I will try to answer your previous post as I read it through again - probably going to be a long post from me. Heads up! Wall of text incoming.
It was a pleasure to read and respond to your original post (OP) I get the whole 'in a bad place' thing - been there, bought the T-Shirt, stole the hat etc. It's a double bad when the 'bad place' is compounded by pain and a migraine in itself is awful without being part of that 'bad place'. I hope you are feeling much better.
Ataxia is best explained if you visit http://www.livingwithataxia.org/ - another Ben's Friends venture. Basically; "People with ataxia have problems with coordination because parts of the nervous system that control movement and balance are affected". In my case, I cannot walk far,I can manage to walk about in the house with walking sticks (we have hand rails and other aids) but outside I can only manage short distances on crutches and have a mobility scooter to get around town and wheelchair for trips further afield. I also have intermittent coordination issues in my hands and pain - well I'm sure you get the idea!
I was first (un)diagnosed with ataxia in March 2009 after an accident the year before. After 7 or so years of prodding and poking, undiagnosed ataxia then 'gait' ataxia my 'medical team' have now concluded that I have Cerebellar ataxia. The doctors and such have been a mix of good, bad and indifferent but mainly very good in general.
My Fibro diagnosis was something of a surprise - but not! I spoke with my GP about muscle and other pain I regularly get around my body and the debilitating migraines I get from time to time. We also spoke of how I was told in my childhood that I had fibrositis, the GP replied that it was in my records that I have (and have had for years) fibromyalgia! This was in January 2013. It was no surprise in that I knew something was wrong and had been living as best I could for years and (physically) working through the pain and such but it was a surprise to be told that, of course I must have it hard, having both ataxia and fibro. At the surgery I attend I see whichever of the doctors is available (its usually one of three I see now) but non had thought to confirm the fibro over the years!
Yeah! Sport was never my strong point but I did enjoy the odd game of cricket, baseball or American football. I also used to cycle up to twenty miles of an evening once or twice a week after work and up to forty miles a day on alternate weekends (sometimes more). I enjoyed hiking and from time to time got the chance to wind surf, canoe or rock climb / abseil. All of those are not really achievable just now for me but I may be able to start swimming again soon and a friend is looking into the possibility of me using a recumbent trike at a nearby athletics field - these may never happen but at least we are taking a look!
I know the energy thing all too well. There are days I get up and feel I could run a marathon but mostly I get fatigued really quickly. Even preparing a meal can leave me exhausted. I'm going to the seaside tomorrow and it should be fun - even though the weather forecast is not so good. I know that, in all likelihood, I will need to stay in bed or at least in my darkened room for a few days after but it will be a small price to pay for a day out.
I do my best to go about my daily life as any other person would but have to be aware of pain management - I take two types of pain killer and a muscle relaxant during the day and have agreed with my GP to stay off higher grade medication for the time being as it is likely to be addictive. I have had no choice other than to adapt my life around my health. At first it was hard to accept I was in poor health and need to adapt - we men are indestructible after all! (Or at least we like to think we are). Over time I have come to realise my limits and change the things I do. Sure I have had to stop some things (like sport) but the old adage "were there is a will there is a way" is as true today as ever. We are all different though and the right adaptation for me may not be right for you. It may take some effort but I'm sure you can 'get there'. I have a list of food and drink I avoid and this helps. I try to manage my energy for the day if I feel need to. It may be a good idea for you to read up on the 'Spoon Theory' as, though it may not help, it is a good story and could give you good insight to the problem: http://www.butyoudontlooksick.com/category/the-spoon-theory/ is the best source.
Staying positive is a real boon to me but I try not to over do it! It is entirely possible that being inappropriately positive can have a very negative outcome. Still! I tries me best. As for 'triggers' I came across this idea after having a particularly bad migraine that took me 'out of play' for a week some years ago. I spoke with a GP about the migraine and he pointed me to a book about migraine and 'triggers' - this was when the WWW was young. I do not recall the name of the book but you should be able to find sources on the net about such 'triggers'. I will tell though that it is pretty much trial and error and most people have varying and different 'triggers'. Hmm! Chocolate - must use in moderation as it can be a 'trigger' for me. I do, only sometimes 'comfort eat'. I know it can be bad for me but we all need a treat now and then.
As we go on (and I know I do), I think it is important to take a little it of a tangent here! I want to impart something that may or may not be of use. In the past, I too often thought that I was all alone and that I wanted to just give up on myself, those around me and life in general. Thing is, back then, I really was in a 'bad' place. My whole life was affected by the fibro (unconfirmed then) and the onset of ataxia as it where. They were difficult times. When people were telling me "chin up", "it may never happen", "others have it worse than you" and other such perceived banalities or worse still coming up with really inconsiderate things like "you are too young to be ill" or "faker - I went to school with you and there was nothing wrong then" (20+ years after leaving school), though I am more or less a pacifist by nature, I truly just wanted to 'deck' them - but that would have taken me below their level. Yes! Life can be hard and throw us a tangent. Yes! Adaptation is not always easy. Yes! There are lots of somewhat idiotic, unsympathetic people that will make things worse rather than leave alone or improve our lives. Non of these is worthy of making us give up though and, tough as it may be, we must never let them do so.
Back on track! Our friends are our friends but (you are right) they cannot always be available to us due to their own family, work and other commitments. I have friends I used to see regular that I rarely see now - since my heath nose dived. On the other hand, I have friends I rarely saw that I see often now. Go figure! I even get told by some of my new friends or old ones that have 'stayed around' that I am going to the pub and will be dragged there by force if needed. It can be really hard adapting to socialising in a different way and I really appreciate your concerns on the matter. Sometimes it feels rotten that I have had to adjust but my friends have not been prepared to but that is life I suppose. Again I feel lucky in that I now have a core of like minded, tolerant, accepting and adaptable (if I can use that word here) friends - some are wider family members, some are old friends and some are new. I sincerely hope you can find your own core of such wonderful people. Remember though that part of asking others to adapt is to be flexible and open to adaptation our self.
"It is difficult to talk to someone who doesn't know ... you almost have to prove it." This is all too true. Try not to let it upset you - hard as that may be. I do not like letting people in either. Yes I can be very independent and adventurous but that does not make me a extravert who wants people poking around in my private pain. As we have noted though. Sometimes we need to let people in and accept that, not only do they want to help, they care for us. It can be very easy to see ones own perceived weakness and to think that others see us as weak when, maybe, they really do not. I know it took months with some family and friends to 'prove' that I actually have poor health and some still do not believe me - some never will for whatever reason. It can be really frustrating when others are unsympathetic. On the flip side, it commonly only takes one person to take an interest - then our 'wider circle' will come to a better understanding. I hope you can find that one.
Well! What a wall of text!
Think I'll finish off now.
I truly do not have the right answers and I fully understand we are all different. I'm glad though that my earlier writings were well received. Taking time to help someone else can be very helpful to all parties - in helping others we often help, be it inadvertently, our own cause.
As I mentioned earlier, I'm not always on site. Sometimes I may not be able to respond in a timely fashion. It has been good 'chewing the cud' though and I look forward to more of the same from time to time. :)