(Edited a little from above, see end.)
- To pinpoint/describe sensations & (eventually) look up likely treatments, not to diagnose FMS.
- Every symptom may be due to something else, so get checked if you want to be sure it isn’t.
- Ordered by relatedness/relevance to FMS (e.g. pain or sleep), which can suggest the order of treatment trials.
- All FMS-symptoms can be “treated” alone, whether locally or generally.
- This is trying to be the most helpful symptom list, not necessarily the longest. (But I’ve used and am improving some of the longest, and there are 200+ here at the moment.)
- Revised Fibromyalgia Impact Questionnaire (FIQR), 2009, Bennett et al
New Clinical Fibromyalgia Diagnostic Criteria 2010 (ACR?)
Starting point: 200+ Symptoms of Fibromyalgia (Hard to Believe). What are Yours? - Fibromyalgia Resources from the thread Symptoms lists: 100, 200, full… (“64”)
Docs that still don’t know, acknowledge, understand fibro
(Treatment:) If you doc doesn’t know fibro & doesn’t want to get educated by himself or by brochures (e.g. FMA UK, internet pages) or by you: Phone around, asking at the desk how many fibromites they treat. (Accurate descriptions of symptoms.)
0. ‘Invisibility’, Chronicity, Flares. 1. Pain 2. Fatigue, 3. Sleep, 4. Psychological, 5. Neurological, 6. Fibro Fog, 7. Body temperature sensation, 8. Sensitivities, 9. GI/IBS, 10. Vision, 11. Urogenital, 12. Skin, 13. Dryness, 14. Lungs, 15. Heart, Blood vessels (16. Hair, 17. Nails, 18. Mouth, 19. Weight)
- ‘Invisibility’, Chronicity, Flares
Docs can’t find anything (scans, bloods) - core symptoms 1-4 below plus diagnosis of exclusion.
Docs often don’t know about, acknowledge or understand it.
People incl. friends & partners can’t see anything, don’t understand, see us smiling: “But you look OK.”
Chronic: Longer than 3 months is the definition for FM.
Flares: Phases where the symptoms get worse than usual, due to Fibromyalgia References: Causes, symptoms, treatments (to be intertwined).
- PAIN & stiffness - all over / parts of the body - toe to top
Rheumatology & pain medicine cannot address causes, only suppress symptoms; acupuncture; nutritional supplements, esp. amino acids.
Remember: “Pain caused by Fibromyalgia isn’t a threat” (‘radical acceptance’).
Possible treatments: Everything, specifically Epsom salt-baths (magnesium sulfate)
1.0.1 All over at the same time
(Treatment: Overstraining something: Twist-stretch: twist limbs, back or neck & hold 10-20’’.)
Allodynia = touching pain, cf. hyperalgesia
Ache (esp. limbs)
Feeling run over by a truck=lorry/car/train/rhino/plane/whatever
Feeling like walking in a lead suit… / like the tin can man
Flu-like feeling: heaviness, Ache, fatigue, more pains, rest need, sleep need, sleep long. With or without fever-feeling, sinuses/runny nose (allergy?), headaches (migraines).
Hyperalgesia = amplified pain, cf. allodynia
Stiffness, all day, after not moving for a while, after overexertion. Cf. stiff person’s/man syndrome (not nec. combined with to pain)
Pain moderate to severe
Tender points (≠ trigger points)
Trigger points (≠ tender points)
1.0.2 Certain areas all over, maybe alternating
Specialized physiotherapy, esp. osteopathy, chiropractic, acupressure
“Joint” pain (probably tendons, i.e. tendinomyopathy)***
Muscle cramps (bigger area)
Muscle spasms (smaller area)
Pains alternate, seem to move
Sighing, breathing in, etc. frequently (also fatigue, also psychological)
Tensed muscles, unconsciously
Voodoo doll-poking sensation, random places
Weakness (severe) or paralysis of an arm or leg
Feet - Plantar arch or heel pain
Restless Leg Syndrome = RLS
Sciatica-like pain (from back down the legs)
Disk/Discs Degeneration, DDD = Degenerative Disc/Disk Disease
Lower back pain = SI-joint = sacroilial joint = sacrum and coccyx)
Scoliosis (sideways curve)
Chest, mimicking heart attack
Ribs - Inflamed Rib Cartilage = Costochondritis
Breasts, lumpy & tender
Collarbone = clavicula
Neck pain: Epsom salt-baths (magnesium sulfate)
Weak achy muscles
Jaw, TMJ syndrome (= temporomandibular joints)
Teeth / tooth / gums
Head - Headache
Scalp Pain (like hair being pulled out)
- FATIGUE, slowdown of activity
Activity level significantly decreased
Fatigue from physical exertion, pain, stress etc.: 11 types of fatigue: esp. tiredness, ache, lack of energy, mental; Spoon theory
Sighing, breathing in, etc. frequently (also pain, also psychological)
Sleep lab psychiatrist, sleep lab neurologist, sleep lab pneumologist, multidisciplinary, supplements.
sleep lab psychiatrist, sleep lab neurologist, sleep lab pneumologist, multi-disciplinary
Alertness/energy best late at night
Sleep/wake schedule altered
Falling asleep difficult
Staying asleep difficult
Excessive sleeping = Hypersomnia
Hypersomnia = Excessive sleeping
Narcolepsy / Falling asleep at random and sometimes dangerous moments
Sleep pattern light or broken
Muscle spasms/twitches at night
Tossing and turning
Un-refreshing or non-restorative sleep
Vivid or disturbing dreams/nightmares
- PSYCHOLOGICAL / MIND / EMOTIONAL
Psychologist, psychotherapist, empathetic psychiatrist, nutritional supplements.
Doubting it / “Imposter syndrome”
Not accepting it
Overdoing it (dilemma of feeling better & normal during & perhaps for a time directly after it)
Sighing, breathing in, etc. frequently (also fatigue, also pain)
EMOTIONAL, esp. depression (part or consequence), anxiety, incl. PTDS
Crying frequently / easily
Enjoyment, inability to previously enjoyed activities
Suicidal thoughts / Suicide attempts
Anxiety or fear when there is no obvious cause
Fear of someone knocking on the door / telephone ringing
Self-confidence, lacking; feeling worthless
Awareness of symptoms heightened
Mood swings, like anger outbursts, uncontrollable rage, abrupt and/or unpredictable
Tinnitus (ringing in one or both ears)
Wrist: Tendons swell & press on nerves: carpal tunnel syndrome, CTS
Not that close to fibro:
Seizures and Seizure-like episodes aren’t FMS (I have them myself)
- “FIBRO FOG”: 1. Sensations, 2. Cognitive, 3. Speech, 4. Balance, 5. Perception, 6. Coordination
Not easy to separate these areas from one another.
Neurologist, opthalmologist (see 10. Vision & 13. Dryness of the eyes), neuro-ophthalmologist, supplements
Fibro-Fog / Brain fog: Delayed reaction to physical activity or stressful events. Appears like but ≠ adult ADHD.
Dizziness, e.g. vertigo
Spaced out feeling
Cognitive / Thinking unclear, difficulties:
Attention/concentration difficult, easily distraction
Distance-judging difficult (when driving, etc.)
Orientation (Disorientation) (directional or spatial, really or feeling)
Recognizing (routines, left/right, number/word orders)
Remembering (difficulty remembering, short-term or long-term, losing things, forgetting)
Expression difficult (words, numbers)
Speech slowed, stuttering, stammering
Understanding difficult (words, numbers)
Word-finding difficulty/using wrong words.
Perception (Seeing, hearing, smelling):
Not seeing what you’re looking at
Sensitivities → there.
Bumping into things
Dropping things frequently
Stumbling, tripping frequently
- BODY TEMPERATURE SENSATION
Endocrinology, Acupuncture, Acupressure, TCM.
Cold or hot feeling, or alternating
Flu-feeling, cf. Ache, Allodynia (touch pain), Feverishness, Hyperalgesia (amplified pain)
Hands/feet, poor circulation there: Raynaud Syndrome .
Hot flashes = hot flushes
Sweats → Skin
- SENSITIVITIES / INTOLERANCES
Acupuncture, acupressure, TCM, avoid/alleviate (, allergology).
Allodynia (hypersensitive to touch)
Chemicals in cleaning products, perfumes, etc.
Light sensitivity = photophobia
Odors = smells
Pressure & humidity changes
- GASTROINTESTINAL (gut: IBS = Irritable Bowel Syndrome; stomach: hyperacidity or hypoacidity?)
Gastroenterology, allergology, supplements, avoid/alleviate.
Food cravings (e.g. for carbs) (try an “amino acid questionnaire”)
Constipation frequent (e.g. IBS-C)
Diarrhea frequent (e.g. IBS-D)
GERD = Gastroesophageal reflux disease = Reflux
Irritable bowel syndrome = IBS
Rectum burning irritation (foods?)
Reflux see GERD
- EYES / VISION poor
eye specialist, oculist, ophthalmologist
Vision blurry, difficulty switching focus
Vision ability changes, frequent changes in ability to see well
Vision poor at night, e.g. driving
- UROGENITAL pain
Urology, gynecology, supplements.
Impotence / Libido (sex drive) decreased
Irritable bladder, Overactive Bladder (OAB)
Premenstrual syndrome (PMS) worse
Urination painful, altho no UTI (= Urinary tract infection)
Scalp pain cf. pain: head.
Lymph nodes swollen, esp. neck & underarms
Sensitivity to the sun
- DRYNESS (Sicca syndrome?)
Rheumatologist, endocrinologist, ophthalmologist, dermatologist.
e.g. for eyes: Various therapies, 4 drop types, other things like intense-pulsed light therapy followed by massage of the eyelids, gua sha, omega-3 fatty acids (flaxseed oil, castor oil eyedrops and acupuncture.
Eyes dry (Sjögren’s?) (itchiness, hurting, stinging, burning, scratchy, stringy mucus, light sensitivity, eye redness, foreign-body sensation, contact lense difficulty, nighttime driving difficulty, watery eyes (as response), blurred vision, eye fatigue…
Mouth dry (Sjögren’s?)
Teeth & gum problems
Throat dry (sore, hoarse, speaking, singing, thirst increased),
Stomach dry (hyperacidic)
Gut dry (constipation),
Physiotherapy, acupuncture, acupressure, TCM.
Breath short with little or no exertion (esp. using arms above the head)
Gasping for breath
- “CARDIOVASCULAR” (Heart, blood vessels):
cardiologist, psychologist, relaxation exercises
Blood pressure increased (due to pain?)
Heart attack-like pain that mimics (costochondritis?)
Pulse loud in ear
dermatologist, gynecologist, endocrinologist, supplements
Hair dull, listless
Hair: heavy and splitting cuticles
Hair: temporary loss
- NAILS (praps Psoriatic Arthritis = PsA)
Nail beds irritated
Nail ridges pronounced
Nails that curve under
- MOUTH cf. 13. Sicca
Periodontal (gum) disease
Canker sores, mouth ulcers, e.g. aphthous stomatitis
- WEIGHT (see 9. Gastrointestinal)
Weight gain, unexplained,
Weight loss, unexplained
Version starting 2021-10-09 = October 9th
compared to the version 2 months ago I’ve added docs/therapists to consult/diagnose/treat, left out ‘things to do’, integrated “dry eyes” and “flu-feeling” instead of leaving them at the top, as there’s no need to pursue similar in more detail.