I have been living with FM and CF, for over 30 years. It’s an exhausting illness, that many doctors, even now, think it’s a lot of bologna. I feel that my nervous system just totally crashed one day. Suddenly, I could not keep my balance, stand up very long, couldn’t tolerate touch, sound and light produced migraine-like headaches and the pain was incredible. My blood pressure went sky-high. I had plenty of other symptoms. With my husband beside me, we went to Mayo Clinic in Minnesota (twice), various doctors in our area, and also to California. Along the way, I tried an incredible number of medications - some helped a bit, not at all, or made the situation worse. When I was “black-balled” by the area doctors because I had tried an unorthodox treatment regimen, I struggled to find someone to help me. Finally, my husband had me call a business acquaintance. She gave me the name of a psychiatrist: things were getting better. I did an extensive amount of research and read volumes of material on the topic. I spent a majority of my time sleeping, even in our business office. Although there is more to the story, suffice it to say that after feeling reasonably well for about 10 years; I slipped into a dark space in the last two. I haven’t quit trying because of the love and affection my dog gives me. My cats also keep me going. I pray that any research quickly finds a course of action.
Have a good week and thanks for listening.