Hi everyone! Here I am again lying on my couch in a lot of pain. What is going on? It seems like I’m having increased pain starting about 8:00 at night. It takes me on average three hours to fall asleep even if I’ve taken my night meds an hour before going to sleep. I hurt all over. My arms, legs and feet do not want to touch the mattress. Does that make sense even if there is such a thing. If I move, my pain increases. If I use my arm to move the covers, my arm really hurts. If I turn in bed, man does that hurt. My right arm, wrist and hand are really hurting just typing on my iPad. Why do I hurt more at night? I just want to be knocked out until the morning! I hate tossing and turning trying to find a comfortable position. I don’t think the meds are working! I take cymbalta, Gabapentin 600mg three times a day, a. Now my iPad won’t let me see what I just wrote. Sorry if the sentences are all mixed up. I take Gabapentin 600mg three times a day,amitriptyline 23 to 50 mg at night. I am also so tired in the day. My psychiatrist prescribed Ritalin 20mg twice a day to help keep me more focused and awake. That really doesn’t help. Everyone, I’m so sorry for venting like this to you. I wish everyone peace in your hearts. I hope you can read this. Even I can’t see what I’ve written. ? I thought about buying a feather mattress pad. I have no idea
Owweee…doesn’t sound good at all, Freedom. Are you still seeing your rheumatologist about fibro?
Yes , always higher pain in the evening…
I think of it as my muscles paying me back for everything i made them do , during the day😳
I am having physical therapy now and it exhausts me , but i know i need it…i got very weakened with late flu…
Also the weather is so wet this year, and barometric changes make things worse with fibro.
Hope tomorrow is better😊
Hi. I bought a feather mattress pad and it didn’t help at all. I agree with Lmd, when I’m in higher pain in the evening, I figure it’s my body reacting to the days’ activities. I can’t find a comfortable position most nights, either because my hips hurt so badly (no sleeping on my side) or my hands hurt so badly. One night, my feet hurt so badly I couldn’t have sheets or blankets touch them. It got so bad, I went to the ER where they diagnosed gout and spent a lot of time explaining to me the sins of drinking. (I don’t drink - and can’t on most of my medications). sigh
I know it sounds counter-intuitive, but have you or anybody else tried weighted blankets? They are supposed to help when you are in pain. I haven’t bought one yet because I’m always so hot and sweaty (plus they are expensive), but people I know with fibro swear by them.
FYI, I have yet to find a drug that can knock me out at night. Most nights, I’d give anything to be unconscious and escape the pain. It’s 5 am on a Saturday morning and I’ve been awake an hour after sleeping only 3 hours. My doctor has bumped me up to Zopiclone, which is addictive so he only wants me to take it for a short period of time in an attempt to normalize my sleep patters – but it does very little for me.
I am just the opposite - extreme pain during the night and in the morning. i begin to feel good about 5 pm and until bed at 10 pm. I usually go right to sleep, but wake up every 45 minutes to one hour all night. i have tried amytriptline, Xanax and melatonin but they are no help at all. I sleep pretty good from 5 am. to 9 a.m. and then the pain is awful. I use a massager and sit on ice packs for an hour before I can actually move. I do have herniated discs, but no doc seems to be any help. I take Norco and Naproxen for pain and Xanax for anxiety. The ONLY help i ever had was cortisone shots every 90 days, but that gave me osteoporosis. Doc said it would, but it also gave me 10 years of living.
I have never considered suicide but when I read of it in the paper I feel like I can’t blame the person for that extreme if he/she hurts as bad as I do. Am open to suggestions. have had this fibro for 40 years. I am 75.
Hi Carolyn, I am soooo sorry for the pain you have experienced both physically and mentally. My heart goes out to you. It seems like you haven’t found the right doctors to help you with fibromyalgia and pain. Are you seeing a rheumatologist or pain doctor? There are many different medications to help you with sleep. I have a rheumatologist and a psychiatrist. My psychiatrist really has worked with me to get me on the right medications for sleep and anxiety and depression. My rheumatologist mainly helps me with symptoms and Fibro pain. By the way, she is the third Rheumatologist I’ve seen in 10 months. Unfortunately, you have to be your own advocate. I have had suicidal thoughts in my life. I don’t anymore because I started to increase my support system. I have met a lot of wonderful, understanding people at my church. I’m not always able to go to church due to Fibro, but I try as hard as I can to get there. You have all of us who care about you! I do hope you reach out to people or doctors or new doctors. You deserve peace and kindness.