Hi Everyone, My 15 year old daughter was diagnosed this week with AMPS this week. We know little about this. We are glad to finally put a name to all of the terrible symptoms she's had for the past 3 years. Although I reported all symptoms to her Pediatrician - even switching Dr.s to no avail. They both said the same thing "she just has a virus". Well she does have several other health conditions which may have confused the issue but should not have. Two of her health conditions Acute Migraines and Vocal Chord Dysfunction may be related to the AMPS according to the Rheumatologist that diagnosed her but would not explain her other symptoms. In his opinion she should have been referred much earlier. The sad thing I was never referred I asked for a referral out of desperation!
My daughters complaints are that her bones hurt, her joints ache, she's always tired even though she's just slept for 12 hours! She just complains of a general sick feeling. Unfortunately this happens quite frequently and the aches and pains are fairly constant.
We are interested in hearing from anyone familiar with AMPS and how they have managed it. We would like to hear about successes and failures in treatment as her Dr. said this can be a trial and error treatment situation. She will be treated as an outpatient with Physical Therapy, her Psychologist, the support of other medical care professionals as well as a brand new Pediatrician who is familiar with this syndrome. Her father and I will of course do anything we can to get our lively, fun loving girl back. She is so miserable she also wants to do whatever she can to feel better.
We look forward to hearing from you.