Found a good Fibro specialist

I started seeing Dr. Daniel Dantini in Palm Coast, FL. He's an ENT but also suffers from FMS/CFS and has been successfully treating himself as well as many other people. He ran extensive blood work and found I had a severe vitamin D deficiency, Epstein-Barr and Parvo. I'm on several supplements and antiviral meds. Plus he recommended dietary changes. The most noticable change so far (it's only been a few weeks) is my sleep - I feel like I'm sleeping better at night. He said that people with chronic fatigue have their sleep cycles "upside down" - we don't make melatonin at night so the best sleep we get is during our naps during the day (when I tend to crash). I now take melatonin at night before I go to bed. I'm still taking a nap but I'm off of the stimulant I was taking to keep me awake during the day (it didn't work well anyway).

He has a website and does consultations via phone. http://www.4fibromyalgia.com/ He has helped other people I know and I'll keep you posted on how I do too. This isn't a cure but it may make living with FMS/CFS easier (I hope).

Tags: FL, recommendation

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Permalink Reply by stephanie on February 2, 2012 at 5:18pm

More Hope! thank you, keep us posted on your progress. will you share the dietary changes?

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Permalink Reply by Nancy M on February 2, 2012 at 7:23pm

I'm supposed to be eating gluten and corn free. No potatoes (except sweet potatoes), no onions, no tomatoes. No dairy or sugar either. Very hard diet to stick to. I try but it's not easy when there's others in the house who eat differently.

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Permalink Reply by stephanie on February 6, 2012 at 8:11am

gluten free is sooo dang hard to do! I did that for my son in the '90s to try to help him with ADHD... i don't rmember if it helped the ADHD, but i remember him not eating much and me being crazy trying to convert my kitchen to gluten free!

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Permalink Reply by Nancy M on February 6, 2012 at 8:39am

GF is not as difficult now. there are a lot of GF products available at regular grocery stores - it used to be that you had to go to health food stores to find these products. I find it hard to stick to this regimin because there's often potato or corn starch in GF products off the shelves. Also sugar is in everything. I love tomatoes and refuse to give these up. I try to just do GF.