Living With Fibromyalgia - Online Support Group


Welcome! You're not alone.

Getting Started:

1. Become a Member
2. Make Friends
3. Post to a Forum
4. Read or write a Blog
5. Join or Create a Group

Check our FAQ PAGE and First-Time-User Guide.


Since site content and usernames are google searchable, please protect your anonymity by creating a unique username.

To change your username, click here. 


All of the material provided on this site is for informational purposes only and are not a substitute for professional medical advice or treatment.

Always seek the advice of your physician or qualified health provider with any questions regarding your health.

Do not disregard professional medical advice or delay seeking it because of something you read on this site.

Our Guidelines

Let's Keep it Nice & Clean
  1. Describe (share experiences), not Prescribe (suggest treatment for others).
  2. No spam.
  3. No personal attacks or defamatory posts.
  4. No offensive content (profanity, sexual references, illegal activity subject matter, pornographic material or photos).
  5. No specific doctor or hospital name mentioned in a negative context, for legal reasons. Specific doctor or hospital names in a positive context are welcome.
  6. No sharing of members' posts to other sites without their express permission.
  7. No solicitations or promotions of goods or services. No fundraising without the permission of the moderators.
  8. No email addresses or phone numbers on the forum, for your security
  9. Religious content must be restricted to the Prayer Group.
  10. No politics, please.

Thanks for your cooperation.

Community Moderators

Have a question, concern, or suggestion? Or would you like to volunteer?

Please send a private message to a moderator.

Baltimore Baby

What is Fibromyalgia?

Fibromyalgia is a rare disorder that may cause widespread pain in the muscles as well as joint stiffness, nerve pain, unrefreshing sleep, and exhaustion. Patients with Fibromyalgia may also present with digestive disorders and balance problems as well as mild cognitive impairment. What causes Fibromyalgia is yet unknown, though the medical community increasingly recognizes that Fibromylagia involves both sensitization and dysregulation of the central nervous system and its responses to pain stimuli. Fibromyalgia affects primarily women but may also affect men. Fibromyalgia pain is considered chronic, though it can fluctuate.

Currently, there are no definitive laboratory tests based on bloodwork to diagnose Fibromyalgia. Doctors instead rely on clinical observation and symptom reporting from patients for diagnosis. Tests to exclude diseases with similar symptoms such as Rheumatoid Arthritis and Multiple Sclerosis are also performed before a Fibromyalgia diagnosis is confirmed.

Although there is presently no cure, symptoms can be managed with a whole-body approach through the use of prescription medications, coping and stress-relieving strategies such as meditative and psychological therapies, and the maintenance of quality sleep, proper nutrition and a healthy lifestyle.



Started by Rachel in General 3 hours ago. 0 Replies

Today I had such bad pain and pressure in my shoulder. It felt like something was going to snap. But then I moved a certain way and the pain and pressure went away. I was told I don't have a pinch nerve. My pain is back but it is mild. Has anyone…Continue

pain meds

Started by April Shill in General. Last reply by Starr 3 hours ago. 4 Replies

Ok, so I have had fibromyalgia for about 6 years now. I am also prone to bad migraines. Some of which are so debilatating that my head apins, I see double and I start vometing. I take what pain meds I have but as everyone know, you can't treat fibro…Continue

Update on Fibro Photo Shoot

Started by Aimee Rose in General. Last reply by Jackie S. 19 hours ago. 6 Replies


My work had a massage therapist come today.

Started by Mom52 in Symptoms. Last reply by Aimee Rose 23 hours ago. 4 Replies

My boss treated me with a 20 min massage today which felt wonderful until she was done then I immediately felt nauseous.. Left after drinking some water but now I am so sore.. Is this normal?Mom 52Continue

Tags: nauseous, Massage

Scared my son today. Now I can't stop crying :-(

Started by WhatJustHappened in Emotional Support. Last reply by WhatJustHappened on Monday. 4 Replies

Took my 9-year-old son with me to get groceries today.  First time I've tried it without my mom along in a while.  My list wasn't long but, of course, you always think of things you need as you go.  While we were in the store I started getting very…Continue

Tags: future, kids, mom, single

Head sweats, heat intolerance- solutions

Started by Linda in General. Last reply by Linda on Sunday. 5 Replies

I have fibro and chronic fatigue syndrome. Lyrica causes head sweats and any exertion causes my hairline to start to drip. I am also very heat intolerant- a problem because we life in a desert like environment where the summer can get over 109…Continue

Tags: sweating, cooling, hats, excessive, sweats

Mobile App

Keep in touch with friends. Get support and information while on the go. DOWNLOAD the Ben's Friends iPhone App now.

About Our Living with Fibromyalgia Support Community

Mental Health Hotline Information

DEPRESSION is a difficult challenge many of us living

with chronic pain face. 



please feel free to call   


for members in the United States.


For international members, please visit

for information on where to call in your country.

Latest Activity

Starr replied to April Shill's discussion pain meds
"Hi April, I really feel for you, I've had severe migraines for over 35 years, way before…"
3 hours ago

Starr replied to Auburnm's discussion Humor
"Another LOL Cat on Brain Fog! "
3 hours ago
Rachel posted a discussion


Today I had such bad pain and pressure in my shoulder. It felt like something was going to snap.…See More
3 hours ago

Starr commented on purplebutterfly's group Laughter is the Best Medicine
"Brain fog is the topic of the day in the Humor discussion, so I'm posting another one of my…"
3 hours ago
Rachel updated their profile
3 hours ago

Starr left a comment for Mummyof2
"Hi Mummy, welcome! This is a great support site and I think you will find many who know exactly…"
3 hours ago

AnneV left a comment for Dani
"Hello Dani, You are most welcome here, glad you found us! We are a very supportive community, with…"
3 hours ago

Starr commented on Miranda's blog post Medicines and thoughts and stuff ;P
"Hi Miranda, I'm glad that you found the article "Juvenile Fibromyalgia" helpful. You…"
3 hours ago

Help Us Help Others

Support Ben's Friends

Bens Friends

Are You in Crisis?

First take a deep breath, then call the National Suicide Prevention Hotline immediately. 

1-800-273-TALK for members in the United States.

If international members, please visit for the right phone numbers in your region.

If you are or have been in an abusive situation and need help, please call 1-800-799-7233 or visit

LivingWithFibro is a peer-to-peer network

To get support, give support.

Gift Store


Ben created this Ning Network.

© 2015   Created by

Badges  |  Report an Issue  |  Terms of Service