I'm so ready for Life to slow down, but, it's one thing after another.
These questions don't have a thing to do with me, but, my 12 year old daughter. Here's what is going on:
About a year ago, we lost my dad. He lived with my daughter and I for two years, he my best friend, and took on the role of 'daddy' in my daughter's life.
For the last three years, she's struggled with some respiratory issues, that had gone undiagnosed, and the treatments given were ineffective.
In June, we were both blessed enough to begin seeing doctors with heads on their shoulders. A few months ago, she was diagnosed with Asthma, Small Airway Disease, and Fibromyalgia.
I had brain surgery a few months ago, and have to have another in a few months.
I myself have severe Fibromyalgia, Trigeminal Neuralgia, 4 herniated discs, and Degenerative Disc Disease.
This kid has been dealt some real crappy cards in this game of life lately.
Yet, she's strongand happy.
I'm determined to keep her in school, we have some special considerations in place for her at school, via the ADA section 504. As I have chronic pain myself, I'm sure I'm tougher than a 'normal' mom would be, when she's having a hard time with pain at school. After many different organizational methods, she's still terrible when it comes to doing assignments, and doing makeup work when she is absent. The problem is, she just doesn't want to do it.
The amazing thing is that, that's really the only issue we have.
Many of us have been there, once the pain starts getting bad, interfering significantly in our lives, the anger of 'why me', seeing 'normal'people, and feeling jealous. She's back and forth in accepting that this, for now, is life.
1. Are there any people in middle/high school, that could connect with her here? We all know how beneficial it is to connect with others in our situation. I'm aware that there is a young adults group here, but after checking it out, it seems that the majority of people in that group are in their 20s & 30s.
2. Any suggestions, nuggets of wisdom for us at all?