Hi everyone…I am new to this site and new to fibromyalgia. I have been coping with its wrath for the past year, but was only diagnosed a month ago, because they thought it might be lupus. My symptoms include pain especially my lower back, hips, legs, shoulders, arms, and peripheral neuropothy, especially in my feet. Rheumotologist confirmed it was not lupus. I have also had gout twice this year, diverticulitis twice this year, I have hypothyroidism, sleep apnea, HBP, high cholestoral, migraines, chronic sinusitis, and I feel like I am just falling apart at such a young age. I had my first followup yesterday and I am feeling frustrated. I guess I needed to vent and hear that I am not alone. Here is my frustration about my followup:
At diagnosing me, they offered me Cymbalta 30 mg. Take one at bedtime, you wont have any side effects they said. I have been having all over body pain, anxiety, periods of weight gain (possibly connected with depression and terrible sleep), and terrible mood swings. My symptoms started about a year ago when I underwent an extremely stressful situation when I had to go against family members and make an independant decision to get authorities involved in rescuing an elderly family member who was sure to die soon in a hoarding situation. I have been her part time caretaker ever since while also juggling my own fulltime employment and family. My son is an adult (22) but still lives at home. So, you can get a feel for the stressful event that triggered my FM. My mom was also diagnosed in her late 30s (I am 47).
Cymbalta gave me 24/7 nausea and chills and teeth chattering on day one. I took a second dose, and had the same on day two, so I called the doctor as I was instructed and they told me I had to stop it. I had three days of my body feeling like pain left it, even tho I was freezing and sick to my stomach. But, I followed orders and stopped it. I went for my followup yesterday and they offered me yet another pill called Gabapentin. After reading some online reviews I am scared to even try it.
There are a couple reasons I am feeling frustrated. One is that the doctor’s assistant told me I just needed to get better sleep and start exercising and fibromyalgia will go away, I will get rid of it. This is not my understanding of it…while I do understand that exercise and sleep is supposed to help, the pain prevents me from being motivated to exercise and my sleep is crappy because no matter how I try, I never sleep more than 5 or 6 hours a night. Both he and the doctor told me I need to get 8 hours a night! I cannot even tell you the last time I slept 8 hours. Seriously! and I was not under the impression that fibromyalgia can just go away. I felt so dismissed by this, I decided I am not going back to that doctor. I felt like here is some overweight girl who is bringing her problems on herself, so I will never go back. I decided I will talk to my family doctor and see what he has to say.
I ordered a yoga mat, and I plan to try some beginner yoga, even though I am sure it is going to hurt, I am going to try. I am also looking into joining the YMCA to take advantage of the senior water exercise class and maybe the sauna /hot tub. I am determined not to be a Guinea pig where they just keep offering me different medications that I have never even heard of. I want relief, but not at the expense of putting more drugs in my system. I was so hopeful about cymbalta, it was going to address everything, but it made me sick. I am seriously so sad and frustrated, but I am trying to turn this into determination. I just wish I had the energy and motivation to push, but to be honest I feel drained all the time and feel like I can barely do anything. Even after making a meal for my family or bringing supplies to my aunt in assisted living, I feel like I ran a marathon. I’m so frustrated and just feel so defeated.
Thank you for listening. I just need someone to read this that can truly understand.