JayCS’s Fibro Blog

Day 1, Monday: Reducing “bad hours”: Moderate: 0’, bad: 1h35, rest good

OK, completely new focus now, on reducing bad hours after actitivites and more effective organization.

Remedies: Got out Q10 again. Taking 5HTP. Bought GC dry mouth gel. Use up all the supp-pills sometime. Can’t find the new nosestrips I’m sposed to have received 10 days ago.
Analyze my 24h bood pressure with a large span - probably won’t help much tho.

After table tennis 11:07 wrist, torso, shaky 5. Rested, but 11:30 Song. Torso 6! Drat. But fun! And good cycling 12:45 = bad 1h35
12:45 to acupressure good, apart from lower back stings, even cycling, 2 stores, = good
4:05 Still good, just a little feverish, Watch out now back to song… caarefulll… 7:00 still OK, but 10’ housework tooth-ache and feverish, still OK.
(Sneak preview? Not yet authorized by my teacher… and at least one part definitely needs more work…)

Bed 9:40 still pretty good/OK! But taken care - so what, that’s still good 9h!

Yep, that really is a cute parrot-pic!
Looking at the 3 headed-creatures long enough or blurred enough could make it real…
A Broadway-Snow Time-like-Showtime-song would stretch my genre-limits even more, but then who would’ve thought I’d be doing melancholy Brit-Pop and a mini-musical about a cute dog…
Probably coming up tomorrow… :smiley: - my wife is suggesting to post it already.

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Awesome! Can’t wait! :dog: :musical_keyboard: :musical_note: :musical_score: :smiley:

Hi, JCS.
Looks like you are doing well, figuring out how much work your body will allow. As far as why we have so many bad days, I think it is not just one thing, but a combination of things. For me, working too many hours, allergies, winter weather, stress of the holiday season, worrying too much, not enough sleep, not enough activity, too much activity, etc… Sometimes you can feel like you’re listening to your body and doing everything right, but you have a terrible FMS day. It can be disheartening, to say the least. Hang in there! You are terrific at listening to your body, btw! :blush:

PS: why does “OK” mean you’re not okay?

Day 2, Tuesday - Good, moderate: 30’

Good night’s sleep, 9h20. Could sleep till almost 8. Few breaks, only one longer, due to headache! No pains, negligible Ache (1), stiffness better (3).

IBSD at 4pm is gone 0 since I left off the sour gherkin at 1pm. :white_check_mark: (too sour? pity!)
P-pain almost gone 1 after a certain exercise. :white_check_mark:
Still headache at night 4 calls for reducing blood pressure meds even more? :white_check_mark:
3h on the song in the evening was no problem 0-1, in the morning directly after table tennis was praps the problem. :white_check_mark:
No lower back problems of late (last week), apart from the pin-stabs during acupressure: From thigh treatment plus back exercises 2x? :white_check_mark:
No thigh stabs tonight. :white_check_mark:
(Analyze my 24h bood pressure)
Aaah, is this what life without work feels like :interrobang:

Q10 (because of ‘muscle pain’ perhaps by the statins for my cardiovascular issues):
Just looked up my notes: Was enough in my bloods. There’s old studies to take it together with ginkgo. Can be compensated by nuts and legumes, which I eat lots. Only if very high cholesterol, mine is down due to diet. Reduced intracellular amounts of ATP, which I seem to have had, altho docs said that isn’t really measurable.
It seems it also has a positive cardiovascular effect, for me relevant is that it increases the good cholesterol, which I could do with a bit. The article on helpherself.org (linked to a dead link) recommends close monitoring, which would not be easy, since my blood is flowing well, despite the plaque. There’s also articles which link it to fibromyalgia/ME/CFS (results are slightly encouraging, an overview concludes, perhaps reducing pain, depression and headache, perhaps as antioxidant, perhaps on a mitochondrial level.).
The mayoclinic.org lists 9 side effects, all of which I am very sensitive to. So NO!


Only not so good time was stressing about getting to granddaughter in time and getting songs ready for my teacher in time, 15 mins each = 30’ (not bad tho). Rest really is quite good today, better than just OK. Taking everything easy, respecting limits, not overdoing, lying down in between…
OK outdoor table tennis with mask over mouth (no-one near), 4 games non-stop, not stooping, then 1 quick errand. Still OK. Improving songs lying down OK, 2h zoom meeting with friends mainly lying down: strained, so I did other things during the last half hour. Song 15’. No rest, housework. I’M STILL GOOD, tho.
Bed fairly early… :smiley: Wow!

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Day 3, Wednesday - Going well, bad 0’

Sleep: Good again, 9h35 - 4 breaks. After cold showering bc of unrest at 4:45 it felt like only dozing, but time actually went too quickly. No pain, no Ache, no stiffness, a 4th good day in row is coming up. Bulk is probably not working, but praps the 5HTP is doing something too, I’ll see that in Jan, but continue taking it.

I’ve got a list of docs doing ozone-injections, none in town, but the closest in 20-30 mins. bus distance, I’ll try to get an appt from the 4th on. The second closest is 50 mins.
My rheum. tried to phone me Monday bc of Sjögren’s, so just for the record (she won’t want to know and has Christmas break till the 11th I just checked) - Everything I’m doing and is definitely helping at the moment:

  1. TCM/Acupressure/light with trigger point-type massage before 2x1.45h/wk - helping most of all - also sharing further good ideas during that.
  2. Whole body cryotherapy 3’m 2x/wk before that. Works a bomb stand-alone in the “summer”.
  3. Sleeping 9+h/n, from 9/9:30 having pretty much solved 30 wakers, incl. blackout blinds & ear plugs, Sinupret herb-pill for clotted nose at 4am, night shift on laptop 4pm-9am, cold showering for unrest, soft topper on hard mattress.
  4. Cold washing wrists & underarms 3x/d, thighs 0-1x/d, cold showering 0-3x/d, hot water bottle after if nec.
  5. Wim Hof Breath-holding exercise 0-20’/d.
  6. Arnica complex cream (Traumeel) and hot water bottle or spelt cushions, cold showering, stretching as needed for pains & Ache 0(-5)x/d.
  7. Sports: 30-40’/d table tennis, 30-90’/d cycling. 4’-workout if possible. Resting with legs up 1h after, & best in between 3x2’, arms too.
  8. Back exercises before and after bed for back, yoga for pains in back & joints 0(-30)’/d.
  9. Hand exercises, esp. while cycling (cupping & straightening, single fingers, creeping).
  10. (Warming with cupped hands and gentle Gua Sha with a jam jar lid for itchy/dry eyes.)
  11. (Gurgling with Marigold essence (40% alc.) against CoV, sore throat and skin problems, tea tree oil for more severe skin problems, Sinupret and Umckaloabo for immune system.)
  12. (Leaning back against u-pain.)
  13. (Elimination diet & if nec. Gastritol (herbs) for hyperacidity and gut IBSD, psyllium for IBSD. (Last: no sour gherkins.))
  14. ((2 blood pressure, plus 2 blood fat & 1 blood thinner meds, Mediterranean diet for blood fats = legumes & veg, unsaturated fats: nuts & linseed & canola oil, complex carbs, not simple like sugar.))

Still! a good day… and getting things done.
Rain put table tennis off from 10 to 11:30, during which I dusted, tidied up and re-arranged my room-work-place (square bar table). Now I’m very achty-tired but happy. Definitely resting 12:05, eating a bit, then acupressure. Cycling back in the rain with 100% energy! But with mask on cos it felt good & comfy in the rain created an oxygen-lack/hunger.
Oh dearie dearie dear… at 5 I went for a short grocery shopping spree, 2 h later I’ve ended up with chaos: lots went wrong - but at least I kept calm about it, nothing got broken, and I’m laughing, altho I’m of course a bit weary, but still got energy.
Resting, eating, playing till 9, tidying room-chaos 1h!, bed at 10. Stiff and Achy at night as ever, but not counting as bad.

Day 4, Thursday - Christmas Eve - good day, apart from the outdoor service, bad 30’

Acupressure yesterday focused on dry mouth amongst other things. Tonight I tried GC dry mouth gel, didn’t help that much tho, just changes the dryness-discomfort a bit, so the acupressure again didn’t help there (like it did once originally for about 3 weeks). Also I’m thinking it’s not just dry mouth it’s dry all over: mouth, eyes, stomach, gut, skin, and I just had a small calf-cramp again, which in my case is never lack of Mg, it’s also drinking more. Maybe we ought to focus on general dryness more.

Sleep: Thighs 2x, joints 6x, dry mouth, itchy scalp, bit hungry, but wasn’t particularly stiff after enough sleep (10h10-25=9h45 incl. ±1h dozing). Might’ve been better earlier, I’d probly’ve dozed less.
Strangely I’m having a bout of focal seizures again, first 8th & 9th, now 2 today, making 4; only 2 in Nov and 2 in Oct. Usually that’s meds. What’s new? 5HTP. What’s the research? Some people’s seizures improve, some worsen, with melatonin also.
I almost never have seizures at night. The first one came about 6h after taking the 5-HTP. Makes me wonder what was going on the last time I took it, too. Looking up it was in May, where I didn’t register any seizures in my pain diary.
Interesting what will happen to my energy and pain when I stop 5-HTP again - on this epilepsy forum I read someone with increased energy (and more vivid dreams) due to 5-HTP. https://www.coping-with-epilepsy.com/threads/5-htp.512 , but also several people with increased seizures.
English wikipedia (as well as other sites too) also says “Potential side effects of 5-HTP include heartburn, stomach pain, nausea, vomiting, diarrhea, drowsiness, sexual problems, vivid dreams or nightmares, and muscle problems.”…

I could try L-Tryptophan instead (again), but I thinks it’s probably similar. Melatonin itself doesn’t go thru the blood-brain-barrier.

Here https://www.supplements-and-health.com/tryptophan-side-effects.html it says:
One of the principal L-tryptophan catabolites, 3-hydroxykynurenine (3-HK or 3HOK), augments oxidative stress in the brain and is able to induce depression , epileptic seizures, and other brain damage (Guilarte & Wagner, 1987; Stone, 2003; Wichers & Maes, 2004)

Things to remember:
Work’d be easier without mask! :bangbang:
Difference at the mo to non-fibro: Everything is always still tangibly there in the background, and very present as soon as I hold some position for longer.

Good day apart from the last 15’ of the outdoor Christmas service (standing in the cold, despite longjohns and rain legs) and warming up and moving afterwards. = 30’. (But the service was sweet.)

Day 5, Friday - Christmas Day - good day, 2h of it "moderate"

A “Christmas song” made my evening: Bethlehemian Rhapsody

Full 9h sleep, plus 1h of unrest, no seizure.
Table tennis, 4 games, without :exclamation: needing a break afterwards:
:arrow_forward: Cold showered before :exclamation: non-stop table tennis,
:arrow_forward: thin :exclamation: mask for more oxygen
:arrow_forward: 1 quick combined :exclamation: yoga exercise every time my mate had to get the ball on his side:
Turning my torso inward, with intense arm swinging too, around the supporting leg to stretch that thigh and torso at the same time.
If I do the same tomorrow and am still good, 5 games?

35’ phoning with my bruv - very exhausting: Let’s say from the last 10’ on. 1:40… 2:15…
The combined yoga exercise plus a 1’ workout helped at 3. All moderate, not bad. Let’s say 2h.

1h cycling at just above freezing point was a little hard first, but with 110% energy I could get pretty warm. I haven’t cycled as fast in months. Must’ve been something like 35kmh/22mph for about 2 mins, then down a bit to not overdo it. Wow - this is spooky - where is this energy coming from?
OK in the evening, but underlying worn out a bit by not enough lying down… still with energy.

Got (only) things to keep warm for Christmas: warm socks (the 90% wool with 10% mohair unfortunately is making my feet itch so I can’t sleep), warm oversocks (unfortunately from synthetics, which suffocate my skin), a warm topper for my mattress (unfortunately wool with synthetics) and an electric heat blanket (only synthetics, but that might be OK for a short time to warm up in my office at work). My body is hard to please. Luckily I don’t need anything to keep happy :smiley:
Worried about son with new girlfriend coming with grandchild, they’ll have to accept that we’re keeping outside, despite the cold.

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Day 6, Saturday - Good, at least fibro-wise

Hmm, somehow a night posting didn’t get saved, and refreshing the page killed it, not in drafts either Something like: Woolen socks had made my skin go haywire, and then I had a very vivid dream (5-HTP-inspired) about having to do a ?theology exam, but the examiner was Rosa Parks, and she had dramatically died the day before - also I hadn’t even realized that the exam was set… still churned me up.

Table tennis 5 games non-stop was good, “cooking” (cutting and stewing veg & potatoes), cold shower, 1.5h son/gf/daughter - still good. (My worries were realistic, it wasn’t easy with them, I wasn’t particularly competent at managing it.)

Done the topic post you suggested at last:

Day 7, Sunday - Pretty good once again, 1 week - last night of using 5-HTP… O.o let’s see :face_with_monocle:

Slept 10h40! (plus 6x5’=30’ breaks, no vivid dreams, no seizures). Bit weary.

Ooh, I must say: the hot electric blanket may not be organic and thus suffocate my skin a bit, but as my wife likes a room temp of 19°C/66°F I do often need something more than a hoodie to keep me warm and it was just a brilliant help. Thinking of using at work when my/the window’s wide open, but it might have a place at home, too…

Cheating a bit: May not’ve been able to do that much today, but it’s a gloomy Sunday, so I’m making myself comfy anyway and not counting it as not-good. Going outside maybe wd’ve helped.

My thoughts on 5-HTP for more melatonin for more serotonin in @Starr1’s thread:

Picamilon against hyperlipidemia (high blood fats)(?)

is said to help against hyperlipidemia (probably only inferred from niacin), which reminds me that my lipoprotein a levels are far too high, triglycerids a bit, and I haven’t tried niacin, carnitin and ginkgo against that yet (which may be due to needing xylite chewing gum for my teeth/dry mouth, altho I am using a bit of sugar again, esp. now at Christmas…). Just mailed my lipidologist about this, cos she works for the university who’d done research about this.

Day 8, Monday - Pretty good once again, 1st night without 5-HTP… - Energy!

Energy down to 70% till acupressure :soon: 85%.
Social stress is the main thing at the mo that’s making me flare. Is that then the problem at work?
Just walked around the town centre enjoying the lights for about 2 hours in the cold without longjohns. Was just the limit, warming up is good now.
Missing table tennis, mates haven’t got time (yesterday too rainy), Saturday 5 games non-stop without problems, I forgot to say (:arrow_forward: edit).

OH MY, JCS!!! I hope you don’t mind, but I made a new topic for the song you posted (Bethlehem Rhapsody). So creative & beautiful! Thank you for sharing this “Christian” version - Love it! :blush:

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Day 9 without work, Tuesday - 2nd night without 5-HTP… - Energy! (80% :soon:100% )

Not quite that good start, no social stress. Ache 4 and energy 80%, so table tennis only 4.
But energy up to 100% later, cycling really fast for a short time, even sweating, no problem.
Spontanteous meeting with a friend of ours for 2h was really good, no stress.

My 24h-blood-pressure on the 11th/12th: Very high at work and after 8pm. But: That was the day after I’d gone to bed at 23:30 with a lot of Ache etc. Checked tonight: Around 120 till bed.
Sports: table tennis, cycling etc. was OK, sitting/lying/sleeping/breath-holding: 90-120, so low.

Day 10 without work, Wednesday - 3rd night without 5-HTP… - Energy!

Sleep good, but strange 10-8:30, -1h20 = 9h10. (pretty awake 2x; got up, when less Ache)
“Finished” MISS Bella of the Living with Fibro Community… (if I ever am satisfied with anything…)

100% energy, e.g. whilst cycling. After acupressure she’d showed me a way to stroke over the (meridians of the) legs down outside and up inside, then arms down inside and up outside, then over head and back to see if that manages the stiffness.
Then 6 non-stop games of table tennis, a few seconds of my new combined yoga back/thigh/foot-exercise in between. Don’t need breath-holding, cold showering, more yoga or other exercises.
BUT: My wife just looked at me if I’d told the acupressurist that this fibro-flare is not one bit better than one year ago, that it’s only everything I’m doing which is giving me the “good life” - as I call it. Let’s try to disagree: All my pains (back, joints, clavicle, teeth/jaws, cramps/spasms and partly urethra) and my sleep disturbances are under control, they were all on overload till about August, but my *sleep amount/*time is still very high, the stiffness is “always” there, the Ache, myofascial-torso pain and feverishness as soon as I try a bit of what used to be normal. My wife sees the stiffness and the Ache, but she’s throwing the baby out with the bathwater. She’s right tho in that my acupressurist has sometimes been too optimistic and needs to be reminded of the fundamental problems which she doesn’t see. I told her today that the stiffness “at home” after 10 mins is about double of when I get up from her bench after the 1.5h of acupressure treatment.

My acupressurist asked me where exactly the stiffness is - joints or limbs? is easy: limbs, not joints. Inside or outside? No!, actually most of it is at the “tendon insertions”, i.e. at the ends of the muscle tendons/insertions. That’s why I partly agree with the 2nd rheum., who diagnosed the fibro, but said it was “more exact” to call it “polyinsertionstendomyopathy”. But I disagree, because *that isn’t my main problem, it’s the Big Ache, exhaustibility with fluey-feverishness, myofascial-torso pain and sleep need & disruptions. There’s much more to “fibro” or whatever anyone wants to call this syndrome/ collection of symptoms.

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AMEN! I’ll say it again…AMEN! Something I read about FMS really stuck with me. Fibromyalgia causes the body to remember your pain, and it MAGNIFIES it. So, the pain and discomfort from all of these other conditions that go hand in hand with FMS (IBS, depression, anxiety, -Lost my train of thought here. Bella wants me to toss animals up in the air for her- arthritis, migraines, etc…, etc…) are a thousand times worse than they should be. You, JCS, listen to your body better than anyone I’ve ever met, but it’s like the FMS is right there, tapping you on the shoulder, saying, “You haven’t beat me in this area yet.” You eat what is good for you, exercise (like we all should be, but probably aren’t), use the therapies that can best help your ailments, and your body continues to fight against you!
But, you know what? Never ever ever quit fighting, my friend! It encourages the rest of us to continue on. :purple_heart:

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Day 11 without work, Thursday - 4th night without 5-HTP… - Energy!

Sleep: Like last night I slept thru for 3-4 hour a stint, but was then pretty awake the 2nd time at 5, which is worse than waking up drowsily 6 times. :arrow_forward: Warm shower.
Anyway: just noticed a :two: 2nd kind of stiffness in the lower back and thighs (and ankles) when standing for 10 mins. - Seems to depend on which position, the :one: tendons are after lying down.

Dozing around (10:25-10:10 -1h40 = 10h10) I just had a brilliant idea for deciding how to carry on trying to work: What is best for my body is best for me, since I have detected no soul benefit in working with fibro, even tho having made it into my dream job before fibro. Sports are important for my aging, my fibro and especially my cardiovascular issues. The only longer sports I’m managing regularly is table tennis. Work is not even allowing me to play the 4 games easily, I had to go down to 3 or even leave it out on some days at 40%, going back to taking breaks in between and after. Now in the break I have gone up to 5 and 6 non-stop, without stooping. I have surplus energy for longer walks, fast cycling and short workouts, I could even go to gym machine workout. Whilst even 1 hour of work is blowing my blood pressure up to 170.
And my body needs so much sleep that alarms are bad for my health. So I don’t think my body wants me to work.

This fits neatly to what I decided beforehand as an indicator: If I can’t play 4 games of table tennis a day, I shouldn’t work. Now it hasn’t been that easy, because I have been playing on almost every day. But I need to self-care even more, and going to work is not self-care, it is doing me harm, it is hurting me.
This new orientation has come from realizing that I’ve got my energy back due to the work break. it isn’t

changing my short-term work plans however, but for after that:

I will still continue the 40% in Jan, hopefully in home office, to see if that changes anything. Then I will also prolong the 40% into Feb. If no new positive influences come up, I will then take the option of working “50%” for 50+% pay plus 25% disability = 75% pay, but use up all my overtime first, working as little as possible. Ah, no, it might be worth taking the overtime at 100% pay, but that way I would forgo the 25% disability and waste it with my overtime. If I knew I definitely wanted to keep going a bit, then it would be more sensible to spread the overtime over a few years, using the disability (what my boss suggested). If I knew I definitely wanted to completely stop working soon anyway, it’d be best to use the overtime 100% without disability pay. At 100% I’d be getting 5h/wk off work-time, which would prolong it from about 8 months to perhaps 9. The disability pay whilst working “50”% would ‘get me off’ 10h/wk, plus half of 5h/wk = 12,5h/wk.

:three: Third kind of stiffness after sitting for a while: tendons above the ankles, but the muscles above the knees and in the backside.

Just realized my skin doesn’t even tolerate longjohns from organic cotton. :roll_eyes: I’ll try another pair.

6 games of table tennis non-stop, a bit of myofascial Ache, but still 100% energy.

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Day 12 without work, Friday - still :bangbang: good

5th night without 5-HTP… Quite a few breaks, but long sleep. My new woolen socks were OK tonight. :face_with_monocle: - after the longjohns weren’t :crazy_face:
:four: Fourth kind of stiffness: Doing back exercises in bed before getting up it’s the tendons above and below my hips and elbows, plus wrists. The ankle tendons only become a problem when I get up.
:five: as compared to :two: Tendons in pelvis and above and below knees, after standing quite some time. The muscles there are very taught, but the pain is not there, it’s in the tendons. Not much in ankles and wrists.

Full energy at the same time as full tiredness :interrobang:
6 games of table tennis non-stop, no problems, but my wife said I look kaput after, so I laid down 20 mins. Asking her after she nagged again about me keeping overdoing things and wishing I’d find someone to talk to about this, altho I keep telling her that I’ve got you and my acupressurist. Not helping. Later I started thinking that it’s a problem of various levels of symptoms: My energy is 85-95% now, but doing - even only a part of - what my energy lets me do makes me very tired, leading to needing more sleep and sleepiness a lot of the day. Asking her whether with kaput she meant ‘very tired’, she answered yes. When I lie down, like after table tennis, my eyes get very itchy. Itchy eyes could just mean dry eyes, but do dry eyes mean I look tired? I’ll have to do my eye exercises and then ask again I spose, but I can’t really imagine that helping. But having alost full energy and being completely tired is just as weird… :crazy_face: We’ve just been for an hour long fast walk, no problem for my energy, a bit of a strain for one knee and my back, so I did some of my speed-yoga, which was OK, but I my eyes were very itchy going out, outside and back in.

Longjohns (same) uncomfy again, took’em off as soon as we were back in from walking. Have to remember one of my thick hoodies over a normal hoodie next time, it’s getting close to freezing point.

If energy is connected with tiredness:
Could more energy without work be coming from more sleep without work ?
I’m heading for an avg. of 9h40 this week, last week 9h20. The weeks before 9h08/n (the 2nd week of 40% 9h15 wasn’t with any energy, but maybe mainly cos of the dentist?) An average of 10 mins more doesn’t in the least seem enough to explain energy going up from about 60 to 90%. And the quality of my sleep isn’t higher, I’m often dozing the last 2h and have longer sleep breaks than whilst I was working.
So: nope! (And of course not from less sleep, as I had that too.)
It still seems that more energy has a consequence of more tiredness and if possible more sleep, strangely.
My wife cannot see whether it’s ‘just’ itchy eyes from sicca that are making me look tired or full tiredness. I couldn’t be bothered to try to exercise my eyes today. I could buy some eye drops of course. Or exercise them. Or continue to try to spot another connection.

Praps my wife is right that having a tooth ache continually after 2 fillings is not a good sign. :roll_eyes: - I prophecy a new dentist visit coming up very :soon:

Day 13 without work, Saturday - Energy!

Dry mouth gel does not stop me getting a dry cough from the dry mouth. Lots of short pangs of about each kind of pain, up about 8x most worrying are teeth and eyebrow (= trigeminus?). That should teach me not to go to bed later (10:30).
pix 8 until you learnt your lesson small

Energy does seem to be disrupting my sleep rhythm a little, making me stay up before and during. :arrow_forward:
Stop it. Main problem’s been compulsiveness about finding the pics/memes.
(There are so many good ones! Really makes me realize how much company we have.)

Energy still full! What joy to speed around cycling in the fresh air.

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Day 14 without work, Sunday - Energy!: 8x table tennis

Bed earlier 9:45 (not really early enough), 12 Really intense acid reflux suddenly: OUCH!! :exploding_head: Why? A bit of tomato, a bit of vinegar, but mainly a load of cinnamon (which in most people helps) and sour-tasting, vitamin C heavy baobab powder (which also got up my nose from inside), because it seemed to taste like nothing much at first. Darn risk-taking.
:x: It was the cinnamon, not the baobab, see post #192 on Jan8.
Sleep was then 9:45-8:45 -2h05 = 8h55.

Sleeping was thus a tough job, getting up when a certain deadness left me, but eyes not open, stiffness in the pelvic tendons or muscles, not sure. I want to try watching the Deadness, which starts in the early evenings, remains all night, gets better when I’ve slept 9h, and I try to get rid of by exercising, getting up, pressing the cortisol point, showering. It seems related to the Ache, but somehow different, or is that just the intensity?

A reminder where I am with my main symptoms: TCM/acupressure has helped a lot of pains, plus sleep, cold, leg-energy & breath.
I’m still struggling with sleep, the Ache, stiffness-ache
and when working: feverishness, after talking a lot: again, the Ache.
Gonna target the stiffness in the acupressure next, because that’s what she’s asking for and also might be the egg, whilst the Ache and sleep might be the hen :wink: (pardon the deliberate gallow’s humour using this hen&egg-analogy). She also wants to improve my sleep, but isn’t getting further, after initial help.

Activities 8! games of table tennis, fairly non-stop, 1h zoom meeting with bro & sis, 10’ dancing, 30’ hoovering, 20’ cooking - but still not much treatment necessary, a bit of arm-body-swinging yoga all the time was enough. No breath-holding, etc., cold showering only at night.

5pm Just had a total eosophagus-block again for the first time in months. After eating raw carrots, well chewed, room temperature. Immediately tried heat on it, a spelt cushion, but after 10 mins I didn’t think it right to stand the discomfort & pain any more, very exhausting, so got the block out. I think it had to do with the acid reflux last night, which will have severely burnt my esophagus. However I can’t find any relation between my heartburn dates and my esophagus-dates and I can’t find any other reflux dates. Hmm… have to :arrow_forward: watch for that connection now: esophagus-block with reflux or heartburn.

Come to think of it, I’d eaten at least 5 small tomatoes in the last few days too, and my a is burning - maybe that ‘helped’ the other 2 symptoms as well. My wife had bought me a salad-mix and I’d forgotten to give her them…
(btw A fibromite in the rheum./fibro clinic had these blocks too. My allergologist has no clue, the last ENT suggested a digesting examination, but as it only happens occasionally I can’t really imagine that making sense, at the most directly after it happens.

Before, 2020 = carrots: 3x (severe), tofu 4x moderate, 1x severe, tomatoes moderate 3x; more strikingly: much more with the overall pains exacerbated by doc-therapy & -exams in Feb 9x, Mar 7x

(Oct 18th, but not as painful, July 31st, also, July 21st severe after cold yoghurt, May 19th after raw fennel, May 13th & Apr 28th & 20th moderate, tofu, March 31st & 25th severe, carrots, 24th moderate, 15th moderate (muesli?, 12th severe, gluten-free bread), 10th moderate, apple-juice!, 2nd severe tofu & severe gluten-free bread, Feb 28th light, 23rd moderate, chicoree, 19th moderate, salad, 17th & 16th light, 15th moderate, apple juice, 14th moderate, tomatoes, 13th moderate, tomatoes, skin-itching thru Metamizol-trial, 12th moderate tomatoes, moderate quince).