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Living With Fibromyalgia - Online Support Group

A Letter That Helps Explain What We're Going Through

#1

Hi All,

And a warm welcome and gentle hugs to all who've just found this place!

I was talking with a friend last night who is getting a malamute soon, and had a look at the website she found it at. What a wonderful coincidence that the lady who runs the place had posted something very well-written that helps to explain the intricacy and multiplicity of troubles that come with chronic pain in a straight-forward very honest and human way that makes it easy for anyone with any ounce of compassion to understand.

It made me stop and think, and I thought of all of you wonderful folks here with whom I'd like to share the letter I found.

Here is the link. I hope, for those of you who have trouble explaining this (it certainly is a challenge, and when I try, usually people go glassy-eyed... bleh), that it will help!

http://www.alaskanmalamutesoftherockies.com/invisible_illness.html

Love and gentle hugs to all!

-Natria

#2

Natria, Thank you so much for sharing. Letters like this can be helpful for those people that just don't understand what we are going through. If you look back at some of the discussions you can find a few more good letters as well. Hope you have a great day... Hugs...

#3

THANK YOU!!! This is exactly what I feel and I don't know how many times people feel I like I am faking my pain. Thank you!!

#4

LTHANKS THATS EXACTLY HOW I FEEL ID LIKE TO EMAIL THIS TO MY DAD BUT HES CHANGED HIS EMAIL BUT HES NOT WORTH THE TIME AND ENERGY SPENT TO SEND IT HE AND THE GIRLFRIEND THEYRE NEGATIVE TOXIC POISON PEOPLE AND ARE AVOIDED AT ALL COSTS I SPEAK TO HIM ONLY WHEN HE SPEAKS TO ME AND NEVER I MEAN NEVER TO HER MY VERY VALUABLE TIME AND ENERGY SRE BETTER SPENT ON TAKING CARE OF MYSELF AND HEIDI I DONT NEED PEOPLE IN MY LIFE LIKE THAT IM KEEPING EVERYRHING TO MYSELF SO HE AND HIS GIRLFRIEND SHE MIGHT TELL HER SON AND DAUGHTER-IN-LAW GRAND DAUGHTER AND BOYFRIEND WHO LIVE IN AN UPSTAIRS APARTMENT ABOVE HER HOUSE HAVE PROBABLY HAVE ALSO BERN TOLD I DONT KNOW FOR SURE HER HOMETOWNS THE SIZE OF BURLINGTON IOWA AND 6000 OF MY HOMETOWN GOSSIP TRAVELS FAST IN MY HOMETOWN IF YOU WANT TO KEEP IT SECRET YOU SHOULD TAKE IT TO YOUR GRAVE THE PEOPLE I TALK TO KNOW A LOT OF PROPOE IN TOWN IF THE 3-4. PEOPKE IVE TOLD WOULD TELL SOMEONE IN TOWN AT BREAKFAST IT WOULD BE ALL OVER TOWN BY LUNCH ITS EONDRRFUL TO HAVE GOOD FRIENDS LIKE YOU IN MY LIFE MY FRIENDS ARE WONDERFUL AND WE WOULD DO ANYTHING FIR EACH OTHER HAVE A GOOD DAY AND EARLY HAPPY EASTER AND PASSOVER FOR RHOSE OF YOU THAT ARE JEWISH AND CHRISTIAN

#5

Thank you so much! That is beautiful. I am saving it for future use!

L-Kitty

#6

Thanks for all your replies on this. Such a wonderful and helpful letter! I think I'll call the lady that posted it on that website today or tomorrow to thank her -from all of us-! :)

#7

Thank you so much for posting this! I printed it and gave it to my daughter who was visiting. This should help her better understand and not think its just me... Thanks again! : )

#8

Thank you so much I am sharing on my fb and it has helped me so much cuz i still have a hard time explaining all this to myslef feeling like i made this happen somehow but anyways ty for sharing this