This is my first post on here apologies for the long post.
I was diagnosed when I was 13 and I was really poorly when I first first diagnosed. Over the past 20+ years I’ve had good days and bad days and many flare ups but had not had a really bad one like I’m having now for some time. Not only am I in constant pain which tablets don’t seem to help that much, I’m struggling with sleep; either not being able to sleep at all or sleeping too much. Then there is the daily battle with feeling so down and fed up, crying.most days and feeling guilty about not being able to do the things I normally do.
I have a full time day job and my husband has a full time job working nights and we have 2 young children. At the moment I am off work becuase of this flare up and am struggling to look after the kids on my own because of the pain and fatigue. Hte that the kids have to deal with me how I am as well as everything else going on in the world at the moment. I just wish I could be normal and give them everything they need without having to burden other people and impact their childhood.
I know I am lucky in some ways as I know many others in the world and on here have things much worse than I do but I just don’t know how to cope with it any more and how to deal with the constant battle of emotions and thoughts in my head everyday.
Thank you for taking the time to read my post I know there are no magic answers but just being able to post helps in a small way.