Many people with Fibro also have TMJ
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Latest Activity: Apr 26

Started by Rachel Wagner. Last reply by MikefromsouthNZ Sep 19, 2011. 1 Reply 0 Likes
Recently I have noticed over the last 2-3 months that I will have pain in my jaw right below my earlobes. It wasn't everyday just every now & then. I was diagnosed with TMJ in 2006 but didn't…Continue
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Comment by Gabriella on July 8, 2011 at 12:01am So yesterday I bought a $20 mouth guard from the drug store. I woke up in the morning and the part where the two plastic parts were glued together - had been split apart. Granted, I got home late and didn't do the whole "fitting" process first - so maybe that's why.
However, if after the fitting process this happens again, I have a question for you guys. Is there a way that insurance would pay for a custom-made mouth guard for TMJ/bruxism? I have straight Medicaid, if that helps..
Gabby
Comment by Chris on July 6, 2011 at 2:51pm
Comment by MikefromsouthNZ on June 10, 2011 at 11:07pm Hi, I was diagnosed with TMJ about 7 years ago when I visited my GP, as I thought that I had an ear infection and bad earache. I'm not sure if it's related to my having fibro but I've never had this problem before my fibro diagnosis in 1998.
Since 2004 I have been a patient at the ENT and Dental unit at Southland Hospital and have a very good Maxelo Specialist. I'm now on my 5th mouth splint and need to wear it 24/7, just to take it out when I eat my meals... The click or popping of my joints are now major clunks that make my ears ring, as if a loud gun had gone off. I also get jaw-lock and have to close my mouth with my hand or get someone close to shut it for me, as it hurts real bad if it's left too long. My jaw gets achy with the colder weather and I always wear a scarf over my lower face when I have to go outdoors, so I try and stop the cold air getting to my mouth and jaw. The cold is my biggest problem as I get bad pain, almost identical to awful earache. My Specialist doesn't want to try surgery as he would have to use a nerve blocker to stop the pain in my face, as my CP (spastic type of movements) would break off the wires to hold my jaw in place, until my jaw joints had time to heal. He is concerned and may inject steroids into my joints but is reluctant to, as it may breakdown the cartilage and leave bone on bone pain and he said it's a possibility that I will be in even more pain. My meals are all soft diet now and everything large to eat I'm not aloud, as I may dislocate my jaw again...
Has anyone got any good advice or sensible ideas to help my situation as wearing a mouth splint for the rest of my life doesn't really seem fair?
Comment by Mary on April 15, 2011 at 10:11pm
Comment by Amy A Dye on April 28, 2010 at 10:56am
Comment by Amy A Dye on April 28, 2010 at 10:20am
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