An interesting Canadian Doc

Attached is a document I ran across while reviewing various publications on the net. It indicates that GP’s

Sorry finger slipped. Here is the site. http://www.stacommunications.com/journals/cme/2013/01-January/01CME_042.pdf. If this thinking is across the board it may explain why we’re not often treated by rheumatologists, told we should continue working, should not reflect “illness behaviors”, be positive, and get out there and exercise. This was not a good day to find this, as I worked out with a trainer today and am now getting pay back, migraine included. I found it pretty scary, scarier for those that are worse than me.

Thought others might be interested in a Canadian perspective.

A doctor actually speaking out, my good ness I need to sit down. At last!! Barb

One other document 2012 Canadian Guidelines for the diagnosis and treatment of fibromyalgia syndrome
http://www.canadianpainsociety.ca/pdf/Fibromyalgia_Guidelines_2012.pdf.

It’s a 52 page document, may be a document that solves your insomnia one night. For shorter version I’d go to page 48-52 where recommendations are summarized. This document also shows that patients should not have to be sent to a specialist for diagnoses or treatment. The doctors in the other document were involved in this document as well.

B2chi

Thank you for that reference. Comprehensive and a reasonably concise snapshot of where we are at in terms of assessment and care. I was not sure that they understood the severity of the condition, certainly in my situation, but very concise there is an awful lot of information in there. Thank you very much. barb

Well,

Neither one of those folks has fibro, obviously. Here’s our best medical advice, “just suck it up”.

Great.

I don’t really agree. I need something for my pain now.

I found this article interesting, but at best very damaging to people with Fibromyalgia. Most patients do not have just Fibromyalgia which makes it more diffucult to treat. Mine was found after a car accident in which I had a severe spinal injury that left me with horrible nerve damage and pain. I had surgery, but was told there was no guarantee it would work forever, if ever and I would have deterioration. Thus, now I am in a wheelchair and the pain is a lot worse. I have learned that I have to manage my care and be in charge and find that I get respect because of it. It is not just doctors who have done us wrong, but the general public as well because of its disbelief of the illness because it is an “invisible” illness. People do not believe things they cannot see! Sometimes, I think that some doctors fall into this category which doesn’t help us. If you find a doctor who is empathetic, nurture that relationship. My accident occurred in 1991 so have been dealing with this for 22 years. I certainly never thought that I would end up leaving a very vibrant and challenging career to go on disability. That was never in my plan when I completed my masters degree. I don’t think that a lot of people know the painful decisions that we have to make because of this “invisible” illness and the losses we suffer. That is why when we find doctors or groups like this where we can express ourselves and talk about what it is really like on a daily basis, it is a blessing to cherish!

Wow! The short document says basically that we just have to change how we live. The longer document indicates the use of medication and acknowledges the challenges of fibromyalgia. What a contrast!

This is a fascinating article, one that I enjoyed going through. Thanks!

-Susan (Scribelle)

It's especially difficult when both spinal injury and fibromyalgia interact. I am so sorry that you have gone through this. I had spinal injury when a computer chair rolled out just as I was about to sit. I landed straight on my spine, and could feel the impact reverberate all the way to the top. I now have cervical & lumbar damage, and MRI showed rotational scoliosis in the thoracic vertebrae. So nothing is as it should be in the spine. I survived cancer, but got this injury at the beginning of treatment. Yes, our plans certainly do change!

You are so right when you say that we need to be in charge and command respect. We can't blame the doctors, but we need to find doctors who are willing to be active team members with us. The mutual respect is so valuable!

I find it helps to separate explanations to say that I have spinal injury plus fibromyalgia. Fibromyalgia is so invisible that I have to choose who I will educate and who I will not spend the energy on. Many don't know what we have to do to manage it, and if we don't share it, they will never know. We can't educate everyone, but a few key friends can learn and spread the word.

Pain-free hugs,

Susan (Scribelle)