to my gut.
14:40 First NADH after strenuous stool seemed to help quickly, no sfx. :white_check_mark::face_with_monocle:
16:50 2nd NADH again seemed to help inside of 15’, no sfx. :white_check_mark::face_with_monocle:
Daytime: NAC :white_check_mark:, Ribose :face_with_monocle: :white_check_mark:, 3x1 malate :white_check_mark:, 3x1 glycinate :white_check_mark:, ? SRP (2h after meals) :white_check_mark:. tea tree oil

Supps to KEEP UP (3): passiflora, GABA, theanine ✅, to WATCH (10): Ribose seemed again to cause slight GI issues, discomfort for 5' & looser, more frequent but more strenuous stool: maybe use it just for emergencies or check if NAC or Mg glycinate is better with similar good fx. glutamine. Mg malate & glycinate (< 6, GI), 2-3x mumijo, NAC, P5P, Ribose (GI!?!) ✅🧐, ↗2-3x rose root, ↗?x SRP 🧐, to START/CHANGE (2-3): NADH, ALC ✅/❌/🧐. Not 1mcg melatonin. Watching GI 🧐 & feverishness 🧐.

SLEEP:
:white_check_mark: Passiflora 4x289mg: drowsier, but not too much, deeper, shorter breaks
:white_check_mark: GABA 2x600mg: deeper, 10 areas in daytime
:white_check_mark: theanine 1x300 relaxed, not too long
:white_check_mark::face_with_monocle: glutamine 1x500mg: GABA antagonist. But maybe more day than night?
:face_with_monocle: P5P (serotonin/GABA)
(:face_with_monocle: SRP serrapeptase 2x10.000IU before sleep (but 2h after last meal!))
:x::face_with_monocle: melatonin 1mcg at 22, 1mcg at 2 - not nice feeling.
INFLAMMATION:
:face_with_monocle: 5:30 serrapeptase 2x10.000IU (more?)
:face_with_monocle: zinc
:white_check_mark: tea tree oil on gums
:face_with_monocle: rose root 20:00 2-3x200mg (serotonin & bp)
:face_with_monocle: mumijo (shihalit) 20:00: anti-infl., pain & GI: Mumijo attenuates chemically induced inflammatory pain in mice - PubMed (2015), Anti-ulcer activity: Ulcer healing activity of Mumijo aqueous extract against acetic acid induced gastric ulcer in rats - PubMed (2015)
German link: Mumijo – Das schwarze Naturheilmittel
:x: 2h after meals SAMe :arrow_lower_right:0x100mg (max. !): pain, stiffness, sfx: GI, bladder!, dry mouth!, sleep!, serotonin-seizures! SAMe - #2 by Anne
WAKE/FOG:
:white_check_mark: 8:00 GABA & theanine
:face_with_monocle: Mg glycinate 2x400
:face_with_monocle: NAC
:face_with_monocle: Mg malate :arrow_lower_right:0-1 for the time being :face_with_monocle: , cos I’m running short. (2x500)
ACHE:
:white_check_mark::face_with_monocle: Serrapeptase up to 8x or more?
ENERGY/FATIGUE:
:white_check_mark::face_with_monocle: Ribose up to 6x2.5g muscle fatigue, ATP; GI-sfx, <500mg per serving?! No sugar allowed - #7 by Lynne etc.
:face_with_monocle: NAC -2400mg: NAC = N-acetylcysteine fatigue, anti-infl.
:white_check_mark::face_with_monocle: NADH/NAD+: Serrapeptase & NADH/NAD+ - enzymes - #4 by JayCS B3-coenzyme for energy (ATP) & post exertional malaise: 2.5mg, watch out for overstimulation & jitteriness.
:white_check_mark:/:x:/:face_with_monocle: Acetyl L-Carnitine (ALC)?: LC first? A for Alert brain, dose: 2x750mg, for no sfx keep under 3000. Question about kinds of pain | Page 2 | Fibromyalgia Forum.
:white_check_mark:/:x:/:face_with_monocle: glycine? Alertness
STIFFNESS:
Glutamine?: Low Dopamine in Fibromyalgia and CFS
NOSTRILS CLOTTED at night
:white_check_mark: tea tree oil (lavender not enough)
EVERYTHING:
:white_check_mark: Vitamin B12: injections again?
:white_check_mark:/:x:/:face_with_monocle: Schüssler 2, 4, & 7 (need 3-6 months sez my acupressurist).
ACID:
:face_with_monocle: Mumijo isn’t working: Still same heartburn, plus hungriness at 5/6.
Medicinal clay never stopped my gastric acidity in my twens, but is bentonite - or am I - different now? (= 95% Montmorillonite; zeolithe is OK too. IBSD & -C; not together with other supps… (ZdG))

SELF-PHYSIO: 71' ✅ inkl. RR ✅.

:white_check_mark: 5x RR :white_check_mark:. Timing, AuTr 10’, hunchback-pillow 10’, cold shower (10’), palpate 1’, belly 3’, back 7’, neck 1+ 4’, neck 2 4’, twist-stretch 2’, loins 5’, yoga 5’,
:x: Timing, AuTr 10’, hunchback-pillow 10’, cold shower 2x(10’), palpate 1’, belly 3’, back 7’, neck 1+ 9’, neck 2 10’, twist-stretch 10’, loins 5’, yoga 5’, gums 2x30’’, V ‘, marionette-hang 1’, mirror 2’, shaking dance 1’, breath-hold 11’, RR x2’, HWB 3’, workout 7’, jolt-jump 1’

THERAPIES: Still stiff from yesterday's acupressure.

Acupressure / Therapy, Doc/Diagnoses ? :white_check_mark: :x: :face_with_monocle: Acupressure 2h Tues & 2h Fri:

Development:

As the supp-treatment as well as their triggers/symptoms (= fx & sfx) are now my main focus, I’m trying out putting them first as treatments. Altho acupressure as been the fundament for single pains… But the supps are improving sleep, activities and Ache, after nothing else could/can (except last year a lot and now still sometimes cryotherapy/cold showering for Ache).

Lessons in self-care #94 Need to watch out if the energy NADH gives me is taken from something else I may need…
Reasons to be cheerful #96 First try with NADH really worked out well so far.

Abbreviations & explanations

Entries start with night meds & sleep, before triggers/symptoms & treatments, because the “night before” is vital. So Fri-day starts with Thursday night, the night before Friday.

Pain "7" = crying (/out) point; my 1 is others 2-3, and due to pacing/treatments

My wife says my 7 is other people’s 12. 1 is probably 2-3. Due to pacing, keeping work down to 25% (12h/wk) and all my treatments (acupressure, GABA) and physio self-treatments I manage to keep getting my pains & Ache down quickly. 3 usually means the Ache, not pains; these I address individually, often automatically and on the fly now, e.g. twist-stretching everything or something specific after getting up.

TIME DATA, e.g. ' = mins, h = hours, 18:10:40', date YYYY-MM-DD

’ = mins = minutes, ‘’ = secs = seconds, h is hours as time length, 3h is 3 hours long, 3:00 is 3am, 15:00 is 3pm. 18:10:40’ means 40 minutes, starting at 18:10, = 10 minutes past 6pm up to 10 to 7pm. The date is the logical digital standard: YYYY-MM-DD.

SLEEP: slp, w, lbu/LBU, RLS, p, i

slp = sleep; reasons for getting up: w = (a)wake, lbu/LBU: lower back unrest (‘RLS’?), p: pee, p2: pain 2 of 7 before peeing, i: ideas.

ACTIVITIES: TT, e.g. "5:1"

TT = table tennis, 5:1 = score, usually showing how well I’m feeling: energy, relaxedness & alertness if the first number is much higher than the second.

SUPPS: supplements (as opposed to herbs & meds). Fx: Effects. Sfx: Side effects.

SELF-TREATMENTS (about everything else...)

The self-treatments listed are only things that I’m spotlighting & rewarding myself for at the mo by counting them; much of what I do at night is self-treatment to get back to sleep or alleviate (1-2h/d), certain regular movements at daytime, like twist-stretching (30’), writing this blog is self-treatment (30’-60’/d), and the further fibro-work is an indirect form.
Self treatments are usually preventative or always have the same positive effect (e.g. cold showering improves Ache and sleep) - at least I do them for that - and I use “:arrow_forward:” to show what I’m doing to alleviate something and mark it off in the details “:white_check_mark:/:x:” whether it works well enough for a time or doesn’t’, e.g. Ache :arrow_forward: cold fast shower “:white_check_mark:
fw = fibro-work, meaning reading and writing this blog, the reference base, on 4 fibro-forums and researching fibro-stuff on the web.
AuTr = Autogenic Training (usually to actively get - back - to sleep, so counting it as sleep and AuTr…),
FAT Flash/fast autogenic training: immediate image of dreamy floating in space or liquid from jaw to legs.
cold/FCS = Flash Cold Shower (20’’-60’’) , I count it as 10’ tho. At night with ear plugs & all lights off.
breath-hold/WHM-B-H = Wim Hof Method Breath-Holding,
Neck 1 is stretching top right to bottom left, vice versa & sky/ground, neck “1+” is stretching far further diagonally downwards, neck 2 is pressing my head against my hand “without moving”, left right and front.
loins = loins/groin = stretching the ligaments there.
ex = exercises
HWB = Hot water bottle,
RR = bp = blood pressure (Riva Rocci), plus pulse. Used to be normal, plus sometimes white coat syndrome, went up since fibro, seems to have gone down again enough so I’ve not only stopped lercanidipine, but also candesartan and am checking RR regularly.
:new: “V” for loins = lie on back, legs up and let legs fall to sides;
:new: twist-stretching more for the loins
:white_check_mark: :x: :face_with_monocle: ➔ ⇄ ⇨➜ ➞ :arrow_right: ➲ ↔:⇰↔ →:arrow_upper_right: :arrow_lower_right:

↯ ↛ ↺ ↮ ⇝ ⇾ ⟹ ⭆ ⤮:

2021-10-17, Sunday - great sleep, only 3 breaks. NADH seems to take the brunt off of daytime problems.

Triggers & resulting Symptoms

SLEEP: 8h23, up !!3x (44') (+22' doze = 8h45) ➔ Feeling 90% well, Ache 1 of 7 ✅ - only 3 breaks, despite only PF (last at 5:00! What was different? Different brand of theanine, 2x100mg 🧐 (before I was never sure cos I was encapsulating pulverized tablets, but I don't think it was much less.)

No fw!
FCS p1 ?23:10-
02:10 10’ 90%/1 p0 st1 drink fw6’ 1st 100 theanine, 1st SRP, 3rd PF, GABA.
5:00 3’ 90%/1 p0 st1 drink fw1’ 2nd 100 theanine, 2nd SRP, 4th passiflora, 2nd mumijo, 1 rosewort,
6:21 31’ 6 90%/1 p0 st1 drink fw1’
-8:17 5’ 90%/1 p0 st1 drink fw1’ +22’ doze
Sum: 50+8h17-(10+3+31=)44’= 9h07-44’ = 8h23, up 3x (44’) (+22’ doze = 8h45)

ACTIVITIES ➔ ACHE: Lots of activity: music production and ordering supps since 9, ➔ 90%/2 took NADH at 12:30... better again. ➔ 90%/1. Table tennis ➔ 90%/3, rest & NADH at 14:55 ➔ 90%/1, 1h15 walk ➔ 90%/2 (daytime pills now always with me in a 4-pill-box), NADH ➔ 90%/1, evening service ➔ 90%/2: NAC & SRP.

Ache = also Exhaustion/Tired :white_check_mark: :x: :face_with_monocle: ➔ 90%/1
Cycle➔ exhaustion, also as action➔pains;
TT = Table-Tennis➔ easy or effortless or strained or tough?
talk/meetings here (and actions➔pains?)
Grandchild➔
Work/Mask-talking➔
Socializing/Talking➔

"ACTIONS ➔ PAINS: 22:55 - Just been standing doing fibro-work for an hour or so, now I can't take my trousers and socks of standing up, cos my left thigh is cramping at the loins. Also my right calf. Both muscles at the top of the thighs are stiff. Also the muscles in my lower back, to the right of my lordosis. 🧐 To lie on my back longer I can use a thick blanket under my buttocks to take the pressure off my SIJ ✅. Better after 5-10' (during cold showering). Again rib muscles cramping at 12:00 after standing straight to record my singing, strained too much, so taking a break. 🧐 Right elbow hurt after table tennis, but usually they both hurt, or alternately. ❌ 🧐. Right knee after walk. ❌.

:white_check_mark: :x: :face_with_monocle:
Lying :white_check_mark::x::face_with_monocle:, standing :white_check_mark::x::face_with_monocle:, loins :white_check_mark::x::face_with_monocle:, sitting :white_check_mark::x::face_with_monocle:, arms up :white_check_mark::x::face_with_monocle:, neck stiffness 90° :white_check_mark::x::face_with_monocle:, stiffness after poses :white_check_mark::x::face_with_monocle:, walking :white_check_mark::x::face_with_monocle:, fast cycling :white_check_mark::x::face_with_monocle:, bladder 0xp1-2 :white_check_mark::x::face_with_monocle:, GI :white_check_mark::x::face_with_monocle:, talking :white_check_mark::x::face_with_monocle:, mask-talking :white_check_mark::x::face_with_monocle:"
Lie ➔ LBU = lower back unrest, hunchback, Neck, thighs, elbows, itch, cold/hot, nose stuffy
Stand ➔ Legs, back
Knees up ➔ right loin
Arms up ➔ pain
Sit ➔ Backside, lower back
Pose ➔ stiffness (Stiffness after holding a posture): Time 0-60’’, pain amount if faster.
Walk ➔ Elbows, feet, right knee
Cycle ➔ Feet, knees, backside, elbows, hands, neck
Drink ➔ Pee frequency, pain before peeing (p0-6).
Eat ➔ Esophagus block, stomach, gut, rectum, stool (IBSD?). GI for short
Talk➔Jaw (& Ache)
Mask-talk ➔ not sure how to describe it, just plain yucky.

Treatments

Supps TAKEN TODAY: Great sleep: First PF -3h, 2nd -1h before sleep; different theanine: ("250mg green tea-extract", 100mg of it theanine) - is this less? 🧐, took it later at 2 and 5, + SRP also. Maybe I shdve repeated GABA at 5 instead of adding mumijo and rosewort. 🧐 No Ribose; no GI. 🧐

/19:55 mumijo. P5P. 1st 1x289 passiflora = PF, selene, 1x rosewort/Mg carbonate/B1 at meal.
/22:00 600mg GABA 500mg glutamine 2nd passiflora
/02:10 600mg GABA, !100mg theanine 3rd passiflora. 1st serrapeptase = SRP (+2h/)
/05:00 --0mg GABA 100mg theanine. 4th passiflora. 2nd SRP, 2nd mumijo 2nd rosewort.
/8:22 zinc, 3rd SRP
/10:00? 600 GABA
/11:15 !100mg theanine, 1 Mg glycinate. NAC.
/12:30 1st NADH. :white_check_mark::face_with_monocle:
/15:00 2nd NADH. :white_check_mark::face_with_monocle:
/16:20 NAC, malate, glycinate, SRP :white_check_mark:.
/19:40 NAC, SRP
Daytime: NAC :white_check_mark:, 3x1 malate :white_check_mark:, 3x1 glycinate :white_check_mark:, ? SRP (2h after meals) :white_check_mark:. tea tree oil
Leave out Ribose to watch if there is no GI :face_with_monocle: :white_check_mark:.

Supps to KEEP UP (3): passiflora, GABA, theanine ✅, to WATCH (10): Ribose just in emergencies. Prefer NAC and !NADH? Glutamine? Daytime: Mg malate & glycinate (< 6, GI), 2-3x mumijo, NAC, P5P, Ribose (GI!?!) ✅🧐, ↗2-3x rose root, ↗?x SRP 🧐, to START/CHANGE: ALC ✅/❌/🧐. Not 1mcg melatonin. ❌ Watching GI 🧐 (ribose?) & feverishness 🧐.

SLEEP:
:white_check_mark: Passiflora 4x289mg: drowsier, but not too much, deeper, shorter breaks
:white_check_mark: GABA 2x600mg: deeper, 10 areas in daytime
:white_check_mark: theanine 1x300 relaxed, not too long
:white_check_mark::face_with_monocle: glutamine 1x500mg: GABA antagonist. But maybe more day than night?
:face_with_monocle: P5P (serotonin/GABA)
(:face_with_monocle: SRP serrapeptase 2x10.000IU before sleep (but 2h after last meal!))
:x::face_with_monocle: melatonin 1mcg at 22, 1mcg at 2 - not nice feeling.
INFLAMMATION:
:face_with_monocle: 5:30 serrapeptase 2x10.000IU (more?)
:face_with_monocle: zinc
:white_check_mark: tea tree oil on gums
:face_with_monocle: rose root 20:00 2-3x200mg (serotonin & bp)
:face_with_monocle: mumijo (shihalit) 20:00: anti-infl., pain & GI: Mumijo attenuates chemically induced inflammatory pain in mice - PubMed (2015), Anti-ulcer activity: Ulcer healing activity of Mumijo aqueous extract against acetic acid induced gastric ulcer in rats - PubMed (2015)
German link: Mumijo – Das schwarze Naturheilmittel
:x: 2h after meals SAMe :arrow_lower_right:0x100mg (max. !): pain, stiffness, sfx: GI, bladder!, dry mouth!, sleep!, serotonin-seizures! SAMe - #2 by Anne
WAKE/FOG:
:white_check_mark: 8:00 GABA & theanine
:face_with_monocle: Mg glycinate 2x400
:face_with_monocle: NAC
:face_with_monocle: Mg malate :arrow_lower_right:0-1 for the time being :face_with_monocle: , cos I’m running short. (2x500)
ACHE:
:white_check_mark::face_with_monocle: Serrapeptase up to 8x or more?
ENERGY/FATIGUE:
:white_check_mark::face_with_monocle: Ribose up to 6x2.5g muscle fatigue, ATP; GI-sfx, <500mg per serving?! No sugar allowed - #7 by Lynne etc.
:face_with_monocle: NAC -2400mg: NAC = N-acetylcysteine fatigue, anti-infl.
:white_check_mark::face_with_monocle: NADH/NAD+: Serrapeptase & NADH/NAD+ - enzymes - #4 by JayCS B3-coenzyme for energy (ATP) & post exertional malaise: 2.5mg, watch out for overstimulation & jitteriness.
:white_check_mark:/:x:/:face_with_monocle: Acetyl L-Carnitine (ALC)?: LC first? A for Alert brain, dose: 2x750mg, for no sfx keep under 3000. Question about kinds of pain | Page 2 | Fibromyalgia Forum.
:white_check_mark:/:x:/:face_with_monocle: glycine? Alertness
STIFFNESS:
Glutamine?: Low Dopamine in Fibromyalgia and CFS
NOSTRILS CLOTTED at night
:white_check_mark: tea tree oil (lavender not enough)
EVERYTHING:
:white_check_mark: Vitamin B12: injections again?
:white_check_mark:/:x:/:face_with_monocle: Schüssler 2, 4, & 7 (need 3-6 months sez my acupressurist).
ACID:
:face_with_monocle: Mumijo isn’t working: Still same heartburn, plus hungriness at 5/6.
Medicinal clay never stopped my gastric acidity in my twens, but is bentonite - or am I - different now? (= 95% Montmorillonite; zeolithe is OK too. IBSD & -C; not together with other supps… (ZdG))

SELF-PHYSIO: 2h02 ✅✅ (esp. hunchpack-pillow at night; twist-stretch & marionette-hang during service)

:white_check_mark: Timing, AuTr 10’, hunchback-pillow 20’, cold shower (10’), back 3’, neck 1+ 6’, neck 2 3’, twist-stretch 40’, loins 3’, yoga 10’, gums 2x30’’, marionette-hang 15’,
:x: V ‘, mirror 2’, shaking dance 1’, breath-hold 11’, RR x2’, HWB 3’, workout 7’, jolt-jump 1’

THERAPIES:

Acupressure / Therapy, Doc/Diagnoses ? :white_check_mark: :x: :face_with_monocle: Acupressure 2h Tues & 2h Fri:

Development:

Managed at last to put the supps together better: Wrote the name on every lid/side/base, also for the daytime ones what I’m taking it for. Still to be developed.

Lessons in self-care #95 Memo: Blanket tucked under each buttock takes pressure of my SIJ!
Reasons to be cheerful #97 Quite good day altogether. Managed to socialize after the service.
Reasons to be cheerful #98 Quite a relief to have managed to organize the supps better at last!

Abbreviations & explanations

Entries start with night meds & sleep, before triggers/symptoms & treatments, because the “night before” is vital. So Fri-day starts with Thursday night, the night before Friday.

Pain "7" = crying (/out) point; my 1 is others 2-3, and due to pacing/treatments

My wife says my 7 is other people’s 12. 1 is probably 2-3. Due to pacing, keeping work down to 25% (12h/wk) and all my treatments (acupressure, GABA) and physio self-treatments I manage to keep getting my pains & Ache down quickly. 3 usually means the Ache, not pains; these I address individually, often automatically and on the fly now, e.g. twist-stretching everything or something specific after getting up.

TIME DATA, e.g. ' = mins, h = hours, 18:10:40', date YYYY-MM-DD

’ = mins = minutes, ‘’ = secs = seconds, h is hours as time length, 3h is 3 hours long, 3:00 is 3am, 15:00 is 3pm. 18:10:40’ means 40 minutes, starting at 18:10, = 10 minutes past 6pm up to 10 to 7pm. The date is the logical digital standard: YYYY-MM-DD.

SLEEP: slp, w, lbu/LBU, RLS, p, i

slp = sleep; reasons for getting up: w = (a)wake, lbu/LBU: lower back unrest (‘RLS’?), p: pee, p2: pain 2 of 7 before peeing, i: ideas.

ACTIVITIES: TT, e.g. "5:1"

TT = table tennis, 5:1 = score, usually showing how well I’m feeling: energy, relaxedness & alertness if the first number is much higher than the second.

SUPPS: supplements (as opposed to herbs & meds). Fx: Effects. Sfx: Side effects.

SELF-TREATMENTS (about everything else...)

The self-treatments listed are only things that I’m spotlighting & rewarding myself for at the mo by counting them; much of what I do at night is self-treatment to get back to sleep or alleviate (1-2h/d), certain regular movements at daytime, like twist-stretching (30’), writing this blog is self-treatment (30’-60’/d), and the further fibro-work is an indirect form.
Self treatments are usually preventative or always have the same positive effect (e.g. cold showering improves Ache and sleep) - at least I do them for that - and I use “:arrow_forward:” to show what I’m doing to alleviate something and mark it off in the details “:white_check_mark:/:x:” whether it works well enough for a time or doesn’t’, e.g. Ache :arrow_forward: cold fast shower “:white_check_mark:
fw = fibro-work, meaning reading and writing this blog, the reference base, on 4 fibro-forums and researching fibro-stuff on the web.
AuTr = Autogenic Training (usually to actively get - back - to sleep, so counting it as sleep and AuTr…),
FAT Flash/fast autogenic training: immediate image of dreamy floating in space or liquid from jaw to legs.
cold/FCS = Flash Cold Shower (20’’-60’’) , I count it as 10’ tho. At night with ear plugs & all lights off.
breath-hold/WHM-B-H = Wim Hof Method Breath-Holding,
Neck 1 is stretching top right to bottom left, vice versa & sky/ground, neck “1+” is stretching far further diagonally downwards, neck 2 is pressing my head against my hand “without moving”, left right and front.
loins = loins/groin = stretching the ligaments there.
ex = exercises
HWB = Hot water bottle,
RR = bp = blood pressure (Riva Rocci), plus pulse. Used to be normal, plus sometimes white coat syndrome, went up since fibro, seems to have gone down again enough so I’ve not only stopped lercanidipine, but also candesartan and am checking RR regularly.
:new: “V” for loins = lie on back, legs up and let legs fall to sides;
:new: twist-stretching more for the loins
:white_check_mark: :x: :face_with_monocle: ➔ ⇄ ⇨➜ ➞ :arrow_right: ➲ ↔:⇰↔ →:arrow_upper_right: :arrow_lower_right:

↯ ↛ ↺ ↮ ⇝ ⇾ ⟹ ⭆ ⤮:

2021-10-18, Monday - again great sleep, only 17’, 4 breaks - but GABA overdose!

Just 400mg (I take 3x600mg without problems): focal seizures and incredible bladder pain and frequency, now I remember how it used to be!
The added GABA wasn’t necessary, I’d just seen a certain supp-combi and thought I’d try to repeat it one more time at night, reduced: but it doesn’t work like that, that’s comfirmed!

Triggers & resulting Symptoms

SLEEP: 8h17, up 4x (17') ➔ Feeling 90% well, Ache 1 of 7 ✅. Using an expensive minty essential oil mixture 'breathe well' for my stuffy nostril worked without acidity sfx!

No fw!
FCS p0 23:50-
1:32 3’ 90%/1 p0 st1 drink fw1’
3:40 8’ 90%/1 p1 st3 drink8 fw1’ Some looser stool. GABA#3 theanine#2 PF#4 SRP#2
5:49 3’ 90%/1 p0 st1 drink fw1’ Zn, SRP#3 Intense dream: adoption of African boy (been on daily show with thin white older woman)
7:00 3’ 90%/1 p0 st1 drink8 fw1’ minty oils for right nostril, traumeel on right & left elbow, Schüssler too.
-8:24
Sum: 10+8h24-(3+8+3+3=)=8h34-17 = 8h17, up 4x (17’)

ACTIVITIES ➔ ACHE: 2h of music production without even taking any cps. ➔ 90%/1 ✅, housework, more music ➔ 90%/1 ✅, siting in the (cold) kitchen with my wife "in the sun" has made me start getting cold and aching ➔ 80%/2, so trying supps - helped.

Ache = also Exhaustion/Tired :white_check_mark: :x: :face_with_monocle: ➔ ?90%/1
Cycle➔ exhaustion, also as action➔pains;
TT = Table-Tennis➔ easy or effortless or strained or tough?
talk/meetings here (and actions➔pains?)
Grandchild➔
Work/Mask-talking➔
Socializing/Talking➔

ACTIONS ➔ PAINS: 5:50 right Achilles a bit, 7:00 elbows a bit, bladder 5xp6! and high frequency ❌❌, due to GABA overdose

:white_check_mark: :x: :face_with_monocle:
Lying :white_check_mark::x::face_with_monocle:, standing :white_check_mark::x::face_with_monocle:, loins :white_check_mark::x::face_with_monocle:, sitting :white_check_mark::x::face_with_monocle:, arms up :white_check_mark::x::face_with_monocle:, neck stiffness 90° :white_check_mark::x::face_with_monocle:, stiffness after poses :white_check_mark::x::face_with_monocle:, walking :white_check_mark::x::face_with_monocle:, fast cycling :white_check_mark::x::face_with_monocle:, bladder 0xp1-2 :white_check_mark::x::face_with_monocle:, GI :white_check_mark::x::face_with_monocle:, talking :white_check_mark::x::face_with_monocle:, mask-talking :white_check_mark::x::face_with_monocle:"
Lie ➔ LBU = lower back unrest, hunchback, Neck, thighs, elbows, itch, cold/hot, nose stuffy
Stand ➔ Legs, back
Knees up ➔ right loin
Arms up ➔ pain
Sit ➔ Backside, lower back
Pose ➔ stiffness (Stiffness after holding a posture): Time 0-60’’, pain amount if faster.
Walk ➔ Elbows, feet, right knee
Cycle ➔ Feet, knees, backside, elbows, hands, neck
Drink ➔ Pee frequency, pain before peeing (p0-6).
Eat ➔ Esophagus block, stomach, gut, rectum, stool (IBSD?). GI for short
Talk➔Jaw (& Ache)
Mask-talk ➔ not sure how to describe it, just plain yucky.

Treatments

Supps TAKEN TODAY: sleep ✅, starting PF early, plus a 3rd GABA (instead of mumijo and rosewort) was also good. Yesterday I had longer sleep stints, but also one longer break. ✅ Still no Ribose; still no GI... ✅. Meal end now: 13:40... (mumijo & SRP), 17:20 a focal seizure, and before that more bladder pain means GABA was overdosed tonight! Trying glutamine as antidote stopped further seizure-ishness, but once my bladder's set off it takes many hours to calm down again.

/19:55 mumijo. P5P. 1st 1x289 passiflora = PF, selene, 1x rosewort/Mg carbonate/B1 at meal.
/22:45 1st 600mg GABA 500mg glutamine 2nd passiflora
/01:32 2nd 600mg GABA, 1st !100mg theanine, 3rd passiflora, 1st serrapeptase = SRP (+2h/)
/03:40 3rd 400mg GABA, 2nd 100mg theanine, 4th passiflora, 2nd SRP,
/05:50 zinc, 3rd SRP.
/10:35 600 GABA !100mg theanine, 1 Mg glycinate. NAC.
/16:40 NAC, Mg glycinate, SRP.
/17:20 glutamine and theanine as antidote to the GABA.
/19:45 Mg malate, NAC, NADH, as well as SRP before eating and to help calm my muscles down.
1st NADH :white_check_mark::face_with_monocle:
?15:00 2nd NADH. :white_check_mark::face_with_monocle:
?16:20 NAC, malate, glycinate, SRP :white_check_mark:.
?19:40 NAC, SRP
Daytime: NAC :white_check_mark:, 3x1 malate :white_check_mark:, 3x1 glycinate :white_check_mark:, ? SRP (2h after meals) :white_check_mark:. tea tree oil
Leave out Ribose to watch if there is no GI :face_with_monocle: :white_check_mark:.

Supps to KEEP UP (3): passiflora, GABA, theanine ✅, to WATCH (10): Mumijo 2-3h from other meds, and that and SRP 2-3h after meals, both for inflammation (tooth!!) So I need to note/remember meal ends now. 🧐. Daytime: Mg malate & glycinate (< 6, GI), NAC, P5P, NADH, ribose only in emergencies. ✅🧐, ↗2-3x rose root, Sfx?: Ribose (GI!?!) Feverishness? 🧐. Glutamine? START/CHANGE: ALC ✅/❌/🧐

SLEEP:
:white_check_mark: Passiflora 4x289mg: drowsier, but not too much, deeper, shorter breaks. 18th: Starting earlier.
:white_check_mark: GABA 2x600mg: deeper, 10 areas in daytime
:white_check_mark: theanine 1x300 relaxed, not too long
:white_check_mark::face_with_monocle: glutamine 1x500mg: GABA antagonist. But maybe more day than night?
:face_with_monocle: P5P (serotonin/GABA)
(:face_with_monocle: SRP serrapeptase 2x10.000IU before sleep (but 2h after last meal!))
:x::face_with_monocle: melatonin 1mcg at 22, 1mcg at 2 - but not nice feeling, praps.
INFLAMMATION:
:face_with_monocle: 5:30 serrapeptase 2x10.000IU (more?)
:face_with_monocle: zinc
:white_check_mark: tea tree oil on gums
:face_with_monocle: rose root 20:00 2-3x200mg (serotonin & bp)
:face_with_monocle: mumijo (shihalit) 20:00: anti-infl., pain & GI: Mumijo attenuates chemically induced inflammatory pain in mice - PubMed (2015), Anti-ulcer activity: Ulcer healing activity of Mumijo aqueous extract against acetic acid induced gastric ulcer in rats - PubMed (2015)
German link: https://www.zentrum-der-gesundheit.de/ernaehrung/nahrungsergaenzung/heilpflanzen/mumijo: When ill, 2-3x200-300mg/d 30’ before eating for 20-30d. Then 10d without, then another 20-30d.
:x: 2h after meals SAMe :arrow_lower_right:0x100mg (max. !): pain, stiffness, sfx: GI, bladder!, dry mouth!, sleep!, serotonin-seizures! SAMe/SAM-e - #2 by Anne
WAKE/FOG:
:white_check_mark: 8:00 GABA & theanine
:face_with_monocle: Mg glycinate 2x400
:face_with_monocle: NAC
:face_with_monocle: Mg malate :arrow_lower_right:0-1 for the time being :face_with_monocle: , cos I’m running short. (2x500)
ACHE:
:white_check_mark::face_with_monocle: Serrapeptase up to 8x or more?
ENERGY/FATIGUE:
:white_check_mark::face_with_monocle: Ribose up to 6x2.5g muscle fatigue, ATP; GI-sfx, <500mg per serving?! No sugar allowed - #7 by Lynne etc.
:face_with_monocle: NAC -2400mg: NAC = N-acetylcysteine fatigue, anti-infl.
:white_check_mark::face_with_monocle: NADH/NAD+: Serrapeptase & NADH/NAD+ - enzymes - #4 by JayCS B3-coenzyme for energy (ATP) & post exertional malaise: 2.5mg, watch out for overstimulation & jitteriness.
:white_check_mark:/:x:/:face_with_monocle: Acetyl L-Carnitine (ALC)?: LC first? A for Alert brain, dose: 2x750mg, for no sfx keep under 3000. Question about kinds of pain | Page 2 | Fibromyalgia Forum.
:white_check_mark:/:x:/:face_with_monocle: glycine? Alertness
STIFFNESS:
Glutamine?: Low Dopamine in Fibromyalgia and CFS
NOSTRILS CLOTTED at night
:white_check_mark: tea tree oil (lavender not enough)
EVERYTHING:
:white_check_mark: Vitamin B12: injections again?
:white_check_mark:/:x:/:face_with_monocle: Schüssler 2, 4, & 7 (need 3-6 months sez my acupressurist).
ACID:
:face_with_monocle: Mumijo isn’t working: Still same heartburn, plus hungriness at 5/6.
Medicinal clay never stopped my gastric acidity in my twens, but is bentonite - or am I - different now? (= 95% Montmorillonite; zeolithe is OK too. IBSD & -C; not together with other supps… (ZdG))

SELF-PHYSIO: 46' ✅

:white_check_mark: Timing, AuTr 5’, hunchback-pillow 20’, cold shower (10’), palpate 1’, belly 3’, back 7’,
:x: neck 1+ 9’, neck 2 10’, twist-stretch 10’, loins 5’, yoga 5’, gums 2x30’’, V ‘, marionette-hang 1’, mirror 2’, shaking dance 1’, breath-hold 11’, RR x2’, HWB 3’, workout 7’, jolt-jump 1’

THERAPIES:

Acupressure / Therapy, Doc/Diagnoses ? :white_check_mark: :x: :face_with_monocle: Acupressure 2h Tues & 2h Fri:

Development:

I shd praps write a “my successes, my fails” as part of my reference section.

To put my supp-development short I just wrote someone “thanks to the new powders (aside of the previous neurotransmitters/amino acids and passiflower now a cough expectorant (amino acid-derivate), a sugar - however with sfx - and a vitamin B3-variant)”… And:
I’ve actually still got Mucuna on my list (the one-after-last, which is ALC ;-)…): Ayurvedic, good for neurological disorders and arthritis, so why not… I fear I’ll be getting bored in a few weeks, Dr. JayCyll at the end of his list, and no more Mr. Hyde sfx from (having to) overdose… more stability, less suprises (?!) yawn ;->

Lessons in self-care #96 Oh well, back down with the GABA tonight.
Reasons to be cheerful #99 Wonderful how clearly the overdose shows how well GABA usually works.

Abbreviations & explanations

Entries start with night meds & sleep, before triggers/symptoms & treatments, because the “night before” is vital. So Fri-day starts with Thursday night, the night before Friday.

Pain "7" = crying (/out) point; my 1 is others 2-3, and due to pacing/treatments

My wife says my 7 is other people’s 12. 1 is probably 2-3. Due to pacing, keeping work down to 25% (12h/wk) and all my treatments (acupressure, GABA) and physio self-treatments I manage to keep getting my pains & Ache down quickly. 3 usually means the Ache, not pains; these I address individually, often automatically and on the fly now, e.g. twist-stretching everything or something specific after getting up.

TIME DATA, e.g. ' = mins, h = hours, 18:10:40', date YYYY-MM-DD

’ = mins = minutes, ‘’ = secs = seconds, h is hours as time length, 3h is 3 hours long, 3:00 is 3am, 15:00 is 3pm. 18:10:40’ means 40 minutes, starting at 18:10, = 10 minutes past 6pm up to 10 to 7pm. The date is the logical digital standard: YYYY-MM-DD.

SLEEP: slp, w, lbu/LBU, RLS, p, i

slp = sleep; reasons for getting up: w = (a)wake, lbu/LBU: lower back unrest (‘RLS’?), p: pee, p2: pain 2 of 7 before peeing, i: ideas.

ACTIVITIES: TT, e.g. "5:1"

TT = table tennis, 5:1 = score, usually showing how well I’m feeling: energy, relaxedness & alertness if the first number is much higher than the second.

SUPPS: supplements (as opposed to herbs & meds). Fx: Effects. Sfx: Side effects.

SELF-TREATMENTS (about everything else...)

The self-treatments listed are only things that I’m spotlighting & rewarding myself for at the mo by counting them; much of what I do at night is self-treatment to get back to sleep or alleviate (1-2h/d), certain regular movements at daytime, like twist-stretching (30’), writing this blog is self-treatment (30’-60’/d), and the further fibro-work is an indirect form.
Self treatments are usually preventative or always have the same positive effect (e.g. cold showering improves Ache and sleep) - at least I do them for that - and I use “:arrow_forward:” to show what I’m doing to alleviate something and mark it off in the details “:white_check_mark:/:x:” whether it works well enough for a time or doesn’t’, e.g. Ache :arrow_forward: cold fast shower “:white_check_mark:
fw = fibro-work, meaning reading and writing this blog, the reference base, on 4 fibro-forums and researching fibro-stuff on the web.
AuTr = Autogenic Training (usually to actively get - back - to sleep, so counting it as sleep and AuTr…),
FAT Flash/fast autogenic training: immediate image of dreamy floating in space or liquid from jaw to legs.
cold/FCS = Flash Cold Shower (20’’-60’’) , I count it as 10’ tho. At night with ear plugs & all lights off.
breath-hold/WHM-B-H = Wim Hof Method Breath-Holding,
Neck 1 is stretching top right to bottom left, vice versa & sky/ground, neck “1+” is stretching far further diagonally downwards, neck 2 is pressing my head against my hand “without moving”, left right and front.
loins = loins/groin = stretching the ligaments there.
ex = exercises
HWB = Hot water bottle,
RR = bp = blood pressure (Riva Rocci), plus pulse. Used to be normal, plus sometimes white coat syndrome, went up since fibro, seems to have gone down again enough so I’ve not only stopped lercanidipine, but also candesartan and am checking RR regularly.
:new: “V” for loins = lie on back, legs up and let legs fall to sides;
:new: twist-stretching more for the loins
:white_check_mark: :x: :face_with_monocle: ➔ ⇄ ⇨➜ ➞ :arrow_right: ➲ ↔:⇰↔ →:arrow_upper_right: :arrow_lower_right:

↯ ↛ ↺ ↮ ⇝ ⇾ ⟹ ⭆ ⤮:

2021-10-19, Tuesday - extraordinary bladder: up 10x (every 30-60’)

Triggers & resulting Symptoms

SLEEP: 8h56, up 10x (38') ➔ Feeling 90% well, Ache 1 of 7 ✅. Pee pain reduced, but pee frequency enormous...

No fw!
FCS p1 22:30-
23:19 3’ 90%/1 p0 st1 drink fw1’
23:45 3’ 90%/1 p1 st1 drink fw1’
00:08 3’ 90%/1 p1 st1 drink fw1’
01:38 3’ 90%/1 p1 st1 drink fw1’
02:00 3’ 90%/1 p1 st1 drink0 fw1’
03:15 3’ 90%/1 p0(-1) st1 drink2 fw1’ 2x mumijo! (target was at/after 3:40…)
03:30 11’ Can’t find good sleep position any more: ribs, arm, undefined unrest. Jolt-jump, shake-dance, FCS#2, twist-stretch
4:42 3’ 90%/1 p1 st1 drink1 fw1’
5:14 3’ 90%/1 p0 st1 drink1 fw1’
7:04 3’ 90%/1 p0 st1 drink4 fw1’ zn SRP mumijo
?2:00 3’ 90%/1 p0 st1 drink fw1’
-8:04
Sum: 1h30+8h04-(3+3+3+3+3+3+11+3+3+3=)38’=9h34-38’=8h56, up 10x (38’)

ACTIVITIES ➔ ACHE: music, housework, table tennis, walk with heavy rucksack some of the time...(no work...) ➔ 90%/1 ✅

Ache = also Exhaustion/Tired :white_check_mark: :x: :face_with_monocle: ➔ 90%/1
Cycle➔ exhaustion, also as action➔pains;
TT = Table-Tennis➔ easy or effortless or strained or tough?
talk/meetings here (and actions➔pains?)
Grandchild➔
Work/Mask-talking➔
Socializing/Talking➔

"ACTIONS ➔ PAINS: Slight forehead pain feeling as if a cold was coming on turned out to be cold feet due to forgetting my 3rd AND inside also 4th pair of socks; heat pad and cushion helped, gotta watch that in this weather.... ✅ Squashed out my recurrent tooth inflammation. 🧐 Problem lying once at night 🧐: but FCS#2 helped ✅. Pee pain & frequency is slowly improving. 🧐✅, Right knee while walking with a heavy rucksack got better again when I turned my right leg inwards ✅; everything else good ✅

:white_check_mark: :x: :face_with_monocle:
Lying :white_check_mark::x::face_with_monocle:, standing :white_check_mark::x::face_with_monocle:, loins :white_check_mark::x::face_with_monocle:, sitting :white_check_mark::x::face_with_monocle:, arms up :white_check_mark::x::face_with_monocle:, neck stiffness 90° :white_check_mark::x::face_with_monocle:, stiffness after poses :white_check_mark::x::face_with_monocle:, walking :white_check_mark::x::face_with_monocle:, fast cycling :white_check_mark::x::face_with_monocle:, bladder 0xp1-2 :white_check_mark::x::face_with_monocle:, GI :white_check_mark::x::face_with_monocle:, talking :white_check_mark::x::face_with_monocle:, mask-talking :white_check_mark::x::face_with_monocle:"
Lie ➔ LBU = lower back unrest, hunchback, Neck, thighs, elbows, itch, cold/hot, nose stuffy
Stand ➔ Legs, back
Knees up ➔ right loin
Arms up ➔ pain
Sit ➔ Backside, lower back
Pose ➔ stiffness (Stiffness after holding a posture): Time 0-60’’, pain amount if faster.
Walk ➔ Elbows, feet, right knee
Cycle ➔ Feet, knees, backside, elbows, hands, neck
Drink ➔ Pee frequency, pain before peeing (p0-6).
Eat ➔ Esophagus block, stomach, gut, rectum, stool (IBSD?). GI for short
Talk➔Jaw (& Ache)
Mask-talk ➔ not sure how to describe it, just plain yucky.

Treatments

Supps TAKEN TODAY: After yesterday's GABA overdose I've realized I've been feeling seizure-ish during table tennis for quite a few weeks, whether I'm focused or not. Need to reduce GABA, it's been 3x600mg lately, and I think 4x600 again last night, whilst it was only 400/600/400 in Sept. sleep? Also I seem to have taken Ribose? Meal ends?.. (mumijo & SRP),

REDUCE GABA to 400/600/600 & checking if sleep stays good/better, before trying some ribose again
/20:35 P5P. 1st PF, selene, 1x rosewort/Mg carbonate/B1 at meal. Not mumijo! (later…)
/22:00 1st GABA, glutamine, 2nd PF
/23:20 2nd 600mg GABA, 1st !100mg theanine, 3rd passiflora, 1st serrapeptase = SRP
/01:40 3rd 400mg (I think 600) GABA, 2nd 100mg theanine, 4th passiflora, 2nd SRP,
/03:15 2 mumijo
/07:05 zinc, 3rd SRP, 3rd mumijo
/08:10 600 GABA !100mg theanine, 1 Mg glycinate. NAC.
/12:00 4th mumijo
/13:50 500 NAC, 1 malate, 1 SRP, 14:00 1st ALC to get a bit more alert.

?16:40 NAC, Mg glycinate, SRP.
?19:45 Mg malate, NAC, NADH, as well as SRP before eating and to help calm my muscles down.
1st NADH :white_check_mark::face_with_monocle:
?15:00 2nd NADH. :white_check_mark::face_with_monocle:
?16:20 NAC, malate, glycinate, SRP :white_check_mark:.
?19:40 NAC, SRP
Daytime: NAC :white_check_mark:, 3x1 malate :white_check_mark:, 3x1 glycinate :white_check_mark:, ? SRP (2h after meals) :white_check_mark:. tea tree oil
Leave out Ribose to watch if there is no GI :face_with_monocle: :white_check_mark:.

Supps to KEEP UP (3): passiflora, GABA, theanine ✅, but REDUCE GABA to 400/600/600 & check if sleep stays good/better, before trying some ribose again. WATCH (10): Mumijo 2-3h from other meds (around 11:00), and that and SRP 2-3h after meals, both for inflammation (tooth!!) So I need to note/remember meal ends now. 🧐. Daytime: Mg malate & glycinate (< 6, GI), NAC, P5P, NADH, ribose only in emergencies. ✅🧐, ↗2-3x rose root, Sfx?: Ribose (GI!?!) Feverishness? 🧐. Glutamine? START/CHANGE: ALC ✅/❌/🧐

SLEEP:
:white_check_mark: Passiflora 4x289mg: drowsier, but not too much, deeper, shorter breaks. 18th: Starting earlier.
:white_check_mark: GABA 2x600mg: deeper, 10 areas in daytime
:white_check_mark: theanine 1x300 relaxed, not too long
:white_check_mark::face_with_monocle: glutamine 1x500mg: GABA antagonist. But maybe more day than night?
:face_with_monocle: P5P (serotonin/GABA)
(:face_with_monocle: SRP serrapeptase 2x10.000IU before sleep (but 2h after last meal!))
:x::face_with_monocle: melatonin 1mcg at 22, 1mcg at 2 - but not nice feeling, praps.
INFLAMMATION:
:face_with_monocle: 5:30 serrapeptase 2x10.000IU (more?)
:face_with_monocle: zinc
:white_check_mark: tea tree oil on gums
:face_with_monocle: rose root 20:00 2-3x200mg (serotonin & bp)
:face_with_monocle: mumijo (shihalit) 20:00: anti-infl., pain & GI: Mumijo attenuates chemically induced inflammatory pain in mice - PubMed (2015), Anti-ulcer activity: Ulcer healing activity of Mumijo aqueous extract against acetic acid induced gastric ulcer in rats - PubMed (2015)
German link: https://www.zentrum-der-gesundheit.de/ernaehrung/nahrungsergaenzung/heilpflanzen/mumijo: When ill, 2-3x200-300mg/d 30’ before eating for 20-30d. Then 10d without, then another 20-30d.
:x: 2h after meals SAMe :arrow_lower_right:0x100mg (max. !): pain, stiffness, sfx: GI, bladder!, dry mouth!, sleep!, serotonin-seizures! SAMe/SAM-e - #2 by Anne
WAKE/FOG:
:white_check_mark: 8:00 GABA & theanine
:face_with_monocle: Mg glycinate 2x400
:face_with_monocle: NAC
:face_with_monocle: Mg malate :arrow_lower_right:0-1 for the time being :face_with_monocle: , cos I’m running short. (2x500)
ACHE:
:white_check_mark::face_with_monocle: Serrapeptase up to 8x or more?
ENERGY/FATIGUE:
:white_check_mark::face_with_monocle: Ribose up to 6x2.5g muscle fatigue, ATP; GI-sfx, <500mg per serving?! No sugar allowed - #7 by Lynne etc.
:face_with_monocle: NAC -2400mg: NAC = N-acetylcysteine fatigue, anti-infl.
:white_check_mark::face_with_monocle: NADH/NAD+: Serrapeptase & NADH/NAD+ - enzymes - #4 by JayCS B3-coenzyme for energy (ATP) & post exertional malaise: 2.5mg, watch out for overstimulation & jitteriness.
:white_check_mark:/:x:/:face_with_monocle: Acetyl L-Carnitine (ALC)?: LC first? A for Alert brain, dose: 2x750mg, for no sfx keep under 3000. Question about kinds of pain | Page 2 | Fibromyalgia Forum.
:white_check_mark:/:x:/:face_with_monocle: glycine? Alertness
STIFFNESS:
Glutamine?: Low Dopamine in Fibromyalgia and CFS
NOSTRILS CLOTTED at night
:white_check_mark: tea tree oil (lavender not enough)
EVERYTHING:
:white_check_mark: Vitamin B12: injections again?
:white_check_mark:/:x:/:face_with_monocle: Schüssler 2, 4, & 7 (need 3-6 months sez my acupressurist).
ACID:
:face_with_monocle: Mumijo isn’t working: Still same heartburn, plus hungriness at 5/6.
Medicinal clay never stopped my gastric acidity in my twens, but is bentonite - or am I - different now? (= 95% Montmorillonite; zeolithe is OK too. IBSD & -C; not together with other supps… (ZdG))

SELF-PHYSIO: 77' ✅

*:white_check_mark: Timing, AuTr 3’, hunchback-pillow 15’, cold shower 2x(10’), jolt-jump 1’, shaking dance 2’, palpate 1’, belly 3’, back 7’, neck 1+ 3’, neck 2 3’, twist-stretch 4’, yoga 5’, marionette-hang 10’,
:x: loins 5’, gums 2x30’’, V ‘, mirror 2’, breath-hold 11’, RR x2’, HWB 3’, workout 7’, *

THERAPIES:

Acupressure / Therapy, Doc/Diagnoses ? :white_check_mark: :x: :face_with_monocle: Acupressure 2h Tues & 2h Fri:

Development:

Lessons in self-care #97 Got to watch out I don’t get some cold & keep spirits up, despite drizzy weather…
Reasons to be cheerful #100 Obviously been taking too much GABA anyway!

Abbreviations & explanations

Entries start with night meds & sleep, before triggers/symptoms & treatments, because the “night before” is vital. So Fri-day starts with Thursday night, the night before Friday.

Pain "7" = crying (/out) point; my 1 is others 2-3, and due to pacing/treatments

My wife says my 7 is other people’s 12. 1 is probably 2-3. Due to pacing, keeping work down to 25% (12h/wk) and all my treatments (acupressure, GABA) and physio self-treatments I manage to keep getting my pains & Ache down quickly. 3 usually means the Ache, not pains; these I address individually, often automatically and on the fly now, e.g. twist-stretching everything or something specific after getting up.

TIME DATA, e.g. ' = mins, h = hours, 18:10:40', date YYYY-MM-DD

’ = mins = minutes, ‘’ = secs = seconds, h is hours as time length, 3h is 3 hours long, 3:00 is 3am, 15:00 is 3pm. 18:10:40’ means 40 minutes, starting at 18:10, = 10 minutes past 6pm up to 10 to 7pm. The date is the logical digital standard: YYYY-MM-DD.

SLEEP: slp, w, lbu/LBU, RLS, p, i

slp = sleep; reasons for getting up: w = (a)wake, lbu/LBU: lower back unrest (‘RLS’?), p: pee, p2: pain 2 of 7 before peeing, i: ideas.

ACTIVITIES: TT, e.g. "5:1"

TT = table tennis, 5:1 = score, usually showing how well I’m feeling: energy, relaxedness & alertness if the first number is much higher than the second.

SUPPS: supplements (as opposed to herbs & meds). Fx: Effects. Sfx: Side effects.

SELF-TREATMENTS (about everything else...)

The self-treatments listed are only things that I’m spotlighting & rewarding myself for at the mo by counting them; much of what I do at night is self-treatment to get back to sleep or alleviate (1-2h/d), certain regular movements at daytime, like twist-stretching (30’), writing this blog is self-treatment (30’-60’/d), and the further fibro-work is an indirect form.
Self treatments are usually preventative or always have the same positive effect (e.g. cold showering improves Ache and sleep) - at least I do them for that - and I use “:arrow_forward:” to show what I’m doing to alleviate something and mark it off in the details “:white_check_mark:/:x:” whether it works well enough for a time or doesn’t’, e.g. Ache :arrow_forward: cold fast shower “:white_check_mark:
fw = fibro-work, meaning reading and writing this blog, the reference base, on 4 fibro-forums and researching fibro-stuff on the web.
AuTr = Autogenic Training (usually to actively get - back - to sleep, so counting it as sleep and AuTr…),
FAT Flash/fast autogenic training: immediate image of dreamy floating in space or liquid from jaw to legs.
cold/FCS = Flash Cold Shower (20’’-60’’) , I count it as 10’ tho. At night with ear plugs & all lights off.
breath-hold/WHM-B-H = Wim Hof Method Breath-Holding,
Neck 1 is stretching top right to bottom left, vice versa & sky/ground, neck “1+” is stretching far further diagonally downwards, neck 2 is pressing my head against my hand “without moving”, left right and front.
loins = loins/groin = stretching the ligaments there.
ex = exercises
HWB = Hot water bottle,
RR = bp = blood pressure (Riva Rocci), plus pulse. Used to be normal, plus sometimes white coat syndrome, went up since fibro, seems to have gone down again enough so I’ve not only stopped lercanidipine, but also candesartan and am checking RR regularly.
:new: “V” for loins = lie on back, legs up and let legs fall to sides;
:new: twist-stretching more for the loins
:white_check_mark: :x: :face_with_monocle: ➔ ⇄ ⇨➜ ➞ :arrow_right: ➲ ↔:⇰↔ →:arrow_upper_right: :arrow_lower_right:

↯ ↛ ↺ ↮ ⇝ ⇾ ⟹ ⭆ ⤮:

2021-10-20, Wednesday - better, but 2 further focal seizures

Triggers & resulting Symptoms

SLEEP: 9h21, up 3x (54') ➔ Feeling 90% well, Ache 1 of 7 ✅ - however dreams that semed to express my and another's incompetence

FCS p0 22:45- with wife, and it worked - I could tolerate it.
01:37 6’ 90%/1 p0 st1 drink4 fw2’
03:40 42’ 6 90%/1 p0 st2? drink fw1’ -4:22
6:56 6’ 90%/1 p1 st1 drink fw2’ Dreamt: Pound of flour thrown at me. Why? Sore throat: Umckaloabo & Marigold.
-9:00
Sum: 1h15+9h-(6+42+6=)54’=10h15-54’= 9h21, up 3x (54’)

ACTIVITIES ➔ ACHE: ➔ 90%/1, after table tennis only short ache: NADH

Ache = also Exhaustion/Tired :white_check_mark: :x: :face_with_monocle: ➔ ?90%/1
Cycle➔ exhaustion, also as action➔pains;
TT = Table-Tennis➔ easy or effortless or strained or tough?
talk/meetings here (and actions➔pains?)
Grandchild➔
Work/Mask-talking➔
Socializing/Talking➔

ACTIONS ➔ PAINS: Right knee during a fast! 1h walk (possible due to ribose), twisting in and out helped a bit 🧐, no GI: after a tsp of ribose slight tension only after eating, not before ✅, bladder still tough, due to the GABA overdose 2 days in a row, 5xp2-4 ❌, also a bit stiffer, and the 2 focal seizures with 2 auras... ❌

:white_check_mark: :x: :face_with_monocle:
Lying :white_check_mark::x::face_with_monocle:, standing :white_check_mark::x::face_with_monocle:, loins :white_check_mark::x::face_with_monocle:, sitting :white_check_mark::x::face_with_monocle:, arms up :white_check_mark::x::face_with_monocle:, neck stiffness 90° :white_check_mark::x::face_with_monocle:, stiffness after poses :white_check_mark::x::face_with_monocle:, walking :white_check_mark::x::face_with_monocle:, fast cycling :white_check_mark::x::face_with_monocle:, bladder 0xp1-2 :white_check_mark::x::face_with_monocle:, GI :white_check_mark::x::face_with_monocle:, talking :white_check_mark::x::face_with_monocle:, mask-talking :white_check_mark::x::face_with_monocle:"
Lie ➔ LBU = lower back unrest, hunchback, Neck, thighs, elbows, itch, cold/hot, nose stuffy
Stand ➔ Legs, back
Knees up ➔ right loin
Arms up ➔ pain
Sit ➔ Backside, lower back
Pose ➔ stiffness (Stiffness after holding a posture): Time 0-60’’, pain amount if faster.
Walk ➔ Elbows, feet, right knee
Cycle ➔ Feet, knees, backside, elbows, hands, neck
Drink ➔ Pee frequency, pain before peeing (p0-6).
Eat ➔ Esophagus block, stomach, gut, rectum, stool (IBSD?). GI for short
Talk➔Jaw (& Ache)
Mask-talk ➔ not sure how to describe it, just plain yucky.

Treatments

Supps TAKEN TODAY: GABA: Reducing has neither decreased sleep nor stiffness up to now, but that might be due to it still being how. Tried 1 tsp Ribose at 12:05: Helped keep up full speed on a 1h walk, no GI to speak of! Mumijo only at 7:00

REDUCE GABA to 400/600/600 & checking if sleep stays good/better, before trying some ribose again
/20:35 P5P. PF#1, Se, rosewort/Mg carbonate/B1 at meal. Not mumijo! (later…)
/22:20 !300 GABA#1, glutamine, PF#2
/01:40 !300 GABA#2, theanine#1, PF#3, SRP#1
/03:40 !300 GABA#3, theanine#2, PF#4, SRP#2
/07:00 zinc, 3rd SRP, mumijo#1
no ?11:00 mumijo#4
/12:05 tsp ribose alone to see what that does: feels funny again inside a short time, but lots of energy, and OK, however 2 focal seizures…
/14:00 Ribose
…14:50 focal seizure, aura 2x before
/15:25 NAC, glycinate
…16:30 focal seizure during TT, both not severe, could still talk a bit and continue playing well.
/17:15 NADH for PEM after TT.
Daytime: NAC :white_check_mark:, 3x1 malate :white_check_mark:, 3x1 glycinate :white_check_mark:, ? SRP (2h after meals) :white_check_mark:. tea tree oil, NADH :white_check_mark::face_with_monocle: alerter: ALC?
Ribose: GI? Not on 20th! :face_with_monocle: :white_check_mark:.

Supps to KEEP UP (3): passiflora, GABA, theanine ✅, keep GABA to 400/600/400, check sleep, & trying ribose for GI. WATCH (10): Mumijo 2-3h from other meds (around 11:00), and that and SRP 30' before or 2-3h after meals, both for inflammation (tooth!!), same for NADH. So I need to note/remember meal ends now. 🧐. Daytime: Mg malate & glycinate (< 6, GI), NAC, P5P, NADH. Ribose only in emergencies. ✅🧐, ↗2-3x rose root, Sfx?: Ribose (GI!?!) Feverishness? 🧐. Glutamine? START/CHANGE: ALC ✅/❌/🧐

SLEEP:
:white_check_mark: Passiflora 4x289mg: drowsier, but not too much, deeper, shorter breaks. 18th: Starting earlier.
:white_check_mark: GABA 2x600mg: deeper, 10 areas in daytime
:white_check_mark: theanine 1x300 relaxed, not too long
:white_check_mark::face_with_monocle: glutamine 1x500mg: GABA antagonist. But maybe more day than night?
:face_with_monocle: P5P (serotonin/GABA)
(:face_with_monocle: SRP serrapeptase 2x10.000IU before sleep (but 2h after last meal!))
:x::face_with_monocle: melatonin 1mcg at 22, 1mcg at 2 - but not nice feeling, praps.
INFLAMMATION:
:face_with_monocle: 5:30 serrapeptase 2x10.000IU (more?)
:face_with_monocle: zinc
:white_check_mark: tea tree oil on gums
:face_with_monocle: rose root 20:00 2-3x200mg (serotonin & bp)
:face_with_monocle: mumijo (shihalit) 20:00: anti-infl., pain & GI: Mumijo attenuates chemically induced inflammatory pain in mice - PubMed (2015), Anti-ulcer activity: Ulcer healing activity of Mumijo aqueous extract against acetic acid induced gastric ulcer in rats - PubMed (2015)
German link: https://www.zentrum-der-gesundheit.de/ernaehrung/nahrungsergaenzung/heilpflanzen/mumijo: When ill, 2-3x200-300mg/d 30’ before eating for 20-30d. Then 10d without, then another 20-30d.
:x: 2h after meals SAMe :arrow_lower_right:0x100mg (max. !): pain, stiffness, sfx: GI, bladder!, dry mouth!, sleep!, serotonin-seizures! SAMe/SAM-e - #2 by Anne
WAKE/FOG:
:white_check_mark: 8:00 GABA & theanine
:face_with_monocle: Mg glycinate 2x400
:face_with_monocle: NAC
:face_with_monocle: Mg malate :arrow_lower_right:0-1 for the time being :face_with_monocle: , cos I’m running short. (2x500)
ACHE:
:white_check_mark::face_with_monocle: Serrapeptase up to 8x or more?
ENERGY/FATIGUE:
:white_check_mark::face_with_monocle: Ribose up to 6x2.5g muscle fatigue, ATP; GI-sfx, <500mg per serving?! No sugar allowed - #7 by Lynne etc.
:face_with_monocle: NAC -2400mg: NAC = N-acetylcysteine fatigue, anti-infl.
:white_check_mark::face_with_monocle: NADH/NAD+: Serrapeptase & NADH/NAD+ - enzymes - #4 by JayCS B3-coenzyme for energy (ATP) & post exertional malaise: 2.5mg, watch out for overstimulation & jitteriness. best 30’ before meals, says sourcenaturals…
:white_check_mark:/:x:/:face_with_monocle: Acetyl L-Carnitine (ALC)?: LC first? A for Alert brain, dose: 2x750mg, for no sfx keep under 3000. Question about kinds of pain | Page 2 | Fibromyalgia Forum.
:white_check_mark:/:x:/:face_with_monocle: glycine? Alertness
STIFFNESS:
Glutamine?: Low Dopamine in Fibromyalgia and CFS
NOSTRILS CLOTTED at night
:white_check_mark: tea tree oil (lavender not enough)
EVERYTHING:
:white_check_mark: Vitamin B12: injections again?
:white_check_mark:/:x:/:face_with_monocle: Schüssler 2, 4, & 7 (need 3-6 months sez my acupressurist).
ACID:
:face_with_monocle: Mumijo isn’t working: Still same heartburn, plus hungriness at 5/6.
Medicinal clay never stopped my gastric acidity in my twens, but is bentonite - or am I - different now? (= 95% Montmorillonite; zeolithe is OK too. IBSD & -C; not together with other supps… (ZdG))

SELF-PHYSIO: 34' ✅

:white_check_mark: Timing, AuTr 3’, hunchback-pillow 10’, cold shower (10’), palpate 1’, belly 3’, back 7’,
:x: neck 1+ 9’, neck 2 10’, twist-stretch 10’, loins 5’, yoga 5’, gums 2x30’’, V ‘, marionette-hang 1’, mirror 2’, shaking dance 1’, breath-hold 11’, RR x2’, HWB 3’, workout 7’, jolt-jump 1’

THERAPIES:

Acupressure / Therapy, Doc/Diagnoses ? :white_check_mark: :x: :face_with_monocle: Acupressure 2h Tues & 2h Fri:

Development:

Reasons to be cheerful #101 Lots of fun today helping people.

Abbreviations & explanations

Entries start with night meds & sleep, before triggers/symptoms & treatments, because the “night before” is vital. So Fri-day starts with Thursday night, the night before Friday.

Pain "7" = crying (/out) point; my 1 is others 2-3, and due to pacing/treatments

My wife says my 7 is other people’s 12. 1 is probably 2-3. Due to pacing, keeping work down to 25% (12h/wk) and all my treatments (acupressure, GABA) and physio self-treatments I manage to keep getting my pains & Ache down quickly. 3 usually means the Ache, not pains; these I address individually, often automatically and on the fly now, e.g. twist-stretching everything or something specific after getting up.

TIME DATA, e.g. ' = mins, h = hours, 18:10:40', date YYYY-MM-DD

’ = mins = minutes, ‘’ = secs = seconds, h is hours as time length, 3h is 3 hours long, 3:00 is 3am, 15:00 is 3pm. 18:10:40’ means 40 minutes, starting at 18:10, = 10 minutes past 6pm up to 10 to 7pm. The date is the logical digital standard: YYYY-MM-DD.

SLEEP: slp, w, lbu/LBU, RLS, p, i

slp = sleep; reasons for getting up: w = (a)wake, lbu/LBU: lower back unrest (‘RLS’?), p: pee, p2: pain 2 of 7 before peeing, i: ideas.

ACTIVITIES: TT, e.g. "5:1"

TT = table tennis, 5:1 = score, usually showing how well I’m feeling: energy, relaxedness & alertness if the first number is much higher than the second.

SUPPS: supplements (as opposed to herbs & meds). Fx: Effects. Sfx: Side effects.

SELF-TREATMENTS (about everything else...)

The self-treatments listed are only things that I’m spotlighting & rewarding myself for at the mo by counting them; much of what I do at night is self-treatment to get back to sleep or alleviate (1-2h/d), certain regular movements at daytime, like twist-stretching (30’), writing this blog is self-treatment (30’-60’/d), and the further fibro-work is an indirect form.
Self treatments are usually preventative or always have the same positive effect (e.g. cold showering improves Ache and sleep) - at least I do them for that - and I use “:arrow_forward:” to show what I’m doing to alleviate something and mark it off in the details “:white_check_mark:/:x:” whether it works well enough for a time or doesn’t’, e.g. Ache :arrow_forward: cold fast shower “:white_check_mark:
fw = fibro-work, meaning reading and writing this blog, the reference base, on 4 fibro-forums and researching fibro-stuff on the web.
AuTr = Autogenic Training (usually to actively get - back - to sleep, so counting it as sleep and AuTr…),
FAT Flash/fast autogenic training: immediate image of dreamy floating in space or liquid from jaw to legs.
cold/FCS = Flash Cold Shower (20’’-60’’) , I count it as 10’ tho. At night with ear plugs & all lights off.
breath-hold/WHM-B-H = Wim Hof Method Breath-Holding,
Neck 1 is stretching top right to bottom left, vice versa & sky/ground, neck “1+” is stretching far further diagonally downwards, neck 2 is pressing my head against my hand “without moving”, left right and front.
loins = loins/groin = stretching the ligaments there.
ex = exercises
HWB = Hot water bottle,
RR = bp = blood pressure (Riva Rocci), plus pulse. Used to be normal, plus sometimes white coat syndrome, went up since fibro, seems to have gone down again enough so I’ve not only stopped lercanidipine, but also candesartan and am checking RR regularly.
:new: “V” for loins = lie on back, legs up and let legs fall to sides;
:new: twist-stretching more for the loins
:white_check_mark: :x: :face_with_monocle: ➔ ⇄ ⇨➜ ➞ :arrow_right: ➲ ↔:⇰↔ →:arrow_upper_right: :arrow_lower_right:

↯ ↛ ↺ ↮ ⇝ ⇾ ⟹ ⭆ ⤮:

Hey @JayCS ! Do you have a history of seizures? Are you being treated for this? It’s really important to aggressively manage seizure activity.

Sharon from ModSupport

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