I’m new to the site and glad to finally have a support group option as nobody seems to be able to offer much beyond medication. I was diagnosed four years ago after about a decade seeking answers.
I’ve tried both Lyrica (no help there, just drowsy) and Cymbalta (caused new muscle spasms). I was also prescribed Tramadol when the pain got really bad and the side effects to that one were an A grade nightmare! Currently I’m on Panadol Osteo, but I’m not seeing much help there either and can only stick with it for so long due to potential for side effects. I managed to secure an appointment with a pain clinic in the last week- in August… but I’ve been warned they may only offer stronger medications.
I go to physio every three weeks and so far that’s the only thing that has been consistently helpful, as well as working with a psychologist, including CBT.
Can anyone offer advice regarding what works for them when things flare up, other than medication- I get so pain sensitive I’m scared of trying massage when it’s bad and my lovely dogs can only help so much. As I’ve seen some improvement physically I’ve found it harder to deal with the setbacks mentally, especially when the pain seems like it will never end.
I really want to be there and everything my Kindergarten class needs, but when the pain is bad it is difficult to be what I want to be and I don’t want my class to suffer for that!
Thanks in advance!