Has anyone been on these medications?

I have been on the gabapentin and it did seem to help me...I have not taken fluoxetine - is that for pain?


I took Fluoxetine some years ago for depression following back surgery...it's mostly an antidepressant & anti-anxiety drug from what I was told. I'm glad the gabapenten works for you.......has it made you gain weight?

fluoxetine is an antidepressant. It's supposed to help me sleep and keep me from getting depressed, that's what the doctor told me.



■■■■■■■■■■■■■■■■■■■■■■■ said:

I have been on the gabapentin and it did seem to help me...I have not taken fluoxetine - is that for pain?

Exercise is VERY important and is only part of the solutions for me. I see a personal trainer at least once a week and he really understands how to work with me. I wish I could workout like I did when I was in my twenties but have learned about my limits and pay the price when I exceed them. Those limits, by-the-way, have increased over time with gentle never-ending persistence!

I also had the same problems with Cymbalta. It helps some people but not me.

lfeiljj: http://tinyurl.com/7wus9w8 ***GO TO THIS WEBSITE, 3/4 OF THE WAY DOWN THE PAGE, THERE IS A BOXED OFF SENTENCE WITH "HELPFUL ANSWERS" ON THE RIGHT. This is who you contact that can help you get the meds for free if your insurance doesn't want to pay. Everybody uses these patient assistance programs now-- take advantage of it. The Drug Companies expect us to use them, and they are all really nice and easy to talk to. NO ONE can afford meds. I have insurance for Brand Name, but the copay is $70 !! I'm going to apply for other meds, thanks for reminding me. (I worked in a Doctor's Office & dealt with this all the time) But I think this is the best and easiest way for you to get it. If you want to try Savella, I can get you their # too, just let me know.

I've been on fluoxetine in the past with no results at all. Now I am on Effexor instead, with the Gabapentin 1200mg per day. Plus Zanaflex 6mg three times a day, but I only take that at bedtime, because it knocks me right out. I'm getting some relief, which is better than none for a change. Since I've already been on the Effexor for many years, I definitely think it's the Neurontin that helping. I was on Lyrica when it first came out; it did nothing at all for me. All my doctors want me on Savella, but there is a contraindication with my other meds. Maybe try Savella first? I've only heard good things, and Fibrogirl is on it, says it's the best! The only thing I would question is the stiffness you're having; the Gabapentin only works on nerve pain. Your doctor may need to add a muscle relaxer, which seems to common to this kind of medication cocktail.


Allen
: My Rheum has me on 300mg of gabapentin 4 times a day =1200mg. I just read that they are getting good results with Fibro and Neuropathy at 2400mg a day. But 3600mg ?? EVEN BETTER! I left a message for my Doctor about increasing it, but of course he hasn't called me back yet. I think I would do better at a higher dose, because it does seem to give me a little relief at 1200mg daily.
I've looked into meditation also, and massages scare me. I've made appointments and ended up cancelling. If my husband just touches my back or hip the wrong way, no matter how light the touch, I could go through the ceiling! In theory, it sounds WONDERFUL ! They always say they know how to handle medical conditions, but I'm still nervous. But that's great advice; To you give them your limitations upfront, and they don't respect it, then move on. If they hurt me though, I don't know if I'll do it politely ! LOL!


Geranium: You and I have talked before about MM. I wish I didn't live in NY. BUT OMG, have I gained weight !! And I do not eat. Usually one meal a day, when my husband comes home from work, if even that. HOW CAN I GAIN SO MUCH WEIGHT WITHOUT EATING??? I know I don't move much, but this is ridiculous !!

OK, talked too much as usual -- going back to my corner now ......... :D



Please start eating.The pills are making you gain weight.
I am following beyond diet.It is a low carb diet you can look up on the web.
You need to est some fats to loose weight.
Not eating will hurt you.
Joann

You have to be careful with massage therapists. Most MTs will listen and hear your concerns. Also, every MT's touch is different. Some are simply better than others. When I was diagnosed with fibro, I could barely stand a light touch. But over time I have been able to receive deeper and deeper touch.

If you communicate your needs, expectations, and potential response to touch to the MT BEFORE the massage, any competent MT should respect it. During the massage, communicate with the MT. Let them know what is working and what isn't. It's OK to ask them to go very lightly or very slow. I've only had one experience in my life (out of 500+ massages over 20 years) where I had to stop a massage. I simply didn't like her touch. The way I stopped the neck rub was "I'm sorry but this is causing my pain. I don't mean to be mean or rude, but I need to stop the massage. My fibro is flaring up and touch is hurting me today." Luckily it was a free neck rub from a class mate so it was no big deal. If it isn't working, don't suffer through it. The MT should understand. And if they don't, that's their issue an not yours if you've communicated your special needs and concerns up front.

Also, there are many different types of massage. Reiki is a form of energy work that does not involve touch and can be very powerful. Other types are warm salt wraps, warm stone work, cupping, sound work, myofacial. The internet is a great resource.

Have a good weekend everyone.

Renie I was on 1800mg/day of gaba for two years and my first rhuma said we could go up to 3600/day. My second rhuma disagreed and put me on Lyrica. Now I take Lyrica 50mg 3x/day with the same results.


I have found that if I break my Lyrica and Effexor dosages into 3 a day as opposed to one or two doses a day, I'm more awake and the drugs are better used by my system. Had to work with my rhuma to get dosages right.

I am on Xanax, Lyrica, Savella, Neurontin (gabapentin - 600mg per day), Lexapro, Vivomo, Namenda, and Tylenol with codeine as needed. After about 6 weeks, I am finally seeing a little results. Problem now is that I am so tired, confused, and have little short term memory. I am so frustrated as I cannot function without naps and if I drive, I am afraid I will get lost, which has happened more than once.

Obviously I am new here.... any suggestions are appreciated and will help.... Oh, BTW, I was taken off Plaquenil (SLE) and now I have glaucoma..... I am miserable.

Thanks Joann--I'm already pretty overweight from being on these meds for years, but now that they've added a couple that are known for "Extreme Weight Gain", I must have subconsciously avoided food. I keep saying, "I'm not hungry", but if you put something in front of me, I'll definitely eat it !! Thanks for the info, I'm going to look that up.

Renie

irishroots said:

Please start eating.The pills are making you gain weight.
I am following beyond diet.It is a low carb diet you can look up on the web.
You need to est some fats to loose weight.
Not eating will hurt you.
Joann

Thanks Allen; first, I didn't know we could build up a little tolerance - so that's great news. I also have a cousin about 1 1/2 hours away that does Reiki and Oils -- I'm going to call him. He always offers, but I have never taken him up on it.

My Psych Doctor said that I could break up the Effexor however I wanted; but I didn't think it was making a difference either way - I'm going to break it into 3 doses, and see how that goes.

Thanks for all the info, you've got a lot of experience with this stuff, and a great help to everyone!

Renie


Allen Highnote said:

You have to be careful with massage therapists. Most MTs will listen and hear your concerns. Also, every MT's touch is different. Some are simply better than others. When I was diagnosed with fibro, I could barely stand a light touch. But over time I have been able to receive deeper and deeper touch.

If you communicate your needs, expectations, and potential response to touch to the MT BEFORE the massage, any competent MT should respect it. During the massage, communicate with the MT. Let them know what is working and what isn't. It's OK to ask them to go very lightly or very slow. I've only had one experience in my life (out of 500+ massages over 20 years) where I had to stop a massage. I simply didn't like her touch. The way I stopped the neck rub was "I'm sorry but this is causing my pain. I don't mean to be mean or rude, but I need to stop the massage. My fibro is flaring up and touch is hurting me today." Luckily it was a free neck rub from a class mate so it was no big deal. If it isn't working, don't suffer through it. The MT should understand. And if they don't, that's their issue an not yours if you've communicated your special needs and concerns up front.

Also, there are many different types of massage. Reiki is a form of energy work that does not involve touch and can be very powerful. Other types are warm salt wraps, warm stone work, cupping, sound work, myofacial. The internet is a great resource.

Have a good weekend everyone.

CoCoinBonita: My suggestion would be to see a different Rheumatologist just for a second opinion. Some of your medications are for the same thing, like Lyrica and Savella are both given for Fibromyalgia, so it really should be one or the other; not both. Also Neurontin works similarly, and although you are on a low dose, I don't know if there is a conflict with that also.
The addition of Namenda, Tylenol w/codeine, Vimovo and Xanax worries me; especially if you have Plaquenil Toxicity. It's just a lot of very strong medicines to be taking at the same time, and I can understand why you're tired and confused. Just for your own safety; look into a second opinion. That's just MY opinion!

Hugs, Renie

I have not tried either of these but I understand that in general medicine can take up to 4 or 5 weeks before you see results. Good Luck

I have been officially diagnosed with fibro since 2008. In the beginning I tried just about every drug that could possibly help. Having been pharmacist before withdrawing myself from the work force, I am knowledgable re medications. My biggest problems with FM were, in order of their intensity, fatigue, pain and confusion. I tried Provigil to help me remain awake during the day. It worked for about 2 weeks. Even at the maximum dose level I fould my self sleeping a good portion of the day. Since that was the strongest stimulant my rheum. would prescribe, I obtained a script for adderall from my primary MD. Started out at 30 mg a day 4 years ago and am now able to remain awake on just 10 mg a day. As for the pain I first tried Lyrica. That worked for a year until I had a frightening experience on it. I was driving and suddenly forgot how to drive. I was sitting behind the wheel and had no idea what I was to do. Fortunately my wife was with me and she helped me to cer the car stopped at the side of the road. Needless to say, I stopped Lyrica. I have a high school friend that took lyrica and went blind for several hours. Next I tried Cymbalta which took the edge off of the pain. Unfortunately it made me feel terrible and put me into a major depression during which I lost 35 pounds. Today I can tolerate pain that is a 5 or a 6 on a scale of one to 10. I don't like it but I feel better than when I was on either lyrica or cymbalta. If it gets above a 6 I find that a half of a Norco 10/325 or a little marijuana will take the edge off of the pain as well as lyrica or cymbalta with none of the side effects of either. I also find that if I push through the pain, I do ok. I can not push through the fatigue, however, with out paying for it the next day in the form of intensified discognition (fibro fog).

Fluoxetine is the generic for Prozac. I was on it for years and it seemed to work for a while but then I realized my depression was getting worse again. My psychiatrist suggested Cymbalta and that has helped me greatly. Better than anything I've had in the last 10 yrs, for both my depression and Fibro. It took a bit to find the best dosage but I'm so glad I agreed to give the Cymbalta a try. With Fibro being different for everyone, trial and error seems to be the only way to find what works best for you. Don't lose hope! Just be willing to keep trying until the right combo of meds are found for you.


Thank you so much. I have had this condition since 1995 along with Lupus. I changed jobs about 2 years ago and it was a job that I had done and left about 12 years ago, due to the high stress level. But I needed to work and within 19 months my symptoms were beyond my ability to maintain an 8 hour a day job. I was placed on temp disability in October and had great results with the combo or meds that included the plaquenil. In December I really believed I was returning to work, although I knew I would be returning to a highly stressful environment (I am a Career Counselor in San Diego,working with a population with chronic unemployment, thus finding jobs in this economic environment for folks with multiple issues is just so so difficult), but I digress.

I started having eye pressure and in January my neurologist took me off the Plaquenil. Shortly thereafter, like, within 4 days my pain levels were intolerable. I was in bed and literally in tears from pain in feet, skin, muscles and joints. I really wanted to die. Then I was diagnosed with glaucoma. My periferal vision is affected, but now, on top of the pain, which is somewhat under control, I also suffer from confusion, short term memory loss, and my inability to focus on any project, craft, email, etc. The namenda is a off brand typically prescribed for Alzheimer's but my Pain Management doctor stated it would help with the pain.

I see my Pain doctor next week and I will definitely will take all my meds and ask him to make some changes and remove some from my current regimen. My husband has accompanied me to my last several appointments and serves as a coach, asking the "whys" and the "what ifs" that I just don't remember to ask.

I make it a point to start a list and he is patient enough to make sure I check everything off.

On my first appointment he suggested a change in my diet and recommended a couple of books and a video. I read the China Study and watched Forks not Knives and within 3 days I eliminated protein and 95% dairy products. I did this with the idea that at my age of 54, I need to take more responsibility for my health. I lost 20 pounds in the first 5 weeks ( at 125 to 130lbs now), but my symptoms were never relieved. He assured me that I would feel better but it would take about 2 years to fully regenerate my cells. I have continued this style of eating, which has not been difficult as both my adult daughters have been vegeterian for most of their lives. I took it one step further and I am a vegan.

Again, I digress. I sleep about 4 hours at night, and thus I nap through out the day, which then makes it difficult to sleep.

Now I am just rambling.... sorry...:) I will let you know how my appoinment turns out. And thanks for your reply and this was very encouraging. May God continue to bless you. Socorro "CoCo" Alaniz.

Renie said:

CoCoinBonita: My suggestion would be to see a different Rheumatologist just for a second opinion. Some of your medications are for the same thing, like Lyrica and Savella are both given for Fibromyalgia, so it really should be one or the other; not both. Also Neurontin works similarly, and although you are on a low dose, I don't know if there is a conflict with that also.
The addition of Namenda, Tylenol w/codeine, Vimovo and Xanax worries me; especially if you have Plaquenil Toxicity. It's just a lot of very strong medicines to be taking at the same time, and I can understand why you're tired and confused. Just for your own safety; look into a second opinion. That's just MY opinion!

Hugs, Renie

Hi CoCo, I worked for a Rheumatologist for 12 years, and he always sent anyone on Plaquenil to the eye doctor for regular checkups. I think we saw Plaquenil Toxicity in 2 patients in that entire time. I'm so sorry that it happened to you! And they haven't put you on any other meds for the Lupus? I would ask about that too.

A lot of the confusion I think is the medications AND the Fibromyalgia. "Fibro Fog" can truly debilitate us. I know there are days that totally pass me by without noticing. I'll think it's Midnight, and look outside, and it's 8am already. When I write notes like this, I ramble on, and on....I try so hard not to, but I can't get my thoughts straight in my head to say what I want to in a short way. Does that make sense?

I personally never had a problem with Lyrica in the 2 years I was on it, but if you look back through this thread, you'll see Cecil had a terrifying experience with it. I've seen Neurontin have some harsh side effects too, but I've never heard anything about Savella yet. Since they are all working similarly, that's a scary amount of those kind of meds. I've never heard of Namenda being used for pain, but that would be more the Pain Management Doctor's department.
But, I've also been out of work for 3 years, so I'm sure things have changed. It was an extremely stressful office also, it was 1 Doctor, who would see approximately 40 patients a day, and a very small staff. Not enough people, too many patients. Plus, the Office Manager was embezzling from him, so that raised the stress through the roof--in addition to an hour commute, I had to give it up. I want to go back to work so badly, but I don't know if I'll ever be able. And sleeping? I usually sleep only every 2 days or so, and that has to be medication induced. Even then, I only sleep a few hours. I think almost all of us have some sort of sleep issue. But that's the root of Fibromyalgia -- we don't get restorative sleep, so we can't heal, and our bodies just keep chugging along, getting worse with pain.

I don't know anything about the diet you mentioned, but I have heard people say they have great results with a Gluten-Free diet. I was on a straight protein diet for a long time, and lost a significant amount of weight, but it didn't make me feel better. So I know protein is not the answer! I'll have to try the opposite like you, and go Vegan! I'd like to try any of them, but it's easier said than done. It's great that your Husband is your backup; I always forget things, every time. And my Husband is worse with remembering, so I don't even bother. I have lists, and either forget them, or forget why I wrote something down. So to have that second point-of-view, and just be there to remember what the doctor says, must be so helpful ! Do you see a specialist for the Lupus? I hate to see all the things you've suffered with--I hope the Doctor can get something worked out for you--If not, see another Doctor !! And I'm going to look into those diets you mentioned also.

Good Luck, God Bless, and Let us know how you make out !!

Hugs, Renie

Sorry you are in pain. I am on Lyrica and it has helped with the burning muscle pains very well. Plus there is a program from Pfizer to get the med for free if you are under a certain income. Check out their website. Look for Connections to Care. Good luck

Maria

Thanks Renie!

I will if my insurance will cover a second opinion.



CoCoinBonita said:


Thank you so much. I have had this condition since 1995 along with Lupus. I changed jobs about 2 years ago and it was a job that I had done and left about 12 years ago, due to the high stress level. But I needed to work and within 19 months my symptoms were beyond my ability to maintain an 8 hour a day job. I was placed on temp disability in October and had great results with the combo or meds that included the plaquenil. In December I really believed I was returning to work, although I knew I would be returning to a highly stressful environment (I am a Career Counselor in San Diego,working with a population with chronic unemployment, thus finding jobs in this economic environment for folks with multiple issues is just so so difficult), but I digress.

I started having eye pressure and in January my neurologist took me off the Plaquenil. Shortly thereafter, like, within 4 days my pain levels were intolerable. I was in bed and literally in tears from pain in feet, skin, muscles and joints. I really wanted to die. Then I was diagnosed with glaucoma. My periferal vision is affected, but now, on top of the pain, which is somewhat under control, I also suffer from confusion, short term memory loss, and my inability to focus on any project, craft, email, etc. The namenda is a off brand typically prescribed for Alzheimer's but my Pain Management doctor stated it would help with the pain.

I see my Pain doctor next week and I will definitely will take all my meds and ask him to make some changes and remove some from my current regimen. My husband has accompanied me to my last several appointments and serves as a coach, asking the "whys" and the "what ifs" that I just don't remember to ask.

I make it a point to start a list and he is patient enough to make sure I check everything off.

On my first appointment he suggested a change in my diet and recommended a couple of books and a video. I read the China Study and watched Forks not Knives and within 3 days I eliminated protein and 95% dairy products. I did this with the idea that at my age of 54, I need to take more responsibility for my health. I lost 20 pounds in the first 5 weeks ( at 125 to 130lbs now), but my symptoms were never relieved. He assured me that I would feel better but it would take about 2 years to fully regenerate my cells. I have continued this style of eating, which has not been difficult as both my adult daughters have been vegeterian for most of their lives. I took it one step further and I am a vegan.

Again, I digress. I sleep about 4 hours at night, and thus I nap through out the day, which then makes it difficult to sleep.

Now I am just rambling.... sorry...:) I will let you know how my appoinment turns out. And thanks for your reply and this was very encouraging. May God continue to bless you. Socorro "CoCo" Alaniz.

Renie said:

CoCoinBonita: My suggestion would be to see a different Rheumatologist just for a second opinion. Some of your medications are for the same thing, like Lyrica and Savella are both given for Fibromyalgia, so it really should be one or the other; not both. Also Neurontin works similarly, and although you are on a low dose, I don't know if there is a conflict with that also.
The addition of Namenda, Tylenol w/codeine, Vimovo and Xanax worries me; especially if you have Plaquenil Toxicity. It's just a lot of very strong medicines to be taking at the same time, and I can understand why you're tired and confused. Just for your own safety; look into a second opinion. That's just MY opinion!

Hugs, Renie