Sweetie, how ya doin? You said you have minimal pain with the neurotin/muscle relaxers but they don't always help? I take 800 mg of Neurotin 4x a day and as time goes by different Doctors tell me that I can take more...but I don't. I think that with all the meds I take I wouldn't be able to tell on way or another. I take flexeril as well, to go along with my Imitrex injections for my migraines, also for my muscle spasms and tremors but I double the dose for these ailments and I get good relief.
I would suggest to you to go to your Dr. appointments well armed with notes on your conditions, how you've felt in the last month, how this drug and that drug make you feel. (I always give new meds at least a good 2 wk to 4 wk trial and make notes of their affects) Go to your appts. like you're the boss, a nice boss, but boss none the less and let the Dr. know exactly what it is that is top on your ailment list and go down from there...don't let them sidetrack you with ailment # 1...get their opinion and let them know it's time to move on to # 2 and so on. Take a friend or family member with you to take notes...someone to play your "legal secretary" and that won't get caught up in playing nicey nice with your Dr., someone who will help you stay on track (cuz we have problems with that). Also I think it is important to let your Dr.s know that you're not there to add a bunch of new meds to your list...you are willing to swap out one for another if no affect has been successful from the prior...you are willing to try physical therapy, pain management, aquatherapy, as well as being referred to specialists, ie. neurologists, rheumatologist, psychologists (really helps with tools to manage life in pain) and most of all don't let them stack your drugs. If they want to try a new one, find out what it's for and if you're already taking one for that condition find out why the new one and find out how to go off the other, sometimes you need to wean yourself off one before the other and this may not always be easy or fun to do. They're real quick to say " okay well lets try this for your fibro but don't tell you what to do with the last med they gave you for that. Stacking the meds can actually make your condition worse and make you feel awful when you're trying to feel better, then you go back and say "I feel awful on that med when maybe that med would have worked if they would have told you to stop with the previous one etc.
I have multiple conditions and have to be very diligent with my different Dr.s to make sure one knows what the other is doing and why and how that may or may not affect what the others are doing.
Lastly, the financial ability to pay these days is being addressed all over the place. My husband recently became unemployed after 15 years with the same company and we always had good insurance. Little did I know that the clinic that I go to has a program for just this type of thing. I filled out paperwork and now have qualified for a 90% discount and my clinic also works with a local pharmacy that dicounts the prescriptions as well and has applied for me to the pharmaceutical companies that don't offer generics for their meds ( like oxy, cymbalta, requip, etc) and they in turn send the medications to my Dr. at no charge to me because I have qualified as low income with my clinic. Also, see if your clinic offers a patient advocate that can help you work through some of the more confusing aspects of your care and can do some or all of the leg and paperwork you might require to get your care and med needs manageable financially. You can also go to needymeds.org and see what they can do for you if you want to try to do some of this yourself. Being tired all the time sucks honey, I am there with you and have to force myself to be an active and productive part of my family although they are very supportive and validating, I still need to "feel" like I'm pulling my weight. I try to just stay in today...next week holds all kinds of things I could stress about so I'm better off in the today. I don't sleep very well too and have tried all the sleep aids and some of the meds I'm on my Dr. will say, "This might help you sleep as well" FAIL but their hearts are in the right place...I'm trying to be satisfied with the rest I get, at least I'm not on my feet which KILL by the end of the day. Try a good hot shower and fresh cotton sheets before you go to bed....I hit yard sales for the kind of sheets I like because you just can't find the old fashioned kind anymore and they want nearly a hundred bucks for the Egyptian Cotton ones that still don't have the feel I was looking for. This makes a big difference for me and my Chiropractor tells me that a hot shower is one of the best things I can do for myself and I look at it as an indulgence which is one of those tools I was talking about....be sweet to yourself, whenever you can! I hope some of this helps. Arm yourself with 'your' information and jot down anything and everything that you feel might be pertinent to your case and let your Dr. know that "their care" has either helped or had little or no effect on you. So now what?
Okay, that's about all I've got and my hands are numb ;) You've come to the right place, Good luck to you!