JayCS’s Fibro Blog

2021-06-04, Friday

FEELING Well % / Pain 0-7 :left_right_arrow: DOING
Sleep: 90%/1 :left_right_arrow: 9h10, up 4x (1h35) :white_check_mark: but see ‘development’ below for possible tweaks.
Activities: 90%/1 :left_right_arrow: 7h35 :bangbang: (live-work 2h20 sports 2h40 grandchild 2h15 shop 20’) :white_check_mark:
Treatment: 90%/1 :left_right_arrow: 1h (self) :white_check_mark: (fw 30’)
Effects of 400mg+350=750mg GABA, 50mg levodopa+25%benserazide, 2x290mg passiflora:
Great, considering 6:20 yesterday, and no breaks today between work, cycling, son/grandchild & table tennis. Now the weekend…

Feeling/Action-details

(Well in % / Pain incl. Gut 0-10) :left_right_arrow: (Sleep, Fibro-‘Work’, Work Digi & Live, Activity, Treatment)
Sleep 22:00-
1:15: 25’ p (6) RR 111/72 52 slight headache: drink!!
4:05p 35’ 6 slight headache: drink, 350mg GABA (cos of earliness yesterday morning)
5:05 dozing, hungry, drink, eat (bit was enough), nostril clot left.
-7:45p dozing, drink, music-idea 2h+7h45-25-35-5=09h45-65=8h40, 30’ break, napped 8:15-45 = +30’=9h10, up 4x (1h35). 30’ later still tired. But I’ll get up now…
Cycling 8+8+8+5+30+30+5 = 1h42, TT 5:1 dead easy.

Hit my head on an open window in the morning, coming up, quite some blood, but doesn’t hurt (I cried out, surprised, but the pain was about 3 for about 30 seconds). Tired. :blush:
Then missed the train cos the ticket machines didn’t work.
Then realized I’d forgotten my house key… :frowning: :blush::blush: But I found more than enough to do to do till my wife was back. (In emergency I c’d’ve got someone to let me in.) First in a church I’d never explored without some event, then shop, grandchild & TT.

Self-treatments: :white_check_mark: AuTr 20’, palpate 2’, belly 4’, back 6’, cold shower 10’, neck 1 4’, neck 2 1’, hunchback-hard-cushion 10’, :x: Timing, workout ', yoga ', loins ', marionette-hang ', breath-hold ', shaking dance ’
Fibro-work: Night/morning: 20’? +10=? = h30

Development:
:one: GABA vs. %/pain?
:two: Bed early/late vs. dozing? (But which is cause, which effect?) That was just as late last Friday, so might’ve been the reason.
:three: “6” early/late vs. dozing? (But which is cause, which effect?) No relationship: early the night b4 last Friday, and still dozing, despite similar structure.
:four: Still got to watch out if repercussions of the early getting up come up from tonight on. Tonight went like last Friday: bed late, but considerably more GABA (no Mg this time). Stomach similar to last week - Oh, the taut stomach was there last week too!?! (Was that why my acupressurist treated it this weak? I’ve forgotten!) No lentils, no ice cream, but ate late.

Abbreviations

’ = mins = minutes, ‘’ = secs = seconds, h is hours as time length, 3h is 3 hours long, 3:00 is 3am, 15:00 is 3pm. 18:10:40’ means 40 minutes, starting at 18:10, = 10 minutes past 6pm up to 10 to 7pm
AT = Autogenic Training, cold/FCS = Flash Cold Shower (20’’) , ex = exercises, HWB = Hot water bottle, breath-hold/WHM-B-H = Wim Hof Method Breath-Holding, slp = sleep.
Reasons for getting up w = awake, lbu: lower back unrest (‘RLS’?), p: pee, i: ideas. PsA = Psoriatic Arthritis-suspicion
fw = fibro-work
Pain 7 = crying (/out) point
TT = table tennis, 5:1 = score, usually showing how well I’m feeling: energy, relaxedness & alertness if the first number is much higher than the second.
Cold showering itself only takes 20’’+40’’=1’, but I now count it as 10’.
Neck 1 is stretching in the various directions, neck 2 is pressing my head against my hand “without moving”.
loins = loins/groin = stretching the ligaments there.

2021-06-05, Saturday

FEELING Well % / Pain 0-7 :left_right_arrow: DOING
Sleep: 90%/1 :left_right_arrow: 9h10, up 6x (1h)+20’=9h30 :white_check_mark:
Activities: 90%/1 :left_right_arrow: 3h (vid-conference 1h30, sports 1h30, shop 20’) :white_check_mark: unrelaxed, but still OK
Treatment: 90%/1 :left_right_arrow: 1h05 (self) :white_check_mark: (fw 5h50)
Effects of 300+100+150+200mg GABA, 50mg levodopa+25%benserazide, 2x290mg passiflora:
Circumnavigating Saturday (day after “6:20”) with more GABA than last Saturday… day’ll be good, pretty refreshed, no eye pressure - night was OK-ish, but where’s the waking up 2x gone at night? Wasn’t any special reasons to get up that much. Is this where I consider doubling the levodopa like my doc recommended? Hmm… dangerous thoughts :exploding_head: - usually means I’m getting impatient and will adjust again…
I seem to be getting the stomach burn & hungriness round 5:00 from the gamma-amino-butyric-acid, so I need to watch that more: together with drinking, or does that reduce the efficacy? Using gastricumeel (homoeopathy with lactose) instead of gastritol (herbs with alcohol) might be less additional irritation, it was enough tonight at least…
Or back to the 1x750mg capsule… But I shd praps wait till I’ve got the hungriness under control before adding l-dopa. OK, tonight.
Coming back to my question :one: above I had some days with not too much problems despite less GABA, May 19th to 24th and May 28th before I overdid it in the evening, but mostly using less GABA fitted to more pain during/due to activities. As soon as I went back to 750mg it was OK. Hungriness at 5:00 I had off and on all the time. So something else?

"Feeling/Action-details: Dream of having to look for some of the people I work with & thus getting lost myself; remembering the situation that spawned it, pondering how to talk with them

(Well in % / Pain incl. Gut 0-10) :left_right_arrow: (Sleep, Fibro-‘Work’, Work Digi & Live, Activity, Treatment)
Sleep
21:10 GABA 300mg
21:20-
22:04: 10’ cold shower
23:50 p, teeth, drink, 100mg GABA
2:40 (p) (6) slightly hungry → drink. 150mg GABA. Before vs. after drink (heartburn)? Here, after.
4:35: 15’ 250mg GABA. Dream of losing my way at work, in a complicated, intricate building, sometimes public building, sometimes house, where a lot is familiar, but a lot unfamiliar & new, finding my way back by using ways of earlier dreams - so it’s not the first time. Actually I got lost there after I’d found my way myself and most other people were there, but a part of the people I work with were - deliberately - not there, so I had to look for them. That’s also recurrent and symbolically realistic… Slightly yucky. (p)
5:05 AuTr. Remembered a situation last Monday that will have spawned the dream. For the people I work with completely normal. Thinking about how to talk with them about it - whether to just make the rules clearer (as they should be) by communicating how to communicate, whether relating it to my situation or not… I’ll do that, but decide the latter spontaneously. Usually I am very open about it.
Also forgotten if I’d taken the rest of the GABA-capsule, but I had (I can taste it too). Also hungry. Does seem to be the GABA. Praps I should try in in 1 or several capsules (which I’ve saved up) tonight. Trying drink plus Gastricumeel first → :white_check_mark: , if I wake up again then I’ll eat → wasn’t nec.
5:40: 20’ after dozing… 6
7:30 after sleeping well again.
2h40+7h30-10-5-5-15-5-20= 10h10-1h (6x)= 9h10, up 6x (1h)
Try once more, or was that it?.. A bit short, but I’m pretty awake & the energy is there - sleep later if needed? One more try…
7:55-8:15 OK, I’ll add that as nap (and AuTr): = 9h10, up 6x (1h)+20’=9h30
fw, then 1h30 lovely jitsi-talk with my sis. Then fw, music production, table tennis 1h10 5:3, energy needed, not that relaxed, but no rest needed after… shop 20’ cycling 6+6+5=17’

Self-treatments:
:white_check_mark: Timing, AuTr 15’, cold shower 2x(10’), hunchback-hard-cushion 10’, palpate 2’, belly 3’, back 7’, workout 8’, = 65’
:x: neck 1 ', neck 2 ', yoga ', loins ', marionette-hang ', breath-hold ', shaking dance ’

Fibro-work: Night: 15’. 7:35: 5’ 9:50: 2h30 13:30-?16:30 = 5h50

BTW I spoke with my co-worker the other, the one who does stretching 1h every morning…: he doesn’t … any more… he only manages it once a weekend. And doesn’t do it primarily for health reasons, mainly for some martial art…

BTW just read that valerian often causes GI problems.

(context: roseroot-side effects; Take in the mornings, as it wakes up. Careful with other antidepressants: serotonin-syndrome possible) German link: Nebenwirkungen von Rosenwurz: Die wichtigsten Fragen und Antworten | Sundt Nutrition

Music during self treatment: Martinu-Symphony exciting today instead of techno or rock...

Unbelievable, I usually like to wake up and exercise to techno, but also want to peruse my old CDs for forgotten treasures and I started with the 1st Martinu-Symphony on today, and felt so activated that it was hard not to exercise :bangbang: and write stuff like this in between… But it’s also showing me how full of energy I am, just did more than I usually manage even on pretty good days, 30 of everything, incl. push-ups - no problem, etc.
And I :heart_eyes_cat: his music, special, electrifying thru & thru…
https://youtu.be/-nMW27qynYs

Docs/Diagnoses: Yesterday morning after bumping my head I went into a 2’ cold shower, felt my head, looked at my hands for blood and saw: Blue and white hands… After the surprise I realized: Ah, that’s my Raynaud’s :exclamation: - don’t often see the effect on my hands as strongly as on my feet.

Abbreviations (corrected & explanation for AuTr = autogenic training)

’ = mins = minutes, ‘’ = secs = seconds, h is hours as time length, 3h is 3 hours long, 3:00 is 3am, 15:00 is 3pm. 18:10:40’ means 40 minutes, starting at 18:10, = 10 minutes past 6pm up to 10 to 7pm
AuTr = Autogenic Training (usually to actively get - back - to sleep, so counting it as sleep and AuTr…), cold/FCS = Flash Cold Shower (20’’) , ex = exercises, HWB = Hot water bottle, breath-hold/WHM-B-H = Wim Hof Method Breath-Holding, slp = sleep.
Reasons for getting up w = (a)wake, lbu: lower back unrest (‘RLS’?), p: pee, i: ideas. PsA = Psoriatic Arthritis-suspicion
fw = fibro-work
Pain 7 = crying (/out) point
TT = table tennis, 5:1 = score, usually showing how well I’m feeling: energy, relaxedness & alertness if the first number is much higher than the second.
Cold showering itself only takes 20’’+40’’=1’, but I now count it as 10’.
Neck 1 is stretching in the various directions, neck 2 is pressing my head against my hand “without moving”.
loins = loins/groin = stretching the ligaments there.
“6:20” getting up at 6:20 a.m. on Thursday mornings for work…

2021-06-06, Sunday - passive table tennis stress…

FEELING Well % / Pain 0-7 :left_right_arrow: DOING
Sleep: 90%/1 :left_right_arrow: 9h35, up 5x (1h20) (:white_check_mark:) Creativity kept me awake. (:x:)
Activities: 90-60%/1-4 :left_right_arrow: 1h10 (cycling 30’ :white_check_mark: + table tennis 2:2, 40’, :x: passive stress)
Treatment: 90%/1 :left_right_arrow: 1h (self) :white_check_mark: (fw = 4h25)
Effects of 750mg+ GABA, 50mg levodopa+25%benserazide, 2x290mg passiflora:
When I reduced GABA to 200+, I added levodopa at the same time, both doc-recommended (JayCS’s Fibro Blog - #350 by JayCS). What I’ve been doing now a few days is GABA 750 plus levodopa, which is new. Now I’m staying there but trying out taking one whole capsule at once before bed. Which is 2 things at once: Full amount, plus capsule-protected. So I will wait and won’t increase levodopa yet. And when I do so I may have to decrease GABA again and also watch for: hypertension, nausea, GI bleeding, disorientation, anxiety, libido, vivid dreams, insomnia, hallucinations, narcolepsy, acc. to wp.
9:00 OK, GI was OK, but isn’t great/normal (stomach upon waking), and I was awake 5x, far too often and long once again: Taking all the 750mg at once didn’t improve either. I’d hope l-dopa can improve at least one…
In the afternoon I’ve been getting more tired than I have been the last days, and I think it may be more due to taking the whole GABA early rather than my sleep having gone down to about 9h instead of around 10h before the night going on to Thursday… That’d be a reason to continue splitting the doses or even trying GABA at daytime, e.g. a small additional dose after midday…
Also just thought if it makes sense trying a 3rdx290mg passiflora at about 1:00.

I've discarded the suggestion of trying a fitbit watch to monitor sleep...:

The used price seems OK. I’m not sure how precise they are. It may help analyze a bit, but even 2 sleep lab nights didn’t really get me further, so why shd knowing how much of my sleep was light… So I’m not going to bother to find out how well they work. And they of course won’t hint any reasons or treatments. So I’m going to continue to keep my sleep diary/blog (of course), even tho sometimes I write too long at night… :upside_down_face:, and adjust my supps further.

Feeling/Action-details: Creativity/earworm kept me awake, passive table tennis stress caused pain, due to 2 club players playing fast & hard next to us

(Well in % / Pain incl. Gut 0-10) :left_right_arrow: (Sleep, Fibro-‘Work’, Work Digi & Live, Activity, Treatment)
IBSD problems in the evening - from what, too much carrots with apple at midday??
Sleep
750mg-capsule GABA at 21:40
22:05-
0:20p drink
2:05p: 20’ drink Gastricumeel as I feel a bit of some sort of acidity coming up. Earworm due to working on my new arrangement in the late afternoon, too late. fw: 10’
3:00: 25’ after dozing due esp. to earworm, and staying awake (fw) too long, plus hot flush due to room warming up again, seems to call for a cold shower… (slight calf cramp) Darn, started fw again, intrigued by fitbit watch…
4:15: 25’ 6 :white_check_mark:
7:15p restorative slp
-9:00 restorative slp
1h55+9h-5-20-25-25-5=10h55-1h20=9h35, up 5x (1h20).
Cycling 30’, plus 5+5, table tennis late, 2:2. Yes, I was a bit tired all afternoon. But it was the stress, cortisol that made pain came up fiercely after 2-3 club table tennis players came to the (outdoor) table next to ours whilst we were playing the third game. Their fast playing and talking directly next to us pushed my cortisol/adrenaline, so I played a really hard fast 3rd game, and trying to regulate it down cdnt play well at all in the 4th. This was worse than the 2 games the other day against 2 others, which were only to 11, not 21, so shorter, I won both and it was earlier in the day. I’ll shower cold when I’ve finished blogging, to get it back down.

Self-treatments:
:white_check_mark: cold shower 2x(10’), hunchback-hard-cushion 15’, AuTr 10’, palpate 2’, belly 4’, back 6’, neck 1 2’, loins 2’. = 61’
:x: Timing, workout ', neck 2 ', yoga ', marionette-hang ', breath-hold ', shaking dance ’

Fibro-work: 2:10:10’ 3:10:15’ 9:00:65’ 11:30:1h 12:50:10’ 14:55:20’ 17:10:?40’ 20:10: 45’ = 4h25

References: Fibromyalgia References: Symptoms, triggers, treatments (to be intertwined) (adding quite a few titbits everywhere) :new: :fireworks: idea: I’ll put my titbits in the (fairly new) post “updates”, so people who are only looking for new things can have a look at what I’m adding/filing. Only ordered as to causes / symptoms / treatments.

Abbreviations

’ = mins = minutes, ‘’ = secs = seconds, h is hours as time length, 3h is 3 hours long, 3:00 is 3am, 15:00 is 3pm. 18:10:40’ means 40 minutes, starting at 18:10, = 10 minutes past 6pm up to 10 to 7pm
AuTr = Autogenic Training (usually to actively get - back - to sleep, so counting it as sleep and AuTr…), cold/FCS = Flash Cold Shower (20’’) , ex = exercises, HWB = Hot water bottle, breath-hold/WHM-B-H = Wim Hof Method Breath-Holding, slp = sleep.
Reasons for getting up w = (a)wake, lbu: lower back unrest (‘RLS’?), p: pee, i: ideas. PsA = Psoriatic Arthritis-suspicion
fw = fibro-work
Pain 7 = crying (/out) point
TT = table tennis, 5:1 = score, usually showing how well I’m feeling: energy, relaxedness & alertness if the first number is much higher than the second.
Cold showering itself only takes 20’’+40’’=1’, but I now count it as 10’.
Neck 1 is stretching in the various directions, neck 2 is pressing my head against my hand “without moving”.
loins = loins/groin = stretching the ligaments there.

2021-06-07, Monday - good, despite so-so sleep - levodopa not helping; plus losing pda, bankcard and train ticket - but who cares… :wink:

FEELING Well % / Pain 0-7 :left_right_arrow: DOING
Sleep: 90%/1 :left_right_arrow: 10h15, up 7x (1h45) :x:
Activities: 90%/1 :left_right_arrow: 4h50 (live work 2h40, digi work 20’, sports 1h50) :white_check_mark:
Treatment: 90%/1 :left_right_arrow: 1h52 (self) :white_check_mark: (fw 40’)
Effects of 400+350mg GABA, :new: 100mg levodopa+25%benserazide, 2+2x290mg passiflora:
Darn, taken the complete 100mg, didn’t I want to go to 75mg first? I can quarter the tablets…
Decided on 400mg sublingually first, the rest later, but the taste of that amount was slightly acidic. Maybe I shdve used a capsule… - not sure if the capsules goes thru the stomach. But it didn’t help last night, at least not with the 750mg.
My skin is tingling/itching a little, but that cdve been the drying off after the cold shower… Only a tiny bit later.
GI was OK tonight, but the sleep breaks were much too many and l-dopa did not do anything, negative or positive, apart from praps a bad short dream sequence. So it wasn’t wrong to take the full amount. My eyes are “dead” upon waking, body awake, like always, praps a bit more. I spose I shdnt change anything yet. Sleep stages get longer they say, so normal I spose that it gets better when everyone else is waking up… Stages of Sleep - Sleep Foundation

Feeling/Action-details: losing important things 3x of late isn't directly brain fog...

(Well in % / Pain incl. Gut 0-10) :left_right_arrow: (Sleep, Fibro-‘Work’, Work Digi & Live, Activity, Treatment)
Sleep
20:50 100mg l-dopa etc., 21:05 400mg GABA without capsule
21:15-
22:30p10’ hmm, one sleep phase, as always. Crampy feeling at the back of my right calf. No GI etc. fw5’
+35’ break writing about A.I… :roll_eyes: A test for the l-dopa… :wink:
0:20: 30’ 6 after dozing, AuTr, self-hypnosis. / Next passiflora, next GABA.
1:30: After dozing - lbu despite the l-dopa - that’s the main reason I’ve wanting to try it. OK, so +2x290mg passiflora. The 2nd capsule got to my lips “by itself”… - chance… curling my legs up backwards…
2:25p sleeping more now. GABA rest in capsule. Curling up backwards
3:05p hard getting eyes open, but the rest of me is easily active. Won’t drink this time. Shd be better now…? Gum/tooth acting up a bit… Ah, there was quite a bit in there, forgot! Best put it back on the list… Curling up backwards…
3:50: 10’ lbu → back exercises 3’ & lower back yoga 3’. CFS? No, cold splashed it. 2’
About 5:00 a short horrible, unsettling dream of a naked female puppet-type woman being carried ?to help on a stretcher by 5 men, I was on a bus and wanted to help, but wasn’t nec. for them to use the bus. But managed to ‘block’ it. L-dopa?
7:25p
1h40…
-9:15 2h45+9h15-45-30-5-5-5-10-5=12h-1h45= 10h15, up 7x (1h45)
First I left my bankcard, pda and ticket on the train to work, then something to do cropped up I hadn’t reckoned with, strenuous, but fun and took my mind off losing stuff, then phoning around made me have to take one train later to get back… but I’m pretty OK…:

Was it fibro-fog? What do I do in future? One of the reason for losing it/them...

was a longer partly helpful conversation with the conductor about a new kind of train ticket which had distracted me. Similarly when I left one of my mobiles on the train a few weeks ago I’d discovered and used my mobile’s headset for the first time, which distracted me.
But were these distractions fibro fog? I’ve always occasionally lost things in this kind of situation. And I hadn’t lost much at all last year, despite using public transport fairly often. Now using the train again regularly means getting used to an old kind of habit again, double checking things. Also it’s not quite old, I have changed the way I use mobile and pda, putting more info on the mobile than the pda, so I’ve stopped taking the pda with me all the time. So I don’t always check my pockets if pda and mobile are in there getting up to go anywhere, which was my usual way of making sure I don’t lose them. So it’s new and I need to stabilize it somehow. Also silly that I hadn’t been synchronizing my pda with my (old) laptop of late.
I’ve blocked my bankcard, I hadn’t bought an expensive ticket - thankfully, I was actually thinking of doing so, and that was one of the topics of the conversation… and I’m sure I’ll get it all back. If I don’t get the pda back, only one area of my work has not quite updated properly, but I’ll manage to reconstruct it roughly enough fairly simply. The bankcard I can get replaced - no worry. No worry. I’m relaxed. Done everything right. Time for something nice to eat…

TT 1h10 4:2, but easy, cycling 8+8+8+8+4+4=40’ = 1h50 sports

Self-treatments:
:white_check_mark: Timing, AuTr 30’, hunchback-hard-cushion 30’, back 11’, yoga 5’, cold shower (10’), gums 1’, thumbnail 10’, palpate 2’, belly 3’, loins 1’, neck 1 4’, neck 2 2’, workout 3’, = 1h52
:x: marionette-hang ', breath-hold ', shaking dance '.

Fibro-work: 22:35:5’ 9:20:10’ 14:50:25’ = h40
(Writing about A.I. was “fun”, not fibro-work.)

Abbreviations & explanations; btw each entry starts with the night meds & sleep

Each entry starts with the night meds & sleep, which I then save, before going on to activities/treatments. So Fri-day starts with Thursday night, the night before Friday. Because most of the night is after 0:00 and because the night no longer is something to neglect, it’s vital.
’ = mins = minutes, ‘’ = secs = seconds, h is hours as time length, 3h is 3 hours long, 3:00 is 3am, 15:00 is 3pm. 18:10:40’ means 40 minutes, starting at 18:10, = 10 minutes past 6pm up to 10 to 7pm
AuTr = Autogenic Training (usually to actively get - back - to sleep, so counting it as sleep and AuTr…), cold/FCS = Flash Cold Shower (20-60’’) , ex = exercises, HWB = Hot water bottle, breath-hold/WHM-B-H = Wim Hof Method Breath-Holding, slp = sleep.
Reasons for getting up w = (a)wake, lbu: lower back unrest (‘RLS’?), p: pee, i: ideas. PsA = Psoriatic Arthritis-suspicion
fw = fibro-work
Pain 7 = crying (/out) point
TT = table tennis, 5:1 = score, usually showing how well I’m feeling: energy, relaxedness & alertness if the first number is much higher than the second.
Cold showering itself only takes 20’’+40’’=1’, but I now count it as 10’.
Neck 1 is stretching in the various directions, neck 2 is pressing my head against my hand “without moving”.
loins = loins/groin = stretching the ligaments there.

2021-06-08, Tuesday

FEELING Well % / Pain 0-7 :left_right_arrow: DOING
Sleep: 70%/1 :left_right_arrow: 8h25, up 5x (3h55) :x:
Activities: 90/85%/1 :left_right_arrow: 2h05 (work 10’, sports 1h45, shop 10’) :white_check_mark:
Treatment: 90%/1 :left_right_arrow: 2h55 (self 56’, acupressure 2h) :white_check_mark: (fw: 1h)
Effects of 400mg+350 GABA, 100mg levodopa+25%benserazide, 2x290mg passiflora:
Bad! Lower back unrest ‘LBU’ again. Twice in a row is worse than ever, it went into my feet too. That’s it. Levodopa is out. I can try again when I don’t have to work, but not now.

Checked in on Trudy Scott's GABA/anxiety-blog, very helpful...

https://www.everywomanover29.com/blog/gaba-physical-tension-stiff-tense-muscles-type-anxiety/#comment-32926
Hi Trudy, thank you! Sorry for not coming back sooner!
Yes, irritatingly I did purchase Verla Glutamin thinking it was l-glutamine… O.o - OTOH I didn’t yet know there is a difference. But I’d read somewhere about adding glutamine, and wanted glutamine.
Thanks for pointing to your book, didn’t realize you had a German version. Looking for it I also see a book with a VERY similar title and VERY similar look to the front cover despite a different publisher (EFKO, not unimedica) by “Adriana Lopez”… (Other books using that author-name from that publisher are about keto, sugar-free, low carb, smoothies…) I assume different marketing at first?
“Ängste Überwinden durch die richtige Ernährung: Wie Sie durch Anti-Stress-Nahrung Ihre Stimmung aufhellen um Gesund und ausgeglichen zu leben”. EAN 9781723897764.
So trying glutamine might work differently to glutamic acid, hmm…
I was certain the 8 first side effects came from the 750mg GABA. But you asking so specifically makes me think whether all or some of it was the glutamic acid too (or the passionflower).
In the meantime (since May 19th) I went down with the dose, inspired by your recommendations and ones from my sleep doc, with 200-300mg sublingually, adding only a bit more in my sleep breaks. He was thinking of me adjusting the dose how I needed it for sleep. Unfortunately the stiffness, pain, lack of energy etc. started returning. I then realized that it is helping more with the days than the nights, so I’ve gone back up to 750mg again, which thankfully immediately got my days back. Suggestion of my acupressurist is now to adjust the dose according to how much strain I’m having…
Unfortunately also, I’ve been getting “stomach burn” at night, increasingly, maybe worse since I’ve been opening the capsules. Any ideas for that? I’m not sure how much protection the capsules offer. I’ve been collecting them, so I’ll now try taking 2-3 smaller doses in those capsules as long as they last and order some if that helps.
Yes, I usually have a string of 1-4 focal seizures about once a month. Meds I was prescribed made that more frequent, first amitriptyline in the long run, and esp. tilidine - once and never again, thankfully. Haven’t had one since April 23rd which is good, so I think not just because of leaving the glutamic acid, but also the GABA.
At the moment I can’t manage to find how to fairly consistently repeat the good nights I had. My sleep doc asked me to try levodopa (suspicion of slight RLS), but that seems to be making my unrest worse. The stomach burning isn’t helping either. Hoping it’s better again once I’ve got those 2 sorted out. And I’ve run out of magnesium (malate!), maybe that was helping too. More passiflora didn’t help.
I’ll be back quicker this time… :slight_smile:

Effects of acupressure: Wow, today was really intense :bangbang: Loins… Very painful, but directly afterwards totally relaxing, much easier to put on shoes, get on my bike, walk up stairs, cycle, etc. Reasoning: My LBU seems according to the ear acupressure to be coming from the pelvic floor and similar muscles (& ligaments), maybe caused by the scar tissue.

Feeling/Action-details

(Well in % / Pain incl. Gut 0-10) :left_right_arrow: (Sleep, Fibro-‘Work’, Work Digi & Live, Activity, Treatment)
Sleep levodopa+ 20:45, GABA 21:00
21:45-
22:15: 30’ neighbour’s telly, LBU (despite levodopa), slight pain starting up in left foot… → CFS :shower: & 5xRR, shot up for a few minutes, but quickly down to 126/80, pulse 60 as usual.
1:45: 15’ - wow, waiting really paid off, I was wide awake first, but didn’t give in, just thought I’d make myself a nice time wih AuTr and didn’t even manage. That’s the CFS for ya. Well, for me! (pee, drink, GABA capsule with 350mg rest). Right arm and right calf playing antics a bit, summink for my acupressurist praps. RR 3x 10’ 128/77 56: Pressure too high for night time, pulse low.
3:20p limbs OK, stomach burn starting up → soy drink & Gastricumeel.
3:50 1h10 LBU → curling up backwards, phoenix position; stomach burn → soy drink & now Gastritol. Shaking dance: left leg then hurts from hip downwards. 6. ate.
5:20: 1h55 ideas:

For someone who is finding it hard to make a big decision

Your strong feelings that keep you there are probably more important to have clear than factual arguments & comparisons for changing. Only this allows you to jump up from the 3-metre board & dive smoothly into the cool water. Otherwise you might hurt yourself unnecessarily by jumping prematurely. This would act as confirmation and prevent you from jumping again. Fear seemed to be the strongest feeling right now. E.g. to look like a failure. Or letting others down. It was difficult to objectify letting others down - maybe it is something else after all? Being a failure or proving oneself depends on the challenge: What is the challenge really and who is setting it? And you are, so to speak, between two challenges: how much of it will remain when you have made your decision? How can you minimise this rest? Are there also other feelings?

2h15+10h-30-15-5-1h10-1h55=12h15-3h55=8h25, up 5x (3h55)
TT 3:5, but easy, extremely relaxed. Probably only due to the acupressure directly before ‘liquefacting’ my legs, but not my trunk or arms.

BTW does watching geological liquefaction make your mind explode like it does mine? O.o!

Crazy enough when water just rises out of the ground due to earth movements, but when soil liquefaction makes whole areas swim away it’s mind blowing (and watch out: these vids makes me nauseous and my head swirl and can even set off a focal seizure)
https://youtu.be/J_egBKj1W08 3’ with explanations from National Geographic
https://youtu.be/3NSXmTfASM0 1’ from sattelite

Cycling 12’+12’+6’+3’+3’=36’
Starting to get tired (eyes, slightly feverish) from 18:00 on.

Self-treatments: (BTW: These are only things that I’m spotlighting & “rewarding” myself for at the mo by counting them; much of what I do at night is self-treatment to get back to sleep or alleviate (1-2h/d), certain regular movements at daytime, like twist-stretching (30’), writing this blog is self-treatment (30’-60’/d), and the further fibro-work indirectly)
:white_check_mark: Timing, hunchback-hard-cushion 5’, AuTr 5’, cold shower (10’), RR 13’, shaking dance 2’, palpate 2’, back 5’, neck 1 5’, = 56’
:x: belly ', workout ', neck 2 ', yoga ', loins ', marionette-hang ', breath-hold ',

Fibro-work: 21:35:5’ 22:30:5’ 4:00: 15’ 17:10: 20’ 19:00: 15’ = 1h

Blog summary: ∑ JayCS's Fibro Blog - summary - #2 by JayCS
References: Fibromyalgia References: Symptoms, triggers, treatments (to be intertwined)

Abbreviations & explanations; each entry starts with the night meds & sleep

Each entry starts with the night meds & sleep, which I then save, before going on to activities/treatments. So Fri-day starts with Thursday night, the night before Friday. Because most of the night is after 0:00 and because the night no longer is something to neglect, it’s vital.
’ = mins = minutes, ‘’ = secs = seconds, h is hours as time length, 3h is 3 hours long, 3:00 is 3am, 15:00 is 3pm. 18:10:40’ means 40 minutes, starting at 18:10, = 10 minutes past 6pm up to 10 to 7pm
The self-treatments listed are only things that I’m spotlighting & rewarding at the mo by counting them; much of what I do at night is self-treatment to get back to sleep or alleviate (1-2h/d), certain regular movements at daytime, like twist-stretching (30’), writing this blog is self-treatment (30’-60’/d), and the further fibro-work indirectly.
AuTr = Autogenic Training (usually to actively get - back - to sleep, so counting it as sleep and AuTr…), cold/FCS = Flash Cold Shower (20-60’’) , ex = exercises, HWB = Hot water bottle, breath-hold/WHM-B-H = Wim Hof Method Breath-Holding, slp = sleep.
Reasons for getting up w = (a)wake, lbu/LBU: lower back unrest (‘RLS’?), p: pee, i: ideas. PsA = Psoriatic Arthritis-suspicion
fw = fibro-work
Pain 7 = crying (/out) point
TT = table tennis, 5:1 = score, usually showing how well I’m feeling: energy, relaxedness & alertness if the first number is much higher than the second.
Cold showering itself only takes 20’’+40’’=1’, but I now count it as 10’.
Neck 1 is stretching in the various directions, neck 2 is pressing my head against my hand “without moving”.
loins = loins/groin = stretching the ligaments there.

2021-06-09, Wednesday

:new: re-arranged: I hope easier & slicker now

Sleep: 10h10, up 4x (35’) :left_right_arrow: Feeling 90% well, pain(s) 1 of 7 :white_check_mark: - better without l-dopa!

Sleep details

21:00 400mg capsule GABA
21:40-
23:35p drink, left elbow :arrow_forward: Traumeel
0:35: 20’ unrest (but less than with l-dopa), left nostril clotted, :arrow_forward: FCS. Stomach OK. Wind as ever of late (so not the l-dopa, GABA or passiflora?)
4:00p GABA 350mg in capsule. Wind & suddenly very loose stool directly after, dunno why, stomach still OK.
7:35p deep restful sleep :bangbang:
-8:25
2h20+8h25-5-20-5-5=10h45-35 = 10h10, up 4x (35’)

Activities: 7h10 :bangbang: :left_right_arrow: Feeling 80% well, pains: 1 of 7 :white_check_mark:)

Activity-details: (live work ?3h30, cycling 1h10, grandchild 2h30 (80% was before the activities tho)

(Well in % / Pain incl. Gut 0-10) :left_right_arrow: (Sleep, Fibro-‘Work’, Work Digi & Live, Activity, Treatment)
Cycling (expected) 8+8+8+20+25=1h09?

Treatments: 57’ (self)

(Why % for the treatments no longer makes sense at the mo)

:new: Detailing more now makes the “Feeling/Doing” bit unnec. The acupressure at the moment is really painful, as my body has got used to it, so she can toughen up, which usually leads to good effects which I however can’t really express in % or say how long it helps, cos it’s really a mid-term not short-term thing now. Self treatments are usually preventative or always have the same positive effect (e.g. cold showering improves Ache and sleep) - at least are used for that - and I’ll continue to use “:arrow_forward:” to show what I’m doing to alleviate something and mark it off in the details “:white_check_mark:/:x:” whether it works well enough for a time or doesn’t’, e.g. Ache :arrow_forward: cold fast shower “:white_check_mark:

Effects of 400+350mg GABA (!both in capsules), 2x290mg passiflora (no more L-dopa)...

Altogether night & day was good enough. Quite a bit of stiffness and pains at night, like the last 2 days part of the time, the reason for decreasing yesterday’s “activities” % from 95 back to 90 & partly 85. Nothing like with less GABA tho, because energy etc. was there most of the time. Not brill at daytime either, sort of OK tho, depending on what I’m doing. Of course the better night cdve come from the acupressure, but I doubt it, tbh.
All in capsules: much better stomach, only short burn upon waking the last time, but soy drink stopped it.

Physio-type self-treatments: 57', fibro-work: 1h25

:white_check_mark: Timing, hunchback-hard-cushion 10’, cold shower (10’), neck 1 5’, palpate 2’, belly 3’, back 8’, workout 9’, neck 2 3’, loins 3’, yoga 2’, shaking dance 2’ = 57’
:x: AuTr ', marionette-hang ', breath-hold ’

Fibro-work: Night: 10’ 9:10: 5’ 12:05: 20’ 19:55: 50’ = 1h25…

Ate bits of tomato at work by mistake: nothing’s happened yet, but :arrow_forward: Witchhazel cream on rectum before the tomato acid gets there shd do the trick once again. :arrow_forward: Pre-ordered salad without tomatoes as from next Wednesday. My tomato-pain in the … neck is such a pain in the … neck… :face_with_raised_eyebrow: :grimacing: :roll_eyes:
Stopping L-dopa means either :arrow_forward: checking my blood pressure all day or :arrow_forward: candesartan again…
Forgetting things on the train :arrow_forward: alarms on, 5’ before the expected arrival time…

Development:

  • Last week I did 12h of my digital fibro-work (“fw”), the week before 18h. Less than I thought, tho. And the self-treatment I focus on has usually been 1h/wk.
  • My exhaustibility feels like an old rechargeable battery which unloads itself quicker after being fully there for a short time.
  • A colleague just told me her theory that we all have a certain amount of life energy, which can become depleted, but also recharged again (myelin in the DNA can be re-lengthened)…
  • A fellow-commuter I met again after ages today told me she knew someone who had fibro treated by an endocrinologist who used something which is normally used for… hmm… she cdnt remember… :roll_eyes: - but she’ll mail it to me… I hope she finds my address or I meet her again soonish.
Abbreviations & explanations: a bit new and lots rearranged from 2021-06-10 on

Each entry starts with the night meds & sleep, which I then save, before going on to activities/treatments. So Fri-day starts with Thursday night, the night before Friday. Because most of the night is after 0:00 and because the night no longer is something to neglect, it’s vital.
’ = mins = minutes, ‘’ = secs = seconds, h is hours as time length, 3h is 3 hours long, 3:00 is 3am, 15:00 is 3pm. 18:10:40’ means 40 minutes, starting at 18:10, = 10 minutes past 6pm up to 10 to 7pm
The self-treatments listed are only things that I’m spotlighting & rewarding myself for at the mo by counting them; much of what I do at night is self-treatment to get back to sleep or alleviate (1-2h/d), certain regular movements at daytime, like twist-stretching (30’), writing this blog is self-treatment (30’-60’/d), and the further fibro-work is an indirect form.
Self treatments are usually preventative or always have the same positive effect (e.g. cold showering improves Ache and sleep) - at least I do them for that - and I use “:arrow_forward:” to show what I’m doing to alleviate something and mark it off in the details “:white_check_mark:/:x:” whether it works well enough for a time or doesn’t’, e.g. Ache :arrow_forward: cold fast shower “:white_check_mark:
AuTr = Autogenic Training (usually to actively get - back - to sleep, so counting it as sleep and AuTr…), cold/FCS = Flash Cold Shower (20-60’’) , ex = exercises, HWB = Hot water bottle, breath-hold/WHM-B-H = Wim Hof Method Breath-Holding, slp = sleep.
Reasons for getting up w = (a)wake, lbu: lower back unrest (‘RLS’?), p: pee, i: ideas. PsA = Psoriatic Arthritis-suspicion
fw = fibro-work, meaning reading and writing this blog, the reference base, on 4 fibro-forums and researching stuff on the web.
Pain 7 = crying (/out) point
TT = table tennis, 5:1 = score, usually showing how well I’m feeling: energy, relaxedness & alertness if the first number is much higher than the second.
Cold showering itself only takes 20’’+40’’=1’, but I now count it as 10’.
Neck 1 is stretching in the various directions, neck 2 is pressing my head against my hand “without moving”.
loins = loins/groin = stretching the ligaments there.

2021-06-10, Thursday

Sleep: 7h40, up 4x (55’)+1h55=9h35 :left_right_arrow: Feeling 90% well, pain 1 of 7 :white_check_mark: but getting up at 6: 70%/3.
To alleviate getting up at 6 I got back home quick and slept another 2h :bangbang: at 9:30…

Sleep details

400mg capsule GABA 21:15
21:45- (my wife didn’t realize I have to get up at 6)
23:20: 15’ LBU :arrow_forward: shake-dance, up a bit/fw. Gums 1 & nail 1. Yesterday gums 2 & nails 5!
1:25: 10’ 350mg capsule GABA. LBU :arrow_forward: shake dance (only)
3:15: 10’ just to move, shake dance, pee, drink. OK, good, no GI. My neck better for a mo, usually bad / discomfort :arrow_forward: neck-exercises tonight and every night.
3:45: 20’ darn, thought of getting up soon, need to get that down quick & intensely - 6 → dozing a bit, but OK. If that hadn’t worked
-6:20
Sum: 2h15+6h20-15-10-10-20 = 7h40, up 4x (55’)
9:30-11:25: +1h55 sleeping again felt 90%/1, good deep sleep, hard waking up after, does have something of narcolepsy, doesn’t it :interrobang:
= 7h40, up 4x (55’)+1h55=9h35

Activities: 3h50, but sleep & GI were the problems
Feeling 70% well, pain 3 of 7 :x: :left_right_arrow: after sleep, after work, after nap,
but 90%/1 :white_check_mark: after acupressure, including during and after table tennis,
except 70%/3 :x: IBSD 12h-20h…:

Activity-details: live work 1h20, cycling 1h10, TT 1h20 5:3 (easy/sun)...

Cycling (expected) 8+8+8+8+13+13+5+5=68’…
Live work 1h20: So tired that I went straight home after, no hanging around if there is anything else to do, cycled quickly to the train - despite the heat, powered off my cortisol/adrenaline, then nice’n’tired as soon as I got off the train (sweating & circulation normalized).
TT at 16:40 1h20 5:3 - easy, relaxed.

Treatments: 2h53… (self 53’…, cryo+acupressure 2h)

Effects of 400+350mg GABA (!both in capsules), 2x290mg passiflora (no more L-dopa): positive

A good night, albeit too short, no GI problems… :face_with_raised_eyebrow:

Effects of acupressure: Feeling 90% well, pain 1 of 7 after cryotherapy & acupressure, again loins-scar - not that painful, and again very flexible after: positive

Right hand side, as the ear acupressure points at the moment are most painful on the right as is the belly scar tissue (10cm due to a Meckel’s diverticulum (2% of the population) mimicking appendicitis when I was 11). My acupressurist wants to try GABA too now.

Physio-type self-treatments: 53' (new: "neck 1+"); fibro-work 1h20

*:white_check_mark: Timing, AuTr 5’, hunchback-hard-cushion 5’, cold shower (10’), neck 1 3’, :new: neck 1+ 3’ (stretching far further diagonally downwards than before acupressure), shaking dance 3’, palpate 1’, belly 2’, back 5’, neck 2 ‘, gums 2x1’, thumbnail 5x30’’, RR 5x2’ = =53’…
:x: workout ', yoga ', loins ', marionette-hang ', breath-hold ', *
Fibro-work: Night: 15’ 10’ 16:10: 25’ 18:25: 40’= 1h20…

Witch hazel cream I hope in time :white_check_mark: :-), but…

12:00-19:00 GI: IBSD, finally using Gastritol and psyllium
  • starting with belly pressure, wind, then fairly normal, but sudden bowel movement… and now I’ve got the feeling I may need more witch hazel cream, which’d mean this might be yesterday’s tomatoes. I wdnt know what else…
RR: OK

home 16:35 131/87 64, 129/84 67, in table tennis break 17:19: 121/79 64, 124/74 64, after readjusting suddenly 139/85 64 - what was right?..

Development:

  • Last week “fw” = my digital fibro-work fw took 12h, the week before 18h. Less than I thought, tho. And the self-treatment I focus on is usually 1h/wk.
  • When people of late said “stiffness is old age” (colleague) or “other people sit down to tie their shoes” (wife) I answer: yeah, maybe, but how come I have no problems since GABA re. after acupressure. It may be true for some, but it doesn’t fit to me, as my body is very fit apart from the fibro, was so before it started. If I were 10 years older it’d be harder to tell apart. But it is different. But as it is, I’m faring well by assuming it is something I can do something about. The continuing GABA success is of course extremely surprising… and thus sparks hopes for further ‘miracles’. And GABA isn’t the only ‘immediate fix’, acupressure has managed quite a bit too. And the rest is slogging along, day after day after day, like a slow steam engine :steam_locomotive:, sometimes gathering momentum :fast_forward:, sometimes uphill :up: :hiking_boot: :arrow_upper_right:, sometimes wrong direction :leftwards_arrow_with_hook: :back: :end: :no_entry: :arrows_counterclockwise:, but altogether mainly progress :arrow_right: :top: :signal_strength: :eight_spoked_asterisk: and sometimes really fast :bullettrain_front: or immediate :woman_mage:
Abbreviations & explanations: a bit new and lots rearranged from 2021-06-10 on

Entries start with night meds & sleep, before activities & treatments, because the “night before” is vital. So Fri-day starts with Thursday night, the night before Friday.

Pain "7" = crying (/out) point; my 1 is others 2-3, and due to pacing/treatments

My wife says my 7 is other people’s 12. 1 is probably 2-3. Due to pacing, keeping work down to 25% (12h/wk) and all my treatments (acupressure, GABA) and physio self-treatments I manage to keep getting my pains & Ache down quickly. 3 usually means the Ache, not pains; these I address individually, often automatically and on the fly now, e.g. twist-stretching everything or something specific after getting up.

TIME DATA, e.g. ' = mins, h = hours, 18:00 = 6pm, date YYYY-MM-DD

’ = mins = minutes, ‘’ = secs = seconds, h is hours as time length, 3h is 3 hours long, 3:00 is 3am, 15:00 is 3pm. 18:10:40’ means 40 minutes, starting at 18:10, = 10 minutes past 6pm up to 10 to 7pm. The date is the logical digital standard: YYYY-MM-DD.

SLEEP: slp, w, lbu/LBU, RLS, p, i

slp = sleep; reasons for getting up: w = (a)wake, lbu/LBU: lower back unrest (‘RLS’?), p: pee, i: ideas.

ACTIVITIES: TT, e.g. "5:1"

TT = table tennis, 5:1 = score, usually showing how well I’m feeling: energy, relaxedness & alertness if the first number is much higher than the second.

SELF-TREATMENTS (about everything else...)

The self-treatments listed are only things that I’m spotlighting & rewarding myself for at the mo by counting them; much of what I do at night is self-treatment to get back to sleep or alleviate (1-2h/d), certain regular movements at daytime, like twist-stretching (30’), writing this blog is self-treatment (30’-60’/d), and the further fibro-work is an indirect form.
Self treatments are usually preventative or always have the same positive effect (e.g. cold showering improves Ache and sleep) - at least I do them for that - and I use “:arrow_forward:” to show what I’m doing to alleviate something and mark it off in the details “:white_check_mark:/:x:” whether it works well enough for a time or doesn’t’, e.g. Ache :arrow_forward: cold fast shower “:white_check_mark:
fw = fibro-work, meaning reading and writing this blog, the reference base, on 4 fibro-forums and researching fibro-stuff on the web.
AuTr = Autogenic Training (usually to actively get - back - to sleep, so counting it as sleep and AuTr…),
cold/FCS = Flash Cold Shower (20’’-60’’) , I count it as 10’ tho.
breath-hold/WHM-B-H = Wim Hof Method Breath-Holding,
Neck 1 is stretching top right to bottom left, vice versa & sky/ground, neck “1+” is stretching far further diagonally downwards, neck 2 is pressing my head against my hand “without moving”, left right and front.
loins = loins/groin = stretching the ligaments there.
ex = exercises
HWB = Hot water bottle,
RR = bp = blood pressure (Riva Rocci), plus pulse. Used to be normal, plus sometimes white coat syndrome, went up since fibro, seems to have gone down again, but I’m still sort of on meds, candesartan 16mg, instead of 8mg plus lercanidipine, cos I saw that c. has less side effects.

Diagnoses: PsA = Psoriatic Arthritis-suspicion, not relevant at the mo)

I too have an issue with tomatoes,… …but the pain has nothing to do with the neck :smile: :smile: :smile: :smile: :roll_eyes:

1 Like

:grinning: the neck or the “… neck”? :smirk_cat: I bet both. “Normal” for the hypersensitive I’d think are acid problems above or in the stomach…

2021-06-11, Friday

Sleep: 8h55, up 5x (2h15) :left_right_arrow: Feeling 60% well (messed up sleep/dozing; subjectively 90%), pain 1 of 7 (:white_check_mark:)

Sleep details: a lot of dozing

19:00 tired
20:00 passiflora (& atorvastatin). Just realized that there was also a lot of maize in the salad yesterday and I have no idea what that does to me at the mo…
21:05 300mg capsule GABA. Still able to put my night socks on standing, due to the acupressure :white_check_mark:
21:15- bed; dozing, so
21:55 10’ cold shower (no GI, but witch hazel all the same; & thumb), pee, drink,
23:45 20’ still feels like dozing, but somehow also deep sleeping, never managing more than a minute of AutTr, pee, drink, + GABA 450mg, RR 152/91 61, 133/88 58, before and 130/80 59 after peeing… too high for night… but praps moving around a bit at night does that?
0:30: 1h still dozing, but all OK, maybe 6?
2:20: 30’ still dozing, still wind 4x/h, stomach burn coming up, so Gatricumeel and soy drink…
dry mouth :arrow_forward: dry mouth gel :white_check_mark:
6:20p dry mouth :arrow_forward: drink RR 125/78 52 127/80 56 (My wife said afterwards I looked really bad/dead tired - deathly pale grey-yellow.)
7:40p 15’… last remainders of the IBSD and my rectum is hinting that it’s still Wednesday’s tomatoes, whilst the witch hazel is taking the most part of the barb.
-8:25
2h45+8h25-(10-20-1h-30-15=)2h15 11h10-2h15=8h55 5x up (2h15)…
Sum: = 10h10, up x (’)
Has the night-before-Friday, i.e. after-Thursday-6am always been rough?
Am I gonna manage to make the weekend better, like last week?
Are the nights after Thursday worse than those before? (Not just the days.) Analysis below

Activities: 4h45
Feeling 90% well, pain 1 of 7 :white_check_mark: All went well, despite looking dead at first.

Activity-details: live work 2h50, cycling 42', TT 7:(1)!! 1h10 - effortless!! (Why?)

Live work: 10:30-13:20 2h50
Cycling (expected) 8+8+8+8+5+5=0h42
TT 7:(1) dead easy, totally relaxed. 1h10

Treatment: 1h20 (self) (fw 4h30)

Effects of !300+!450mg GABA (!both in capsules), 2x290mg passiflora (no more L-dopa)...

GABA: I’m not that pleased with the night, maybe a higher dose’d help, at least at first (400+350), or go up to 900. Or is that only helping at daytime?
Passiflora: Try more? Since that is more for sleep than GABA is.
L-dopa: Also unsure about leaving it completely, as it was quite OK when I started, so going back to 50mg might be OK.
My blood pressure was too high tonight…

Effects of acupressure on my loins and generally is lasting ... all day! :-)

I could still put on my shoes standing with no problems all day
(Just for the record: acupressure itself is about 1h30 but what with cryotherapy, breaks, resting and talking afterwards it’s usually about 2h. But that’s her time as well as mine… again something she’s not charging for…)

Physio-type self-treatments: 1h20, fibro-work 4h30

*:white_check_mark: Timing, cold shower (10’), gums 3x, thumbnail 7x, RR 8?x2’, AuTr 10’, hunchback-hard-cushion 20’, neck 1+ 6’, palpate 2’, belly 2’, back 6’, neck 2 2’, shaking dance 3’, = 80’…
:x: workout ', yoga ', loins ', marionette-hang ', breath-hold ', *
Fibro-work: Night: 30’ 7:45: 10’ 8:25: 1h 14:08: 1h05 15:50: 1h05 18:30: 40’ = 4h30

Did the IBSD come from the maize/corn? Doubt it. I'll watch out if there's a next time.

Check what maize/corn can do with the gut… e.g. IBSD… and also cardiovascular, as high in sugar? But when my wife buys ready packed convenience salad, there is often also maize in there, can’t recall problems there. I do think I shd keep it down cos of the sugar tho. BTW wind several times an hour all night - that’s not the GABA, altho that praps causes a little.

RR high at night

23:45: 152/91 61, 133/88 58, before and 130/80 59

Development:
Managing all this fibro-work/self-treatment as well as working again is like when I was working: Only caring about the spinning plates that are about to fall and being content that the rest are spinning, even if it doesn’t nec look like it. I remembered this mental hack of mine when my wife reminded me yesterday that I am not just “working” at work. … When a full flare has taken over I of course have to do the opposite: Start with one single plate again and again… (Maybe another one than I thought.) This is my fave funny plate spinning video to date…

Sleep analysis: Getting up early mucks up the following night(s), as does L-dopa 100mg.

2021-05-17 Mon - 9h20, up 5x (35’)+25’=9h55 GABA down
2021-05-18 Tue - 9h20, up 4x (55’)+1h45=11h05
2021-05-19 Wed - 8h10, up 3x (25’) + 35= 8h45
:one: 2021-05-20 Thur - 8h40, up 4x (35’)+30’=9h10 (First time up at 6:20 → problem sleeping thru.)
2021-05-21 Fri - 8h10, up 4x (2h40) (sleep late, waking early; 1st levodopa 50)
2021-05-22 Sat - 8h30, up 2x (10’)
2021-05-23 Sun - 9h20, up 6x (30’)
2021-05-24 Mon - 9h50, up 4(-6)x (1h10) despite gum pain
2021-05-25 Tue - 8h50, up 4x (25’)
2021-05-26 Wed - 9h20, up 3x (1h10)+1h20=10h40
:two: 2021-05-27 Thur - 8h10, up 4x (1h)+40’ = 8h50 (up at 6:20, together with overexertion: much longer sleep.)
2021-05-28 Fri - 9h, up 4x (1h05)
2021-05-29 Sat - 10h30, up 3x (20’) (overexertion) (still little GABA) :arrow_forward: shdve been more
2021-05-30 Sun - 10h15h, up 3x (35’) (late & dozing a lot)
2021-05-31 Mon - 10h07, up 3(-4)x 33’
2021-06-01 Tue - 9h35, up 3x (40’) (slow day, increasingly - foggy)
2021-06-02 Wed - 10h50, up 4x (20’) (back up to 900mg GABA - great day)
:three: 2021-06-03 Thurs - 8h50, up 5x (30’)+55’=9h45 (up at 6:20)
2021-06-04 Fri - 9h10, up 4x (1h35)
2021-06-05 Sat - 9h10, up 6x (1h)+20’=9h30
2021-06-06 Sun - 9h35, up 5x (1h20) (Creativity kept me awake)
2021-06-07 Mon - 10h15, up 7x (1h45), levodopa up 100mg less sleep, more LBU
2021-06-08 Tue - 8h25, up 5x (3h55) levodopa 100 → problem sleeping thru.
2021-06-09 Wed - 10h10, up 4x (35’) levodopa 0mg
:four: 2021-06-10 Thurs - 7h40, up 4x (55’)+1h55=9h35 (up at 6:20 → problem sleeping thru, despite morning nap.)
2021-06-11 Fri - 8h55, up 5x (2h15)
Getting up at 6:20 :one: & :four: :soon: direct sleep problems the night after (3-4h), or
:two: coupled with overexertion much longer sleep, not up much, but very unrestorative, or
:three: medium sleep problems (1h+, up 4-7x) 3 nights after.
The latter made me decide to try :arrow_forward: levodopa, which backfired, so the sleep problems got worse (4h) :x:, despite Thursday coming up.
It was :one: that made me start levodopa on the minimal dose, with no effect.
Trying to carry on sleeping (2h) after work didn’t work in as much as the night after went wrong again.
:x: I can’t see I shd try l-dopa again at the mo.
:arrow_forward: I need to keep the GABA up, praps even more, esp. as pee pain is cropping up in the evenings before the next dose.
:arrow_forward: What I cd tweak next is trying more passiflora a 2nd, longer, time, or adding Mg again.

Conclusions:
:arrow_forward: More passiflora for longer.
:arrow_forward: GABA once in the daytime?
:arrow_forward: Earlier to bed, especially Tuesdays & Wednesdays & thus :arrow_forward: eating earlier.

Abbreviations & explanations: a bit new and lots rearranged from 2021-06-10 on

Entries start with night meds & sleep, before activities & treatments, because the “night before” is vital. So Fri-day starts with Thursday night, the night before Friday.

Pain "7" = crying (/out) point; my 1 is others 2-3, and due to pacing/treatments

My wife says my 7 is other people’s 12. 1 is probably 2-3. Due to pacing, keeping work down to 25% (12h/wk) and all my treatments (acupressure, GABA) and physio self-treatments I manage to keep getting my pains & Ache down quickly. 3 usually means the Ache, not pains; these I address individually, often automatically and on the fly now, e.g. twist-stretching everything or something specific after getting up.

TIME DATA, e.g. ' = mins, h = hours, 18:10:40', date YYYY-MM-DD

’ = mins = minutes, ‘’ = secs = seconds, h is hours as time length, 3h is 3 hours long, 3:00 is 3am, 15:00 is 3pm. 18:10:40’ means 40 minutes, starting at 18:10, = 10 minutes past 6pm up to 10 to 7pm. The date is the logical digital standard: YYYY-MM-DD.

SLEEP: slp, w, lbu/LBU, RLS, p, i

slp = sleep; reasons for getting up: w = (a)wake, lbu/LBU: lower back unrest (‘RLS’?), p: pee, i: ideas.

ACTIVITIES: TT, e.g. "5:1"

TT = table tennis, 5:1 = score, usually showing how well I’m feeling: energy, relaxedness & alertness if the first number is much higher than the second.

SELF-TREATMENTS (about everything else...)

The self-treatments listed are only things that I’m spotlighting & rewarding myself for at the mo by counting them; much of what I do at night is self-treatment to get back to sleep or alleviate (1-2h/d), certain regular movements at daytime, like twist-stretching (30’), writing this blog is self-treatment (30’-60’/d), and the further fibro-work is an indirect form.
Self treatments are usually preventative or always have the same positive effect (e.g. cold showering improves Ache and sleep) - at least I do them for that - and I use “:arrow_forward:” to show what I’m doing to alleviate something and mark it off in the details “:white_check_mark:/:x:” whether it works well enough for a time or doesn’t’, e.g. Ache :arrow_forward: cold fast shower “:white_check_mark:
fw = fibro-work, meaning reading and writing this blog, the reference base, on 4 fibro-forums and researching fibro-stuff on the web.
AuTr = Autogenic Training (usually to actively get - back - to sleep, so counting it as sleep and AuTr…),
cold/FCS = Flash Cold Shower (20’’-60’’) , I count it as 10’ tho.
breath-hold/WHM-B-H = Wim Hof Method Breath-Holding,
Neck 1 is stretching top right to bottom left, vice versa & sky/ground, neck “1+” is stretching far further diagonally downwards, neck 2 is pressing my head against my hand “without moving”, left right and front.
loins = loins/groin = stretching the ligaments there.
ex = exercises
HWB = Hot water bottle,
RR = bp = blood pressure (Riva Rocci), plus pulse. Used to be normal, plus sometimes white coat syndrome, went up since fibro, seems to have gone down again, but I’m still sort of on meds, candesartan 16mg, instead of 8mg plus lercanidipine, cos I saw that c. has less side effects.

2021-06-12, Saturday - I can drink lots of still water!!

Sleep: 9h20, up 4x (3h35) :left_right_arrow: Feeling 90% well, pain 1 of 7 :white_check_mark: but hyperactive

Sleep details: freedom/creativity probably prolonging breaks

20:15 passionflower 900mg
21:15 GABA 400mg
21:20-
23:45 10’ :white_check_mark: deep, long. fw 10’
1:05 1h30 fw 45’ GABA 350mg, passionflower another 600mg. Plus drinking a lot. 6.
2:55: 1h50 creative ideas (cf. development: Is it just freedom/self-discipline messing up sleep?).
Stomach burning: soy drink was OK. Dead tired, but highly strung, so cold shower is the only way out. Eat.
8:45! About time…
-10:15 (altho only dozing, ideas and pulse pumping)
Sum: 2h40+10h15-(10-1h30-1h50-5=)3h35=12h55-3h35 =9h20, up 4x (3h35)

Activities: 1h30 :left_right_arrow:

Feeling 80/70%% well, pain 1/3 of 7 :white_check_mark:(:x: during & after being in the wind)

Activity-details: cycling 1h10, shop 20'

Cycling 30+30+5+5=1h10, stopping at a restaurant for 1.5h, the wind killing me, plus the sun making me sweat and cool out more tho. On the way back I wore a mask just to keep the wind out of my face, and rainlegs.
0 TT

Treatment: 47’ (self), (fw 5h10)

Effects of 400+350mg GABA (!both in capsules), 3!!x290mg passiflora: increase GABA?

3x passiflora = 1g. See below. Didn’t help. Increase GABA instead?
Just been wondering if my jaw tension hasn’t improved from the GABA.
The water tolerance i.e. not having to pee is due to GABA, the test of drinking 0.75l of still water today succeeded perfectly.

Effects of Thursday's acupressure: loins still great (but still sore to touch)

Loins not perfect at night (23:55). But still great in the daytime till the evening, ongoing. The pressured areas are still sore to touch tho. The belly area (above my belly button) which was sore to touch last week is OK again, a bit taut, but less than before the treatment.

Physio-type self-treatments: 47', fibro-work 5h10

:white_check_mark: Timing :new: (giving myself ‘time’-tokens to focus better) 10’?, cold shower (10’), AuTr 2’, hunchback-hard-cushion 10’, palpate 2’, belly 3’, back 5’, gums 4x30’’, thumbnail 6x30’’, = 47’…
:x: , neck 1+ ', workout ', neck 2 ', yoga ', loins ', marionette-hang ', breath-hold ', shaking dance ', RR x

*Fibro-work: Night: 55’ 2:55: ?1h30 10:15: 1h 11:45: 10’ 20’ 10’ 20’ 20:10: 45’ = 5h10… *

  • Gut: More wind the past few days may have come from expired chia oil I was drinking a bit of daily. Today I felt it stood in direct connection. And why should I drink old oil (:crazy_face: :roll_eyes: ), bad enough drinking fresh stuff :smirk_cat: (not really, I’ve got used to drinking a gulp of chia or linseed oil out of the bottle to get lot of omega 3). Silly me. Ehrm, wait a minute - wind has got worse.
  • Passionflower lowers blood pressure, besides rose root as well, increasing may suffice. Didn’t realize that. Highest dose is 4-8g, 3x298 is only 1g. So I can increase and see what my wind does. Some pages say no side effects, but some say - apart from making you tired etc. - nausea, vomiting - which’d be gut - and heart problems, which I can see whilst measuring my blood pressure.
  • Are the sleep problems at the weekend in reality more due to freedom to be creative & reduced self-discipline, rather than really the getting up early on Thursdays? :crazy_face:
  • Has jaw tension improved from the GABA? (Also mentioned by Trudy Scott.)
  • Got to get Trudy Scott’s book on Amino Acids (The Antianxiety Food Solution). I’d be her (adapted from Julia Ross) mostly “Low GABA anxiety type* (physical anxiety, more stiff and tense muscles)”. https://www.everywomanover29.com/blog/anxiety-gaba-tryptophan-how-much/ i.e. I am not really anxious. But I do have stiff or tense muscles. I’m not sure if I am “Feeling stressed and burned-out” - I wasn’t before fibro. Sort of insomnia - but no problem falling asleep at first. I do have an “overactive brain”. I used to have a fear of heights. And I have visceral pain/belly pain with IBS. Low serotonin type also fits slightly: Hyperactivity, Digestive issues, Fibromyalgia, I did have jaw & pain issues (but not TMJ), I have “insomnia or disturbed sleep” but seldom difficulty getting to sleep. The few corresponding symptoms I have seem to *overlap tho, as both have GI & sleep, stiffness’d be GABA while hyperactivity & fibromyalgia’d be serotonin.
    My Catecholamines, Endorphins and Blood Sugar seem perfect, no fitting symptoms there.
  • Bladder: In the restaurant we were I drank 0,75 litre of still water. That’s the first time for a year, a test to see if I can now tolerate water better, without having to run off every 20 mins. I didn’t have to at all :bangbang: - Progress once again :bullettrain_side:
  • Gut: I also tried one physalis (size), not knowing if it’s OK for my gut. Can’t find it on the fly on the web, only that it is a nightshade, but not of the same genus as tomato. After an hour my belly started up a bit, but a bit just cos I was getting hungry.
How to format posts: striking, underlining, text on right, tables. Fave emojis

striking text, underlining text, further BBCodes don’t work, neither does html. Options to disable hijack of CMD+F / CTRL+F and "/" keys for search? - #29 by santouras - feature - Discourse Meta

Aligning text on the right hand side....
Creating tables using Markdown (https://meta.discourse.org/t/create-a-table-using-markdown-on-your-discourse-forum/66544):
Col A Col B Col C
hello there
minimal table
Col A Col B Col C
A1 B1 C1
A2 :smile:
Left Center Right
My content is on the left I’m the center of the world I like being on the right side
:waxing_gibbous_moon: :full_moon: :waning_gibbous_moon:

Linkify is not what I was looking for, it was ‘link targets’ and that seems only poss. with headings (H1-H6, 6 types, i.e. # ## ### #### ##### ######):
Linkify words Linkify words in post - #41 by chrismalone - theme - Discourse Meta
New Tab: Update head_tag.html · jrgong420/discourse-linkify-words@0d4b55a · GitHub

A reminder: Not only does BBCode not work like it’s sposed to, html doesn’t either:

<body>
  <p style="color:red;">Red paragraph text</p>
</body>
Fave emojis

:grinning: :smiley: :grinning_face_with_smiling_eyes: :grin: :laughing: :sweat_smile: :rofl: :joy: :upside_down_face: :wink: :blush: :innocent: :heart_eyes: :star_struck: :relaxed: :yum: :stuck_out_tongue: :stuck_out_tongue_winking_eye: :crazy_face: :hugs: :thinking: :face_with_raised_eyebrow: :smirk: :unamused: :roll_eyes: :grimacing: :relieved: :sleepy: :sleeping: :mask: :nauseated_face: :hot_face: :cold_face: :woozy_face: :dizzy_face: :exploding_head: :cowboy_hat_face: :partying_face: :sunglasses: :nerd_face: :face_with_monocle: :confused: :worried: :slightly_frowning_face: :frowning_face: :open_mouth: :hushed: :astonished: :flushed: :pleading_face: :frowning: :frowning_face_with_open_mouth: :anguished: :disappointed_relieved: :cry: :sob: :scream: :confounded: :persevere: :disappointed: :weary: :tired_face: :yawning_face: :angry: :skull: :skull_and_crossbones: :poop: :clown_face: :ghost: :smiley_cat: :smile_cat: :joy_cat: :smirk_cat: :scream_cat: :crying_cat_face: :pouting_cat: :see_no_evil: :hear_no_evil: :speak_no_evil: :orange_heart: :yellow_heart: :green_heart: :blue_heart: :purple_heart: :brown_heart: :black_heart: :white_heart: :100: :boom: :dizzy: :dash: :hole: :speech_balloon: :left_speech_bubble: :right_anger_bubble: :thought_balloon: :zzz:

:open_hands: :pray: :muscle: :writing_hand: :nail_care: :tooth: :eye: :mage: :woman_mage: :zombie: :walking_man: :man_with_probing_cane: :man_in_motorized_wheelchair: :man_in_manual_wheelchair: :running_man: :man_dancing: :horse_racing: :biking_man: :surfing_man: :mountain_biking_man: :speaking_head: :racehorse: :butterfly: :bullettrain_side: :bullettrain_front: :train2: :steam_locomotive: :bike: :sunny: :sun_with_face: :star2: :partly_sunny: :rainbow: :umbrella: :fire: :ocean: :fireworks: :sparkler: :art: :musical_score: :musical_note: :notes: :studio_microphone: :musical_keyboard: :cd:

:put_litter_in_its_place: :wheelchair: :mens: :wc: :no_entry: :no_bicycles: :arrow_upper_right: :arrow_right: :arrow_lower_right: :arrow_down: :left_right_arrow: :leftwards_arrow_with_hook: :arrow_right_hook: :arrows_clockwise: :arrows_counterclockwise: :back: :end: :on: :soon: :arrow_forward: :record_button: :signal_strength: :white_check_mark: :ballot_box_with_check: :heavy_check_mark: :heavy_multiplication_x: :x: :negative_squared_cross_mark: :bangbang: :interrobang: :question: :exclamation: :hash: :asterisk: :zero: :one: :two: :three: :four: :five: :six: :seven: :eight: :nine: :keycap_ten: :1234: :abc: :cool: :free: :new: :ok: :sos: :up: :red_circle: :red_square:

Abbreviations & explanations: a bit new and lots rearranged from 2021-06-10 on

Entries start with night meds & sleep, before activities & treatments, because the “night before” is vital. So Fri-day starts with Thursday night, the night before Friday.

Pain "7" = crying (/out) point; my 1 is others 2-3, and due to pacing/treatments

My wife says my 7 is other people’s 12. 1 is probably 2-3. Due to pacing, keeping work down to 25% (12h/wk) and all my treatments (acupressure, GABA) and physio self-treatments I manage to keep getting my pains & Ache down quickly. 3 usually means the Ache, not pains; these I address individually, often automatically and on the fly now, e.g. twist-stretching everything or something specific after getting up.

TIME DATA, e.g. ' = mins, h = hours, 18:10:40', date YYYY-MM-DD

’ = mins = minutes, ‘’ = secs = seconds, h is hours as time length, 3h is 3 hours long, 3:00 is 3am, 15:00 is 3pm. 18:10:40’ means 40 minutes, starting at 18:10, = 10 minutes past 6pm up to 10 to 7pm. The date is the logical digital standard: YYYY-MM-DD.

SLEEP: slp, w, lbu/LBU, RLS, p, i

slp = sleep; reasons for getting up: w = (a)wake, lbu/LBU: lower back unrest (‘RLS’?), p: pee, i: ideas.

ACTIVITIES: TT, e.g. "5:1"

TT = table tennis, 5:1 = score, usually showing how well I’m feeling: energy, relaxedness & alertness if the first number is much higher than the second.

SELF-TREATMENTS (about everything else...)

The self-treatments listed are only things that I’m spotlighting & rewarding myself for at the mo by counting them; much of what I do at night is self-treatment to get back to sleep or alleviate (1-2h/d), certain regular movements at daytime, like twist-stretching (30’), writing this blog is self-treatment (30’-60’/d), and the further fibro-work is an indirect form.
Self treatments are usually preventative or always have the same positive effect (e.g. cold showering improves Ache and sleep) - at least I do them for that - and I use “:arrow_forward:” to show what I’m doing to alleviate something and mark it off in the details “:white_check_mark:/:x:” whether it works well enough for a time or doesn’t’, e.g. Ache :arrow_forward: cold fast shower “:white_check_mark:
fw = fibro-work, meaning reading and writing this blog, the reference base, on 4 fibro-forums and researching fibro-stuff on the web.
AuTr = Autogenic Training (usually to actively get - back - to sleep, so counting it as sleep and AuTr…),
cold/FCS = Flash Cold Shower (20’’-60’’) , I count it as 10’ tho.
breath-hold/WHM-B-H = Wim Hof Method Breath-Holding,
Neck 1 is stretching top right to bottom left, vice versa & sky/ground, neck “1+” is stretching far further diagonally downwards, neck 2 is pressing my head against my hand “without moving”, left right and front.
loins = loins/groin = stretching the ligaments there.
ex = exercises
HWB = Hot water bottle,
RR = bp = blood pressure (Riva Rocci), plus pulse. Used to be normal, plus sometimes white coat syndrome, went up since fibro, seems to have gone down again, but I’m still sort of on meds, candesartan 16mg, instead of 8mg plus lercanidipine, cos I saw that c. has less side effects.

2021-06-13, Sunday

Sleep: 8h45, up 4x (2h30)+25’ :left_right_arrow: Feeling 90% well, pain 1 of 7 :white_check_mark:

Sleep details - again unsure if I got carried away at night or it was really unrest...

Passiflora 3x290mg 21:00 GABA 500mg 21:15
21:30-
23:05 p drink
0:30p 1h55 unrest, drink, -2:25 darn, got carried away with fw. due to the unrest. GABA +250mg.
3:15 25’ unrest again or still. Shdve done something else than fw, so now: 6 & shake-dance, if need be cold shower.
6:45p drink +350mg GABA (= 1100mg).
8:45p 15’ cdve been longer from the GABA, but praps cos of p. No GI (despite more GABA, & physalis)
9:05 awake 30’ but hurting despite more GABA so back to bed, 8h50 wasn’t enough.
-9:55 let’s stop there, a cold shower shd help.
2h30+9h55-(5-1h55-25-5-15-30=3h15)=9h10, up 6x (3h15)=
Or just 2h30+8h45-(5-1h55-25-5)=11h15-2h30=8h45, up 4x (2h30)

Activities: 3h10 :left_right_arrow: Feeling 90% well, pain 1 of 7, quite some energy :white_check_mark: (from upping GABA?)

Activity-details: TT 8?:2 easy-ish 1h30?, cycling 30', botanical garden 1h10

Cycling 10’+20’
TT 8:2 easy-ish
botanical garden 1h10

Treatment: 45’ (self)

Effects of !500+250+350mg=1100mg GABA (capsules), 3x290mg passiflora...

More GABA: hard getting awake, too long breaks at night, but energy all day… :face_with_monocle:

Effects of acupressure: great...

Loins was actually for LBU, which hasn’t got better yet. But apart from that great progress.

Sleep: normal pillow is better, fw at night is too long

Nicked wife’s big pillow instead of my smaller one - less neck problems.
I shdnt diss myself too much for prolonging night breaks by doing fw, as that is obviously a deep need of mine, something I shd allow myself as long as it isn’t decisively detrimental like a real addiction…

Bladder OK

Hardly up to pee :white_check_mark: Very slight short pain at 8:50, despite having just taking GABA. But no problems later.

How to RR? 2-3x a go, avg. of the last, arm horizontally, esp. mornings, sit 5' before

RR 0:38 116/77 50 - ooh, that’s OK, aint it! Need to check more, night & day, but there’s too much going on and doesn’t seem that nec.
15:12 avg.= 137/86 60 arm down.
Best several times , using the avg. of the 2nd & 3rd check. Mornings most important! 12-16h. 17-19h. https://www.herzstiftung.de/ihre-herzgesundheit/gesund-bleiben/bluthochdruck/blutdruck-messen Differences of up to 20mmHg.
Better at home than at the doc’s. The 2nd of 2, 1’ in between. https://www.hausarzt.digital/politik/bluthochdruck-lieber-zweimal-messen-38682.html using JAMA-studies. No clothes under it. Sit calmly for 5’ beforehand. Put your arm horizontally! (I thought that was wrong, because it was less…)

Physio-type self-treatments: 51'..., fibro-work 5h20

*:white_check_mark: Timing, hunchback-hard-cushion 15’, palpate 1’, belly 3’, back 7’, workout 8’, gums 4x30’’, thumbnail 6x30’’, RR 3x2’, shaking dance 2’, neck 1+ 3’= 51’…
:x: AuTr ‘, cold shower (’), neck 2 ', yoga ', loins ', marionette-hang ', breath-hold ', *
Fibro-work: Night: 23:05: 5’ 0:30: 1h55 :roll_eyes: :red_circle: 8:50: 10’ 9:05:30’ 9:55: 15’ 12:40: 30’ 13:35: 5’ 14:30: 35-5’-15:30…20 = 5h20

IBSD 18:30-20:30: yesterday’s physalis?


Abbreviations & explanations

Entries start with night meds & sleep, before activities & treatments, because the “night before” is vital. So Fri-day starts with Thursday night, the night before Friday.

Pain "7" = crying (/out) point; my 1 is others 2-3, and due to pacing/treatments

My wife says my 7 is other people’s 12. 1 is probably 2-3. Due to pacing, keeping work down to 25% (12h/wk) and all my treatments (acupressure, GABA) and physio self-treatments I manage to keep getting my pains & Ache down quickly. 3 usually means the Ache, not pains; these I address individually, often automatically and on the fly now, e.g. twist-stretching everything or something specific after getting up.

TIME DATA, e.g. ' = mins, h = hours, 18:10:40', date YYYY-MM-DD

’ = mins = minutes, ‘’ = secs = seconds, h is hours as time length, 3h is 3 hours long, 3:00 is 3am, 15:00 is 3pm. 18:10:40’ means 40 minutes, starting at 18:10, = 10 minutes past 6pm up to 10 to 7pm. The date is the logical digital standard: YYYY-MM-DD.

SLEEP: slp, w, lbu/LBU, RLS, p, i

slp = sleep; reasons for getting up: w = (a)wake, lbu/LBU: lower back unrest (‘RLS’?), p: pee, i: ideas.

ACTIVITIES: TT, e.g. "5:1"

TT = table tennis, 5:1 = score, usually showing how well I’m feeling: energy, relaxedness & alertness if the first number is much higher than the second.

SELF-TREATMENTS (about everything else...)

The self-treatments listed are only things that I’m spotlighting & rewarding myself for at the mo by counting them; much of what I do at night is self-treatment to get back to sleep or alleviate (1-2h/d), certain regular movements at daytime, like twist-stretching (30’), writing this blog is self-treatment (30’-60’/d), and the further fibro-work is an indirect form.
Self treatments are usually preventative or always have the same positive effect (e.g. cold showering improves Ache and sleep) - at least I do them for that - and I use “:arrow_forward:” to show what I’m doing to alleviate something and mark it off in the details “:white_check_mark:/:x:” whether it works well enough for a time or doesn’t’, e.g. Ache :arrow_forward: cold fast shower “:white_check_mark:
fw = fibro-work, meaning reading and writing this blog, the reference base, on 4 fibro-forums and researching fibro-stuff on the web.
AuTr = Autogenic Training (usually to actively get - back - to sleep, so counting it as sleep and AuTr…),
cold/FCS = Flash Cold Shower (20’’-60’’) , I count it as 10’ tho.
breath-hold/WHM-B-H = Wim Hof Method Breath-Holding,
Neck 1 is stretching top right to bottom left, vice versa & sky/ground, neck “1+” is stretching far further diagonally downwards, neck 2 is pressing my head against my hand “without moving”, left right and front.
loins = loins/groin = stretching the ligaments there.
ex = exercises
HWB = Hot water bottle,
RR = bp = blood pressure (Riva Rocci), plus pulse. Used to be normal, plus sometimes white coat syndrome, went up since fibro, seems to have gone down again, but I’m still sort of on meds, candesartan 16mg, instead of 8mg plus lercanidipine, cos I saw that c. has less side effects.

Highlights and lowlights of the week - June 6th to 12th

Since my blog summary is more for major/monthly developments,
I’m pleased to take up LE’s suggestion of doing a weekly summary for you (& me).

  1. (More) GABA is still working well, incl. energy :white_check_mark:. Despite doing a lot. :partying_face:
  2. As it’s improved my bladder :white_check_mark:, drinking 0.75l of still water on Saturday went beautifully! :trophy:
  3. Only using it in capsules has stopped the stomach burning :white_check_mark:. Dose still needs fine-tuning. :face_with_monocle:
  4. Trudy Scott’s Antianxiety food book’ll show how these amino acids work. :face_with_monocle:
  5. Increasing passiflora might help roseroot keep my blood pressure low. :face_with_monocle:
  6. Adding magnesium malate again soon for my muscle function. :face_with_monocle:
  7. Levodopa 100mg increased my Unrest, so that doesn’t seem to be sort-of-RLS or dopamine. :arrow_heading_down:
  8. Loin-acupressure is helping raising my legs high :white_check_mark:, hopefully it’ll help the back unrest too :face_with_monocle:.
  9. A tomato :x: on Wednesday caused 8h of IBSD on Thurs. Witch hazel cream took the spike. :relieved:
  10. Fibro-work helps me understand :heavy_heart_exclamation: Taming :lion: praps nec. a bit :crazy_face:
  11. Found :new: text formatting tricks :fireworks: Hyperlinking headings is a blessing :pray: for the references :bangbang:
  12. Managed getting up at 6:20 again without too much mid-term trouble. :relieved:

Any ideas?

It took me ages to find out what tomatoes were doing to me - anyone else got sth. similar?
But can they also really be causing an 8h long IBSD-flare one day later?
(But the physalis - nightshade, but not same genus - was 24h later too.
The late reaction wd explain why it took me so long to suss it out. Usually my gut reacts quickly.)

And has anyone else had stomach issues from amino acids like GABA, L-tryptophan & 5-HTP?

2021-06-14, Monday

Sleep: 9h40, up 5x (25’) :left_right_arrow: Feeling 90% well, pain 1 of 7 :white_check_mark::white_check_mark:

Sleep details

Passiflora 20:25, GABA 750mg 21:10
21:15- Using normal pillow again helped again.
22:50p heavy/achey limbs & slight p-pain. Too much GABA or not enough or what? (Feet a bit cold, only 2 pairs of socks ;-))
0:25p not as achey, no p-pain.
1:40p p-frequency seems increased. Hungry: Too much GABA? (Are these capsules not gastroresistant?)
4:10(p) No longer hungry! +300mg GABA… =1050mg.
6:20p dry mouth & drink almost every break
-7:20
Sum: 2h45+7h20-(5-5-5-5-5=)25 = 10h05-25= 9h40, up 5x (25’)

Activities: 5h40… :left_right_arrow: Feeling 85% well, pain 1 (TT: 2) of 7 :white_check_mark:

:confused: - everything seemed OK, but TT was a total struggle

OK: eyes, energy, suppleness, awake, ‘no’ pains, no distractions. But: precision wonky, I may have started relaxed, but I was only able to get points with utmost concentration & energy, which caused strain & a bit of Ache. Whereas the last few days it was a piece of cake :cake:. : why :question::question:

Activity-details: Work 2h15, cycling 50', music 1h20, TT 1h15 3:5 hard!

Digi-work 8:40: 10’, Live work: 2h05. Just realized I’d forgotten to count sth. the last 2 weeks, so I’ve been working 9-10h, actually, and at the moment seem to be increasing doing additional tasks. So it’s slowly going up from 17% to 25% of what I used to do.
Cycling (expected) 8+8+8+8+5+5+4+4=50’?
Music 14:00 50’
TT 16:05-17:20 3:5 hard, no idea why, it felt exactly like the days before. Missing acupressure? TT was brilliant/easy Thursday, and great/easy on Friday and Sunday too.
Music 17:30: 30’

Treatment: 48’ (self) (fw 1h30)

Effects of !750+!300mg GABA (!both in capsules), 2x290mg passiflora (no more L-dopa)...

750mg at 21:10, 300mg at 4:10. Great night, but very thirsty. Maybe that’s what made me have to get up 5x. Eyes very closed, but seem to have had enough deep sleep, so decided to wake myself up.

Effects of acupressure...

Loins still great.
But why was TT such a struggle today, after a good night & easy day, and easy playing Th/Fr/Sun?

Physio-type self-treatments: 48', fibro-work 1h30

*:white_check_mark: Timing, thumbnail 8x30’’=4’, gums 1x, RR 3x2’=6’, palpate 2’, belly 2’, back 7’, workout 6’, cold shower (10’), neck 1+ 6’, neck 2 2’, marionette-hang 2’, = 48’…
:x: AuTr ', hunchback-hard-cushion ', yoga ', loins ', breath-hold ', shaking dance ', *
Fibro-work: Night: 0 :white_check_mark: 7:35: 1h05 8:55: 5’ 9:05: 10’ 18:00: 10’ = 1h30
Fibromyalgia References: Symptoms, triggers, treatments (to be intertwined) - #21 by JayCS

RR perfect check, perfect result 116/74 51

Perfect check: sit 5’ before, 2-3x a go, 1’ in btw., avg. of the last, 3x a day, esp. mornings, arm horizontal.
7:27 125/79 52, 7:30 119/78 54, 7:32 113/74 49, 7:34 119/73 53, avg. = 116/74 51

Abbreviations & explanations

Entries start with night meds & sleep, before activities & treatments, because the “night before” is vital. So Fri-day starts with Thursday night, the night before Friday.

Pain "7" = crying (/out) point; my 1 is others 2-3, and due to pacing/treatments

My wife says my 7 is other people’s 12. 1 is probably 2-3. Due to pacing, keeping work down to 25% (12h/wk) and all my treatments (acupressure, GABA) and physio self-treatments I manage to keep getting my pains & Ache down quickly. 3 usually means the Ache, not pains; these I address individually, often automatically and on the fly now, e.g. twist-stretching everything or something specific after getting up.

TIME DATA, e.g. ' = mins, h = hours, 18:10:40', date YYYY-MM-DD

’ = mins = minutes, ‘’ = secs = seconds, h is hours as time length, 3h is 3 hours long, 3:00 is 3am, 15:00 is 3pm. 18:10:40’ means 40 minutes, starting at 18:10, = 10 minutes past 6pm up to 10 to 7pm. The date is the logical digital standard: YYYY-MM-DD.

SLEEP: slp, w, lbu/LBU, RLS, p, i

slp = sleep; reasons for getting up: w = (a)wake, lbu/LBU: lower back unrest (‘RLS’?), p: pee, i: ideas.

ACTIVITIES: TT, e.g. "5:1"

TT = table tennis, 5:1 = score, usually showing how well I’m feeling: energy, relaxedness & alertness if the first number is much higher than the second.

SELF-TREATMENTS (about everything else...)

The self-treatments listed are only things that I’m spotlighting & rewarding myself for at the mo by counting them; much of what I do at night is self-treatment to get back to sleep or alleviate (1-2h/d), certain regular movements at daytime, like twist-stretching (30’), writing this blog is self-treatment (30’-60’/d), and the further fibro-work is an indirect form.
Self treatments are usually preventative or always have the same positive effect (e.g. cold showering improves Ache and sleep) - at least I do them for that - and I use “:arrow_forward:” to show what I’m doing to alleviate something and mark it off in the details “:white_check_mark:/:x:” whether it works well enough for a time or doesn’t’, e.g. Ache :arrow_forward: cold fast shower “:white_check_mark:
fw = fibro-work, meaning reading and writing this blog, the reference base, on 4 fibro-forums and researching fibro-stuff on the web.
AuTr = Autogenic Training (usually to actively get - back - to sleep, so counting it as sleep and AuTr…),
cold/FCS = Flash Cold Shower (20’’-60’’) , I count it as 10’ tho.
breath-hold/WHM-B-H = Wim Hof Method Breath-Holding,
Neck 1 is stretching top right to bottom left, vice versa & sky/ground, neck “1+” is stretching far further diagonally downwards, neck 2 is pressing my head against my hand “without moving”, left right and front.
loins = loins/groin = stretching the ligaments there.
ex = exercises
HWB = Hot water bottle,
RR = bp = blood pressure (Riva Rocci), plus pulse. Used to be normal, plus sometimes white coat syndrome, went up since fibro, seems to have gone down again, but I’m still sort of on meds, candesartan 16mg, instead of 8mg plus lercanidipine, cos I saw that c. has less side effects.

2021-06-15, Tuesday

Sleep: 9h, up 4x (1h20) :left_right_arrow: Feeling 90% well, pain 1 of 7 :white_check_mark:

To tame :lion: myself: :arrow_forward: :one: A big “No!”-post-it on my screen. :two: Write down exact times for sleep breaks (& fw?), not rounded. Preferably no making music after 15:00 until I’m tamed more…

Sleep details

Passiflora 20:30, GABA 21:05
21:20-
23:30: 20’ (p) pain-b4-pee: 3 of 7. Tooth pain every now & again in the last few days, e.g. when stretch-twisting my neck. 2x drink
0:23: 25’ dozing; praps up too long just now, twitchy shoulder, thumping pulse, hot flush (put on warm socks - too much in the heat?) → 6.
1:09: 30’ dozing; shoulder better, but still pulse & hot flush. i: music/earworm (= putting one chord softly later, using a plop organ instead of a piano; did it too late; work a bit too) RR 7x & CFS. 2nd socks off again. If this is the result of being up too long in the first sleep break then it wasn’t worth it. Neck not too good, I think cos I started off with the small pillow by mistake.Gums a slight bit irritated too, repeat gums & do Marigold. Dry mouth → drink first.

I’ve put an enormous red digital post-it in front of all this, saying “NO!FW”, let’s see…

5:35p no p-pain, but stiff pain, + 350mg GABA. sore throat/cold: Drink, Marigold, 2nd socks back on.

And write down the exact minutes, not rounded to 5’, so I no longer round my sleep break to 5’: Every minute counts :bangbang:

7:40p 24’ all good again, warmed now. Dry mouth → drink. Trying successfully 10’ to get a frightened pigeon out of the bedroom despite a fly screen it kept flying into has ever so slightly disturbed my trance, let’s see if I can still sleep further. Aw, no, besides I need to get up a bit earlier and go to bed earlier instead.
2h40+7h40-(20-25-30-5=)1h20=9h, up 4x (1h20)…

Activities: 3h45 :left_right_arrow: Feeling 90% well, pain 1 of 7 :white_check_mark:

Table tennis apparently too relaxed first, I suspect cos of too much GABA…

Activity-details: Music 1h40, cycling 40', TT 0!:6, then 4!!:6, 1h25

Music 40’, then music lesson 1h (standing all the time!, but getting fidgety, Achey, unrelaxed).
Cycling 8+8+10+10+5=41
TT was totally strange :crazy_face:. I’d expected to win like last Thursday. When I realized the balls were not doing at all what they were sposed to I decided to relax even more, feeling I was getting into a strained mode. The first 6 games I had no chance. But I had all my energy as I had been relaxed the whole time and acupressure before had given me 100% energy. For the 7th I pushed myself to put more energy into it. Then suddenly I started getting balls & points without too much energy, playing more precisely. Other factors like thirst and tooth-gum pain stayed the same, slowly needed to pee. My mate was getting tired, but that doesn’t explain why I wasn’t and why the precision - fine motor skills - was back. As opposed to Thursday I’d slept pretty well, had a a good day. It doesn’t really change the fact that GABA seems the most likely problem, in comparison to Thursday: too much. Also my pee-pain is slightly increased today, which is what it was sposed to be improving, so there’s not really a reason to keep it up at 1100mg, unless someone can explain or point out something else to me???

Treatment: 4h30 (1h15 self, 2h20 acupressure, 55’ therapy)

Too much GABA, I suspect

Effects of !750+350mg GABA (!both in capsules), 3x290mg passiflora: too relaxed!!

Keeping the same dose as yesterday to see if acupressure may be the difference to make TT easy again. I took it quite a bit later tho, at 5:35. I had good energy, esp. 100% after acupressure, full speed cycling without exhaustion. TT - see above - showed if at all that it relaxed me too much to be able to play precisely, until I hyped myself. And pee-pain several times around midday suggests that more doesn’t mean less pain, altho I don’t understand how that works.

Effects of acupressure...

Loins still great before, she treated them again, afterwards loads of energy and relaxation. But I had the same relaxation on Thursday.

Physio-type self-treatments: 1h12, fibro-work 2h15

*:white_check_mark: Timing, AuTr 10’, gums 2x30’’, hunchback-hard-cushion 15’, thumbnail 14x30’’, RR 7x2’, neck 1+ 4’, cold shower (10’), palpate 2’, belly 2’, back 5’, = 72’…
:x: workout ', neck 2 ', yoga ', loins ', marionette-hang ', breath-hold ', shaking dance ', *
Fibro-work: Night: 10’ 23:35: 15’ 15’ 8:05: 18’ 17:45-19:12: 1h27 = 2h15

RR: 1:25 avg: 127/74 52, too high for night. Q: Is it the pressure making the low pulse thump the last few days? At night my shoulder was twitching due to the thumping pulse. When I realized that I cd just leave it and do AuTr instead.

Therapy 55': Not learning hygiene, not getting love from my parents, !!seeing how they put work, formalities etc. before self-care shows how much self-care I've taught myself. As a guideline for my actions I can consider whether what I'm doing might be automatically copying my parents (that's nothing really new or helpful):...

Today, I started off reporting my thoughts on allowing myself to do a bit of fibro-work at night etc., my GABA adjustments and successes, e.g. drinking water and getting up at 6:20.
Main question / task from my psychologist today was to think about which belief systems I have or may have adopted from my parents regarding health. Main points were that both my parents cdn’t much regard their opposites (incl. us kids) as a “You”. My father (introvert) saw/treated people as objects, incl. me and himself, she analyzed fittingly. My mother (extravert) is vague, everywhere and nowhere, like a butterfly, but can’t really listen or explain her own feelings. My psychologist was pretty shocked that they didn’t show/model/teach me/us any hygiene, which meant I smelt as a kid until my first girlfriend shyly told me and I started learning it myself, not really possible as my mum didn’t wash more and didn’t allow me and wdnt teach me to use the washing machine myself. And a lot of similarly unpleasant stuff, humiliating, causing anger…

My blog-summary and My fibromyalgia-references

Abbreviations & explanations

Entries start with night meds & sleep, before activities & treatments, because the “night before” is vital. So Fri-day starts with Thursday night, the night before Friday.

Pain "7" = crying (/out) point; my 1 is others 2-3, and due to pacing/treatments

My wife says my 7 is other people’s 12. 1 is probably 2-3. Due to pacing, keeping work down to 25% (12h/wk) and all my treatments (acupressure, GABA) and physio self-treatments I manage to keep getting my pains & Ache down quickly. 3 usually means the Ache, not pains; these I address individually, often automatically and on the fly now, e.g. twist-stretching everything or something specific after getting up.

TIME DATA, e.g. ' = mins, h = hours, 18:10:40', date YYYY-MM-DD

’ = mins = minutes, ‘’ = secs = seconds, h is hours as time length, 3h is 3 hours long, 3:00 is 3am, 15:00 is 3pm. 18:10:40’ means 40 minutes, starting at 18:10, = 10 minutes past 6pm up to 10 to 7pm. The date is the logical digital standard: YYYY-MM-DD.

SLEEP: slp, w, lbu/LBU, RLS, p, i

slp = sleep; reasons for getting up: w = (a)wake, lbu/LBU: lower back unrest (‘RLS’?), p: pee, i: ideas.

ACTIVITIES: TT, e.g. "5:1"

TT = table tennis, 5:1 = score, usually showing how well I’m feeling: energy, relaxedness & alertness if the first number is much higher than the second.

SELF-TREATMENTS (about everything else...)

The self-treatments listed are only things that I’m spotlighting & rewarding myself for at the mo by counting them; much of what I do at night is self-treatment to get back to sleep or alleviate (1-2h/d), certain regular movements at daytime, like twist-stretching (30’), writing this blog is self-treatment (30’-60’/d), and the further fibro-work is an indirect form.
Self treatments are usually preventative or always have the same positive effect (e.g. cold showering improves Ache and sleep) - at least I do them for that - and I use “:arrow_forward:” to show what I’m doing to alleviate something and mark it off in the details “:white_check_mark:/:x:” whether it works well enough for a time or doesn’t’, e.g. Ache :arrow_forward: cold fast shower “:white_check_mark:
fw = fibro-work, meaning reading and writing this blog, the reference base, on 4 fibro-forums and researching fibro-stuff on the web.
AuTr = Autogenic Training (usually to actively get - back - to sleep, so counting it as sleep and AuTr…),
cold/FCS = Flash Cold Shower (20’’-60’’) , I count it as 10’ tho.
breath-hold/WHM-B-H = Wim Hof Method Breath-Holding,
Neck 1 is stretching top right to bottom left, vice versa & sky/ground, neck “1+” is stretching far further diagonally downwards, neck 2 is pressing my head against my hand “without moving”, left right and front.
loins = loins/groin = stretching the ligaments there.
ex = exercises
HWB = Hot water bottle,
RR = bp = blood pressure (Riva Rocci), plus pulse. Used to be normal, plus sometimes white coat syndrome, went up since fibro, seems to have gone down again, but I’m still sort of on meds, candesartan 16mg, instead of 8mg plus lercanidipine, cos I saw that c. has less side effects.

2021-06-16, Wednesday: 30 tiny stressors took their toll at the end of the day

Sleep: 8h55, up 7x (44’) :left_right_arrow: Feeling 90% well, pain 1 of 7 :white_check_mark:

Sleep details: 1h stints; writing down the exact times & cold showering helped curb break lengths & a creative flash; no "reason" for break frequency: so 'biochemical'?; very dry mouth again, despite drinking

Passiflora 19:15, GABA 21:15
(21:30-) creative music flash I had to immediately “write” down…15’
22:00-
23:42 3’ p thumb dry mouth → drink, lips, gel
0:53-1:12 19’ p thumb music16’ dry mouth → drink, doze/AuTr →
2:17-2:26 9’ p thumb FCS thumb drk
3:24-3:28 4’ p thumb teeth
4:32-35’ 3’ p thumb
6:14p 6’ (2’ wait) thumb. Tooth-gum has behaved, but I can feel it’s still sore like after a treatment, so Marigold later. fw 5’ altogether.
7:17 14’ hungry → drink, tired, slight pain in front of left thigh → Traumeel :white_check_mark: (fw 3’) p (0 pain like all night), thumb, music: 5’
7:41
2+7h41-(3+19+9+4+3+6+14=)44’ 9h41-44’=8h56, up 7x (44’)

Activities: 4h50 :left_right_arrow: Feeling 90 → 80% well, pain 1 of 7 :white_check_mark:/:x:

Well: My wife’d say 70%. OK: to be honest she’d say: 30%, but she counts funny… :crazy_face:. Exhausted from doing - I thought - nothing much…

"If you want to know what 'nothing' was... - 30 "tiny" "annoyances"..
  1. Didn’t start in time for the earlier train to work, so didn’t pressure, but then time was short for the next too…
  2. My son called while I was trying to get the train, so I cut his call off.
  3. Phone with him on the train - stress trying to please his girlfriend and ex at the same time, about where his daughter should be where - special situation as his daughter had hurt herself quite a bit in a bike accident on Sunday. Me trying to counsel him what to do, him asking me medical questions (Me: Well what did the docs say?) instead of more fitting communcative ones.
  4. Took quite some time to find out what he actually wanted, as he was a bit beside himself.
  5. Offered to perhaps come late that afternoon for a short time, after he misunderstood what my wife meant when she had told his ex that we could come round if they needed help and we’d sorted out what that was about.
  6. It’s always hard to understand him as he puts the loudspeaker on and I keep having to ask what he just said. The train noises didn’t make it easier.
  7. Sitting at work, people had to move drinks and stuff next to me, making quite some clonking noise and needing to talk. Wdntve been a problem in days gone by, but it was very much irritating me, I was thinking of going away, but didn’t, thought it wdnt be long…
  8. Lost my key. Not too bad, as it cd only be at work. But seeing as I’d lost 3-4 things in the last few weeks, including one of my mobiles and my pda, it did make me a bit anxiiouds. Found it again after 5 minutes in a door I’d been in.
  9. A nice colleague wanted to socialize a bit, took about 20 mins, that was too long for me.
  10. Off to the train: Cdnt lock my bike in as I’d lost my key again. I was pretty sure at work, but…
  11. So missed that train.
  12. Back to work. Getting more and more strained now.
  13. On the way there I met a nice ex-colleague, who wanted to socialize ‘only short’, which I had to this time, as last time I’d said: Sorry, no time, I’m in a rush.
  14. Time was running short for the next train…,
  15. so I ‘had to go’ -
  16. first back to work again, so ‘wrong direction’, but not far
  17. it wasn’t where I thought it was. But someone had found it. :pray:
  18. Back to the next train - in time tho. My son called again that both ‘his’ women were claiming they felt snubbed, altho he was trying to harmonize everything - I tried to clarify that as things are he won’t ever be able to harmonize everything, he needs to ask for opinions but then decide himself and take responsibility himself and it won’t be easy or harmonic all the time, it’s better than most as it is. Thankfully he’d called it off for today because the mother of his girlfriend needed him to help wallpapering (I didn’t understand why he hadn’t realized that that was going to happen anyway…).
  19. On the way home from the train I realized the back wheel of my bike was probably irreparably damaged. I’d been planning on getting it repaired this evening. Now I cd luckily make it home at least.
  20. At home I went to my wife hoping she’d need a break after work. Her greeting however was: Was that chocolate in the toilet this morning or what…? I said sorry, I’m really doing my best to remember to do everything, but I just sometimes forget.
  21. Told her the story of my day and the problems of my son and she apologized and said: and now I’m bashing you. I grinned and said - my first thought was that I’d only got one woman, not like my son… :wink:
  22. I was hoping we could keep it short as I knew she needed a break, and I needed one too, and she asked and talked and I cdnt sit anymore and after far over an hour we both realized we were waiting for the other to stop.
  23. While talking I did a bit of fibro work, tried to add research to “Alpha Stim” as treatment, and got the error message that I’d written too much, which means I have to restructure my reference work once again…
  24. So off I went to get my newly repaired first bike, hoping to leave the second one there and get the back wheel replaced. The bike was really beautifully done up, which is great for people who want their bikes to look good. I didn’t tho, I need to be able to let it stand half a day at a train station without it being nicked or damaged, so it’s sposed not to look good. The guy - a neighbour who I’d not known and tried for the first time - wanted me to be happy, so I played being happy, and he was so pleased. And actually I just thought: damnit, now I’ve got to use one of my bad bikes for the train station.
  25. Then he saw the second (ex-good) bike and said: ‘No chance’. So all remnants of hope destroyed.
  26. So I had to take it home again and started thinking about how to get rid of it, my ex-2nd best bike.
  27. But first I also had to take the remnants of an old pretty broken bike with quite a few really good expensive parts on it I’d given him. A big plastic bag, very heavy, including two rims. I cycled the few minutes home but that was very strainful.
  28. On the way back to him I was lost in thought looking down at the newly painted bike and almost mowed over three people as I was driving slowly on the sidewalk/pavement. They were nice about it, but I was still consternated that this had happened.
  29. Coming home I realized I’d lost another set of keys, so the 3rd time today. Thinking where, at work or where. Found it again after 5 minutes.
  30. I sat eating and said: Strange, I haven’t done much today, but I have no capacities for anything, don’t want to see anyone or do anything big anymore. This fibro is not just about ‘doing things’ and it’s not just physical, it’s also mental.
    Then suddenly I contradicted that and said I wanted to go to the grocer’s now as I had planned that. And my wife said: Not in the state you’re in. I said: What’s up? I’m calm, everything’s OK. She replied: Maybe, but you are emanating 1000 volts and are dead. Leave it be, I can do it tomorrow. Phew. Good on her.
    So that’s the stories behind doing nothing. When I now read it, I can believe that I am shattered, and can’t quite understand why I didn’t realize it before writing it all down
    #30? IT’S HOT! (Which on it’s own may be fairly OK, altho not my favourite weather and does strain, but … )
Activity-details: music 20', live work 3h30, cycling 1h

Music 21:45-22:00 15’, 7:25: 5’ = 20’
Cycling (expected) 8+8+8+8+8+8+5+5=h58
TT 0, mate didn’t have time
Grandchild 0

Treatment: 1h05 (self) fw: 2h30

Effects of 750mg GABA (1 capsule), 3x290mg passiflora: up often, energy, but lots of tiny tuff stuff

Night good, despite being up often. Watch for pee-pain, energy, stiffness today in comparison to yesterday due to 350mg less GABA. Actually energy etc. today, just so much tuff stuff happened. Pain before peeing a bit at midday again.

Effects of acupressure: loins good, but still with some pain

Loins’ll still be good, watch out for less/no pain on right when holding foot up; 8:45 still the same as it was. Front of left thigh only a few hours, Traumeel & workout helped.

Physio-type self-treatments: 1h05, fibro-work 2h30

:white_check_mark: yoga 2’, Timing, thumbnail 10x30’’, AuTr 15’, hunchback-hard-cushion 10’, cold shower (10’), palpate 2’, belly 4’, back 7’, workout 8’, neck 1+ 2’, gums 2x30’’, = 66’…
:x: neck 2 ', loins ', marionette-hang ', breath-hold ', shaking dance ', RR x

Fibro-work: +20’ evening Night: 5’ 7:20: 3’ 7:41: 19’ 8:35: 10’ Researching Alpha Stim ?20’ and Updating this: ?1h10 = 2h30

Therapy’s further fruits:

  • Both psychotherapist and physiotherapist agree that considering the amount of self-control and self-care I practice that I shdnt be worried about being up longer at night for fw if that allows me to feel ‘free’. Also I threw into the ring that the length & frequency of the breaks doesn’t make that much difference to how restorative my sleep is, how well I feel the next day etc. My wonky sleep is a factor which’d be nice to improve but praps something I just I have to live with, considering that pacing is much more important.
  • At the moment I have the feeling I’m stabilizing my “90%/1”, be it at a low level of work (20%), and can slowly look from there if anything - like work - can be increased a bit. Just have to remember that I’d prefer to do everything I do a little bit more every week - actually apart from work, unless I had more hours a day, or someday my need to do fibro-work decreases… If I did more work now, everything else wd get less (apart from fibro-work, as I often do that when I have no energy for anything else, just slopping around on the couch)…
  • I spent much of my life up to fibro helping others, privately and in my job/-s. My parents did not role model really helping others much, or maybe they were an anti role model, set a bad example of how to do it, looking at formalities, but not really going into true relationships (incl. with us) and centring around a sort of vague self - maybe that spawned my desire to “do it properly” and combined with reduced self-care and missing so much myself became the perfect deadly mix. Anyone else?!
Abbreviations & explanations

Entries start with night meds & sleep, before activities & treatments, because the “night before” is vital. So Fri-day starts with Thursday night, the night before Friday.

Pain "7" = crying (/out) point; my 1 is others 2-3, and due to pacing/treatments

My wife says my 7 is other people’s 12. 1 is probably 2-3. Due to pacing, keeping work down to 25% (12h/wk) and all my treatments (acupressure, GABA) and physio self-treatments I manage to keep getting my pains & Ache down quickly. 3 usually means the Ache, not pains; these I address individually, often automatically and on the fly now, e.g. twist-stretching everything or something specific after getting up.

TIME DATA, e.g. ' = mins, h = hours, 18:10:40', date YYYY-MM-DD

’ = mins = minutes, ‘’ = secs = seconds, h is hours as time length, 3h is 3 hours long, 3:00 is 3am, 15:00 is 3pm. 18:10:40’ means 40 minutes, starting at 18:10, = 10 minutes past 6pm up to 10 to 7pm. The date is the logical digital standard: YYYY-MM-DD.

SLEEP: slp, w, lbu/LBU, RLS, p, i

slp = sleep; reasons for getting up: w = (a)wake, lbu/LBU: lower back unrest (‘RLS’?), p: pee, i: ideas.

ACTIVITIES: TT, e.g. "5:1"

TT = table tennis, 5:1 = score, usually showing how well I’m feeling: energy, relaxedness & alertness if the first number is much higher than the second.

SELF-TREATMENTS (about everything else...)

The self-treatments listed are only things that I’m spotlighting & rewarding myself for at the mo by counting them; much of what I do at night is self-treatment to get back to sleep or alleviate (1-2h/d), certain regular movements at daytime, like twist-stretching (30’), writing this blog is self-treatment (30’-60’/d), and the further fibro-work is an indirect form.
Self treatments are usually preventative or always have the same positive effect (e.g. cold showering improves Ache and sleep) - at least I do them for that - and I use “:arrow_forward:” to show what I’m doing to alleviate something and mark it off in the details “:white_check_mark:/:x:” whether it works well enough for a time or doesn’t’, e.g. Ache :arrow_forward: cold fast shower “:white_check_mark:
fw = fibro-work, meaning reading and writing this blog, the reference base, on 4 fibro-forums and researching fibro-stuff on the web.
AuTr = Autogenic Training (usually to actively get - back - to sleep, so counting it as sleep and AuTr…),
cold/FCS = Flash Cold Shower (20’’-60’’) , I count it as 10’ tho.
breath-hold/WHM-B-H = Wim Hof Method Breath-Holding,
Neck 1 is stretching top right to bottom left, vice versa & sky/ground, neck “1+” is stretching far further diagonally downwards, neck 2 is pressing my head against my hand “without moving”, left right and front.
loins = loins/groin = stretching the ligaments there.
ex = exercises
HWB = Hot water bottle,
RR = bp = blood pressure (Riva Rocci), plus pulse. Used to be normal, plus sometimes white coat syndrome, went up since fibro, seems to have gone down again, but I’m still sort of on meds, candesartan 16mg, instead of 8mg plus lercanidipine, cos I saw that c. has less side effects.

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2021-06-17, Thursday

Sleep: 8h12, up 6x (23’)+20’ :left_right_arrow: Feeling 90% well, pain 1 of 7 :white_check_mark:

- just that 6:20 is a great time for sleeping for me, and not for going to work…

Sleep details: Bed late, cos of writing down the 30 annoyances. Writing exact times down helped again tho. Cold showering was again most effective: more often?

Passiflora 21:25, GABA 21:25
Later than planned (6:20 coming up!!) due to having to write all the day down to get it out of my system…
21:40- cold washing arms & adding a further stressor to ‘Wednesday’
so 21:45-
23:07: 3’ dry mouth → drink, gel, lips; pee, thumb. fw:1’
23:44 6’ LBU: shake-dance, hang from bar. cold wash arms & lower backfw:2’ drink. / Dozing, i: son’s problems (how many people are on his new girlfriend’s side (2+), how many are on his side (2), how many are on his ex’s side? 0: not fair for her). AuTr 2’. Bending backwards, outwards. Lavender. FCS —>
0:30 fw 1’
0:37 8’ FCS
4:00 (!) 2’ pee
5:17 3’ pee, drink: No getting nervous now! Put a 2nd alarm mobile next to my bed. Was OK.
-6:20
Sum: 2h15+6h20-(3-6-1-8-2-3=)23’= 8h35-23’=8h12, up 6x (23’)
10:56-11:16 = +20

Activities: 4h05… :left_right_arrow: 70%/3 after work :x:, 90%/1 after acupressure & TT :white_check_mark:

My wife asked me yesterday to consider not going to son/grandchild today cos of the ‘30 annoyances’. We decided I try a cold shower & a power nap instead of a long sleep, but unlike last week my pain & tiredness is just as bad as before it. Now just resting (fw: writing this) & hope acupressure will take care of it. It did.

Activity-details: live work 1h, cycling 1h15, shop 20', TT 1h30

Work: 1h
Cycling 8+8+8+8+5+11+11+5+4+4+5=1h16
TT 6:4, 1h30, not easy, not hard, despite acupressure & less GABA (& hot!). Actually thought I wdnt manage 6 games. First game was easy, after that struggle, I don’t feel the conditions (heat, sun) were the problem.

Treatment: 3h05… (self 55’…, acupressure 2h10) , fibro-work 2h20

Effects of 750mg GABA, 3x290mg passiflora

Apart from the tiredness seems OK. Can’t find my roseroot capsules.

Effects of acupressure...

Loin pain decreased even more today. Next area above my left knee, working it manually was no that bad, but there was such a large area that she got her metal vibrating thingy out again which was pure anguish and left scratches on my skin again, let’s see if they “bleed” like last time.

Physio-type self-treatments: 54'

:white_check_mark: AuTr 5’, Timing, hunchback-hard-cushion 10’, cold shower 2x(10’), neck 1+ 2’, palpate 1’, belly 3’, back 7’, shaking dance 2’, gums 2x30’’, thumbnail 6x30’’, = 54’…
:x: V, twist-stretch, workout 7’, neck 2 1’, yoga ‘, loins 1’, marionette-hang 1’, breath-hold 11’, RR x2’
:new: “V” for loins = lie on back, legs up and let legs fall to sides;
:new: twist-stretching more for the loins

Fibro-work: Night: 5’ 11:20: 1h02 17h25: 33’ 18:20: 20’ 18:40: 20’ = 2h20

GI: In my salad at work there were no tomatoes this week, but fairly mild radishes, I ate half of one and explained after… Let’s see if I can stay under 8h of pain this week… :roll_eyes: :roll_of_toilet_paper: 19:00 still nothing to speak of.

Managing 30 annoyances (0 today!) - sophisticated pacing: 9 habits (to re)new

:arrow_forward: :one: Insist on my son improving his speech quality during phone calls.
:arrow_forward: :two: Zero tolerance for noise etc.: Say so or go.
:arrow_forward: :three: Keep hand on keys / Stop leaving them in doors ‘to save time’.
:arrow_forward: :four: Only use one set of keys at a time, put the other 2 straight back in my bag. :white_check_mark:
:arrow_forward: :five: Keep socializing down sooner by asking what the person is about to do next.
:arrow_forward: :six: Get all my bikes improved soon.
:arrow_forward: :seven: Pace better by keeping an eye on the amount of annoyances I’ve already been thru.
:arrow_forward: :eight: Put an alarm to check the toilet before I leave the house.
:arrow_forward: :nine: Transport heavy stuff better & under 5’, less on bad days.
No annoyances today, just the getting up early and napping 30’ not being good.

Abbreviations & explanations

Entries start with night meds & sleep, before activities & treatments, because the “night before” is vital. So Fri-day starts with Thursday night, the night before Friday.

Pain "7" = crying (/out) point; my 1 is others 2-3, and due to pacing/treatments

My wife says my 7 is other people’s 12. 1 is probably 2-3. Due to pacing, keeping work down to 25% (12h/wk) and all my treatments (acupressure, GABA) and physio self-treatments I manage to keep getting my pains & Ache down quickly. 3 usually means the Ache, not pains; these I address individually, often automatically and on the fly now, e.g. twist-stretching everything or something specific after getting up.

TIME DATA, e.g. ' = mins, h = hours, 18:10:40', date YYYY-MM-DD

’ = mins = minutes, ‘’ = secs = seconds, h is hours as time length, 3h is 3 hours long, 3:00 is 3am, 15:00 is 3pm. 18:10:40’ means 40 minutes, starting at 18:10, = 10 minutes past 6pm up to 10 to 7pm. The date is the logical digital standard: YYYY-MM-DD.

SLEEP: slp, w, lbu/LBU, RLS, p, i

slp = sleep; reasons for getting up: w = (a)wake, lbu/LBU: lower back unrest (‘RLS’?), p: pee, i: ideas.

ACTIVITIES: TT, e.g. "5:1"

TT = table tennis, 5:1 = score, usually showing how well I’m feeling: energy, relaxedness & alertness if the first number is much higher than the second.

SELF-TREATMENTS (about everything else...)

The self-treatments listed are only things that I’m spotlighting & rewarding myself for at the mo by counting them; much of what I do at night is self-treatment to get back to sleep or alleviate (1-2h/d), certain regular movements at daytime, like twist-stretching (30’), writing this blog is self-treatment (30’-60’/d), and the further fibro-work is an indirect form.
Self treatments are usually preventative or always have the same positive effect (e.g. cold showering improves Ache and sleep) - at least I do them for that - and I use “:arrow_forward:” to show what I’m doing to alleviate something and mark it off in the details “:white_check_mark:/:x:” whether it works well enough for a time or doesn’t’, e.g. Ache :arrow_forward: cold fast shower “:white_check_mark:
fw = fibro-work, meaning reading and writing this blog, the reference base, on 4 fibro-forums and researching fibro-stuff on the web.
AuTr = Autogenic Training (usually to actively get - back - to sleep, so counting it as sleep and AuTr…),
cold/FCS = Flash Cold Shower (20’’-60’’) , I count it as 10’ tho.
breath-hold/WHM-B-H = Wim Hof Method Breath-Holding,
Neck 1 is stretching top right to bottom left, vice versa & sky/ground, neck “1+” is stretching far further diagonally downwards, neck 2 is pressing my head against my hand “without moving”, left right and front.
loins = loins/groin = stretching the ligaments there.
ex = exercises
HWB = Hot water bottle,
RR = bp = blood pressure (Riva Rocci), plus pulse. Used to be normal, plus sometimes white coat syndrome, went up since fibro, seems to have gone down again, but I’m still sort of on meds, candesartan 16mg, instead of 8mg plus lercanidipine, cos I saw that c. has less side effects.
:new: “V” for loins = lie on back, legs up and let legs fall to sides;
:new: twist-stretching more for the loins

Hi JayCS, parents as role models? Mmmmmmmm. I know very few parents who are role models to their children. I was unable to have children but I do have nephews and great nieces and nephews. My role models were on the TV show, The Brady Bunch. I would watch episode after episode well into adulthood so that I knew, as best as possible, how to be a good parent/ person. I think it really helped me to become who I am today. The Brady parents were not perfect. I liked that about the show. From what I know about you JayCS, you are kind, caring, giving, strong and compassionate. You care about your fibromyalgia family here. I feel it every time I go onto this site. We care a lot about you too. :blush: If you need some support or someone to hear you and listen to you, we are here for YOU too. For not having parents as good role models, you turned out to be a pretty awesome guy! It’s ok to let us help you too sometimes. You deserve to be helped and not always be the one helping others. I hope that makes sense. :hugs:

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2021-06-18, Friday - additional GABA un-stiffed me, but sitting is yucky

Sleep: 10h22, up 6x (1h) :left_right_arrow: Feeling 90% well, pain 1 of 7 :white_check_mark:

Ideal up to now, if I can repeat that: 1h is OK, I managed to curb it. Realizing I was wide awake I tried adding further GABA, a lot, which seemed to have help the sleep. Now I’ll have to see what it does with me all day.

Sleep details

3x290mg Passiflora 20:30, 750mg GABA 21:15, FCS 21:20
21:30-
23:54-57 3’ pee/pain 4, thumb, drink,
1:44-40 5’ pee/pain 4, thumb, drink, dry mouth better tonight.
2:02-11 9’ FCS (30’’) pee/0pain, thumb,
3:40-4:16 36’ daft dream (not being able to find a train timetable at a station). 6. pee/0 pain. thumb. Hungry → drink. Feel like a longer sleep break, overactive brain needs sth. to do, maybe from the dream, altho I’ve stopped thinking of music by not listening to my track for 2 days. But I’ll try to force myself back.
4:42 3’ Doesn’t work, despite AuTr, I feel pretty wide awake while lying down - however nice drowsily tired upon waking up. I didn’t feel like cold showering again, cos I’d already done it twice and was getting a bit chilly. Try GABA +500mg, seeing as my theory that it was causing worse precision at TT and more pee pain doesn’t seem to be true, as I’ve had both yesterday again. So another test. :face_with_monocle: (Next time I cd test a 3rd cold shower tho.)
5:53 4’ Suddenly razor-sharp sore throat - from lying a bit without blanket :question: → Marigold essence. pee/0 pain, thumb, put on trousers, woolen socks, pulled duvet up a bit more.
-8:52 after deep sleep, a bit strangely dreamy, but OK. pee/0pain (very slow).
Interesting :exclamation:
Sum: 2h30+8h52-(3+5+9+36+3+4=)60’= 11h22-1h=10h22, up 6x (1h)

Activities: 5h30 :left_right_arrow: Feeling 90% well, overall pain 1 of 7 :white_check_mark: despite yesterday; however backside pain: 3. :x:

Activity-details: live work 2h, cycling 1h30, grandchild 2h

Cycling (expected) 8+8+8+8+30+30=1h32
grandchild 2h
(TT 0)

Treatments: 1h05 (self): on the increase; GABA good, loins so-so (fw: 55’)

Effects of 750+!!!500mg GABA, 3x290mg passiflora: good

Taking more helped get back to sleep properly. Caused more un-stiffness getting up from everything. Can’t say my muscle tone is that relaxed, altho on a certain level I am. My face muscles still need extra relaxing tho. As we went to my grandchild, I cdnt test myself at TT, but actually I’m starting to think that maybe it doesn’t matter too much, as I don’t have to do much tough stuff at work which I’d compared the TT-precision to.

Effects of acupressure - on loins: so-so.

In the evening my lower back was getting on my nerves. The skin has partly recovered. It was good at night, but sitting at work and then at home was hard, so I prefer leaning against my couch, legs to one side.

Physio-type self-treatments: 66': more stretching is new, fibro-work 1h05

:white_check_mark: AuTr 5’, Timing, cold shower 2x(10’), neck 1+ 2’, palpate 1’, belly 3’, back 7’, V 1’, twist-stretch 20’, gums 3x30’’, thumbnail 10x30’’, = 66’…
:x: hunchback-hard-cushion ‘, workout 7’, neck 2 1’, yoga ‘, loins 1’, marionette-hang 1’, breath-hold 11’, shaking dance 1’, RR x2’

Fibro-work: Night: 10’ 9:50: 20’ 15:00: 15’ 15:25 10’ 19:10: 10’ = 1h05…

Development:
I need to analyze my sitting more using a sitting diary. Acupressure may help, but yesterday it was sposed to do something for my lower back, which was actually OK at night. But at work I’ve started putting a soft cushion on a hard bench I sometimes sit on, which however didn’t improve it at all, actually may have even worsened it, as I can’t remember having come home of late with it this bad.
We cycled to my grandchild 30’ there, 30’ back (together, so slowly due to the heat, my wife is having more problems with it than me). Despite it supposedly being my best bike, I noted pain in hands (2), backside (4) and feet (2-3). The latter was :new: to me. Backside’d be the sitting and/or lower back problem so all cycling times’d belong in the “sitting diary”. It might also be a question of changing my saddle, even if the one that’s one it is expensive: That doesn’t make it good for me.
At my grandchild’s I made sure I didn’t sit, but lay down as much as I cd - kneeling or crouching wasn’t a good alternative…

My blog-summary

Abbreviations & explanations

Entries start with night meds & sleep, before activities & treatments, because the “night before” is vital. So Fri-day starts with Thursday night, the night before Friday.

Pain "7" = crying (/out) point; my 1 is others 2-3, and due to pacing/treatments

My wife says my 7 is other people’s 12. 1 is probably 2-3. Due to pacing, keeping work down to 25% (12h/wk) and all my treatments (acupressure, GABA) and physio self-treatments I manage to keep getting my pains & Ache down quickly. 3 usually means the Ache, not pains; these I address individually, often automatically and on the fly now, e.g. twist-stretching everything or something specific after getting up.

TIME DATA, e.g. ' = mins, h = hours, 18:10:40', date YYYY-MM-DD

’ = mins = minutes, ‘’ = secs = seconds, h is hours as time length, 3h is 3 hours long, 3:00 is 3am, 15:00 is 3pm. 18:10:40’ means 40 minutes, starting at 18:10, = 10 minutes past 6pm up to 10 to 7pm. The date is the logical digital standard: YYYY-MM-DD.

SLEEP: slp, w, lbu/LBU, RLS, p, i

slp = sleep; reasons for getting up: w = (a)wake, lbu/LBU: lower back unrest (‘RLS’?), p: pee, i: ideas.

ACTIVITIES: TT, e.g. "5:1"

TT = table tennis, 5:1 = score, usually showing how well I’m feeling: energy, relaxedness & alertness if the first number is much higher than the second.

SELF-TREATMENTS (about everything else...)

The self-treatments listed are only things that I’m spotlighting & rewarding myself for at the mo by counting them; much of what I do at night is self-treatment to get back to sleep or alleviate (1-2h/d), certain regular movements at daytime, like twist-stretching (30’), writing this blog is self-treatment (30’-60’/d), and the further fibro-work is an indirect form.
Self treatments are usually preventative or always have the same positive effect (e.g. cold showering improves Ache and sleep) - at least I do them for that - and I use “:arrow_forward:” to show what I’m doing to alleviate something and mark it off in the details “:white_check_mark:/:x:” whether it works well enough for a time or doesn’t’, e.g. Ache :arrow_forward: cold fast shower “:white_check_mark:
fw = fibro-work, meaning reading and writing this blog, the reference base, on 4 fibro-forums and researching fibro-stuff on the web.
AuTr = Autogenic Training (usually to actively get - back - to sleep, so counting it as sleep and AuTr…),
cold/FCS = Flash Cold Shower (20’’-60’’) , I count it as 10’ tho.
breath-hold/WHM-B-H = Wim Hof Method Breath-Holding,
Neck 1 is stretching top right to bottom left, vice versa & sky/ground, neck “1+” is stretching far further diagonally downwards, neck 2 is pressing my head against my hand “without moving”, left right and front.
loins = loins/groin = stretching the ligaments there.
ex = exercises
HWB = Hot water bottle,
RR = bp = blood pressure (Riva Rocci), plus pulse. Used to be normal, plus sometimes white coat syndrome, went up since fibro, seems to have gone down again, but I’m still sort of on meds, candesartan 16mg, instead of 8mg plus lercanidipine, cos I saw that c. has less side effects.
:new: “V” for loins = lie on back, legs up and let legs fall to sides;
:new: twist-stretching more for the loins

2021-06-19, Saturday

Sleep: 10h10, up 5x (1h05) :left_right_arrow: Feeling 90% well, pain 1 of 7 :white_check_mark: (750+0mg GABA)

Sleep details

20:45 Passiflora, 21:00 GABA
21:18-
23:22: 9’ pee/pain 0. thumb. drink. fw 6’
23:47 9’ pee/pain 0, thumb, drink, too hot: 1’-cold shower. Dozing - AuTr 5’
0:24 40’ Cold didn’t help: 6 did. Try to curb more.
3:41 3’ pee/pain 0, thumb, drink, body lotion on itchy right shin
6:50 3’ pee/pain 0, thumb, hungry & dry mouth → drink
-8:33
Next up: GABA? (+750mg??) Not nec.
Sum: 2h42+8h33-(9+9+40+3+3=)64’= 11h15-1h05=10h10, up 5x (1h05)
Wdntve thought I cd gt that far and wake up with eyes that closed without more GABA. The heat? :sun_with_face:
I’m wondering whether I can get using the 3 things that help sleep more into a routine or whether I have to get a feeling for which one is best.

Activities: 3h :left_right_arrow: Feeling 90% well, pain 1 of 7 :white_check_mark:

Table tennis (TT) (and ‘development’): :ping_pong: :ping_pong:

Like other days of late my muscle control started bad today, for 3 games, after that it was good for 2 games, then off and on, so altogether 3 games and 2 1/2 games bad, and “half” a game was enough to lose, so that made losing 5 games.
I’m taking it easier now. I have been watching it for many months now as a measure for how well & able-bodied I am, esp. regarding work. However I’m now seeing that lack of muscle control isn’t that important for my other activities. It is important for cycling in traffic, leg co-ordination on steps etc., but those are more leg things, and in table tennis it’s the arms which are less controlled (but sometimes legs, sometimes all of me, all co-ordination suddenly breaks down for a short time).
(Development:) Now I’ve toned work down to 20% that’s stopping me from overdoing it there, and so I don’t have to watch TT as closely. And at the same time as working less I’m managing to play more (last year I cd only play 4 or 6 games with lots of 3’ breaks and my mate had to pick up the ball all of the time). My life is in more of a balance, stabilizing. OTOH I can’t always manage 2h of grandchild a week or 2h of music production/singing every week. It’s not a question of reducing table tennis as I feel I need it to ‘survive’, for my body, mind and soul, for fresh air and laughter, and leaving it wd not allow me to increase work, grandchild or music anyway. That’s easy to see now, as due to work we never play in the mornings any more, except sometimes at the weekends. So it’s not the case that TT makes it harder for me to do anything else.

Taking it easier at TT means I do sometimes try to put a little bit of energy and strain into it, but neither let my muscles nor my inner stance get taut again which can lead to Ache and needing to rest afterwards, which then isn’t the case any more, whether we play 8 or 10 games.
I expect to lose and can then observe my playing better when I do get points.
For the time being I’ll be counting the games where I have reduced muscle control.

Today it seemed to be happening more when hitting the ball hard, but it also makes it hard for me to use spins.
It tilts the games in one direction/trend for a time. This usually happens with lack of concentration (energy, thoughts) and can be changed by pulling yourself together. Since using more GABA I seem no longer to be able to pull myself together, “it” comes and goes and its own will, no longer at my will.

Activity-details: cycling 1h06, TT 1h10 3:5, shops 40'

Cycling 3+3+5+5+5+5+20+20=1h06…
TT 0:3 → 2:3 → 2:4 → 3:4 → 3:5, 1h10
shops 2x20’

Sitting

Sitting-details: legs stretched out & changing positions spreads the pressure

11:10: “First pain of the day” after 5’ of sitting on a kind of modern armchair. :face_with_monocle: :arrow_forward: half-sitting on floor, legs to the side, leaning on my couch :white_check_mark:
11:50 Sitting on the floor without a pillow, both legs stretched to the front, leant against the couch hurts my coccyx a bit, but not my buttocks.
12:00 This sitting leaning against the couch allows quick changes in position. Now realizing the coccyx is hurting I’ve put my right foot under my left stretched out leg, so now only my right buttock is getting pressure. 12:05 Left foot under right. 12:10 Legs straight.
For eating I realized normal sitting is quickly very painful, inside of 5’, so I adapted the sitting on the floor, by putting my legs up to the chair next to me and regularly changing positions that way, which helped quite a bit. Then it helped :arrow_upper_right: to do a shake-dance after, and :arrow_upper_right: to hold myself up just with my arms and let my spine hang freely.
14:48 Put my laptop on my couch, leaning on there, legs to one side. :white_check_mark:
Bike saddle :x:, altho leather, best when spreading the pressure.
Park bench outside :x:
Deck chair on the balcony :x: - only give if I twist & squirm.

Treatments: 55’ (self) (fw 3h40…)

Effects of !750mg GABA, 3x290mg passiflora: Good sleep/stiffness/energy, so-so TT & pee pain

I was surprised how well sleep went. Pee pain 0, except ~15:00 3 and 20:00 2.

Effects of acupressure: Loins & back good, sitting next to do

Loins great all day, pain 0. Lower back was good tonight. … Sitting is the next big one.

Physio-type self-treatments: 54', fibro-work 3h40...'

:white_check_mark: AuTr 10’, Timing, hunchback-hard-cushion 5’, cold shower 1x(10’), palpate 1’, belly 3’, back 7’, workout 5’, gums 2x30’’, thumbnail 10x30’’, V 2’, twist-stretch 5’, = 54’…
:x: neck 1+ ‘, neck 2 1’, yoga ‘, loins 1’, marionette-hang 1’, breath-hold 11’, shaking dance 1’, RR x2’

Fibro-work: 19:30: 25’, Night: 5x1’=5’ 11:10-12:52: 1h32 14:20: 20’ 15:30-16:20: 50’ +~30’ = 3h40

Development: See TT and sitting.

Abbreviations & explanations

Entries start with night meds & sleep, before activities & treatments, because the “night before” is vital. So Fri-day starts with Thursday night, the night before Friday.

Pain "7" = crying (/out) point; my 1 is others 2-3, and due to pacing/treatments

My wife says my 7 is other people’s 12. 1 is probably 2-3. Due to pacing, keeping work down to 25% (12h/wk) and all my treatments (acupressure, GABA) and physio self-treatments I manage to keep getting my pains & Ache down quickly. 3 usually means the Ache, not pains; these I address individually, often automatically and on the fly now, e.g. twist-stretching everything or something specific after getting up.

TIME DATA, e.g. ' = mins, h = hours, 18:10:40', date YYYY-MM-DD

’ = mins = minutes, ‘’ = secs = seconds, h is hours as time length, 3h is 3 hours long, 3:00 is 3am, 15:00 is 3pm. 18:10:40’ means 40 minutes, starting at 18:10, = 10 minutes past 6pm up to 10 to 7pm. The date is the logical digital standard: YYYY-MM-DD.

SLEEP: slp, w, lbu/LBU, RLS, p, i

slp = sleep; reasons for getting up: w = (a)wake, lbu/LBU: lower back unrest (‘RLS’?), p: pee, i: ideas.

ACTIVITIES: TT, e.g. "5:1"

TT = table tennis, 5:1 = score, usually showing how well I’m feeling: energy, relaxedness & alertness if the first number is much higher than the second.

SELF-TREATMENTS (about everything else...)

The self-treatments listed are only things that I’m spotlighting & rewarding myself for at the mo by counting them; much of what I do at night is self-treatment to get back to sleep or alleviate (1-2h/d), certain regular movements at daytime, like twist-stretching (30’), writing this blog is self-treatment (30’-60’/d), and the further fibro-work is an indirect form.
Self treatments are usually preventative or always have the same positive effect (e.g. cold showering improves Ache and sleep) - at least I do them for that - and I use “:arrow_forward:” to show what I’m doing to alleviate something and mark it off in the details “:white_check_mark:/:x:” whether it works well enough for a time or doesn’t’, e.g. Ache :arrow_forward: cold fast shower “:white_check_mark:
fw = fibro-work, meaning reading and writing this blog, the reference base, on 4 fibro-forums and researching fibro-stuff on the web.
AuTr = Autogenic Training (usually to actively get - back - to sleep, so counting it as sleep and AuTr…),
cold/FCS = Flash Cold Shower (20’’-60’’) , I count it as 10’ tho. At night with ear plugs & all lights off.
breath-hold/WHM-B-H = Wim Hof Method Breath-Holding,
Neck 1 is stretching top right to bottom left, vice versa & sky/ground, neck “1+” is stretching far further diagonally downwards, neck 2 is pressing my head against my hand “without moving”, left right and front.
loins = loins/groin = stretching the ligaments there.
ex = exercises
HWB = Hot water bottle,
RR = bp = blood pressure (Riva Rocci), plus pulse. Used to be normal, plus sometimes white coat syndrome, went up since fibro, seems to have gone down again, but I’m still sort of on meds, candesartan 16mg, instead of 8mg plus lercanidipine, cos I saw that c. has less side effects.
:new: “V” for loins = lie on back, legs up and let legs fall to sides;
:new: twist-stretching more for the loins