Thanks for sharing. I needed to read this today. Yes, this is happening to me, too, and I'm tired of feeling guilty about it. I'm able to work, (and feel better when I do since my mind is preoccupied), but I've been unemployed for a year and continue to job hunt, eager to get out of this homebound hell.
Even though I've gotten my husband to read up on FMS, etc., he still doesn't get it and thinks a lot of it, not all, is in my head and I'm being lazy. When I tried to find an easier workaround for some tasks recently, he asked why I'm always trying to take the easy way out...????? He doesn't get it. I'm not trying to get out of work - I'm trying to make it easier on myself, so I can do more in a day!
A few things I TRY or PLAN to do to help myself:
1. Put dishes in the dishwasher (or wash) immediately after each meal, so they don't stack up and become harder to do.
2. Stagger chores throughout the week, as needed (Mon - dust and vacuum, Wed - clean bathrooms, Sat - change bed linens, etc., so I'm not trying to do too much in one day. Sunday, I don't do anything strenuous.
3. Set up all bills possible on autopay through my bank and/or credit card. (I still missed two bills that came through a couple of months ago...)
4. Do something for myself every day - apply for at least one job, keep up on dr appts, eat better, exercise, yoga, meditation, Epsom salt soak, journal, etc. (Except for supplements and a better diet, I currently DON'T do the above, but bought Epsom salt yesterday, so there's a start! I have a 4 month old pilates machine still in the box...)
5. Volunteer time doing something I enjoy. As Site Admin, I'm helping to resurrect the once famous giving site 29Gifts, now on follr.com and Facebook. Sadly, I've been too tired to devote time to the new website lately, but plan to jump back in Nov 1 to keep the momentum going. I rescue stray and abandoned animals and work with a no-kill shelter to find them homes.
6. Continue to make contact with others with my condition(s) to share stories and support. It doesn't make the pain go away, but it sure helps to have you guys around to empathize and share solutions with. I recently joined a couple of Facebook sites. If you're interested in them, let me know. We're all in the same boat, even though we feel isolated.
7. Take my dog to the park daily.
8. And this is a big one - don't let my husband's words or attitude affect me, because I'm the only one who can allow that to happen!