Hello all. I wanted to share my experience,me specially my mistakes so others will not make the same mistakes as I did. Hoping this helps someone.
I was diagnosed in 1998, when doctor’s and insurance companies did not understand Fibromyalgia. I had been working for a major Retailer for over 10 years and had great benefits. I became sick “overnight”. I was put on temporary disability through the company, paying me 60% of my salary. I could have stayed on it for 3 years.
Anxious to get back to work after 9 months, my doctor said, “whatever you want”. I thought that going back to work would get my mind off of my illness. Mistake!
My employer agreed to accomidations for me ( extra breaks, stool in my work area, etc). All was well. Then one day I went in and the company had been sold. The new corporate office said, no special accomidations. I was shattered. I asked about going back on leave and was told no. I was ignorant of my rights and was forced to quit. Thinking that I would get better I did not file for disability. Mistake!
Soon after I was in a major car accident which consumed my life for 3 years.
When I thought about filing it was too late and even if I had filed, SS did not recognize Fibro ( at that time).
Also, about a year in to this journey BC/BS decided that I needed no more treatment for my condition. Thankfully, I had a doctor who fought for me.
Thinking that we will get better is a nice dream but don’t count on it as I did. I am lucky to have a spouse who can support us but what if I did not?
Fight for what you rightfully are entitled to.