I am Kreasi, 50yo female. I went to Rheumatologist for first time trying to get diagnosis. Primary Doc suspected Fibromyalgia. I made a diary and list of symptoms. I have Fatigue, multiple areas of deep aching pain, breathlessness, IBS, Reynaulds, headache, tender points, brain fog, insomnia and awake unrested, etc for 2 years now. Its episodic. It lasts days to weeks. In between I feel great. I am fat but eat healthy and walk my dogs 40 minutes a day regardless. I’ve had all normal blood tests, checked heart, lungs, thyroid, no diabetes, no allergies, no gastro issues, and even bipolar/depression. Nothing abnormal. I quit looking for an answer… all the Doctor’s made me feel I was just fat and imagining it. I figured it will either get better or worse and then maybe we will find an answer. This year I have had very very few good days.
He ignored my diary, poked me a few times, had me flex my knees and touch my toes. He started talking about Fibro and how pain meds aren’t the solution. I told him I am not seeking pain meds but help for the overwhelming Fatigue because it has me unable to work more than 10 to15 hours a week.
He talked about which came first chicken or egg … said I probably had Fibro but its really part of a Central Pain Syndrome. I told him its totally dibilitating at times. He suggested Aqua-therapy and Cognitive Behavior Therapy to learn to deal with the pain and fatigue. Oh yea and he had to mention the low Vitamin D from 3 months ago that I have treated with 50,000 units a week since and that everyone has.
My visit summary only mentions Central Pain Syndrome (CpS) and never mentions Fibro. I feel dismissed as usual. Is CpS just another way of saying its all in my head? Online it sounds serious but he didn’t order any further tests. I asked him via email to put Fibro and more details in my record… I doubt he will. What a waste of time and energy.
I am so sick of Doctor’s but sick of being sick even more.