2021-09-18, Saturday: deteriorating from midday, depleted by 18:00, better after 2x serrapeptase & 120mg ginkgo.
- Awake again at 4:00 - so the night dose of theanine isn’t helping reliably, nor the 2x400 tryptophan.
- Desperately need a stay-at-home weekend, so am trying to keep the socializing ‘appts’ short.
- Bit depressed: tryptophan? Nope, not normally. Praps 17h work this week was too much physically and/or emotionally.
- Edit: Found a note saying I had a focal seizure at 18:17 and an aura at 13:05 (= also p1). Can’t at all detect what may have caused it, except overdoing it. No supp experiments as far as I can see.
Triggers & resulting Symptoms
SLEEP: 9h28, up 5x (59'), quite some dozing ➔ Feeling 90% well, Ache 1 of 7 ✅
FCS p1 21:40-
00:36 5’ 90%/1 p1 st1 drink fw2’ + 600mg GABA & 400mg L-glutamine & 1x289mg passiflora. heartburn → almonds
2:20 5’ 90%/1 p0 st1 drink fw2’ "300"mg theanine
3:55 3’ 90%/1 p0 st2 drink fw1’
4:07 6 43’ bit depressed: leave or swap theanine? forced sleep/doze/AuTr
7:24 3’ bit better 90%/1 p1 st2 drink fw1’
Sum: 2h20+8h07-(5+5+3+43+3=)59’=10h27-59’=9h28, up 5x (59’), quite some dozing
ACTIVITIES➔ACHE: TT dead easy & cycling to cryotherapy & back ➔ 80%/2, cryotherapy itself - without acupressure - again didn't have much of an effect, like the last few times. I'm definitely beyond that. Then socializing & having to cycle strenuously over a hill with a big weight on the back depleted me pretty much ➔ 70%/3. Better after 2x serrapeptase & 120mg ginkgo
Ache = also Exhaustion/Tired ➔ ?90%/1
Cycle➔ exhaustion, also as action➔pains;
TT = Table-Tennis➔ easy or effortless or strained or tough?
talk/meetings here (and actions➔pains?)
ACTIONS➔ PAINS: Lying ✅, standing ✅, loins ✅🧐, sitting ✅🧐, arms up ✅❌🧐, stiffness after poses ✅, fast cycling OK, but energy deteriorating from midday on (after cryotherapy, which seemed OK), neck brilliant ✅🧐, bladder: 21:30 p1, 0:40 p1, 13:05 p1, rest p0 🧐, GI: sort of heartburn at night, almonds (like yesterday!): tryptophan? 🧐 Stool surprisingly good: also tryptophan? ✅ Esophagus block eating muesli at 9:50, solved by vibrating !above (throat) as well as below (stomach) the sternum ✅, talking ✅🧐 & mask-talking ✅🧐 OK, but partly strenuous, see Ache above.
Lie ➔ LBU = lower back unrest, hunchback, Neck, thighs, elbows, itch, cold/hot, nose stuffy
Stand ➔ Legs, back
Knees up ➔ right loin
Arms up ➔ pain
Sit ➔ Backside, lower back
Pose ➔ stiffness (Stiffness after holding a posture): Time 0-60’’, pain amount if faster.
Walk ➔ Elbows, feet, right knee
Cycle ➔ Feet, knees, backside, elbows, hands, neck
Drink ➔ Pee frequency, pain before peeing (p0-6).
Eat ➔ Esophagus block, stomach, gut, rectum, stool (IBSD?). GI for short
Talk➔Jaw (& Ache)
Mask-talk ➔ not sure how to describe it, just plain yucky.
Funny dat: After taking the supps at 21:00 Friday eve I started feeling better and more awake, then the cold shower got me tired again, like always… strange… strange…
SELF-PHYSIO: 53' ✅, fibro-work (fw)
Timing, AuTr 10’, hunchback-pillow 10’, cold shower (10’), palpate 1’, belly 3’, back 7’, neck 1+ 8’, neck 2 1, loins 2’, twist-stretch 1’,
yoga 5’, gums 2x30’’, thumbnails 10x30’’, V ‘, marionette-hang 1’, mirror 2’, shaking dance 1’, breath-hold 11’, RR x2’, HWB 3’, workout 7’
*fw: Night: 6 + 5’ 3’ ***
THERAPIES: neck 90° flexible from yesterday's acupressure, but pained a bit during TT
Acupressure / Therapy, Doc/Diagnoses ? Acupressure 2h Tues & 2h Fri:
Supps to KEEP UP: PAIN (ACHE; stiffness?) ✅: Serrapeptase? SLEEP: 0) 21:00 3x289mg passiflora, selene, rosewort/Mg carbonate/B1; bedtime GABA 1x"450"; +2h GABA "600", 400 glutamine, 1x passiflora, ✅ +4h 300 theanine WAKE/FOG: 0) +8h theanine 300 (trying 500) + GABA 400 ✅ (or shd I add GABA?)
For heartburn: Almonds first. (Bentonite, medicinal clay, mumijo?).
21:10 3x289 passiflora, selene, rosewort/magnesium carbonate/B1 at meal & "300"mg tryptophan
21:50 600mg GABA & "300"mg tryptophan
00:36 600mg GABA & 500mg L-glutamine & 289mg passiflora
2:20 "300"mg theanine
9:35 400 GABA + 500mg theanine
today: Serrapeptase cos of deteriorating: 1 at 17:00, 1 at 18:05, plus 120mg ginkgo. Considered taking L-carnitin, as it’s the only other new thing that might’ve fitted, and I was sold it cos it’s good for pain, which I spose the fatigue is also slowly turning into; but read that insomnia is one of the sfx, not to take it too late, and 18:00 is defo too late…
This was together with resting was fairly successful, feeling content, fairly happy & not so achey any more.
Supps UP NEXT: Repeat 2x400mg tryptophan (no increase) bedtime & +2h praps one more time, then swap to melatonin, since 2nd time disturbance after 5h of sleep. Check if the GI sfx turn up again around 17:00 & if it helps at all. More, plus more glutamine? (stiffness?). Try serrapeptase for overdoing-feverishness +WAKE/FOG: 0) ginkgo 1) SAMe 2) Ribose 3) NADH/NAD+ 4) ALC (I have LC: orally or injected?) 5) glycine. +STIFFNESS: +glutamine balanced with GABA at daytime? 🧐 +SLEEP: Keep tryptophan up 🧐, or melatonin, levodopa. NAC?. A) Schüssler B) SUPPS C) MEDS Info:
A Homeopathy: Schüssler 2, 4, & 7 (need 3-6 months sez my acupressurist).
B SUPPS: Amino acids, Enzymes, Minerals, Vitamins
Amino acids: +B6 (as P5P), +Zn, +lithium orotate, more glutamine?, SAMe, glycine
1+2 Balancing GABA & glutamine: 1 Healthfully B6, 2 Perkins: Lithium orotate, Zn, 3 Jockers strange doses!? 4 Levy: vitamin B6, as P-5'-P?
1.1 Healthfully: tyrosine, tryptophan, B6, high complex carb early, low protein late"]
1.2 Zn Cynthia Perkins:: Low (<50mg) carb paleo, high animal protein; (Mg) Zn <40mg, lithium orotate 125-200mg, glycine often excitatory; praps, or not: taurine, vit. B6, SAMe, NAC, theanine"]
Glutamine/dopamine for stiffness/gait?!?: Low Dopamine in Fibromyalgia and CFS
SAMe: 400-800mg in the mornings, as stimulating, not much research"]
NADH/NAD+ B3-coenzyme for energy & post exertional malaise.
Acetyl L-Carnitine (ALC)?: Drink as liquid… Or ask sleep lab psychiatrist to inject it? ALC’s helping Jemima feel alert, dose: 2x750mg, for no sfx keep under 3000. Needs to be Acetyl for the brain she sez. Question about kinds of pain | Page 2 | Fibromyalgia Forum.
D-Ribose: muscle fatigue, ATP; GI-sfx, so keep under 500mg; little evidence.
Zinc again (bloods are in the middle)? Watch out for the sfx!
Magnesium - glycinate yes or no? malate? “60mg” carbonate in the roseroot?
Increase rose root from 1x200mg to 2 or 3 for serotonin etc. as well as blood pressure (normal now)?
Vitamin B12 injections again?
Vitamin B6 as P5P?
Vitamin C ultra-high dose 7,5g, to be put in 250ml NaCl solution & injected - if I can ever find someone to inject it.
C MEDS repeat?: NAC, levodopa, blood fat meds, blood pressure
NAC sleep -2400mg, better or worse (med)
(N-acetylcysteine) as I wrote here (better liposomal) as glutamate antagonist and to help sleep is mentioned on the last link (CFS/ME, with fibromites there too) suggest 1800 or 2400 mg, whilst more causes - again - diarrhea. The last person on that page also says “I elevated my glutamate / GABA levels with excess taurine” and very importantly “Once elevated Glutamate seems to be slow to rebalance” - got to watch that!
levodopa: repeat 50mg (100mg seemed to increase LBU),
Ezetimibe+atorvastatin if blood fats don’t stay down - smaller dose if at all?
Candesartan if blood pressure doesn’t stay down.
D) RELAX: A bit more Yoga Nidra on youtube.
E) MERIDIANS: real Chinese-trained acupuncture? Pardon Our Interruption
F) DOC Fibro-doc 200km from here?
G) REPEAT? Again in specks/diluted: Melatonin, 10% CBD oil, 5-HTP, ashwagandha.
By the way I haven’t being counting putting the supps-capsules together every evening as fibro-work. This can take 10-20’. So I now often bring the box with them in it to the kitchen table, regardless of any visitors. Some things like filling up the 3 GABA-capsules (for bed, for +2h, & upon waking up) is now quite fast. Time consuming is if something falls cos I’m tired, or I forget which capsules are which, so I now always put them in the pill compartments. I can recognize the types of powder or the amounts fairly well, but only if I’m still fairly awake. Having to pulverize the theanine and tryptophan from the tablets I have already is also time consuming. The powder is also not as fine as the others. But I’ve decided to pulverize larger amounts now, at least from the theanine, cos I’ve been successfully using those for quite some time now.
Highlights week 6th to 11th.
Abbreviations & explanations
Entries start with night meds & sleep, before triggers/symptoms & treatments, because the “night before” is vital. So Fri-day starts with Thursday night, the night before Friday.
Pain "7" = crying (/out) point; my 1 is others 2-3, and due to pacing/treatments
My wife says my 7 is other people’s 12. 1 is probably 2-3. Due to pacing, keeping work down to 25% (12h/wk) and all my treatments (acupressure, GABA) and physio self-treatments I manage to keep getting my pains & Ache down quickly. 3 usually means the Ache, not pains; these I address individually, often automatically and on the fly now, e.g. twist-stretching everything or something specific after getting up.
TIME DATA, e.g. ' = mins, h = hours, 18:10:40', date YYYY-MM-DD
’ = mins = minutes, ‘’ = secs = seconds, h is hours as time length, 3h is 3 hours long, 3:00 is 3am, 15:00 is 3pm. 18:10:40’ means 40 minutes, starting at 18:10, = 10 minutes past 6pm up to 10 to 7pm. The date is the logical digital standard: YYYY-MM-DD.
SLEEP: slp, w, lbu/LBU, RLS, p, i
slp = sleep; reasons for getting up: w = (a)wake, lbu/LBU: lower back unrest (‘RLS’?), p: pee, p2: pain 2 of 7 before peeing, i: ideas.
ACTIVITIES: TT, e.g. "5:1"
TT = table tennis, 5:1 = score, usually showing how well I’m feeling: energy, relaxedness & alertness if the first number is much higher than the second.
SUPPS: supplements (as opposed to herbs & meds). Fx: Effects. Sfx: Side effects.
SELF-TREATMENTS (about everything else...)
The self-treatments listed are only things that I’m spotlighting & rewarding myself for at the mo by counting them; much of what I do at night is self-treatment to get back to sleep or alleviate (1-2h/d), certain regular movements at daytime, like twist-stretching (30’), writing this blog is self-treatment (30’-60’/d), and the further fibro-work is an indirect form.
Self treatments are usually preventative or always have the same positive effect (e.g. cold showering improves Ache and sleep) - at least I do them for that - and I use “” to show what I’m doing to alleviate something and mark it off in the details “/” whether it works well enough for a time or doesn’t’, e.g. Ache cold fast shower “”
fw = fibro-work, meaning reading and writing this blog, the reference base, on 4 fibro-forums and researching fibro-stuff on the web.
AuTr = Autogenic Training (usually to actively get - back - to sleep, so counting it as sleep and AuTr…),
FAT Flash/fast autogenic training: immediate image of dreamy floating in space or liquid from jaw to legs.
cold/FCS = Flash Cold Shower (20’’-60’’) , I count it as 10’ tho. At night with ear plugs & all lights off.
breath-hold/WHM-B-H = Wim Hof Method Breath-Holding,
Neck 1 is stretching top right to bottom left, vice versa & sky/ground, neck “1+” is stretching far further diagonally downwards, neck 2 is pressing my head against my hand “without moving”, left right and front.
loins = loins/groin = stretching the ligaments there.
ex = exercises
HWB = Hot water bottle,
RR = bp = blood pressure (Riva Rocci), plus pulse. Used to be normal, plus sometimes white coat syndrome, went up since fibro, seems to have gone down again enough so I’ve not only stopped lercanidipine, but also candesartan and am checking RR regularly.
“V” for loins = lie on back, legs up and let legs fall to sides;
twist-stretching more for the loins
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