Living With Fibromyalgia - Online Support Group

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Welcome! You're not alone.

If your family has been affected by Fibromyalgia, consider LivingWithFibro Support Group your second home.

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1. Become a Member
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Read More from our  First-Time-User Guide

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Let's Keep it Nice & Clean
1. No Spam.
2. No Personal attacks or character assassination.
3. No Offensive content (profanity, sexual references, illegal activity subject matter, pornographic material or photos).
4. No Profanity, sexual references and illegal activity subject matter in the Chat Room.   
5. No specific doctor or hospital name mentioned in a negative context, for legal reasons. 
Specific doctor or hospital names in a positive context are welcome.
6. No sharing of members' posts to other sites without their express permission.
7. No soliciting, advertising, or fundraising.
8. We welcome people of any faith and no faith, but we ask that you not evangelize or attempt to impose your belief system on other members.
9. Check your politics at the door, please.
Thanks for your cooperation.
 

Disclaimer

All of the material provided on this site, such as text, treatments, dosages, outcomes, charts, patient profiles, graphics, photographs, images, advice, messages, forum postings and any other material submitted on this site are for informational purposes only and are not a substitute for professional medical advice or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding your health never disregard professional medical advice or delay in seeking it because of something you have read on this site.

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Ben's Friends Fundraiser

Hi Past & Present Ben's Friends Supporters! 
We really need your help. Our annual Ben's Friends fundraiser is way below goal. So far we are at $14k with many generous donations. But at the very least we need to be at $25k, and ideally at $35k or above. 
We're probably the most efficient non profit in the world, helping 125,000 patients per month with a budget of $3k per month. But even we can't survive on $14k. 

Please donate at our super easy Donation Page at Ben's Friends . A $5 donation will make a big donation. Everything is tax deductible!

We realize most members aren't in a position to donate. Those members can help by spreading the word about the fundraiser on the communities and on Facebook. 

We need your help to keep Ben's Friends alive and going strong!
We really need your help! Please donate, even if it's $5, that will really help.

Thanks!
Scott
(Co-Founder of Ben's Friend)

What is Fibromyalgia?

Fibromyalgia is a rare disorder characterized by chronic pain in different parts of the body. Aside from widespread pain, other symptoms include fatigue, sleep disturbance, and joint stiffness.

Person with Fibromyalgia (FM or FMS) experienced chronic widespread pain and allodynia (a heightened and painful response to pressure). Fibromyalgia's exact cause is unknown but is believed to involve psychological, genetic, neurobiological and environmental factors. Fibromyalgia symptoms are not restricted to pain, leading to the use of the alternative term fibromyalgia syndrome for the condition. Other symptoms include debilitating fatigue, sleep disturbance, and joint stiffness.

Forum

black ice

Started by momonthecouch in General 8 hours ago. 0 Replies

hi anyone. Just need to vent. I have had a terrible week.  My fibr o has been in high gear for some reason.  I also have been receiving cortisone shots in my back every month for over a year due to degenerative disc disease.  So I have been having…Continue

Keep your fingers crossed for me!

Started by lilybit in General. Last reply by Ticklefrom 9 hours ago. 3 Replies

Ok so I just took another step in my teaching career and applied for a grant...wish me luck!I teach an AVID elective at my school.  AVID is a college-bound program for students who, without help, support and encouragement (and a little loving kick…Continue

Significant finding that ties mitochondrial myopathy to fibro, as well as treatment that allows the patient to live a normal life

Started by Petunia Girl in Journal Articles and Reference Materials on Friday. 0 Replies

Mitochondrial myopathy presenting as fibromyalgia: a case reportMishal Abdullah, Sahana Vishwanath, Amro Elbalkhi and Julian L Ambrus** Corresponding author: Julian L Ambrus jambrus@buffalo.edu…Continue

Ups and Downs

Started by SaraZ553 in General. Last reply by Rachel on Thursday. 5 Replies

I'm tired of the ups and downs.  I want to have some consistency.  I would love to have one day that was the same as the next (a good day).  I feel like I have whiplash from all the back and forth.  I never know what to expect from day to day and…Continue

Thankful I found this site!

Started by Dyana in Introductions. Last reply by suzie on Thursday. 4 Replies

Hello,I am new to this site and so thankful I found it. I am a mid forties wife, mother of five and grandmother of eight. I was finally diagnosed with fibromyalgia in October after eight long years of struggling with pain, fatigue, and LOTS of other…Continue

Sore dry eyes and exhaustion

Started by Suzeewong5 in General. Last reply by Allison on Thursday. 6 Replies

HiDoes anyone else out there with fibro suffer with dry stinging eyes?Been told could be fibro, am using a spray on eyelids but relief is only short .Also am exhausted, have iron stores at bottom level of normal and haemaglobin at bottom level too.…Continue

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Keep in touch with friends. Get support and information while on the go. DOWNLOAD the Ben's Friends iPhone App now!

Be inspired by the helpful tips and amazing stories of patients with rare diseases. Get the e-book "We're in This Together: Stories & Tips from Patients with Rare Diseases" HERE.

About Our Living with Fibromyalgia Support Community

Mental Health Hotline Information

DEPRESSION is a difficult challenge many of us living

with chronic pain deal with. 

IF YOU ARE IN IMMEDIATE NEED OF HELP

OR JUST NEED SOMEONE TO TALK TO 

please feel free to call   

1-800-273-TALK

for members in the United States.

 

For international members, please visit

http://www.suicide.org/international-suicide-hotlines.html

for information on where to call in your country.

Latest Activity


I'm a New Member
Aberry22 liked momonthecouch's discussion black ice
39 minutes ago
spirit1 liked Auburnm's discussion Reflection
8 hours ago
momonthecouch posted a discussion

black ice

hi anyone. Just need to vent. I have had a terrible week.  My fibr o has been in high gear for some…See More
8 hours ago
Ticklefrom replied to lilybit's discussion Keep your fingers crossed for me!
"Best of luck to you in your new adventure! "
9 hours ago
WindDancer left a comment for Chicky55
"Chicky55, I am sorry that it has taken me so long to reply.  I have been quite ill and have…"
9 hours ago
WindDancer and Chicky55 are now friends
9 hours ago
suzyq posted a status
"AND FROM THE PATIO TO THE MAIN SIDEWALK BUT ITS ONLY A FEW FEET.I LOVE ALL OF YOU FIBROGANG!!!!!!!!!!"
10 hours ago
suzyq posted a status
"DO THE SHOVELING.I'M EXPECTING 5-10 INCHES.I LIVE IN A LARGE APARTMENT BUILDING AND THE MAINTENANCE STAFF DOES THE SHOVELING EXCEPT MY PATIO"
10 hours ago
 
 
 

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Are You in Crisis?

First take a deep breath, then call the National Suicide Prevention Hotline immediately. 

1-800-273-TALK for members in the United States.

If international members, please visit http://www.suicide.org/international-suicide-hotlines.html for information on where to call.

If you are or have been in an abusive situation and need help, please call 1-800-799-7233 or visit 

http://www.pbs.org/independentlens/kind-hearted-woman/resources.html

Photos

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"To Know the Joy of Giving"

Blog Posts

I haven't posted recently because I have been trying to recover from a very busy few months. I have been suffering from extremely painful back spasms since October, and they have been getting worse b…

Posted by Ldyhawc on January 28, 2015 at 9:07pm 2 Comments

I haven't posted recently because I have been trying to recover from a very busy few months. I have been suffering from extremely painful back spasms since October, and they have been getting worse by the day. I have spoken to the doctors and…

Continue

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