Quantcast

Living With Fibromyalgia - Online Support Group

A Letter From Fibromyalgia

#1

I found this letter on a blog. The author is unknown and said i was free to share it. It made me laugh and lighten up a bit. I thought maybe you guys would enjoy reading it aslo or sharing it withfriends ior loved ones.

A LETTER FROM FIBROMYALGIA

Dear Miserable Human Being,

Hi, my name is Fibromyalgia, and I’m an invisible chronic illness. I am now ‘velcroed’ to you for life. Others around you can’t see me or hear me, but YOUR body feels me. I can attack you anywhere and anyway I please. I can cause severe pain, or if I am in a good mood, I can just cause you to ache all over.

Remember when you and Energy ran around together and had fun? I took Energy from you and gave you Exhaustion. Just try to have fun now! I also took Good Sleep from you and in its place gave you Fibro Fog (a.k.a.) Brain Fog. I can make you tremble internally or make you feel cold or hot when everyone else feels normal. Oh yeah, I can make you feel anxious or depressed, too. If you have something planned, or are looking forward to a great day, I can take that away too. You didn’t ask for me. I chose you for various reasons: that virus you had that you never quite recovered from, or that car accident, or childbirth, the death of a loved one, or maybe it was those years of abuse and trauma. Well, anyway, I’m here to stay! I hear you’re going to see a doctor who can get rid of me. I’m ‘ROFL’ (rolling on the floor laughing)! Just try! You will have to go to many, many doctors until you find one who can help you effectively. In fact, you’ll see many doctors who tell you ‘it’s all in your head’ (or some version of that). If you do find a doctor willing to treat this ‘non-disease’, you will be put on pain pills, sleeping pills, and energy pills. You will be told you are suffering from anxiety or depression, given a TENS unit, told if you just sleep and exercise properly, I will go away. You’ll be told to think positively, poked, prodded, and most of all, you will not be taken seriously when you cry to the doctor how debilitating life is for you every single day!

Your family, friends, and coworkers will all listen to you until they just get tired of hearing about how I make you feel, and that I’m a debilitating disease. Some of them will say things like “Oh, you’re just having a bad day”, or “Well, remember, you can’t expect to do the things you used to do 20 years ago,” not hearing that you said “20 DAYS ago”! Some will just start talking behind your back, while you slowly feel that you are losing your dignity, trying to make them understand, especially when you are in the middle of a conversation with a ‘normal’ person, and can’t remember what you were going to say next!

In closing, you’ve probably figured out that the ONLY place you will get any real support and understanding in dealing with me is with Other People with Fibromyalgia! They are the only ones that will understand your complaints of unrelenting pain, insomnia, fibro fog, the inability to perform the everyday tasks that ‘normal people’ take for granted.

Remember, I’m stuck to you like Velcro – and I expect we’ll be together for the rest of your life.

Have a nice day!! (ROFL),

#2

THANKS FOR THIS LETTER IT SHOULD BE PUBLISHED IN A NEWSPAPER EVERY DAY OR PUT IN PUBLIC PLACES LIKE GROCERY STORES AND DR OFFICES HOSPITALS SO PEOPLE SEE IT

#3

That's pretty good think ill send it to a friend she will like it.

#4

This is great Teesa!

#5

Thanks for posting Teesa, gave me a chuckle. My hope is that they find a treatment in the next five years which will release the Velcro especially for all of you that are so young. I have a few friends who are interested in learning more I’ll share it with.

#6

Wonderful! Thanks form sharing.

#7

No problem guys. I thought it was funny. Glad to lighten things up a bit

#8

Thank you for sharing . i believe everyone I know should read this, in fact I will try to send it on. Still in the learning phase of computer & as my memory is scatty to say the least it’s taking a while for new info to stick(I can’t think why that might be). Ha ha ha Fibro are you there…

#9

Wow this is just a perfect explanation to show others of how this Horrid thing takes over our lives. Thanks for sharing

#10

Love the letter would make a minor change and add to the first paragraph "I can cause pain from level 2 to level 14, yeah I know that the pain scale only goes from 1-10 but whoever designed that didn’t know me personally."



Now if someone could only draw us the face of “fibromyalgia” that we could put up on our mirrors , dartboards, or punching bags, something to help focus our anger out wards not inwards and challenge us to beat this or at least do everything we can to find ways of improving our quality of life. Anyone out there an artist, I can envision it, a green jelly like face with purple warts, huge smile with crimson teeth, blue drool, bloodshot eyes (it does stay up with us); do you get the picture? Can anyone else visualize a face, if yes what does it look like?



Thanks for posting Teesa, makes me want to fight harder. Hope you’re doing better these days.



Gentle hugs

#11

Great explination of what we all have to live with. I agree, we need a good pic of what fibro looks like so I can use it as a punching bag. I can’t draw worth crap but if someone does draw this face I think it should remain faceless because that will show everyone that fibro doesn’t have a face, it has too many faces to count. Thanks!

#12

Great article. If I had any Energy I would probably chuckle. As it is...I'm just smiling. I will have to forward this to family & friends! Thanks so much for posting it!

Hugs, Kimberly :)

#13

I agree with you, that statement about the pain scale should be in there!!

Gentle hugs :)

#14

Thank you for posting this ooooohhh!!! so true

#15

I love this;) Couldn’t say it better myself.

#16

This explains it perfectly

#17

This is perfect! Thanks for sharing.

#18

This is great and spot on! Thanks for sharing.