Living With Fibromyalgia - Online Support Group

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PAIN MANAGEMENT

A forum to share and advocate pain management programs that have worked for you or post pain management programs that have not worked for you. 

Members: 64
Latest Activity: on Sunday

Discussion Forum

Medical Marijuana Program

Started by Joanie. Last reply by Perk322 Apr 20. 20 Replies

Hi I'm new to this group and this site.  I know it can be controversial, but is anyone on Medical Marijuana? I live in Canada, and Health Canada,(Gov) has a MM program, I got approved for it about 8…Continue

Marijuanna

Started by sweetpea68. Last reply by sweetpea68 Aug 26, 2012. 4 Replies

I know it's hard trying to fine meds that can truly help each and everyone of us. We are all different and our needs for medication seems to change. As for medical marijuanna I do know from my…Continue

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Comment by Allesmere on April 19, 2013 at 3:34am

Hot baths are my savior for bad back pain. Actually had to turn my water heater up to get them as hot as I could stand. I also enjoy those neck warmers that have lavender in them for small pain spots. Plus I can just use them in bed since they aren't electric.

I got a heated blanket this year and man oh man is that nice. What is it with pain and heat?

Comment by siskiya on April 19, 2013 at 1:18am

Susan....sounds like you have fibro so hot baths with epsom salts, use bubble bath as bubbles keep water insulated and if you add squirt of dish soap it keeps tub clean. I also put in baking soda just to keep skin from drying out too much with squirt of baby oil.small one. But this will relieve you of fibro pain and can last good couple hours after getting out...i will stay in it for few hours on bad days ..light candle and read a great book! Works many of us use this to help.

I also got a massage machine like a TEN's machine..has pads i can place on hips or shoulders etc....has like 8 different modes and i set it for 30 minutes and it does help.

For pain...if you can stomach it, just plain old motrin works the best even better than narcotics. But i was on 800 mg to 1000 so it was prescribed...eat before taking to save your stomach if you get it prescribed...be cheaper than buying otc at that high a dose..

Pot does help with pain....they have very specific kinds now days for pain or to help you sleep, nausea etc...and you do not need to smoke as they have in suckers to all kinds of food products....just read and just less at first...much stronger these days. 

Yes all my doctors have been sympathetic till my GP retired since he got sick...idiot who replaced him thinks i been fooling doctors for over 10 years about having autoimmune diseases lol! I am serious....he says i am faking it and drug seeker....point is i have not increased my pain meds for over 7 years and only in last year has breakthrough pain been a issue. Idiot after i said how i asked my sick GP to refer me to pain specialist and he forgot....poor guy was trying his best to keep working ...so idiot doctor does referral and puts i am over medicated and drug seeker why he is sending me like i never asked...well pain doc so far has believed me and even told me to tell idiot doc to refer me to ortho doc as my shoulder is extremely messed up...one of things the idiot dr said i was lying about...so what is he doing about referral..ignoring it. Talk about not being professional and doing your patient no harm! 

sorry just irks me that he can write things that are lies about my reputation and i am for sure going to speak to pain doc now that i know what he wrote. 

Comment by jackiediana on April 18, 2013 at 9:36pm

I have never tried marijuanna but if I knew how to get it I think I would try it.  I get so tired of hurting all the time.

Comment by Perk322 on March 30, 2013 at 6:32pm
Fist Bump Laura!!!
Comment by Perk322 on March 30, 2013 at 6:30pm
After saying the below info, I'm now on pretty big time meds. I feel so guilty about it and am totally embarrassed when I have to give my medical history to a new doctor. But, they all comfort me and say that with all of my medical issues if I need the meds to not be in pain that's ok. I've tried, on my own, to 1/2 my dose, but the pain is sooooo severe that I have to go back to what the doctor has me on.
Plus my medical history involves CFS, CVID(common variable immune deficiency) and the Fibro. All 3 of these have pain as a symptom. I just see all of these options y'all are trying and wonder if they would have worked for me before I had to be on this serious medication. The other issue I have is that I'm on psychiatric meds already and Lyrica etc. would mess with those meds which are perfectly balanced. (Don't mess with that chemical recipe...LOL)
So, if some of you can talk about your pain and how it started and has escalated.... Maybe I'm just wanting to feel better about my level of pain. So help a girl feel good about taking her meds as prescribed.
Comment by Perk322 on March 30, 2013 at 6:10pm
Susan H. I'm seeing a rheumatologist, he is the first doctor to diagnose me as having Fibro, on top of my CFS. he immediately took charge of my pain and worked with me until I was pain free. So I highly recommend rheumatologist s because they deal with pain everyday.
Comment by Sheila W on January 13, 2013 at 1:17pm

Susan H, Voltaren Emulgel is a great help, as is Arnica gel by A535 Rub brand. Neither have a smell. You could even ask your Dr. to prescribe a cream that's 5x stronger than Voltaren emulgel, it's called diclofenac 5% cream. The pharmacist mixes it up for you, and you can choose to have menthol added, but I like to be scent free. I know you feel like you'd have to bath in it, but I've found that if I can get the most painful spots to settle down, the rest of my body's pain lessens also. Voltaren/diclofenac is anti-inflammatory and also a bit numbing, so you can rub a knot in a muscle out, when just touching it hurts too much. I'm sure your Dr. would be happy to offer a topical cream rather than a strong drug. I am so sorry that you have one of those doctors who are afraid to deal with opiates and are not compassionate about severe pain. Call the pain mgmt doc and tell them you were referred by Dr. ___ and you've been waiting for an appointment, so could you make it then on the phone. Sometimes you have to be the squeaky wheel to get the grease.

Best wishes, Sheila

Comment by Susan H on January 13, 2013 at 12:57pm

I currently take 60 mg of Cymbalta daily and 150mg of Lyrica twice a day. I take Clonazepam occasionally during the day. I have tried IcyHot, Aspercreme, Capzacin, and Two Old Goats lotion and nothing has helped. I have severe pain everyday. I do take 100 mg of Trazodone to help me sleep also. My PCP will not help me with pain, and I have been waiting many months to get an appointment with a pain management doc. I live in the U.S. in a state where MJ is illegal to use. Anyone with suggestions for pain relief? Bummer is I am on Medicaid. 

Comment by Susan H on January 13, 2013 at 12:40pm

Hi, everyone!

I am new here. Hope to find something, anything to help my constant fibro pain. I also look forward to making new friends! Hugs!

Comment by katiekd11 on December 28, 2012 at 9:55am
does anyone know of any medications/herbal medicines that have truly made a difference for their fibromyalgia? I'm on Neurontin & Plaquenil; I also take usually 8 Advil a day... I'm desperate. I'm only 23 yrs old and feel like my life is already over.
 
 
 

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