TREATMENT list, version 2021-04: newest version below
Treatment list
Ordered systematically here first, alphabetically later.
Docs/therapists: If you’re dissatisfied & can afford to do so: change, get 2nd/3rd opinions.
A. MIND (pacing, (forum-)support (memes), psychotherapy, esp. CBT, relaxation, sleep)
Psychologist, psychiatrist, psychotherapist, counsellor, pastor, helpdesk, outreach clinic…
A.1. Pacing: Fatigue,
= finding the invisibly moving sweet spots of each activity.
Not trying to keep up with before or others, but keeping under limits, learning what overdoing is.
(Incl. Socializing reduced, esp. evenings: Fatigue)
(incl. Changing work stress and work amount, perhaps work type or work altogether)
Various diaries keeping track of what you’ve done and how you’re feeling before, during & after, adapting with abbreviations to your need, cf. JayCS’s Fibro Blog (see summary-thread ∑)
A.2. Memes & other support, e.g. forums, support groups = mental hygiene
Pics & Memes that visualize fibromyalgia and other chronic pain illnesses - #91 by AussieMom (German: “Psychohygiene”)
A.3. psychotherapy
e.g. CBT, psychoanalysis, Gestalt therapy
A.3.1. CBT (& b. CPT)
CBT (and A3.1b CPT): Trauma therapy (CPT) for PTSD, Anxiety therapy, depression, with or better without using meds, cf. E1. Biochemical: meds.
A3.2 counseling
x
A.4. Relaxation techniques
Autogenous/autogenic training
self-hypnosis
progressive muscle relaxation (Jacobsen),
Alexander technique…
Calming music
Calming nature sounds
meditation
Reading: stress.
Sun! 
A.5. Sleep hygiene
Napping is usually not recommended, but try it or power naps and compare.
Get ruminating down: Cut off thoughts with “Stop!” Scissors, Chainsaw, Cold showering
Nightmares: Reality check, reverse imaging techniques…
Sleep diary
Bedtime procrastination - Wikipedia
What is Sleep Hygiene? - Sleep Foundation
German Was ist Revenge Bedtime Procrastination? | Schlaf.de
German Revenge bedtime procrastination: Warum wir Schlaf gegen Handy-Zeit eintauschen - WELT
B. PHYSICAL/BODY (Hands, Heat/Cold, Devices, Electricity, Do vs. Get Done...)
TCM doctors: acupuncturist, Chinese herbs/teas,
physiotherapists: massage therapist, acupressurist, acupuncturist, osteopath, teachers of the various types of yoga, tai chi, qi gong.
Good physiotherapists are more important than good docs, unless you want mainly meds.
By therapist:…
By yourself:…
Asian or Asian-influenced:...
Acupressure
Ear-acupressure (Penzel)
Acupressure points
palpation points
trigger points
Acupuncture
Ear-acupuncture
Dry needling (trigger point dry needling) Dry needling - Wikipedia
Qi Gong
Tai Chi
TCM
Wim Hof Method, WHM
Yoga types
Breathing exercises
Breathing/breath-holding exercise (Wim Hof)
Breathing exercises
Breathing/breath-holding exercise (Wim Hof)
Nose strips for better breathing, more oxygen
Cold/Heat
Cryotherapy
Whole Body Cryotherapy: Cold Chamber/Barrel (-120°C, now -150°C (-240°F) for 3 mins.
Cold showers (inspired by Wim Hof)
Hand heat baths: canola seed: 15’ (5’)
Hand heat baths: Spelt
Hand cold baths: canola seed: 15’ (5’)
Hand cold baths: Spelt
Sun!
Connective tissue massage
Cupping
Electrotherapy
TENS unit or gentler: microcurrent unit (relaxes breathing)
microcurrent unit gentler than a TENS unit
Hydrotherapy: moving in water, using hot or cold water etc.
Water therapy, hydrotherapy
Massages various
Manual therapy
Manipulation
Mechanical devices such as traction.
Mechanical devices:
Kinesio tape/taping Kinesio Tape, anyone?
Acu ball for TMJ
Gum shield, mouth guard, tooth guard: for grinding teeth, bruxism.
Traction.
Myofascial massage
Osteopathy
Physical therapy exercises
Body parts
Hand exercises
Neck exercises
Back exercises
Back exercises (“yoga“)
Qi Gong
Stretching - gentle, dynamik, short, like this: https://youtu.be/fONfo3OpoGI (Bob & Brad)
Tai Chi
TENS unit or gentler: microcurrent unit (relaxes breathing)
microcurrent unit gentler than a TENS unit
Wim Hof Method, WHM
Yoga types
Back exercises
Yin yoga
Changing positions regularly
Standing working station (bar stool, bar table)
Lying down
Sports:
Aqua jogging / Hydrotherapy
Swimming: stress.
Walks: stress
Workout: Muscles, tendons, fascies, joints, breathing, overall.
Stretching, gently!: back pain.
Stretching, gently!: back pain.
Twist-Stretching
Hygiene
Dental hygiene
/Tooth hygiene
Teeth brushing
Teeth flossing
Showering
Washing
(Bioresonance therapy - whatever you think of it…)
C. BIOLOGICAL (Diets, essential oils...)
functional medicine doc, nutritionist, alternative practitioner, allergologist, nutritionist…
Baths cf. Biochemical: supps (magnesium/Epsom salts) and Physical: cold/heat
Cold/Heat cf. Physical: cold/heat
Essential Oils:
Lavender
Swiss pine
Diets:
For Bladder:
For Gut / IBSD/C:
For Stomach:
Overview of diets under “I do still have questions about the ketogenic diet” Ketogenic diet: reductions in auditory hallucinations and delusions, better mood and energy, and weight loss - everywomanover29
Whole foods diet
Organic diet
gluten free diet
grain free diet
low carb diet: Your “Healthy” Diet Could Be Quietly Killing Your Brain | Psychology Today (Interesting Carbohydrate News in Psychology Today, Not Just Gluten!)
Keto diet / ketogenic diet (high fat, low carb, low protein)
Ketogenic diet: reductions in auditory hallucinations and delusions, better mood and energy, and weight loss - everywomanover29
FODMAP diet, low FODMAP
vegan/vegetarian/non-dairy
low oxalate,
low salicylate
low histamine
no nightshade
paleo diet
AIP diet: Autoimmune protocol: Variant of the paleo diet: minus nightshades, nuts, seeds, sweeteners and eggs. 14 Signs of Nightshade Sensitivity (and What to Do About It)
Mediterranean diet
Important Food types
Unsaturated fats rather than saturated fats
Complex carbs rather than simple carbs
Omega 3: flaxseed oil
ozone-autohemotherapy (ozone-injections)
oxygen-autohemotherapy (oxygen-injections)
D. ENVIRONMENTAL (Bed, air, cold, heating, light, noises, wind, sun...)
forums, web pages, empathetic doc, counsellor, friends, family, partner
Air rooms
Bed new: pillow: neck pain.
Bed new: mattress: back pain.
Bed new: pillow: neck pain.
Bed new: mattress: back pain.
Pillow under hunchback
Pillow-wedge under face
Place more pillows for comfort
Weighted blankets
Heating - moisten air, but not too much.
cf. Better sleep - 30 wakers & stoppers
Change clothes, blankets
Sun! - but carefully…
Wind protection: Hoodies,
Cold protection: Longjohns, rain legs for bike, more socks, more clothes, layered onion-like.
Rain protection: Rain legs for bike
E. BIOCHEMICAL (Meds, supps, herbs)
E1. MEDS
Doctors (change them if necessary, get 2nd and 3rd opinions if you’re dissatisfied and can afford to do so), GP / PCP / principal; pain doctor, rheumatologist (orthopedists), neurologist…
GABA (cf. supps ) & Co.: gabapentin, pregabalin, phenibut, baclofen, picamilon, mirogabalin
Low-Dose Naltrexone, LDN
General: Low-dose naltrexone - Wikipedia
Experiences: Low Dose Naltrexone/LDN for Fibromyalgia: Four Year Update - Melissa vs Fibromyalgia
Side effects: Naltrexone (Oral Route) Side Effects - Mayo Clinic Vivid dreams, IBS
Side effects What are the Side Effects of LDN - Town & Country Compounding
Studies:
Reduced Pro-Inflammatory Cytokines after Eight Weeks of Low-Dose Naltrexone for Fibromyalgia - PubMed 2017
Fibromyalgia symptoms are reduced by low-dose naltrexone: a pilot study - PubMed 2009 10 women. may be effective, highly tolerable, and inexpensive.
Use of low-dose naltrexone in the management of chronic pain conditions: A systematic review - PubMed 2020 pain. anti-inflammatory and immunomodulator. most studies, incl. for orofacial pain.
The Use and Utility of Low-dose Naltrexone Capsules for Patients with Fibromyalgia - PubMed 2018 4.5mg 25 women
Low-Dose Naltrexone for the Treatment of Fibromyalgia: Investigation of Dose-Response Relationships - PubMed 2020 CFS: 3 cases
Low dose Naltrexone for induction of remission in inflammatory bowel disease patients - PubMed IBD 2018: reducing mucosal ER stress
Low-dose naltrexone as a treatment for chronic fatigue syndrome - PubMed CFS 2020
Low-dose naltrexone for the treatment of fibromyalgia: findings of a small, randomized, double-blind, placebo-controlled, counterbalanced, crossover trial assessing daily pain levels - PubMed 2013 31 women pain/mood better, not fatigue/sleep.
The Use of Low-Dose Naltrexone for Chronic Pain - PubMed 2019 pain: could be a viable treatment option cos minimal adverse effects and cheap.
Pharmacology Update: Low-Dose Naltrexone as a Possible Nonopioid Modality for Some Chronic, Nonmalignant Pain Syndromes - PubMed 2019 pain: increased levels of endogenous opioid production, known as opioid rebound effect
Low-dose naltrexone (LDN): A promising treatment in immune-related diseases and cancer therapy - PubMed 2018 immune review: may become a promising immunomodulatory agent
The use of low-dose naltrexone (LDN) as a novel anti-inflammatory treatment for chronic pain - PubMed 2014 anti-inflammatory/pain: glial cell modulator.
Low Dose Naltrexone in the Treatment of Fibromyalgia - PubMed 2018: small: safe, likely
Low-Dose Naltrexone for Chronic Pain: Update and Systemic Review - PubMed 2018 pain: promising
The Safety and Efficacy of Low-Dose Naltrexone in the Management of Chronic Pain and Inflammation in Multiple Sclerosis, Fibromyalgia, Crohn's Disease, and Other Chronic Pain Disorders - PubMed 2018 pain incl. FMS: safe, but unproven
Low-Dose Naltrexone (LDN)-Review of Therapeutic Utilization - PubMed 2018 = Low-Dose Naltrexone (LDN)—Review of Therapeutic Utilization overview: FMS too small.
Celecoxib (Cox-2-inhibitor),
Etoricoxib (Cox-2-inhibitor),
Tilidine (opioid)
Cox-2-inhibitors: Celecoxib, Etoricoxib
Opioids: Tilidine,
Metamizole (“Novalgin”)
Diclofenac
amitriptyline (‘Endep’): sleep, pain.
Meds: sleep.
Meds: pain.
Venlafaxine ‘Effexor’ SNRI: depression, anxiety, pain.
Milnacipran (trade names Ixel , Savella , Dalcipran , Toledomin), SNRI: fibromyalgia, depression.
Fluoxetine (Prozac) (SSRI): depression, OCD…
Neural therapy - injections with procaine (Local anaesthetic) (Huneke) (complementary medicine)
Hyaluronic acid injections in the lumbar spine - ‘sunburn’ in face, excrutiaing pain in spine
Zomoph
Metoxican
Paracetamol
Sumatriptan for migraines bc of tension in neck/jaw.
Guaifenesin protocol: Guaifenesin protocol - Wikipedia vs. The Guaifenesin Protocol - Fibromyalgia Treatment Center
E2. SUPPS
functional medicine doc, alternative medicine doc, ‘environmental doc’…, some half-conventional docs etc., alternative health practicioner, nutritionist
GABA & Co.: gabapentin, pregabalin, phenibut, baclofen, picamilon, mirogabalin
GABA & derivatives, gabapentin (Neurontin), pregabalin (Lyrica), phenibut, baclofen, picamilon - #6 by JayCS
For sleep. - My GABA side effects initially: tingling, belly ache, all the time: dry mouth, vivid dreams, nose clot, nose bleed, improved after a few days. Positive: Energy, better sleep, less sensitive bladder.
GABA Neurotransmitters as food supplements: the effects of GABA on brain and behavior - PubMed Unclear if and how it works.
GABA in food: A List of Foods with the Highest GABA | Livestrong.com
Gabapentin: epilepsy, neuralgia - Needs 1-2 weeks to develop it’s effect. Side-effects: Increases tiredness.
A List of Foods with the Highest GABA | Livestrong.com
Serrapeptase
A proteoloytic enzyme which users say is anti-inflammatory and has hardly any/no side effects.
Fibro occasionally listed. Altho we of course don’t know if it really has something inflammatory or autoimmune.
Evidence-based medicine seems to believe there are not enough trials to warrant interest.
But a look on pubmed shows a negative review of this kind from 2013, however 3 more positive ones from 2017 2x and 2020.
The role of serratiopeptidase in the resolution of inflammation - PubMed The role of serratiopeptidase in the resolution of inflammation, Asian J Pharm Sci. 2017 May
Serratiopeptidase: Insights into the therapeutic applications - PubMed Serratiopeptidase: a systematic review of the existing evidence. Int J Surg. 2013;11(3):209-17
Analytical techniques for serratiopeptidase: A review - PubMed Analytical techniques for serratiopeptidase: A review J Pharm Anal. 2017 Aug;7(4):203-207
So I am inclined to try it one day, after GABA is helping so well at the moment.
And the feverish-feeling I still get makes me feel there is some hidden inflammation or something autoimmune going on in my body unbeknownst to man. ;o)
3 trusted online pharmacies offer it here, not that cheap tho: 40c per 500mg pill.
Oh, wait a minute: https://draxe.com/nutrition/serrapeptase/
serrapeptase: digestive upset, skin inflammation, infections or rash, can lead to muscle aches and joint pain, risk for pneumonia, infections, bleeding and bruising.
• Digestive upset, including nausea
• Skin inflammation and spreading of infections or rash (13)
• Muscle aches and joint pain
• Increased risk for pneumonia
• Potentially increased risk for infections, such as bladder infection
• Potentially increased risk for bleeding and bruising, especially when combined with drugs such as warfarin, clopidogrel and aspirin
10mg-60, most often 15-30, 5mg for mild symptoms.
Empty stomach, first thing, between meals, 2h from meal.
https://serrapeptase.info/
Good German link on serrapeptase
https://www.foodgroove.de/serrapeptase/ gut - schmerz, schleim, herz, spermien, Entzündungen - Arthritis, Dermatitis, Gastritis, Colitis, Gelenke, Schwellungen, verhindert Aussonderung bestimmter schmerzerzeugender Substanzen z.B. Bradykinin. Hilft bes. lokalisiert z.B. Ohren, Rachen, Nase. Schleim. Blutgerinnsel. Narben. Nattokinase ähnlich, besser gg Alzheimer.
Nicht mit ASS kombinieren.
Nüchtern, 30’-2h vor Mahlzeit, 3x Tal., in Studien meist 10g (-60). Evtll effektiver mit Zn oder Mangan.
Nix in Drogerien, Apo. aber netz.
Studien.
Glutamic acid: Is turned into glutamine, so less effective than that.
Glutamine (glutamic acid)
Glutamic acid: Is turned into glutamine, so less effective than that.
German link: Glutamin und Glutamat
Minerals:
Minerals:
Calcium
Magnesium types:
Epsom salt-baths (magnesium sulfate): neck pain.
Epsom salt-baths (magnesium sulfate): back pain.
magnesium sulfate (Epsom salt-baths): neck pain.
magnesium sulfate (Epsom salt-baths): back pain.
magnesium (taurate) for TMJ
Mg activates Vit. D & thiamine and activated thiamine is needed to activate vitamin B6 which together with magnesium, thiamine and B12 are involved with nerve health, pain and many other tasks.
potassium
selene
zinc
proteolytic enzymes for Myofascial and Fibro
Hormones:
(L-)tryptophan
Tryptophan ((L-)tryptophan)
5 HTP
Melatonin: sleep
Melatonin, L-Tryptophan, 5-HTP
Has Anyone Seen the Research on Melatonin? - #16 by JayCS
Shd praps analyze again whether 5-HTP helped in the winter break, as not working in the Easter break did not help:
https://www.livingwithfibro.org/t/jaycs-s-fibro-blog/13307/174
progesterone
Vitamins:
Vitamin B12 - basic, often one of the most nec.
Vitamin B1
Vitamin B2
Vitamin C
Vitamin D3: often very necessary
Vitamin E: types
Q10
Omega 3: flaxseed oil, cf. diets.
Regime: Vitamins & mineral regime in 5 phases (Dr. Bodo Kuklinski, Rostock): vitamin b12 injections / potassium, zinc, selene / vitamins B1 + B2, C, E / flaxseed oil / Q10)
E3. HERBS
functional medicine docs, alternative medicine docs, ‘environmental docs’…, some half-conventional docs etc., alternative practitioner
Ashwagandha
Sleep, blood fats, thyroid, joints and more.
https://www.healthline.com/nutrition/12-proven-ashwagandha-benefits#_noHeaderPrefixedContent
Ashwagandha is a nightshade! Who’d’ve thought! Gets on my nerves when such basics are omitted, even on pages like healthline.
Wdn’t keep me off trying it, as I have no detectable problems with at least mild peppers (yellow), but if I feel the need, despite GABA, and the endocrinologist says OK, I’d know where any side effects of it are coming from…
Tried ashwagandha May 11th & 12th - severe burning stomach at night:
Wind, stomach burn (ache): https://www.onlymyhealth.com/side-effects-ashwagandha-1317705629
Take it with meals then. https://blog.paleohacks.com/nightshades: stomach hyperacid problems are normal. https://www.youtube.com/watch?v=U2UFcLqkQCM comments: Itching possible (bilirubin/liver), better with hot milk/water & ghee (wdnt be good for me). https://www.youtube.com/watch?v=AuUgsAJXnDo: Take for at least 3 months, it needs to build up. Capsules OK, better for ‘bad taste’, the name means horse-smell (Indian doc).
https://www.nourishdoc.com/TreatmentPlans/Ashwagandha-Benefits-Side-Effects-diabetes-type-ii-heart-disease: Increased stomach acid… 
(Unlikely that this was caused by drinking a few sips of fizz, cos I drank 5x as much yesterday.)
German link: https://www.zentrum-der-gesundheit.de/ernaehrung/nahrungsergaenzung/heilpflanzen/ashwagandha Aim for 2x2-4g/d, only evenings if it makes you tired; earlier and apart from meals if it doesn’t work enough. Can take days, weeks or months to work.
Celafen cream (with Celadrin)
https://selfhacked.com/blog/celadrin/
https://en.wikipedia.org/wiki/Celadrin_(joint_cream)
Arnica
Arnica oil: pain in muscles and tendons (‘joints’)
Arnica complex cream (‘Traumeel’): pains in muscles & tendons (‘joints’)
CBD oil: sleep.
CBD oil: pain
Golden root
Passiflora = passion flower: for sleep
Rhus toxicodendron for (rheumatic) pain
Valeriana for sleep
Turmeric, raw peeled: fatigue. (Stomach pain)(German = Curcuma, gelber Ingwer)
Willow bark: pain (aspirin)
Z. My Treatments (JayCS)
Z.1 Helps me, in order of importance:
Acupressure
Whole Body Cryotherapy: Cold Chamber/Barrel (-120°C, now -150°C (-240°F) for 3 mins.
Cold showers (inspired by Wim Hof)
Osteopathy
Breathing/breath-holding exercise (Wim Hof)
Wim Hof Method, WHM
Back exercises (“yoga“)
Connective tissue massage
Autogenous training
Hand exercises
Aqua jogging
Z.2 Harmed me:
Celecoxib (Cox-2-inhibitor),
Etoricoxib (Cox-2-inhibitor),
Tilidine (opioid)
Cox-2-inhibitors: Celecoxib, Etoricoxib
Opioids: Tilidine,
Metamizole (“Novalgin”)
Acupuncture
Neural therapy,
Hyaluronic acid injections in the lumbar spine - ‘sunburn’ in face, excrutiaing pain in spine
Nose strips - allergy if left on nose on too many hours
Stretching - pain, nausea and cramps if longer than 30’’
Cupping
Electrotherapy,
Yin yoga
Physical therapy exercises,
Manual therapy,
Physical therapy: Manual therapy,
Physical therapy: Manipulation,
Manipulation.
Physical therapy: Mechanical devices such as traction,
Mechanical devices:
Traction.
Hand heat baths: canola seed: 15’ (5’)
Hand heat baths: Spelt
Hand cold baths: canola seed: 15’ (5’)
Hand cold baths: Spelt
Qi Gong
Melatonin 2mg extended release and 1mg (halved)
CBD oil 10% 1 drop
ashwagandha: stomach & gut
Z.3 Didn't help me:
Diclofenac
Willow bark
Glutamine
Arnica
Rhus toxicodendron,
golden root
Magnesium
Calcium
Valeriana,
Passiflora
(L-)tryptophan,
5 HTP,
progesterone,
lavender
Swiss pine,
bioresonance therapy,
gluten free diet,
low carb diet
psychotherapy
Vitamins & minerals: vitamin b12 injections, potassium, zinc, selene, vitamins B1 + B2, C, E, flaxseed oil, Q10)
amitriptyline: Helped getting back to sleep for a few months, but too harmful (8 side effects).
ozone-autohemotherapy (ozone-injections)
oxygen-autohemotherapy (oxygen-injections)
Heavier blanket (haven’t tried a real weighted one yet, but seems to irritate)
Version
Starting 2021-04-16, April 16th. - Delete after starting a new post.
)
I haven’t read this much anywhere else, so it’d be great if you cd point me to the writer/quote (if nec per pm). One person who’d write it similar is Des Quinn of FMA UK.
, I’ll add it to Causes: A. Theories. Ah, I’ve just seen my latest addition sleep disorder, like chronic pain before, is actually similar, so I’ll subordinate those two to your suggestion, as I was a bit dissatisfied how to put them…
(if you’re OK with it)
chronic pain,
(
July 17th)
: I could do with your quick opinion! 
Wow, don’t believe it 
, I’ve actually ‘finished’ the treatment list B, i.e. sorted it, taken superfluous links out of it, now I can start adding main links sometime…
that characters (i.e. letters etc.) per entry are limited to 32000, which the treatments list is now exceeding, I’ve decided not to split entries into more, but instead to try to reduce characters as much as possible. So I need to put all additional information somewhere else: Easiest is to separate out my own experiences, e.g. onto my profile. Then all external links into seperate threads. Then save on formatting characters… Do you have any other ideas on this?
track symptoms, 
v5 (Oct 10th): Bathing in sadness, resting for a while and then swimming again.
shock/denial, 
) and just be more precise when nec. That way I can clearly get a quick impression of all of them, as there will be many.
