JayCS’s Fibro Blog

2021-09-05, Sunday - I joined 1y ago: who’d’ve guessed I’d land like this…

Triggers & resulting Symptoms

SLEEP: 9h25-50'=8h35, up 4x (50') ↔️ Feeling 90% well, Ache 1 of 7 ✅

22:25: 3x289 passiflora, selene, rosewort/magnesium carbonate/B1 at meal
22:30: :arrow_upper_right:?500mg GABA (slightly more than usual, slightly less later)
1:05: !500mg GABA & !500mg L-glutamine & !"250"mg theanine & 289mg passiflora
FCS#1 22:45-
1:03 3’ 90%/1 p0 st1 drink fw1’ +!500 GABA + !500 glutamine + !250 theanine +289 passiflora
2:45 5’ 90%/1 p0 st1 drink fw1’ teeth, clothes on. Dry mouth gel.
4:41 3’ 90%/1 p0 st1 drink fw1’ pain pangs 10cm downwards from left elbow, every few minutes. Oils didn’t help. Trigger pointing with Traumeel did. Strange spot.
5:48 39’ 6 6:27
-8:10 +1h43. 400mg magnesium glycinate 9:30 & "300"mg theanine 11:00
Sum: 1h15+5h48-(3+5+3=)’= 7h03-11’= 6h52, up 3x (11’), plus 1h43 = 8h35;
OR 1h15+8h10-(3+5+3+39=)50’=9h25-50’=8h35, up 4x (50’)

ACTIVITIES➔ACHE: Feel quite alert after getting up, altho a bit tired in my eyes ➔ 90%/1, (magnesium glycinate), still tired eyes at 11:00, so theanine: helped eye tiredness inside of 15', still stiff, but hadn't done exercises yet, good after too, 1.5h music production standing ➔ 90%/1, cycling & talking (but exercising)➔ 90%/1, rest, going out a bit, eating, talking ➔ 90%/1

Ache = also Exhaustion/Tired :white_check_mark: :x: :face_with_monocle: ➔ ?90%/1
Cycle➔ exhaustion, also as action➔pains;
TT = Table-Tennis➔ easy or effortless or strained or tough?
talk/meetings here (and actions➔pains?)
Grandchild➔
Work/Mask-talking➔
Socializing/Talking➔

ACTIONS➔ PAINS: Lying ✅ (except sudden arm pain), standing during music production, not perfect, but quite OK ✅, Loins: still not good ❌ sitting OK ✅, stiffness after poses: not particularly good ❌, cycling ✅, bladder ✅, GI ✅ (not like yesterday which I still think might've been the serrapeptase), talking twice, lengthy ✅

:white_check_mark: :x: :face_with_monocle:
Lie ➔ LBU = lower back unrest, hunchback, Neck, thighs, elbows, itch, cold/hot, nose stuffy
Stand ➔ Legs, back
Knees up ➔ right loin
Sit ➔ Backside, lower back
Pose ➔ stiffness (Stiffness after holding a posture): Time 0-60’’, pain amount if faster.
Walk ➔ Elbows, feet, right knee
Cycle ➔ Feet, knees, backside, elbows, hands, neck
Drink ➔ Pee frequency, pain before peeing (p0-6).
Eat ➔ Esophagus block, stomach, gut, rectum, stool (IBSD?). GI for short
Talk➔Jaw (& Ache)
Mask-talk ➔ not sure how to describe it, just plain yucky.

Treatments - still no Ache…: yesterday’s serrapeptase? (but stiff)

SELF-PHYSIO: 78' ✅, fibro-work (fw) ?2h30

:white_check_mark: Timing, AuTr 5’, hunchback-pillow 15’, cold shower (10’), palpate 1’, belly 3’, back 7’, neck 1+ 4’, neck 2 2’, yoga 9’, workout 7’, twist-stretch 10’, loins 5’, .
:x: gums 2x30’’, thumbnails 10x30’’, V ‘, marionette-hang 1’, breath-hold 11’, shaking dance 1’, RR x2’, HWB 3’

fw: Night: 5 + 30’ 2h (theanine)

THERAPIES: Hmm, still can't see anything good about the acupressure, my neck is stiff

Acupressure / Therapy, Doc/Diagnoses ? :white_check_mark: :x: :face_with_monocle: Acupressure 2h Tues & 2h Fri:

SUPPS: Something wasn't right to make it quite thru the night, as I was pretty awake after 7h, but not enough. Praps not enough GABA, too much glutamine, too much theanine too early? I was actually thinking of adding some more GABA in the night, but that'd keep me up, so I have to prepare that. ❌, Decided to try magnesium glycinate 2x again 9:30, altho it didn't help yesterday, & is also used for insomnia - or the mg might be neutralizing the glycine in the daytime, altho for me not at night; more? it still hasn't helped at 11:00 (despite it's fast bioavailability 30-60' and taking it on a very empty stomach), so am switching to theanine now, "300mg" (maybe 100mg really). I seem to feel at difference at 11:00 already. 🧐; GI stomach slightly acidic, but stool good ✅ Stiffness tells me to increase GABA

(?:arrow_upper_right: :arrow_lower_right:)
22:25: 3x289 passiflora, selene, rosewort/magnesium carbonate/B1 at meal
22:30: :arrow_upper_right:?500mg GABA
1:05: !500mg GABA & !500mg L-glutamine & !"250"mg theanine & 289mg passiflora

Highlights week 22nd to 28th.

Abbreviations & explanations

Entries start with night meds & sleep, before triggers/symptoms & treatments, because the “night before” is vital. So Fri-day starts with Thursday night, the night before Friday.

Pain "7" = crying (/out) point; my 1 is others 2-3, and due to pacing/treatments

My wife says my 7 is other people’s 12. 1 is probably 2-3. Due to pacing, keeping work down to 25% (12h/wk) and all my treatments (acupressure, GABA) and physio self-treatments I manage to keep getting my pains & Ache down quickly. 3 usually means the Ache, not pains; these I address individually, often automatically and on the fly now, e.g. twist-stretching everything or something specific after getting up.

TIME DATA, e.g. ' = mins, h = hours, 18:10:40', date YYYY-MM-DD

’ = mins = minutes, ‘’ = secs = seconds, h is hours as time length, 3h is 3 hours long, 3:00 is 3am, 15:00 is 3pm. 18:10:40’ means 40 minutes, starting at 18:10, = 10 minutes past 6pm up to 10 to 7pm. The date is the logical digital standard: YYYY-MM-DD.

SLEEP: slp, w, lbu/LBU, RLS, p, i

slp = sleep; reasons for getting up: w = (a)wake, lbu/LBU: lower back unrest (‘RLS’?), p: pee, p2: pain 2 of 7 before peeing, i: ideas.

ACTIVITIES: TT, e.g. "5:1"

TT = table tennis, 5:1 = score, usually showing how well I’m feeling: energy, relaxedness & alertness if the first number is much higher than the second.

SUPPS: supplements (as opposed to herbs & meds). Fx: Effects. Sfx: Side effects.

SELF-TREATMENTS (about everything else...)

The self-treatments listed are only things that I’m spotlighting & rewarding myself for at the mo by counting them; much of what I do at night is self-treatment to get back to sleep or alleviate (1-2h/d), certain regular movements at daytime, like twist-stretching (30’), writing this blog is self-treatment (30’-60’/d), and the further fibro-work is an indirect form.
Self treatments are usually preventative or always have the same positive effect (e.g. cold showering improves Ache and sleep) - at least I do them for that - and I use “:arrow_forward:” to show what I’m doing to alleviate something and mark it off in the details “:white_check_mark:/:x:” whether it works well enough for a time or doesn’t’, e.g. Ache :arrow_forward: cold fast shower “:white_check_mark:
fw = fibro-work, meaning reading and writing this blog, the reference base, on 4 fibro-forums and researching fibro-stuff on the web.
AuTr = Autogenic Training (usually to actively get - back - to sleep, so counting it as sleep and AuTr…),
FAT Flash/fast autogenic training: immediate image of dreamy floating in space or liquid from jaw to legs.
cold/FCS = Flash Cold Shower (20’’-60’’) , I count it as 10’ tho. At night with ear plugs & all lights off.
breath-hold/WHM-B-H = Wim Hof Method Breath-Holding,
Neck 1 is stretching top right to bottom left, vice versa & sky/ground, neck “1+” is stretching far further diagonally downwards, neck 2 is pressing my head against my hand “without moving”, left right and front.
loins = loins/groin = stretching the ligaments there.
ex = exercises
HWB = Hot water bottle,
RR = bp = blood pressure (Riva Rocci), plus pulse. Used to be normal, plus sometimes white coat syndrome, went up since fibro, seems to have gone down again enough so I’ve not only stopped lercanidipine, but also candesartan and am checking RR regularly.
:new: “V” for loins = lie on back, legs up and let legs fall to sides;
:new: twist-stretching more for the loins
:white_check_mark: :x: :face_with_monocle: ➔ ⇄ ⇨➜ ➞ :arrow_right: ➲ ↔:⇰↔ →:arrow_upper_right: :arrow_lower_right:

↯ ↛ ↺ ↮ ⇝ ⇾ ⟹ ⭆ ⤮:

:japanese_ogre:
:japanese_goblin:
:ghost:
:angry:
:rage:
I was just editing the new entry and an old entry at the same time, like I regularly do, and suddenly I cdnt stop the page from reloading (I was given a choice, but probably moving the laptop on my lap made it choose ‘reload’) which automatically discarded the new entry. Going to ‘drafts’ doesn’t help, as I’d discarded the main post to be able to edit in the other tab.

This means I’ve lost about an hour’s work today (I was just finishing the week’s highlights after updating sleep, supps and some actions), all my Up-Next ideas and tomorrow’s template
OK: keep calm.
:person_in_lotus_position:
It’s never as bad as we think, cos if we do it straight away, memory serves us fairly well.

For tomorrow’s template I’ll use yesterday’s again.
For today’s entry I’ll be able to reconstruct it the important things roughly.
The week’s highlights I can do quickly again from last week’s and memory.
Adding the links of the blog summary and references I can do some time later.
“Up next” will be the most important, but searching thru for a backup I’ve found one a week ago 2021-08-28, so shd be able to reconstruct the rest fairly quickly from memory…

Yes, I know, why don’t I edit the main post outside of the browser? Because it “always” works now… :sunglasses: :wink:
:roll_eyes:
OK, here goes…

Highlights this week - Aug 29th to 5th - serrapeptase: even more supp success.

Symbol & emoji of the week:
:mage:

  1. Supps: Improved sleep reliably, daytime improving suddenly :white_check_mark:
  2. Taurine :arrow_upper_right:500: no help (feverish-tired?), :arrow_upper_right:1g: jittery, = 2x500mg: 3 seizures. :stop_sign:
  3. GABA :arrow_upper_right:600mg b4 bed, 600 2h later, +300 at 9:00 to try to improve stiffness & bladder. :face_with_monocle:
  4. Theanine 200mg 2h after bedtime, 300 at 8:00, :arrow_upper_right:300 on demand to improve alertness. :face_with_monocle:
  5. Passiflora :arrow_upper_right:3x289 1-2h b4 bed, not less! +1 after 2h. :white_check_mark:
  6. Magnesium glycinate harmed nights, didn’t improve days. :arrow_lower_right: :stop_sign:
  7. Magnesium malate: :arrow_lower_right: 0 seemed not to make a difference. :stop_sign: :face_with_monocle:
  8. Serrapeptase 1x miracled away my Ache, even unnec the next day. :heavy_heart_exclamation: On demand? :face_with_monocle:
  9. Overdosing, with all the sfx, is part of the game… :upside_down_face:
  10. Acupressure: Difficult getting neck improved. :roll_eyes:
  11. Activities good (work, TT, grandchild) :smiley_cat:, except 5 mi walk & returning home, talking hardest.:face_with_monocle:
  12. Actions: Loins & stiffness :face_with_monocle:. Sitting: turning lower half regularly: still good! :white_check_mark:
  13. Symptoms: Supps may continue reliably improving Ache, exhaustion & tiredness. :smiley:
  14. Stiffness: Still more focus on tracking nec. :face_with_monocle:
  15. Forehead pain: Better from bandana/loop scarf there :white_check_mark:: next times. :face_with_monocle:
  16. Bladder pain: still between 0 and 2/3: track it diligently now :face_with_monocle:
  17. Sleep:: Much better due to 3+1 passiflora, sleep breaks avg. 28’, decreasing/influenceable. :smile_cat:
  18. Ear plugs: hardly nec. any more (only neighbours’ TVs now; better) :shushing_face:
  19. Researching supps etc. (& re-arranging here) has again been more important :mega: than…
  20. symptom tracking bundling post here, & that & amino acids on ff.org. :male_detective:

2021-09-06, Monday (v2 20:10) - theanine at daytime, plus serrapeptase “on demand”, so testing out doing a lot of serious pretty full power activities without much breaks… Still wasn’t necessary… Did the serrapeptase on Saturday catalyze some process?

(bit of guesswork due to “discarding” the entry by mistake… )

Triggers & resulting Symptoms

SLEEP: 8h27-17'=8h10, up 4x (17') + 17' doze ↔️ Feeling 90% well, Ache 1 of 7 ✅

21:00? 3x289 passiflora, selene, rosewort/magnesium carbonate/B1 at meal
22:30? :arrow_upper_right:600mg GABA
1:05? 600mg GABA & ?400mg L-glutamine & 289mg passiflora
3:00? ?"300"mg theanine
FCS ?22:30-
…-8:10 300mg theanine at 8:00 and 200? at 9:00…
Sum: not quite sure, see above.

ACTIVITIES➔ACHE: ➔ 90%/1, even after trashing this blog entry, fairly stressful work, after TT, and no end, not even nec. to take serrapeptase, but I'm taking it around with me. Praps that's enough ;-). Even talking 1h & grandchild 2h was no problem, but I was a bit dull in the head, and stiff moving, except on my bike: extremely fast: still no exhaustion, no Ache. Attempting to need serrapeptase didn't work... 🧐

Ache = also Exhaustion/Tired :white_check_mark: :x: :face_with_monocle: ➔ ?90%/1
Cycle➔ exhaustion, also as action➔pains;
TT = Table-Tennis➔ easy or effortless or strained or tough?
talk/meetings here (and actions➔pains?)
Grandchild➔
Work/Mask-talking➔
Socializing/Talking➔

ACTIONS➔ PAINS: Lying OK, despite stiff neck at daytime ✅, standing OK ✅, loins: still not good ❌ sitting OK ✅, stiffness after poses: still not better ❌, fast cycling ✅, pee pain ❌/✅, at 20:00 p0-1 (after GABA at 16:00), GI: 11:00 heartburn from 200mg theanine without capsule.🧐 ✅, talking 2-3h ✅, even mask-talking 1h ✅, lots of deep breathing afterwards.

:white_check_mark: :x: :face_with_monocle:
Lie ➔ LBU = lower back unrest, hunchback, Neck, thighs, elbows, itch, cold/hot, nose stuffy
Stand ➔ Legs, back
Knees up ➔ right loin
Sit ➔ Backside, lower back
Pose ➔ stiffness (Stiffness after holding a posture): Time 0-60’’, pain amount if faster.
Walk ➔ Elbows, feet, right knee
Cycle ➔ Feet, knees, backside, elbows, hands, neck
Drink ➔ Pee frequency, pain before peeing (p0-6).
Eat ➔ Esophagus block, stomach, gut, rectum, stool (IBSD?). GI for short
Talk➔Jaw (& Ache)
Mask-talk ➔ not sure how to describe it, just plain yucky.

Treatments - still no Ache…: still Saturday’s serrapeptase? (but stiff)

SELF-PHYSIO: 2h15 ✅, fibro-work (fw) ?2h30

:white_check_mark: Timing, AuTr 5’, hunchback-pillow 10’, cold shower (10’), palpate 1’, belly 3’, back 7’, neck 1+ 4’, twist-stretch 1h30 while sitting yesterday evening, loins 5’, yoga 5’ (y. eve.),
:x: gums 2x30’’, thumbnails 10x30’’, V ‘, marionette-hang 1’, breath-hold 11’, shaking dance 1’, RR x2’, HWB 3’, workout 7’, neck 2

fw: Night: 5’ + 2h25

THERAPIES:

Acupressure / Therapy, Doc/Diagnoses ? :white_check_mark: :x: :face_with_monocle: Acupressure 2h Tues & 2h Fri:

SUPPS: Guesswork: More theanine at daytime (8:00 and 9:00? - without capsule), relaxed & alert, esp. at TT, like promised, but then slight seizure-aura during TT... GABA 400mg at 16:00 to get the aura down, but also praps stiffness, So theanine always together with GABA, like GABA with glutamine at night.

(?:arrow_upper_right: :arrow_lower_right:)
See above

UP NEXT: 1) SLEEP: 1) Keeping 4 passiflora, theanine later, 2) specks of tryptophan: 3) specks of melatonin? 4) 2nd levodopa-fraction trial? 5) NAC? WAKING UP: 1) Theanine only !with !GABA, to keep seizures down, also improve stiffness & bladder. 2) SAMe 3) Ribose? 4) NADH/NAD+? 5) ALC (or injected?) 6) glycine? PAIN: serrapeptase. A) HERBS B) SUPPS C) MEDS Info:

:arrow_upper_right: :arrow_lower_right:

A HERBS: Almonds for heartburn, Schüssler

For heartburn: Almonds first. (Bentonite, medicinal clay, mumijo?)
Schüssler 2, 4, & 7 (3-6 months sez my acupressurist).

B SUPPS: Amino acids, Enzyme, Minerals, Vitamins
Amino acids: 1) Balancing GABA with 2) glutamine, 3) theanine, 4) taurine, 5) SAMe 6) tryptophan, 7 glycine
1+2 Balancing GABA & glutamine: 1 Healthfully B6, 2 Perkins: Lithiumorotate, Zn, 3 Jockers strange doses!? 4 Levy: vitamin B6, as P-5'-P?

1.1 Healthfully: tyrosine, tryptophan, B6, high complex carb early, low protein late"]
1.2 Zn Cynthia Perkins:: Low carb (<50mg) paleo, high animal protein; (Mg) Zn <40mg, lithium orotate 125-200mg, glycine often excitatory; praps, or not: taurine, vit. B6, SAMe, NAC, theanine"]

3 Theanine

Work out how much of the pulverized tablet is filling agent?
Not too high single doses: 300 on Aug 4th seemed better. alertness, energy, relaxation without drowsiness, 100-600mg, no sfx known!, however it increases dopamine, not sure what it does to serotonin), like glutamine, levodopa, as well as taurine, tyrosine, SAMe and Mucuna pruriens! So watch out for seizures.

5 SAMe: 400-800mg in the mornings, as stimulating, not much research

SAM-e for Fibromyalgia and Chronic Fatigue Syndrome

6 Tryptophan: repeat in VERY low dose? (GI; dead tired; encapsulating like theanine),

7 Glycine

Seems to excite me, as leaving off magnesium glycinate improved sleep.

Serrapeptase: https://www.livingwithfibro.org/t/serrapeptase/13678/3:
Proteolytic enzyme without any evidence (wp), produced by silkworm bacterium. 10-60mg. enteric coated 30’ before or 2h after eating. fx: inflammation, pain. sfx: skin, pain, incl. stomach! Serrapeptase: Benefits, Dosage, Dangers, and Side Effects, Serrapeptase Benefits, How to Use and Side Effects - Dr. Axe Take as little as possible, and if possible enteric coated?? So what do I do now??
NADH coenzyme NADH for Fibromyalgia Pain Relief - Fibromyalgia Resources for energy & post exertional malaise, not sleep.
Acetyl L-Carnitine (ALC)? (Got some liquid! Or ask sleep lab psychiatrist? Ultra-high dose Vitamin C too, 7,5g, to be put in 250ml NaCl solution. Helping Jemima feel alert, dose: 2x750mg, for no sfx keep under 3000. Needs to be Acetyl for the brain. Question about kinds of pain | Page 2 | Fibromyalgia Forum)
D-Ribose (muscle fatigue, ATP; GI-sfx, so keep under 500mg; little evidence):
Selene - keeping for thyroid.
Zinc again as the bloods are in the middle. No, sfx.

Magnesium - glycinate yes or no? malate? "60mg" carbonate in the roseroot?

Medications - Other Options - #8 by JayCS

Vitamin B12 too.

C MEDS repeat?: NAC, levodopa, blood fat meds, blood pressure
NAC sleep -2400mg, better or worse (med)

(N-acetylcysteine) as I wrote here (better liposomal) as glutamate antagonist and to help sleep is mentioned on the last link (CFS/ME, with fibromites there too) suggest 1800 or 2400 mg, whilst more causes - again - diarrhea. The last person on that page also says “I elevated my glutamate / GABA levels with excess taurine” and very importantly “Once elevated Glutamate seems to be slow to rebalance” - got to watch that!
levodopa: repeat 50mg (100mg seemed to increase LBU),
Ezetimibe+atorvastatin if blood fats don’t stay down - smaller dose if at all?
Candesartan if blood pressure doesn’t stay down.

D) RELAX: A bit more Yoga Nidra on youtube.
E) MERIDIANS: real Chinese-trained acupuncture? Pardon Our Interruption
F) DOC Fibro-doc 200km from here?
G) DONE Again in specks/diluted: Melatonin, 10% CBD oil, 5-HTP, ashwagandha.

Reasons to be cheerful #72 Playing TT I got the ball out of a bush and said: “Got it”. But then couldn’t move back out for a while, we laughed our heads off :rofl:
Reasons to be cheerful #73 Playing, my grandchild saw I cdnt get up off from the kids’ trampoline well, so shouted “Boys, come here, my granddad can’t get up, come and help.” - and they came and helped. Laughter again. I thought: Great test for a worst case. I cd of course have slowly turned over on my hands and knees and pressed myself up, but Idve needed more than a minute…

Highlights week 22nd to 28th.

Abbreviations & explanations

Entries start with night meds & sleep, before triggers/symptoms & treatments, because the “night before” is vital. So Fri-day starts with Thursday night, the night before Friday.

Pain "7" = crying (/out) point; my 1 is others 2-3, and due to pacing/treatments

My wife says my 7 is other people’s 12. 1 is probably 2-3. Due to pacing, keeping work down to 25% (12h/wk) and all my treatments (acupressure, GABA) and physio self-treatments I manage to keep getting my pains & Ache down quickly. 3 usually means the Ache, not pains; these I address individually, often automatically and on the fly now, e.g. twist-stretching everything or something specific after getting up.

TIME DATA, e.g. ' = mins, h = hours, 18:10:40', date YYYY-MM-DD

’ = mins = minutes, ‘’ = secs = seconds, h is hours as time length, 3h is 3 hours long, 3:00 is 3am, 15:00 is 3pm. 18:10:40’ means 40 minutes, starting at 18:10, = 10 minutes past 6pm up to 10 to 7pm. The date is the logical digital standard: YYYY-MM-DD.

SLEEP: slp, w, lbu/LBU, RLS, p, i

slp = sleep; reasons for getting up: w = (a)wake, lbu/LBU: lower back unrest (‘RLS’?), p: pee, p2: pain 2 of 7 before peeing, i: ideas.

ACTIVITIES: TT, e.g. "5:1"

TT = table tennis, 5:1 = score, usually showing how well I’m feeling: energy, relaxedness & alertness if the first number is much higher than the second.

SUPPS: supplements (as opposed to herbs & meds). Fx: Effects. Sfx: Side effects.

SELF-TREATMENTS (about everything else...)

The self-treatments listed are only things that I’m spotlighting & rewarding myself for at the mo by counting them; much of what I do at night is self-treatment to get back to sleep or alleviate (1-2h/d), certain regular movements at daytime, like twist-stretching (30’), writing this blog is self-treatment (30’-60’/d), and the further fibro-work is an indirect form.
Self treatments are usually preventative or always have the same positive effect (e.g. cold showering improves Ache and sleep) - at least I do them for that - and I use “:arrow_forward:” to show what I’m doing to alleviate something and mark it off in the details “:white_check_mark:/:x:” whether it works well enough for a time or doesn’t’, e.g. Ache :arrow_forward: cold fast shower “:white_check_mark:
fw = fibro-work, meaning reading and writing this blog, the reference base, on 4 fibro-forums and researching fibro-stuff on the web.
AuTr = Autogenic Training (usually to actively get - back - to sleep, so counting it as sleep and AuTr…),
FAT Flash/fast autogenic training: immediate image of dreamy floating in space or liquid from jaw to legs.
cold/FCS = Flash Cold Shower (20’’-60’’) , I count it as 10’ tho. At night with ear plugs & all lights off.
breath-hold/WHM-B-H = Wim Hof Method Breath-Holding,
Neck 1 is stretching top right to bottom left, vice versa & sky/ground, neck “1+” is stretching far further diagonally downwards, neck 2 is pressing my head against my hand “without moving”, left right and front.
loins = loins/groin = stretching the ligaments there.
ex = exercises
HWB = Hot water bottle,
RR = bp = blood pressure (Riva Rocci), plus pulse. Used to be normal, plus sometimes white coat syndrome, went up since fibro, seems to have gone down again enough so I’ve not only stopped lercanidipine, but also candesartan and am checking RR regularly.
:new: “V” for loins = lie on back, legs up and let legs fall to sides;
:new: twist-stretching more for the loins
:white_check_mark: :x: :face_with_monocle: ➔ ⇄ ⇨➜ ➞ :arrow_right: ➲ ↔:⇰↔ →:arrow_upper_right: :arrow_lower_right:

↯ ↛ ↺ ↮ ⇝ ⇾ ⟹ ⭆ ⤮:

2021-09-07, Tuesday - theanine+GABA :white_check_mark:, 2nd time serrapeptase :white_check_mark:

Triggers & resulting Symptoms

SLEEP: 8h24, up 4x (16') ➔ Feeling 90% well, Ache 1 of 7 ✅, trying not to get up is counter-productive, keeps me awake until I do - maybe I need to move...

21:20 3x289 passiflora, selene, rosewort/magnesium carbonate/B1 at meal
22:15 600mg GABA
0:45: 600mg GABA & 400mg L-glutamine & 1x289mg passiflora
4:05 "300"mg theanine
FCS ?23:10-
0:47 7’ 90%/1 p0 st1 drink fw1’ + 600mg GABA & 400mg L-glutamine & 1x289mg passiflora
2:50 3’ 90%/1 p0 st1 drink fw1’ tea tree oil on foot1’
4:08 3’ 90%/1 p0 st1 drink fw1’ "300"mg theanine
6:05 3’ 90%/1 p0 st1 drink fw1’ Trying to not get up makes me more awake & my body unrestful.
-7:50
?300mg theanine at ?8:00 and 200? at 9:00…
Sum: 50+7h50-(7+3+3+3=)16’=8h24, up 4x (16’)
Learn to stop getting up?

ACTIVITIES➔ACHE: TT pretty easy, but purposely overdid it, 10 games, 70' non-stop (7:3) continuing despite an Ache of 5 ➔ 70%/5, then 17:30 1 serrapeptase, pain down, just tiredness, and normal muscle soreness due to fast cycling & hard & long table tennis playing. ➔ 90%/1

Ache = also Exhaustion/Tired :white_check_mark: :x: :face_with_monocle: ➔ ?90%/1
Cycle➔ exhaustion, also as action➔pains;
TT = Table-Tennis➔ easy or effortless or strained or tough?
talk/meetings here (and actions➔pains?)
Grandchild➔
Work/Mask-talking➔
Socializing/Talking➔

ACTIONS➔ PAINS: Lying good ✅, standing bit difficult while making music, but better ✅, loins quite OK ✅, arms up during hair-drying: harder today ❌, better after acupressure ✅, sitting OK ✅, stiffness after poses ❌/🧐, cycling not quite as fast as yesterday ✅, bladder better from more GABA at daytime, down to sort of 0-1 ✅/🧐, GI OK, but slight gut pressure after serrapeptase ✅, talking ✅

:white_check_mark:/:x:/:face_with_monocle:
Lie ➔ LBU = lower back unrest, hunchback, Neck, thighs, elbows, itch, cold/hot, nose stuffy
Stand ➔ Legs, back
Knees up ➔ right loin
Arms up ➔ pain
Sit ➔ Backside, lower back
Pose ➔ stiffness (Stiffness after holding a posture): Time 0-60’’, pain amount if faster.
Walk ➔ Elbows, feet, right knee
Cycle ➔ Feet, knees, backside, elbows, hands, neck
Drink ➔ Pee frequency, pain before peeing (p0-6).
Eat ➔ Esophagus block, stomach, gut, rectum, stool (IBSD?). GI for short
Talk➔Jaw (& Ache)
Mask-talk ➔ not sure how to describe it, just plain yucky.

Treatments

SELF-PHYSIO: 53', fibro-work (fw) 55'

:white_check_mark: Timing, AuTr 5’, hunchback-pillow 10’, cold shower (10’), palpate 1’, belly 3’, back 7’, neck 1+ 4’, neck 2 2’, twist-stretch 5’, yoga 3’, loins 3’.
:x: gums 2x30’’, thumbnails 10x30’’, V ‘, marionette-hang 1’, breath-hold 11’, shaking dance 1’, RR x2’, HWB 3’, workout 7’

fw: Night: 5 + 10’ +30’ +10’

THERAPIES: Neck slightly better for the first time today, but acupressurist did something pretty different, not doing ear acupressure at all, rather using the vibrator all over back and front, deep & thorough, but the neck needed a lot of refinishing until it was at 90° again.

Acupressure / Therapy, Doc/Diagnoses ? :white_check_mark: :x: :face_with_monocle: Acupressure 2h Tues & 2h Fri - this week Friday:

SUPPS: Adding theanine with GABA is together proving its worth, as hoped: theanine relaxes & makes alert at the same time, whilst GABA prevented auras and pee pain, however not stiffness. Serrapeptase worked without sfx/nocebo, directly after overdoing TT deliberately, was a bit stiff, tired with normal exhaustion, but no fibro-Ache any more.

(?:arrow_upper_right: :arrow_lower_right:)
21:20 3x289 passiflora, selene, rosewort/magnesium carbonate/B1 at meal
22:15 600mg GABA
0:45: 600mg GABA & 400mg L-glutamine & 1x289mg passiflora
4:05 "300"mg theanine
8:55 "200"mg theanine + 300 GABA (arm & standing pain)

Highlights week 29th to 5th.

Abbreviations & explanations

Entries start with night meds & sleep, before triggers/symptoms & treatments, because the “night before” is vital. So Fri-day starts with Thursday night, the night before Friday.

Pain "7" = crying (/out) point; my 1 is others 2-3, and due to pacing/treatments

My wife says my 7 is other people’s 12. 1 is probably 2-3. Due to pacing, keeping work down to 25% (12h/wk) and all my treatments (acupressure, GABA) and physio self-treatments I manage to keep getting my pains & Ache down quickly. 3 usually means the Ache, not pains; these I address individually, often automatically and on the fly now, e.g. twist-stretching everything or something specific after getting up.

TIME DATA, e.g. ' = mins, h = hours, 18:10:40', date YYYY-MM-DD

’ = mins = minutes, ‘’ = secs = seconds, h is hours as time length, 3h is 3 hours long, 3:00 is 3am, 15:00 is 3pm. 18:10:40’ means 40 minutes, starting at 18:10, = 10 minutes past 6pm up to 10 to 7pm. The date is the logical digital standard: YYYY-MM-DD.

SLEEP: slp, w, lbu/LBU, RLS, p, i

slp = sleep; reasons for getting up: w = (a)wake, lbu/LBU: lower back unrest (‘RLS’?), p: pee, p2: pain 2 of 7 before peeing, i: ideas.

ACTIVITIES: TT, e.g. "5:1"

TT = table tennis, 5:1 = score, usually showing how well I’m feeling: energy, relaxedness & alertness if the first number is much higher than the second.

SUPPS: supplements (as opposed to herbs & meds). Fx: Effects. Sfx: Side effects.

SELF-TREATMENTS (about everything else...)

The self-treatments listed are only things that I’m spotlighting & rewarding myself for at the mo by counting them; much of what I do at night is self-treatment to get back to sleep or alleviate (1-2h/d), certain regular movements at daytime, like twist-stretching (30’), writing this blog is self-treatment (30’-60’/d), and the further fibro-work is an indirect form.
Self treatments are usually preventative or always have the same positive effect (e.g. cold showering improves Ache and sleep) - at least I do them for that - and I use “:arrow_forward:” to show what I’m doing to alleviate something and mark it off in the details “:white_check_mark:/:x:” whether it works well enough for a time or doesn’t’, e.g. Ache :arrow_forward: cold fast shower “:white_check_mark:
fw = fibro-work, meaning reading and writing this blog, the reference base, on 4 fibro-forums and researching fibro-stuff on the web.
AuTr = Autogenic Training (usually to actively get - back - to sleep, so counting it as sleep and AuTr…),
FAT Flash/fast autogenic training: immediate image of dreamy floating in space or liquid from jaw to legs.
cold/FCS = Flash Cold Shower (20’’-60’’) , I count it as 10’ tho. At night with ear plugs & all lights off.
breath-hold/WHM-B-H = Wim Hof Method Breath-Holding,
Neck 1 is stretching top right to bottom left, vice versa & sky/ground, neck “1+” is stretching far further diagonally downwards, neck 2 is pressing my head against my hand “without moving”, left right and front.
loins = loins/groin = stretching the ligaments there.
ex = exercises
HWB = Hot water bottle,
RR = bp = blood pressure (Riva Rocci), plus pulse. Used to be normal, plus sometimes white coat syndrome, went up since fibro, seems to have gone down again enough so I’ve not only stopped lercanidipine, but also candesartan and am checking RR regularly.
:new: “V” for loins = lie on back, legs up and let legs fall to sides;
:new: twist-stretching more for the loins
:white_check_mark: :x: :face_with_monocle: ➔ ⇄ ⇨➜ ➞ :arrow_right: ➲ ↔:⇰↔ →:arrow_upper_right: :arrow_lower_right:

↯ ↛ ↺ ↮ ⇝ ⇾ ⟹ ⭆ ⤮:

2021-09-08, Wednesday - this is a nicer new normal than before. But still not normal…

Triggers & resulting Symptoms

SLEEP: 7h48, up 3x (17'), + doze 12' = 8h ➔ Feeling 90% well, Ache 1 of 7 ✅

3 passiflora, FCS 23:15-
2:04 5’ 90%/1 p1-2! st1 drink fw2’ + 600mg GABA & 400mg L-glutamine & 1x289mg passiflora
3:30 4’ 90%/1 p0-1 st1 drink fw2’ + "300"mg theanine
4:54 6’ 90%/1 p0-1 st1 drink fw4’
-7:19 4’ 90%/1 p0 st1 drink fw1’ (dose -7:35 12’)
Sum: 45’+7h20-(5+4+6=)17’=8h05-17’=7h48, up 3x (17’), + doze 12’ = 8h

ACTIVITIES➔ACHE: talking (outside) 30' & mask-talking 45' to single persons at work ✅ ➔ 85%/1, talking again, housework, all good (no TT) ✅ ➔ 85%/1

Ache = also Exhaustion/Tired :white_check_mark: :x: :face_with_monocle: ➔ ?90%/1
Cycle➔ exhaustion, also as action➔pains;
TT = Table-Tennis➔ easy or effortless or strained or tough?
talk/meetings here (and actions➔pains?)
Grandchild➔
Work/Mask-talking➔
Socializing/Talking➔

ACTIONS➔ PAINS: Lying ✅, standing - uncomfy first thing ❌/🧐 trying again at work ✅, loins ✅, sitting, regularly alternating ✅, arms up ✅, stiffness after poses ✅! (altho I haven't starting trying glutamine yet - is that the additional GABA after all?), fast cycling OK-ish ✅/❌, bladder ✅ most of the time (2:04 p1-2 was an exception), GI ✅, talking ✅, mask-talking ✅/🧐

:white_check_mark: :x: :face_with_monocle:
Lie ➔ LBU = lower back unrest, hunchback, Neck, thighs, elbows, itch, cold/hot, nose stuffy
Stand ➔ Legs, back
Knees up ➔ right loin
Arms up ➔ pain
Sit ➔ Backside, lower back
Pose ➔ stiffness (Stiffness after holding a posture): Time 0-60’’, pain amount if faster.
Walk ➔ Elbows, feet, right knee
Cycle ➔ Feet, knees, backside, elbows, hands, neck
Drink ➔ Pee frequency, pain before peeing (p0-6).
Eat ➔ Esophagus block, stomach, gut, rectum, stool (IBSD?). GI for short
Talk➔Jaw (& Ache)
Mask-talk ➔ not sure how to describe it, just plain yucky.

Treatments

SELF-PHYSIO: 46' ✅, fibro-work (fw) 2h35

:white_check_mark: Timing, AuTr 5’, hunchback-pillow 10’, cold shower (10’), palpate 1’, belly 3’, back 7’, neck 1+ 2’, loins 2’, twist-stretch 6’,
:x: neck 2 5’, gums 2x30’’, thumbnails 10x30’’, V ‘, marionette-hang 1’, mirror 2’, shaking dance 1’, breath-hold 11’, RR x2’, HWB 3’, yoga, workout 7’

fw: Night: 5 + 7:45-8:30-9:15 1h30 + 30’ + ?30’

THERAPIES: Neck stiff again this morning... (45°, both directions!) 🧐. Loins good tho. General stiffness also better, whether from supps, acupressure or both. No problems at all with stairs.

Acupressure / Therapy, Doc/Diagnoses ? :white_check_mark: :x: :face_with_monocle: Acupressure 2h Tues & 2h Fri:

SUPPS: Ache again remains extinguished by serrapeptase #2. A bit tired/brain foggy in my head after 8h sleep, so interesting wd be slightly more alertness, less fogginess.

(?:arrow_upper_right: :arrow_lower_right:)
21:00 3x289 passiflora, selene, rosewort/magnesium carbonate/B1 at meal
23:15 450mg GABA
2:04 600mg GABA & 400mg L-glutamine & 1x289mg passiflora
3:30 "300"mg theanine
“300mg” theanine with 500 GABA at 7:45
no added 200 theanine later…

KEEP UP: PAIN (ACHE; stiffness?) ✅: serrapeptase as nec. SLEEP ✅: 0) Keep 21:00 3x289mg passiflora, selene, rosewort/Mg carbonate/B1; 22:00/bed GABA 1x"450"; 0:00/+2h GABA "600", 400 glutamine, 1x passiflora, 2:00/+4h 300 theanine WAKE/FOG: 0) Keep 8:00 theanine 300 + GABA 400 ✅

For heartburn: Almonds first. (Bentonite, medicinal clay, mumijo?)

UP NEXT: Adjust to get body feeling (esp. head/eyes/feverishness) more natural. +WAKE/FOG: 1) SAMe 2) Ribose 3) NADH/NAD+ 4) ALC (or injected?) 5) glycine. +STIFFNESS: glutamine? 🧐 +SLEEP: Apparently no longer nec: specks of tryptophan, melatonin, levodopa. NAC?. A) HERBS B) SUPPS C) MEDS Info:

:arrow_upper_right: :arrow_lower_right:

A HERBS: Schüssler

Schüssler 2, 4, & 7 (3-6 months sez my acupressurist).

B SUPPS: Amino acids, Enzyme, Minerals, Vitamins
Amino acids: 1) Balancing GABA with 2) glutamine, 3) theanine, 4) taurine, 5) SAMe 6) tryptophan, 7 glycine
1+2 Balancing GABA & glutamine: 1 Healthfully B6, 2 Perkins: Lithiumorotate, Zn, 3 Jockers strange doses!? 4 Levy: vitamin B6, as P-5'-P?

1.1 Healthfully: tyrosine, tryptophan, B6, high complex carb early, low protein late"]
1.2 Zn Cynthia Perkins:: Low carb (<50mg) paleo, high animal protein; (Mg) Zn <40mg, lithium orotate 125-200mg, glycine often excitatory; praps, or not: taurine, vit. B6, SAMe, NAC, theanine"]

glutamine/dopamine for stiffness/gait??: Low Dopamine in Fibromyalgia and CFS

3 Theanine

Work out how much of the pulverized tablet is filling agent. 300 on Aug 4th seemed better, better not higher at night. Alertness, energy, relaxation without drowsiness, 100-600mg, no sfx known!, however it increases dopamine, not sure what it does to serotonin), like glutamine, levodopa, as well as taurine, tyrosine, SAMe and Mucuna pruriens! So watch out for seizures.

SAMe: 400-800mg in the mornings, as stimulating, not much research

SAM-e for Fibromyalgia and Chronic Fatigue Syndrome

Tryptophan: repeat in VERY low dose? (GI; dead tired; encapsulating like theanine).

Glycine

Seems to excite me, as leaving off magnesium glycinate improved sleep.

Serrapeptase: https://www.livingwithfibro.org/t/serrapeptase/13678/3:
Proteolytic enzyme without any evidence (wp), produced by silkworm bacterium. 10-60mg. enteric coated 30’ before or 2h after eating. fx: inflammation, pain. sfx: skin, pain, incl. stomach! Serrapeptase: Benefits, Dosage, Dangers, and Side Effects, Serrapeptase Benefits, How to Use and Side Effects - Dr. Axe Take as little as possible, and if possible enteric coated?? So what do I do now??
NADH coenzyme NADH for Fibromyalgia Pain Relief - Fibromyalgia Resources for energy & post exertional malaise, not sleep.
Acetyl L-Carnitine (ALC)? (Got some as liquid! Or ask sleep lab psychiatrist? Ultra-high dose Vitamin C too, 7,5g, to be put in 250ml NaCl solution. It’s helping Jemima feel alert, dose: 2x750mg, for no sfx keep under 3000. Needs to be Acetyl for the brain. Question about kinds of pain | Page 2 | Fibromyalgia Forum)
D-Ribose (muscle fatigue, ATP; GI-sfx, so keep under 500mg; little evidence):
Selene - keeping for thyroid.
Zinc again as the bloods are in the middle. No, sfx.

Magnesium - glycinate yes or no? malate? "60mg" carbonate in the roseroot?

Medications - Other Options - #8 by JayCS

Vitamin B12 too.

C MEDS repeat?: NAC, levodopa, blood fat meds, blood pressure
NAC sleep -2400mg, better or worse (med)

(N-acetylcysteine) as I wrote here (better liposomal) as glutamate antagonist and to help sleep is mentioned on the last link (CFS/ME, with fibromites there too) suggest 1800 or 2400 mg, whilst more causes - again - diarrhea. The last person on that page also says “I elevated my glutamate / GABA levels with excess taurine” and very importantly “Once elevated Glutamate seems to be slow to rebalance” - got to watch that!
levodopa: repeat 50mg (100mg seemed to increase LBU),
Ezetimibe+atorvastatin if blood fats don’t stay down - smaller dose if at all?
Candesartan if blood pressure doesn’t stay down.

D) RELAX: A bit more Yoga Nidra on youtube.
E) MERIDIANS: real Chinese-trained acupuncture? Pardon Our Interruption
F) DOC Fibro-doc 200km from here?
G) DONE Again in specks/diluted: Melatonin, 10% CBD oil, 5-HTP, ashwagandha.

Development

  • Changed order of what’s “up next” as sleep is now usually pretty perfect, very effective.
  • Being more awake in the daytime still may need a bit of pimping.
  • My main focus is now is on neck & loins (exercises), stiffness (GABA amount?) & mask-talking. :face_with_monocle:
  • Testing serrapeptase for Ache further: Does it really work for a few days? :face_with_monocle:
  • I’ve been approaching normality, but something still feels wonky or wrong or beneath the surface.

Reasons to be cheerful #74 Every time I wake up I keep thinking “still not sleeping” then I get up and am surprised it’s been 1.5-3h again and can sleep again…
Reasons to be cheerful #75 In the mornings I am always surprised how few times I’ve been up.
Reasons to be cheerful #76 My acupressurist asked me to bring some more serrapeptase with me on Friday - seems to have helped her too (pain & inflammation…).

Highlights week 29th to 5th.

Abbreviations & explanations

Entries start with night meds & sleep, before triggers/symptoms & treatments, because the “night before” is vital. So Fri-day starts with Thursday night, the night before Friday.

Pain "7" = crying (/out) point; my 1 is others 2-3, and due to pacing/treatments

My wife says my 7 is other people’s 12. 1 is probably 2-3. Due to pacing, keeping work down to 25% (12h/wk) and all my treatments (acupressure, GABA) and physio self-treatments I manage to keep getting my pains & Ache down quickly. 3 usually means the Ache, not pains; these I address individually, often automatically and on the fly now, e.g. twist-stretching everything or something specific after getting up.

TIME DATA, e.g. ' = mins, h = hours, 18:10:40', date YYYY-MM-DD

’ = mins = minutes, ‘’ = secs = seconds, h is hours as time length, 3h is 3 hours long, 3:00 is 3am, 15:00 is 3pm. 18:10:40’ means 40 minutes, starting at 18:10, = 10 minutes past 6pm up to 10 to 7pm. The date is the logical digital standard: YYYY-MM-DD.

SLEEP: slp, w, lbu/LBU, RLS, p, i

slp = sleep; reasons for getting up: w = (a)wake, lbu/LBU: lower back unrest (‘RLS’?), p: pee, p2: pain 2 of 7 before peeing, i: ideas.

ACTIVITIES: TT, e.g. "5:1"

TT = table tennis, 5:1 = score, usually showing how well I’m feeling: energy, relaxedness & alertness if the first number is much higher than the second.

SUPPS: supplements (as opposed to herbs & meds). Fx: Effects. Sfx: Side effects.

SELF-TREATMENTS (about everything else...)

The self-treatments listed are only things that I’m spotlighting & rewarding myself for at the mo by counting them; much of what I do at night is self-treatment to get back to sleep or alleviate (1-2h/d), certain regular movements at daytime, like twist-stretching (30’), writing this blog is self-treatment (30’-60’/d), and the further fibro-work is an indirect form.
Self treatments are usually preventative or always have the same positive effect (e.g. cold showering improves Ache and sleep) - at least I do them for that - and I use “:arrow_forward:” to show what I’m doing to alleviate something and mark it off in the details “:white_check_mark:/:x:” whether it works well enough for a time or doesn’t’, e.g. Ache :arrow_forward: cold fast shower “:white_check_mark:
fw = fibro-work, meaning reading and writing this blog, the reference base, on 4 fibro-forums and researching fibro-stuff on the web.
AuTr = Autogenic Training (usually to actively get - back - to sleep, so counting it as sleep and AuTr…),
FAT Flash/fast autogenic training: immediate image of dreamy floating in space or liquid from jaw to legs.
cold/FCS = Flash Cold Shower (20’’-60’’) , I count it as 10’ tho. At night with ear plugs & all lights off.
breath-hold/WHM-B-H = Wim Hof Method Breath-Holding,
Neck 1 is stretching top right to bottom left, vice versa & sky/ground, neck “1+” is stretching far further diagonally downwards, neck 2 is pressing my head against my hand “without moving”, left right and front.
loins = loins/groin = stretching the ligaments there.
ex = exercises
HWB = Hot water bottle,
RR = bp = blood pressure (Riva Rocci), plus pulse. Used to be normal, plus sometimes white coat syndrome, went up since fibro, seems to have gone down again enough so I’ve not only stopped lercanidipine, but also candesartan and am checking RR regularly.
:new: “V” for loins = lie on back, legs up and let legs fall to sides;
:new: twist-stretching more for the loins
:white_check_mark: :x: :face_with_monocle: ➔ ⇄ ⇨➜ ➞ :arrow_right: ➲ ↔:⇰↔ →:arrow_upper_right: :arrow_lower_right:

↯ ↛ ↺ ↮ ⇝ ⇾ ⟹ ⭆ ⤮:

2021-09-09, Thursday

Triggers & resulting Symptoms

SLEEP: 8h53, up 4x (17') ➔ Feeling 90% well, Ache 1 of 7 ✅ Managed to not get up once, between 4 and 7. Put ear plugs in case of street noises. Then had 3-4 uneasy dreams sequences (like starting due to almost slipping up on my bike). Almost didn't hear my - soft - alarm.

Supps … & FCS 23:50- (up too late and too excited due to a thread on the Discourse forum)
1:14 4’ 90%/1 p0 st1 drink fw2’
2:29 7’ 90%/1 but suddenly awoken by severe acid reflux → chewing almonds p0 st1 drink fw2’ + 600mg GABA & 400mg L-glutamine & 1x289mg passiflora
4:25 3’ 90%/1 p0-1 st2 drink fw1’ + "300"mg theanine
7:15 3’ 90%/1 p(0) st1 drink fw1’
-9:00 p(0)
Sum: 9h10-(4+7+3+3=)17’= 8h53, up 4x (17’)

ACTIVITIES➔ACHE: Work/Mask-talking (quiet)➔ 90%/1, 2x15' Cycle➔ 90%/1, TT 50' precise, but with pressure ➔ 90%/1, but after shops & trying to relax ➔ 70%/3

Ache = also Exhaustion/Tired :white_check_mark: :x: :face_with_monocle: ➔ ?90%/1
Cycle➔ exhaustion, also as action➔pains;
TT = Table-Tennis➔ easy or effortless or strained or tough?
talk/meetings here (and actions➔pains?)
Grandchild➔
Socializing/Talking➔

ACTIONS➔ PAINS: Lying ✅, standing ✅, loins ✅, sitting ✅, arms up ✅, stiffness after poses ✅, fast cycling ✅, bladder: 7:15 it started hurting a little bit, but that didn't continue. 9:00 'ghost' pain. 12:45 also 🧐, GI: severe reflux at 2 due to caused by ~70g raspberry jam, sugar reduced to 35% (≈25g), in ~400g cow yoghurt - praps also too late, at 21:30, uneasy upon getting up ❌, talking ✅, mask-talking ✅ (oxygen hungry tho)

:white_check_mark: :x: :face_with_monocle:
Lie ➔ LBU = lower back unrest, hunchback, Neck, thighs, elbows, itch, cold/hot, nose stuffy
Stand ➔ Legs, back
Knees up ➔ right loin
Arms up ➔ pain
Sit ➔ Backside, lower back
Pose ➔ stiffness (Stiffness after holding a posture): Time 0-60’’, pain amount if faster.
Walk ➔ Elbows, feet, right knee
Cycle ➔ Feet, knees, backside, elbows, hands, neck
Drink ➔ Pee frequency, pain before peeing (p0-6).
Eat ➔ Esophagus block, stomach, gut, rectum, stool (IBSD?). GI for short
Talk➔Jaw (& Ache)
Mask-talk ➔ not sure how to describe it, just plain yucky.

Treatments

SELF-PHYSIO: 79' ✅, fibro-work (fw) ?2h

:white_check_mark: Timing, AuTr 5’, hunchback-pillow 5’, cold shower (10’), palpate 1’, belly 3’, back 7’, yoga 4’, twist-stretch 35’, neck 1+ 4’, neck 2 5’,
:x: loins 5’, gums 2x30’’, thumbnails 10x30’’, V ‘, marionette-hang 1’,mirror 2’, shaking dance 1’, breath-hold 11’, RR x2’, HWB 3’, workout 7’

fw: Night: 5 + 5 ?2h

THERAPIES: Acupressure: neck 45°. Only (strained) 90° after neck exercising. Today 2h+, loins & backside & thighs to get at the neck better, strange as it may seem to mainline med.

Acupressure / Therapy, Doc/Diagnoses ? :white_check_mark: :x: :face_with_monocle: Acupressure 2h Tues & 2h Thurs:

Supps to KEEP UP: PAIN (ACHE; stiffness?) ✅: serrapeptase as nec. SLEEP ✅: 0) 21:00 3x289mg passiflora, selene, rosewort/Mg carbonate/B1; 22:00/bed GABA 1x"450"; 0:00/+2h GABA "600", 400 glutamine, 1x passiflora, 2:00/+4h 300 theanine WAKE/FOG: 0) 8:00 theanine 300 + GABA 400 ✅

For heartburn: Almonds first. (Bentonite, medicinal clay, mumijo?). Worked for reflux tonight at 2:30.
21:40 3x289 passiflora, selene (thyroid), rosewort (bp)/magnesium carbonate/B1 at meal
22:30 600mg GABA
2:30 600mg GABA & ?400mg L-glutamine & 289mg passiflora
4:25 "300"mg theanine
9:07 400 GABA + 300mg theanine …
Serrapeptase as nec.: for ache/inflammation (feverishness?): Tried 19:45 after 50’ power-TT finding it hard to stand & concentrate. Sort of better, but I’m thinking it doesn’t help so much after physical exertion as with emotional fatigue from socializing etc.

Supps UP NEXT: Adjust to get body feeling (esp. head/eyes/feverishness) more natural. +WAKE/FOG: 1) SAMe 2) Ribose 3) NADH/NAD+ 4) ALC (or injected?) 5) glycine. +STIFFNESS: glutamine? 🧐 +SLEEP: Apparently no longer nec: specks of tryptophan, melatonin, levodopa. NAC?. A) Schüssler B) SUPPS C) MEDS Info:

:arrow_upper_right: :arrow_lower_right:
A Homeopathy: Schüssler 2, 4, & 7 (need 3-6 months sez my acupressurist).

B SUPPS: Amino acids, Enzymes, Minerals, Vitamins
Amino acids: +B6 (as P5P), +Zn, +lithium orotate, more glutamine?, SAMe, glycine
1+2 Balancing GABA & glutamine: 1 Healthfully B6, 2 Perkins: Lithiumorotate, Zn, 3 Jockers strange doses!? 4 Levy: vitamin B6, as P-5'-P?

1.1 Healthfully: tyrosine, tryptophan, B6, high complex carb early, low protein late"]
1.2 Zn Cynthia Perkins:: Low (<50mg) carb paleo, high animal protein; (Mg) Zn <40mg, lithium orotate 125-200mg, glycine often excitatory; praps, or not: taurine, vit. B6, SAMe, NAC, theanine"]

glutamine/dopamine for stiffness/gait??: Low Dopamine in Fibromyalgia and CFS
SAMe: 400-800mg in the mornings, as stimulating, not much research"]

NADH/NAD+ B3-coenzyme for energy & post exertional malaise.
Acetyl L-Carnitine (ALC)?: Drink as liquid… Or ask sleep lab psychiatrist to inject it? ALC’s helping Jemima feel alert, dose: 2x750mg, for no sfx keep under 3000. Needs to be Acetyl for the brain she sez. Question about kinds of pain | Page 2 | Fibromyalgia Forum.
D-Ribose: muscle fatigue, ATP; GI-sfx, so keep under 500mg; little evidence.
Zinc again as the bloods are in the middle? No, sfx.
Magnesium - glycinate yes or no? malate? “60mg” carbonate in the roseroot?
Vitamin B12 injections again?
Vitamin B6 as P5P?
Vitamin C ultra-high dose 7,5g, to be put in 250ml NaCl solution & injected…

C MEDS repeat?: NAC, levodopa, blood fat meds, blood pressure
NAC sleep -2400mg, better or worse (med)

(N-acetylcysteine) as I wrote here (better liposomal) as glutamate antagonist and to help sleep is mentioned on the last link (CFS/ME, with fibromites there too) suggest 1800 or 2400 mg, whilst more causes - again - diarrhea. The last person on that page also says “I elevated my glutamate / GABA levels with excess taurine” and very importantly “Once elevated Glutamate seems to be slow to rebalance” - got to watch that!
levodopa: repeat 50mg (100mg seemed to increase LBU),
Ezetimibe+atorvastatin if blood fats don’t stay down - smaller dose if at all?
Candesartan if blood pressure doesn’t stay down.

D) RELAX: A bit more Yoga Nidra on youtube.
E) MERIDIANS: real Chinese-trained acupuncture? Pardon Our Interruption
F) DOC Fibro-doc 200km from here?
G) REPEAT? Again in specks/diluted: Melatonin, 10% CBD oil, 5-HTP, ashwagandha.

Development

  • My colleague was again very thankful for GABA & tyrosine. Now she’s trying serrapeptase. She needs something for her eye muscles and sleep/waking. I’m thinking of more GABA, balanced with some theanine. Doesn’t tolerate magnesium (IBSD) unless specks sublingually which she feels is being taken up immediately and not affecting her gut… (Sublingual doesn’t stay there/suffice in my case.)

Highlights week 29th to 5th.

Abbreviations & explanations

Entries start with night meds & sleep, before triggers/symptoms & treatments, because the “night before” is vital. So Fri-day starts with Thursday night, the night before Friday.

Pain "7" = crying (/out) point; my 1 is others 2-3, and due to pacing/treatments

My wife says my 7 is other people’s 12. 1 is probably 2-3. Due to pacing, keeping work down to 25% (12h/wk) and all my treatments (acupressure, GABA) and physio self-treatments I manage to keep getting my pains & Ache down quickly. 3 usually means the Ache, not pains; these I address individually, often automatically and on the fly now, e.g. twist-stretching everything or something specific after getting up.

TIME DATA, e.g. ' = mins, h = hours, 18:10:40', date YYYY-MM-DD

’ = mins = minutes, ‘’ = secs = seconds, h is hours as time length, 3h is 3 hours long, 3:00 is 3am, 15:00 is 3pm. 18:10:40’ means 40 minutes, starting at 18:10, = 10 minutes past 6pm up to 10 to 7pm. The date is the logical digital standard: YYYY-MM-DD.

SLEEP: slp, w, lbu/LBU, RLS, p, i

slp = sleep; reasons for getting up: w = (a)wake, lbu/LBU: lower back unrest (‘RLS’?), p: pee, p2: pain 2 of 7 before peeing, i: ideas.

ACTIVITIES: TT, e.g. "5:1"

TT = table tennis, 5:1 = score, usually showing how well I’m feeling: energy, relaxedness & alertness if the first number is much higher than the second.

SUPPS: supplements (as opposed to herbs & meds). Fx: Effects. Sfx: Side effects.

SELF-TREATMENTS (about everything else...)

The self-treatments listed are only things that I’m spotlighting & rewarding myself for at the mo by counting them; much of what I do at night is self-treatment to get back to sleep or alleviate (1-2h/d), certain regular movements at daytime, like twist-stretching (30’), writing this blog is self-treatment (30’-60’/d), and the further fibro-work is an indirect form.
Self treatments are usually preventative or always have the same positive effect (e.g. cold showering improves Ache and sleep) - at least I do them for that - and I use “:arrow_forward:” to show what I’m doing to alleviate something and mark it off in the details “:white_check_mark:/:x:” whether it works well enough for a time or doesn’t’, e.g. Ache :arrow_forward: cold fast shower “:white_check_mark:
fw = fibro-work, meaning reading and writing this blog, the reference base, on 4 fibro-forums and researching fibro-stuff on the web.
AuTr = Autogenic Training (usually to actively get - back - to sleep, so counting it as sleep and AuTr…),
FAT Flash/fast autogenic training: immediate image of dreamy floating in space or liquid from jaw to legs.
cold/FCS = Flash Cold Shower (20’’-60’’) , I count it as 10’ tho. At night with ear plugs & all lights off.
breath-hold/WHM-B-H = Wim Hof Method Breath-Holding,
Neck 1 is stretching top right to bottom left, vice versa & sky/ground, neck “1+” is stretching far further diagonally downwards, neck 2 is pressing my head against my hand “without moving”, left right and front.
loins = loins/groin = stretching the ligaments there.
ex = exercises
HWB = Hot water bottle,
RR = bp = blood pressure (Riva Rocci), plus pulse. Used to be normal, plus sometimes white coat syndrome, went up since fibro, seems to have gone down again enough so I’ve not only stopped lercanidipine, but also candesartan and am checking RR regularly.
:new: “V” for loins = lie on back, legs up and let legs fall to sides;
:new: twist-stretching more for the loins
:white_check_mark: :x: :face_with_monocle: ➔ ⇄ ⇨➜ ➞ :arrow_right: ➲ ↔:⇰↔ →:arrow_upper_right: :arrow_lower_right:

↯ ↛ ↺ ↮ ⇝ ⇾ ⟹ ⭆ ⤮:

2021-09-10, Friday (v6 19:00) - serrapeptase directly after working/mask-talking worked inside of 25’, which also carried me thru powering table-tennis

Triggers & resulting Symptoms

SLEEP: 8h48, up 6x (52'), (minus dozing 1h? = 7h48) ➔ Feeling 90% well, Ache 1 of 7 ✅

21:00 3x289 passiflora, selene, rosewort/magnesium carbonate/B1 at meal
22:00 500mg GABA
0:30 600mg GABA & ?400mg L-glutamine & 289mg passiflora
2:35 "300"mg theanine
FCS 22:25-
0:28 3’ 90%/1 p1 st3! drink fw2’ + 600mg GABA & 400mg L-glutamine & 1x289mg passiflora
2:36 3’ 90%/1 p1? st1 drink fw1’ + "300"mg theanine
4:07 5’ 90%/3 p1 st1 drink fw1’ woke up due to a nerve? pain in the ball of my left foot, then dozing due to alternating slight stings & itches
4:38 6 27’, doze/again, slight thigh pain, AuTr to no avail, last try:
5:28 6’ FCS#2 st1 drink fw1’ dozing? But pretty long for that, considering. Pains & strange dreams. Did serrapeptase cause all this?
7:17 8’ 400 GABA + 300mg theanine … Darn, I can sleep another hour, forgot! But didn’t wake me up
-8:15 Gingko 120mg.
Sum: 1h35+8h15-(3+3+5+27+6+8=)52= 9h40-52’=8h48, up 6x (52’), (minus dozing 1h? = 7h48)

ACTIVITIES➔ACHE: Commuting, still tired from the painy night ➔ 80%/1, work ➔ 70%/5 (Ache, pressure on eyes, brain, coming down from being overcharged), rest/serrapeptase 85%/1 about 30' after taking 1x, cycling same, 70' power-TT same, rest ➔ 90%/1

Ache = also Exhaustion/Tired :white_check_mark: :x: :face_with_monocle: ➔ ?90%/1
Cycle➔ exhaustion, also as action➔pains;
TT = Table-Tennis➔ easy or effortless or strained or tough?
talk/meetings here (and actions➔pains?)
Grandchild➔
Work/Mask-talking➔
Socializing/Talking➔

ACTIONS➔ PAINS: Lying: Many pains tonight, maybe from taking serrapeptase too late or for the 'wrong' thing ❌/🧐, standing ✅/🧐, loins ✅, sitting: backside sensitive at 12:10, altho I haven't sat much today ❌/🧐, arms up ✅, stiffness after poses ✅, fairly fast cycling ✅, bladder, few times 1-2 last night ✅, GI: slight pressure under stomach at ?11:30 after taking the serrapeptase ✅/❌/🧐, talking ✅, power mask-talking: no yucky feeling ✅, but knackered ❌, so 🧐: keep the power down the next times and then consider taking serrapeptase earlier.

:white_check_mark: :x: :face_with_monocle:
Lie ➔ LBU = lower back unrest, hunchback, Neck, thighs, elbows, itch, cold/hot, nose stuffy
Stand ➔ Legs, back
Knees up ➔ right loin
Arms up ➔ pain
Sit ➔ Backside, lower back
Pose ➔ stiffness (Stiffness after holding a posture): Time 0-60’’, pain amount if faster.
Walk ➔ Elbows, feet, right knee
Cycle ➔ Feet, knees, backside, elbows, hands, neck
Drink ➔ Pee frequency, pain before peeing (p0-6).
Eat ➔ Esophagus block, stomach, gut, rectum, stool (IBSD?). GI for short
Talk➔Jaw (& Ache)
Mask-talk ➔ not sure how to describe it, just plain yucky.

Treatments

SELF-PHYSIO: 76' ✅, fibro-work (fw) 4h30, RR at 19:00 is 130/80, 63

:white_check_mark: Timing, AuTr 5’, hunchback-pillow 10’, cold shower 2x(10’), palpate 1’, belly 3’, back 7’, V 1’, yoga 3’, loins 2’, twist-stretch 10’, neck 1+ 4’, neck 2 1’, HWB 3x3’,
:x: gums 2x30’’, thumbnails 10x30’’, marionette-hang 1’,mirror 2’, shaking dance 1’, breath-hold 11’, RR x2’, workout 7’

fw: Night: 5 + 10:45-11:10, 14:15: 1h, 17:10-19:00…20:00

THERAPIES: Thursday acupressure: pretty complete back & front of my torso with the large & then with the metallic scar-massage vibrator, esp. backside - painful, nice as soon as it stopped, didn't hold on that long, but neck is quite a better today (50° to the right, 70° to the left); new exercises: a) try to stand straight in the mirror (without looking, then with); neck exercises: b) press head against hand first, on forehead, left, right; c) then turn left & right with head to the front, then with head up, then down, breathing in when head is in the middle and out to the side. Wednesday psychologist: Watch out for co-dependency regarding holidays; maybe write a book? (hmm, I thought it was a nice joke first.. still don't believe many'd read it..)

Acupressure / Therapy, Doc/Diagnoses ? :white_check_mark: :x: :face_with_monocle: Acupressure 2h Tues & 2h Fri:

Development

Finished 'em off: Highlights week 29th to 5th.

Abbreviations & explanations

Entries start with night meds & sleep, before triggers/symptoms & treatments, because the “night before” is vital. So Fri-day starts with Thursday night, the night before Friday.

Pain "7" = crying (/out) point; my 1 is others 2-3, and due to pacing/treatments

My wife says my 7 is other people’s 12. 1 is probably 2-3. Due to pacing, keeping work down to 25% (12h/wk) and all my treatments (acupressure, GABA) and physio self-treatments I manage to keep getting my pains & Ache down quickly. 3 usually means the Ache, not pains; these I address individually, often automatically and on the fly now, e.g. twist-stretching everything or something specific after getting up.

TIME DATA, e.g. ' = mins, h = hours, 18:10:40', date YYYY-MM-DD

’ = mins = minutes, ‘’ = secs = seconds, h is hours as time length, 3h is 3 hours long, 3:00 is 3am, 15:00 is 3pm. 18:10:40’ means 40 minutes, starting at 18:10, = 10 minutes past 6pm up to 10 to 7pm. The date is the logical digital standard: YYYY-MM-DD.

SLEEP: slp, w, lbu/LBU, RLS, p, i

slp = sleep; reasons for getting up: w = (a)wake, lbu/LBU: lower back unrest (‘RLS’?), p: pee, p2: pain 2 of 7 before peeing, i: ideas.

ACTIVITIES: TT, e.g. "5:1"

TT = table tennis, 5:1 = score, usually showing how well I’m feeling: energy, relaxedness & alertness if the first number is much higher than the second.

SUPPS: supplements (as opposed to herbs & meds). Fx: Effects. Sfx: Side effects.

SELF-TREATMENTS (about everything else...)

The self-treatments listed are only things that I’m spotlighting & rewarding myself for at the mo by counting them; much of what I do at night is self-treatment to get back to sleep or alleviate (1-2h/d), certain regular movements at daytime, like twist-stretching (30’), writing this blog is self-treatment (30’-60’/d), and the further fibro-work is an indirect form.
Self treatments are usually preventative or always have the same positive effect (e.g. cold showering improves Ache and sleep) - at least I do them for that - and I use “:arrow_forward:” to show what I’m doing to alleviate something and mark it off in the details “:white_check_mark:/:x:” whether it works well enough for a time or doesn’t’, e.g. Ache :arrow_forward: cold fast shower “:white_check_mark:
fw = fibro-work, meaning reading and writing this blog, the reference base, on 4 fibro-forums and researching fibro-stuff on the web.
AuTr = Autogenic Training (usually to actively get - back - to sleep, so counting it as sleep and AuTr…),
FAT Flash/fast autogenic training: immediate image of dreamy floating in space or liquid from jaw to legs.
cold/FCS = Flash Cold Shower (20’’-60’’) , I count it as 10’ tho. At night with ear plugs & all lights off.
breath-hold/WHM-B-H = Wim Hof Method Breath-Holding,
Neck 1 is stretching top right to bottom left, vice versa & sky/ground, neck “1+” is stretching far further diagonally downwards, neck 2 is pressing my head against my hand “without moving”, left right and front.
loins = loins/groin = stretching the ligaments there.
ex = exercises
HWB = Hot water bottle,
RR = bp = blood pressure (Riva Rocci), plus pulse. Used to be normal, plus sometimes white coat syndrome, went up since fibro, seems to have gone down again enough so I’ve not only stopped lercanidipine, but also candesartan and am checking RR regularly.
:new: “V” for loins = lie on back, legs up and let legs fall to sides;
:new: twist-stretching more for the loins
:white_check_mark: :x: :face_with_monocle: ➔ ⇄ ⇨➜ ➞ :arrow_right: ➲ ↔:⇰↔ →:arrow_upper_right: :arrow_lower_right:

↯ ↛ ↺ ↮ ⇝ ⇾ ⟹ ⭆ ⤮:

2021-09-11, Saturday - nothing special, pretty tired

Triggers & resulting Symptoms

SLEEP: 8h12, up 7x (44'), minus 21' doze. ➔ Feeling 90% well, Ache 1 of 7 ✅

No FCS, let’s see… 23:58-
2:27 5’ 90%/1 p0 st1 drink fw1’ teeth + 600mg GABA & 400mg L-glutamine & 1x289mg passiflora
2:33 10’ hot flash → FCS
3:55 3’ 90%/1 p0 st1 drink fw1’ + "300"mg theanine
5:20 3’ 90%/1 p0 st1 drink fw1’
6:53 10’ 90%/1 p0 st1 drink fw8’
7:12 10’ 6 90%/1 drink
8:30 3’ 90%/1 p0 st1 drink fw1’ dozing till fairly awake
-8:54
Sum: 8:56-(5+10+3+3+10+10+3=)44=8h12, up 7x (44’), minus 21’ doze.

ACTIVITIES➔ACHE: Good, but 70' power-TT ➔ 80%/3 at 13:30, I'll see how long it takes without serrapeptase. Pretty OK actually. Not strong at 15:00, but not hurting any more. Tired in the afternoon, Achey from a bit of power cycling ➔ 70%/3, serrapeptase at 19:00 maybe got it up a little.

Ache = also Exhaustion/Tired :white_check_mark: :x: :face_with_monocle: ➔ ?90%/1
Cycle➔ exhaustion, also as action➔pains;
TT = Table-Tennis➔ easy or effortless or strained or tough?
talk/meetings here (and actions➔pains?)
Grandchild➔
Work/Mask-talking➔
Socializing/Talking➔

ACTIONS➔ PAINS: Lying, except hot flush and a bit of lower back unrest for which stretching backward helped. ✅, ...... standing ✅, loins ✅/❌/🧐, sitting ✅, arms up ✅, stiffness after poses: not severe, but noticeable as soon as I stop moving. 🧐, fast cycling ✅, bladder: seems none at the mo? (2x at most.) ✅, GI: slight heartburn due to 2 small cookies/biscuits in the evening, stool influenced by serrapeptase, but not bad, just unusual ✅, talking ✅/❌/🧐, mask-talking ✅/❌/🧐

:white_check_mark: :x: :face_with_monocle:
Lie ➔ LBU = lower back unrest, hunchback, Neck, thighs, elbows, itch, cold/hot, nose stuffy
Stand ➔ Legs, back
Knees up ➔ right loin
Arms up ➔ pain
Sit ➔ Backside, lower back
Pose ➔ stiffness (Stiffness after holding a posture): Time 0-60’’, pain amount if faster.
Walk ➔ Elbows, feet, right knee
Cycle ➔ Feet, knees, backside, elbows, hands, neck
Drink ➔ Pee frequency, pain before peeing (p0-6).
Eat ➔ Esophagus block, stomach, gut, rectum, stool (IBSD?). GI for short
Talk➔Jaw (& Ache)
Mask-talk ➔ not sure how to describe it, just plain yucky.

Treatments

SELF-PHYSIO: 50...' ✅, fibro-work (fw) 3h20

:white_check_mark: AuTr 5’, hunchback-pillow 10’, cold shower (10’), palpate 1’, belly 3’, back 7’, twist-stretch 10’, neck 2 2’, yoga 2’.
:x: Timing, neck 1+ 4’, loins 5’, gums 2x30’’, thumbnails 10x30’’, V ‘, marionette-hang 1’,mirror 2’, shaking dance 1’, breath-hold 11’, RR x2’, HWB 3’, workout 7’

fw: Night: 5 + 30h - Registering with a German forum too, there are hardly any, and no one much is writing there, so I’ll see if I can help get them up to date a bit. Serrapeptase. 30’, 10’ 1h

THERAPIES:

Acupressure / Therapy, Doc/Diagnoses ? :white_check_mark: :x: :face_with_monocle: Acupressure 2h Tues & 2h Fri:

Supps to KEEP UP: PAIN (ACHE; stiffness?) ✅: serrapeptase as nec: Not yet. Knackered in the evening from a bit of power cycling, so tried 1x late again, 19:00, let's see if sleep is OK this time. ✅: SLEEP: Worked well, despite 2h later. FCS nec later, so praps still better before bed. 0) 21:00 3x289mg passiflora, selene, rosewort/Mg carbonate/B1; bedtime GABA 1x"450"; +2h GABA "600", 400 glutamine, 1x passiflora, ✅ +4h 300 theanine WAKE/FOG: Dozing a bit nec, but then awake, not needing ginkgo; with the help at 9:00 of 0) +8h theanine 300 + GABA 400 ✅

For heartburn: Almonds first. (Bentonite, medicinal clay, mumijo?). Worked for reflux tonight at 2:30.
21:40 3x289 passiflora, selene, rosewort/magnesium carbonate/B1 at meal
22:40 600mg GABA
2:25 600mg GABA & ?400mg L-glutamine & 289mg passiflora
3:55 "300"mg theanine
9:00 400 GABA + 300mg theanine …
Serrapeptase:

Supps UP NEXT: Adjust to get body feeling (esp. head/eyes/feverishness) more natural. +WAKE/FOG: 0) ginkgo 1) SAMe 2) Ribose 3) NADH/NAD+ 4) ALC (I have LC: orally or injected?) 5) glycine. +STIFFNESS: glutamine? 🧐 +SLEEP: Apparently no longer nec: specks of tryptophan, melatonin, levodopa. NAC?. A) Schüssler B) SUPPS C) MEDS Info:

:arrow_upper_right: :arrow_lower_right:
A Homeopathy: Schüssler 2, 4, & 7 (need 3-6 months sez my acupressurist).

B SUPPS: Amino acids, Enzymes, Minerals, Vitamins
Amino acids: +B6 (as P5P), +Zn, +lithium orotate, more glutamine?, SAMe, glycine
1+2 Balancing GABA & glutamine: 1 Healthfully B6, 2 Perkins: Lithium orotate, Zn, 3 Jockers strange doses!? 4 Levy: vitamin B6, as P-5'-P?

1.1 Healthfully: tyrosine, tryptophan, B6, high complex carb early, low protein late"]
1.2 Zn Cynthia Perkins:: Low (<50mg) carb paleo, high animal protein; (Mg) Zn <40mg, lithium orotate 125-200mg, glycine often excitatory; praps, or not: taurine, vit. B6, SAMe, NAC, theanine"]

Glutamine/dopamine for stiffness/gait?!?: Low Dopamine in Fibromyalgia and CFS
SAMe: 400-800mg in the mornings, as stimulating, not much research"]

NADH/NAD+ B3-coenzyme for energy & post exertional malaise.
Acetyl L-Carnitine (ALC)?: Drink as liquid… Or ask sleep lab psychiatrist to inject it? ALC’s helping Jemima feel alert, dose: 2x750mg, for no sfx keep under 3000. Needs to be Acetyl for the brain she sez. Question about kinds of pain | Page 2 | Fibromyalgia Forum.
D-Ribose: muscle fatigue, ATP; GI-sfx, so keep under 500mg; little evidence.
Zinc again (bloods are in the middle)? Watch out for the sfx!
Magnesium - glycinate yes or no? malate? “60mg” carbonate in the roseroot?
Increase rose root from 1x200mg to 2 or 3 for serotonin etc. as well as blood pressure (normal now)?
Vitamin B12 injections again?
Vitamin B6 as P5P?
Vitamin C ultra-high dose 7,5g, to be put in 250ml NaCl solution & injected - if I can ever find someone to inject it.

C MEDS repeat?: NAC, levodopa, blood fat meds, blood pressure
NAC sleep -2400mg, better or worse (med)

(N-acetylcysteine) as I wrote here (better liposomal) as glutamate antagonist and to help sleep is mentioned on the last link (CFS/ME, with fibromites there too) suggest 1800 or 2400 mg, whilst more causes - again - diarrhea. The last person on that page also says “I elevated my glutamate / GABA levels with excess taurine” and very importantly “Once elevated Glutamate seems to be slow to rebalance” - got to watch that!
levodopa: repeat 50mg (100mg seemed to increase LBU),
Ezetimibe+atorvastatin if blood fats don’t stay down - smaller dose if at all?
Candesartan if blood pressure doesn’t stay down.

D) RELAX: A bit more Yoga Nidra on youtube.
E) MERIDIANS: real Chinese-trained acupuncture? Pardon Our Interruption
F) DOC Fibro-doc 200km from here?
G) REPEAT? Again in specks/diluted: Melatonin, 10% CBD oil, 5-HTP, ashwagandha.

Development

Highlights week 29th to 5th.

Abbreviations & explanations

Entries start with night meds & sleep, before triggers/symptoms & treatments, because the “night before” is vital. So Fri-day starts with Thursday night, the night before Friday.

Pain "7" = crying (/out) point; my 1 is others 2-3, and due to pacing/treatments

My wife says my 7 is other people’s 12. 1 is probably 2-3. Due to pacing, keeping work down to 25% (12h/wk) and all my treatments (acupressure, GABA) and physio self-treatments I manage to keep getting my pains & Ache down quickly. 3 usually means the Ache, not pains; these I address individually, often automatically and on the fly now, e.g. twist-stretching everything or something specific after getting up.

TIME DATA, e.g. ' = mins, h = hours, 18:10:40', date YYYY-MM-DD

’ = mins = minutes, ‘’ = secs = seconds, h is hours as time length, 3h is 3 hours long, 3:00 is 3am, 15:00 is 3pm. 18:10:40’ means 40 minutes, starting at 18:10, = 10 minutes past 6pm up to 10 to 7pm. The date is the logical digital standard: YYYY-MM-DD.

SLEEP: slp, w, lbu/LBU, RLS, p, i

slp = sleep; reasons for getting up: w = (a)wake, lbu/LBU: lower back unrest (‘RLS’?), p: pee, p2: pain 2 of 7 before peeing, i: ideas.

ACTIVITIES: TT, e.g. "5:1"

TT = table tennis, 5:1 = score, usually showing how well I’m feeling: energy, relaxedness & alertness if the first number is much higher than the second.

SUPPS: supplements (as opposed to herbs & meds). Fx: Effects. Sfx: Side effects.

SELF-TREATMENTS (about everything else...)

The self-treatments listed are only things that I’m spotlighting & rewarding myself for at the mo by counting them; much of what I do at night is self-treatment to get back to sleep or alleviate (1-2h/d), certain regular movements at daytime, like twist-stretching (30’), writing this blog is self-treatment (30’-60’/d), and the further fibro-work is an indirect form.
Self treatments are usually preventative or always have the same positive effect (e.g. cold showering improves Ache and sleep) - at least I do them for that - and I use “:arrow_forward:” to show what I’m doing to alleviate something and mark it off in the details “:white_check_mark:/:x:” whether it works well enough for a time or doesn’t’, e.g. Ache :arrow_forward: cold fast shower “:white_check_mark:
fw = fibro-work, meaning reading and writing this blog, the reference base, on 4 fibro-forums and researching fibro-stuff on the web.
AuTr = Autogenic Training (usually to actively get - back - to sleep, so counting it as sleep and AuTr…),
FAT Flash/fast autogenic training: immediate image of dreamy floating in space or liquid from jaw to legs.
cold/FCS = Flash Cold Shower (20’’-60’’) , I count it as 10’ tho. At night with ear plugs & all lights off.
breath-hold/WHM-B-H = Wim Hof Method Breath-Holding,
Neck 1 is stretching top right to bottom left, vice versa & sky/ground, neck “1+” is stretching far further diagonally downwards, neck 2 is pressing my head against my hand “without moving”, left right and front.
loins = loins/groin = stretching the ligaments there.
ex = exercises
HWB = Hot water bottle,
RR = bp = blood pressure (Riva Rocci), plus pulse. Used to be normal, plus sometimes white coat syndrome, went up since fibro, seems to have gone down again enough so I’ve not only stopped lercanidipine, but also candesartan and am checking RR regularly.
:new: “V” for loins = lie on back, legs up and let legs fall to sides;
:new: twist-stretching more for the loins
:white_check_mark: :x: :face_with_monocle: ➔ ⇄ ⇨➜ ➞ :arrow_right: ➲ ↔:⇰↔ →:arrow_upper_right: :arrow_lower_right:

↯ ↛ ↺ ↮ ⇝ ⇾ ⟹ ⭆ ⤮:

Highlights this week - Sep 6th to 11th - serrapeptase success continuing for certain kinds of Ache

Finished on Sep 19th (additions, and I’d written Aug 6th by mistake…)

Symbol & emoji of the week: Just :slight_smile:

  1. Supps: Improved sleep reliably, daytime improving suddenly :white_check_mark:
  2. GABA at 9:00 has improved bladder, more than stiffness. What about glutamine for that? :face_with_monocle:
  3. Theanine alone increased seizures, so more GABA nec. to balance it (plus bladder & stiffness)
  4. Serrapeptase miracled away my Ache twice, may be a good help after - or before? - work.
  5. Taking it Saturday evening may have caused problems that night.
  6. Acupressure: Neck improving slowly somewhat.
  7. Activities & Actions: good, and better. Stiffness, loins & occasional pee pain still.
  8. Symptoms: improving :smiley: (Mask-talking may be improving.)
  9. Stiffness: Still more GABA? :face_with_monocle:
  10. Bladder pain improving from more GABA, balanced by more theanine :slight_smile:
  11. Sleep:: Continuing well.
  12. GI: Keep sugar down, & cookies.
  13. Generally: feeling quite good, but sort of ‘false’ (more in body than in mind I think).
  14. Painy night Thursday to Friday, then partly difficult day, Saturday a bit tired.
  15. But the night before with severe reflux after jam was also wonky, maybe that was a chain.
  16. Psychologist: Suggested me writing a book. :face_with_monocle:

2021-09-12, Sunday

Triggers & resulting Symptoms

SLEEP: 8h33, up 5x (1h45) (minus 1h doze = 7h30) ➔ Feeling 70% well, Ache 1 of 7 ✅. Severe sore throat brought up by cold & wind leading to lack of self-discipline (fw)

FCS 22:40-
0:48 20’ fw15’ 90%/1 p0 st1 drink + 600mg GABA & 400mg L-glutamine & 1x289mg passiflora
1:25 33’ darn, that break/fw was too long. And I touched an insect bite by mistake… cold wash. 6. doze.
2:38 3’ 90%/1 p0 st1 drink fw1’ + "300"mg theanine
4:22 40’ 90%/1 p0 st1 drink fw1’ Marigold. Probably got too much cold & wind in the Botanical garden… -5:22 doze/AuTr fw 37’
5:40 9’ FCS#2 p0 st1 Umckaloabo fw 3’
-8:58
Sum: 1h20+8h58-(20+33+3+40+9=)1h45=8h33, up 5x (1h45) (minus 1h doze = 7h30)

ACTIVITIES➔ACHE: Kept it down, TT no problem➔ ?90%/1

Ache = also Exhaustion/Tired :white_check_mark: :x: :face_with_monocle: ➔ ?90%/1
Cycle➔ exhaustion, also as action➔pains;
TT = Table-Tennis➔ easy or effortless or strained or tough?
talk/meetings here (and actions➔pains?)
Grandchild➔
Work/Mask-talking➔
Socializing/Talking➔

ACTIONS➔ PAINS: Possible reasons for getting severe sore throat at night: 1) Lying next to a pond for half an hour yesterday evening, 2) leaving 3rd pair of socks off all day, 3) putting on a thin T-shirt for the first few hours. 4) Windy hot weather. Remedy: Warmest feet. Lying OK ✅/🧐, standing ✅, loins ✅, sitting ✅, arms up (✅), stiffness after poses ✅/❌/🧐, cycling✅, bladder ✅, GI ✅

:white_check_mark: :x: :face_with_monocle:
Lie ➔ LBU = lower back unrest, hunchback, Neck, thighs, elbows, itch, cold/hot, nose stuffy
Stand ➔ Legs, back
Knees up ➔ right loin
Arms up ➔ pain
Sit ➔ Backside, lower back
Pose ➔ stiffness (Stiffness after holding a posture): Time 0-60’’, pain amount if faster.
Walk ➔ Elbows, feet, right knee
Cycle ➔ Feet, knees, backside, elbows, hands, neck
Drink ➔ Pee frequency, pain before peeing (p0-6).
Eat ➔ Esophagus block, stomach, gut, rectum, stool (IBSD?). GI for short
Talk➔Jaw (& Ache)
Mask-talk ➔ not sure how to describe it, just plain yucky.

Treatments

SELF-PHYSIO: 72' ✅, fibro-work (fw) 4-5h

:white_check_mark: Timing, AuTr 5’, hunchback-pillow 10’, cold shower 2x(10’), palpate 1’, belly 3’, back 7’, neck 1+ 6’, neck 2 5’, twist-stretch 10, loins 5’,
:x: gums 2x30’’, thumbnails 10x30’’, V ‘, marionette-hang 1’,mirror 2’, shaking dance 1’, breath-hold 11’, RR x2’, HWB 3’, yoga, workout 7’

fw: Night: 1h + 9:00: 1h +2h? +2h?

THERAPIES: Neck good today!

Acupressure / Therapy, Doc/Diagnoses ? :white_check_mark: :x: :face_with_monocle: Acupressure 2h Tues & 2h Fri:

Supps to KEEP UP: PAIN (ACHE; stiffness?) ✅: serrapeptase as nec: Wasn't. Sleep was not disrupted by taking it late yesterday, but by the sore throat. ✅: SLEEP: 0) 21:00 3x289mg passiflora, selene, rosewort/Mg carbonate/B1; bedtime GABA 1x"450"; +2h GABA "600", 400 glutamine, 1x passiflora, ✅ +4h 300 theanine WAKE/FOG: 0) +8h theanine 300 + GABA 400 ✅

For heartburn: Almonds first. (Bentonite, medicinal clay, mumijo?).
21:20 3x289 passiflora, selene, rosewort/magnesium carbonate/B1 at meal
22:35 600mg GABA
0:55 600mg GABA & ?400mg L-glutamine & 289mg passiflora. Marigold for sore throat.
2:40 "300"mg theanine
10:00 400 GABA + 300mg theanine …
Serrapeptase:

Supps UP NEXT: Adjust to get body feeling (esp. head/eyes/feverishness) more natural. +WAKE/FOG: 0) ginkgo 1) SAMe 2) Ribose 3) NADH/NAD+ 4) ALC (I have LC: orally or injected?) 5) glycine. +STIFFNESS: glutamine? 🧐 +SLEEP: Apparently no longer nec: specks of tryptophan, melatonin, levodopa. NAC?. A) Schüssler B) SUPPS C) MEDS Info:

:arrow_upper_right: :arrow_lower_right:
A Homeopathy: Schüssler 2, 4, & 7 (need 3-6 months sez my acupressurist).

B SUPPS: Amino acids, Enzymes, Minerals, Vitamins
Amino acids: +B6 (as P5P), +Zn, +lithium orotate, more glutamine?, SAMe, glycine
1+2 Balancing GABA & glutamine: 1 Healthfully B6, 2 Perkins: Lithium orotate, Zn, 3 Jockers strange doses!? 4 Levy: vitamin B6, as P-5'-P?

1.1 Healthfully: tyrosine, tryptophan, B6, high complex carb early, low protein late"]
1.2 Zn Cynthia Perkins:: Low (<50mg) carb paleo, high animal protein; (Mg) Zn <40mg, lithium orotate 125-200mg, glycine often excitatory; praps, or not: taurine, vit. B6, SAMe, NAC, theanine"]

Glutamine/dopamine for stiffness/gait?!?: Low Dopamine in Fibromyalgia and CFS
SAMe: 400-800mg in the mornings, as stimulating, not much research"]

NADH/NAD+ B3-coenzyme for energy & post exertional malaise.
Acetyl L-Carnitine (ALC)?: Drink as liquid… Or ask sleep lab psychiatrist to inject it? ALC’s helping Jemima feel alert, dose: 2x750mg, for no sfx keep under 3000. Needs to be Acetyl for the brain she sez. Question about kinds of pain | Page 2 | Fibromyalgia Forum.
D-Ribose: muscle fatigue, ATP; GI-sfx, so keep under 500mg; little evidence.
Zinc again (bloods are in the middle)? Watch out for the sfx!
Magnesium - glycinate yes or no? malate? “60mg” carbonate in the roseroot?
Increase rose root from 1x200mg to 2 or 3 for serotonin etc. as well as blood pressure (normal now)?
Vitamin B12 injections again?
Vitamin B6 as P5P?
Vitamin C ultra-high dose 7,5g, to be put in 250ml NaCl solution & injected - if I can ever find someone to inject it.

C MEDS repeat?: NAC, levodopa, blood fat meds, blood pressure
NAC sleep -2400mg, better or worse (med)

(N-acetylcysteine) as I wrote here (better liposomal) as glutamate antagonist and to help sleep is mentioned on the last link (CFS/ME, with fibromites there too) suggest 1800 or 2400 mg, whilst more causes - again - diarrhea. The last person on that page also says “I elevated my glutamate / GABA levels with excess taurine” and very importantly “Once elevated Glutamate seems to be slow to rebalance” - got to watch that!
levodopa: repeat 50mg (100mg seemed to increase LBU),
Ezetimibe+atorvastatin if blood fats don’t stay down - smaller dose if at all?
Candesartan if blood pressure doesn’t stay down.

D) RELAX: A bit more Yoga Nidra on youtube.
E) MERIDIANS: real Chinese-trained acupuncture? Pardon Our Interruption
F) DOC Fibro-doc 200km from here?
G) REPEAT? Again in specks/diluted: Melatonin, 10% CBD oil, 5-HTP, ashwagandha.

Highlights week 6th to 11th.

Abbreviations & explanations

Entries start with night meds & sleep, before triggers/symptoms & treatments, because the “night before” is vital. So Fri-day starts with Thursday night, the night before Friday.

Pain "7" = crying (/out) point; my 1 is others 2-3, and due to pacing/treatments

My wife says my 7 is other people’s 12. 1 is probably 2-3. Due to pacing, keeping work down to 25% (12h/wk) and all my treatments (acupressure, GABA) and physio self-treatments I manage to keep getting my pains & Ache down quickly. 3 usually means the Ache, not pains; these I address individually, often automatically and on the fly now, e.g. twist-stretching everything or something specific after getting up.

TIME DATA, e.g. ' = mins, h = hours, 18:10:40', date YYYY-MM-DD

’ = mins = minutes, ‘’ = secs = seconds, h is hours as time length, 3h is 3 hours long, 3:00 is 3am, 15:00 is 3pm. 18:10:40’ means 40 minutes, starting at 18:10, = 10 minutes past 6pm up to 10 to 7pm. The date is the logical digital standard: YYYY-MM-DD.

SLEEP: slp, w, lbu/LBU, RLS, p, i

slp = sleep; reasons for getting up: w = (a)wake, lbu/LBU: lower back unrest (‘RLS’?), p: pee, p2: pain 2 of 7 before peeing, i: ideas.

ACTIVITIES: TT, e.g. "5:1"

TT = table tennis, 5:1 = score, usually showing how well I’m feeling: energy, relaxedness & alertness if the first number is much higher than the second.

SUPPS: supplements (as opposed to herbs & meds). Fx: Effects. Sfx: Side effects.

SELF-TREATMENTS (about everything else...)

The self-treatments listed are only things that I’m spotlighting & rewarding myself for at the mo by counting them; much of what I do at night is self-treatment to get back to sleep or alleviate (1-2h/d), certain regular movements at daytime, like twist-stretching (30’), writing this blog is self-treatment (30’-60’/d), and the further fibro-work is an indirect form.
Self treatments are usually preventative or always have the same positive effect (e.g. cold showering improves Ache and sleep) - at least I do them for that - and I use “:arrow_forward:” to show what I’m doing to alleviate something and mark it off in the details “:white_check_mark:/:x:” whether it works well enough for a time or doesn’t’, e.g. Ache :arrow_forward: cold fast shower “:white_check_mark:
fw = fibro-work, meaning reading and writing this blog, the reference base, on 4 fibro-forums and researching fibro-stuff on the web.
AuTr = Autogenic Training (usually to actively get - back - to sleep, so counting it as sleep and AuTr…),
FAT Flash/fast autogenic training: immediate image of dreamy floating in space or liquid from jaw to legs.
cold/FCS = Flash Cold Shower (20’’-60’’) , I count it as 10’ tho. At night with ear plugs & all lights off.
breath-hold/WHM-B-H = Wim Hof Method Breath-Holding,
Neck 1 is stretching top right to bottom left, vice versa & sky/ground, neck “1+” is stretching far further diagonally downwards, neck 2 is pressing my head against my hand “without moving”, left right and front.
loins = loins/groin = stretching the ligaments there.
ex = exercises
HWB = Hot water bottle,
RR = bp = blood pressure (Riva Rocci), plus pulse. Used to be normal, plus sometimes white coat syndrome, went up since fibro, seems to have gone down again enough so I’ve not only stopped lercanidipine, but also candesartan and am checking RR regularly.
:new: “V” for loins = lie on back, legs up and let legs fall to sides;
:new: twist-stretching more for the loins
:white_check_mark: :x: :face_with_monocle: ➔ ⇄ ⇨➜ ➞ :arrow_right: ➲ ↔:⇰↔ →:arrow_upper_right: :arrow_lower_right:

↯ ↛ ↺ ↮ ⇝ ⇾ ⟹ ⭆ ⤮:

2021-09-13, Monday - daft day, tired, hurt myself, other daft things, daft…

Triggers & resulting Symptoms

SLEEP: 9h05, up 5x (25') ➔ Feeling 80% well, Ache 2 of 7 ✅/❌ +1h05 nap➔ 80%/2

FCS 22:55-
0:55 5’ 90%/1 p0 st1 drink fw1’
1:55 3’ 90%/1 p2 (again?) st1 drink fw1’ + Umcka
3:10 10’ 90%/1 p0 st1 drink fw4’ + 600mg GABA & 400mg L-glutamine & 1x289mg passiflora

  • "300"mg theanine HWB (forgot to take the 3 before…)
    5:00 4’ 90%/1 p2-3 st1 drink fw2’ bladder praps due to taking the bigger night dose too late.
    7:25 3’ 90%/1 p0 st1 drink fw1’
    -8:25
    Sum: 1h05+8h25-(5+3+10+4+3=)25’=9h30-25’=9h05, up 5x (25’)
    17:05-18:10 nap 1h05. Still tired afterwards.
ACTIVITIES➔ACHE: Continuing 80%/2 ❌, despite 2x serrapeptase at 10 & 15 ❌, but also despite mask-talking at work 60' ✅ & TT 60', (relaxed, fairly easy, winning increasingly more) ✅. Weather change with temperature drop? Still tired after nap 17-18.

Ache = also Exhaustion/Tired :white_check_mark: :x: :face_with_monocle: ➔ ?90%/1
Cycle➔ exhaustion, also as action➔pains;
TT = Table-Tennis➔ easy or effortless or strained or tough?
talk/meetings here (and actions➔pains?)
Grandchild➔
Work/Mask-talking➔
Socializing/Talking➔

ACTIONS➔ PAINS: Hurt left foot by miscalculating bed in the dark, had to start limping, stretching it helped; cold & Traumeel arnica cream on it at 16:00. Lying ✅, standing ✅, loins ✅/, sitting ✅, arms up ✅, stiffness after poses ✅, fast cycling ✅, bladder: pain 2xp2 at night praps due to taking the bigger night dose too late? also 14:00 p2 ✅(❌/🧐), GI: severe stomach pain after about 10 sweet cherries out of a glass in the evening (off? FODMAP? quercetin? but good?: anti-inflammatory, joints?) ❌, talking ✅, mask-talking ✅(/❌)

:white_check_mark: :x: :face_with_monocle:
Lie ➔ LBU = lower back unrest, hunchback, Neck, thighs, elbows, itch, cold/hot, nose stuffy
Stand ➔ Legs, back
Knees up ➔ right loin
Arms up ➔ pain
Sit ➔ Backside, lower back
Pose ➔ stiffness (Stiffness after holding a posture): Time 0-60’’, pain amount if faster.
Walk ➔ Elbows, feet, right knee
Cycle ➔ Feet, knees, backside, elbows, hands, neck
Drink ➔ Pee frequency, pain before peeing (p0-6).
Eat ➔ Esophagus block, stomach, gut, rectum, stool (IBSD?). GI for short
Talk➔Jaw (& Ache)
Mask-talk ➔ not sure how to describe it, just plain yucky.

Treatments

SELF-PHYSIO: 59h ✅, fibro-work (fw) 1h

:white_check_mark: Timing, AuTr 5’, hunchback-pillow 10’, cold shower (10’), HWB 3’, palpate 1’, belly 3’, back 7’, neck 1+ 4’, neck 2 3’, twist-stretch 10’, loins 3’,
:x: gums 2x30’’, thumbnails 10x30’’, V ‘, marionette-hang 1’,mirror 2’, shaking dance 1’, breath-hold 11’, RR x2’, yoga, workout 7’

fw: Night: 10 + 20’ + 30’?

THERAPIES: Neck first 80°, later partially 90°, 22:00 hurts a bit at 45° right, 70° left tho ✅

Acupressure / Therapy, Doc/Diagnoses ? :white_check_mark: :x: :face_with_monocle: Acupressure 2h Tues & 2h Fri:

Supps to KEEP UP: PAIN (ACHE; stiffness?) ✅: serrapeptase as nec: Feeling ... fatigued & slightly achey, so trying: 10:10, again ~15:00. Made me sleepy? (Made my colleague sleep a treat!) Helped a bit with Ache? ✅: SLEEP: 0) 21:00 3x289mg passiflora, selene, rosewort/Mg carbonate/B1; bedtime GABA 1x"450"; +2h GABA "600", 400 glutamine, 1x passiflora, ✅ +4h 300 theanine WAKE/FOG: 0) +8h theanine 300 + GABA 400 ✅

For heartburn: Almonds first. (Bentonite, medicinal clay, mumijo?).
20:40 3x289 passiflora, selene, rosewort/magnesium carbonate/B1 at meal
22:30 600mg GABA
3:15 600mg GABA & ?400mg L-glutamine & 289mg passiflora + "300"mg theanine
9:30 400 GABA + 300mg theanine …
Serrapeptase: 10:10 & 15:00

Supps UP NEXT: Adjust to get body feeling (esp. head/eyes/feverishness) more natural. +WAKE/FOG: 0) ginkgo 1) SAMe 2) Ribose 3) NADH/NAD+ 4) ALC (I have LC: orally or injected?) 5) glycine. +STIFFNESS: glutamine? 🧐 +SLEEP: Apparently no longer nec: specks of tryptophan, melatonin, levodopa. NAC?. A) Schüssler B) SUPPS C) MEDS Info:

:arrow_upper_right: :arrow_lower_right:
A Homeopathy: Schüssler 2, 4, & 7 (need 3-6 months sez my acupressurist).

B SUPPS: Amino acids, Enzymes, Minerals, Vitamins
Amino acids: +B6 (as P5P), +Zn, +lithium orotate, more glutamine?, SAMe, glycine
1+2 Balancing GABA & glutamine: 1 Healthfully B6, 2 Perkins: Lithium orotate, Zn, 3 Jockers strange doses!? 4 Levy: vitamin B6, as P-5'-P?

1.1 Healthfully: tyrosine, tryptophan, B6, high complex carb early, low protein late"]
1.2 Zn Cynthia Perkins:: Low (<50mg) carb paleo, high animal protein; (Mg) Zn <40mg, lithium orotate 125-200mg, glycine often excitatory; praps, or not: taurine, vit. B6, SAMe, NAC, theanine"]

Glutamine/dopamine for stiffness/gait?!?: Low Dopamine in Fibromyalgia and CFS
SAMe: 400-800mg in the mornings, as stimulating, not much research"]

NADH/NAD+ B3-coenzyme for energy & post exertional malaise.
Acetyl L-Carnitine (ALC)?: Drink as liquid… Or ask sleep lab psychiatrist to inject it? ALC’s helping Jemima feel alert, dose: 2x750mg, for no sfx keep under 3000. Needs to be Acetyl for the brain she sez. Question about kinds of pain | Page 2 | Fibromyalgia Forum.
D-Ribose: muscle fatigue, ATP; GI-sfx, so keep under 500mg; little evidence.
Zinc again (bloods are in the middle)? Watch out for the sfx!
Magnesium - glycinate yes or no? malate? “60mg” carbonate in the roseroot?
Increase rose root from 1x200mg to 2 or 3 for serotonin etc. as well as blood pressure (normal now)?
Vitamin B12 injections again?
Vitamin B6 as P5P?
Vitamin C ultra-high dose 7,5g, to be put in 250ml NaCl solution & injected - if I can ever find someone to inject it.

C MEDS repeat?: NAC, levodopa, blood fat meds, blood pressure
NAC sleep -2400mg, better or worse (med)

(N-acetylcysteine) as I wrote here (better liposomal) as glutamate antagonist and to help sleep is mentioned on the last link (CFS/ME, with fibromites there too) suggest 1800 or 2400 mg, whilst more causes - again - diarrhea. The last person on that page also says “I elevated my glutamate / GABA levels with excess taurine” and very importantly “Once elevated Glutamate seems to be slow to rebalance” - got to watch that!
levodopa: repeat 50mg (100mg seemed to increase LBU),
Ezetimibe+atorvastatin if blood fats don’t stay down - smaller dose if at all?
Candesartan if blood pressure doesn’t stay down.

D) RELAX: A bit more Yoga Nidra on youtube.
E) MERIDIANS: real Chinese-trained acupuncture? Pardon Our Interruption
F) DOC Fibro-doc 200km from here?
G) REPEAT? Again in specks/diluted: Melatonin, 10% CBD oil, 5-HTP, ashwagandha.

Highlights week 6th to 11th.

Abbreviations & explanations

Entries start with night meds & sleep, before triggers/symptoms & treatments, because the “night before” is vital. So Fri-day starts with Thursday night, the night before Friday.

Pain "7" = crying (/out) point; my 1 is others 2-3, and due to pacing/treatments

My wife says my 7 is other people’s 12. 1 is probably 2-3. Due to pacing, keeping work down to 25% (12h/wk) and all my treatments (acupressure, GABA) and physio self-treatments I manage to keep getting my pains & Ache down quickly. 3 usually means the Ache, not pains; these I address individually, often automatically and on the fly now, e.g. twist-stretching everything or something specific after getting up.

TIME DATA, e.g. ' = mins, h = hours, 18:10:40', date YYYY-MM-DD

’ = mins = minutes, ‘’ = secs = seconds, h is hours as time length, 3h is 3 hours long, 3:00 is 3am, 15:00 is 3pm. 18:10:40’ means 40 minutes, starting at 18:10, = 10 minutes past 6pm up to 10 to 7pm. The date is the logical digital standard: YYYY-MM-DD.

SLEEP: slp, w, lbu/LBU, RLS, p, i

slp = sleep; reasons for getting up: w = (a)wake, lbu/LBU: lower back unrest (‘RLS’?), p: pee, p2: pain 2 of 7 before peeing, i: ideas.

ACTIVITIES: TT, e.g. "5:1"

TT = table tennis, 5:1 = score, usually showing how well I’m feeling: energy, relaxedness & alertness if the first number is much higher than the second.

SUPPS: supplements (as opposed to herbs & meds). Fx: Effects. Sfx: Side effects.

SELF-TREATMENTS (about everything else...)

The self-treatments listed are only things that I’m spotlighting & rewarding myself for at the mo by counting them; much of what I do at night is self-treatment to get back to sleep or alleviate (1-2h/d), certain regular movements at daytime, like twist-stretching (30’), writing this blog is self-treatment (30’-60’/d), and the further fibro-work is an indirect form.
Self treatments are usually preventative or always have the same positive effect (e.g. cold showering improves Ache and sleep) - at least I do them for that - and I use “:arrow_forward:” to show what I’m doing to alleviate something and mark it off in the details “:white_check_mark:/:x:” whether it works well enough for a time or doesn’t’, e.g. Ache :arrow_forward: cold fast shower “:white_check_mark:
fw = fibro-work, meaning reading and writing this blog, the reference base, on 4 fibro-forums and researching fibro-stuff on the web.
AuTr = Autogenic Training (usually to actively get - back - to sleep, so counting it as sleep and AuTr…),
FAT Flash/fast autogenic training: immediate image of dreamy floating in space or liquid from jaw to legs.
cold/FCS = Flash Cold Shower (20’’-60’’) , I count it as 10’ tho. At night with ear plugs & all lights off.
breath-hold/WHM-B-H = Wim Hof Method Breath-Holding,
Neck 1 is stretching top right to bottom left, vice versa & sky/ground, neck “1+” is stretching far further diagonally downwards, neck 2 is pressing my head against my hand “without moving”, left right and front.
loins = loins/groin = stretching the ligaments there.
ex = exercises
HWB = Hot water bottle,
RR = bp = blood pressure (Riva Rocci), plus pulse. Used to be normal, plus sometimes white coat syndrome, went up since fibro, seems to have gone down again enough so I’ve not only stopped lercanidipine, but also candesartan and am checking RR regularly.
:new: “V” for loins = lie on back, legs up and let legs fall to sides;
:new: twist-stretching more for the loins
:white_check_mark: :x: :face_with_monocle: ➔ ⇄ ⇨➜ ➞ :arrow_right: ➲ ↔:⇰↔ →:arrow_upper_right: :arrow_lower_right:

↯ ↛ ↺ ↮ ⇝ ⇾ ⟹ ⭆ ⤮:

2021-09-14, Tuesday - better (lots to do…)

Triggers & resulting Symptoms

SLEEP: 10h07-46=9h21, up 6x (46'), lots of dozing ➔ Feeling 80% well, Ache 1 of 7 at night ✅, finally 90%/1 tho

FCS 22:25- dozing at first, due to late nap.
1:09 7’ 90%/1 p0 st1 drink fw2’ + 600mg GABA & 400mg L-glutamine & 1x289mg passiflora
2:55 3’ 90%/1 p0 st1 drink fw1’ + "300"mg theanine
4:10 10’ hot flash FCS#2 90%/1 p0 st1 drink fw1’ right loin a bit.
4:55 20’ 6
6:10 3’ 90%/1 p0 st1 drink fw1’
7:37 3’ 90%/1 p0 st1 drink fw1’
-8:32 dozing quite a bit all night
Sum: 1h35+8h32-(7+3+10+20+3+3=)46= 10h07-46=9h21, up 6x (46’), lots of dozing

ACTIVITIES➔ACHE: Music production & lesson ➔90%/1, Dentist: filling, later a bit of tooth ache when/after eating ➔80%/1, Acupressure ➔90%/1, TT 1h ➔ 90%/1

Ache = also Exhaustion/Tired :white_check_mark: :x: :face_with_monocle: ➔ ?90%/1
Cycle➔ exhaustion, also as action➔pains;
TT = Table-Tennis➔ easy or effortless or strained or tough?
talk/meetings here (and actions➔pains?)
Grandchild➔
Work/Mask-talking➔
Socializing/Talking➔

ACTIONS➔ PAINS: Lying ✅, standing ✅, loins ✅, sitting: working at home quickly without a backrest for 1.5h tough, pain of 4 ❌, arms up ✅, stiffness after poses: good, esp. after acupressure ✅, cycling: much faster possible after acupressure ✅, bladder p2 at 15:00, after acupressure ✅/🧐, GI ✅, talking ✅

:white_check_mark: :x: :face_with_monocle:
Lie ➔ LBU = lower back unrest, hunchback, Neck, thighs, elbows, itch, cold/hot, nose stuffy
Stand ➔ Legs, back
Knees up ➔ right loin
Arms up ➔ pain
Sit ➔ Backside, lower back
Pose ➔ stiffness (Stiffness after holding a posture): Time 0-60’’, pain amount if faster.
Walk ➔ Elbows, feet, right knee
Cycle ➔ Feet, knees, backside, elbows, hands, neck
Drink ➔ Pee frequency, pain before peeing (p0-6).
Eat ➔ Esophagus block, stomach, gut, rectum, stool (IBSD?). GI for short
Talk➔Jaw (& Ache)
Mask-talk ➔ not sure how to describe it, just plain yucky.

Treatments

SELF-PHYSIO: 63' ✅, fibro-work (fw) 15'

:white_check_mark: Timing, AuTr 5’, hunchback-pillow 10’, cold shower 2x(10’), palpate 1’, belly 3’, back 7’, neck 1+ 4’, neck 2 5’, twist-stretch 5’, loins 3’,
:x: gums 2x30’’, thumbnails 10x30’’, V ‘, marionette-hang 1’,mirror 2’, shaking dance 1’, breath-hold 11’, RR x2’, HWB 3’, yoga, workout 7’

fw: Night: 5? + 10’

THERAPIES: Acupressure loins & legs again, bettered all movements: neck, loins, stiffness, energy

Acupressure / Therapy, Doc/Diagnoses ? :white_check_mark: :x: :face_with_monocle: Acupressure 2h Tues & 2h Fri:

Supps to KEEP UP: PAIN (ACHE; stiffness?) ✅: serrapeptase not nec. SLEEP: 0) 21:00 3x289mg passiflora, selene, rosewort/Mg carbonate/B1; bedtime GABA 1x"450"; +2h GABA "600", 400 glutamine, 1x passiflora, ✅ +4h 300 theanine WAKE/FOG: 0) +8h theanine 300 + GABA 400 ✅

For heartburn: Almonds first. (Bentonite, medicinal clay, mumijo?).
21:50 3x289 passiflora, selene, rosewort/magnesium carbonate/B1 at meal
21:55 600mg GABA
1:10 600mg GABA & ?400mg L-glutamine & 289mg passiflora
2:55 "300"mg theanine
9:00 400 GABA + 300mg theanine …
Serrapeptase: None.

Supps UP NEXT: Adjust to get body feeling (esp. head/eyes/feverishness) more natural. +WAKE/FOG: 0) ginkgo 1) SAMe 2) Ribose 3) NADH/NAD+ 4) ALC (I have LC: orally or injected?) 5) glycine. +STIFFNESS: glutamine? 🧐 +SLEEP: Apparently no longer nec: specks of tryptophan, melatonin, levodopa. NAC?. A) Schüssler B) SUPPS C) MEDS Info:

:arrow_upper_right: :arrow_lower_right:
A Homeopathy: Schüssler 2, 4, & 7 (need 3-6 months sez my acupressurist).

B SUPPS: Amino acids, Enzymes, Minerals, Vitamins
Amino acids: +B6 (as P5P), +Zn, +lithium orotate, more glutamine?, SAMe, glycine
1+2 Balancing GABA & glutamine: 1 Healthfully B6, 2 Perkins: Lithium orotate, Zn, 3 Jockers strange doses!? 4 Levy: vitamin B6, as P-5'-P?

1.1 Healthfully: tyrosine, tryptophan, B6, high complex carb early, low protein late"]
1.2 Zn Cynthia Perkins:: Low (<50mg) carb paleo, high animal protein; (Mg) Zn <40mg, lithium orotate 125-200mg, glycine often excitatory; praps, or not: taurine, vit. B6, SAMe, NAC, theanine"]

Glutamine/dopamine for stiffness/gait?!?: Low Dopamine in Fibromyalgia and CFS
SAMe: 400-800mg in the mornings, as stimulating, not much research"]

NADH/NAD+ B3-coenzyme for energy & post exertional malaise.
Acetyl L-Carnitine (ALC)?: Drink as liquid… Or ask sleep lab psychiatrist to inject it? ALC’s helping Jemima feel alert, dose: 2x750mg, for no sfx keep under 3000. Needs to be Acetyl for the brain she sez. Question about kinds of pain | Page 2 | Fibromyalgia Forum.
D-Ribose: muscle fatigue, ATP; GI-sfx, so keep under 500mg; little evidence.
Zinc again (bloods are in the middle)? Watch out for the sfx!
Magnesium - glycinate yes or no? malate? “60mg” carbonate in the roseroot?
Increase rose root from 1x200mg to 2 or 3 for serotonin etc. as well as blood pressure (normal now)?
Vitamin B12 injections again?
Vitamin B6 as P5P?
Vitamin C ultra-high dose 7,5g, to be put in 250ml NaCl solution & injected - if I can ever find someone to inject it.

C MEDS repeat?: NAC, levodopa, blood fat meds, blood pressure
NAC sleep -2400mg, better or worse (med)

(N-acetylcysteine) as I wrote here (better liposomal) as glutamate antagonist and to help sleep is mentioned on the last link (CFS/ME, with fibromites there too) suggest 1800 or 2400 mg, whilst more causes - again - diarrhea. The last person on that page also says “I elevated my glutamate / GABA levels with excess taurine” and very importantly “Once elevated Glutamate seems to be slow to rebalance” - got to watch that!
levodopa: repeat 50mg (100mg seemed to increase LBU),
Ezetimibe+atorvastatin if blood fats don’t stay down - smaller dose if at all?
Candesartan if blood pressure doesn’t stay down.

D) RELAX: A bit more Yoga Nidra on youtube.
E) MERIDIANS: real Chinese-trained acupuncture? Pardon Our Interruption
F) DOC Fibro-doc 200km from here?
G) REPEAT? Again in specks/diluted: Melatonin, 10% CBD oil, 5-HTP, ashwagandha.

Highlights week 6th to 11th.

Abbreviations & explanations

Entries start with night meds & sleep, before triggers/symptoms & treatments, because the “night before” is vital. So Fri-day starts with Thursday night, the night before Friday.

Pain "7" = crying (/out) point; my 1 is others 2-3, and due to pacing/treatments

My wife says my 7 is other people’s 12. 1 is probably 2-3. Due to pacing, keeping work down to 25% (12h/wk) and all my treatments (acupressure, GABA) and physio self-treatments I manage to keep getting my pains & Ache down quickly. 3 usually means the Ache, not pains; these I address individually, often automatically and on the fly now, e.g. twist-stretching everything or something specific after getting up.

TIME DATA, e.g. ' = mins, h = hours, 18:10:40', date YYYY-MM-DD

’ = mins = minutes, ‘’ = secs = seconds, h is hours as time length, 3h is 3 hours long, 3:00 is 3am, 15:00 is 3pm. 18:10:40’ means 40 minutes, starting at 18:10, = 10 minutes past 6pm up to 10 to 7pm. The date is the logical digital standard: YYYY-MM-DD.

SLEEP: slp, w, lbu/LBU, RLS, p, i

slp = sleep; reasons for getting up: w = (a)wake, lbu/LBU: lower back unrest (‘RLS’?), p: pee, p2: pain 2 of 7 before peeing, i: ideas.

ACTIVITIES: TT, e.g. "5:1"

TT = table tennis, 5:1 = score, usually showing how well I’m feeling: energy, relaxedness & alertness if the first number is much higher than the second.

SUPPS: supplements (as opposed to herbs & meds). Fx: Effects. Sfx: Side effects.

SELF-TREATMENTS (about everything else...)

The self-treatments listed are only things that I’m spotlighting & rewarding myself for at the mo by counting them; much of what I do at night is self-treatment to get back to sleep or alleviate (1-2h/d), certain regular movements at daytime, like twist-stretching (30’), writing this blog is self-treatment (30’-60’/d), and the further fibro-work is an indirect form.
Self treatments are usually preventative or always have the same positive effect (e.g. cold showering improves Ache and sleep) - at least I do them for that - and I use “:arrow_forward:” to show what I’m doing to alleviate something and mark it off in the details “:white_check_mark:/:x:” whether it works well enough for a time or doesn’t’, e.g. Ache :arrow_forward: cold fast shower “:white_check_mark:
fw = fibro-work, meaning reading and writing this blog, the reference base, on 4 fibro-forums and researching fibro-stuff on the web.
AuTr = Autogenic Training (usually to actively get - back - to sleep, so counting it as sleep and AuTr…),
FAT Flash/fast autogenic training: immediate image of dreamy floating in space or liquid from jaw to legs.
cold/FCS = Flash Cold Shower (20’’-60’’) , I count it as 10’ tho. At night with ear plugs & all lights off.
breath-hold/WHM-B-H = Wim Hof Method Breath-Holding,
Neck 1 is stretching top right to bottom left, vice versa & sky/ground, neck “1+” is stretching far further diagonally downwards, neck 2 is pressing my head against my hand “without moving”, left right and front.
loins = loins/groin = stretching the ligaments there.
ex = exercises
HWB = Hot water bottle,
RR = bp = blood pressure (Riva Rocci), plus pulse. Used to be normal, plus sometimes white coat syndrome, went up since fibro, seems to have gone down again enough so I’ve not only stopped lercanidipine, but also candesartan and am checking RR regularly.
:new: “V” for loins = lie on back, legs up and let legs fall to sides;
:new: twist-stretching more for the loins
:white_check_mark: :x: :face_with_monocle: ➔ ⇄ ⇨➜ ➞ :arrow_right: ➲ ↔:⇰↔ →:arrow_upper_right: :arrow_lower_right:

↯ ↛ ↺ ↮ ⇝ ⇾ ⟹ ⭆ ⤮:

2021-09-15, Wednesday

Triggers & resulting Symptoms

SLEEP: 9h28, up 5x (37'), dozing somewhat ➔ Feeling 90% well, Ache 1 of 7 ✅

FCS 22:40-
0:10 3’ 90%/1 p0 st1 drink fw1’ + 600mg GABA & 400mg L-glutamine & 1x289mg passiflora, toothache better now. Heartburn → almonds.
2:28 3’ 90%/1 p1 st1 (tendons hurt) drink fw1’ + "300"mg theanine.
5:05 3’ 90%/1 p0 st1 drink fw1’
5:20 25’ 6 90%/1 p0 st1 drink fw1’ dozing quite a bit
7:50 3’ 90%/1 p0 st1 drink fw1’ some dozing
-8:45
Sum: 1h20+8:45-(3+3+3+25+3=)37’= 10h05-37’= 9h28, up 5x (37’), dozing somewhat

ACTIVITIES➔ACHE: Weather rainy, sort of warm, sort of windy, but not as bad as Monday. Work 4h, pretty much non-stop, not enough time to eat enough ➔ 80%/1 ✅, 20'+45' talking with mask, 1.5h in between talking without (rest just laptop), OK, but feverish & air-hungry, so TT 50' good despite it being wet, then cycling 25', talking 1h, grandchild 45', cycling back 20', break 10', cycling slowly 10': all ➔ 80%/1 ✅, great considering, but overdoing it, need to come down somehow now.

Ache = also Exhaustion/Tired :white_check_mark: :x: :face_with_monocle: ➔ ?90%/1
Cycle➔ exhaustion, also as action➔pains;
TT = Table-Tennis➔ easy or effortless or strained or tough?
talk/meetings here (and actions➔pains?)
Grandchild➔
Work/Mask-talking➔
Socializing/Talking➔

ACTIONS➔ PAINS: Lying: elbows-tendons interestingly still seem painful often, also to touch ❌/🧐, standing ✅, loins ✅, sitting depending what on ✅/❌, arms up ✅, stiffness after poses ✅, cycling not too fast due to sticky weather ✅, bladder; generally p0, but p3 at 19:30 ✅(❌/🧐), GI ✅, talking ✅(❌/🧐), mask-talking ✅(❌/🧐) What can I do against the feverishness after mask-talking? Why am I the only one with or without fibro who has this??

:white_check_mark: :x: :face_with_monocle:
Lie ➔ LBU = lower back unrest, hunchback, Neck, thighs, elbows, itch, cold/hot, nose stuffy
Stand ➔ Legs, back
Knees up ➔ right loin
Arms up ➔ pain
Sit ➔ Backside, lower back
Pose ➔ stiffness (Stiffness after holding a posture): Time 0-60’’, pain amount if faster.
Walk ➔ Elbows, feet, right knee
Cycle ➔ Feet, knees, backside, elbows, hands, neck
Drink ➔ Pee frequency, pain before peeing (p0-6).
Eat ➔ Esophagus block, stomach, gut, rectum, stool (IBSD?). GI for short
Talk➔Jaw (& Ache)
Mask-talk ➔ not sure how to describe it, just plain yucky.

Treatments

SELF-PHYSIO: 53' ✅, fibro-work (fw) 10'. Supp ordering 25'

:white_check_mark: Timing, AuTr 5’, hunchback-pillow 5’, cold shower (10’), palpate 1’, belly 3’, back 7’, neck 1+ 4’, neck 2 3’, twist-stretch 10’, loins 5’.
:x: gums 2x30’’, thumbnails 10x30’’, V ‘, marionette-hang 1’, mirror 2’, shaking dance 1’, breath-hold 11’, RR x2’, HWB 3’, yoga, workout 7’

fw: Night: 5 + 5’

THERAPIES: Neck & loins quite good all day, did exercises tho.

Acupressure / Therapy, Doc/Diagnoses ? :white_check_mark: :x: :face_with_monocle: Acupressure 2h Tues & 2h Fri:

Supps to KEEP UP: Starting to feel more natural. PAIN (ACHE; stiffness?) ✅: serrapeptase not nec, or shd I've tried it for the feverishness? - cos it does feel inflammatory. SLEEP: Sleep disturbed a bit 🧐 0) 21:00 3x289mg passiflora, selene, rosewort/Mg carbonate/B1; bedtime GABA 1x"450"; +2h GABA "600", 400 glutamine, 1x passiflora, ✅ +4h 300 theanine WAKE/FOG: 0) +8h theanine 300 + GABA 400 ✅

For heartburn: Almonds first. (Bentonite, medicinal clay, mumijo?).
21:00 3x289 passiflora, selene, rosewort/magnesium carbonate/B1 at meal
22:20 600mg GABA
0:10 600mg GABA & ?400mg L-glutamine & 289mg passiflora
2:30 "300"mg theanine
9:05 400 GABA + 300mg theanine …
Serrapeptase: no, but shdve tried

Supps UP NEXT: Try serrapeptase for overdoing-feverishness +WAKE/FOG: 0) ginkgo 1) SAMe 2) Ribose 3) NADH/NAD+ 4) ALC (I have LC: orally or injected?) 5) glycine. +STIFFNESS: +glutamine balanced with GABA at daytime? 🧐 +SLEEP: If the slight sleep disturbances of the last 2 days keep up longer, I shd think about adding: specks of tryptophan 🧐, or melatonin, levodopa. NAC?. A) Schüssler B) SUPPS C) MEDS Info:

:arrow_upper_right: :arrow_lower_right:
A Homeopathy: Schüssler 2, 4, & 7 (need 3-6 months sez my acupressurist).

B SUPPS: Amino acids, Enzymes, Minerals, Vitamins
Amino acids: +B6 (as P5P), +Zn, +lithium orotate, more glutamine?, SAMe, glycine
1+2 Balancing GABA & glutamine: 1 Healthfully B6, 2 Perkins: Lithium orotate, Zn, 3 Jockers strange doses!? 4 Levy: vitamin B6, as P-5'-P?

1.1 Healthfully: tyrosine, tryptophan, B6, high complex carb early, low protein late"]
1.2 Zn Cynthia Perkins:: Low (<50mg) carb paleo, high animal protein; (Mg) Zn <40mg, lithium orotate 125-200mg, glycine often excitatory; praps, or not: taurine, vit. B6, SAMe, NAC, theanine"]

Glutamine/dopamine for stiffness/gait?!?: Low Dopamine in Fibromyalgia and CFS
SAMe: 400-800mg in the mornings, as stimulating, not much research"]

NADH/NAD+ B3-coenzyme for energy & post exertional malaise.
Acetyl L-Carnitine (ALC)?: Drink as liquid… Or ask sleep lab psychiatrist to inject it? ALC’s helping Jemima feel alert, dose: 2x750mg, for no sfx keep under 3000. Needs to be Acetyl for the brain she sez. Question about kinds of pain | Page 2 | Fibromyalgia Forum.
D-Ribose: muscle fatigue, ATP; GI-sfx, so keep under 500mg; little evidence.
Zinc again (bloods are in the middle)? Watch out for the sfx!
Magnesium - glycinate yes or no? malate? “60mg” carbonate in the roseroot?
Increase rose root from 1x200mg to 2 or 3 for serotonin etc. as well as blood pressure (normal now)?
Vitamin B12 injections again?
Vitamin B6 as P5P?
Vitamin C ultra-high dose 7,5g, to be put in 250ml NaCl solution & injected - if I can ever find someone to inject it.

C MEDS repeat?: NAC, levodopa, blood fat meds, blood pressure
NAC sleep -2400mg, better or worse (med)

(N-acetylcysteine) as I wrote here (better liposomal) as glutamate antagonist and to help sleep is mentioned on the last link (CFS/ME, with fibromites there too) suggest 1800 or 2400 mg, whilst more causes - again - diarrhea. The last person on that page also says “I elevated my glutamate / GABA levels with excess taurine” and very importantly “Once elevated Glutamate seems to be slow to rebalance” - got to watch that!
levodopa: repeat 50mg (100mg seemed to increase LBU),
Ezetimibe+atorvastatin if blood fats don’t stay down - smaller dose if at all?
Candesartan if blood pressure doesn’t stay down.

D) RELAX: A bit more Yoga Nidra on youtube.
E) MERIDIANS: real Chinese-trained acupuncture? Pardon Our Interruption
F) DOC Fibro-doc 200km from here?
G) REPEAT? Again in specks/diluted: Melatonin, 10% CBD oil, 5-HTP, ashwagandha.

Development

  • At the moment I’m realizing that if nec I don’t have to do much to fill this blog template up, due to the facts that :one: the supps are working quite well :two: the template has become quite complete, at least for the present state of my condition… Nice to have a plateau :slight_smile:
  • I think I shd note how long I take to order supps…

Highlights week 6th to 11th.

Abbreviations & explanations

Entries start with night meds & sleep, before triggers/symptoms & treatments, because the “night before” is vital. So Fri-day starts with Thursday night, the night before Friday.

Pain "7" = crying (/out) point; my 1 is others 2-3, and due to pacing/treatments

My wife says my 7 is other people’s 12. 1 is probably 2-3. Due to pacing, keeping work down to 25% (12h/wk) and all my treatments (acupressure, GABA) and physio self-treatments I manage to keep getting my pains & Ache down quickly. 3 usually means the Ache, not pains; these I address individually, often automatically and on the fly now, e.g. twist-stretching everything or something specific after getting up.

TIME DATA, e.g. ' = mins, h = hours, 18:10:40', date YYYY-MM-DD

’ = mins = minutes, ‘’ = secs = seconds, h is hours as time length, 3h is 3 hours long, 3:00 is 3am, 15:00 is 3pm. 18:10:40’ means 40 minutes, starting at 18:10, = 10 minutes past 6pm up to 10 to 7pm. The date is the logical digital standard: YYYY-MM-DD.

SLEEP: slp, w, lbu/LBU, RLS, p, i

slp = sleep; reasons for getting up: w = (a)wake, lbu/LBU: lower back unrest (‘RLS’?), p: pee, p2: pain 2 of 7 before peeing, i: ideas.

ACTIVITIES: TT, e.g. "5:1"

TT = table tennis, 5:1 = score, usually showing how well I’m feeling: energy, relaxedness & alertness if the first number is much higher than the second.

SUPPS: supplements (as opposed to herbs & meds). Fx: Effects. Sfx: Side effects.

SELF-TREATMENTS (about everything else...)

The self-treatments listed are only things that I’m spotlighting & rewarding myself for at the mo by counting them; much of what I do at night is self-treatment to get back to sleep or alleviate (1-2h/d), certain regular movements at daytime, like twist-stretching (30’), writing this blog is self-treatment (30’-60’/d), and the further fibro-work is an indirect form.
Self treatments are usually preventative or always have the same positive effect (e.g. cold showering improves Ache and sleep) - at least I do them for that - and I use “:arrow_forward:” to show what I’m doing to alleviate something and mark it off in the details “:white_check_mark:/:x:” whether it works well enough for a time or doesn’t’, e.g. Ache :arrow_forward: cold fast shower “:white_check_mark:
fw = fibro-work, meaning reading and writing this blog, the reference base, on 4 fibro-forums and researching fibro-stuff on the web.
AuTr = Autogenic Training (usually to actively get - back - to sleep, so counting it as sleep and AuTr…),
FAT Flash/fast autogenic training: immediate image of dreamy floating in space or liquid from jaw to legs.
cold/FCS = Flash Cold Shower (20’’-60’’) , I count it as 10’ tho. At night with ear plugs & all lights off.
breath-hold/WHM-B-H = Wim Hof Method Breath-Holding,
Neck 1 is stretching top right to bottom left, vice versa & sky/ground, neck “1+” is stretching far further diagonally downwards, neck 2 is pressing my head against my hand “without moving”, left right and front.
loins = loins/groin = stretching the ligaments there.
ex = exercises
HWB = Hot water bottle,
RR = bp = blood pressure (Riva Rocci), plus pulse. Used to be normal, plus sometimes white coat syndrome, went up since fibro, seems to have gone down again enough so I’ve not only stopped lercanidipine, but also candesartan and am checking RR regularly.
:new: “V” for loins = lie on back, legs up and let legs fall to sides;
:new: twist-stretching more for the loins
:white_check_mark: :x: :face_with_monocle: ➔ ⇄ ⇨➜ ➞ :arrow_right: ➲ ↔:⇰↔ →:arrow_upper_right: :arrow_lower_right:

↯ ↛ ↺ ↮ ⇝ ⇾ ⟹ ⭆ ⤮:

2021-09-16, Thursday - revisited tryptophan (less & encapsulated)…: OK… :face_with_monocle: Quite good day, considering, need to relax more tho.

Triggers & resulting Symptoms

SLEEP: 8h, up 4x (51') minus 30'? doze, first tryptophan try. ➔ Feeling 90% well, Ache 1 of 7 ✅

FCS p1 23:00-
2:00 8’ 90%/1 p0 st1 drink fw1’ + 600mg GABA & 400mg L-glutamine & 1x289mg passiflora. heartburn → almonds
2:23 10’ FCS#2 90%/1 p0 st1 drink fw1’ wk4’ + 2:33 "300"mg theanine
2:55 5’+25’=30’ 90%/1 "400"mg tryptophan encapsulated st1 drink fw1’ 6. → 30’ doze.
5:30 3’ 90%/1 st1 fw1’
3’ ?90%/1 p0-1 st1 drink fw2’
-7:50 9’ p0
Sum: 1h+7h50-(8+10+30+3=)51’= 8h, up 4x (51’) minus 30’? doze, first tryptophan try.

ACTIVITIES➔ACHE: Actually ➔85-90%/1 all day, despite again 5h work, might've stressful for others, wasn't for me, cycling pretty fast, TT dead easy, lots of talking & mask-talking, but not loud. Socializing in the evening

Ache = also Exhaustion/Tired :white_check_mark: :x: :face_with_monocle: ➔ ?90%/1
Cycle➔ exhaustion, also as action➔pains;
TT = Table-Tennis➔ easy or effortless or strained or tough?
talk/meetings here (and actions➔pains?)
Grandchild➔
Work/Mask-talking➔
Socializing/Talking➔

ACTIONS➔ PAINS: Lying ✅, standing ✅, loins ✅, sitting ✅, arms up ✅, stiffness after poses ✅, fast cycling ✅, bladder: none in the daytime (2x pain at night) ✅, GI: despite "400mg" tryptophan ✅, talking work & evening ✅, quite a bit of mask-talking at work, without too much repercussion ✅

:white_check_mark: :x: :face_with_monocle:
Lie ➔ LBU = lower back unrest, hunchback, Neck, thighs, elbows, itch, cold/hot, nose stuffy
Stand ➔ Legs, back
Knees up ➔ right loin
Arms up ➔ pain
Sit ➔ Backside, lower back
Pose ➔ stiffness (Stiffness after holding a posture): Time 0-60’’, pain amount if faster.
Walk ➔ Elbows, feet, right knee
Cycle ➔ Feet, knees, backside, elbows, hands, neck
Drink ➔ Pee frequency, pain before peeing (p0-6).
Eat ➔ Esophagus block, stomach, gut, rectum, stool (IBSD?). GI for short
Talk➔Jaw (& Ache)
Mask-talk ➔ not sure how to describe it, just plain yucky.

Treatments

SELF-PHYSIO: 1h30 ✅, fibro-work (fw) 1h

:white_check_mark: Timing, AuTr 10’, hunchback-pillow 10’, cold shower 2x(10’), palpate 1’, belly 3’, back 7’, neck 1+ 9’, neck 2 10’, twist-stretch 10’, loins 5’, yoga 5’,
:x: gums 2x30’’, thumbnails 10x30’’, V ‘, marionette-hang 1’, mirror 2’, shaking dance 1’, breath-hold 11’, RR x2’, HWB 3’, workout 7’

fw: Night: 5? + 5’ + 5’ +10 +30’*

THERAPIES: Neck & loins still OK, but I have to keep up the exercises now, not to forget!

Acupressure / Therapy, Doc/Diagnoses ? :white_check_mark: :x: :face_with_monocle: Acupressure 2h Tues & 2h Fri:

Supps to KEEP UP: Tryptophan at 3:00 for the first time. Starting to feel more natural. PAIN (ACHE; stiffness?) ✅: Serrapeptase not nec. today, no real feverishness, despite praps overdoing it a little bit. SLEEP: Sleep disturbed a bit 🧐 0) 21:00 3x289mg passiflora, selene, rosewort/Mg carbonate/B1; bedtime GABA 1x"450"; +2h GABA "600", 400 glutamine, 1x passiflora, ✅ +4h 300 theanine WAKE/FOG: 0) +8h theanine 300 + GABA 400 ✅

For heartburn: Almonds first. (Bentonite, medicinal clay, mumijo?).
21:30 3x289 passiflora, selene, rosewort/magnesium carbonate/B1 at meal
22:30 600mg GABA
2:00 600mg GABA & ?400mg L-glutamine & 289mg passiflora
2:33 "300"mg theanine
2:55 "400"mg trytophan
7:55 400 GABA + 300mg theanine …
Serrapeptase:

Supps UP NEXT: Try serrapeptase for overdoing-feverishness +WAKE/FOG: 0) ginkgo 1) SAMe 2) Ribose 3) NADH/NAD+ 4) ALC (I have LC: orally or injected?) 5) glycine. +STIFFNESS: +glutamine balanced with GABA at daytime? 🧐 +SLEEP: Keep tryptophan up 🧐, or melatonin, levodopa. NAC?. A) Schüssler B) SUPPS C) MEDS Info:

:arrow_upper_right: :arrow_lower_right:
A Homeopathy: Schüssler 2, 4, & 7 (need 3-6 months sez my acupressurist).

B SUPPS: Amino acids, Enzymes, Minerals, Vitamins
Amino acids: +B6 (as P5P), +Zn, +lithium orotate, more glutamine?, SAMe, glycine
1+2 Balancing GABA & glutamine: 1 Healthfully B6, 2 Perkins: Lithium orotate, Zn, 3 Jockers strange doses!? 4 Levy: vitamin B6, as P-5'-P?

1.1 Healthfully: tyrosine, tryptophan, B6, high complex carb early, low protein late"]
1.2 Zn Cynthia Perkins:: Low (<50mg) carb paleo, high animal protein; (Mg) Zn <40mg, lithium orotate 125-200mg, glycine often excitatory; praps, or not: taurine, vit. B6, SAMe, NAC, theanine"]

Glutamine/dopamine for stiffness/gait?!?: Low Dopamine in Fibromyalgia and CFS
SAMe: 400-800mg in the mornings, as stimulating, not much research"]

NADH/NAD+ B3-coenzyme for energy & post exertional malaise.
Acetyl L-Carnitine (ALC)?: Drink as liquid… Or ask sleep lab psychiatrist to inject it? ALC’s helping Jemima feel alert, dose: 2x750mg, for no sfx keep under 3000. Needs to be Acetyl for the brain she sez. Question about kinds of pain | Page 2 | Fibromyalgia Forum.
D-Ribose: muscle fatigue, ATP; GI-sfx, so keep under 500mg; little evidence.
Zinc again (bloods are in the middle)? Watch out for the sfx!
Magnesium - glycinate yes or no? malate? “60mg” carbonate in the roseroot?
Increase rose root from 1x200mg to 2 or 3 for serotonin etc. as well as blood pressure (normal now)?
Vitamin B12 injections again?
Vitamin B6 as P5P?
Vitamin C ultra-high dose 7,5g, to be put in 250ml NaCl solution & injected - if I can ever find someone to inject it.

C MEDS repeat?: NAC, levodopa, blood fat meds, blood pressure
NAC sleep -2400mg, better or worse (med)

(N-acetylcysteine) as I wrote here (better liposomal) as glutamate antagonist and to help sleep is mentioned on the last link (CFS/ME, with fibromites there too) suggest 1800 or 2400 mg, whilst more causes - again - diarrhea. The last person on that page also says “I elevated my glutamate / GABA levels with excess taurine” and very importantly “Once elevated Glutamate seems to be slow to rebalance” - got to watch that!
levodopa: repeat 50mg (100mg seemed to increase LBU),
Ezetimibe+atorvastatin if blood fats don’t stay down - smaller dose if at all?
Candesartan if blood pressure doesn’t stay down.

D) RELAX: A bit more Yoga Nidra on youtube.
E) MERIDIANS: real Chinese-trained acupuncture? Pardon Our Interruption
F) DOC Fibro-doc 200km from here?
G) REPEAT? Again in specks/diluted: Melatonin, 10% CBD oil, 5-HTP, ashwagandha.

Development: Am I helping anyone apart from myself?

  • Still on the plateau, adding tryptophan isn’t throwing me out of balance, serrapeptase not necessary yet, increasing work is OK, but I’m only managing a little bit of forum work.
  • I’m however starting to question where/how/whether I’m helping anyone else. I get quite some positive feedback on only one other forum, with minimal effort, which makes it very effective and easy to keep up. The few active people on the new German forum I’ve been on don’t seem at all interested in my development. The only thing thing to try there is to translate all my reference lists and put them up there, since there are occasionally many viewers there, praps there are quite a few people who want to read, but not write.
  • What I’m still surprised at is there are still no treatment lists and no lists of causes/triggers of fibro anywhere apart from mine. There may be symptom lists, but as I keep saying I think symptom lists are irrelevant. What is relevant in my eyes however would be to be able to look up treatment ideas for a certain symptom, and I would want to stick to those on my symptom list, as they seem to be to be the main ones relevant to people with the FM-diagnosis. So I’ll be completing & perfecting those, even if only for my own satisfaction. Haven’t checked on the views there for quite some time: 300 views since Aug 2nd means 300 in 6 weeks, that’s 50 per week, 7 per day, altho I still haven’t had time to add much yet, altho I have so many treatment possibilites to add, i.e. there are readers who really are using it as a reference or at least hoping it will help them. Is that a lot? Is it worth it? No idea. Would it help more people if I carried on with it?
  • The good feedback that encourages me is stably “getting” 15-35 views per day here on this blog and personal encouragement by all the mods here (not elsewhere), so I’d like to thank all of you who read this, even if you don’t manage to comment. :smiley:

Highlights week 6th to 11th.

Abbreviations & explanations

Entries start with night meds & sleep, before triggers/symptoms & treatments, because the “night before” is vital. So Fri-day starts with Thursday night, the night before Friday.

Pain "7" = crying (/out) point; my 1 is others 2-3, and due to pacing/treatments

My wife says my 7 is other people’s 12. 1 is probably 2-3. Due to pacing, keeping work down to 25% (12h/wk) and all my treatments (acupressure, GABA) and physio self-treatments I manage to keep getting my pains & Ache down quickly. 3 usually means the Ache, not pains; these I address individually, often automatically and on the fly now, e.g. twist-stretching everything or something specific after getting up.

TIME DATA, e.g. ' = mins, h = hours, 18:10:40', date YYYY-MM-DD

’ = mins = minutes, ‘’ = secs = seconds, h is hours as time length, 3h is 3 hours long, 3:00 is 3am, 15:00 is 3pm. 18:10:40’ means 40 minutes, starting at 18:10, = 10 minutes past 6pm up to 10 to 7pm. The date is the logical digital standard: YYYY-MM-DD.

SLEEP: slp, w, lbu/LBU, RLS, p, i

slp = sleep; reasons for getting up: w = (a)wake, lbu/LBU: lower back unrest (‘RLS’?), p: pee, p2: pain 2 of 7 before peeing, i: ideas.

ACTIVITIES: TT, e.g. "5:1"

TT = table tennis, 5:1 = score, usually showing how well I’m feeling: energy, relaxedness & alertness if the first number is much higher than the second.

SUPPS: supplements (as opposed to herbs & meds). Fx: Effects. Sfx: Side effects.

SELF-TREATMENTS (about everything else...)

The self-treatments listed are only things that I’m spotlighting & rewarding myself for at the mo by counting them; much of what I do at night is self-treatment to get back to sleep or alleviate (1-2h/d), certain regular movements at daytime, like twist-stretching (30’), writing this blog is self-treatment (30’-60’/d), and the further fibro-work is an indirect form.
Self treatments are usually preventative or always have the same positive effect (e.g. cold showering improves Ache and sleep) - at least I do them for that - and I use “:arrow_forward:” to show what I’m doing to alleviate something and mark it off in the details “:white_check_mark:/:x:” whether it works well enough for a time or doesn’t’, e.g. Ache :arrow_forward: cold fast shower “:white_check_mark:
fw = fibro-work, meaning reading and writing this blog, the reference base, on 4 fibro-forums and researching fibro-stuff on the web.
AuTr = Autogenic Training (usually to actively get - back - to sleep, so counting it as sleep and AuTr…),
FAT Flash/fast autogenic training: immediate image of dreamy floating in space or liquid from jaw to legs.
cold/FCS = Flash Cold Shower (20’’-60’’) , I count it as 10’ tho. At night with ear plugs & all lights off.
breath-hold/WHM-B-H = Wim Hof Method Breath-Holding,
Neck 1 is stretching top right to bottom left, vice versa & sky/ground, neck “1+” is stretching far further diagonally downwards, neck 2 is pressing my head against my hand “without moving”, left right and front.
loins = loins/groin = stretching the ligaments there.
ex = exercises
HWB = Hot water bottle,
RR = bp = blood pressure (Riva Rocci), plus pulse. Used to be normal, plus sometimes white coat syndrome, went up since fibro, seems to have gone down again enough so I’ve not only stopped lercanidipine, but also candesartan and am checking RR regularly.
:new: “V” for loins = lie on back, legs up and let legs fall to sides;
:new: twist-stretching more for the loins
:white_check_mark: :x: :face_with_monocle: ➔ ⇄ ⇨➜ ➞ :arrow_right: ➲ ↔:⇰↔ →:arrow_upper_right: :arrow_lower_right:

↯ ↛ ↺ ↮ ⇝ ⇾ ⟹ ⭆ ⤮:

1 Like

2021-09-17, Friday - whoops, forgot to better get up for earlier work… :face_with_monocle: More tryptophan for sleep didn’t make a difference. Serrapeptase for work & tiredness. “Breakdown” at 19:00

Triggers & resulting Symptoms

SLEEP: 7h30, up 4x (47') ➔ Feeling 90% well, Ache 1 of 7 ✅. Forgot I need to go to bed earlier on Thursdays (best generally).

FCS p1 23:20-
1:40 3’ 90%/1 p0 st1 drink fw1’ + 600mg GABA & 400mg L-glutamine & 1x289mg passiflora.
3:02 3’ 90%/1 p0 st1 drink fw1’ "300"mg theanine - Where’s the 2nd tryptophan capsule gone?
3:54 uh-oh! 14’ 90%/1 st1 drink hot flush → FCS#2 & cold standing / fw5’
4:24 27’ 90%/1 st1 fw1’ 6. Tryptophan didn’t change anything. Must have taken 2x, don’t know when on of the times, but must’ve been before. Melatonin next?
-7:38
Sum: 40+7h38+(3+3+14+27=)47’=8h18, up 4x (47’)=7h30

ACTIVITIES➔ACHE: Commuting & work with some loud mask-talking ➔ 90%/1, just tired, same after acupressure: feverish-tired. TT dead easy, despite tiredness, so not too long ➔ 90%/1, but 'breakdown' quickly after it to something like 60%/4 plus tiredness, cdnt sit or stand much, my wife's sending me to bed at 21:00

Ache = also Exhaustion/Tired :white_check_mark: :x: :face_with_monocle: ➔ ?90%/1
Cycle➔ exhaustion, also as action➔pains;
TT = Table-Tennis➔ easy or effortless or strained or tough?
talk/meetings here (and actions➔pains?)
Grandchild➔
Work/Mask-talking➔
Socializing/Talking➔

ACTIONS➔ PAINS: Lying ✅, standing OK-ish ✅/🧐, loins ✅, sitting ✅, arms up OK-ish ✅/🧐, stiffness after poses ✅, fast cycling: ✅, bladder ✅, GI good first, despite 2x tryptophan (encapsulated) ✅, but some inexplicable gut pressure after 17:00 might be due to that ❌ (warm fennel tea helped, if need be HWB), talking ✅, mask-talking ✅

:white_check_mark: :x: :face_with_monocle:
Lie ➔ LBU = lower back unrest, hunchback, Neck, thighs, elbows, itch, cold/hot, nose stuffy
Stand ➔ Legs, back
Knees up ➔ right loin
Arms up ➔ pain
Sit ➔ Backside, lower back
Pose ➔ stiffness (Stiffness after holding a posture): Time 0-60’’, pain amount if faster.
Walk ➔ Elbows, feet, right knee
Cycle ➔ Feet, knees, backside, elbows, hands, neck
Drink ➔ Pee frequency, pain before peeing (p0-6).
Eat ➔ Esophagus block, stomach, gut, rectum, stool (IBSD?). GI for short
Talk➔Jaw (& Ache)
Mask-talk ➔ not sure how to describe it, just plain yucky.

Treatments

SELF-PHYSIO: 1h ✅, fibro-work (fw) 20'

:white_check_mark: Timing, AuTr 10’, hunchback-pillow 10’, cold shower 2x(10’), palpate 1’, belly 3’, back 7’, neck 1+ 3’, neck 2 3’, loins 1’, yoga 1’,
:x: twist-stretch 10’, gums 2x30’’, thumbnails 10x30’’, V ‘, marionette-hang 1’, mirror 2’, shaking dance 1’, breath-hold 11’, RR x2’, HWB 3’, workout 7’

fw: Night: 10’ + 10’*

THERAPIES: More supple after, but not nec. more energy. Still have a stab in my pelvis after, yesterday, but even now 17:20 after acupressure... Very tired in and after it.

Acupressure / Therapy, Doc/Diagnoses ? :white_check_mark: :x: :face_with_monocle: Acupressure 2h Tues & 2h Fri:

Supps to KEEP UP: PAIN (ACHE; stiffness?) ✅: Serrapeptase before loud mask-talking at work worked, but not for tiredness. SLEEP: 0) 21:00 3x289mg passiflora, selene, rosewort/Mg carbonate/B1; bedtime GABA 1x"450"; +2h GABA "600", 400 glutamine, 1x passiflora, ✅ +4h 300 theanine WAKE/FOG: 0) +8h theanine 300 + GABA 400 ✅

For heartburn: Almonds first. (Bentonite, medicinal clay, mumijo?).
21:30 3x289 passiflora, selene, rosewort/magnesium carbonate/B1 at meal & probably then the "400"mg tryptophan
22:50 600mg GABA & "400"mg tryptophan
1:40 600mg GABA & ?400mg L-glutamine & 289mg passiflora
3:00 "300"mg theanine
7:40 400 GABA + 300mg theanine …
Serrapeptase: 9:00 before loud-mask talking worked.

Supps UP NEXT: 2x400mg tryptophan, praps at bedtime & +4h? Increasing added tryptophan from 1x to ↗2x"400mg" is a big jump, driven by trying to get the increased racing thoughts at night down, due to work being a bit more stressful (but rewarding in the process) at the mo. I'll have to watch out for GI sfx & see if it helps at all, might be an overdose once again.... 1x400mg encapsulated was no problem. It will increase serotonin, not dopamine, so if at all I might need to balance it out with a bit more glutamine, which could then improve stiffness.... who knows... No sfx, but also no fx with 2x400, so now ➔ 1x800 at 21:00? Or were the GI problems after 17:00 a late consequence? Try serrapeptase for overdoing-feverishness +WAKE/FOG: 0) ginkgo 1) SAMe 2) Ribose 3) NADH/NAD+ 4) ALC (I have LC: orally or injected?) 5) glycine. +STIFFNESS: +glutamine balanced with GABA at daytime? 🧐 +SLEEP: Keep tryptophan up 🧐, or melatonin, levodopa. NAC?. A) Schüssler B) SUPPS C) MEDS Info:

:arrow_upper_right: :arrow_lower_right:
A Homeopathy: Schüssler 2, 4, & 7 (need 3-6 months sez my acupressurist).

B SUPPS: Amino acids, Enzymes, Minerals, Vitamins
Amino acids: +B6 (as P5P), +Zn, +lithium orotate, more glutamine?, SAMe, glycine
1+2 Balancing GABA & glutamine: 1 Healthfully B6, 2 Perkins: Lithium orotate, Zn, 3 Jockers strange doses!? 4 Levy: vitamin B6, as P-5'-P?

1.1 Healthfully: tyrosine, tryptophan, B6, high complex carb early, low protein late"]
1.2 Zn Cynthia Perkins:: Low (<50mg) carb paleo, high animal protein; (Mg) Zn <40mg, lithium orotate 125-200mg, glycine often excitatory; praps, or not: taurine, vit. B6, SAMe, NAC, theanine"]

Glutamine/dopamine for stiffness/gait?!?: Low Dopamine in Fibromyalgia and CFS
SAMe: 400-800mg in the mornings, as stimulating, not much research"]

NADH/NAD+ B3-coenzyme for energy & post exertional malaise.
Acetyl L-Carnitine (ALC)?: Drink as liquid… Or ask sleep lab psychiatrist to inject it? ALC’s helping Jemima feel alert, dose: 2x750mg, for no sfx keep under 3000. Needs to be Acetyl for the brain she sez. Question about kinds of pain | Page 2 | Fibromyalgia Forum.
D-Ribose: muscle fatigue, ATP; GI-sfx, so keep under 500mg; little evidence.
Zinc again (bloods are in the middle)? Watch out for the sfx!
Magnesium - glycinate yes or no? malate? “60mg” carbonate in the roseroot?
Increase rose root from 1x200mg to 2 or 3 for serotonin etc. as well as blood pressure (normal now)?
Vitamin B12 injections again?
Vitamin B6 as P5P?
Vitamin C ultra-high dose 7,5g, to be put in 250ml NaCl solution & injected - if I can ever find someone to inject it.

C MEDS repeat?: NAC, levodopa, blood fat meds, blood pressure
NAC sleep -2400mg, better or worse (med)

(N-acetylcysteine) as I wrote here (better liposomal) as glutamate antagonist and to help sleep is mentioned on the last link (CFS/ME, with fibromites there too) suggest 1800 or 2400 mg, whilst more causes - again - diarrhea. The last person on that page also says “I elevated my glutamate / GABA levels with excess taurine” and very importantly “Once elevated Glutamate seems to be slow to rebalance” - got to watch that!
levodopa: repeat 50mg (100mg seemed to increase LBU),
Ezetimibe+atorvastatin if blood fats don’t stay down - smaller dose if at all?
Candesartan if blood pressure doesn’t stay down.

D) RELAX: A bit more Yoga Nidra on youtube.
E) MERIDIANS: real Chinese-trained acupuncture? Pardon Our Interruption
F) DOC Fibro-doc 200km from here?
G) REPEAT? Again in specks/diluted: Melatonin, 10% CBD oil, 5-HTP, ashwagandha.

Development:

I spose sharing this doesn’t nec. need to be “help” at all… :face_with_monocle: Just let it be… :hugs:

Highlights week 6th to 11th.

Abbreviations & explanations

Entries start with night meds & sleep, before triggers/symptoms & treatments, because the “night before” is vital. So Fri-day starts with Thursday night, the night before Friday.

Pain "7" = crying (/out) point; my 1 is others 2-3, and due to pacing/treatments

My wife says my 7 is other people’s 12. 1 is probably 2-3. Due to pacing, keeping work down to 25% (12h/wk) and all my treatments (acupressure, GABA) and physio self-treatments I manage to keep getting my pains & Ache down quickly. 3 usually means the Ache, not pains; these I address individually, often automatically and on the fly now, e.g. twist-stretching everything or something specific after getting up.

TIME DATA, e.g. ' = mins, h = hours, 18:10:40', date YYYY-MM-DD

’ = mins = minutes, ‘’ = secs = seconds, h is hours as time length, 3h is 3 hours long, 3:00 is 3am, 15:00 is 3pm. 18:10:40’ means 40 minutes, starting at 18:10, = 10 minutes past 6pm up to 10 to 7pm. The date is the logical digital standard: YYYY-MM-DD.

SLEEP: slp, w, lbu/LBU, RLS, p, i

slp = sleep; reasons for getting up: w = (a)wake, lbu/LBU: lower back unrest (‘RLS’?), p: pee, p2: pain 2 of 7 before peeing, i: ideas.

ACTIVITIES: TT, e.g. "5:1"

TT = table tennis, 5:1 = score, usually showing how well I’m feeling: energy, relaxedness & alertness if the first number is much higher than the second.

SUPPS: supplements (as opposed to herbs & meds). Fx: Effects. Sfx: Side effects.

SELF-TREATMENTS (about everything else...)

The self-treatments listed are only things that I’m spotlighting & rewarding myself for at the mo by counting them; much of what I do at night is self-treatment to get back to sleep or alleviate (1-2h/d), certain regular movements at daytime, like twist-stretching (30’), writing this blog is self-treatment (30’-60’/d), and the further fibro-work is an indirect form.
Self treatments are usually preventative or always have the same positive effect (e.g. cold showering improves Ache and sleep) - at least I do them for that - and I use “:arrow_forward:” to show what I’m doing to alleviate something and mark it off in the details “:white_check_mark:/:x:” whether it works well enough for a time or doesn’t’, e.g. Ache :arrow_forward: cold fast shower “:white_check_mark:
fw = fibro-work, meaning reading and writing this blog, the reference base, on 4 fibro-forums and researching fibro-stuff on the web.
AuTr = Autogenic Training (usually to actively get - back - to sleep, so counting it as sleep and AuTr…),
FAT Flash/fast autogenic training: immediate image of dreamy floating in space or liquid from jaw to legs.
cold/FCS = Flash Cold Shower (20’’-60’’) , I count it as 10’ tho. At night with ear plugs & all lights off.
breath-hold/WHM-B-H = Wim Hof Method Breath-Holding,
Neck 1 is stretching top right to bottom left, vice versa & sky/ground, neck “1+” is stretching far further diagonally downwards, neck 2 is pressing my head against my hand “without moving”, left right and front.
loins = loins/groin = stretching the ligaments there.
ex = exercises
HWB = Hot water bottle,
RR = bp = blood pressure (Riva Rocci), plus pulse. Used to be normal, plus sometimes white coat syndrome, went up since fibro, seems to have gone down again enough so I’ve not only stopped lercanidipine, but also candesartan and am checking RR regularly.
:new: “V” for loins = lie on back, legs up and let legs fall to sides;
:new: twist-stretching more for the loins
:white_check_mark: :x: :face_with_monocle: ➔ ⇄ ⇨➜ ➞ :arrow_right: ➲ ↔:⇰↔ →:arrow_upper_right: :arrow_lower_right:

↯ ↛ ↺ ↮ ⇝ ⇾ ⟹ ⭆ ⤮:

2021-09-18, Saturday: deteriorating from midday, depleted by 18:00, better after 2x serrapeptase & 120mg ginkgo.

  • Awake again at 4:00 - so the night dose of theanine isn’t helping reliably, nor the 2x400 tryptophan.
  • Desperately need a stay-at-home weekend, so am trying to keep the socializing ‘appts’ short.
  • Bit depressed: tryptophan? Nope, not normally. Praps 17h work this week was too much physically and/or emotionally.
  • Edit: Found a note saying I had a focal seizure at 18:17 and an aura at 13:05 (= also p1). Can’t at all detect what may have caused it, except overdoing it. No supp experiments as far as I can see.

Triggers & resulting Symptoms

SLEEP: 9h28, up 5x (59'), quite some dozing ➔ Feeling 90% well, Ache 1 of 7 ✅

FCS p1 21:40-
00:36 5’ 90%/1 p1 st1 drink fw2’ + 600mg GABA & 400mg L-glutamine & 1x289mg passiflora. heartburn → almonds
2:20 5’ 90%/1 p0 st1 drink fw2’ "300"mg theanine
3:55 3’ 90%/1 p0 st2 drink fw1’
4:07 6 43’ bit depressed: leave or swap theanine? forced sleep/doze/AuTr
7:24 3’ bit better 90%/1 p1 st2 drink fw1’
-8:07 st2
Sum: 2h20+8h07-(5+5+3+43+3=)59’=10h27-59’=9h28, up 5x (59’), quite some dozing

ACTIVITIES➔ACHE: TT dead easy & cycling to cryotherapy & back ➔ 80%/2, cryotherapy itself - without acupressure - again didn't have much of an effect, like the last few times. I'm definitely beyond that. Then socializing & having to cycle strenuously over a hill with a big weight on the back depleted me pretty much ➔ 70%/3. Better after 2x serrapeptase & 120mg ginkgo

Ache = also Exhaustion/Tired :white_check_mark: :x: :face_with_monocle: ➔ ?90%/1
Cycle➔ exhaustion, also as action➔pains;
TT = Table-Tennis➔ easy or effortless or strained or tough?
talk/meetings here (and actions➔pains?)
Grandchild➔
Work/Mask-talking➔
Socializing/Talking➔

ACTIONS➔ PAINS: Lying ✅, standing ✅, loins ✅🧐, sitting ✅🧐, arms up ✅❌🧐, stiffness after poses ✅, fast cycling OK, but energy deteriorating from midday on (after cryotherapy, which seemed OK), neck brilliant ✅🧐, bladder: 21:30 p1, 0:40 p1, 13:05 p1, rest p0 🧐, GI: sort of heartburn at night, almonds (like yesterday!): tryptophan? 🧐 Stool surprisingly good: also tryptophan? ✅ Esophagus block eating muesli at 9:50, solved by vibrating !above (throat) as well as below (stomach) the sternum ✅, talking ✅🧐 & mask-talking ✅🧐 OK, but partly strenuous, see Ache above.

:white_check_mark: :x: :face_with_monocle:
Lie ➔ LBU = lower back unrest, hunchback, Neck, thighs, elbows, itch, cold/hot, nose stuffy
Stand ➔ Legs, back
Knees up ➔ right loin
Arms up ➔ pain
Sit ➔ Backside, lower back
Pose ➔ stiffness (Stiffness after holding a posture): Time 0-60’’, pain amount if faster.
Walk ➔ Elbows, feet, right knee
Cycle ➔ Feet, knees, backside, elbows, hands, neck
Drink ➔ Pee frequency, pain before peeing (p0-6).
Eat ➔ Esophagus block, stomach, gut, rectum, stool (IBSD?). GI for short
Talk➔Jaw (& Ache)
Mask-talk ➔ not sure how to describe it, just plain yucky.

Treatments

Funny dat: After taking the supps at 21:00 Friday eve I started feeling better and more awake, then the cold shower got me tired again, like always… strange… strange… :face_with_monocle:

SELF-PHYSIO: 53' ✅, fibro-work (fw)

:white_check_mark: Timing, AuTr 10’, hunchback-pillow 10’, cold shower (10’), palpate 1’, belly 3’, back 7’, neck 1+ 8’, neck 2 1, loins 2’, twist-stretch 1’,
:x: yoga 5’, gums 2x30’’, thumbnails 10x30’’, V ‘, marionette-hang 1’, mirror 2’, shaking dance 1’, breath-hold 11’, RR x2’, HWB 3’, workout 7’

*fw: Night: 6 + 5’ 3’ ***

THERAPIES: neck 90° flexible from yesterday's acupressure, but pained a bit during TT

Acupressure / Therapy, Doc/Diagnoses ? :white_check_mark: :x: :face_with_monocle: Acupressure 2h Tues & 2h Fri:

Supps to KEEP UP: PAIN (ACHE; stiffness?) ✅: Serrapeptase? SLEEP: 0) 21:00 3x289mg passiflora, selene, rosewort/Mg carbonate/B1; bedtime GABA 1x"450"; +2h GABA "600", 400 glutamine, 1x passiflora, ✅ +4h 300 theanine WAKE/FOG: 0) +8h theanine 300 (trying 500) + GABA 400 ✅ (or shd I add GABA?)

For heartburn: Almonds first. (Bentonite, medicinal clay, mumijo?).
21:10 3x289 passiflora, selene, rosewort/magnesium carbonate/B1 at meal & "300"mg tryptophan
21:50 600mg GABA & "300"mg tryptophan
00:36 600mg GABA & 500mg L-glutamine & 289mg passiflora
2:20 "300"mg theanine
9:35 400 GABA + 500mg theanine
Serrapeptase?

:new: today: Serrapeptase cos of deteriorating: 1 at 17:00, 1 at 18:05, plus 120mg ginkgo. Considered taking L-carnitin, as it’s the only other new thing that might’ve fitted, and I was sold it cos it’s good for pain, which I spose the fatigue is also slowly turning into; but read that insomnia is one of the sfx, not to take it too late, and 18:00 is defo too late…
This was together with resting was fairly successful, feeling content, fairly happy & not so achey any more.

Supps UP NEXT: Repeat 2x400mg tryptophan (no increase) bedtime & +2h praps one more time, then swap to melatonin, since 2nd time disturbance after 5h of sleep. Check if the GI sfx turn up again around 17:00 & if it helps at all. More, plus more glutamine? (stiffness?). Try serrapeptase for overdoing-feverishness +WAKE/FOG: 0) ginkgo 1) SAMe 2) Ribose 3) NADH/NAD+ 4) ALC (I have LC: orally or injected?) 5) glycine. +STIFFNESS: +glutamine balanced with GABA at daytime? 🧐 +SLEEP: Keep tryptophan up 🧐, or melatonin, levodopa. NAC?. A) Schüssler B) SUPPS C) MEDS Info:

:arrow_upper_right: :arrow_lower_right:
A Homeopathy: Schüssler 2, 4, & 7 (need 3-6 months sez my acupressurist).

B SUPPS: Amino acids, Enzymes, Minerals, Vitamins
Amino acids: +B6 (as P5P), +Zn, +lithium orotate, more glutamine?, SAMe, glycine
1+2 Balancing GABA & glutamine: 1 Healthfully B6, 2 Perkins: Lithium orotate, Zn, 3 Jockers strange doses!? 4 Levy: vitamin B6, as P-5'-P?

1.1 Healthfully: tyrosine, tryptophan, B6, high complex carb early, low protein late"]
1.2 Zn Cynthia Perkins:: Low (<50mg) carb paleo, high animal protein; (Mg) Zn <40mg, lithium orotate 125-200mg, glycine often excitatory; praps, or not: taurine, vit. B6, SAMe, NAC, theanine"]

Glutamine/dopamine for stiffness/gait?!?: Low Dopamine in Fibromyalgia and CFS
SAMe: 400-800mg in the mornings, as stimulating, not much research"]

NADH/NAD+ B3-coenzyme for energy & post exertional malaise.
Acetyl L-Carnitine (ALC)?: Drink as liquid… Or ask sleep lab psychiatrist to inject it? ALC’s helping Jemima feel alert, dose: 2x750mg, for no sfx keep under 3000. Needs to be Acetyl for the brain she sez. Question about kinds of pain | Page 2 | Fibromyalgia Forum.
D-Ribose: muscle fatigue, ATP; GI-sfx, so keep under 500mg; little evidence.
Zinc again (bloods are in the middle)? Watch out for the sfx!
Magnesium - glycinate yes or no? malate? “60mg” carbonate in the roseroot?
Increase rose root from 1x200mg to 2 or 3 for serotonin etc. as well as blood pressure (normal now)?
Vitamin B12 injections again?
Vitamin B6 as P5P?
Vitamin C ultra-high dose 7,5g, to be put in 250ml NaCl solution & injected - if I can ever find someone to inject it.

C MEDS repeat?: NAC, levodopa, blood fat meds, blood pressure
NAC sleep -2400mg, better or worse (med)

(N-acetylcysteine) as I wrote here (better liposomal) as glutamate antagonist and to help sleep is mentioned on the last link (CFS/ME, with fibromites there too) suggest 1800 or 2400 mg, whilst more causes - again - diarrhea. The last person on that page also says “I elevated my glutamate / GABA levels with excess taurine” and very importantly “Once elevated Glutamate seems to be slow to rebalance” - got to watch that!
levodopa: repeat 50mg (100mg seemed to increase LBU),
Ezetimibe+atorvastatin if blood fats don’t stay down - smaller dose if at all?
Candesartan if blood pressure doesn’t stay down.

D) RELAX: A bit more Yoga Nidra on youtube.
E) MERIDIANS: real Chinese-trained acupuncture? Pardon Our Interruption
F) DOC Fibro-doc 200km from here?
G) REPEAT? Again in specks/diluted: Melatonin, 10% CBD oil, 5-HTP, ashwagandha.

Development:

By the way I haven’t being counting putting the supps-capsules together every evening as fibro-work. This can take 10-20’. So I now often bring the box with them in it to the kitchen table, regardless of any visitors. Some things like filling up the 3 GABA-capsules (for bed, for +2h, & upon waking up) is now quite fast. Time consuming is if something falls cos I’m tired, or I forget which capsules are which, so I now always put them in the pill compartments. I can recognize the types of powder or the amounts fairly well, but only if I’m still fairly awake. Having to pulverize the theanine and tryptophan from the tablets I have already is also time consuming. The powder is also not as fine as the others. But I’ve decided to pulverize larger amounts now, at least from the theanine, cos I’ve been successfully using those for quite some time now.

Highlights week 6th to 11th.

Abbreviations & explanations

Entries start with night meds & sleep, before triggers/symptoms & treatments, because the “night before” is vital. So Fri-day starts with Thursday night, the night before Friday.

Pain "7" = crying (/out) point; my 1 is others 2-3, and due to pacing/treatments

My wife says my 7 is other people’s 12. 1 is probably 2-3. Due to pacing, keeping work down to 25% (12h/wk) and all my treatments (acupressure, GABA) and physio self-treatments I manage to keep getting my pains & Ache down quickly. 3 usually means the Ache, not pains; these I address individually, often automatically and on the fly now, e.g. twist-stretching everything or something specific after getting up.

TIME DATA, e.g. ' = mins, h = hours, 18:10:40', date YYYY-MM-DD

’ = mins = minutes, ‘’ = secs = seconds, h is hours as time length, 3h is 3 hours long, 3:00 is 3am, 15:00 is 3pm. 18:10:40’ means 40 minutes, starting at 18:10, = 10 minutes past 6pm up to 10 to 7pm. The date is the logical digital standard: YYYY-MM-DD.

SLEEP: slp, w, lbu/LBU, RLS, p, i

slp = sleep; reasons for getting up: w = (a)wake, lbu/LBU: lower back unrest (‘RLS’?), p: pee, p2: pain 2 of 7 before peeing, i: ideas.

ACTIVITIES: TT, e.g. "5:1"

TT = table tennis, 5:1 = score, usually showing how well I’m feeling: energy, relaxedness & alertness if the first number is much higher than the second.

SUPPS: supplements (as opposed to herbs & meds). Fx: Effects. Sfx: Side effects.

SELF-TREATMENTS (about everything else...)

The self-treatments listed are only things that I’m spotlighting & rewarding myself for at the mo by counting them; much of what I do at night is self-treatment to get back to sleep or alleviate (1-2h/d), certain regular movements at daytime, like twist-stretching (30’), writing this blog is self-treatment (30’-60’/d), and the further fibro-work is an indirect form.
Self treatments are usually preventative or always have the same positive effect (e.g. cold showering improves Ache and sleep) - at least I do them for that - and I use “:arrow_forward:” to show what I’m doing to alleviate something and mark it off in the details “:white_check_mark:/:x:” whether it works well enough for a time or doesn’t’, e.g. Ache :arrow_forward: cold fast shower “:white_check_mark:
fw = fibro-work, meaning reading and writing this blog, the reference base, on 4 fibro-forums and researching fibro-stuff on the web.
AuTr = Autogenic Training (usually to actively get - back - to sleep, so counting it as sleep and AuTr…),
FAT Flash/fast autogenic training: immediate image of dreamy floating in space or liquid from jaw to legs.
cold/FCS = Flash Cold Shower (20’’-60’’) , I count it as 10’ tho. At night with ear plugs & all lights off.
breath-hold/WHM-B-H = Wim Hof Method Breath-Holding,
Neck 1 is stretching top right to bottom left, vice versa & sky/ground, neck “1+” is stretching far further diagonally downwards, neck 2 is pressing my head against my hand “without moving”, left right and front.
loins = loins/groin = stretching the ligaments there.
ex = exercises
HWB = Hot water bottle,
RR = bp = blood pressure (Riva Rocci), plus pulse. Used to be normal, plus sometimes white coat syndrome, went up since fibro, seems to have gone down again enough so I’ve not only stopped lercanidipine, but also candesartan and am checking RR regularly.
“V” for loins = lie on back, legs up and let legs fall to sides;
twist-stretching more for the loins
:white_check_mark: :x: :face_with_monocle: ➔ ⇄ ⇨➜ ➞ :arrow_right: ➲ ↔:⇰↔ →:arrow_upper_right: :arrow_lower_right:

↯ ↛ ↺ ↮ ⇝ ⇾ ⟹ ⭆ ⤮:

2021-09-19, Sunday: new “symptom tracking” and “trigger & treatment hunting” post. Content & fairly energetic today, probably helped by good rest, or the acupressure continues to have an effect.

Triggers & resulting Symptoms

SLEEP: 8h44, up 5-8x (53'), dozing 30' ➔ Feeling 90% well, Ache 1 of 7 ✅. Tired, but happy about getting my 'how to'-post done. Watching out if the soy milk is good for my GI, but causes a dry mouth, so maybe rinse with water afterwards.

FCS p0 0:35-
4:00 3’ 90%/1 p0 st1 drink fw1’ + 600mg GABA & 400mg L-glutamine & 1x289mg passiflora.
6:05 5’ 90%/1 p0 st1 drink fw3’ no theanine (didn’t get up in between, just took dry mouth gel after having drunken soy milk and getting a dry mouth from it. Now soy milk for hunger, then water.
6:22 5’ 90%/1 st1 fw3’ dry mouth gel. 2 ideas for the “tracking” post.
5:31 25’ bit taut, 6.
8:01 3’ p0 st1 drink fw1’ strange: Very clear eyesight?! Dozing & noting ideas for the trigger hunting post, 5x3’=15’ fw.
-8:58 fw - 10:36 = 1h38fw (new symptom tracking post), plus 15+3+4=22 at night= 2h till 10:36
Sum: 9h-37-(3+5+5+25+15=)53’= 8h44, up 5-8x (53’), dozing 30’

ACTIVITIES➔ACHE: Resting/fw➔ ?90%/1, housework, walk ➔ ?90%/1

Ache = also Exhaustion/Tired :white_check_mark: :x: :face_with_monocle: ➔ ?90%/1
Cycle➔ exhaustion, also as action➔pains;
TT = Table-Tennis➔ easy or effortless or strained or tough?
talk/meetings here (and actions➔pains?)
Grandchild➔
Work/Mask-talking➔
Socializing/Talking➔

ACTIONS➔ PAINS: Lying ✅, standing ✅, loins ✅, sitting ✅, arms up ✅, neck stiff: not 90° ✅, stiffness after poses ✅, bladder: 9:00 p2, 17:00 p1 ✅, GI ✅

:white_check_mark: :x: :face_with_monocle:
Lie ➔ LBU = lower back unrest, hunchback, Neck, thighs, elbows, itch, cold/hot, nose stuffy
Stand ➔ Legs, back
Knees up ➔ right loin
Arms up ➔ pain
Neck stiff
Sit ➔ Backside, lower back
Pose ➔ stiffness (Stiffness after holding a posture): Time 0-60’’, pain amount if faster.
Walk ➔ Elbows, feet, right knee
Cycle ➔ Feet, knees, backside, elbows, hands, neck
Drink ➔ Pee frequency, pain before peeing (p0-6).
Eat ➔ Esophagus block, stomach, gut, rectum, stool (IBSD?). GI for short
Talk➔Jaw (& Ache)
Mask-talk ➔ not sure how to describe it, just plain yucky.

Treatments

SELF-PHYSIO: 41' ✅, fibro-work (fw): 3-5h

:white_check_mark: Timing, AuTr 10’, hunchback-pillow 10’, cold shower (10’), palpate 1’, belly 3’, back 7’,
:x: neck 1+ 9’, neck 2 10’, twist-stretch 10’, loins 5’, yoga 5’, gums 2x30’’, thumbnails 10x30’’, V ‘, marionette-hang 1’, mirror 2’, shaking dance 1’, breath-hold 11’, RR x2’, HWB 3’, workout 7’

*fw: Night: 1h38 fw (new symptom tracking post), plus 15+3+4=22 at night= 2h till 10:36, +15’=2h15. 30’? +2h?

THERAPIES: Yesterday bad afternoon, but with good neck, now good day, with good energy etc., even for an hour's walk with little pain - I'm not sure what that was, but maybe Friday's acupressure needed some time...

Acupressure / Therapy, Doc/Diagnoses ? :white_check_mark: :x: :face_with_monocle: Acupressure 2h Tues & 2h Fri:

Supps to KEEP UP: PAIN (ACHE; stiffness?) ✅: Serrapeptase? SLEEP: 0) 21:00 3x289mg passiflora, selene, rosewort/Mg carbonate/B1, "400"mg tryptophan; bedtime "600" GABA & 400 tryptophan; +2h GABA "600", 400 glutamine, 1x passiflora, ✅ NOT: 300 theanine leaving this might've been better, need to repeat this. WAKE/FOG: 0) +8h theanine 300 (trying 500) + GABA 400 ✅ (or shd I add GABA?)

For heartburn: Almonds first. (Bentonite, medicinal clay, mumijo?).
21:00 3x289 passiflora, selene, rosewort/magnesium carbonate/B1 at meal
22:30 "400"mg tryptophan
22:40 600mg GABA & 400mg tryptophan
4:00 600mg GABA & ?400mg L-glutamine & 289mg passiflora
9:00 400 GABA + 300mg theanine …
Serrapeptase?

:new: Supps TODAY: Leaving out 2nd dose of theanine & 2x400 tryptophan might’ve helped. No GI problems yesterday, so I can repeat it.

Supps UP NEXT: Try again without the 2nd theanine dose. Repeat 2x400mg tryptophan (no increase) bedtime & +2h (or -2h, i.e. earlier?) praps one more time, then swap to melatonin, since 2nd time disturbance after 5h of sleep. Keep checking if the GI sfx turn up again, then if it helps at all. More, plus more glutamine? (stiffness?). Try serrapeptase for overdoing-feverishness +WAKE/FOG: 0) ginkgo 1) SAMe 2) Ribose 3) NADH/NAD+ 4) ALC (I have LC: orally or injected?) 5) glycine. +STIFFNESS: +glutamine balanced with GABA at daytime? 🧐 +SLEEP: Keep tryptophan up 🧐, or melatonin, levodopa. NAC?. A) Schüssler B) SUPPS C) MEDS Info:

:arrow_upper_right: :arrow_lower_right:
A Homeopathy: Schüssler 2, 4, & 7 (need 3-6 months sez my acupressurist).

B SUPPS: Amino acids, Enzymes, Minerals, Vitamins
Amino acids: +B6 (as P5P), +Zn, +lithium orotate, more glutamine?, SAMe, glycine
1+2 Balancing GABA & glutamine: 1 Healthfully B6, 2 Perkins: Lithium orotate, Zn, 3 Jockers strange doses!? 4 Levy: vitamin B6, as P-5'-P?

1.1 Healthfully: tyrosine, tryptophan, B6, high complex carb early, low protein late"]
1.2 Zn Cynthia Perkins:: Low (<50mg) carb paleo, high animal protein; (Mg) Zn <40mg, lithium orotate 125-200mg, glycine often excitatory; praps, or not: taurine, vit. B6, SAMe, NAC, theanine"]

Glutamine/dopamine for stiffness/gait?!?: Low Dopamine in Fibromyalgia and CFS
SAMe: 400-800mg in the mornings, as stimulating, not much research"]

NADH/NAD+ B3-coenzyme for energy & post exertional malaise.
Acetyl L-Carnitine (ALC)?: Drink as liquid… Or ask sleep lab psychiatrist to inject it? ALC’s helping Jemima feel alert, dose: 2x750mg, for no sfx keep under 3000. Needs to be Acetyl for the brain she sez. Question about kinds of pain | Page 2 | Fibromyalgia Forum.
D-Ribose: muscle fatigue, ATP; GI-sfx, so keep under 500mg; little evidence.
Zinc again (bloods are in the middle)? Watch out for the sfx!
Magnesium - glycinate yes or no? malate? “60mg” carbonate in the roseroot?
Increase rose root from 1x200mg to 2 or 3 for serotonin etc. as well as blood pressure (normal now)?
Vitamin B12 injections again?
Vitamin B6 as P5P?
Vitamin C ultra-high dose 7,5g, to be put in 250ml NaCl solution & injected - if I can ever find someone to inject it.

C MEDS repeat?: NAC, levodopa, blood fat meds, blood pressure
NAC sleep -2400mg, better or worse (med)

(N-acetylcysteine) as I wrote here (better liposomal) as glutamate antagonist and to help sleep is mentioned on the last link (CFS/ME, with fibromites there too) suggest 1800 or 2400 mg, whilst more causes - again - diarrhea. The last person on that page also says “I elevated my glutamate / GABA levels with excess taurine” and very importantly “Once elevated Glutamate seems to be slow to rebalance” - got to watch that!
levodopa: repeat 50mg (100mg seemed to increase LBU),
Ezetimibe+atorvastatin if blood fats don’t stay down - smaller dose if at all?
Candesartan if blood pressure doesn’t stay down.

D) RELAX: A bit more Yoga Nidra on youtube.
E) MERIDIANS: real Chinese-trained acupuncture? Pardon Our Interruption
F) DOC Fibro-doc 200km from here?
G) REPEAT? Again in specks/diluted: Melatonin, 10% CBD oil, 5-HTP, ashwagandha.

Development:

Very active mind, but the symptom tracking post might be the beginning of the end of “what I’ve always wanted to say”. Where do I go from here?

Abbreviations & explanations

Entries start with night meds & sleep, before triggers/symptoms & treatments, because the “night before” is vital. So Fri-day starts with Thursday night, the night before Friday.

Pain "7" = crying (/out) point; my 1 is others 2-3, and due to pacing/treatments

My wife says my 7 is other people’s 12. 1 is probably 2-3. Due to pacing, keeping work down to 25% (12h/wk) and all my treatments (acupressure, GABA) and physio self-treatments I manage to keep getting my pains & Ache down quickly. 3 usually means the Ache, not pains; these I address individually, often automatically and on the fly now, e.g. twist-stretching everything or something specific after getting up.

TIME DATA, e.g. ' = mins, h = hours, 18:10:40', date YYYY-MM-DD

’ = mins = minutes, ‘’ = secs = seconds, h is hours as time length, 3h is 3 hours long, 3:00 is 3am, 15:00 is 3pm. 18:10:40’ means 40 minutes, starting at 18:10, = 10 minutes past 6pm up to 10 to 7pm. The date is the logical digital standard: YYYY-MM-DD.

SLEEP: slp, w, lbu/LBU, RLS, p, i

slp = sleep; reasons for getting up: w = (a)wake, lbu/LBU: lower back unrest (‘RLS’?), p: pee, p2: pain 2 of 7 before peeing, i: ideas.

ACTIVITIES: TT, e.g. "5:1"

TT = table tennis, 5:1 = score, usually showing how well I’m feeling: energy, relaxedness & alertness if the first number is much higher than the second.

SUPPS: supplements (as opposed to herbs & meds). Fx: Effects. Sfx: Side effects.

SELF-TREATMENTS (about everything else...)

The self-treatments listed are only things that I’m spotlighting & rewarding myself for at the mo by counting them; much of what I do at night is self-treatment to get back to sleep or alleviate (1-2h/d), certain regular movements at daytime, like twist-stretching (30’), writing this blog is self-treatment (30’-60’/d), and the further fibro-work is an indirect form.
Self treatments are usually preventative or always have the same positive effect (e.g. cold showering improves Ache and sleep) - at least I do them for that - and I use “:arrow_forward:” to show what I’m doing to alleviate something and mark it off in the details “:white_check_mark:/:x:” whether it works well enough for a time or doesn’t’, e.g. Ache :arrow_forward: cold fast shower “:white_check_mark:
fw = fibro-work, meaning reading and writing this blog, the reference base, on 4 fibro-forums and researching fibro-stuff on the web.
AuTr = Autogenic Training (usually to actively get - back - to sleep, so counting it as sleep and AuTr…),
FAT Flash/fast autogenic training: immediate image of dreamy floating in space or liquid from jaw to legs.
cold/FCS = Flash Cold Shower (20’’-60’’) , I count it as 10’ tho. At night with ear plugs & all lights off.
breath-hold/WHM-B-H = Wim Hof Method Breath-Holding,
Neck 1 is stretching top right to bottom left, vice versa & sky/ground, neck “1+” is stretching far further diagonally downwards, neck 2 is pressing my head against my hand “without moving”, left right and front.
loins = loins/groin = stretching the ligaments there.
ex = exercises
HWB = Hot water bottle,
RR = bp = blood pressure (Riva Rocci), plus pulse. Used to be normal, plus sometimes white coat syndrome, went up since fibro, seems to have gone down again enough so I’ve not only stopped lercanidipine, but also candesartan and am checking RR regularly.
:new: “V” for loins = lie on back, legs up and let legs fall to sides;
:new: twist-stretching more for the loins
:white_check_mark: :x: :face_with_monocle: ➔ ⇄ ⇨➜ ➞ :arrow_right: ➲ ↔:⇰↔ →:arrow_upper_right: :arrow_lower_right:

↯ ↛ ↺ ↮ ⇝ ⇾ ⟹ ⭆ ⤮:

Highlights this week - Sep 12th to 19th

Serrapeptase still OK, now trying tryptophan, theanine only before and after sleep

Symbol & emoji of the week: Again :slight_smile:

  1. Supps: Getting more normal. :white_check_mark:
  2. GABA, also with theanine seems better. Still thinking about more glutamine for stiffness. :face_with_monocle:
  3. Theanine reduced at night and
  4. adding tryptophan may have improved sleep, but maybe caused a seizure Sun. 19th at 17:00?
  5. Serrapeptase didn’t help as reliably this week (Mon.), but sometimes good.
  6. Acupressure: Neck improving even more. But didn’t stop the ?flare? Fri/Sat.
  7. Activities & Actions: Stiffness & loins better, mask-talking worse, still occasional pee pain.
  8. Sitting without a backrest for 1.5h was really tough
  9. Sleep: Sleep breaks at around 4:00, so stopping additional 2nd dose of theanine then.
  10. GI: Again sugar? problems from sweet cherries, or they were off.
  11. Generally: Working 17h, even overdoing it Wedn. seemed OK. :smiley:
  12. Bad Friday evening (19:00) & Sat. (14:00) may have been a repercussion. :face_with_monocle:
  13. Keeping down sugar even more (esp. grapes) (blood fats), but not lectins (seem to tolerate them). :face_with_monocle:
  14. Major post on “symptom tracking & trigger & treatment hunting” etc. was satisfying :-D.
  15. Like last week: Altogether mostly good with minor repercussions from GI & overdoing it. :smiley:

Edit: Focal seizure Sat 18th at 18:17, no idea what from. Last one was Aug 26th, going to sleep.

2021-09-20, Monday - still not good, serrapeptase not helping, 4x, then zinc at 18:30, then at 19:00 suddenly pretty good :interrobang: :face_with_monocle:

Painless bulge under tooth. Using tea tree oil & Marigold essence. X-ray shows there's a big inflammation, appt. on Oct 7th... Prolly the reason for feeling so smashed. "Funny", cos I've been saying for years that there's pain, just it never showed up on the x-rays.... And the dentist said all along: You may be right, but nothing can be seen.

2 days foreign feeling next to the tooth that’s been causing most bother, as if food were stuck there - interstitial toothbrush didn’t change it tho. Yesterday evening slight pain while were were on a walk, just needed to relax tho. Today I’ve realized it seems like a bulge, had a look, it is one. Still no pain, whether I press on it or on the tooth… Using tea tree oil & Marigold essence. Dentist soon.

Triggers & resulting Symptoms

SLEEP: 8h56, up 5x (64'), no doze ➔ Feeling 90% well, Ache 1 of 7 ✅

FCS p1 22:30-
23:53 3’ 90%/1 p0 st1 drink fw1’ + 600mg GABA & 400mg L-glutamine & 1x289mg passiflora & “300” tryptophan.
1:28 4’ 90%/1 p0 st1 drink fw1’ almonds 4 heartburn (tryptophan!!)
2:05 27’ 90%/1 still strong heartburn: OK, too much tryptophan: again almonds, watched comedy, of all things. Gastricumeel → better. Wind.
3:05 hmm… 27’ 6
6:33 3’ 90%/1 st1 drink fw1’
-8:30
Sum: 1h30+8h30-(3+4+27+27+3=)64’=10h-64’= 8h56, up 5x (64’), no doze

ACTIVITIES➔ACHE: Cycling to work 90%/1 ➔ 50%/4, no idea why at the mo: Sleep? Abscess? 3x serrapeptase ➔ 50%/4. Dentist, +1x serrapeptase ➔ 50%/4. lots of rest, zinc ➔ 80%/2, 30' shop➔ 80%/2

Ache = also Exhaustion/Tired :white_check_mark: :x: :face_with_monocle: ➔ ?90%/1
Cycle➔ exhaustion, also as action➔pains;
TT = Table-Tennis➔ easy or effortless or strained or tough?
talk/meetings here (and actions➔pains?)
Grandchild➔
Work/Mask-talking➔
Socializing/Talking➔

ACTIONS➔ PAINS: Lying ✅, standing ✅, loins ✅, sitting ✅, arms up ✅, neck stiffness ✅, stiffness after poses: stairs difficult. 🧐, fast cycling ❌, bladder ✅, GI: 1:00-2:00 heartburn from tryptophan ❌, esophagus block for 2nd/3rd time while eating muesli ❌, talking ✅, mask-talking ✅

:white_check_mark: :x: :face_with_monocle:
Lie ➔ LBU = lower back unrest, hunchback, Neck, thighs, elbows, itch, cold/hot, nose stuffy
Stand ➔ Legs, back
Knees up ➔ right loin
Arms up ➔ pain
Sit ➔ Backside, lower back
Pose ➔ stiffness (Stiffness after holding a posture): Time 0-60’’, pain amount if faster.
Walk ➔ Elbows, feet, right knee
Cycle ➔ Feet, knees, backside, elbows, hands, neck
Drink ➔ Pee frequency, pain before peeing (p0-6).
Eat ➔ Esophagus block, stomach, gut, rectum, stool (IBSD?). GI for short
Talk➔Jaw (& Ache)
Mask-talk ➔ not sure how to describe it, just plain yucky.

Treatments

SELF-PHYSIO: 47' ✅, fibro-work (fw) 4h?

:white_check_mark: Timing, AuTr 10’, hunchback-pillow 10’, cold shower (10’), palpate 1’, belly 3’, back 7’, neck 1+ 5’, neck 2 1’, twist-stretch 1’, yoga 2’, gums 2x30’’, loins 2’,
:x: thumbnails 10x30’’, V ‘, marionette-hang 1’, mirror 2’, shaking dance 1’, breath-hold 11’, RR x2’, HWB 3’, workout 7’

fw: Night: 5.+5’ 5’ 5’ 3h+?*

THERAPIES:

Acupressure / Therapy, Doc/Diagnoses ? :white_check_mark: :x: :face_with_monocle: Acupressure 2h Tues & 2h Fri:

Supps to KEEP UP: PAIN (ACHE; stiffness?) ✅: Serrapeptase: At work 10:40, again 11:20, 3rd at 12:40. Unusual pain in left thigh while cycling: Sfx? Is the serrapeptase not working cos it's got enough to do with the abscess, whilst the higher dose is producing sfx? 16:15 4th dose for the tooth inflammation. Zinc (orotate) 15mg 18:30 seems to be helping a bit. SLEEP: 0) 21:00 3x289mg passiflora, selene, rosewort/Mg carbonate/B1, "400"mg tryptophan; bedtime "600" GABA & 400 tryptophan; +2h GABA "600", 400 glutamine, 1x passiflora, ✅ NOT: 300 theanine leaving this might've been better, need to repeat this. WAKE/FOG: 0) +8h theanine 300 (trying 500) + GABA 400 ✅ (or shd I add GABA?)

For heartburn: Almonds first. (Bentonite, medicinal clay, mumijo?).
21:00 3x289 passiflora, selene, rosewort/magnesium carbonate/B1 at meal, "300"mg tryptophan
22:15 600mg GABA & "300"mg tryptophan
23:53 600mg GABA & ?400mg L-glutamine & 289mg passiflora & 300mg tryptophan & 300 tryptophan? (4 capsules)
8:35 400 GABA + 300 theanine.
Serrapeptase 4x

:new: Supps TODAY: 4x serrapeptase, 1x zinc.

Supps UP NEXT: Try again without the 2nd theanine dose. Repeat 2x400mg tryptophan (no increase) bedtime & +2h (or -2h, i.e. earlier?) praps one more time, then swap to melatonin, since 2nd time disturbance after 5h of sleep. Keep checking if the GI sfx turn up again, then if it helps at all. More, plus more glutamine? (stiffness?). Try serrapeptase for overdoing-feverishness +WAKE/FOG: 0) ginkgo 1) SAMe 2) Ribose 3) NADH/NAD+ 4) ALC (I have LC: orally or injected?) 5) glycine. +STIFFNESS: +glutamine balanced with GABA at daytime? 🧐 +SLEEP: Keep tryptophan up 🧐, or melatonin, levodopa. NAC?. A) Schüssler B) SUPPS C) MEDS Info:

:arrow_upper_right: :arrow_lower_right:
A Homeopathy: Schüssler 2, 4, & 7 (need 3-6 months sez my acupressurist).

B SUPPS: Amino acids, Enzymes, Minerals, Vitamins
Amino acids: +B6 (as P5P), +Zn, +lithium orotate, more glutamine?, SAMe, glycine
1+2 Balancing GABA & glutamine: 1 Healthfully B6, 2 Perkins: Lithium orotate, Zn, 3 Jockers strange doses!? 4 Levy: vitamin B6, as P-5'-P?

1.1 Healthfully: tyrosine, tryptophan, B6, high complex carb early, low protein late"]
1.2 Zn Cynthia Perkins:: Low (<50mg) carb paleo, high animal protein; (Mg) Zn <40mg, lithium orotate 125-200mg, glycine often excitatory; praps, or not: taurine, vit. B6, SAMe, NAC, theanine"]

Glutamine/dopamine for stiffness/gait?!?: Low Dopamine in Fibromyalgia and CFS
SAMe: 400-800mg in the mornings, as stimulating, not much research"]

NADH/NAD+ B3-coenzyme for energy & post exertional malaise.
Acetyl L-Carnitine (ALC)?: Drink as liquid… Or ask sleep lab psychiatrist to inject it? ALC’s helping Jemima feel alert, dose: 2x750mg, for no sfx keep under 3000. Needs to be Acetyl for the brain she sez. Question about kinds of pain | Page 2 | Fibromyalgia Forum.
D-Ribose: muscle fatigue, ATP; GI-sfx, so keep under 500mg; little evidence.
Zinc again (bloods are in the middle)? Watch out for the sfx!
Magnesium - glycinate yes or no? malate? “60mg” carbonate in the roseroot?
Increase rose root from 1x200mg to 2 or 3 for serotonin etc. as well as blood pressure (normal now)?
Vitamin B12 injections again?
Vitamin B6 as P5P?
Vitamin C ultra-high dose 7,5g, to be put in 250ml NaCl solution & injected - if I can ever find someone to inject it.

C MEDS repeat?: NAC, levodopa, blood fat meds, blood pressure
NAC sleep -2400mg, better or worse (med)

(N-acetylcysteine) as I wrote here (better liposomal) as glutamate antagonist and to help sleep is mentioned on the last link (CFS/ME, with fibromites there too) suggest 1800 or 2400 mg, whilst more causes - again - diarrhea. The last person on that page also says “I elevated my glutamate / GABA levels with excess taurine” and very importantly “Once elevated Glutamate seems to be slow to rebalance” - got to watch that!
levodopa: repeat 50mg (100mg seemed to increase LBU),
Ezetimibe+atorvastatin if blood fats don’t stay down - smaller dose if at all?
Candesartan if blood pressure doesn’t stay down.

D) RELAX: A bit more Yoga Nidra on youtube.
E) MERIDIANS: real Chinese-trained acupuncture? Pardon Our Interruption
F) DOC Fibro-doc 200km from here?
G) REPEAT? Again in specks/diluted: Melatonin, 10% CBD oil, 5-HTP, ashwagandha.

Development:

Abbreviations & explanations

Entries start with night meds & sleep, before triggers/symptoms & treatments, because the “night before” is vital. So Fri-day starts with Thursday night, the night before Friday.

Pain "7" = crying (/out) point; my 1 is others 2-3, and due to pacing/treatments

My wife says my 7 is other people’s 12. 1 is probably 2-3. Due to pacing, keeping work down to 25% (12h/wk) and all my treatments (acupressure, GABA) and physio self-treatments I manage to keep getting my pains & Ache down quickly. 3 usually means the Ache, not pains; these I address individually, often automatically and on the fly now, e.g. twist-stretching everything or something specific after getting up.

TIME DATA, e.g. ' = mins, h = hours, 18:10:40', date YYYY-MM-DD

’ = mins = minutes, ‘’ = secs = seconds, h is hours as time length, 3h is 3 hours long, 3:00 is 3am, 15:00 is 3pm. 18:10:40’ means 40 minutes, starting at 18:10, = 10 minutes past 6pm up to 10 to 7pm. The date is the logical digital standard: YYYY-MM-DD.

SLEEP: slp, w, lbu/LBU, RLS, p, i

slp = sleep; reasons for getting up: w = (a)wake, lbu/LBU: lower back unrest (‘RLS’?), p: pee, p2: pain 2 of 7 before peeing, i: ideas.

ACTIVITIES: TT, e.g. "5:1"

TT = table tennis, 5:1 = score, usually showing how well I’m feeling: energy, relaxedness & alertness if the first number is much higher than the second.

SUPPS: supplements (as opposed to herbs & meds). Fx: Effects. Sfx: Side effects.

SELF-TREATMENTS (about everything else...)

The self-treatments listed are only things that I’m spotlighting & rewarding myself for at the mo by counting them; much of what I do at night is self-treatment to get back to sleep or alleviate (1-2h/d), certain regular movements at daytime, like twist-stretching (30’), writing this blog is self-treatment (30’-60’/d), and the further fibro-work is an indirect form.
Self treatments are usually preventative or always have the same positive effect (e.g. cold showering improves Ache and sleep) - at least I do them for that - and I use “:arrow_forward:” to show what I’m doing to alleviate something and mark it off in the details “:white_check_mark:/:x:” whether it works well enough for a time or doesn’t’, e.g. Ache :arrow_forward: cold fast shower “:white_check_mark:
fw = fibro-work, meaning reading and writing this blog, the reference base, on 4 fibro-forums and researching fibro-stuff on the web.
AuTr = Autogenic Training (usually to actively get - back - to sleep, so counting it as sleep and AuTr…),
FAT Flash/fast autogenic training: immediate image of dreamy floating in space or liquid from jaw to legs.
cold/FCS = Flash Cold Shower (20’’-60’’) , I count it as 10’ tho. At night with ear plugs & all lights off.
breath-hold/WHM-B-H = Wim Hof Method Breath-Holding,
Neck 1 is stretching top right to bottom left, vice versa & sky/ground, neck “1+” is stretching far further diagonally downwards, neck 2 is pressing my head against my hand “without moving”, left right and front.
loins = loins/groin = stretching the ligaments there.
ex = exercises
HWB = Hot water bottle,
RR = bp = blood pressure (Riva Rocci), plus pulse. Used to be normal, plus sometimes white coat syndrome, went up since fibro, seems to have gone down again enough so I’ve not only stopped lercanidipine, but also candesartan and am checking RR regularly.
:new: “V” for loins = lie on back, legs up and let legs fall to sides;
:new: twist-stretching more for the loins
:white_check_mark: :x: :face_with_monocle: ➔ ⇄ ⇨➜ ➞ :arrow_right: ➲ ↔:⇰↔ →:arrow_upper_right: :arrow_lower_right:

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