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Fibro and CFS


#1

Hi everyone, I’m new here I have Fibromyalgia and chronic fatigue syndrome, plus chronic everyday headaches, sleep apnea, etc. You guys understand the list goes on. I think I’ve always had fibromyalgia even from when I was a small child. I was always so tired more then the other kids and if you touched my arms and legs they felt like they were black and blue. It wasn’t until 2006 when I had neck surgery that my muscles started to hurt on their own. And I had incredible lower back pain. After being diagnosed with Fibromyalgia everything started to make sense. All the little things that always bothered me. Like constant headaches and stomach aches. I had endometriosis and vulvadyna. I guess I was never a very healthy person. Always having one thing or another. I stopped working in 2006 after my neck surgery and I applied for disability. Of course the first time they denied me but then I heard of a company called Allsup and they helped me get disability the second time I applied. I’ve been on disability for the last 10 years. I wish I can say things have gotten better but they haven’t. I have tried everything I could possibly do to feel better. i lost weight, I eat healthy, I exercise and I still feel bad. I’m very fortunate that my husband is very understand and supportive. He takes such good care of me. Two years ago my husband had a cardiac arrest right in front of me. I gave him CPR and call 911. He survived and made a full recovery which is a miracle. But while he was in the hospital in ICU in a coma, my 84 yr old mother got sick. I can not tell you how much stress I was under and how bad my fibromyalgia was. I mom died of lung cancer a few weeks after my husband came home from rehab. It had to be the worst time of my entire life but you never know how strong you are until you have no choice but to be strong. Thank goodness my wonderful husband is doing great. My husband asks me everyday on a scale from 1 to 10, 1 being feeling good to 10 being in the worst pain of my life how do I feel. Well today I’m at 4 which isn’t that great. I’m definitely hurting. I’m glad I found your website and support group because unless you actually have a chronic illness and you are in pain 24/7 it hard for anyone else to really understand. So thanks guys and sorry my intro was so long.


#2

Hey there, our fab new friend fibroflare from Florida! (Couldn’t resist, sorry …)

While you’re waiting for responses, which there will be, have you tried putting “CFS” into the search feature? Look for the magnifying glass to the left of your avatar.
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I’m guessing there’s a gold mine of information here somewhere.

What a terrible time you had when your husband and your Mom both were so poorly. I can imagine it was the worst time of your life, and you must sometimes wonder how you ever made it through all of that, and where the strength came from. Still, you pulled through!

I don’t actually “belong” to this community, although I have a rare chronic disease as well. I’m a troubleshooter on our whole network , and I just happened to notice your post. Of all the things that people express on our communities, the most common is that …

unless you actually have a chronic illness and you are in pain 24/7 it hard for anyone else to really understand.

We’re glad that you found us, fibroflare, and we hope that you’ll be glad too.

Seenie from Moderator Support