PAIN MANAGEMENT

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Comment by MikefromsouthNZ on January 9, 2012 at 7:44am

I can relate to your post Shannon and I too know your friend, unwanted fibro and chronic fatigue.  hang in there...

Comment by Shannon-in-pain on January 9, 2012 at 7:04am

Today, i cry tears for me. Tomorrow i will cry for you. my back it hurts,my limbs are numb.and my soul is turning blue. it came creeping in the nigh. kidnapped my body .and now won't leave.my new unwanted friend called fibromyalgia and chronic fatigue

Comment by Joanie on November 12, 2011 at 10:49pm

Wow I sure know when the weather changes my shoulders, arms and hands are killing me .

Comment by Teresa Ferenz on October 19, 2011 at 9:40pm

Has anyone here tried accupuncture?  Like medication, sometimes it works, and sometimes it doesn't.  But, it's well worth the try.  Only downside, is most insurance companies won't pay for it.  And, it's out of pocket expense.

Comment by Sheila Wall on September 11, 2011 at 2:33pm

I just posted 2 new discussions about pain. One is where scientists found the gene for nerve pain, which is a huge step if they can just find the chemical that controls that gene. The other is a picture and poem for your loved ones.

Comment by MikefromsouthNZ on July 1, 2011 at 12:35am

I know this is a different way to look at pain management, but has anyone tried medical marijuana? I read it helps with muscle pains and especially spastic tight movements. It helps with MS and as we don't have it as a medical medication here in NZ yet, I'm curious to hear from other patients that have tried it and was it beneficial to your pain management.?

Thanks for your help and support, Mike

Comment by MikefromsouthNZ on June 26, 2011 at 7:05pm

Hi Joy. I'm sorry but I have no help with the medications you listed but I do take other med's for depression and another for pain. It's true about symptoms sometimes getting worse for a week or two before you get the best results but your Dr should have advised you of this, or your pharmacy may have helped as well. I have been on CITALOPRAM for depression for years and just had to change to ESCITALOPRAM OXALATE 10mg mornings and again at 3pm as I was having memory problems. I also take AMITRIPTYLINE HCL 50mg at bed time as it's good for anxiety plus the sleepyness helps get me off to sleep but it is usually proscribe for pain relief. Both these meds need to be started at lower doses and increased over 2 or 3 weeks and during this time it was hard for me to stay awake. The Amitriptyline took a lot longer to help me but I have huge benefits now. Citalopram aren't supposed to be taken together with Amitriptyline as I started to have memory problems but the new combination is working.
Please be aware that I take other medications for my Cerebral Palsy(CP) and these had to be worked around, as some meds I can't take or they may have a reaction to my other meds I do have take.

I do take one med called Clonazepam, a mild tranquilliser for most of my spastic movements that are associated with my CP and they are fantastic to have for anxiety for a short dose but can be habit forming. They are similar to Diazapam. (my spelling is atrocious)

Do hope this may help but be aware I'm not a Dr please Joy.
Take care, Mike

Comment by jaynor1 on June 14, 2011 at 9:48am

I was also interested in information regarding mirapex for the treatment of fibromyalgia. Has anyone tried this medication, and if so did it help? I've read that indigestion and sometimes severe stomach problems can occur while taking this medication, and would like to know if anyone has had these issues while taking mirapex. I know mirapex is not approved by the FDA for fibromyalgia yet, but is approved for restless leg syndrome, and since I also suffer from this I'm thinking about trying to get doctor to prescribe trial for this drug. Any further advice, or information about this drug would be appreciated.

Comment by jaynor1 on June 14, 2011 at 9:41am

Hello all I've now nearly finished the two week triation pack for Savella. Since starting the 50mg. twice daily I'm having same side effects I've always had with any and all anti-depressants. Feel groggy most of the time and getting absolutely no pain relief! At least with the Savella I'm not having suicidal thoughts as I did with most anti-depressants during the first couple of weeks. I think some have talked about fighting through some of the side effects while taking Savella, and then at some point it magically starts working for many. Is this true, or did I dream this? I would welcome any and all suggestions for those taking Savella for fibromyalgia. I'm particularly interested in hearing from anyone who had similar side effects, i.e, groggy, tired, and no pain relief during two week triation trial period. Thank you in advance for any and all information regarding this drug.

Comment by HappyAussie123 on June 14, 2011 at 1:46am

I live in Singapore and can never leave as it's 28-32 each day and I'd die with pain like you are in a cold climate - I'm originally a Pom, but migrated to Aus 9 years ago.

I have a hydrotherapy hotspa in the garden which I get in every day and it's pure heaven - it's set at 39. I know this isn't something we can all do, but a good hot bath does the same.

It doesn't matter how many layers of clothes you have an what you look like as long as you're warm.

Have you tried heat packs? Microwaveable ones - could you re-heat them during the day. I wore one round my neck and one on my back at work every day in Aus.

You can also buy those OSIM Neck Massagers that come with heat options.

If nothing works, it's definitely worth a trip back to the Drs to get better meds. I'm on morphine, lyrica, tramadol/codeine, 2 anti-depressants and I've got to go back to the Drs this week as it's stopped working :-(

It's very hard living with Fibro - unimaginable and can wear you out. I always try and get myself to work as I feel better in peoples company and are very sociable.

As they say in Aus, what doesn't kill you makes you stronger and I firmly believe that :-)

Good luck!

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