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Living With Fibromyalgia - Online Support Group

I need some friends

#1

Everything is so different here. I havent been on here in about a year. I dont have a clue what I am doing and I cant figure out how to do the chat.

I am having a very hard time right now. I am 27 back at home with my parents for the last 5 years. It has been so hard. I even lost my job and career I was working towards. I went to medical and nursing school. I feel like I lost everything. Even myself. I just cant get going these days. The pain and depression is overwhelming and I dont seem to be looking forward to future days considering that there is no cure and I wont ever be myself again. My family looks down on me, they are not supportive, although they do let me live here. They dont want me here though. They treat me like a burden. And they get on me about every little thing.

Friends just dont understand and ive lost so many thanks to this illness. Everyone thinks i am just lazy with no desire to be productive in life. And they always think i am just out to get attention. So, i try not to complain. I laugh and smile when i can to seem better, but then at the end of the day it just confuses them because they want to know how can i be so sick but look fine.

I know you all have similar problems and you can understand what i am going through. I just need some friends that understand. I recently deleted all my social media because it makes me sad to see people doing this and that and looking down on me. They really take their health for granted.

#2

Teesa,
i do know exactly how you feel. you don’t LOOK sick so therefore you are fine right?? if people only understood that you don’t have to look sick to be sick. i mean you can’t see someone’s headache right? but they have one. why can’t people understand that you can be in total pain whether they see it or not. i am presently going thru a flare up. i am on week 3 and getting very discouraged. my husband got me flowers to brighten my day. my mom came to visit and asked where the flowers came from. i told her that i got them from my hubby because i didn’t feel well. She ROLLED her eyes!!
i feel for you. i do have support from my husband and many friends at my church. keep positive. try to do one thing each day. i can be an online friend for you. cheer up. there are people out there who care.
many hugs!

#3

I am new to this site… I’m trying to figure out how to chat also! If you figure it out let me know! Hugs ~Sue

#4

Hey Teesa! We all understand your feelings here. I don’t get on the site as much as I should - I always receive such benefit from chatting with the other members. But, like everyone else here, I am dealing with the fibro and all that entails. It is like my doctor telling me that I would feel better if I moved more. But when I hurt as much as I do, moving is the last thing I want to do, even though I know it would help me feel better in the long run.

Like you, I need more friends. In the last 2 years, I have lost my 2 closest life-long friends within 18 months of one another. Not because they chose to “unfriend” me, but because they both passed away. I can’t begin to tell you how alone I feel. My husband’s response was that I shouldn’t feel depressed, I still have him. I told him that I love him and his saying that, but it just isn’t the same. Sometimes you just need your girlfriends to get you through something and a man, no matter how much he loves and supports you, just isn’t going to “get it” the way your girlfriends will.

As I mentioned, I don’t get on here as often as I should. But, I will be your friend and try to respond to whatever you have to say.

LovePug (aka Patti)

#5

Teesa,

my heart really goes out to you. I am in a very similar situation myself. Please know that you are not alone, and that you are worth more than you ever know. Fibro can be so debilitating, I know that from experience. But to live through what we live through every day, it takes a lot of strength. I am sorry your family is not more supportive, I have learned that it is very difficult for people (even our own flesh and blood) to understand because they don’t experience this kind of pain and all the symptoms every waking minute.
Please know that you are always accepted and welcomed here, I am so thankful for you and my entire fibro family!

Blessings and prayers, hang in there!

#6

I know what you are going through. This daily pain can cause such depression and makes it hard to be able to, let alone want to do anything. You are not alone! I go through a daily struggle as well. I hope you are finding friends and people to talk to here! I also just joined this site so not sure how it works exactly.

#7

Hello Teesa,

Yes I understand just what your saying! Family members, friends, husbands, or wives don’t understand. Yes people think your lazy and just want attention. When you talk to people and say how your feeling they can have some really ugly things to say about you! For me they never tell me to my face. They talk about me behind my back! And yes that hurts like crazy. I’m married and my hubby doesn’t really understand fibromyalgia and I also have arthritis pain and stiffness. So me going to the mall shopping or going walking around the lake or doing cooking or cleaning isn’t the same. Sometimes I don’t even want to get out of bed to eat or get my shower :shower:. I have to push myself to do normal things in life. I just started taking Lyrica almost 2 weeks now. And I’m taking Celebrex for Arthritis and Tramodal for pain. I’m feeling better than I have been in years. Teesa I pray that you have gotten much better since this post. I also pray that you have more pain free days and less depression. Have a blessed and awesome day today!:revolving_hearts:

#8

Sue and Teesa, we’ve had some difficulties getting chat going here. We’re really sorry: nobody would love to be able to chat easily than I would!

Hang in there! Meanwhile, message away with your new friends here. We’re glad you’re back.

Seenie