Started Dec 19, 2011 0 Replies 0 Likes
Since others have subsequently asked about organizing groups and meetups in their area, the moderators and I have decided to create this forum discussion so the community can throw out ideas and…Continue
Started Aug 13, 2011 0 Replies 0 Likes
Apologies, this is a re-ocurring problem. I've found that if I scroll down on the page farther, creating 2 inches between the "Send" button and the bottom of the browser window, then it works. When…Continue
Started this discussion. Last reply by Ben Munoz Jul 2, 2011. 2 Replies 0 Likes
A member of our sister site http://www.ChiariSupport.org posted a tutorial on how to make our community easier to find on the internet by linking to us from…Continue
Started this discussion. Last reply by Hopabout Apr 17. 57 Replies 0 Likes
Some information for new members on how to help yourself and how to help others is here:http://www.livingwithfibro.org/page/how-to-helpIn…Continue
Posted on May 25, 2012 at 11:00am 0 Comments 0 Likes
Dear Friends and Family of LivingWithFibro,
We are so excited we cannot wait to tell you about how our organization is growing, so we’ll go straight at it. We are please to tell you that collectively our patient communities have reached four consecutive monthly peaks in all aspects of our activities, overshooting even the targets we have set ourselves two months ahead!
Here are some highlights:
Total members for all communities at the…
ContinuePosted on April 23, 2012 at 11:30am 0 Comments 0 Likes
Dear Friends and Family of LivingwithFibro,
April – the smell of spring in the air!
Spring brings a lot of positive notes: it signals growth and rebirth. As Ben’s Friends, our patient support group is growing real fast. As a member community, you’ll see stats on how we contributed to this growth as reported below. Be assured that no matter how small the contribution may be, it adds up and it is very much appreciated!
Our presence is being felt…
ContinuePosted on March 23, 2012 at 10:00am 0 Comments 0 Likes
Dear Friends and Family of LivingWithFibro,
February brought us great strides as our various communities of rare disease support groups gathered the largest number of new memberships of all time! The volume of blog posts, comments and discussions also increased. We at Ben’s Friends commend you all for your active support of our communities!
IN THIS …
ContinuePosted on February 22, 2012 at 8:26pm 0 Comments 0 Likes
Dear Friends and Family of LivingwithFibro,
As you well know, living with Fibromyalgia can be very challenging not only for you but to your families as well. This organization was built with a view to helping you and your families to live up to this challenge by linking you up with people who share similar experiences and have succeeded in maintaining a positive outlook!
Explore more how our community had helped members face…
ContinueThis community is part of the Ben's Friends network of patient communities. Learn more at bensfriends.org.
Patient Communities
Acute Disseminated Encephalomyelitis (ADEM)
ADHD/ADD
Adrenoleukodystrophy (ALD)
Amyloidosis
Arteriovenous Malformation (AVM)
Ataxia (International)
Ataxia (U.S.A.)
Atrial Septal Defect
Brain Aneurysms
Charcot Marie Tooth (CMT)
Chiari Malformation
Chronic Inflammatory Demyelinating Polyneuropathy (CIDP)
Crohn's Disease
Disabilities
Eagle Syndrome
Erythromelalgia
Fabry
Fibromyalgia
Glossopharyngeal Neuralgia(GPN)
Lupus
Multiple Myeloma
Myositis
Narcolepsy
Primary Sclerosing Cholangitis (PSC)
Psoriatic Arthritis (PsA)
Synovial Sarcoma
Trigeminal Neuralgia (TN)
Von Willebrand's Disease (VWD)
Other Rare Diseases
"To Know the Joy of Giving"
© 2012 Created by BensFriends.org
Comment Wall (45 comments)
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Join Living With Fibromyalgia - Online Support Group
Hi Ben,
I have been inactive since I signed up last year but now I am more active. So far thi sis a good site. I will soon have comments and feedback and will share. Thank you
Hi Ben, Sheila here. Is therre any reason why my message won't go through to Eric
K. Poy? The site won't receive my "ADDED COMMENT". Thanks for letting me know.
(Blue eyes)
BEN....FIBRO...VOICE,,,,
Thanks sooo much Ben...I definitely feel some support here already....<3
Thank you Ben. I am NOT having a good day (Fibro issues) so every comment and guidance from this group is so much appreciated. Indeed, it does help to know there are people that genuinely care. I've just started to read some of the members blogs/stories and feel that there is some hope after all.
Geranium
ModeratorLady Tessa -Anise said…
Thanks very much for your kind words and welcome, i will spend as much time on here as i can and since i can't work because of Fibro that should be quite a lot.
Arty
Ben,
Thanks for responding. I look forward to being apart of this community.
Achy Breaky
Thanks for the welcome, it is much appreciated!
Thank you
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