JayCS’s Fibro Blog

I also agree, Number 7 can assists us all. Rare conditions can be extremely isolating. Trying to deal with a rare condition all on our own can drive us crazy. As I’ve said to others 'It’s not that you’re crazy, it’s more that you’re just as crazy as the rest of us".
Just in knowing we are not alone on this journey… PHEW, what a relief …because prior, I really was questioning my own sanity.

Merl from the Modsupport Team

1 Like

2021-08-24, Tuesday

Triggers & resulting Symptoms

SLEEP: 8h55-50'=8h05, plus up 4x (50') ↔️ Feeling 90% well, Ache 1 of 7 ✅

20:40: 2x Mg & 3x passiflora & Ω3 at meal
22:55: 600mg GABA
2:27 600mg GABA & 400mg L-glutamine & "200"mg theanine
FCS#1 23:31-
2:27 5’ 90%/1 p0 drink fw2’ +600 GABA + 400 glutamine + 200 theanine +1 passiflora
4:16-27 11’ 90%/1 p1 drink fw1’ hungry → drink. teeth fw8’ almonds. doze. hungry.
4:54 30’ 6
7:23 4’ p0 drink
-8:26 90%/1
Night: Teeth! RR! fw only notes!
-end. Breakfast while blogging, before exercising!
Sum: 29’+8h26-(5+11+30+4=)50’= 8h55-50’=8h05, plus up 4x (50’)

ACTIVITIES➔ACHE: TT effortless & easy ➔ 90%/1 ✅, 1h drive ➔ Achey, tired 60%/4 ❌, FCS ➔ 70%/3

Ache = also Exhaustion/Tired :white_check_mark: :x: :face_with_monocle: ➔ ?90%/1
Cycle➔ exhaustion, also as action➔pains;
TT = Table-Tennis➔ easy or effortless or strained or tough?
talk/meetings here (and actions➔pains?)
Grandchild➔
Work/Mask-talking➔

ACTIONS➔ PAINS: Ribs left. 1h drive/change of environment ➔ forehead hurt (wind?), eyes hurting, headache, pangs alternating

:white_check_mark: :x: :face_with_monocle:
Lie ➔ LBU = lower back unrest, Neck, thighs, elbows, itch, cold/hot, nose stuffy
Stand ➔ Legs, back
Knees up ➔ right loin
Sit ➔ Backside, lower back
Pose ➔ stiffness (Stiffness after holding a posture): Time 0-60’’, pain amount if faster.
Walk ➔ Elbows, feet, right knee
Cycle ➔ Feet, backside, elbows, hands, neck
Drink ➔ Pee frequency, pain before peeing (p0-6).
Eat ➔ Esophagus block, stomach, gut, rectum. GI for short
Talk➔Jaw (& Ache)
Mask-talk ➔ not sure how to describe it, just plain yucky.

Treatments

SELF-PHYSIO: 41' ✅, fibro-work 2h

:white_check_mark: Timing, AuTr 5’, hunchback-pillow 5’, cold shower 2x(10’), palpate 1’, belly 3’, back 7’, .
:x: Timing, AuTr ‘, hunchback-pillow ‘, cold shower (10’), palpate 1’, belly 3’, back 7’, workout 7’, twist-stretch 2’, gums 2x30’’, thumbnails 10x30’’, neck 1+ ‘, neck 2 1’, V ‘, yoga ‘, loins 1’, marionette-hang 1’, breath-hold 11’, shaking dance 1’, RR x2’, HWB 3’

Fibro-work: Night: 0 + ?2h

THERAPIES: None this week.

Acupressure / Therapy, Doc/Diagnoses ? :white_check_mark: :x: :face_with_monocle: Acupressure 2h Tues & 2h Fri:

SUPPS: good sleep, good TT ✅, GI ✅, stiffness still not optimal.

2x400mg Mg malate, 3x290mg passiflora,
20:40 2 Mg & 3x passiflora & Ω3 at meal
22:55 600mg GABA
2:27 600mg GABA & 400mg L-glutamine & "200"mg theanine +1 passiflora
4mg Taurine before TT

Development

Lessons in self-care #67 Even a 5/6-day trip an hour away is a big trigger: need to watch myself.

Highlights week 16th to 21st.

Abbreviations & explanations

Entries start with night meds & sleep, before triggers/symptoms & treatments, because the “night before” is vital. So Fri-day starts with Thursday night, the night before Friday.

Pain "7" = crying (/out) point; my 1 is others 2-3, and due to pacing/treatments

My wife says my 7 is other people’s 12. 1 is probably 2-3. Due to pacing, keeping work down to 25% (12h/wk) and all my treatments (acupressure, GABA) and physio self-treatments I manage to keep getting my pains & Ache down quickly. 3 usually means the Ache, not pains; these I address individually, often automatically and on the fly now, e.g. twist-stretching everything or something specific after getting up.

TIME DATA, e.g. ' = mins, h = hours, 18:10:40', date YYYY-MM-DD

’ = mins = minutes, ‘’ = secs = seconds, h is hours as time length, 3h is 3 hours long, 3:00 is 3am, 15:00 is 3pm. 18:10:40’ means 40 minutes, starting at 18:10, = 10 minutes past 6pm up to 10 to 7pm. The date is the logical digital standard: YYYY-MM-DD.

SLEEP: slp, w, lbu/LBU, RLS, p, i

slp = sleep; reasons for getting up: w = (a)wake, lbu/LBU: lower back unrest (‘RLS’?), p: pee, p2: pain 2 of 7 before peeing, i: ideas.

ACTIVITIES: TT, e.g. "5:1"

TT = table tennis, 5:1 = score, usually showing how well I’m feeling: energy, relaxedness & alertness if the first number is much higher than the second.

SUPPS: supplements (as opposed to herbs & meds). Fx: Effects. Sfx: Side effects.

SELF-TREATMENTS (about everything else...)

The self-treatments listed are only things that I’m spotlighting & rewarding myself for at the mo by counting them; much of what I do at night is self-treatment to get back to sleep or alleviate (1-2h/d), certain regular movements at daytime, like twist-stretching (30’), writing this blog is self-treatment (30’-60’/d), and the further fibro-work is an indirect form.
Self treatments are usually preventative or always have the same positive effect (e.g. cold showering improves Ache and sleep) - at least I do them for that - and I use “:arrow_forward:” to show what I’m doing to alleviate something and mark it off in the details “:white_check_mark:/:x:” whether it works well enough for a time or doesn’t’, e.g. Ache :arrow_forward: cold fast shower “:white_check_mark:
fw = fibro-work, meaning reading and writing this blog, the reference base, on 4 fibro-forums and researching fibro-stuff on the web.
AuTr = Autogenic Training (usually to actively get - back - to sleep, so counting it as sleep and AuTr…),
FAT Flash/fast autogenic training: immediate image of dreamy floating in space or liquid from jaw to legs.
cold/FCS = Flash Cold Shower (20’’-60’’) , I count it as 10’ tho. At night with ear plugs & all lights off.
breath-hold/WHM-B-H = Wim Hof Method Breath-Holding,
Neck 1 is stretching top right to bottom left, vice versa & sky/ground, neck “1+” is stretching far further diagonally downwards, neck 2 is pressing my head against my hand “without moving”, left right and front.
loins = loins/groin = stretching the ligaments there.
ex = exercises
HWB = Hot water bottle,
RR = bp = blood pressure (Riva Rocci), plus pulse. Used to be normal, plus sometimes white coat syndrome, went up since fibro, seems to have gone down again, but I’m still sort of on meds, candesartan 16mg, instead of 8mg plus lercanidipine, cos I saw that c. has less side effects.
:new: “V” for loins = lie on back, legs up and let legs fall to sides;
:new: twist-stretching more for the loins
:white_check_mark: :x: :face_with_monocle: ➔ ⇄ ⇨➜ ➞ :arrow_right: ➲ ↔:⇰↔ →:arrow_upper_right: :arrow_lower_right:

↯ ↛ ↺ ↮ ⇝ ⇾ ⟹ ⭆ ⤮:

2021-08-25, Wednesday

Triggers & resulting Symptoms

SLEEP: 7h01-28'=7h01, up 6x (28'), +1h25 = 8h26 (2h14 break) ↔️ Starting at feeling 70% well, Ache 3 of 7 ✅, improving to 80%/2 by the morning, good considering being away from home.

20:20: 2x Mg & 3x passiflora at meal
21:45: 600mg GABA & selene & roseroot
2:05: 400mg GABA & 400mg L-glutamine & "200"mg theanine
22:22- 70%/3 (right forehead, stomach)
0:05 3’ 70%/2 (forehead) p2-3 drink
0:11 8’ 70%/2 FCS#1 p3
2:14 3’ 80%/2 (forehead 2) p2-3 drink +400 GABA + 400 glutamine + 200 theanine +1 passiflora
3:38 5’ 80%/2 (forehead 1) p2-3 drink, stiff3->1
4:57 6’ 80%/1 (forehead 1) p0 drink. Ribs left hurt since yesterday TT → arnica cream :white_check_mark:. (wife) Doze.
-5:23 3’ 80%/1 (forehead 1) dry mouth → gel/lips. hungry → drink. Wide awake.
7:37-9:02 +1h25
Night: Teeth! RR! fw only notes!
90%/1? 80%/2? p0 th drink almonds fw1’ teeth FCS#2?
-end. Breakfast while blogging, before exercising!
Sum: 1h38+5h23-(3+8+3+5+6+3=)28’= 7h01-28’=7h01, up 6x (28’), +1h25 = 8h26 (2h14 break)

ACTIVITIES➔ACHE: talking, shop ➔ 70%/3, eating & rest ➔ 80%/2, cycle trip with short stints and many long breaks ➔ 85%/2. By the way my IBSD problems can lead to overexertion and Ache too... - several times today - but recovery time is quicker than any pains.

Ache = also Exhaustion/Tired :white_check_mark: :x: :face_with_monocle: ➔ ?90%/1
Cycle➔ exhaustion, also as action➔pains;
TT = Table-Tennis➔ easy or effortless or strained or tough?
talk/meetings here (and actions➔pains?)
Grandchild➔
Work/Mask-talking➔

ACTIONS➔ PAINS: GI: stomach pain at 22:00 (GABA?). Even walking up stairs is difficult today due to the stiffness ❌, but of course it might just be the Ache due to being away from home, not reducing the GABA. Bit better in the evening. ✅

:white_check_mark: :x: :face_with_monocle:
Lie ➔ LBU = lower back unrest, Neck, thighs, elbows, itch, cold/hot, nose stuffy
Stand ➔ Legs, back
Knees up ➔ right loin
Sit ➔ Backside, lower back
Pose ➔ stiffness (Stiffness after holding a posture): Time 0-60’’, pain amount if faster.
Walk ➔ Elbows, feet, right knee
Cycle ➔ Feet, backside, elbows, hands, neck
Drink ➔ Pee frequency, pain before peeing (p0-6).
Eat ➔ Esophagus block, stomach, gut, rectum. GI for short
Talk➔Jaw (& Ache)
Mask-talk ➔ not sure how to describe it, just plain yucky.

Treatments

SELF-PHYSIO: 68' ✅, fibro-work 3h?

*:white_check_mark: Timing, AuTr 5’, hunchback-pillow 10’, cold shower (10’) (so tired & weary I postponed it till my first sleep break, and didn’t need a 2nd one, bit of warm beforehand, but had showered due to the Ache in the evening already), palpate 1’, belly 3’, back 7’, arnica cream 3x1’, twist-stretch 12’, thumbnails 4x30’’, gums 2x30’’, neck 1+ 5’, HWB 3’, yoga 3’, loins 3’.
:x: workout 7’, neck 2 1’, V ‘, marionette-hang 1’, breath-hold 11’, shaking dance 1’, RR x2’, *
Fibro-work: Night: 5’+ 45’ + 2h?

THERAPIES: None this week.

Acupressure / Therapy, Doc/Diagnoses ? :white_check_mark: :x: :face_with_monocle: Acupressure 2h Tues & 2h Fri:

SUPPS: Sleep breaks frequent but short, despite Ache. But awake (too) early. Stiffer. ✅, GI hungry early ✅ , taurine: 2x4mg not working, 3rd 5mg praps, then another ?15mg later, without a sleep problem after.

(?:arrow_upper_right: :arrow_lower_right:)
2x400mg Mg malate, 3x290mg passiflora,
20:20: 2 Mg & 3x passiflora & 0 Ω3 at meal
21:30: 600mg GABA
0:05: 400mg GABA & 400mg L-glutamine & ‘200’ mg theanine +1 passiflora
For taurine amounts I use a ball point pen tip for 5mg and my vitamin C spoon 100mg as an orientation.

Development

Highlights week 16th to 21st.

Abbreviations & explanations

Entries start with night meds & sleep, before triggers/symptoms & treatments, because the “night before” is vital. So Fri-day starts with Thursday night, the night before Friday.

Pain "7" = crying (/out) point; my 1 is others 2-3, and due to pacing/treatments

My wife says my 7 is other people’s 12. 1 is probably 2-3. Due to pacing, keeping work down to 25% (12h/wk) and all my treatments (acupressure, GABA) and physio self-treatments I manage to keep getting my pains & Ache down quickly. 3 usually means the Ache, not pains; these I address individually, often automatically and on the fly now, e.g. twist-stretching everything or something specific after getting up.

TIME DATA, e.g. ' = mins, h = hours, 18:10:40', date YYYY-MM-DD

’ = mins = minutes, ‘’ = secs = seconds, h is hours as time length, 3h is 3 hours long, 3:00 is 3am, 15:00 is 3pm. 18:10:40’ means 40 minutes, starting at 18:10, = 10 minutes past 6pm up to 10 to 7pm. The date is the logical digital standard: YYYY-MM-DD.

SLEEP: slp, w, lbu/LBU, RLS, p, i

slp = sleep; reasons for getting up: w = (a)wake, lbu/LBU: lower back unrest (‘RLS’?), p: pee, p2: pain 2 of 7 before peeing, i: ideas.

ACTIVITIES: TT, e.g. "5:1"

TT = table tennis, 5:1 = score, usually showing how well I’m feeling: energy, relaxedness & alertness if the first number is much higher than the second.

SUPPS: supplements (as opposed to herbs & meds). Fx: Effects. Sfx: Side effects.

SELF-TREATMENTS (about everything else...)

The self-treatments listed are only things that I’m spotlighting & rewarding myself for at the mo by counting them; much of what I do at night is self-treatment to get back to sleep or alleviate (1-2h/d), certain regular movements at daytime, like twist-stretching (30’), writing this blog is self-treatment (30’-60’/d), and the further fibro-work is an indirect form.
Self treatments are usually preventative or always have the same positive effect (e.g. cold showering improves Ache and sleep) - at least I do them for that - and I use “:arrow_forward:” to show what I’m doing to alleviate something and mark it off in the details “:white_check_mark:/:x:” whether it works well enough for a time or doesn’t’, e.g. Ache :arrow_forward: cold fast shower “:white_check_mark:
fw = fibro-work, meaning reading and writing this blog, the reference base, on 4 fibro-forums and researching fibro-stuff on the web.
AuTr = Autogenic Training (usually to actively get - back - to sleep, so counting it as sleep and AuTr…),
FAT Flash/fast autogenic training: immediate image of dreamy floating in space or liquid from jaw to legs.
cold/FCS = Flash Cold Shower (20’’-60’’) , I count it as 10’ tho. At night with ear plugs & all lights off.
breath-hold/WHM-B-H = Wim Hof Method Breath-Holding,
Neck 1 is stretching top right to bottom left, vice versa & sky/ground, neck “1+” is stretching far further diagonally downwards, neck 2 is pressing my head against my hand “without moving”, left right and front.
loins = loins/groin = stretching the ligaments there.
ex = exercises
HWB = Hot water bottle,
RR = bp = blood pressure (Riva Rocci), plus pulse. Used to be normal, plus sometimes white coat syndrome, went up since fibro, seems to have gone down again, but I’m still sort of on meds, candesartan 16mg, instead of 8mg plus lercanidipine, cos I saw that c. has less side effects.
:new: “V” for loins = lie on back, legs up and let legs fall to sides;
:new: twist-stretching more for the loins
:white_check_mark: :x: :face_with_monocle: ➔ ⇄ ⇨➜ ➞ :arrow_right: ➲ ↔:⇰↔ →:arrow_upper_right: :arrow_lower_right:

↯ ↛ ↺ ↮ ⇝ ⇾ ⟹ ⭆ ⤮:

2021-08-26, Thursday

Triggers & resulting Symptoms

SLEEP: 8h01, up 3x (19'), minus =38' doze = 7h23 ↔️ Feeling 90% well, Ache 1 of 7 ✅, except forehead: 80%/2 ❌

20:20: !3x Mg & 3x passiflora & Ω3 at meal
23:00: 450mg GABA
2:10: 600mg GABA & 400mg L-glutamine & "200"mg theanine + 1 passiflora
FCS#1 23:00-
2:10 13’ 90%/1 p2 drink Gastritol drink fw10’ +600 GABA + 400 glutamine + 200 theanine +1 passiflora
4:54 3’ 90%/1 p2 drink drink fw1’
6:40 3’ 90%/1 p1 drink drink fw1’ doze
-7:21
Night: Teeth! RR! fw only notes!
90%/1? 80%/2? p0 th drink almonds fw1’ teeth FCS#2? +600 GABA + 400 glutamine + 200 theanine +1 passiflora
Breakfast while blogging, before exercising!
Sum: 1h+7h21-(13+3+3=)19’= 8h21-19’=8h01, up 3x (19’), minus =38’ doze = 7h23

ACTIVITIES➔ACHE: Evening prayer at 21:00 yesterday was OK, despite being at relaxing time ➔ (80%/2). Generally still Ache ➔ 70-80%/3-2 yesterday, was outside a lot today, quite a bit of walking but short and with very long breaks, and quite a bit of wind, so ➔ 80%/3

Ache = also Exhaustion/Tired :white_check_mark: :x: :face_with_monocle: ➔ ?90%/1
Cycle➔ exhaustion, also as action➔pains;
TT = Table-Tennis➔ easy or effortless or strained or tough?
talk/meetings here (and actions➔pains?)
Grandchild➔
Work/Mask-talking➔

ACTIONS➔ PAINS: Forehead right from evening ?21:00 all night to morning. ❌ Watching that. Seems to have got a bit worse again after taking 3 Mg + 3 passiflora? Or from the amount of taurine? Or is it environmental/immune/cold-like like on/from the 1h drive here? That's when it started. What could help? 🧐 Improving 7:42 just from being up. Very thirsty, drink more earlier. Sitting 20' after having got up: Painfully (4) stiff for 1', altho getting up was not very stiff. (10'', 2). Pee pain ↗2. All poses are OK. Pee pain going down again, otherwise I'd've thought it may have been better from the last acupressure and getting worse again. Stiffness varying too. Forehead better all day, blaming the cold/wind for now. ✅ All positions OK, just the general Ache (combined with alternating single short pains, helped by local treatments ✅), see above.

:white_check_mark: :x: :face_with_monocle:
Lie ➔ LBU = lower back unrest, Neck, thighs, elbows, itch, cold/hot, nose stuffy
Stand ➔ Legs, back
Knees up ➔ right loin
Sit ➔ Backside, lower back
Pose ➔ stiffness (Stiffness after holding a posture): Time 0-60’’, pain amount if faster.
Walk ➔ Elbows, feet, right knee
Cycle ➔ Feet, backside, elbows, hands, neck
Drink ➔ Pee frequency, pain before peeing (p0-6).
Eat ➔ Esophagus block, stomach, gut, rectum. GI for short
Talk➔Jaw (& Ache)
Mask-talk ➔ not sure how to describe it, just plain yucky.

Treatments

SELF-PHYSIO: 58' ✅, fibro-work 7h?

:white_check_mark: Timing, AuTr 5’, hunchback-pillow 5’, cold shower (10’), palpate 1’, belly 3’, back 7’, twist-stretch 6’, … yoga 8’, loins 3’, neck 1+ 3’, neck 2 2’, thumbnails 2x30’’, gums 2x30’’, HWB 3’.
Up x AuTr 5’, hunchback 5’, fw 1’, LBU twist-stretch x2-5’, neck x1’, elbows → arnica cream, itch → cream, cold/hot/stuffy → FCS#2.
:x: workout 7’, V ‘, marionette-hang 1’, breath-hold 11’, shaking dance 1’, RR x2’

*Fibro-work: Night: + *

THERAPIES: Self-treating occasional pains (short, around 3) in ribs, shoulder & neck with arnica.

Acupressure / Therapy, Doc/Diagnoses ? :white_check_mark: :x: :face_with_monocle: Acupressure 2h Tues & 2h Fri:

SUPPS: Longer sleep stints, less breaks ✅, from ↗3 x malate? Or from taking less GABA for starters, then more at 2:00? Or from different environment & activities. 🧐. Stiffness seems a bit better at last, starting after 3x malate, 3x passiflora yesterday evening. Watch under "actions". ✅. GI ✅. 2 auras at around 17:00 yesterday and one very slight focal seizure upon going to sleep means I need less glutamate (glutamine, theanine or taurine) or more GABA - unless GABA is too !much & overexciting via overdose (Scott) or shunt (Perkins). 🧐

20:20: !3x Mg & 3x passiflora & Ω3 at meal
23:00: 450mg GABA
2:10: 600mg GABA & 400mg L-glutamine & "200"mg theanine + 1 passiflora

Highlights week 16th to 21st.

Abbreviations & explanations

Entries start with night meds & sleep, before triggers/symptoms & treatments, because the “night before” is vital. So Fri-day starts with Thursday night, the night before Friday.

Pain "7" = crying (/out) point; my 1 is others 2-3, and due to pacing/treatments

My wife says my 7 is other people’s 12. 1 is probably 2-3. Due to pacing, keeping work down to 25% (12h/wk) and all my treatments (acupressure, GABA) and physio self-treatments I manage to keep getting my pains & Ache down quickly. 3 usually means the Ache, not pains; these I address individually, often automatically and on the fly now, e.g. twist-stretching everything or something specific after getting up.

TIME DATA, e.g. ' = mins, h = hours, 18:10:40', date YYYY-MM-DD

’ = mins = minutes, ‘’ = secs = seconds, h is hours as time length, 3h is 3 hours long, 3:00 is 3am, 15:00 is 3pm. 18:10:40’ means 40 minutes, starting at 18:10, = 10 minutes past 6pm up to 10 to 7pm. The date is the logical digital standard: YYYY-MM-DD.

SLEEP: slp, w, lbu/LBU, RLS, p, i

slp = sleep; reasons for getting up: w = (a)wake, lbu/LBU: lower back unrest (‘RLS’?), p: pee, p2: pain 2 of 7 before peeing, i: ideas.

ACTIVITIES: TT, e.g. "5:1"

TT = table tennis, 5:1 = score, usually showing how well I’m feeling: energy, relaxedness & alertness if the first number is much higher than the second.

SUPPS: supplements (as opposed to herbs & meds). Fx: Effects. Sfx: Side effects.

SELF-TREATMENTS (about everything else...)

The self-treatments listed are only things that I’m spotlighting & rewarding myself for at the mo by counting them; much of what I do at night is self-treatment to get back to sleep or alleviate (1-2h/d), certain regular movements at daytime, like twist-stretching (30’), writing this blog is self-treatment (30’-60’/d), and the further fibro-work is an indirect form.
Self treatments are usually preventative or always have the same positive effect (e.g. cold showering improves Ache and sleep) - at least I do them for that - and I use “:arrow_forward:” to show what I’m doing to alleviate something and mark it off in the details “:white_check_mark:/:x:” whether it works well enough for a time or doesn’t’, e.g. Ache :arrow_forward: cold fast shower “:white_check_mark:
fw = fibro-work, meaning reading and writing this blog, the reference base, on 4 fibro-forums and researching fibro-stuff on the web.
AuTr = Autogenic Training (usually to actively get - back - to sleep, so counting it as sleep and AuTr…),
FAT Flash/fast autogenic training: immediate image of dreamy floating in space or liquid from jaw to legs.
cold/FCS = Flash Cold Shower (20’’-60’’) , I count it as 10’ tho. At night with ear plugs & all lights off.
breath-hold/WHM-B-H = Wim Hof Method Breath-Holding,
Neck 1 is stretching top right to bottom left, vice versa & sky/ground, neck “1+” is stretching far further diagonally downwards, neck 2 is pressing my head against my hand “without moving”, left right and front.
loins = loins/groin = stretching the ligaments there.
ex = exercises
HWB = Hot water bottle,
RR = bp = blood pressure (Riva Rocci), plus pulse. Used to be normal, plus sometimes white coat syndrome, went up since fibro, seems to have gone down again, but I’m still sort of on meds, candesartan 16mg, instead of 8mg plus lercanidipine, cos I saw that c. has less side effects.
:new: “V” for loins = lie on back, legs up and let legs fall to sides;
:new: twist-stretching more for the loins
:white_check_mark: :x: :face_with_monocle: ➔ ⇄ ⇨➜ ➞ :arrow_right: ➲ ↔:⇰↔ →:arrow_upper_right: :arrow_lower_right:

↯ ↛ ↺ ↮ ⇝ ⇾ ⟹ ⭆ ⤮:

2021-08-27, Friday - after a short, but concentrated night, a 2mi bike spree was to turn to 5 mi trip there, so another 5 mi back, but due to a wrong turning ended up being a 17 mi odyssee :grimacing:

Triggers & resulting Symptoms

SLEEP: 6h52, plus up 4x (18'), minus 35' dozing ↔️ Feeling 85% well, Ache 2 of 7 ✅

19:50?: !3x Mg & 3x passiflora & Ω3 at meal
23:00: 450mg GABA
?: 600mg GABA & 400mg L-glutamine & "200"mg theanine + 1x passiflora
23:00 FCS#1 90%/1 0:40-
2:57 6’ 90%/1 p2 st1 drink fw2’ +600 GABA + 400 glutamine + 200 theanine +1 passiflora
3:55 5’ 90%/1 p0! st1 drink fw1’
6:31 5’ 90%/1 p2 st1 drink fw1’ (no forehead ache, no ear plugs, no eye mask) doze
7:13 2’ 90%/1 p2 st1 dry mouth → drink fw1’, ear plugs, eye mask (doze)
-7:50 alarm by mistake. Fly got on my nerves before too…
Sum: 7h10-(6+5+5+2=)18’= 6h52, plus up 4x (18’), minus 35’ dozing.

ACTIVITIES➔ACHE: 17mi cycle odyssee ➔ 70%/3, quite good considering, due to loads of breaks, altho not really short enough. ✅

Ache = also Exhaustion/Tired :white_check_mark: :x: :face_with_monocle: ➔ ?90%/1
Cycle➔ exhaustion, also as action➔pains;
TT = Table-Tennis➔ easy or effortless or strained or tough?
talk/meetings here (and actions➔pains?)
Grandchild➔
Work/Mask-talking➔

ACTIONS➔ PAINS: Cycling on a rented bike meant more backside and knee pains and less foot and neck problems, medium elbow and hands, started twist-stretching in regular breaks towards the end, which brought some relief & helped me carry on. Rest was quite good ✅ inkl. right loin btw, apart from getting heartburn from indulging in too many dry fruits.

:white_check_mark: :x: :face_with_monocle:
Lie ➔ LBU = lower back unrest, Neck, thighs, elbows, itch, cold/hot, nose stuffy
Stand ➔ Legs, back
Knees up ➔ right loin
Sit ➔ Backside, lower back
Pose ➔ stiffness (Stiffness after holding a posture): Time 0-60’’, pain amount if faster.
Walk ➔ Elbows, feet, right knee
Cycle ➔ Feet, knees, backside, elbows, hands, neck
Drink ➔ Pee frequency, pain before peeing (p0-6).
Eat ➔ Esophagus block, stomach, gut, rectum. GI for short
Talk➔Jaw (& Ache)
Mask-talk ➔ not sure how to describe it, just plain yucky.

Treatments

SELF-PHYSIO: 45' ✅, fibro-work ?5h

:white_check_mark: Timing, AuTr 5’, hunchback-pillow 10’, cold shower (10’), palpate 1’, belly 3’, back 7’, twist-stretch 4’, gums 2x30’’, yoga 2’, loins 2’, .
Up x AuTr 5’, hunchback 5’, fw 1’, LBU twist-stretch x2-5’, neck x1’, elbows → arnica cream, itch → cream, cold/hot/stuffy → FCS#2.
:x: workout 7’, thumbnails 10x30’’, neck 1+ ‘, neck 2 1’, V ‘, marionette-hang 1’, breath-hold 11’, shaking dance 1’, RR x2’, HWB 3’

*Fibro-work: Night: + *

THERAPIES:

Acupressure / Therapy, Doc/Diagnoses ? :white_check_mark: :x: :face_with_monocle: Acupressure 2h Tues & 2h Fri:

SUPPS: Great sleep again ✅, GI ✅

2x400mg Mg malate, 3x290mg passiflora,
20:20: 2 Mg & 3x passiflora & Ω3 at meal
21:30: 600mg GABA
?: 600mg GABA & 400mg L-glutamine & "200"mg theanine +1 passiflora

Development

Lessons in self-care #69 I’m always looking to twist-stretch or rest in between, however much or little we are doing.
Reasons to be cheerful #68 Things are looking good, even the long cycling didn’t cause too much a backlash.

Highlights week 16th to 21st.

Abbreviations & explanations

Entries start with night meds & sleep, before triggers/symptoms & treatments, because the “night before” is vital. So Fri-day starts with Thursday night, the night before Friday.

Pain "7" = crying (/out) point; my 1 is others 2-3, and due to pacing/treatments

My wife says my 7 is other people’s 12. 1 is probably 2-3. Due to pacing, keeping work down to 25% (12h/wk) and all my treatments (acupressure, GABA) and physio self-treatments I manage to keep getting my pains & Ache down quickly. 3 usually means the Ache, not pains; these I address individually, often automatically and on the fly now, e.g. twist-stretching everything or something specific after getting up.

TIME DATA, e.g. ' = mins, h = hours, 18:10:40', date YYYY-MM-DD

’ = mins = minutes, ‘’ = secs = seconds, h is hours as time length, 3h is 3 hours long, 3:00 is 3am, 15:00 is 3pm. 18:10:40’ means 40 minutes, starting at 18:10, = 10 minutes past 6pm up to 10 to 7pm. The date is the logical digital standard: YYYY-MM-DD.

SLEEP: slp, w, lbu/LBU, RLS, p, i

slp = sleep; reasons for getting up: w = (a)wake, lbu/LBU: lower back unrest (‘RLS’?), p: pee, p2: pain 2 of 7 before peeing, i: ideas.

ACTIVITIES: TT, e.g. "5:1"

TT = table tennis, 5:1 = score, usually showing how well I’m feeling: energy, relaxedness & alertness if the first number is much higher than the second.

SUPPS: supplements (as opposed to herbs & meds). Fx: Effects. Sfx: Side effects.

SELF-TREATMENTS (about everything else...)

The self-treatments listed are only things that I’m spotlighting & rewarding myself for at the mo by counting them; much of what I do at night is self-treatment to get back to sleep or alleviate (1-2h/d), certain regular movements at daytime, like twist-stretching (30’), writing this blog is self-treatment (30’-60’/d), and the further fibro-work is an indirect form.
Self treatments are usually preventative or always have the same positive effect (e.g. cold showering improves Ache and sleep) - at least I do them for that - and I use “:arrow_forward:” to show what I’m doing to alleviate something and mark it off in the details “:white_check_mark:/:x:” whether it works well enough for a time or doesn’t’, e.g. Ache :arrow_forward: cold fast shower “:white_check_mark:
fw = fibro-work, meaning reading and writing this blog, the reference base, on 4 fibro-forums and researching fibro-stuff on the web.
AuTr = Autogenic Training (usually to actively get - back - to sleep, so counting it as sleep and AuTr…),
FAT Flash/fast autogenic training: immediate image of dreamy floating in space or liquid from jaw to legs.
cold/FCS = Flash Cold Shower (20’’-60’’) , I count it as 10’ tho. At night with ear plugs & all lights off.
breath-hold/WHM-B-H = Wim Hof Method Breath-Holding,
Neck 1 is stretching top right to bottom left, vice versa & sky/ground, neck “1+” is stretching far further diagonally downwards, neck 2 is pressing my head against my hand “without moving”, left right and front.
loins = loins/groin = stretching the ligaments there.
ex = exercises
HWB = Hot water bottle,
RR = bp = blood pressure (Riva Rocci), plus pulse. Used to be normal, plus sometimes white coat syndrome, went up since fibro, seems to have gone down again, but I’m still sort of on meds, candesartan 16mg, instead of 8mg plus lercanidipine, cos I saw that c. has less side effects.
:new: “V” for loins = lie on back, legs up and let legs fall to sides;
:new: twist-stretching more for the loins
:white_check_mark: :x: :face_with_monocle: ➔ ⇄ ⇨➜ ➞ :arrow_right: ➲ ↔:⇰↔ →:arrow_upper_right: :arrow_lower_right:

↯ ↛ ↺ ↮ ⇝ ⇾ ⟹ ⭆ ⤮:

2021-08-28, Saturday

Triggers & resulting Symptoms

SLEEP: 7h47, up 4x (28'), (minus 20' doze = 7h27) ↔️ Feeling 90% well, Ache 1 of 7 ✅

20:20: 2x Mg & 3x passiflora & Ω3 at meal
23:00: 400mg GABA
?: 600mg GABA & 400mg L-glutamine & "200"mg theanine
23:10 FCS#1 teeth 0:05-
2:42 18’ 90%/1 p1 st1 drink almonds fw8’ +600 GABA + 400 glutamine + 200 theanine +1 passiflora laptop fell down, apparently dead, had to reset.
4:29 3’ 90%/1 p0 st1 drink fw1’ → ear plugs. Freed stuffy nose. dozed a bit first
6:43 3’ 90%/1 p0 st1 drink fw1’ → eye mask. more clothes on.
7:47 4’ 90%/1 p0 st1 drink fw3’ hunchback hurting → small pillow under it. dry mouth → drink a lot. doze.
-8:20 Breakfast while blogging, before exercising!
Sum: 8h15-(18+3+3+4=)28’=7h47, up 4x (28’), minus 10+10’ doze = 20’h

ACTIVITIES➔ACHE: Resting/fw all morning ➔ 90%/1, not too long bike ride & walk ➔ 90%/1 (despite the oddysee yesterday & the short night)

Ache = also Exhaustion/Tired :white_check_mark: :x: :face_with_monocle: ➔ ?90%/1
Cycle➔ exhaustion, also as action➔pains;
TT = Table-Tennis➔ easy or effortless or strained or tough?
talk/meetings here (and actions➔pains?)
Grandchild➔
Work/Mask-talking➔

ACTIONS➔ PAINS: Lying: hunchback pain probably due to the cycling, trying to lie on my back on the soft armchair-bed without a pillow under it, sitting on sofa instead of twist-stretching. Possible that the armchair-bed is helping improve the LBU, compare once I'm back in my own bed. Exercises, phoenix-position and twist-stretching toward the sofa helped. ✅ All the rest good, incl. pose-stiffness, night & day, drinking, eating, loins. ✅ Sitting in the kitchen without my bar stool brought me on to twist-stretching more often while sitting on a normal chair and standing, like at night and on the floor twisted to the sofa. 🧐 I cd reward myself with first a real, then a reduced symbolic self-treatment time until I've internalized it. First trial is suggesting that doing it all the time may be too much, but twisted towards a sofa is always pretty long without sfx...

:white_check_mark: :x: :face_with_monocle:
Lie ➔ LBU = lower back unrest, hunchback, Neck, thighs, elbows, itch, cold/hot, nose stuffy
Stand ➔ Legs, back
Knees up ➔ right loin
Sit ➔ Backside, lower back
Pose ➔ stiffness (Stiffness after holding a posture): Time 0-60’’, pain amount if faster.
Walk ➔ Elbows, feet, right knee
Cycle ➔ Feet, knees, backside, elbows, hands, neck
Drink ➔ Pee frequency, pain before peeing (p0-6).
Eat ➔ Esophagus block, stomach, gut, rectum. GI for short
Talk➔Jaw (& Ache)
Mask-talk ➔ not sure how to describe it, just plain yucky.

Treatments

SELF-PHYSIO: 59' ✅, fibro-work ?8h (diet research)

:white_check_mark: Timing, AuTr 5’, hunchback-pillow 10’, cold shower (10’), palpate 1’, belly 3’, back 7’, twist-stretch 20’, gums 4x30’’, thumbnails 2x30’’, .
:x: workout 7’, neck 1+ ‘, neck 2 1’, V ‘, yoga ‘, loins 1’, marionette-hang 1’, breath-hold 11’, shaking dance 1’, RR x2’, HWB 3’

Fibro-work: Night: + ?8h (CV/general, not nec. fibro)

THERAPIES: Diagnoses / Health / Diets see linked post: Bottom line for me: As I eat mainly raw food it is unprocessed & unrefined, which is again shown as good. Some saturated fats are OK, LDL might not be everything (but then again might be the only indication for CV we have). The arguments for lowering my carbs are not conclusive to me. ✅

What diet works best to control Fibro pain? - #13 by JayCS is what I worked thru yesterday and today.
Acupressure / Therapy, Doc/Diagnoses ? :white_check_mark: :x: :face_with_monocle: Acupressure 2h Tues & 2h Fri:

SUPPS: Going down 3↘2 malate hasn't worsened sleep ✅, good that I kept it at that first, cos of the overexerting long bike ride. GI ✅ (not due to supps). 14:30: 100mg!? taurine as an after-midday coffee, due to the fact that I cdnt notice at difference from 30mg the other day. I hope I'll be able to sleep tonight. But first reaction is I feel more tired - wdnt that be funny/strange if that's the taurine. 🧐 I had energy, but was a bit tired (only itchy eyes) all afternoon. Feel tired enough for normal sleep, so I think leaving out the magnesium malate should work, passiflora should do the trick alone.

20:20: 2x400mg Mg malate, 3x290mg passiflora,
23:00: 400mg GABA
2:40: 600mg GABA & 400mg L-glutamine & "200"mg theanine +1 passiflora
14:25: 100mg? taurine :face_with_monocle:

UP NEXT: 1) GABA 450+600, malate ↘1x (to see if it's the 2↗4x passiflora alone that is helping). But wait for the taurine-reaction first! 2) 3rd tryptophan: speck 3) 3rd melatonin: speck. 4) 2nd levodopa-fraction trial 5) serrapeptase: careful! Order 6) SAMe? 7) Ribose? 8) NAC? 9) NADH? 10) ALC (or injected?) A) HERBS B) SUPPS C) MEDS Info:

:arrow_upper_right: :arrow_lower_right:

A HERBS: Almonds for heartburn, Schüssler

For heartburn: Almonds first. (Bentonite, medicinal clay, mumijo?)
Schüssler 2, 4, & 7 (3-6 months sez my acupressurist).

B SUPPS: Amino acids, Enzyme, Minerals, Vitamins
Amino acids: 1) Balancing GABA 2) glutamine, 3) theanine, 4) tyrosine, 5) SAMe 6) tryptophan, 7 glycine
1+2 Balancing GABA & glutamine: 1 Healthfully B6, 2 Perkins: Lithiumorotate, Zn, 3 Jockers strange doses!? 4 Levy: vitamin B6, as P-5'-P?

1.1 Healthfully: tyrosine, tryptophan, B6, high complex carb early, low protein late"]
1.2 Zn Cynthia Perkins:: Low carb (<50mg) paleo, high animal protein; (Mg) Zn <40mg, lithium orotate 125-200mg, glycine often excitatory; praps, or not: taurine, vit. B6, SAMe, NAC, theanine"]

3 Theanine

As it’s made from a pulverized tablet it contains filling agent. I could work out.
slightly decreasing more (300 on Aug 4th seemed better), alertness, energy, relaxation without drowsiness, 100-600mg, no sfx known!, however it increases dopamine, what it does to serotonin isn’t clear.
BTW theanine is partly for DOPAMINE (“opposite” of serotonin, but not sure what it does to serotonin), like glutamine, levodopa, as well as taurine, tyrosine, SAMe and Mucuna pruriens!

4 Taurine: adrenalized me, so keep as an upper in the mornings

“500mg” taurine adrenalized me all night (4h40 sleep) & day Aug 20th. Praps I’ve found my coffee, as my acupressurist suggested! I’ll start with specks in the mornings, increasing depending on how I feel or need to get up, like next Tuesday at 7:15 for work. And praps it will get a handle on sleeplessness by getting me up, despite little sleep and then letting me get tired again properly after…
BTW I’ve no idea how much mg I’m really taking, as it may be heavier or lighter than the others.

5 SAMe DUNNO: 400-800mg in the mornings, as stimulating, not much research

SAM-e for Fibromyalgia and Chronic Fatigue Syndrome

6 Tryptophan: repeat in VERY low dose? (GI; dead tired; encapsulating like theanine),

7 Glycine

Seems to excite me, as leaving off magnesium glycinate improved sleep.

Serrapeptase: https://www.livingwithfibro.org/t/serrapeptase/13678/3:
Proteolytic enzyme without any evidence (wp), produced by silkworm bacterium. 10-60mg. enteric coated 30’ before or 2h after eating. fx: inflammation, pain. sfx: skin, pain, incl. stomach! Serrapeptase: Benefits, Dosage, Dangers, and Side Effects, https://draxe.com/nutrition/serrapeptase/ Take as little as possible, and if possible enteric coated?? So what do I do now??
NADH coenzyme NADH for Fibromyalgia Pain Relief - Fibromyalgia Resources for energy & post exertional malaise, not sleep.
Acetyl L-Carnitine (ALC)? (Got some liquid! Or ask sleep lab psychiatrist? Ultra-high dose Vitamin C too, 7,5g, to be put in 250ml NaCl solution. Helping Jemima feel alert, dose: 2x750mg, for no sfx keep under 3000. Needs to be Acetyl for the brain. Question about kinds of pain | Page 2 | Fibromyalgia Forum)
D-Ribose (muscle fatigue, ATP; GI-sfx, so keep under 500mg; little evidence):
Selene - keeping for thyroid.
Zinc again as the bloods are in the middle. No, sfx.

Magnesium - glycinate yes or no? malate? "60mg" carbonate in the roseroot?

Medications - Other Options - #8 by JayCS

Vitamin B12 too.

C MEDS repeat?: NAC, levodopa, blood fat meds, blood pressure
NAC sleep -2400mg, better or worse (med)

(N-acetylcysteine) as I wrote here (better liposomal) as glutamate antagonist and to help sleep is mentioned on the last link (CFS/ME, with fibromites there too) suggest 1800 or 2400 mg, whilst more causes - again - diarrhea. The last person on that page also says “I elevated my glutamate / GABA levels with excess taurine” and very importantly “Once elevated Glutamate seems to be slow to rebalance” - got to watch that!

levodopa: repeat 50mg (100mg seemed to increase LBU),
Ezetimibe+atorvastatin if blood fats don’t stay down - smaller dose if at all?
Candesartan if blood pressure doesn’t stay down.

D) RELAX: A bit more Yoga Nidra on youtube.
E) MERIDIANS: real Chinese-trained acupuncture? Pardon Our Interruption
F) DOC Fibro-doc 200km from here?
G) DONE Again in specks/diluted: Melatonin, 10% CBD oil, 5-HTP, ashwagandha.

Development

Lessons in self-care #70 Surprising I’ve been taking magnesium without knowing it was magnesium carbonate and that this might be good for my acid… :face_with_monocle:
Reasons to be cheerful #69 Careless, but wonderful to be up late more & sleep less now! :crazy_face:

Highlights week 16th to 21st.

Abbreviations & explanations

Entries start with night meds & sleep, before triggers/symptoms & treatments, because the “night before” is vital. So Fri-day starts with Thursday night, the night before Friday.

Pain "7" = crying (/out) point; my 1 is others 2-3, and due to pacing/treatments

My wife says my 7 is other people’s 12. 1 is probably 2-3. Due to pacing, keeping work down to 25% (12h/wk) and all my treatments (acupressure, GABA) and physio self-treatments I manage to keep getting my pains & Ache down quickly. 3 usually means the Ache, not pains; these I address individually, often automatically and on the fly now, e.g. twist-stretching everything or something specific after getting up.

TIME DATA, e.g. ' = mins, h = hours, 18:10:40', date YYYY-MM-DD

’ = mins = minutes, ‘’ = secs = seconds, h is hours as time length, 3h is 3 hours long, 3:00 is 3am, 15:00 is 3pm. 18:10:40’ means 40 minutes, starting at 18:10, = 10 minutes past 6pm up to 10 to 7pm. The date is the logical digital standard: YYYY-MM-DD.

SLEEP: slp, w, lbu/LBU, RLS, p, i

slp = sleep; reasons for getting up: w = (a)wake, lbu/LBU: lower back unrest (‘RLS’?), p: pee, p2: pain 2 of 7 before peeing, i: ideas.

ACTIVITIES: TT, e.g. "5:1"

TT = table tennis, 5:1 = score, usually showing how well I’m feeling: energy, relaxedness & alertness if the first number is much higher than the second.

SUPPS: supplements (as opposed to herbs & meds). Fx: Effects. Sfx: Side effects.

SELF-TREATMENTS (about everything else...)

The self-treatments listed are only things that I’m spotlighting & rewarding myself for at the mo by counting them; much of what I do at night is self-treatment to get back to sleep or alleviate (1-2h/d), certain regular movements at daytime, like twist-stretching (30’), writing this blog is self-treatment (30’-60’/d), and the further fibro-work is an indirect form.
Self treatments are usually preventative or always have the same positive effect (e.g. cold showering improves Ache and sleep) - at least I do them for that - and I use “:arrow_forward:” to show what I’m doing to alleviate something and mark it off in the details “:white_check_mark:/:x:” whether it works well enough for a time or doesn’t’, e.g. Ache :arrow_forward: cold fast shower “:white_check_mark:
fw = fibro-work, meaning reading and writing this blog, the reference base, on 4 fibro-forums and researching fibro-stuff on the web.
AuTr = Autogenic Training (usually to actively get - back - to sleep, so counting it as sleep and AuTr…),
FAT Flash/fast autogenic training: immediate image of dreamy floating in space or liquid from jaw to legs.
cold/FCS = Flash Cold Shower (20’’-60’’) , I count it as 10’ tho. At night with ear plugs & all lights off.
breath-hold/WHM-B-H = Wim Hof Method Breath-Holding,
Neck 1 is stretching top right to bottom left, vice versa & sky/ground, neck “1+” is stretching far further diagonally downwards, neck 2 is pressing my head against my hand “without moving”, left right and front.
loins = loins/groin = stretching the ligaments there.
ex = exercises
HWB = Hot water bottle,
RR = bp = blood pressure (Riva Rocci), plus pulse. Used to be normal, plus sometimes white coat syndrome, went up since fibro, seems to have gone down again, but I’m still sort of on meds, candesartan 16mg, instead of 8mg plus lercanidipine, cos I saw that c. has less side effects.
:new: “V” for loins = lie on back, legs up and let legs fall to sides;
:new: twist-stretching more for the loins
:white_check_mark: :x: :face_with_monocle: ➔ ⇄ ⇨➜ ➞ :arrow_right: ➲ ↔:⇰↔ →:arrow_upper_right: :arrow_lower_right:

↯ ↛ ↺ ↮ ⇝ ⇾ ⟹ ⭆ ⤮:

Highlights this week - Aug 22nd to 28th - effective sleep (passiflora!). Flare from being away from home.

Symbol & emoji of the week: :white_check_mark::white_check_mark: considering being away from home (only a 1 hour drive away).

  1. Self-discipline: breakfasting while blogging, now with morning “taurine”. :upside_down_face:
  2. Supps: Both sleep & daytime improving :white_check_mark:
  3. Taurine 100mg after midday seemed to tire rather than wake, or no effect. Habituation? :face_with_monocle:
  4. 450mg GABA directly before bed, then at 2:00 600 GABA, 400 glutamine, 200 theanine, 289 passiflora.
  5. Passiflora :arrow_upper_right:3x289 at 20-21:00, magnesium glycinate 0 & now malate 0 improves sleep depth, stints & racing thoughts. :white_check_mark:
  6. Magnesium malate: 3 on Thurs. might’ve helped stiffness, but 2 on Fri., & 0 on Sat were OK. :face_with_monocle:
  7. It’s magnesium carbonate in my roseroot, good for acid… But 60mg: the compound or just the magnesium (= 6mg)? :face_with_monocle:
  8. Bladder pain up to 2 & down to 0-1 suggests it was the Ache from being away, not the vibrator. :white_check_mark:
  9. Activities & actions good, then harder due to the Ache at first from being away from home. :frowning_face_with_open_mouth:
  10. Actitivies OK with many breaks, then 17 mi odyssee with less breaks even OK without flare. :smiley:
  11. Symptoms: Ache, exhaustion remain despite better & effective sleep. Tiredness better. :smiley:
  12. Stiffness: Slightly better. :smiley:
  13. Forehead pain after the car trip and at night, probably from draft/draught? :frowning_face_with_open_mouth:
  14. Sleep:: Suddenly (from more passiflora?) I don’t have to surf on tiredness, bed at 0:00!? :smiley:
  15. Sleep average this week (incl. dozing etc.) 8h11, decreasing. Sleep breaks 4. :smiley:
  16. Stuffy nose & pee frequency still OK :smiley:
  17. 2nd cold shower no longer nec. (passiflora?) :smiley:
  18. Sitting on bar stool still good! :white_check_mark:
  19. Lengthy forum reading and checking LDL vs. low carb theories. FMA UK volunteer paperwork.
  20. Still want to do symptom tracking bundling post here & that & amino acids on ff.org.

2021-08-29, Sunday - short & effective sleep once again, so sleep isn’t the Mg (but watch out for energy: not good; no help from 100mg taurine)

Triggers & resulting Symptoms

SLEEP: 7h42, up 3x (45') ↔️ Feeling 90% well, Ache 1 of 7 ✅

21:20: 0x Mg & 3x passiflora at meal (selene + roseroot with magnesium carbonate & B1)
23:55: 450mg GABA
3:07: 600mg GABA & 400mg L-glutamine & "200"mg theanine
FCS#1 0:05-
3:02 17’ (6) 90%/1 p1-2 bowel movmt. drink fw12’ +600 GABA + 400 glutamine + 200 theanine + 289mg passiflora.
4:39 9’ (6) 90%/1 p0 drink fw5’
6:13 19’ (6) 90%/1 p0 drink fw5’ (nose - only slightly stuffy sometimes the last few days) - seemed a bit dozy…
-8:33 thirsty
Sum: 8h27-(17+9+19=)’= 8h27-45’=7h42, up 3x (45’), minus =?’ doze = h

ACTIVITIES➔ACHE: Walking 5mi in 2h, lots of breaks ➔ 90%/2-3, later after carrying some of our bags twice plus the 1h drive home ➔ 80%/3-5 ❌

Ache = also Exhaustion/Tired :white_check_mark: :face_with_monocle: ➔ ?90%/1
Cycle➔ exhaustion, also as action➔pains;
TT = Table-Tennis➔ easy or effortless or strained or tough?
talk/meetings here (and actions➔pains?)
Grandchild➔
Work/Mask-talking➔

ACTIONS➔ PAINS: Walking: right knee & left jaw ❌, NOT elbows ✅, not sure why. 🧐 p2. Pretty stiff. ❌ Put a loop scarf over my forehead during the car trip and after to keep my forehead warm. ✅ GI good. ✅, everything else OK. ✅

:white_check_mark: :x: :face_with_monocle:
Lie ➔ LBU = lower back unrest, hunchback, Neck, thighs, elbows, itch, cold/hot, nose stuffy
Stand ➔ Legs, back
Knees up ➔ right loin
Sit ➔ Backside, lower back
Pose ➔ stiffness (Stiffness after holding a posture): Time 0-60’’, pain amount if faster.
Walk ➔ Elbows, feet, right knee
Cycle ➔ Feet, knees, backside, elbows, hands, neck
Drink ➔ Pee frequency, pain before peeing (p0-6).
Eat ➔ Esophagus block, stomach, gut, rectum. GI for short
Talk➔Jaw (& Ache)
Mask-talk ➔ not sure how to describe it, just plain yucky.

Treatments

SELF-PHYSIO: 46' ✅, fibro-work 3h30

:white_check_mark: Timing, AuTr 10’, hunchback-pillow 10’, cold shower (10’), palpate 1’, belly 3’, back 7’, gums 2x30’’, twist-stretch 4’, .
Up x AuTr 5’, hunchback 5’, fw 1’, LBU twist-stretch x2-5’, neck x1’, elbows → arnica cream, itch → cream, cold/hot/stuffy → FCS#2.
:x: workout 7’, thumbnails 10x30’’, neck 1+ ‘, neck 2 1’, V ‘, yoga ‘, loins 1’, marionette-hang 1’, breath-hold 11’, shaking dance 1’, RR x2’, HWB 3’

Fibro-work: Night: + 30’ + 3h

THERAPIES:

Acupressure / Therapy, Doc/Diagnoses ? :white_check_mark: :x: :face_with_monocle: Acupressure 2h Tues & 2h Fri:

SUPPS: My first sleep stint was 3h, and can only have been due to the 450mg GABA or the 3x289mg passiflora, actually only the latter, so stopping magnesium malate did not make a difference to it and it wasn't nec. to add a 5th 289mg passiflora. ✅, GI ✅. Tired after the walk for added energy for the 1h drive home I took 100mg taurine - if anything it's actually made me feverish-tired... - calls for a lot more tests 🧐

20:20: 0 Mg & 3x289mg passiflora at meal, selene and roseroot/magnesium carbonate/B1
23:55: 450mg GABA
3:10: 600mg GABA & 400 L-glutamine & “200” theanine +1x289 passiflora

Development

Highlights week 22nd to 28th.

Abbreviations & explanations

Entries start with night meds & sleep, before triggers/symptoms & treatments, because the “night before” is vital. So Fri-day starts with Thursday night, the night before Friday.

Pain "7" = crying (/out) point; my 1 is others 2-3, and due to pacing/treatments

My wife says my 7 is other people’s 12. 1 is probably 2-3. Due to pacing, keeping work down to 25% (12h/wk) and all my treatments (acupressure, GABA) and physio self-treatments I manage to keep getting my pains & Ache down quickly. 3 usually means the Ache, not pains; these I address individually, often automatically and on the fly now, e.g. twist-stretching everything or something specific after getting up.

TIME DATA, e.g. ' = mins, h = hours, 18:10:40', date YYYY-MM-DD

’ = mins = minutes, ‘’ = secs = seconds, h is hours as time length, 3h is 3 hours long, 3:00 is 3am, 15:00 is 3pm. 18:10:40’ means 40 minutes, starting at 18:10, = 10 minutes past 6pm up to 10 to 7pm. The date is the logical digital standard: YYYY-MM-DD.

SLEEP: slp, w, lbu/LBU, RLS, p, i

slp = sleep; reasons for getting up: w = (a)wake, lbu/LBU: lower back unrest (‘RLS’?), p: pee, p2: pain 2 of 7 before peeing, i: ideas.

ACTIVITIES: TT, e.g. "5:1"

TT = table tennis, 5:1 = score, usually showing how well I’m feeling: energy, relaxedness & alertness if the first number is much higher than the second.

SUPPS: supplements (as opposed to herbs & meds). Fx: Effects. Sfx: Side effects.

SELF-TREATMENTS (about everything else...)

The self-treatments listed are only things that I’m spotlighting & rewarding myself for at the mo by counting them; much of what I do at night is self-treatment to get back to sleep or alleviate (1-2h/d), certain regular movements at daytime, like twist-stretching (30’), writing this blog is self-treatment (30’-60’/d), and the further fibro-work is an indirect form.
Self treatments are usually preventative or always have the same positive effect (e.g. cold showering improves Ache and sleep) - at least I do them for that - and I use “:arrow_forward:” to show what I’m doing to alleviate something and mark it off in the details “:white_check_mark:/:x:” whether it works well enough for a time or doesn’t’, e.g. Ache :arrow_forward: cold fast shower “:white_check_mark:
fw = fibro-work, meaning reading and writing this blog, the reference base, on 4 fibro-forums and researching fibro-stuff on the web.
AuTr = Autogenic Training (usually to actively get - back - to sleep, so counting it as sleep and AuTr…),
FAT Flash/fast autogenic training: immediate image of dreamy floating in space or liquid from jaw to legs.
cold/FCS = Flash Cold Shower (20’’-60’’) , I count it as 10’ tho. At night with ear plugs & all lights off.
breath-hold/WHM-B-H = Wim Hof Method Breath-Holding,
Neck 1 is stretching top right to bottom left, vice versa & sky/ground, neck “1+” is stretching far further diagonally downwards, neck 2 is pressing my head against my hand “without moving”, left right and front.
loins = loins/groin = stretching the ligaments there.
ex = exercises
HWB = Hot water bottle,
RR = bp = blood pressure (Riva Rocci), plus pulse. Used to be normal, plus sometimes white coat syndrome, went up since fibro, seems to have gone down again, but I’m still sort of on meds, candesartan 16mg, instead of 8mg plus lercanidipine, cos I saw that c. has less side effects.
:new: “V” for loins = lie on back, legs up and let legs fall to sides;
:new: twist-stretching more for the loins
:white_check_mark: :x: :face_with_monocle: ➔ ⇄ ⇨➜ ➞ :arrow_right: ➲ ↔:⇰↔ →:arrow_upper_right: :arrow_lower_right:

↯ ↛ ↺ ↮ ⇝ ⇾ ⟹ ⭆ ⤮:

2021-08-30, Monday - recovering from being away, but sleep still good, taurine NOT working as ‘coffee’

Triggers & resulting Symptoms

SLEEP: 9h10-19'=8h51, up 5x (19') (minus 20' doze = 8h31) ↔️ Feeling 90% well, Ache 1 of 7 ✅ while sleeping, but 70%/?1 getting up, not Ache, just "unwell", slightly shaky, feverish, cold. Malate? "Racing/overactive strange dreams": malate? 100mg taurine first. More? Then malate? Then hot/FCS#2 if I don't get to 90%. Ear plugs nec. in the evening cos of deaf neighbour's TV, using no further help like lavender etc., deep sleep due to passiflora, then cold showering directly before, then 450mg GABA for starters, nothing else.

21:00: 3x289 passiflora, selene, rosewort/magnesium carbonate/B1 at meal
22:55: 450mg GABA
3:00: 600mg GABA & 400mg L-glutamine & "200"mg theanine
FCS#1 23:00-
1:38 3’ 90%/1 p3 st2 drink fw1’
3:04 3’ 90%/1 p1 st2 drink fw1’ +600 GABA + 400 glutamine + 200 theanine +289 passiflora
5:36 5’ 90%/1 p1 st2 drink fw4’ bit of GI due to the amount of AA, drink helped (spread them out more?)
(strange dreams before, about big wheels having broken and in water a small crab-like creature but realistic, not sponge Bob type, without face etc., talking with me, about why I wasn’t helping; and an ex-janitor - OK, that was due to a documentary I’d watched)
7:04 4’ 90%/1 p1 st2 drink fw3’ “racing dreams” again - 0 malate?
7:49 racing, overactive dreams again, tired & sleepy tho… so… one last try 4’ 90%/1 p1 st1 dr fw2’
-8:10 nice staying in bed, hurting to get up, but…
Breakfast while blogging, before exercising! Taurine!
Sum: 1h+8h10-(3+3+5+4+4=)19’= 9h10-19’=8h51, up 5x (19’) (minus 20’ doze = 8h31)

ACTIVITIES➔ACHE: Slowly waking/resting/getting up ➔ ?80%/1-2. Thought about doing neck'n'back group, as that won't be possible a while due to work, but didn't feel up to it. TT was easy/effortless ➔ 70%/3, resting ➔ ?80%/2 but after talking with a mate 45' ➔ 60%/3, despite magnesium malate and 3x100mg taurine. Showering? Eating better ➔ 90%/1(?) Resting ➔ 90%/1, shops & Helping carrying something ➔ 90%/1 but feverish-tired.

Ache = also Exhaustion/Tired :white_check_mark: :x: :face_with_monocle: ➔ ?90%/1
Cycle➔ exhaustion, also as action➔pains;
TT = Table-Tennis➔ easy or effortless or strained or tough?
talk/meetings here (and actions➔pains?)
Grandchild➔
Work/Mask-talking➔

ACTIONS➔ PAINS:

:white_check_mark: :x: :face_with_monocle:
Lie ➔ LBU = lower back unrest, hunchback, Neck, thighs, elbows, itch, cold/hot, nose stuffy
Stand ➔ Legs, back
Knees up ➔ right loin
Sit ➔ Backside, lower back
Pose ➔ stiffness (Stiffness after holding a posture): Time 0-60’’, pain amount if faster.
Walk ➔ Elbows, feet, right knee
Cycle ➔ Feet, knees, backside, elbows, hands, neck
Drink ➔ Pee frequency, pain before peeing (p0-6).
Eat ➔ Esophagus block, stomach, gut, rectum. GI for short
Talk➔Jaw (& Ache)
Mask-talk ➔ not sure how to describe it, just plain yucky.

Treatments

SELF-PHYSIO: 41' ✅, fibro-work ?4h

:white_check_mark: Timing, AuTr 5’, hunchback-pillow 5’, cold shower (10’), palpate 1’, belly 3’, back 7’, twist-stretch 8’, loins 2’, .
:x: workout 7’, gums 2x30’’, thumbnails 10x30’’, neck 1+ ‘, neck 2 1’, V ‘, yoga ‘, marionette-hang 1’, breath-hold 11’, shaking dance 1’, RR x2’, HWB 3’

Fibro-work: Night: 0 + 1h + 3h?

THERAPIES:

Acupressure / Therapy, Doc/Diagnoses ? :white_check_mark: :x: :face_with_monocle: Acupressure 2h Tues & 2h Fri:

SUPPS: night great ✅, GI good ✅, but getting up & daytime wasn't, despite 3x100mg taurine and magnesium malate.

21:00: 3x289 passiflora, selene, rosewort/magnesium carbonate/B1 at meal
22:40: 450mg GABA
?: 600mg GABA & 400mg L-glutamine & "200"mg theanine +289 passiflora
9:00? Taurine

Highlights week 22nd to 28th.

Abbreviations & explanations

Entries start with night meds & sleep, before triggers/symptoms & treatments, because the “night before” is vital. So Fri-day starts with Thursday night, the night before Friday.

Pain "7" = crying (/out) point; my 1 is others 2-3, and due to pacing/treatments

My wife says my 7 is other people’s 12. 1 is probably 2-3. Due to pacing, keeping work down to 25% (12h/wk) and all my treatments (acupressure, GABA) and physio self-treatments I manage to keep getting my pains & Ache down quickly. 3 usually means the Ache, not pains; these I address individually, often automatically and on the fly now, e.g. twist-stretching everything or something specific after getting up.

TIME DATA, e.g. ' = mins, h = hours, 18:10:40', date YYYY-MM-DD

’ = mins = minutes, ‘’ = secs = seconds, h is hours as time length, 3h is 3 hours long, 3:00 is 3am, 15:00 is 3pm. 18:10:40’ means 40 minutes, starting at 18:10, = 10 minutes past 6pm up to 10 to 7pm. The date is the logical digital standard: YYYY-MM-DD.

SLEEP: slp, w, lbu/LBU, RLS, p, i

slp = sleep; reasons for getting up: w = (a)wake, lbu/LBU: lower back unrest (‘RLS’?), p: pee, p2: pain 2 of 7 before peeing, i: ideas.

ACTIVITIES: TT, e.g. "5:1"

TT = table tennis, 5:1 = score, usually showing how well I’m feeling: energy, relaxedness & alertness if the first number is much higher than the second.

SUPPS: supplements (as opposed to herbs & meds). Fx: Effects. Sfx: Side effects.

SELF-TREATMENTS (about everything else...)

The self-treatments listed are only things that I’m spotlighting & rewarding myself for at the mo by counting them; much of what I do at night is self-treatment to get back to sleep or alleviate (1-2h/d), certain regular movements at daytime, like twist-stretching (30’), writing this blog is self-treatment (30’-60’/d), and the further fibro-work is an indirect form.
Self treatments are usually preventative or always have the same positive effect (e.g. cold showering improves Ache and sleep) - at least I do them for that - and I use “:arrow_forward:” to show what I’m doing to alleviate something and mark it off in the details “:white_check_mark:/:x:” whether it works well enough for a time or doesn’t’, e.g. Ache :arrow_forward: cold fast shower “:white_check_mark:
fw = fibro-work, meaning reading and writing this blog, the reference base, on 4 fibro-forums and researching fibro-stuff on the web.
AuTr = Autogenic Training (usually to actively get - back - to sleep, so counting it as sleep and AuTr…),
FAT Flash/fast autogenic training: immediate image of dreamy floating in space or liquid from jaw to legs.
cold/FCS = Flash Cold Shower (20’’-60’’) , I count it as 10’ tho. At night with ear plugs & all lights off.
breath-hold/WHM-B-H = Wim Hof Method Breath-Holding,
Neck 1 is stretching top right to bottom left, vice versa & sky/ground, neck “1+” is stretching far further diagonally downwards, neck 2 is pressing my head against my hand “without moving”, left right and front.
loins = loins/groin = stretching the ligaments there.
ex = exercises
HWB = Hot water bottle,
RR = bp = blood pressure (Riva Rocci), plus pulse. Used to be normal, plus sometimes white coat syndrome, went up since fibro, seems to have gone down again enough so I’ve not only stopped lercanidipine, but also candesartan and am checking RR regularly.
:new: “V” for loins = lie on back, legs up and let legs fall to sides;
:new: twist-stretching more for the loins
:white_check_mark: :x: :face_with_monocle: ➔ ⇄ ⇨➜ ➞ :arrow_right: ➲ ↔:⇰↔ →:arrow_upper_right: :arrow_lower_right:

↯ ↛ ↺ ↮ ⇝ ⇾ ⟹ ⭆ ⤮:

2021-08-31, Tuesday

Triggers & resulting Symptoms

SLEEP: 8h34, plus up 5x (39'), minus 32+25=57' doze/AuTr = 7h37 ↔️ Feeling ?90% well, Ache ?1 of 7 ✅. The main problem was 2:38-4:08, due to a too long break, following racing thoughts, alleviated after trying 3 things by the 4th: a 5th passiflora and 2nd FCS.

21:15: 3x289 passiflora, selene, rosewort/magnesium carbonate/B1 later due to helping carrying.
22:10: 500mg GABA
?: 600mg GABA & 450mg L-glutamine & "200"mg theanine + 289 passiflora
FCS#1 22:25-
1:15 3’ 90%/1 p1 st1 drink fw1’
2:38 10’ 90%/1 p0 st1 drink fw4’ 600 GABA & 450 L-glutamine & “200” theanine + 289 passiflora teeth → doze, AuTr 32’
3:20 15’ racing thoughts, palpitations (work, carrying) 90%/1 st1 6. → doze, AuTr 25’
4:00 8’ 90%/1 st1 1x289 passiflora, p0 FCS#2 fw1’ Nightmare: bad people in infected animals (horse with hat, guinea pigs)
6:34 3’ 90%/1 p1 st1 drink fw1’
-7:38 (alarm)
Night: Teeth! RR! fw only notes!
90%/1? 80%/2? p0 st1 th drink almonds fw1’ teeth FCS#2? +600 GABA + 400 glutamine + 200 theanine +289 passiflora
Breakfast while blogging, before exercising!
Sum: 1h35+7h38-(3+10+15+8+3=)39’= 9h13-39’=8h34, plus up 5x (39’), minus 32+25=57’ doze/AuTr = 7h37

ACTIVITIES➔ACHE: 2.5h meeting ➔ 70%/2, acupressure ➔ 80%/2, housework, talk, 2x ➔ 70%/3

Ache = also Exhaustion/Tired :white_check_mark: :x: :face_with_monocle: ➔ ?90%/1
Cycle➔ exhaustion, also as action➔pains;
TT = Table-Tennis➔ easy or effortless or strained or tough?
talk/meetings here (and actions➔pains?)
Grandchild➔
Work/Mask-talking➔

ACTIONS➔ PAINS: Sitting a lot during the long meeting I found a fairly soft straight swiveable office chair, however twisting regularly to both sides was best. Twist-stretching everything in between was very nec. tho. ✅ Afterwards (not nec during) a lot of problems sitting on anything, esp. bike ❌. Lying on my back during acupressure is much more painful than I realized, I always wondered why I had to concentrate to relax my behind, but realized today the tautness is a reflex so my SIJ touches the (soft) bench less and not a reflex due to the treatment! Got to keep an eye on that! ❌

:white_check_mark: :x: :face_with_monocle:
Lie ➔ LBU = lower back unrest, hunchback, Neck, thighs, elbows, itch, cold/hot, nose stuffy
Stand ➔ Legs, back
Knees up ➔ right loin
Sit ➔ Backside, lower back
Pose ➔ stiffness (Stiffness after holding a posture): Time 0-60’’, pain amount if faster.
Walk ➔ Elbows, feet, right knee
Cycle ➔ Feet, knees, backside, elbows, hands, neck
Drink ➔ Pee frequency, pain before peeing (p0-6).
Eat ➔ Esophagus block, stomach, gut, rectum. GI for short
Talk➔Jaw (& Ache)
Mask-talk ➔ not sure how to describe it, just plain yucky.

Treatments

SELF-PHYSIO: 91' ✅, fibro-work 1h...

:white_check_mark: Timing, AuTr 20’, hunchback-pillow 10’, cold shower 2x(10’), palpate 1’, belly 3’, back 7’, twist-stretch 30’, .
Up x AuTr 5’, hunchback 5’, fw 1’, LBU twist-stretch x2-5’, neck x1’, elbows → arnica cream, itch → cream, cold/hot/stuffy → FCS#2.
:x: workout 7’, gums 2x30’’, thumbnails 10x30’’, neck 1+ ‘, neck 2 1’, V ‘, yoga ‘, loins 1’, marionette-hang 1’, breath-hold 11’, shaking dance 1’, RR x2’, HWB 3’

Fibro-work: Night: 7’+ 30’

THERAPIES: 2h acupressure: She suggested if my orange spots are iron to check how my iron levels are... (Edit: they have been checked & were never low.) Ear acupressure, then loins again, intense pressure, didn't make much of a difference to right loin or bladder tho, but a bit. Didn't do neck, elbows, knee, SIJ pained, see "actions".

Acupressure / Therapy, Doc/Diagnoses ? :white_check_mark: :x: :face_with_monocle: Acupressure 2h Tues & 2h Fri:

SUPPS: 3+1+1x passiflora was not enough to prevent my 2nd sleep break of 10' breaking up sleep quite a bit - with some racing thoughts once again ❌, but the night altogether was still pretty successful ✅, incl. GI ✅, esp. after adding a ↗5th passiflora at 4:00, or was it also FCS#2? ✅. Taking a capsule of praps 600mg taurine upon waking didn't help that much, but also didn't have negative sfx, so

21:15: 3x289mg passiflora, selene, rosewort/magnesium carbonate/B1 at meal
22:00: 500mg GABA
2:28: 600mg GABA & 450mg L-glutamine & "200"mg theanine +289 passiflora
4:05: +289 passiflora
8:00 600mg? taurine.

Highlights week 22nd to 28th.

Abbreviations & explanations

Entries start with night meds & sleep, before triggers/symptoms & treatments, because the “night before” is vital. So Fri-day starts with Thursday night, the night before Friday.

Pain "7" = crying (/out) point; my 1 is others 2-3, and due to pacing/treatments

My wife says my 7 is other people’s 12. 1 is probably 2-3. Due to pacing, keeping work down to 25% (12h/wk) and all my treatments (acupressure, GABA) and physio self-treatments I manage to keep getting my pains & Ache down quickly. 3 usually means the Ache, not pains; these I address individually, often automatically and on the fly now, e.g. twist-stretching everything or something specific after getting up.

TIME DATA, e.g. ' = mins, h = hours, 18:10:40', date YYYY-MM-DD

’ = mins = minutes, ‘’ = secs = seconds, h is hours as time length, 3h is 3 hours long, 3:00 is 3am, 15:00 is 3pm. 18:10:40’ means 40 minutes, starting at 18:10, = 10 minutes past 6pm up to 10 to 7pm. The date is the logical digital standard: YYYY-MM-DD.

SLEEP: slp, w, lbu/LBU, RLS, p, i

slp = sleep; reasons for getting up: w = (a)wake, lbu/LBU: lower back unrest (‘RLS’?), p: pee, p2: pain 2 of 7 before peeing, i: ideas.

ACTIVITIES: TT, e.g. "5:1"

TT = table tennis, 5:1 = score, usually showing how well I’m feeling: energy, relaxedness & alertness if the first number is much higher than the second.

SUPPS: supplements (as opposed to herbs & meds). Fx: Effects. Sfx: Side effects.

SELF-TREATMENTS (about everything else...)

The self-treatments listed are only things that I’m spotlighting & rewarding myself for at the mo by counting them; much of what I do at night is self-treatment to get back to sleep or alleviate (1-2h/d), certain regular movements at daytime, like twist-stretching (30’), writing this blog is self-treatment (30’-60’/d), and the further fibro-work is an indirect form.
Self treatments are usually preventative or always have the same positive effect (e.g. cold showering improves Ache and sleep) - at least I do them for that - and I use “:arrow_forward:” to show what I’m doing to alleviate something and mark it off in the details “:white_check_mark:/:x:” whether it works well enough for a time or doesn’t’, e.g. Ache :arrow_forward: cold fast shower “:white_check_mark:
fw = fibro-work, meaning reading and writing this blog, the reference base, on 4 fibro-forums and researching fibro-stuff on the web.
AuTr = Autogenic Training (usually to actively get - back - to sleep, so counting it as sleep and AuTr…),
FAT Flash/fast autogenic training: immediate image of dreamy floating in space or liquid from jaw to legs.
cold/FCS = Flash Cold Shower (20’’-60’’) , I count it as 10’ tho. At night with ear plugs & all lights off.
breath-hold/WHM-B-H = Wim Hof Method Breath-Holding,
Neck 1 is stretching top right to bottom left, vice versa & sky/ground, neck “1+” is stretching far further diagonally downwards, neck 2 is pressing my head against my hand “without moving”, left right and front.
loins = loins/groin = stretching the ligaments there.
ex = exercises
HWB = Hot water bottle,
RR = bp = blood pressure (Riva Rocci), plus pulse. Used to be normal, plus sometimes white coat syndrome, went up since fibro, seems to have gone down again enough so I’ve not only stopped lercanidipine, but also candesartan and am checking RR regularly.
:new: “V” for loins = lie on back, legs up and let legs fall to sides;
:new: twist-stretching more for the loins
:white_check_mark: :x: :face_with_monocle: ➔ ⇄ ⇨➜ ➞ :arrow_right: ➲ ↔:⇰↔ →:arrow_upper_right: :arrow_lower_right:

↯ ↛ ↺ ↮ ⇝ ⇾ ⟹ ⭆ ⤮:

2021-09-01, Wednesday

Triggers & resulting Symptoms

SLEEP: 9h20, plus up 4x (25') (minus 30' doze = 8h50) ↔️ Feeling 90% well, Ache 1 of 7 ✅, FCS#2 was a good idea, but taking the additional pills after 5h of sleep was too late! I'd thought 1:30 in the 1st break was too early, but I'm going to bed earlier again, so that wdve been best, after 3h. Getting up: 80%/2 - dull cold-like foreheadache like when away from home but only upon waking, so from the night, not the evening: supp time? drink/eat? No stuffy nose. Not cold.

21:10: 3x289 passiflora, selene, rosewort/magnesium carbonate/B1 at meal
22:20: 450mg GABA
3:25: 600mg GABA & 400mg L-glutamine & "200"mg theanine & 289mg passiflora
FCS#1 22:45-
1:30 5’ scalp itch (forgot hairwash) heartburn → drink/ p0 no IBSD st1 fw1’
3:24 5’ p0 st1 drink fw1’ +600 GABA + 400 glutamine + 200 theanine +289 passiflora
3:59 10’ slight heartburn → drink, walnuts; thoughts, bit hot, slightly nauseous: FCS#2 fw2’
7:26 5’ p0 st1 drink fw2’
-8:30 80%/2 Slight dull cold-like foreheadache, slightly nauseous, like when away from home but only upon waking, so from the night, not the evening: supp time? drink/eat? No stuffy nose. Not cold.
Sum: 1h15+8h30-(5+5+10+5+=)25’= 9h45-25’=9h20, plus up 4x (25’) (minus 30’ doze = 8h50)

ACTIVITIES➔ACHE: Eat/drink ➔ ?90%/1 ✅, singing 30' ➔ ?70%/3, housework/rest ➔ 80%/2, TT (easy, but with pressure, taut - due to the amino acids late tonight?) ➔ 80%/2, 30' tough handiwork/talking ➔ 70%/3, resting/fw 3h ➔ 90%/1, despite some housework in between. But tired the whole day, despite longer sleep and taking taurine.

Ache = also Exhaustion/Tired :white_check_mark: :x: :face_with_monocle: ➔ ?90%/1
Cycle➔ exhaustion, also as action➔pains;
TT = Table-Tennis➔ easy or effortless or strained or tough?
talk/meetings here (and actions➔pains?)
Grandchild➔
Work/Mask-talking➔

ACTIONS➔ PAINS: Foreheadache ❌ upon waking up might've been eating/drinking, as it's better after. I'm already eating pretty late (with no sfx), so I can only try drinking more, difficult on therapy days (lying for 2h), but no matter. 🧐 Slight dull headache again at 14:00 definitely dehydration. Lying & GI good, sitting & peeing is better. ✅ Right loin not good ❌. p3 at 16:00 means the acupressure yesterday, incl. bladder, hasn't done anything.... 🧐

:white_check_mark: :x: :face_with_monocle:
Lie ➔ LBU = lower back unrest, hunchback, Neck, thighs, elbows, itch, cold/hot, nose stuffy
Stand ➔ Legs, back
Knees up ➔ right loin
Sit ➔ Backside, lower back
Pose ➔ stiffness (Stiffness after holding a posture): Time 0-60’’, pain amount if faster.
Walk ➔ Elbows, feet, right knee
Cycle ➔ Feet, knees, backside, elbows, hands, neck
Drink ➔ Pee frequency, pain before peeing (p0-6).
Eat ➔ Esophagus block, stomach, gut, rectum. GI for short
Talk➔Jaw (& Ache)
Mask-talk ➔ not sure how to describe it, just plain yucky.

Treatments

SELF-PHYSIO: 89' ✅, fibro-work (fw) 3h?

:white_check_mark: Timing, AuTr 10’, hunchback-pillow 10’, cold shower 2x(10’), palpate 1’, belly 3’, back 7’, gums 2x30’’, twist-stretch sleeping “20’”, yoga 5’, neck 1+ 2’, .
:x: workout 7’, thumbnails 10x30’’, neck 2 1’, V ‘, loins 1’, marionette-hang 1’, breath-hold 11’, shaking dance 1’, RR x2’, HWB 3’

*fw: Night: 5’ + 8:30-9:00-11?.. *

THERAPIES: No good effect of the acupressure yesterday. BTW - due to increasing numbers here I have to do a test at every therapy appt, I take a self-test with me that I get from work, and do it in front of her.

Acupressure / Therapy, Doc/Diagnoses ? :white_check_mark: :x: :face_with_monocle: Acupressure 2h Tues & 2h Fri:

SUPPS: Taking 2nd night dose after 5h sleep was too late to prevent racing thoughts in the 2nd half of the night. ❌, GI ✅, energy - but too taut, pressurized - all morning, I'd think from the theanine. Forgot taurine. Done 500+mg 14:40. Didn't do nuffink tho! BTW passiflora also lowers blood pressure, so together with the roseroot, GABA etc. I shd still be on the safe side without the bp meds, altho it's getting colder, which increases bp, my doc said.

(?:arrow_upper_right: :arrow_lower_right:) 21:10: 3x289 passiflora, selene, rosewort/magnesium carbonate/B1 at meal
22:20: 450mg GABA
3:25: 600mg GABA & 400mg L-glutamine & "200"mg theanine & 289mg passiflora

Development

I’ve now sorted the supps coming up by whether they are for sleep (5) or waking up/fatigue/energy (5) or pain (1). This has clarified that the serrapeptase for pain/inflammation is maybe not really up next, unless it’s gonna help with the Ache, which does sometimes feel inflammatory… Ah, OK, that’s a thought, maybe it is then up next, as I’ve got it anyway.

Reasons to be cheerful #70 A colleague with FM/CFS thanked me exuberantly for suggesting amino acids, saying she’s now taking tyrosine and has no brain fog since. :hugs:

Highlights week 22nd to 28th.

Abbreviations & explanations

Entries start with night meds & sleep, before triggers/symptoms & treatments, because the “night before” is vital. So Fri-day starts with Thursday night, the night before Friday.

Pain "7" = crying (/out) point; my 1 is others 2-3, and due to pacing/treatments

My wife says my 7 is other people’s 12. 1 is probably 2-3. Due to pacing, keeping work down to 25% (12h/wk) and all my treatments (acupressure, GABA) and physio self-treatments I manage to keep getting my pains & Ache down quickly. 3 usually means the Ache, not pains; these I address individually, often automatically and on the fly now, e.g. twist-stretching everything or something specific after getting up.

TIME DATA, e.g. ' = mins, h = hours, 18:10:40', date YYYY-MM-DD

’ = mins = minutes, ‘’ = secs = seconds, h is hours as time length, 3h is 3 hours long, 3:00 is 3am, 15:00 is 3pm. 18:10:40’ means 40 minutes, starting at 18:10, = 10 minutes past 6pm up to 10 to 7pm. The date is the logical digital standard: YYYY-MM-DD.

SLEEP: slp, w, lbu/LBU, RLS, p, i

slp = sleep; reasons for getting up: w = (a)wake, lbu/LBU: lower back unrest (‘RLS’?), p: pee, p2: pain 2 of 7 before peeing, i: ideas.

ACTIVITIES: TT, e.g. "5:1"

TT = table tennis, 5:1 = score, usually showing how well I’m feeling: energy, relaxedness & alertness if the first number is much higher than the second.

SUPPS: supplements (as opposed to herbs & meds). Fx: Effects. Sfx: Side effects.

SELF-TREATMENTS (about everything else...)

The self-treatments listed are only things that I’m spotlighting & rewarding myself for at the mo by counting them; much of what I do at night is self-treatment to get back to sleep or alleviate (1-2h/d), certain regular movements at daytime, like twist-stretching (30’), writing this blog is self-treatment (30’-60’/d), and the further fibro-work is an indirect form.
Self treatments are usually preventative or always have the same positive effect (e.g. cold showering improves Ache and sleep) - at least I do them for that - and I use “:arrow_forward:” to show what I’m doing to alleviate something and mark it off in the details “:white_check_mark:/:x:” whether it works well enough for a time or doesn’t’, e.g. Ache :arrow_forward: cold fast shower “:white_check_mark:
fw = fibro-work, meaning reading and writing this blog, the reference base, on 4 fibro-forums and researching fibro-stuff on the web.
AuTr = Autogenic Training (usually to actively get - back - to sleep, so counting it as sleep and AuTr…),
FAT Flash/fast autogenic training: immediate image of dreamy floating in space or liquid from jaw to legs.
cold/FCS = Flash Cold Shower (20’’-60’’) , I count it as 10’ tho. At night with ear plugs & all lights off.
breath-hold/WHM-B-H = Wim Hof Method Breath-Holding,
Neck 1 is stretching top right to bottom left, vice versa & sky/ground, neck “1+” is stretching far further diagonally downwards, neck 2 is pressing my head against my hand “without moving”, left right and front.
loins = loins/groin = stretching the ligaments there.
ex = exercises
HWB = Hot water bottle,
RR = bp = blood pressure (Riva Rocci), plus pulse. Used to be normal, plus sometimes white coat syndrome, went up since fibro, seems to have gone down again enough so I’ve not only stopped lercanidipine, but also candesartan and am checking RR regularly.
:new: “V” for loins = lie on back, legs up and let legs fall to sides;
:new: twist-stretching more for the loins
:white_check_mark: :x: :face_with_monocle: ➔ ⇄ ⇨➜ ➞ :arrow_right: ➲ ↔:⇰↔ →:arrow_upper_right: :arrow_lower_right:

↯ ↛ ↺ ↮ ⇝ ⇾ ⟹ ⭆ ⤮:

2021-09-02, Thursday - still effective sleep (13’ sleep breaks!!); improving alertness

Triggers & resulting Symptoms

SLEEP: To stop a worrying thought coming up, I concentrated on listing food types, first grains, then fruit, that kept my mind busy. ✅ 8h33-13'=8h20, up 4x (13'), plus 40' doze = 9h ↔️ Feeling 90% well, Ache 1 of 7 ✅ But tired/drowsy upon getting up ➔ 80%/1, after dozing, taurine & exercise, more ➔ 80%/1

21:00: 3x289 passiflora, selene, rosewort/magnesium carbonate/B1 at meal
22:05: 450mg GABA
23:53: 600mg GABA & 400mg L-glutamine & "200"mg theanine & 289mg passiflora
FCS#1 22:15-
23:53 4’ 90%/1 p1 st2 drink4 fw1’ +600 GABA + 400 glutamine + 200 theanine
1:05 3’ 90%/1 p2 st1 drink4 fw1’ +289 passiflora
2:40 3’ 90%/1 p2 st1 drink1 fw1’
4:30 3’ 90%/1 p0! (glutamine/theanine?) st1 drink1 fw1’
-6:48 90%/1 p0! st1 drink6 fw2’.
Still tired: doze 7:05-7:45
Night: Teeth! RR! fw only notes!
90%/1? 80%/2? p0 st1 drink almonds fw1’ teeth FCS#2?
-end. Breakfast while blogging, before exercising!
Sum: 1h45+6h48-(4+3+3+3=)13’= 8h33-13’=8h20, up 4x (13’), plus 40’ doze = 9h)

ACTIVITIES➔ACHE: Work, with quite some talking ➔ 80%/2, cycling from work (much faster than before the break, almost 'normal' speed) ➔ 90%/1, TT & talking ➔ 85%/1

Ache = also Exhaustion/Tired :white_check_mark: :x: :face_with_monocle: ➔ ?90%/1
Cycle➔ exhaustion, also as action➔pains;
TT = Table-Tennis➔ easy or effortless or strained or tough?
talk/meetings here (and actions➔pains?)
Grandchild➔
Work/Mask-talking➔

ACTIONS➔ PAINS: Lying ✅, standing ✅, loins: ❌/✅, sitting on bar stool at work ✅ (attracts attention! 😼), stiffness after poses ✅/❌, cycling ✅, bladder p1 ✅, GI: 2, occasional short stool problems the last few days: taurine? (unlikely) ❌/✅, talking ✅ & mask-talking ✅ - better, considering.

:white_check_mark: :x: :face_with_monocle:
Lie ➔ LBU = lower back unrest, hunchback, Neck, thighs, elbows, itch, cold/hot, nose stuffy
Stand ➔ Legs, back
Knees up ➔ right loin
Sit ➔ Backside, lower back
Pose ➔ stiffness (Stiffness after holding a posture): Time 0-60’’, pain amount if faster.
Walk ➔ Elbows, feet, right knee
Cycle ➔ Feet, knees, backside, elbows, hands, neck
Drink ➔ Pee frequency, pain before peeing (p0-6).
Eat ➔ Esophagus block, stomach, gut, rectum, stool (IBSD?). GI for short
Talk➔Jaw (& Ache)
Mask-talk ➔ not sure how to describe it, just plain yucky.

Treatments

SELF-PHYSIO: 49' ✅, fibro-work (fw) 50'(+2h)

:white_check_mark: Timing, AuTr 5’, hunchback-pillow 10’, cold shower (10’), palpate 1’, belly 3’, back 7’, twist-stretch 8’, gums 2x30’’, thumbnails 2x30’’, neck 1+ 4’, yoga 3’.
:x: workout 7’, neck 2 1’, V ‘, loins 1’, marionette-hang 1’, breath-hold 11’, shaking dance 1’, RR x2’, HWB 3’

fw: Night: 0 + 30’ + 20’ + similar 2h

THERAPIES: Can't really see how Tuesday's acupressure may have helped.

Acupressure / Therapy, Doc/Diagnoses ? :white_check_mark: :x: :face_with_monocle: Acupressure 2h Tues & 2h Fri:

SUPPS: Great sleep, taking the 2nd night dose after 2h was fine ✅, GI ✅, but waking up still hard. Taurine "1000"mg: 1h later jittery, 3h later energy/alertness OK till the evening: space out more?

(?:arrow_upper_right: :arrow_lower_right:)
21:00: 3x289 passiflora, selene, rosewort/magnesium carbonate/B1
22:05: 450mg GABA
23:53: 600mg GABA & 400mg L-glutamine & "200"mg theanine & 289mg passiflora

Highlights week 22nd to 28th.

Abbreviations & explanations

Entries start with night meds & sleep, before triggers/symptoms & treatments, because the “night before” is vital. So Fri-day starts with Thursday night, the night before Friday.

Pain "7" = crying (/out) point; my 1 is others 2-3, and due to pacing/treatments

My wife says my 7 is other people’s 12. 1 is probably 2-3. Due to pacing, keeping work down to 25% (12h/wk) and all my treatments (acupressure, GABA) and physio self-treatments I manage to keep getting my pains & Ache down quickly. 3 usually means the Ache, not pains; these I address individually, often automatically and on the fly now, e.g. twist-stretching everything or something specific after getting up.

TIME DATA, e.g. ' = mins, h = hours, 18:10:40', date YYYY-MM-DD

’ = mins = minutes, ‘’ = secs = seconds, h is hours as time length, 3h is 3 hours long, 3:00 is 3am, 15:00 is 3pm. 18:10:40’ means 40 minutes, starting at 18:10, = 10 minutes past 6pm up to 10 to 7pm. The date is the logical digital standard: YYYY-MM-DD.

SLEEP: slp, w, lbu/LBU, RLS, p, i

slp = sleep; reasons for getting up: w = (a)wake, lbu/LBU: lower back unrest (‘RLS’?), p: pee, p2: pain 2 of 7 before peeing, i: ideas.

ACTIVITIES: TT, e.g. "5:1"

TT = table tennis, 5:1 = score, usually showing how well I’m feeling: energy, relaxedness & alertness if the first number is much higher than the second.

SUPPS: supplements (as opposed to herbs & meds). Fx: Effects. Sfx: Side effects.

SELF-TREATMENTS (about everything else...)

The self-treatments listed are only things that I’m spotlighting & rewarding myself for at the mo by counting them; much of what I do at night is self-treatment to get back to sleep or alleviate (1-2h/d), certain regular movements at daytime, like twist-stretching (30’), writing this blog is self-treatment (30’-60’/d), and the further fibro-work is an indirect form.
Self treatments are usually preventative or always have the same positive effect (e.g. cold showering improves Ache and sleep) - at least I do them for that - and I use “:arrow_forward:” to show what I’m doing to alleviate something and mark it off in the details “:white_check_mark:/:x:” whether it works well enough for a time or doesn’t’, e.g. Ache :arrow_forward: cold fast shower “:white_check_mark:
fw = fibro-work, meaning reading and writing this blog, the reference base, on 4 fibro-forums and researching fibro-stuff on the web.
AuTr = Autogenic Training (usually to actively get - back - to sleep, so counting it as sleep and AuTr…),
FAT Flash/fast autogenic training: immediate image of dreamy floating in space or liquid from jaw to legs.
cold/FCS = Flash Cold Shower (20’’-60’’) , I count it as 10’ tho. At night with ear plugs & all lights off.
breath-hold/WHM-B-H = Wim Hof Method Breath-Holding,
Neck 1 is stretching top right to bottom left, vice versa & sky/ground, neck “1+” is stretching far further diagonally downwards, neck 2 is pressing my head against my hand “without moving”, left right and front.
loins = loins/groin = stretching the ligaments there.
ex = exercises
HWB = Hot water bottle,
RR = bp = blood pressure (Riva Rocci), plus pulse. Used to be normal, plus sometimes white coat syndrome, went up since fibro, seems to have gone down again enough so I’ve not only stopped lercanidipine, but also candesartan and am checking RR regularly.
:new: “V” for loins = lie on back, legs up and let legs fall to sides;
:new: twist-stretching more for the loins
:white_check_mark: :x: :face_with_monocle: ➔ ⇄ ⇨➜ ➞ :arrow_right: ➲ ↔:⇰↔ →:arrow_upper_right: :arrow_lower_right:

↯ ↛ ↺ ↮ ⇝ ⇾ ⟹ ⭆ ⤮:

2021-09-03, Friday - 14’!! Theanine later, split taurine doses… - 3 seizures: from the taurine… oh well: magnesium glycinate next…

Triggers & resulting Symptoms

SLEEP: 8h44, up 4x (14'!!), (minus 30'' doze = 8h14) ↔️ Feeling 90% well, Ache 1 of 7 ✅

20:40: 2x289 passiflora, selene, rosewort/magnesium carbonate/B1 at meal
22:20: !400mg GABA, 1x289 passiflora
23:45: !500mg GABA & 400mg L-glutamine & 289mg passiflora
1:39 "200"mg theanine
FCS#1 22:20-
23:45 4’ 90%/1 p1 st1 drink fw2’ +600 GABA + 400 glutamine +289 passiflora
1:39 3’ 90%/1 p0 st1 drink fw2’ "200"mg theanine
3:56 4’ 90%/1 p0 st1 drink4 fw1’ hot flush due to added duvet.
6:08 3’ 90%/1 p0 st1 drink16 fw1’ getting restless → dozing partly (30’)
-7:18 90%/1 p0 st1 drink16 fw1’ getting restless
? 80%/2? almonds teeth FCS#2?
-end. Breakfast while blogging, before exercising!
Sum: 1h40+7h18-(4+3+4+3=)14’= 8h58-14’=8h44, up 4x (14’), (minus 30’’ doze = 8h14)

ACTIVITIES➔ACHE: Work 2 hours went well using taurine to get awake, altho I felt I was overdoing it using cortisol from it ➔ 90%/1, did quite a bit after acupressure, but then my head needed a long break, dumb, slightly zombified, eyes slightly closed...

Ache = also Exhaustion/Tired :white_check_mark: :x: :face_with_monocle: ➔ ?90%/1
Cycle➔ exhaustion, also as action➔pains;
TT = Table-Tennis➔ easy or effortless or strained or tough?
talk/meetings here (and actions➔pains?)
Grandchild➔
Work/Mask-talking➔

ACTIONS➔ PAINS: Lying with a gel-donut under my SIJ helped, but I have to remove it and back again every 30' ✅, standing OK ✅, loins: not better ❌, sitting OK ✅, stiffness after poses hmm... ✅/❌, cycling: backside hurt ❌, bladder sort of ✅/❌, stool was not the taurine, it was a carrot salad, which I've been eating twice a day and I thought might be off, but my wife said was completely OK. Until she ate some herself.. 🧐 ❌➔ S. boulardii ✅, talking OK ✅, mask-talking at work too, maybe the taurine tho, hope I'll find something similar & better.. ✅

:white_check_mark: :x: :face_with_monocle:
Lie ➔ LBU = lower back unrest, hunchback, Neck, thighs, elbows, itch, cold/hot, nose stuffy
Stand ➔ Legs, back
Knees up ➔ right loin
Sit ➔ Backside, lower back
Pose ➔ stiffness (Stiffness after holding a posture): Time 0-60’’, pain amount if faster.
Walk ➔ Elbows, feet, right knee
Cycle ➔ Feet, knees, backside, elbows, hands, neck
Drink ➔ Pee frequency, pain before peeing (p0-6).
Eat ➔ Esophagus block, stomach, gut, rectum, stool (IBSD?). GI for short
Talk➔Jaw (& Ache)
Mask-talk ➔ not sure how to describe it, just plain yucky.

Treatments

SELF-PHYSIO: 33' ✅, fibro-work (fw) 3h

:white_check_mark: Timing, AuTr 5’, hunchback-pillow 0’, cold shower (10’), palpate 1’, belly 3’, back 7’, neck 1+ 2’, neck 2 1’, twist-stretch 4’, .
:x: workout 7’, gums 2x30’’, thumbnails 10x30’’, V ‘, yoga ‘, loins 1’, marionette-hang 1’, breath-hold 11’, shaking dance 1’, RR x2’, HWB 3’

fw: Night: 5’ + 5’ + 2h (taurine) + 45’

THERAPIES: Acupressure on neck, but it's only slightly better afterwards. Idea for right knee while walking: Try knees up more.

Acupressure / Therapy, Doc/Diagnoses ? :white_check_mark: :x: :face_with_monocle: Acupressure 2h Tues & 2h Fri:

SUPPS: Spread passiflora more: 2+1+1 ✅, Dozed more after 8h (due to postponing theanine to the 2nd sleep break?) ✅ Not jittery from the taurine due to splitting into 2x500 ✅ GI ✅ However the energy felt like overdoing it / feverish / overriding tiredness and I needed a long rest after doing a lot, tired, however not really fatigued or Achey. ❌ But after several auras and seizures at 15:20 & 19:30, taurine seemed to be the culprit. Researching that, it usually acts opposite (see link in the details to a new post in the amino acids thread), I've decided if it wakes me up (like everyone thinks, altho research contradicts this) then it will also excite seizures in me. 3rd seizure at 22:35, that proves it.

Amino Acids for low serotonin / dopamine etc - #4 by JayCS
(?:arrow_upper_right: :arrow_lower_right:)
20:40: 2x289 passiflora, selene, rosewort/magnesium carbonate/B1 at meal
22:20: !400mg GABA, 1x289 passiflora
23:45: !500mg GABA & 400mg L-glutamine & 289mg passiflora
1:39 "200"mg theanine

Development

Lessons in self-care #71 As always caught between trying to avoid too many sfx & having to overdose to see if something works. In this case the dose that works has too many sfx, I doubt doing something in between like 700mg makes sense. These seizures were comparable to ones I got from amitriptyline and even tilidine (that was much more severe and on the 1st day). I’d given it a chance, built up a bit. Praps I cd resort to 700-1000mg if I ever need a quick short kick… Also seems to habituate, which doesn’t nec make it better for me…
Reasons to be cheerful #71 Taurine’s real party stuff for me… go gaga quickly… :wink: :roll_eyes:

Highlights week 22nd to 28th.

Abbreviations & explanations

Entries start with night meds & sleep, before triggers/symptoms & treatments, because the “night before” is vital. So Fri-day starts with Thursday night, the night before Friday.

Pain "7" = crying (/out) point; my 1 is others 2-3, and due to pacing/treatments

My wife says my 7 is other people’s 12. 1 is probably 2-3. Due to pacing, keeping work down to 25% (12h/wk) and all my treatments (acupressure, GABA) and physio self-treatments I manage to keep getting my pains & Ache down quickly. 3 usually means the Ache, not pains; these I address individually, often automatically and on the fly now, e.g. twist-stretching everything or something specific after getting up.

TIME DATA, e.g. ' = mins, h = hours, 18:10:40', date YYYY-MM-DD

’ = mins = minutes, ‘’ = secs = seconds, h is hours as time length, 3h is 3 hours long, 3:00 is 3am, 15:00 is 3pm. 18:10:40’ means 40 minutes, starting at 18:10, = 10 minutes past 6pm up to 10 to 7pm. The date is the logical digital standard: YYYY-MM-DD.

SLEEP: slp, w, lbu/LBU, RLS, p, i

slp = sleep; reasons for getting up: w = (a)wake, lbu/LBU: lower back unrest (‘RLS’?), p: pee, p2: pain 2 of 7 before peeing, i: ideas.

ACTIVITIES: TT, e.g. "5:1"

TT = table tennis, 5:1 = score, usually showing how well I’m feeling: energy, relaxedness & alertness if the first number is much higher than the second.

SUPPS: supplements (as opposed to herbs & meds). Fx: Effects. Sfx: Side effects.

SELF-TREATMENTS (about everything else...)

The self-treatments listed are only things that I’m spotlighting & rewarding myself for at the mo by counting them; much of what I do at night is self-treatment to get back to sleep or alleviate (1-2h/d), certain regular movements at daytime, like twist-stretching (30’), writing this blog is self-treatment (30’-60’/d), and the further fibro-work is an indirect form.
Self treatments are usually preventative or always have the same positive effect (e.g. cold showering improves Ache and sleep) - at least I do them for that - and I use “:arrow_forward:” to show what I’m doing to alleviate something and mark it off in the details “:white_check_mark:/:x:” whether it works well enough for a time or doesn’t’, e.g. Ache :arrow_forward: cold fast shower “:white_check_mark:
fw = fibro-work, meaning reading and writing this blog, the reference base, on 4 fibro-forums and researching fibro-stuff on the web.
AuTr = Autogenic Training (usually to actively get - back - to sleep, so counting it as sleep and AuTr…),
FAT Flash/fast autogenic training: immediate image of dreamy floating in space or liquid from jaw to legs.
cold/FCS = Flash Cold Shower (20’’-60’’) , I count it as 10’ tho. At night with ear plugs & all lights off.
breath-hold/WHM-B-H = Wim Hof Method Breath-Holding,
Neck 1 is stretching top right to bottom left, vice versa & sky/ground, neck “1+” is stretching far further diagonally downwards, neck 2 is pressing my head against my hand “without moving”, left right and front.
loins = loins/groin = stretching the ligaments there.
ex = exercises
HWB = Hot water bottle,
RR = bp = blood pressure (Riva Rocci), plus pulse. Used to be normal, plus sometimes white coat syndrome, went up since fibro, seems to have gone down again enough so I’ve not only stopped lercanidipine, but also candesartan and am checking RR regularly.
:new: “V” for loins = lie on back, legs up and let legs fall to sides;
:new: twist-stretching more for the loins
:white_check_mark: :x: :face_with_monocle: ➔ ⇄ ⇨➜ ➞ :arrow_right: ➲ ↔:⇰↔ →:arrow_upper_right: :arrow_lower_right:

↯ ↛ ↺ ↮ ⇝ ⇾ ⟹ ⭆ ⤮:

2021-09-04, Saturday - Serrapeptase!? (SRP)

Triggers & resulting Symptoms

SLEEP: 8h23, up 5x (46'), (minus 20' doze/AuTr = 8h) ↔️ Feeling 90% well, Ache 1 of 7 ✅

21:00: !2x289 passiflora, 22:40 selene, rosewort/magnesium carbonate/B1 at meal
22:40: !600mg GABA (more to get the seizures down)
2:40: 600mg GABA & !450mg L-glutamine & 289mg passiflora
3:20 !"300"mg theanine & 4th 289mg passiflora
8:02 2x400mg mg glycinate
FCS#1 23:15-
2:36 4’ 90%/1 p0 st1 fw2’ +600 GABA+400 glutamine+289 passiflora, dry mouth → gel/lips
3:20 5’ 90%/1 clavicle → joint oils & stretching, where’s Traumeel? + 200 theanine+289 passiflora. Bit too awake means passiflora 2+1+1 isn’t enough, it needs to be earlier 3+1. stomach burn → drink. cold → all clothes on. doze.
4:50 30’ 90%/1 p0 st1 fw2’ drink 6
6:46 4’ 90%/1 p0 st1 fw2’ stomach ache → Gastritol + drink.
8:02 3’ 90%/1 p0 st1 fw1’ drink10 2x400mg mg glycinate.
-8:24
Sum: 0h45+8h24-(4+5+30+4+3=)46’= 9h09-46’=8h23, up 5x (46’), (minus 20’ doze/AuTr = 8h)

ACTIVITIES➔ACHE: talking 50' with someone who "likes hearing himself" ❌ no jaw pain, but ➔ 60%/5, rest... serrapeptase? Yes. ➔ 90%/1 immediately! 🧐 Impossible! Gardening no problem ➔ 90%/1. All evening. But very tired after 21:00

Ache = also Exhaustion/Tired :white_check_mark: :x: :face_with_monocle: ➔ ?90%/1
Cycle➔ exhaustion, also as action➔pains;
TT = Table-Tennis➔ easy or effortless or strained or tough?
talk/meetings here (and actions➔pains?)
Grandchild➔
Work/Mask-talking➔
Socializing/Talking➔

ACTIONS➔ PAINS: Lying: clavicle/shoulder ❌ (from neck acupressure?)➔joint oil ✅, neck, thighs (❌), lying at daytime: backside hurting partly ❌, exercising: sore loins ❌=✅, standing OK, esp. after SRP ✅❌, Loins: ❌, sitting ✅, stiffness after poses a bit ✅/❌, cycling ✅, bladder p1-2 ✅/❌, GI ❌ (serrapeptase?), talking with someone who "likes hearing himself" ❌ no jaw pain, but body Ache of 5 of 7

:white_check_mark: :x: :face_with_monocle:
Lie ➔ LBU = lower back unrest, hunchback, Neck, thighs, elbows, itch, cold/hot, nose stuffy
Stand ➔ Legs, back
Knees up ➔ right loin
Sit ➔ Backside, lower back
Pose ➔ stiffness (Stiffness after holding a posture): Time 0-60’’, pain amount if faster.
Walk ➔ Elbows, feet, right knee
Cycle ➔ Feet, knees, backside, elbows, hands, neck
Drink ➔ Pee frequency, pain before peeing (p0-6).
Eat ➔ Esophagus block, stomach, gut, rectum, stool (IBSD?). GI for short
Talk➔Jaw (& Ache)
Mask-talk ➔ not sure how to describe it, just plain yucky.

Treatments

SELF-PHYSIO: 60' ✅, fibro-work (fw) 5h

:white_check_mark: Clavicle-join-oils 2’, AuTr 15’, Timing, hunchback-pillow 5’, cold shower (10’), palpate 1’, belly 3’, back 7’, workout 7’, twist-stretch 10’, .
:x: gums 2x30’’, thumbnails 10x30’’, neck 1+ ‘, neck 2 1’, V ‘, yoga ‘, loins 1’, marionette-hang 1’, breath-hold 11’, shaking dance 1’, RR x2’, HWB 3’, Teeth!

fw: Night: 5+ 2h +45’ 2h

THERAPIES: Clavicle at night despite neck acupressure, better after oils

Acupressure / Therapy, Doc/Diagnoses ? :white_check_mark: :x: :face_with_monocle: Acupressure 2h Tues & 2h Fri:

SUPPS: 2+1+1 passiflora left me too awake at 3:20, so back to 3+1 ✅, GI ✅, except after serrapeptase

21:00: !2x289 passiflora, 22:40 selene, rosewort/magnesium carbonate/B1 at meal
22:40: !600mg GABA (more to get the seizures down)
2:40: 600mg GABA & !450mg L-glutamine & 289mg passiflora
3:20 !"300"mg theanine & 4th 289mg passiflora
8:02 2x400mg mg glycinate

Highlights week 22nd to 28th.

Abbreviations & explanations

Entries start with night meds & sleep, before triggers/symptoms & treatments, because the “night before” is vital. So Fri-day starts with Thursday night, the night before Friday.

Pain "7" = crying (/out) point; my 1 is others 2-3, and due to pacing/treatments

My wife says my 7 is other people’s 12. 1 is probably 2-3. Due to pacing, keeping work down to 25% (12h/wk) and all my treatments (acupressure, GABA) and physio self-treatments I manage to keep getting my pains & Ache down quickly. 3 usually means the Ache, not pains; these I address individually, often automatically and on the fly now, e.g. twist-stretching everything or something specific after getting up.

TIME DATA, e.g. ' = mins, h = hours, 18:10:40', date YYYY-MM-DD

’ = mins = minutes, ‘’ = secs = seconds, h is hours as time length, 3h is 3 hours long, 3:00 is 3am, 15:00 is 3pm. 18:10:40’ means 40 minutes, starting at 18:10, = 10 minutes past 6pm up to 10 to 7pm. The date is the logical digital standard: YYYY-MM-DD.

SLEEP: slp, w, lbu/LBU, RLS, p, i

slp = sleep; reasons for getting up: w = (a)wake, lbu/LBU: lower back unrest (‘RLS’?), p: pee, p2: pain 2 of 7 before peeing, i: ideas.

ACTIVITIES: TT, e.g. "5:1"

TT = table tennis, 5:1 = score, usually showing how well I’m feeling: energy, relaxedness & alertness if the first number is much higher than the second.

SUPPS: supplements (as opposed to herbs & meds). Fx: Effects. Sfx: Side effects.

SELF-TREATMENTS (about everything else...)

The self-treatments listed are only things that I’m spotlighting & rewarding myself for at the mo by counting them; much of what I do at night is self-treatment to get back to sleep or alleviate (1-2h/d), certain regular movements at daytime, like twist-stretching (30’), writing this blog is self-treatment (30’-60’/d), and the further fibro-work is an indirect form.
Self treatments are usually preventative or always have the same positive effect (e.g. cold showering improves Ache and sleep) - at least I do them for that - and I use “:arrow_forward:” to show what I’m doing to alleviate something and mark it off in the details “:white_check_mark:/:x:” whether it works well enough for a time or doesn’t’, e.g. Ache :arrow_forward: cold fast shower “:white_check_mark:
fw = fibro-work, meaning reading and writing this blog, the reference base, on 4 fibro-forums and researching fibro-stuff on the web.
AuTr = Autogenic Training (usually to actively get - back - to sleep, so counting it as sleep and AuTr…),
FAT Flash/fast autogenic training: immediate image of dreamy floating in space or liquid from jaw to legs.
cold/FCS = Flash Cold Shower (20’’-60’’) , I count it as 10’ tho. At night with ear plugs & all lights off.
breath-hold/WHM-B-H = Wim Hof Method Breath-Holding,
Neck 1 is stretching top right to bottom left, vice versa & sky/ground, neck “1+” is stretching far further diagonally downwards, neck 2 is pressing my head against my hand “without moving”, left right and front.
loins = loins/groin = stretching the ligaments there.
ex = exercises
HWB = Hot water bottle,
RR = bp = blood pressure (Riva Rocci), plus pulse. Used to be normal, plus sometimes white coat syndrome, went up since fibro, seems to have gone down again enough so I’ve not only stopped lercanidipine, but also candesartan and am checking RR regularly.
:new: “V” for loins = lie on back, legs up and let legs fall to sides;
:new: twist-stretching more for the loins
:white_check_mark: :x: :face_with_monocle: ➔ ⇄ ⇨➜ ➞ :arrow_right: ➲ ↔:⇰↔ →:arrow_upper_right: :arrow_lower_right:

↯ ↛ ↺ ↮ ⇝ ⇾ ⟹ ⭆ ⤮:

2021-09-05, Sunday - I joined 1y ago: who’d’ve guessed I’d land like this…

Triggers & resulting Symptoms

SLEEP: 9h25-50'=8h35, up 4x (50') ↔️ Feeling 90% well, Ache 1 of 7 ✅

22:25: 3x289 passiflora, selene, rosewort/magnesium carbonate/B1 at meal
22:30: :arrow_upper_right:?500mg GABA (slightly more than usual, slightly less later)
1:05: !500mg GABA & !500mg L-glutamine & !"250"mg theanine & 289mg passiflora
FCS#1 22:45-
1:03 3’ 90%/1 p0 st1 drink fw1’ +!500 GABA + !500 glutamine + !250 theanine +289 passiflora
2:45 5’ 90%/1 p0 st1 drink fw1’ teeth, clothes on. Dry mouth gel.
4:41 3’ 90%/1 p0 st1 drink fw1’ pain pangs 10cm downwards from left elbow, every few minutes. Oils didn’t help. Trigger pointing with Traumeel did. Strange spot.
5:48 39’ 6 6:27
-8:10 +1h43. 400mg magnesium glycinate 9:30 & "300"mg theanine 11:00
Sum: 1h15+5h48-(3+5+3=)’= 7h03-11’= 6h52, up 3x (11’), plus 1h43 = 8h35;
OR 1h15+8h10-(3+5+3+39=)50’=9h25-50’=8h35, up 4x (50’)

ACTIVITIES➔ACHE: Feel quite alert after getting up, altho a bit tired in my eyes ➔ 90%/1, (magnesium glycinate), still tired eyes at 11:00, so theanine: helped eye tiredness inside of 15', still stiff, but hadn't done exercises yet, good after too, 1.5h music production standing ➔ 90%/1, cycling & talking (but exercising)➔ 90%/1, rest, going out a bit, eating, talking ➔ 90%/1

Ache = also Exhaustion/Tired :white_check_mark: :x: :face_with_monocle: ➔ ?90%/1
Cycle➔ exhaustion, also as action➔pains;
TT = Table-Tennis➔ easy or effortless or strained or tough?
talk/meetings here (and actions➔pains?)
Grandchild➔
Work/Mask-talking➔
Socializing/Talking➔

ACTIONS➔ PAINS: Lying ✅ (except sudden arm pain), standing during music production, not perfect, but quite OK ✅, Loins: still not good ❌ sitting OK ✅, stiffness after poses: not particularly good ❌, cycling ✅, bladder ✅, GI ✅ (not like yesterday which I still think might've been the serrapeptase), talking twice, lengthy ✅

:white_check_mark: :x: :face_with_monocle:
Lie ➔ LBU = lower back unrest, hunchback, Neck, thighs, elbows, itch, cold/hot, nose stuffy
Stand ➔ Legs, back
Knees up ➔ right loin
Sit ➔ Backside, lower back
Pose ➔ stiffness (Stiffness after holding a posture): Time 0-60’’, pain amount if faster.
Walk ➔ Elbows, feet, right knee
Cycle ➔ Feet, knees, backside, elbows, hands, neck
Drink ➔ Pee frequency, pain before peeing (p0-6).
Eat ➔ Esophagus block, stomach, gut, rectum, stool (IBSD?). GI for short
Talk➔Jaw (& Ache)
Mask-talk ➔ not sure how to describe it, just plain yucky.

Treatments - still no Ache…: yesterday’s serrapeptase? (but stiff)

SELF-PHYSIO: 78' ✅, fibro-work (fw) ?2h30

:white_check_mark: Timing, AuTr 5’, hunchback-pillow 15’, cold shower (10’), palpate 1’, belly 3’, back 7’, neck 1+ 4’, neck 2 2’, yoga 9’, workout 7’, twist-stretch 10’, loins 5’, .
:x: gums 2x30’’, thumbnails 10x30’’, V ‘, marionette-hang 1’, breath-hold 11’, shaking dance 1’, RR x2’, HWB 3’

fw: Night: 5 + 30’ 2h (theanine)

THERAPIES: Hmm, still can't see anything good about the acupressure, my neck is stiff

Acupressure / Therapy, Doc/Diagnoses ? :white_check_mark: :x: :face_with_monocle: Acupressure 2h Tues & 2h Fri:

SUPPS: Something wasn't right to make it quite thru the night, as I was pretty awake after 7h, but not enough. Praps not enough GABA, too much glutamine, too much theanine too early? I was actually thinking of adding some more GABA in the night, but that'd keep me up, so I have to prepare that. ❌, Decided to try magnesium glycinate 2x again 9:30, altho it didn't help yesterday, & is also used for insomnia - or the mg might be neutralizing the glycine in the daytime, altho for me not at night; more? it still hasn't helped at 11:00 (despite it's fast bioavailability 30-60' and taking it on a very empty stomach), so am switching to theanine now, "300mg" (maybe 100mg really). I seem to feel at difference at 11:00 already. 🧐; GI stomach slightly acidic, but stool good ✅ Stiffness tells me to increase GABA

(?:arrow_upper_right: :arrow_lower_right:)
22:25: 3x289 passiflora, selene, rosewort/magnesium carbonate/B1 at meal
22:30: :arrow_upper_right:?500mg GABA
1:05: !500mg GABA & !500mg L-glutamine & !"250"mg theanine & 289mg passiflora

Highlights week 22nd to 28th.

Abbreviations & explanations

Entries start with night meds & sleep, before triggers/symptoms & treatments, because the “night before” is vital. So Fri-day starts with Thursday night, the night before Friday.

Pain "7" = crying (/out) point; my 1 is others 2-3, and due to pacing/treatments

My wife says my 7 is other people’s 12. 1 is probably 2-3. Due to pacing, keeping work down to 25% (12h/wk) and all my treatments (acupressure, GABA) and physio self-treatments I manage to keep getting my pains & Ache down quickly. 3 usually means the Ache, not pains; these I address individually, often automatically and on the fly now, e.g. twist-stretching everything or something specific after getting up.

TIME DATA, e.g. ' = mins, h = hours, 18:10:40', date YYYY-MM-DD

’ = mins = minutes, ‘’ = secs = seconds, h is hours as time length, 3h is 3 hours long, 3:00 is 3am, 15:00 is 3pm. 18:10:40’ means 40 minutes, starting at 18:10, = 10 minutes past 6pm up to 10 to 7pm. The date is the logical digital standard: YYYY-MM-DD.

SLEEP: slp, w, lbu/LBU, RLS, p, i

slp = sleep; reasons for getting up: w = (a)wake, lbu/LBU: lower back unrest (‘RLS’?), p: pee, p2: pain 2 of 7 before peeing, i: ideas.

ACTIVITIES: TT, e.g. "5:1"

TT = table tennis, 5:1 = score, usually showing how well I’m feeling: energy, relaxedness & alertness if the first number is much higher than the second.

SUPPS: supplements (as opposed to herbs & meds). Fx: Effects. Sfx: Side effects.

SELF-TREATMENTS (about everything else...)

The self-treatments listed are only things that I’m spotlighting & rewarding myself for at the mo by counting them; much of what I do at night is self-treatment to get back to sleep or alleviate (1-2h/d), certain regular movements at daytime, like twist-stretching (30’), writing this blog is self-treatment (30’-60’/d), and the further fibro-work is an indirect form.
Self treatments are usually preventative or always have the same positive effect (e.g. cold showering improves Ache and sleep) - at least I do them for that - and I use “:arrow_forward:” to show what I’m doing to alleviate something and mark it off in the details “:white_check_mark:/:x:” whether it works well enough for a time or doesn’t’, e.g. Ache :arrow_forward: cold fast shower “:white_check_mark:
fw = fibro-work, meaning reading and writing this blog, the reference base, on 4 fibro-forums and researching fibro-stuff on the web.
AuTr = Autogenic Training (usually to actively get - back - to sleep, so counting it as sleep and AuTr…),
FAT Flash/fast autogenic training: immediate image of dreamy floating in space or liquid from jaw to legs.
cold/FCS = Flash Cold Shower (20’’-60’’) , I count it as 10’ tho. At night with ear plugs & all lights off.
breath-hold/WHM-B-H = Wim Hof Method Breath-Holding,
Neck 1 is stretching top right to bottom left, vice versa & sky/ground, neck “1+” is stretching far further diagonally downwards, neck 2 is pressing my head against my hand “without moving”, left right and front.
loins = loins/groin = stretching the ligaments there.
ex = exercises
HWB = Hot water bottle,
RR = bp = blood pressure (Riva Rocci), plus pulse. Used to be normal, plus sometimes white coat syndrome, went up since fibro, seems to have gone down again enough so I’ve not only stopped lercanidipine, but also candesartan and am checking RR regularly.
:new: “V” for loins = lie on back, legs up and let legs fall to sides;
:new: twist-stretching more for the loins
:white_check_mark: :x: :face_with_monocle: ➔ ⇄ ⇨➜ ➞ :arrow_right: ➲ ↔:⇰↔ →:arrow_upper_right: :arrow_lower_right:

↯ ↛ ↺ ↮ ⇝ ⇾ ⟹ ⭆ ⤮:

:japanese_ogre:
:japanese_goblin:
:ghost:
:angry:
:rage:
I was just editing the new entry and an old entry at the same time, like I regularly do, and suddenly I cdnt stop the page from reloading (I was given a choice, but probably moving the laptop on my lap made it choose ‘reload’) which automatically discarded the new entry. Going to ‘drafts’ doesn’t help, as I’d discarded the main post to be able to edit in the other tab.

This means I’ve lost about an hour’s work today (I was just finishing the week’s highlights after updating sleep, supps and some actions), all my Up-Next ideas and tomorrow’s template
OK: keep calm.
:person_in_lotus_position:
It’s never as bad as we think, cos if we do it straight away, memory serves us fairly well.

For tomorrow’s template I’ll use yesterday’s again.
For today’s entry I’ll be able to reconstruct it the important things roughly.
The week’s highlights I can do quickly again from last week’s and memory.
Adding the links of the blog summary and references I can do some time later.
“Up next” will be the most important, but searching thru for a backup I’ve found one a week ago 2021-08-28, so shd be able to reconstruct the rest fairly quickly from memory…

Yes, I know, why don’t I edit the main post outside of the browser? Because it “always” works now… :sunglasses: :wink:
:roll_eyes:
OK, here goes…

Highlights this week - Aug 29th to 5th - serrapeptase: even more supp success.

Symbol & emoji of the week:
:mage:

  1. Supps: Improved sleep reliably, daytime improving suddenly :white_check_mark:
  2. Taurine :arrow_upper_right:500: no help (feverish-tired?), :arrow_upper_right:1g: jittery, = 2x500mg: 3 seizures. :stop_sign:
  3. GABA :arrow_upper_right:600mg b4 bed, 600 2h later, +300 at 9:00 to try to improve stiffness & bladder. :face_with_monocle:
  4. Theanine 200mg 2h after bedtime, 300 at 8:00, :arrow_upper_right:300 on demand to improve alertness. :face_with_monocle:
  5. Passiflora :arrow_upper_right:3x289 1-2h b4 bed, not less! +1 after 2h. :white_check_mark:
  6. Magnesium glycinate harmed nights, didn’t improve days. :arrow_lower_right: :stop_sign:
  7. Magnesium malate: :arrow_lower_right: 0 seemed not to make a difference. :stop_sign: :face_with_monocle:
  8. Serrapeptase 1x miracled away my Ache, even unnec the next day. :heavy_heart_exclamation: On demand? :face_with_monocle:
  9. Overdosing, with all the sfx, is part of the game… :upside_down_face:
  10. Acupressure: Difficult getting neck improved. :roll_eyes:
  11. Activities good (work, TT, grandchild) :smiley_cat:, except 5 mi walk & returning home, talking hardest.:face_with_monocle:
  12. Actions: Loins & stiffness :face_with_monocle:. Sitting: turning lower half regularly: still good! :white_check_mark:
  13. Symptoms: Supps may continue reliably improving Ache, exhaustion & tiredness. :smiley:
  14. Stiffness: Still more focus on tracking nec. :face_with_monocle:
  15. Forehead pain: Better from bandana/loop scarf there :white_check_mark:: next times. :face_with_monocle:
  16. Bladder pain: still between 0 and 2/3: track it diligently now :face_with_monocle:
  17. Sleep:: Much better due to 3+1 passiflora, sleep breaks avg. 28’, decreasing/influenceable. :smile_cat:
  18. Ear plugs: hardly nec. any more (only neighbours’ TVs now; better) :shushing_face:
  19. Researching supps etc. (& re-arranging here) has again been more important :mega: than…
  20. symptom tracking bundling post here, & that & amino acids on ff.org. :male_detective:

2021-09-06, Monday (v2 20:10) - theanine at daytime, plus serrapeptase “on demand”, so testing out doing a lot of serious pretty full power activities without much breaks… Still wasn’t necessary… Did the serrapeptase on Saturday catalyze some process?

(bit of guesswork due to “discarding” the entry by mistake… )

Triggers & resulting Symptoms

SLEEP: 8h27-17'=8h10, up 4x (17') + 17' doze ↔️ Feeling 90% well, Ache 1 of 7 ✅

21:00? 3x289 passiflora, selene, rosewort/magnesium carbonate/B1 at meal
22:30? :arrow_upper_right:600mg GABA
1:05? 600mg GABA & ?400mg L-glutamine & 289mg passiflora
3:00? ?"300"mg theanine
FCS ?22:30-
…-8:10 300mg theanine at 8:00 and 200? at 9:00…
Sum: not quite sure, see above.

ACTIVITIES➔ACHE: ➔ 90%/1, even after trashing this blog entry, fairly stressful work, after TT, and no end, not even nec. to take serrapeptase, but I'm taking it around with me. Praps that's enough ;-). Even talking 1h & grandchild 2h was no problem, but I was a bit dull in the head, and stiff moving, except on my bike: extremely fast: still no exhaustion, no Ache. Attempting to need serrapeptase didn't work... 🧐

Ache = also Exhaustion/Tired :white_check_mark: :x: :face_with_monocle: ➔ ?90%/1
Cycle➔ exhaustion, also as action➔pains;
TT = Table-Tennis➔ easy or effortless or strained or tough?
talk/meetings here (and actions➔pains?)
Grandchild➔
Work/Mask-talking➔
Socializing/Talking➔

ACTIONS➔ PAINS: Lying OK, despite stiff neck at daytime ✅, standing OK ✅, loins: still not good ❌ sitting OK ✅, stiffness after poses: still not better ❌, fast cycling ✅, pee pain ❌/✅, at 20:00 p0-1 (after GABA at 16:00), GI: 11:00 heartburn from 200mg theanine without capsule.🧐 ✅, talking 2-3h ✅, even mask-talking 1h ✅, lots of deep breathing afterwards.

:white_check_mark: :x: :face_with_monocle:
Lie ➔ LBU = lower back unrest, hunchback, Neck, thighs, elbows, itch, cold/hot, nose stuffy
Stand ➔ Legs, back
Knees up ➔ right loin
Sit ➔ Backside, lower back
Pose ➔ stiffness (Stiffness after holding a posture): Time 0-60’’, pain amount if faster.
Walk ➔ Elbows, feet, right knee
Cycle ➔ Feet, knees, backside, elbows, hands, neck
Drink ➔ Pee frequency, pain before peeing (p0-6).
Eat ➔ Esophagus block, stomach, gut, rectum, stool (IBSD?). GI for short
Talk➔Jaw (& Ache)
Mask-talk ➔ not sure how to describe it, just plain yucky.

Treatments - still no Ache…: still Saturday’s serrapeptase? (but stiff)

SELF-PHYSIO: 2h15 ✅, fibro-work (fw) ?2h30

:white_check_mark: Timing, AuTr 5’, hunchback-pillow 10’, cold shower (10’), palpate 1’, belly 3’, back 7’, neck 1+ 4’, twist-stretch 1h30 while sitting yesterday evening, loins 5’, yoga 5’ (y. eve.),
:x: gums 2x30’’, thumbnails 10x30’’, V ‘, marionette-hang 1’, breath-hold 11’, shaking dance 1’, RR x2’, HWB 3’, workout 7’, neck 2

fw: Night: 5’ + 2h25

THERAPIES:

Acupressure / Therapy, Doc/Diagnoses ? :white_check_mark: :x: :face_with_monocle: Acupressure 2h Tues & 2h Fri:

SUPPS: Guesswork: More theanine at daytime (8:00 and 9:00? - without capsule), relaxed & alert, esp. at TT, like promised, but then slight seizure-aura during TT... GABA 400mg at 16:00 to get the aura down, but also praps stiffness, So theanine always together with GABA, like GABA with glutamine at night.

(?:arrow_upper_right: :arrow_lower_right:)
See above

UP NEXT: 1) SLEEP: 1) Keeping 4 passiflora, theanine later, 2) specks of tryptophan: 3) specks of melatonin? 4) 2nd levodopa-fraction trial? 5) NAC? WAKING UP: 1) Theanine only !with !GABA, to keep seizures down, also improve stiffness & bladder. 2) SAMe 3) Ribose? 4) NADH/NAD+? 5) ALC (or injected?) 6) glycine? PAIN: serrapeptase. A) HERBS B) SUPPS C) MEDS Info:

:arrow_upper_right: :arrow_lower_right:

A HERBS: Almonds for heartburn, Schüssler

For heartburn: Almonds first. (Bentonite, medicinal clay, mumijo?)
Schüssler 2, 4, & 7 (3-6 months sez my acupressurist).

B SUPPS: Amino acids, Enzyme, Minerals, Vitamins
Amino acids: 1) Balancing GABA with 2) glutamine, 3) theanine, 4) taurine, 5) SAMe 6) tryptophan, 7 glycine
1+2 Balancing GABA & glutamine: 1 Healthfully B6, 2 Perkins: Lithiumorotate, Zn, 3 Jockers strange doses!? 4 Levy: vitamin B6, as P-5'-P?

1.1 Healthfully: tyrosine, tryptophan, B6, high complex carb early, low protein late"]
1.2 Zn Cynthia Perkins:: Low carb (<50mg) paleo, high animal protein; (Mg) Zn <40mg, lithium orotate 125-200mg, glycine often excitatory; praps, or not: taurine, vit. B6, SAMe, NAC, theanine"]

3 Theanine

Work out how much of the pulverized tablet is filling agent?
Not too high single doses: 300 on Aug 4th seemed better. alertness, energy, relaxation without drowsiness, 100-600mg, no sfx known!, however it increases dopamine, not sure what it does to serotonin), like glutamine, levodopa, as well as taurine, tyrosine, SAMe and Mucuna pruriens! So watch out for seizures.

5 SAMe: 400-800mg in the mornings, as stimulating, not much research

SAM-e for Fibromyalgia and Chronic Fatigue Syndrome

6 Tryptophan: repeat in VERY low dose? (GI; dead tired; encapsulating like theanine),

7 Glycine

Seems to excite me, as leaving off magnesium glycinate improved sleep.

Serrapeptase: https://www.livingwithfibro.org/t/serrapeptase/13678/3:
Proteolytic enzyme without any evidence (wp), produced by silkworm bacterium. 10-60mg. enteric coated 30’ before or 2h after eating. fx: inflammation, pain. sfx: skin, pain, incl. stomach! Serrapeptase: Benefits, Dosage, Dangers, and Side Effects, Serrapeptase Benefits, How to Use and Side Effects - Dr. Axe Take as little as possible, and if possible enteric coated?? So what do I do now??
NADH coenzyme NADH for Fibromyalgia Pain Relief - Fibromyalgia Resources for energy & post exertional malaise, not sleep.
Acetyl L-Carnitine (ALC)? (Got some liquid! Or ask sleep lab psychiatrist? Ultra-high dose Vitamin C too, 7,5g, to be put in 250ml NaCl solution. Helping Jemima feel alert, dose: 2x750mg, for no sfx keep under 3000. Needs to be Acetyl for the brain. Question about kinds of pain | Page 2 | Fibromyalgia Forum)
D-Ribose (muscle fatigue, ATP; GI-sfx, so keep under 500mg; little evidence):
Selene - keeping for thyroid.
Zinc again as the bloods are in the middle. No, sfx.

Magnesium - glycinate yes or no? malate? "60mg" carbonate in the roseroot?

Medications - Other Options - #8 by JayCS

Vitamin B12 too.

C MEDS repeat?: NAC, levodopa, blood fat meds, blood pressure
NAC sleep -2400mg, better or worse (med)

(N-acetylcysteine) as I wrote here (better liposomal) as glutamate antagonist and to help sleep is mentioned on the last link (CFS/ME, with fibromites there too) suggest 1800 or 2400 mg, whilst more causes - again - diarrhea. The last person on that page also says “I elevated my glutamate / GABA levels with excess taurine” and very importantly “Once elevated Glutamate seems to be slow to rebalance” - got to watch that!
levodopa: repeat 50mg (100mg seemed to increase LBU),
Ezetimibe+atorvastatin if blood fats don’t stay down - smaller dose if at all?
Candesartan if blood pressure doesn’t stay down.

D) RELAX: A bit more Yoga Nidra on youtube.
E) MERIDIANS: real Chinese-trained acupuncture? Pardon Our Interruption
F) DOC Fibro-doc 200km from here?
G) DONE Again in specks/diluted: Melatonin, 10% CBD oil, 5-HTP, ashwagandha.

Reasons to be cheerful #72 Playing TT I got the ball out of a bush and said: “Got it”. But then couldn’t move back out for a while, we laughed our heads off :rofl:
Reasons to be cheerful #73 Playing, my grandchild saw I cdnt get up off from the kids’ trampoline well, so shouted “Boys, come here, my granddad can’t get up, come and help.” - and they came and helped. Laughter again. I thought: Great test for a worst case. I cd of course have slowly turned over on my hands and knees and pressed myself up, but Idve needed more than a minute…

Highlights week 22nd to 28th.

Abbreviations & explanations

Entries start with night meds & sleep, before triggers/symptoms & treatments, because the “night before” is vital. So Fri-day starts with Thursday night, the night before Friday.

Pain "7" = crying (/out) point; my 1 is others 2-3, and due to pacing/treatments

My wife says my 7 is other people’s 12. 1 is probably 2-3. Due to pacing, keeping work down to 25% (12h/wk) and all my treatments (acupressure, GABA) and physio self-treatments I manage to keep getting my pains & Ache down quickly. 3 usually means the Ache, not pains; these I address individually, often automatically and on the fly now, e.g. twist-stretching everything or something specific after getting up.

TIME DATA, e.g. ' = mins, h = hours, 18:10:40', date YYYY-MM-DD

’ = mins = minutes, ‘’ = secs = seconds, h is hours as time length, 3h is 3 hours long, 3:00 is 3am, 15:00 is 3pm. 18:10:40’ means 40 minutes, starting at 18:10, = 10 minutes past 6pm up to 10 to 7pm. The date is the logical digital standard: YYYY-MM-DD.

SLEEP: slp, w, lbu/LBU, RLS, p, i

slp = sleep; reasons for getting up: w = (a)wake, lbu/LBU: lower back unrest (‘RLS’?), p: pee, p2: pain 2 of 7 before peeing, i: ideas.

ACTIVITIES: TT, e.g. "5:1"

TT = table tennis, 5:1 = score, usually showing how well I’m feeling: energy, relaxedness & alertness if the first number is much higher than the second.

SUPPS: supplements (as opposed to herbs & meds). Fx: Effects. Sfx: Side effects.

SELF-TREATMENTS (about everything else...)

The self-treatments listed are only things that I’m spotlighting & rewarding myself for at the mo by counting them; much of what I do at night is self-treatment to get back to sleep or alleviate (1-2h/d), certain regular movements at daytime, like twist-stretching (30’), writing this blog is self-treatment (30’-60’/d), and the further fibro-work is an indirect form.
Self treatments are usually preventative or always have the same positive effect (e.g. cold showering improves Ache and sleep) - at least I do them for that - and I use “:arrow_forward:” to show what I’m doing to alleviate something and mark it off in the details “:white_check_mark:/:x:” whether it works well enough for a time or doesn’t’, e.g. Ache :arrow_forward: cold fast shower “:white_check_mark:
fw = fibro-work, meaning reading and writing this blog, the reference base, on 4 fibro-forums and researching fibro-stuff on the web.
AuTr = Autogenic Training (usually to actively get - back - to sleep, so counting it as sleep and AuTr…),
FAT Flash/fast autogenic training: immediate image of dreamy floating in space or liquid from jaw to legs.
cold/FCS = Flash Cold Shower (20’’-60’’) , I count it as 10’ tho. At night with ear plugs & all lights off.
breath-hold/WHM-B-H = Wim Hof Method Breath-Holding,
Neck 1 is stretching top right to bottom left, vice versa & sky/ground, neck “1+” is stretching far further diagonally downwards, neck 2 is pressing my head against my hand “without moving”, left right and front.
loins = loins/groin = stretching the ligaments there.
ex = exercises
HWB = Hot water bottle,
RR = bp = blood pressure (Riva Rocci), plus pulse. Used to be normal, plus sometimes white coat syndrome, went up since fibro, seems to have gone down again enough so I’ve not only stopped lercanidipine, but also candesartan and am checking RR regularly.
:new: “V” for loins = lie on back, legs up and let legs fall to sides;
:new: twist-stretching more for the loins
:white_check_mark: :x: :face_with_monocle: ➔ ⇄ ⇨➜ ➞ :arrow_right: ➲ ↔:⇰↔ →:arrow_upper_right: :arrow_lower_right:

↯ ↛ ↺ ↮ ⇝ ⇾ ⟹ ⭆ ⤮:

2021-09-07, Tuesday - theanine+GABA :white_check_mark:, 2nd time serrapeptase :white_check_mark:

Triggers & resulting Symptoms

SLEEP: 8h24, up 4x (16') ➔ Feeling 90% well, Ache 1 of 7 ✅, trying not to get up is counter-productive, keeps me awake until I do - maybe I need to move...

21:20 3x289 passiflora, selene, rosewort/magnesium carbonate/B1 at meal
22:15 600mg GABA
0:45: 600mg GABA & 400mg L-glutamine & 1x289mg passiflora
4:05 "300"mg theanine
FCS ?23:10-
0:47 7’ 90%/1 p0 st1 drink fw1’ + 600mg GABA & 400mg L-glutamine & 1x289mg passiflora
2:50 3’ 90%/1 p0 st1 drink fw1’ tea tree oil on foot1’
4:08 3’ 90%/1 p0 st1 drink fw1’ "300"mg theanine
6:05 3’ 90%/1 p0 st1 drink fw1’ Trying to not get up makes me more awake & my body unrestful.
-7:50
?300mg theanine at ?8:00 and 200? at 9:00…
Sum: 50+7h50-(7+3+3+3=)16’=8h24, up 4x (16’)
Learn to stop getting up?

ACTIVITIES➔ACHE: TT pretty easy, but purposely overdid it, 10 games, 70' non-stop (7:3) continuing despite an Ache of 5 ➔ 70%/5, then 17:30 1 serrapeptase, pain down, just tiredness, and normal muscle soreness due to fast cycling & hard & long table tennis playing. ➔ 90%/1

Ache = also Exhaustion/Tired :white_check_mark: :x: :face_with_monocle: ➔ ?90%/1
Cycle➔ exhaustion, also as action➔pains;
TT = Table-Tennis➔ easy or effortless or strained or tough?
talk/meetings here (and actions➔pains?)
Grandchild➔
Work/Mask-talking➔
Socializing/Talking➔

ACTIONS➔ PAINS: Lying good ✅, standing bit difficult while making music, but better ✅, loins quite OK ✅, arms up during hair-drying: harder today ❌, better after acupressure ✅, sitting OK ✅, stiffness after poses ❌/🧐, cycling not quite as fast as yesterday ✅, bladder better from more GABA at daytime, down to sort of 0-1 ✅/🧐, GI OK, but slight gut pressure after serrapeptase ✅, talking ✅

:white_check_mark:/:x:/:face_with_monocle:
Lie ➔ LBU = lower back unrest, hunchback, Neck, thighs, elbows, itch, cold/hot, nose stuffy
Stand ➔ Legs, back
Knees up ➔ right loin
Arms up ➔ pain
Sit ➔ Backside, lower back
Pose ➔ stiffness (Stiffness after holding a posture): Time 0-60’’, pain amount if faster.
Walk ➔ Elbows, feet, right knee
Cycle ➔ Feet, knees, backside, elbows, hands, neck
Drink ➔ Pee frequency, pain before peeing (p0-6).
Eat ➔ Esophagus block, stomach, gut, rectum, stool (IBSD?). GI for short
Talk➔Jaw (& Ache)
Mask-talk ➔ not sure how to describe it, just plain yucky.

Treatments

SELF-PHYSIO: 53', fibro-work (fw) 55'

:white_check_mark: Timing, AuTr 5’, hunchback-pillow 10’, cold shower (10’), palpate 1’, belly 3’, back 7’, neck 1+ 4’, neck 2 2’, twist-stretch 5’, yoga 3’, loins 3’.
:x: gums 2x30’’, thumbnails 10x30’’, V ‘, marionette-hang 1’, breath-hold 11’, shaking dance 1’, RR x2’, HWB 3’, workout 7’

fw: Night: 5 + 10’ +30’ +10’

THERAPIES: Neck slightly better for the first time today, but acupressurist did something pretty different, not doing ear acupressure at all, rather using the vibrator all over back and front, deep & thorough, but the neck needed a lot of refinishing until it was at 90° again.

Acupressure / Therapy, Doc/Diagnoses ? :white_check_mark: :x: :face_with_monocle: Acupressure 2h Tues & 2h Fri - this week Friday:

SUPPS: Adding theanine with GABA is together proving its worth, as hoped: theanine relaxes & makes alert at the same time, whilst GABA prevented auras and pee pain, however not stiffness. Serrapeptase worked without sfx/nocebo, directly after overdoing TT deliberately, was a bit stiff, tired with normal exhaustion, but no fibro-Ache any more.

(?:arrow_upper_right: :arrow_lower_right:)
21:20 3x289 passiflora, selene, rosewort/magnesium carbonate/B1 at meal
22:15 600mg GABA
0:45: 600mg GABA & 400mg L-glutamine & 1x289mg passiflora
4:05 "300"mg theanine
8:55 "200"mg theanine + 300 GABA (arm & standing pain)

Highlights week 29th to 5th.

Abbreviations & explanations

Entries start with night meds & sleep, before triggers/symptoms & treatments, because the “night before” is vital. So Fri-day starts with Thursday night, the night before Friday.

Pain "7" = crying (/out) point; my 1 is others 2-3, and due to pacing/treatments

My wife says my 7 is other people’s 12. 1 is probably 2-3. Due to pacing, keeping work down to 25% (12h/wk) and all my treatments (acupressure, GABA) and physio self-treatments I manage to keep getting my pains & Ache down quickly. 3 usually means the Ache, not pains; these I address individually, often automatically and on the fly now, e.g. twist-stretching everything or something specific after getting up.

TIME DATA, e.g. ' = mins, h = hours, 18:10:40', date YYYY-MM-DD

’ = mins = minutes, ‘’ = secs = seconds, h is hours as time length, 3h is 3 hours long, 3:00 is 3am, 15:00 is 3pm. 18:10:40’ means 40 minutes, starting at 18:10, = 10 minutes past 6pm up to 10 to 7pm. The date is the logical digital standard: YYYY-MM-DD.

SLEEP: slp, w, lbu/LBU, RLS, p, i

slp = sleep; reasons for getting up: w = (a)wake, lbu/LBU: lower back unrest (‘RLS’?), p: pee, p2: pain 2 of 7 before peeing, i: ideas.

ACTIVITIES: TT, e.g. "5:1"

TT = table tennis, 5:1 = score, usually showing how well I’m feeling: energy, relaxedness & alertness if the first number is much higher than the second.

SUPPS: supplements (as opposed to herbs & meds). Fx: Effects. Sfx: Side effects.

SELF-TREATMENTS (about everything else...)

The self-treatments listed are only things that I’m spotlighting & rewarding myself for at the mo by counting them; much of what I do at night is self-treatment to get back to sleep or alleviate (1-2h/d), certain regular movements at daytime, like twist-stretching (30’), writing this blog is self-treatment (30’-60’/d), and the further fibro-work is an indirect form.
Self treatments are usually preventative or always have the same positive effect (e.g. cold showering improves Ache and sleep) - at least I do them for that - and I use “:arrow_forward:” to show what I’m doing to alleviate something and mark it off in the details “:white_check_mark:/:x:” whether it works well enough for a time or doesn’t’, e.g. Ache :arrow_forward: cold fast shower “:white_check_mark:
fw = fibro-work, meaning reading and writing this blog, the reference base, on 4 fibro-forums and researching fibro-stuff on the web.
AuTr = Autogenic Training (usually to actively get - back - to sleep, so counting it as sleep and AuTr…),
FAT Flash/fast autogenic training: immediate image of dreamy floating in space or liquid from jaw to legs.
cold/FCS = Flash Cold Shower (20’’-60’’) , I count it as 10’ tho. At night with ear plugs & all lights off.
breath-hold/WHM-B-H = Wim Hof Method Breath-Holding,
Neck 1 is stretching top right to bottom left, vice versa & sky/ground, neck “1+” is stretching far further diagonally downwards, neck 2 is pressing my head against my hand “without moving”, left right and front.
loins = loins/groin = stretching the ligaments there.
ex = exercises
HWB = Hot water bottle,
RR = bp = blood pressure (Riva Rocci), plus pulse. Used to be normal, plus sometimes white coat syndrome, went up since fibro, seems to have gone down again enough so I’ve not only stopped lercanidipine, but also candesartan and am checking RR regularly.
:new: “V” for loins = lie on back, legs up and let legs fall to sides;
:new: twist-stretching more for the loins
:white_check_mark: :x: :face_with_monocle: ➔ ⇄ ⇨➜ ➞ :arrow_right: ➲ ↔:⇰↔ →:arrow_upper_right: :arrow_lower_right:

↯ ↛ ↺ ↮ ⇝ ⇾ ⟹ ⭆ ⤮:

2021-09-08, Wednesday - this is a nicer new normal than before. But still not normal…

Triggers & resulting Symptoms

SLEEP: 7h48, up 3x (17'), + doze 12' = 8h ➔ Feeling 90% well, Ache 1 of 7 ✅

3 passiflora, FCS 23:15-
2:04 5’ 90%/1 p1-2! st1 drink fw2’ + 600mg GABA & 400mg L-glutamine & 1x289mg passiflora
3:30 4’ 90%/1 p0-1 st1 drink fw2’ + "300"mg theanine
4:54 6’ 90%/1 p0-1 st1 drink fw4’
-7:19 4’ 90%/1 p0 st1 drink fw1’ (dose -7:35 12’)
Sum: 45’+7h20-(5+4+6=)17’=8h05-17’=7h48, up 3x (17’), + doze 12’ = 8h

ACTIVITIES➔ACHE: talking (outside) 30' & mask-talking 45' to single persons at work ✅ ➔ 85%/1, talking again, housework, all good (no TT) ✅ ➔ 85%/1

Ache = also Exhaustion/Tired :white_check_mark: :x: :face_with_monocle: ➔ ?90%/1
Cycle➔ exhaustion, also as action➔pains;
TT = Table-Tennis➔ easy or effortless or strained or tough?
talk/meetings here (and actions➔pains?)
Grandchild➔
Work/Mask-talking➔
Socializing/Talking➔

ACTIONS➔ PAINS: Lying ✅, standing - uncomfy first thing ❌/🧐 trying again at work ✅, loins ✅, sitting, regularly alternating ✅, arms up ✅, stiffness after poses ✅! (altho I haven't starting trying glutamine yet - is that the additional GABA after all?), fast cycling OK-ish ✅/❌, bladder ✅ most of the time (2:04 p1-2 was an exception), GI ✅, talking ✅, mask-talking ✅/🧐

:white_check_mark: :x: :face_with_monocle:
Lie ➔ LBU = lower back unrest, hunchback, Neck, thighs, elbows, itch, cold/hot, nose stuffy
Stand ➔ Legs, back
Knees up ➔ right loin
Arms up ➔ pain
Sit ➔ Backside, lower back
Pose ➔ stiffness (Stiffness after holding a posture): Time 0-60’’, pain amount if faster.
Walk ➔ Elbows, feet, right knee
Cycle ➔ Feet, knees, backside, elbows, hands, neck
Drink ➔ Pee frequency, pain before peeing (p0-6).
Eat ➔ Esophagus block, stomach, gut, rectum, stool (IBSD?). GI for short
Talk➔Jaw (& Ache)
Mask-talk ➔ not sure how to describe it, just plain yucky.

Treatments

SELF-PHYSIO: 46' ✅, fibro-work (fw) 2h35

:white_check_mark: Timing, AuTr 5’, hunchback-pillow 10’, cold shower (10’), palpate 1’, belly 3’, back 7’, neck 1+ 2’, loins 2’, twist-stretch 6’,
:x: neck 2 5’, gums 2x30’’, thumbnails 10x30’’, V ‘, marionette-hang 1’, mirror 2’, shaking dance 1’, breath-hold 11’, RR x2’, HWB 3’, yoga, workout 7’

fw: Night: 5 + 7:45-8:30-9:15 1h30 + 30’ + ?30’

THERAPIES: Neck stiff again this morning... (45°, both directions!) 🧐. Loins good tho. General stiffness also better, whether from supps, acupressure or both. No problems at all with stairs.

Acupressure / Therapy, Doc/Diagnoses ? :white_check_mark: :x: :face_with_monocle: Acupressure 2h Tues & 2h Fri:

SUPPS: Ache again remains extinguished by serrapeptase #2. A bit tired/brain foggy in my head after 8h sleep, so interesting wd be slightly more alertness, less fogginess.

(?:arrow_upper_right: :arrow_lower_right:)
21:00 3x289 passiflora, selene, rosewort/magnesium carbonate/B1 at meal
23:15 450mg GABA
2:04 600mg GABA & 400mg L-glutamine & 1x289mg passiflora
3:30 "300"mg theanine
“300mg” theanine with 500 GABA at 7:45
no added 200 theanine later…

KEEP UP: PAIN (ACHE; stiffness?) ✅: serrapeptase as nec. SLEEP ✅: 0) Keep 21:00 3x289mg passiflora, selene, rosewort/Mg carbonate/B1; 22:00/bed GABA 1x"450"; 0:00/+2h GABA "600", 400 glutamine, 1x passiflora, 2:00/+4h 300 theanine WAKE/FOG: 0) Keep 8:00 theanine 300 + GABA 400 ✅

For heartburn: Almonds first. (Bentonite, medicinal clay, mumijo?)

UP NEXT: Adjust to get body feeling (esp. head/eyes/feverishness) more natural. +WAKE/FOG: 1) SAMe 2) Ribose 3) NADH/NAD+ 4) ALC (or injected?) 5) glycine. +STIFFNESS: glutamine? 🧐 +SLEEP: Apparently no longer nec: specks of tryptophan, melatonin, levodopa. NAC?. A) HERBS B) SUPPS C) MEDS Info:

:arrow_upper_right: :arrow_lower_right:

A HERBS: Schüssler

Schüssler 2, 4, & 7 (3-6 months sez my acupressurist).

B SUPPS: Amino acids, Enzyme, Minerals, Vitamins
Amino acids: 1) Balancing GABA with 2) glutamine, 3) theanine, 4) taurine, 5) SAMe 6) tryptophan, 7 glycine
1+2 Balancing GABA & glutamine: 1 Healthfully B6, 2 Perkins: Lithiumorotate, Zn, 3 Jockers strange doses!? 4 Levy: vitamin B6, as P-5'-P?

1.1 Healthfully: tyrosine, tryptophan, B6, high complex carb early, low protein late"]
1.2 Zn Cynthia Perkins:: Low carb (<50mg) paleo, high animal protein; (Mg) Zn <40mg, lithium orotate 125-200mg, glycine often excitatory; praps, or not: taurine, vit. B6, SAMe, NAC, theanine"]

glutamine/dopamine for stiffness/gait??: Low Dopamine in Fibromyalgia and CFS

3 Theanine

Work out how much of the pulverized tablet is filling agent. 300 on Aug 4th seemed better, better not higher at night. Alertness, energy, relaxation without drowsiness, 100-600mg, no sfx known!, however it increases dopamine, not sure what it does to serotonin), like glutamine, levodopa, as well as taurine, tyrosine, SAMe and Mucuna pruriens! So watch out for seizures.

SAMe: 400-800mg in the mornings, as stimulating, not much research

SAM-e for Fibromyalgia and Chronic Fatigue Syndrome

Tryptophan: repeat in VERY low dose? (GI; dead tired; encapsulating like theanine).

Glycine

Seems to excite me, as leaving off magnesium glycinate improved sleep.

Serrapeptase: https://www.livingwithfibro.org/t/serrapeptase/13678/3:
Proteolytic enzyme without any evidence (wp), produced by silkworm bacterium. 10-60mg. enteric coated 30’ before or 2h after eating. fx: inflammation, pain. sfx: skin, pain, incl. stomach! Serrapeptase: Benefits, Dosage, Dangers, and Side Effects, Serrapeptase Benefits, How to Use and Side Effects - Dr. Axe Take as little as possible, and if possible enteric coated?? So what do I do now??
NADH coenzyme NADH for Fibromyalgia Pain Relief - Fibromyalgia Resources for energy & post exertional malaise, not sleep.
Acetyl L-Carnitine (ALC)? (Got some as liquid! Or ask sleep lab psychiatrist? Ultra-high dose Vitamin C too, 7,5g, to be put in 250ml NaCl solution. It’s helping Jemima feel alert, dose: 2x750mg, for no sfx keep under 3000. Needs to be Acetyl for the brain. Question about kinds of pain | Page 2 | Fibromyalgia Forum)
D-Ribose (muscle fatigue, ATP; GI-sfx, so keep under 500mg; little evidence):
Selene - keeping for thyroid.
Zinc again as the bloods are in the middle. No, sfx.

Magnesium - glycinate yes or no? malate? "60mg" carbonate in the roseroot?

Medications - Other Options - #8 by JayCS

Vitamin B12 too.

C MEDS repeat?: NAC, levodopa, blood fat meds, blood pressure
NAC sleep -2400mg, better or worse (med)

(N-acetylcysteine) as I wrote here (better liposomal) as glutamate antagonist and to help sleep is mentioned on the last link (CFS/ME, with fibromites there too) suggest 1800 or 2400 mg, whilst more causes - again - diarrhea. The last person on that page also says “I elevated my glutamate / GABA levels with excess taurine” and very importantly “Once elevated Glutamate seems to be slow to rebalance” - got to watch that!
levodopa: repeat 50mg (100mg seemed to increase LBU),
Ezetimibe+atorvastatin if blood fats don’t stay down - smaller dose if at all?
Candesartan if blood pressure doesn’t stay down.

D) RELAX: A bit more Yoga Nidra on youtube.
E) MERIDIANS: real Chinese-trained acupuncture? Pardon Our Interruption
F) DOC Fibro-doc 200km from here?
G) DONE Again in specks/diluted: Melatonin, 10% CBD oil, 5-HTP, ashwagandha.

Development

  • Changed order of what’s “up next” as sleep is now usually pretty perfect, very effective.
  • Being more awake in the daytime still may need a bit of pimping.
  • My main focus is now is on neck & loins (exercises), stiffness (GABA amount?) & mask-talking. :face_with_monocle:
  • Testing serrapeptase for Ache further: Does it really work for a few days? :face_with_monocle:
  • I’ve been approaching normality, but something still feels wonky or wrong or beneath the surface.

Reasons to be cheerful #74 Every time I wake up I keep thinking “still not sleeping” then I get up and am surprised it’s been 1.5-3h again and can sleep again…
Reasons to be cheerful #75 In the mornings I am always surprised how few times I’ve been up.
Reasons to be cheerful #76 My acupressurist asked me to bring some more serrapeptase with me on Friday - seems to have helped her too (pain & inflammation…).

Highlights week 29th to 5th.

Abbreviations & explanations

Entries start with night meds & sleep, before triggers/symptoms & treatments, because the “night before” is vital. So Fri-day starts with Thursday night, the night before Friday.

Pain "7" = crying (/out) point; my 1 is others 2-3, and due to pacing/treatments

My wife says my 7 is other people’s 12. 1 is probably 2-3. Due to pacing, keeping work down to 25% (12h/wk) and all my treatments (acupressure, GABA) and physio self-treatments I manage to keep getting my pains & Ache down quickly. 3 usually means the Ache, not pains; these I address individually, often automatically and on the fly now, e.g. twist-stretching everything or something specific after getting up.

TIME DATA, e.g. ' = mins, h = hours, 18:10:40', date YYYY-MM-DD

’ = mins = minutes, ‘’ = secs = seconds, h is hours as time length, 3h is 3 hours long, 3:00 is 3am, 15:00 is 3pm. 18:10:40’ means 40 minutes, starting at 18:10, = 10 minutes past 6pm up to 10 to 7pm. The date is the logical digital standard: YYYY-MM-DD.

SLEEP: slp, w, lbu/LBU, RLS, p, i

slp = sleep; reasons for getting up: w = (a)wake, lbu/LBU: lower back unrest (‘RLS’?), p: pee, p2: pain 2 of 7 before peeing, i: ideas.

ACTIVITIES: TT, e.g. "5:1"

TT = table tennis, 5:1 = score, usually showing how well I’m feeling: energy, relaxedness & alertness if the first number is much higher than the second.

SUPPS: supplements (as opposed to herbs & meds). Fx: Effects. Sfx: Side effects.

SELF-TREATMENTS (about everything else...)

The self-treatments listed are only things that I’m spotlighting & rewarding myself for at the mo by counting them; much of what I do at night is self-treatment to get back to sleep or alleviate (1-2h/d), certain regular movements at daytime, like twist-stretching (30’), writing this blog is self-treatment (30’-60’/d), and the further fibro-work is an indirect form.
Self treatments are usually preventative or always have the same positive effect (e.g. cold showering improves Ache and sleep) - at least I do them for that - and I use “:arrow_forward:” to show what I’m doing to alleviate something and mark it off in the details “:white_check_mark:/:x:” whether it works well enough for a time or doesn’t’, e.g. Ache :arrow_forward: cold fast shower “:white_check_mark:
fw = fibro-work, meaning reading and writing this blog, the reference base, on 4 fibro-forums and researching fibro-stuff on the web.
AuTr = Autogenic Training (usually to actively get - back - to sleep, so counting it as sleep and AuTr…),
FAT Flash/fast autogenic training: immediate image of dreamy floating in space or liquid from jaw to legs.
cold/FCS = Flash Cold Shower (20’’-60’’) , I count it as 10’ tho. At night with ear plugs & all lights off.
breath-hold/WHM-B-H = Wim Hof Method Breath-Holding,
Neck 1 is stretching top right to bottom left, vice versa & sky/ground, neck “1+” is stretching far further diagonally downwards, neck 2 is pressing my head against my hand “without moving”, left right and front.
loins = loins/groin = stretching the ligaments there.
ex = exercises
HWB = Hot water bottle,
RR = bp = blood pressure (Riva Rocci), plus pulse. Used to be normal, plus sometimes white coat syndrome, went up since fibro, seems to have gone down again enough so I’ve not only stopped lercanidipine, but also candesartan and am checking RR regularly.
:new: “V” for loins = lie on back, legs up and let legs fall to sides;
:new: twist-stretching more for the loins
:white_check_mark: :x: :face_with_monocle: ➔ ⇄ ⇨➜ ➞ :arrow_right: ➲ ↔:⇰↔ →:arrow_upper_right: :arrow_lower_right:

↯ ↛ ↺ ↮ ⇝ ⇾ ⟹ ⭆ ⤮: